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Alright, so I've seen this story mentioned a few times in The Hartley Hooligan's thread.
Having never heard about the case of Jaxon and his parents, I decided to look into this story. Whilst Gwen is delusional and misguided at best, the Buell's exploitation of their vegetative son is repulsive.
because me-not-speak-a de english so good, I'm just gonna post links and invite anons to contribute their opinion. I'm not a great journalistic writer, so I'd like to open up a discussion on the matter and hope someone here will take a cue and offer their 2-cents on the matter.
tl;dr for people who are also new to the case: two redneck american kids exploit their potato son (who appears to have NO quality of life) to buy jetskis, holidays and luxury lifestyle, all while under the guise (see: tax-evasive) of being a charitable foundation. I'm not even kidding; http://www.jaxonstrong.com/https://www.facebook.com/WeAreJaxonStrong/
FB page asking all the right questions:https://www.facebook.com/jaxonstrongtherealityJSRE/?fref=nfhttps://email@example.com/jaxon-strong-exposing-the-reality
Again, apologies if this has already discussed, but apparently I've been living under a rock.
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>the lights are on, but nobody's home
I never heard of this anon but oh my god that article on steemit broke my heart. This makes Gwen heartley look like mother theresa. more ppl need to know about this
I've been itching to post a youtube family. Woman has self diagnosed her son with autism, OCD, anxiety, you name it. Has binge eating disorder. Her husband seems to have fun upsetting and controlling the little boy.
These are a pair of sadistic fucks, being egged on by 100000+ other sadistic fucks. I think Gwen at least has a mother's love for her two potatoes.
This video allegedly shows this poor child "excited and playing". If you experiment with turning the sound off to watch it's obvious he's having seizures. https://www.facebook.com/WeAreJaxonStrong/videos/384470238411750/
These people are sick
And as >>208209
pointed out they have hundreds of sick people following them. I even seen a comment about his brain adapting…huh? The poor thing doesn't even have a fucking brain. Couldn't even watch the whole thing. Seizures do not feel good at all. Imagine your life being nothing but an endless void of pain with no meaning. At the very least Gwen may be delusional but she isn't on gofundme asking for donations. These two are gonna milk their gravy train-I mean son- until he dies and probably even in his grave in the name of "science"
There is a family in Italy, I think, who had a daughter named Vitoria who was born with anecephaly, among other problems. Her problems were acute but the parents are deeply religious and did their best to raise their daughter with joy while showing the dreadful nature of her affliction: http://belovedvitoria.blogspot.com
They treated her with respect and honored her dignity. She wasn't dressed like a dog, her poop wasn't smeared all over the Internet. And though she had even less brain than the Hartleys, she was clearly sentient and had a relationship with her parents. She smiled and could interact with them. There are some pictures of her laying on her father's chest when she was ill as he comforted her and his interaction was so different than that of Scott or Jaxon's dad. No slickness, no jokes at her expense, no forced jollity. Just a father comforting his baby.
It's one of the few blogs where the child is treated like a human being. Vitoria died before she was three.
Later in the video, where they seem to be teasing him: https://youtu.be/h45VkWBRkzg?t=512
I think it's telling how he says bosses can hurt you and punch you, and then says his mom isn't his boss. His dad then asks him who is your boss and he says "you"
Another video where the father is teasing him. This is what they call an "OCD meltdown":https://youtu.be/W99s0zcK2mA?t=454
I think it's pretty normal to not want to be alone in a fucking elevator at that age. But this is their proof of "meltdowns"
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Last post and I'm not derailing the thread anymore. If someone wants to take this family and make a thread go for it. I think there's ample milk
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His eyes are always super dilated, I read somewhere that they dose him up with heavy opiates
Oh sweet jesus. That poor thing :( I actually feel bad for him tbh, his existence is probably a nightmare
On the side note, what the fuck is going on in that channel's descriptions and comments…
"The Creature", "I'd like to see it put into a bathtub on a Friday afternoon and leave for the weekend." like whaaaaaaat
Everything about this. Mom's voice. That he could so easily get tangled up and hurt the way they've got him in that thing. The weird new agey background music. It's all so disturbing. Honestly tho i'm gonna be hearing that background music in my nightmares.>>208473
Most normal people don't even talk to their young, stupid 8 week old puppies and kittens that they just brought home from the shelter with this voice.
