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File: 1502671377796.jpg (24.01 KB, 420x294, 7be59c971d3c8b58c72a7f68d1252c…)

No. 372040

Over-The-Top Spoonies/Munchausen By Internet Attention Whores General #8
Previous Thread: >>362479

Discuss people who feign or exaggerate chronic illnesses and medical crises for attention and asspats online. Previous topic focused primarily on Instagram accounts, but posts from blogs and other social media sites are admissible.

Most recent active IG cows:
Eli, aka folie_a_you
kelly.ronahan; me_and_the_mr (has her own thread >>359452 ).
hypermobileguy
chronically_jacquie
MyBlondeVoyage
onemorestep2
endlessvoices

The Munchie Queen of all time is Robyn Brown, who has her own threads (original: >>197138 ). Sadly she is now incognito.

What Is A "Spoonie"?
People who identify as 'Spoonies' are referencing 'The Spoon Theory,' written by a woman with lupus to explain the chronic illness experience to a healthy friend who asked her what it really feels like to live with her medical problems.
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The 'Spoonie' Community is, in general, a legitimate supportive network for people dealing with chronic illness. In recent years, however, it has become polluted with SJW types and has attracted a new breed of attention-seeking catfish: people who lie about, fake having, and/or exaggerate existing medical problems and crises for no benefit other than to garner attention.

What Is Munchausen By Internet (MBI)?
From Dr. Marc Feldman, an expert in factitious disorders including Munchausen Syndrome, first described Munchausen By Internet in 2000:
"…the advent of online support groups, combined with access to vast stores of medical information, enabled individuals seeking to gain sympathy by relating a series of harrowing medical or psychological problems that defy comprehension to misuse the groups.[1] Communication forums specializing in medical or psychological recovery were established to give lay users support in navigating often confusing and frustrating medical processes and bureaucracy. Communities often formed on those forums, with the goal of sharing information to help other members. Medical websites also became common, giving lay users access to literature in a way that was accessible to those without specific medical training. As Internet communication grew in popularity, users began to forgo the doctors and hospitals often consulted for medical advice. Frequenting virtual communities that have experience with a medical problem, Feldman notes, is easier than going through the physical pain or illness that would be necessary before visiting a doctor to get the attention sought. By pretending to be gravely ill, Internet users can gain sympathy from a group whose sole reason for existence is support. Health care professionals, with their limited time, greater medical knowledge, and tendency to be more skeptical in their diagnoses, may be less likely to provide that support."

LINKS to articles and info on MBI:
https://www.munchausen.com (Dr. Feldman's website)
https://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239
https://www.abc.net.au/news/health/munchausen-by-internet-what-drives-people-to-fake-an-illness/7631990
https://www.theguardian.com/society/2015/apr/29/jules-gibson-munchausen-by-internet-sickness-bloggers-fake-it-whole-pantry
https://en.wikipedia.org/wiki/Munchausen_by_Internet#Characteristics

No. 372052

Also recent active cows:

Carmel (chronically_carmel)
aubreys.lyme.journey
chronicallyhangry
chronically.christina
Chloe Leanne (chloeschronicles_of_illness)
freephim
Robyn Lambird

The MSbP mother with the two girls she's destroying, I forget her handle.

And don't forget Babybear, munchiest of them all.

No. 372053

>>372052
Wanted to post what Carmel's up to, but she's just posting about shit (literally)

No. 372054

>>372052
Mytitus2journey is the MSbP mother

No. 372055

>>372053
I'm curious whether she realizes that if she does force them to put in a tube, it's really because of deliberate starvation (mild ED behavior), not any real medical need at all. Is she aware of what she's doing? Does she know that it's a totally pointless intervention but she's dug herself in so deep that now she's going to starve till she gets it?

She is sick. But not in the way she wants to be.

No. 372062

Finally able to shit post on Jacquie's YT as she's ironically too sick to moderate it.

She'll be back soon, no doubt to milk this as a near brush with death. I think she'll get taken off IVIG, but let's be honest, she was never gonna stick with it. She'll just move on to something new.