I can't remember the episode, but Penn & Teller's Bullshit did a segment on a fam in Mexico that had a severely retarded/vegetable/something daughter, and were milking it like the poor shitwipes they were. Some kind of oily film was starting to develop on everything in the room (there was a completely scientific explanation for this, but I can't remember lol) and the family started scraping it off and selling it in baggies as angel tears or some shit??? They were also charging admission for people to come in and pray for her. (Paraphrasing a lot of that, it's been a while since I watch BS)
I DEF remember this part tho: The producers tried to reach the familia for comment, and they sent a baggy of the angel grease instead and some tacky as hell promotional flyer. Penn presented with no humor, no jokes, just disappointment.
The Buells have also written a book for Jaxon, and of course, all the funds go to the foundation named after him (aka their bank account). https://www.amazon.com/Dont-Blink-Little-Expected-Teaching/dp/149641652X
It's essentially the same exploitation as the dad who wrote Heaven Is For Real, but probably tons more fiction and an equal amount of religious malarkey for the bible nuts.
The parents responses ffs, they are sadistics fucks. I actually feel sad for the potato.
Also, I think there is another facebook page of another child with the same disease. It was something like "thoughts and prayers for (name of the tator)"
sage for offtopic
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It's so obvious in this latest video that he's constantly having seizures
The exploitation of these poor people is one of the sickest things to come out of social media. You know damn well that without Facebook to gather attention, they wouldn't put forth the effort that goes into taking care of individuals with these disabilities. They are simply doing this for the money and attention, so much so that it's diluted their sense of reality imo. >>208469
No logical parent would look at their child like this and think they're doing the right thing. You must be on a completely fucked up level of self-righteousness to believe that, "Oh, all of God's creations are beautiful! God sure is great!" and have your child seizuring and living a life of pain.
And what's with that fucking music? The soft ambient music doesn't change the fact your child is a fucking shell of pain. >>208474>>208549
Yeah, I feel like that channel and anyone associated with it are their own lolcow. To have that much hate (even if it's just trolling) for someone put in that situation is pathetic imo.
Yeah, the descriptions of these vids only serve to draw attention to how saintly his parents are. I wouldn't be surprised to learn that the Bluells themselves are posing as an evil, mean and nasty internet troll.
Anyway, in this video the seizures are disguised by frantic shaking on ma Bluell
The constant seizing and brain damage posturing is immaterial to these parents who have quite their jobs and gained a half million dollars from 'fundraiser' donations based on this being's suffering.
People like this need to be run out from civilized society, and the people who fund them severely shamed.
Wow, the comments on the videos are savage! Apt, but beautifully savage.>>Oh yes, what a beautiful moment. An all but brainless baby shrieking in misery, while his trashy mother forces gross, slobbery kisses on him
>>why is it beat red and screaming "i love you " ??? Oh yeah cause a brain dead flesh blob cannot talk..these only sound like words they want to hear, pathetic parents..keep on pimping out your suffering mistake..
>>Many are saying that Jaxon is "mimicking" what he hears and not really expressing thought. But the pesky facts keep getting in the way. Jaxon is not mimicking anything. Jaxon is not hearing anything. Jaxon has vocal cords, lungs, a mouth and a brain stem. The areas of the brain that allow for hearing are simply non existent. The area of the brain responsible for thought are non existent. In fact, he has NO brain, just a "….thin white line.." as the Neurologists describe what surrounds the brain stem. The brain stem allows for reflexive mouth movements. The lungs allow air to be moved past the vocal cords and the result is the same, repetitive mouth movements that cause similar sounding noise. Has anyone ever noticed that after he makes that same sound, his mouth will continue to move, repetitively, but with his vocal cords engaging? Think about it; He has no brain. Like I said before, remove the hard-drive from a computer and the computer is worthless. You could sit at the keyboard all day, typing away and you'll end up with nothing but sore fingers. Jaxon is the computer without a hard-drive. A parrot has more intelligence than does Jaxon. Now I'll put away my soap box and bow out!!
>>he doesn't really sleep, when the neurons pitter out, he goes into a comatose state, in order to "wake" them up again, one must apply a sharp pain to get them going, which means he can feel pain and they do apply it
>>delusional! He says "please euthanize me!"
Quoted from JS:RE fb, on just how *~inspirational~* their story is
"A tragedy is usually not considered to be an inspirational event to most people, that is, if you understand the definition of the word in ordinary English usage. Those who insist that it IS inspirational are either lying or, to be generous, maybe are simply at a loss for words and are just trying to be kind, as in trying to rationalize something they know in their heart of hearts is obviously not an inspiration. And if that’s the case, why the need to rationalize?
If someone lost all cognitive function and had to live the rest of his/her life in a state of non-awareness and total dependence, daily vomiting, daily seizing, possible ongoing pain, never being able to walk, talk, read, write, sit up, eat, drink, go to school, work, process vision and hearing, if vision and hearing are even possible…why would you consider that bodily shell of an existence “inspirational”? Is that a state you would like to be in yourself? Your children? Your spouse? And, just because that absence of function originated in utero instead of after birth, then why is that different, and inspirational?
Inspiration, by definition, is the state of being motivated to do something oneself towards change or create something from that inspiration.
So, with that in mind, how does someone else being born without the very seat of “self” (that is, the brain, the very thing that makes a human an autonomous person) literally “inspire” others? What have these inspired people been inspired to do specifically, or even just feel, if that’s all it is? What is the feeling? Gratitude you’re not in that person’s shoes? Gratitude for your better fortune? Is it a tacit way to express one's political or religious views–that is, it's not really inspirational at all, but rather,it's the "proper" religious and/or political stance to take.
What is the actual outcome, the fruits, of this inspiration? What is it about this tragedy of others that makes such a tragedy a POSITIVE thing for those not experiencing the tragedy themselves? Nobody has ever been specific about that.
So to those inspired folks, some of whom we know read this page, please be specific as to this inspiration of yours. What have you been inspired to do by a child being born without a brain. It’s been asked before, but not a single person who’s been asked previously has answered, much less even acknowledged the question. That suggests to me there is no answer—that is, there is no inspiration in such a tragedy at all—quite the contrary—and they know it. But, I’m giving the benefit of the doubt. Please explain this amazing inspiration over a neural tube defect that leaves a child without the very thing that gives all of us our very “self.”
What is it, literally, about a child’s brainless existence that inspires you in a positive way and inspires you to…what exactly?"
The facts he looks redder than in most videos make me wonder how many time his parents shook Jaxon waiting for the random screams to make sense by pure chance. It's like the infinite monkey theorem.
Also, this one comment hasn't been mentioned in >>227316
but explains my point better:
> I have noticed something…he has three videos of him "talking," all of which appear to have happened in the EARLIER part of his life. In all three of these videos, he is crying both before and after the "words;" he has never done it while sitting calmly or while not in the middle of a seizure. The sounds he makes at rest sound VERY similar to those of an anencephalic newborn dying in the delivery room.
> Theoretically, he should be "talking" more and more with age, because as children age, their crying instincts diminish as they begin to communicate with sounds and gestures. Since he seems to be speaking LESS with age, I think it is more than reasonable to assume that these were just crying sounds that resembled words, and the fact that he doesn't do it anymore means that they were more related to instinctive/unlearned crying rather than cognitive/learned communication.
Sage for samefag and answering a one month question but I just caught up with this thread. And possibly OT since the girl does not have microencephaly but trichothiodystrophy (a rare illness that causes premature aging), but the story is too insane not to share.
In response to >>208107
Not sure what you mean by "families like this" but if you mean "parents who exploit actually sick kid for profit", I saw this in the local press very recently http://elpais.com/elpais/2016/12/12/inenglish/1481534700_061668.html
Old interview (srry only Spanish but I will sum it up): http://www.elmundo.es/sociedad/2016/11/26/5838793bca47418e748b45e2.html
In sum: father of 11 yo girl with rare disease raised fraudulently around €1 million.
Things he has claimed to spend the money on (while constantly claiming the girl was "about to die")> recruited the "best team of geneticists in the world"> send letter to Al Gore to seek help, Al Gore phoned back in person and called him "a hero"> the last specialist in his list (recommended by Nobel prize NASA Dr) was a mysterious scientist that lives in a cave in Afghanistan> went to Afghanistan in the middle of a war> epicly carries daughter on his arms "under bombings and shooting"> end up in refugee camp and by chance meet THE MOTHER of the scientist who lead them to the man in question> last thing he claimed to need funds for a genetic manipulation that is prohibited in Spain" involving "three holes in the back of the neck to reset the brain" and that is only performed by ONE surgeon in the world
Obv turns out there was zero evidence about any of this and he's been jailed lol. How tf his fairytale like interview were even published in the newspaper of record and how the lie lived for so many years are beyond me.
after watching this video, I noticed he howls and screams in pain when he's not seizing. Towards the end, everytime his neck/head jerks up it makes him wail like a banshee.