Maybe she'll actually get fucked up enough for her shit to get reviewed by doctors she hasn't shopped for. One can only wish.

No. 372074

>>372062

I think someone is deleting comments, I didn't see any negative ones, and mine got removed.

No. 372079

>>372062

It's weird that they give out IVIG so freely in the US. In the UK, it's very restricted due to it being a blood product that's obviously limited.

No. 372125

>>372079
It's supposed to be limited here in the us as well, but the munchies demand it and their dumb doctors write them a prescription. Ivig doesn't always help, and has a high rate of complications, so a good doctor would be very cautious going forward with it. Obviously jaquie has found a doctor who just does whatever jaquie wants.

No. 372126

File: 1502684540230.jpg (712.57 KB, 1080x1894, Screenshot_20170813-232114.jpg)

Jaquie's BFF is throwing an absolute shit fit over being turned away from a restaurant.

No. 372133

>>372126

The service dog bullshit is out of control over here I swear. Anyone can buy a vest, train their dog (or not) and call it a service dog whether it does anything or not.

No. 372142

>>372126
why do munchies use an emoji every second word? it's so confusing

No. 372144

>>372142

I've only really noticed it from this one, and Carmel.

Sage for non-con.

No. 372157

>>372142
>>372144
Jesus fuck, this is Aly Casati-tier emoji vomitus!

No. 372164

File: 1502691716282.jpg (496.77 KB, 730x722, edswaggon.jpg)

I forgot to highlight "to life a incurable life". After reading this it's kinda obvious why she doesn't have any friends left.

Suddenly she has EDS, even though no one diagnosed this.
She keeps deleting her comments, so I guess someone keeps questioning her? At least I hope so, because she has so many followers and all she does is diagnosing herself and spreading lies to get pity points.

No. 372196

>>372164

Those are clearly deformed fingers. How dare we not see that? Topkek

No. 372197

>>372164
She has the same fingers as my whole family, but chubbier… That 'deformity' looks entirely normal and is something you can get as a little kid from playing ball, accidentally hitting your hand against a hard surface or a number of other reasons. Jeez, what a baby.

No. 372206

>>372196

Thought the same. No RA deformity!
Note to all you IG selfie addicts - PLEASE clean your fingernails before posting pics!! (And shave your knuckles if you time ? )

No. 372207

>>372164
Ooooh she makes me seethe. Endometriosis doesn't cause tumours, there is a slightly higher risk of ovarian cancer, but you're more likely to get cancer from pretty much any other factor before endometriosis. And if her endometriosis was that severe, she'd have had surgery.

Sage for rage

No. 372218

File: 1502706783656.png (1.07 MB, 1536x2048, IMG_2928.PNG)

This cow just gets to me. Look at her smug, happy hospital face. Doesn't look sick to me…..

No. 372219

File: 1502706823806.png (296.15 KB, 1536x2048, IMG_2929.PNG)

>>372218

Oh and you've been in hospital TWELVE days, had many tests, they still can't actually find anything wrong with you, get the hint?!

No. 372241

>>372126
Not white knighting because let's be honest she's probably at least an ott spoonie who has ignored call outs about Jacquie's bullshit and people wanting answers on how she's okay with Jacquie's unethical service dog crap people asking for stupid id's for service dogs is a legit problem. In America those kind of things are fake and most of the fakers are the ones who buy them and shove them in the face of anyone when their dog is misbehaving in public. Which causes a big issue for us with an actual service dog for an actual reason.
Sage for SD fagging

No. 372257

File: 1502716882175.png (1.21 KB, 291x25, IPTSaGI.png)

>>372241
I know you're making an effort anon but please read:

>Sageing a post

>By writing "sage" in the email field, you keep your comment from bumping a thread to the top. Do this when your comment doesn't contribute any new information. You don't need to announce or mention your sage. Users will be able to tell by hovering over your Name ('Anonymous'). Note: Sageing a post doesn't make wildly off-topic comments okay. You still have to follow posting rules.

and everything else at https://lolcow.farm/info

No. 372268

This whole 'you can't ask about my SD' bs is really fucked up. The US should be more like the UK and have a registration system. If you have a registered service animal with one of the organisations (media alert, deaf support, seeing dogs, k9 partners etc) who are PROFESSIONALLY TRAINED you get a little yellow ID book once you're fully trained. If you don't have one, your dog is not accredited and doesn't have access rights. Simple. Of course people try the ESA 'you can't ask me' stuff but if someone knows what they're doing they'll know to ask for the ID book. And guess what. You STILL don't have have to divulge disability.