This means that his entire life is a constant cycle of involuntary jerks and unimaginable pain :(
makes me so fucking angry
This latest video really takes the cake. I swear it looks like they purposely induced a seizure in him and then used his shaking hands to claim he was working on playing the piano. The commenters are as moronic as the parents,saying things like " His gross motor skills progress is VERY evident. You could see how hard he was working to control his arms so he could touch the piano keys." Hey idiot.. It is biologically, physiologically impossible for him to do what the parents are claiming he does. You cannot play a piano, not even a toy version of one, when all you have is a brain stem…the brain and body do not work that way!
" width="400" height="400" style="border:none;overflow:hidden" scrolling="no" frameborder="0" allowTransparency="true" allowFullScreen="true"></iframe>
The video link didn't come out quite right…trying again, if it doesn't work this time and you're curious to see it, just go to the jaxon strong facebook page and take a look at the latest video where his parents talk about them all hanging out in his room while he works on his piano playing skills.
" width="400" height="400" style="border:none;overflow:hidden" scrolling="no" frameborder="0" allowTransparency="true" allowFullScreen="true"></iframe>
I beg to differ:https://www.facebook.com/WeAreJaxonStrong/videos/481211845404255/
Flashing lights can induce seizures, and they do nothing to comfort or reassure him while he seizes, and they try to pass it off as 'playing'. He looks absolutely done-in and is basically being exploited and tortured.
I feel very strongly that this would constitute abuse
They've been in the spotlight enough in the last two and a half years that there's a good chance that CPS has been called already. But even if someone did call them before or does it now, I honestly doubt that they'd do anything after the initial visit. CPS workers are usually always so swamped with cases that unless there is clear evidence of neglect or abuse, they won't take any action. And I know watching him seizing while his parents cheer and pretend that he's "having so much fun!" definitely looks like abuse to many of us, but the Buells have fooled many people into thinking they are amazing parents with a miracle child. Even news reporters wind up buying their claptrap. They'd likely give the same story to a CPS worker that came by that they give to the rest of the world. They'd say that Jaxon isn't having horrible seizures, oh no, he's just working against his muscle spasms because he's trying so hard to hit the piano key or press the lights on his turtle or play with his rattle, etc. We know that all that is BS and that he lacks the brain to be able to do carry out any purposeful tasks, but a harried, overworked cps agent isn't going to know that. So no, i'm afraid they're not going to put them in parenting classes or send them to counseling They'll visit the Buell's home, and if its relatively clean and orderly and Jaxon doesn't have bruises or other signs of physical abuse, they'll thank the parents for their time and close out the case.
I wouldn't doubt it. They're living the life of Riley with the funds that people donated for their son's care. You know I follow the thread about Gwen Hartely and her microcephalic daughters and I find the things she does repugnant, such as posting pictures of the girls on a couch half naked or pics of Lola on her father's lap with Lola's shit on both of them.
But as bad as she is, and she's pretty damn bad, whenever I read about Jaxon's parents and the way that they constantly torture him, ignore his health issues, video his seizures while pretending that he's playing with a toy, somehow Gwen doesn't seem that awful by comparison.
Not trying to be edgy, they're just flat out cunts.
They actually the Hartley Hooligans look like good people.
I was terrified of elevators at that age. A lot of kids are. Some don't like the fact that the door closes and the car moves and you can't get out. Sometimes the lights flicker. A kid being afraid of an elevator is pretty normal. I think they saw all the news about autism and decided to get some brownie points for exploiting a kid they diagnosed themselves.
Most toddlers have meltdowns. It can be over the silliest of things. I'm wondering if they ever took this kid to a professional at all.>>227305
I remember an article about this poor kid. but I had no idea the parents were exploiting him. He's constantly having seizures and there his parents are laughing at him and trying to get him to perform for the camera like a trained poodle. That's really sad.
I can't believe they still have brainwashed followers who think that they are a legit charity foundation at this point.
Had to evade a ban just for bringing this up, and whilst I’ve seen a few mentions of the case of Jaxon Strong in the Hartley Hooligans thread. As previously concluded, the parents of this profoundly disabled boy, well once you read through some of the details I didn’t hate Gwen quite so much. Jaxon is so disabled that he only ever experiences constant pain, fear and discomfort or,he has the pinned, half-lidded eyes and and slack-mouthed drool associated with heavy opioid sedation.
If he is not screaming in pain and turning beet-red, he is seizing in convulsive shakes whilst his parents record and narrate “how much fun are ya haaavin, buddy? You’re so haaaappy!” in sing-songy/sarcastic patronising tone.
Anyway, I just wanted to bump this because the buells recently spoke out at a pro-life-con and used their son as an example that “every child is precious”. https://www.youtube.com/watch?v=Wg68WnFBIxQ
At 1hr:32:00s in the video, Britney joins Brandon on-stage carrying a rather twitchy Jaxon. Flash photography is known to trigger
epileptic fits, and we immediately see him react to the strobe-like effect of the camera flashes. With two large convolutions that brandon dismisses as “Cute baby sneezes” the audience chuckles. Then Jaxon goes into a full, sustained, repetitive fit and ma Buell tries to restrain it by grabbing jaxon’s arms and locking them into place against him. ugh
Yeah Gwen Hartley is silly and misguided in what she does, but I think she does what she thinks is best.
The Buell's however seem sinister. I'd love to know how they treat Jaxon when they're not on camera.
Notice the fluffy hair - they don't like his head to really be seen as it is.
Gwen is complexity unhinged but she shows maternal love for her girls. What I notice about Jaxon's parents is they just manage him and prop him. The warm touch is not there, the protective gestures are not there.
>>249654>They are loving that baby, and he is loving them
Just fucking what. How to do get that from this fucked up situation. They feel they are owed money from their plight having a retarded baby. They are loving that cash fam, and the baby is a potato. If it has any lucid thought at all, it isn't "gee I love these assholes" it's "end this, kill me plz"
Gtfo of here lol
While this person was an obvious troll, there are scores of people on Jaxons facebook page that adore him almost to the point of worship. It reaches disturbing levels how they go on his curly hair, blue eyes etc. This is a being with almost no cerebral cortex, which means he's missing what makes the rest of us human, yet these people act like he's the second coming.
They also believe everything his parents say regarding all the "milestones" he's reaching, even though it's obvious that the poor thing is capable of little more than breathing.
In the latest video he's on his father is reading a story while Jaxon slumps on his lap, barely moving. He looked like he was dying. All he could do was stare blankly, blink and occasionally let out a shudder, yet some commenters stated how engaged Jaxon was with what his father was reading to him. One of them even wrote they could see his lips moving along with the words.
It's scary how delusional people can be when they want desperately enough to believe something. It wouldn't be so much of a problem if the parents didn't shamelessly exploit this tragically damaged child for money and fame.
Yes, people with HI can go on to lead productive lives. One of the oldest survivors became the first person with the disorder to ever have a baby a few years ago.
Jaxon on the other hand can do nothing on his own, not even eat. But he does appear to have part of his limbic system, so he probably can feel pain…lucky him.
they aren't deadly unless the patient goes into Epileptic Status (seizure lasting more than 5 minutes) but they sure as hell are unpleasant. I tried to work in the neuro ward and one of the things that made me quit was seeing babies and little kids suffering from excessive seizures.
if these parents had any compassion at all they'd stop doing things that are clearly over stimulating what little of a brain he has.
like damn he may be practically a vegetable but to make his existence so much discomfort and pain… yikes.
The footage of brandon speaking at the pro-life convention is very disturbing. The whole thing about exposing Jaxon to flash-photography and triggering
a seizure whilst trying to lock-down his twitching arms/body is just awful:https://www.youtube.com/watch?v=8mKHPzcPLCo
If you skip to roughly 7.25 in you can see it for yourself.
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This thread deserves more attention. These parents are monsters.
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This video is one of the worst examples of cruelty I've ever seen. The way the mum pushes that stiff plastic turtle with FLASHING(seizure warning) lights into his twitching body.
He is clearly very uncomfortable in this clip, and his mother's frenzied exclamations on what a fabulous time JAAAAXON is having (great job buuuuudy! you're having so much fun!) make it all the more disturbing.
I don't know why these two haven't had more attention from this image-board. The only other place that acknowledges how despicable these two are is JS:RE on facebook. I wish more people would call them out. As long as this thread remains pretty active, it will eventually be the first listing on google when you search for 'Jaxon Strong'.
How can you not see this situation for what it is: CHILD ABUSE/EXPLOITATION.
Add that to the fact that they use him to push their own sick agenda of pro-life is utterly gob-smacking. Jaxon Buell is an example of a child that ought to have been aborted.
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They have repeatedly said that Jaxon suffers from 'startle seizures', that are triggered
by loud noises.
Especially when, Brittney claims, she takes him out with her to run errands. She said that the sound of a motorcycle speeding by will usually be enough to trigger
My question is this; just how much FUN can this poor, mindless, sick little boy have when he's strapped onto a Jetski?
I can only hope that he lacks any kind of self-awareness or sense-of-self to realize the very torture he is being subjected to is at the hands of his parents.
Sound-sensitive epileptic potato-child gets just what he needs with wild and noisy jetski rides.
'ARE YA HAVIN FUN BUUUUUDAY??? OHH YOU'RE SO EXCITED!'
Could you stop samefagging pls?
How about you start your own "help Jaxon"-project? I´m serious.
Because bumping this thread is not going to change a fucking thing.
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I am involved in a project with a huge emphasis on raising awareness of microhydranencephaly. It's honest and informative not just about the condition itself, but of the sufferer's capabilities. The exact opposite of the picture we're painted by the 'Jaxon Strong Foundation'.
Where I live (in the UK) there is a female journalist who's received a lot of negative attention based throw-away comments regarding Jaxon's brainless state. Katie Hopkins she's called. The Buells sent their rabid fans after her for even DARING to say that a child with Jaxon's condition should be left to die, not cruelly kept alive (thus prolonging his suffering)
The Buell's lies and fraudelent donation soliciting is there for everyone to see.
I just feel that since the Hartley Hooligans are usually a widely commented on subject around here, that others ought to turn their attention to something that (I believe) is far more heinous.
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Why is the room around that little boy so messy? What is wrong with the parents? At the time that video was taken both parents stayed at home, unemployed - why don´t they clean up the surrounding of their immunocompromised child? And what is the use of fixating Jaxon that much in his seat? He looks so very much unwell (and uncombed) - is the table pressing against his J-tube? Does he feel pain because of that? Why is his mother repeatedly pushing the stiff plastic turtle against his chest?
so many questions.
Anyway, pic related is a publicity shot for their book. Notice how they've photoshopped jaxon with eyelashes, and even turned up the corners of his face to emulate a smile.
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If an animal was born with this condition people would be screaming for it to be euthanized because keeping it alive in such a condition would be animal cruelty. Why is it so different when it's a human? Isn't it just as cruel if not more so?
I also wasn't aware she had mentioned the Buells, but I completely agree that she would not be the best person to lead a confrontation against them, especially in light of her recent comments regarding the "final solution". Bitch is crazy.>>324590
This is a common argument for euthanasia. I completely agree that it's cruel to keep someone alive purely because you can, with no discernible benefit for them.
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These well to do, virtue signaling, yuppie cocksucker parents parading their sick children around for profit like it's an old 19th century freak show, thinking their fucking heroes. I know this type of scum existed before Facebook and Youtube, but they were not nearly this numerous. Would it kill these parents to maybe consider that their child, if he could form cohesive thoughts, would like some privacy and would prefer not to be in the limelight constantly?
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…no functions, he won't even move beyond some involuntary wriggling. No brain, only a brain stem to keep things ticking along, but nothing more…all the other functions of the human body like sight, hearing, movement, thought, speech, sight, etc, are controlled in various areas of the BRAIN, all the brain stem does is basic automatic functions like heartbeat and breathing and blinking.
God must have a warped sense of humor if this is a "miracle"…
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This is not the ideal place for you (and neither is Kiwifarms if you are posting there). I recommend stick with the Facebook group.
Just a bystander, but what makes you say that? Is this discussion too hadcore?
I prefer the blatant honesty. I like how everyones anonymity contributes to it.
However, I agree with the anon up there who complained about samefagging.
Say something new if you want to contribute. I don't care that this discussion has been bumped so many times; it is far more interesting than most of the snowflakes in this entire category.
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LESS BRAIN FUNCTION THAN LOLA, MORE PAIN RECEPTORS THAN LOLA
See on his scan? What is the lumpy bit at the back of his skull? That always confuses me. Am I just being stupid and is it just hair? Although I didn't think that showed up on this sort of thing.
Sorry I have noooo idea when it comes to the scanning area of medical shite.
I'm with you. I don't think hair shows up on MRIs. I've always wondered what that antenna looking thing on the back of his head is. Is it a shard of bone?? He just has big rolls of skin on his head with all that room left die to the absence of a skullcap.
I really hope someone knows what that is because I've been curious for a long time.
I'm with you anon.
Yeah, if the occipital bun is the rounded bit at the base of the back of the skull, what is the antennae-esque spike among the knobbly white
stuff towards the back of the skull? That's what I was referring to when I first asked. It's like the back top of his head is all folded or something. I'm not very good at explaining exactly what I mean though.
I think that he has enough brain power and vision to sense light and I think that light is very painful for him. It triggers
his seizures and makes him upset. But his parents still think he's having a good time when he's clearly in pain.
I think the parents caught on quickly to the fact that flashes of light will cause some sort of reaction (and in his case, any sort of reaction that he has on his own is good enough) so they've used it to the fullest extent. You'll notice in their very last video (where daddy is reading to him) there are flashes of light here and there. But the kid is so doped up, all he does is drool and yawn.
In the earlier videos the parents took advantage of his pressure points in order to fool their audience. It is blatantly obvious in quite a few videos. This was at their peak of "Jaxploitation" and their idiot fans just ate it up. I doubt we will ever see another video ever again. My guess is that the infantile spasms back in October really did him in and he has been steadily declining ever since.
A few weeks ago, the mother posted on her personal Facebook page asking for prayers because Jaxon couldn't handle his feeds.
When babies are dying, they'll eat less because their bodies are gradually shutting down and they don't need anymore fuel. Then they'll usually experience "end of life seizures" where they'll stiffen up for minutes at a time. Once that happens, they will pass away within 3 days.
Some people think Jaxon has already kicked the bucket. I always wondered if the Buells would attempt a final Go Fund Me collection for burial expenses (one final attempt to cash in on their "miracle"). I also guessed that the press would be all over the story. I'm sure the Grandparents won't be able to keep quiet either.
Only time will tell.
If it's the fundraiser I'm thinking of it was actually instigated by the grandfather of Jaxon.
A man who just so happens to be a super conservative, fire and brimstone teacher who insists on including biblical elements in the classroom.
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He has a pretty nasty looking stye on that eye, probably related to that.
Apparently Brittany is selling her rings on an FB group. Did they burn through all the cash they raked in? Are the Buells splitting? Who knows
Is it just me or is her posturing? Looks like decorticate rigidity.
Just pull the plug on that fucking kid ffs.
I have mixed feelings on the guy's channel. On one hand, you have videos like this https://youtu.be/T61CO5p534Q
which seem like important advocacy for a group that is sometimes treated badly for no reason despite being fairly capable.
On the other hand, you have situations like this https://youtu.be/Ayt465ueRgM
that are absolutely sickening. I'm surprised they didn't moderate the comments, because not all of the viewers are buying this fake uplifting crap. Anyone willing to go to these lengths to prove 'every child is a miracle and abortion is always wrong always' is a disgusting excuse for a human being.
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does anyone know what happened to the jaxon strong: reality exposed Facebook? it seems to have been taken down
yeah, the guy seems really genuine and after watching some of the videos i find it hard to dislike him. at first i found him purely unsettling but past the cheesiness of his videos he's honestly kinda sweet. there's also quite a few videos he's done with people who are high-functioning, or simply have physical deformities, and have good quality of life. he did one with this kid who has a brain tumor as well as one for a guy with PTSD. so not all of it is shitty "every life is valuable even if theyre a genetic fuckup basically dead and suffering" kinda bullshit. while a lot of the videos were honestly kinda sweet, a few of them made me support eugenics (when it comes to severe disability) even more than i already do. >>358506
a lot of the kids on the channel seem really sweet and i do feel bad for a lot of them because they're actually human. fucked up brain or not, at least they have one. i find it hard to feel this same kind of sympathy for jaxon or the hh sisters just because they aren't even alive. if anything, watching some of the videos made me feel more sympathy for the kids who actually need help. the "donations" to jaxon strong should have gone to researching or treating disorders like in vid related. people just overlook that in favor of SPESHUL MIRACLE BABBY THAT DOCTORS TOLD ME TO ABORT.
The poor bugger has no brain to speak of except for the basic limbic system (correct term?) which keeps his heart beating and his lungs drawing in and expelling air etc but he's not capable of anything more than that.
He definitely can't see, the only reason he appears to be looking around and interacting with his environment is because he is seizing almost continuously and that causes his eyes, face and body to move.
He has no ability to retain information, form memories, communicate, feel safe/unsafe, loved or comforted or anything really.
He can't interact with the outside world because it doesn't exist for him in any way.
Unfortunately it appears that the poor creature does experience pain… How's that for a bum hand
Imagine, a constant stream of pain with no point of reference, no beginning that only ends when he finally dies.
And all the while his pos parents smile and coo at him as he seizes, literally laughing at his pain and pretending that he is expressing happiness so they can continue with their disgusting charade.
Ignoring his immediate needs is essential because documenting his pain is what allows them to make bank.
The thought that these fucktards legit wait to film jaxon until he's in the depths of a severe seizure- because it's when he's most animated- blows my fucking mind.
But intentionally allowing their child to suffer needlessly is the surest way to mislead others into believing that his involuntary sounds and movements are him exhibiting progress because ~muh miracle babby~
And that means lots of gullible bucks for them.
Saged for needless rant, but these people really make my blood boil
Sorry, I just don't think straight with these fuckers, all I can do is froth madly at the mouth and now they've cost me the ability to grasp basic context and subject matter
Does their evil know no bounds?!
Sage for being a hurr durr
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Okay, I know who this kid is. I'm part of a facebook group the mom is in. She runs a blog and talks about her and her son's experience. The kid is named Samuel and has a fatal form of dwarfism that very, very few children actually survive.
Anyways, the mom is a bit of a hardcore Christian, so it's not surprising.
Anon, those are just blue eyes, lmao.
There are far better reasons to find him creepy. One example is when he was talking to a kid that was otherwise normal, but was physically impaired. He asked if he had the same urges as 'any other 16 year old'?
It was awkward.
Sadly, if there was less easy money to be had either as parents receiving government handouts or people who bogusly try to work with these severely stunted children, a lot more people would be supportive of abortion.
It's true that many people only help severely handicapped and impaired children for money.
It's also true that many will resort to keeping the children alive as long as possible, even against their best interests, for money.
This man strikes me as disingenuous, and ultimately self-serving.
It's like I appreciate the (intended) exposure of having these children's voices being heard >>358766
when they're evidently conscious and feeling.
Yet there's videos like >>361774
and the one he did with the Hooligans where all he's doing is projecting emotions onto the children in order to manipulate the viewers.
I don't believe someone who advocates for the quality of life of children would ever compare the state of the Hooligan girls to girls like Lauren >>354570
, and say there's no difference when there is.
his face looks bloated to me. i wonder if his kidneys are functioning well? that second, blurry picture of him is really disturbing; his eyes are going in two different directions.
if there is a god, this kid will die painlessly in his sleep. this is beyond cruel. you can see that he would have been a cute kid. it's just depressing as shit.
All the meds I'm sure he needs to survive will have done a number on his kidneys by now.
And if there's a god I'm sure he is having a good laugh.
Wouldn't that be special?
"Hi Jaxon! Right there is a camera. The whole world can see you!"
Twitch, twitch. Gurgle.
"What's something you'd like to tell people about you? You're very special, Jaxon."
I know that has been rumoured in the KF thread recently, but has any proof come forward?
It seems logical that's where he'd be as I can't see either of them bothering to care for him out of love, and they have dissolved the nonprofit.
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Almost all obit posts and News reports showed the more flattering earlier pics of him than his current ones.
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Found the original post. Apparently he also had pneumonia. Probably got it after DNR.
I just can't believe his death is so recent, just a month ago it happened. I assumed he died a long time ago. Heck even Lola's death feels like a distant memory. What pissed me off is that media in it's reporting of his death keeps calling him a miracle child with milestones and inspiration. Plus they presented Brandon's post about Jaxon dying in his arm. What a farce. Shame that the other side of the story remains obscure and could be found only here and on Kiwifarms.
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