Sage for SD rant

No. 372297

>>372206
The only problem with her fingers are her dirty nails kek

No. 372300

>>372219
Anyone else thinking eating disorder? Seems to be real popular lately for these munchies to claim physical problems, when really they're just starving themselves. Eating disorders revolve around lying, so it'd be way easy for her to lie during her psych evaluation.

No. 372307

jaquie has a new vlog where she claims they don't know what type of meningitis she has because they gave her antibiotics too soon. sure jan.

No. 372308

>>372300
going through her instagram to the beginning, she seems pretty normal. then a a couple months break and all of a sudden mega health problems right after high school or something. just a big attention grab imo like the bulk of the others

eating disorder behaviors could lead to a host of complications so it makes complete sense that a lot of these munchies are more than willing to starve themselves or make themselves puke if the end result is that they get medical devices or procedures for super asspats.

No. 372309

Jaquie has a new vlog up and I just can not even with this chick. Harlow woke her up because she was going to pass out? What? And her poor mom is in the vlog bent over a hospital bed and has holes in her leggings at the top of her thighs. But capturing Jaquie in pain is more important than preserving Mom's modesty. I can only imagine what the nurse thought of her videoing the pain meds going into her tube.

Sage for ranting and fuckery.

No. 372320

>>372125

True story: I was involved in the development of an IVIG product (technically SQIG, but hey) whose name rhymes "ay, Stevia!". The thing is, IVIG seems to have the odd and more or less unique property (the only thing I can think of that has a similar effect but more limited is cyclosporine) of improving autoimmune illnesses while not suppressing the immune system. What's more, they confer a degree of immunity itself (they are after all immunoglobulins!) although they retard the body's own ability to create certain immune responses (which is why live vaccines don't take while being on IVIG). This is a paradoxical and not very well understood scenario and the calculation insurers make is that in the severely chronically ill patient, a bottle of $18,000 IVIG might be preferable from both a public health perspective (less use of antibiotics of last resort) and a cost perspective (lower cost of treatment overall - treating sepsis, especially with the newer antibiotics that are either toxic or cost an arm and a leg, is very expensive, and might include the exorbitant costs of an ICU stay). As the US did not have vCJD (mad human version aka spongiform encephalopathy in humans transmitted by notoriously tough to screen for prions), the risk to the individual patient is lower (but still pretty considerable - the headaches are legendary and there are various risks including cytokine storms). Hence their more extensive use. The pharmaceutical co response is to essentially present the hypothesis that every autoimmune disease is also an immune deficiency (that is, its more about immune dysregulation that is compensated with IVIG than a mere immune hyperactivity), which so far is not sufficiently accepted to justify blanket prescribing of IVIG in autoimmune illness, but I have seen doctors prescribe it off label for just about everything. Teal deer: it's because pushy patients + pharma reps.

Sage for medfagging and blogging.

No. 372323

>>372307

What, that does not make any fucking sense. I can drown you in vancomycin and we will still be able to culture whatever you have.

She has a bad headache from IVIG. As said, IVIG headaches are nasty as fuck.

No. 372336

>>372307
Yeah, that's not right. And of course she's acting like a princess, would we expect anything less? Just as dramatic and disgusting as always, and because of a problem she brought upon herself. I have absolutely no sympathy for her, headache or not.

No. 372347

>>372320
So basically jacquie's wasted $36,000 being a dramatic cow who thinks she's sicker than anyone else and therefore deserves all the ridiculous treatments she really doesn't need?

No. 372349

>>372347
can we crown her most expensive munchie on top of her most dramatic title?

No. 372350

>>372323
that's what she said in the video. they didn't spinal tap her before they gave her antibiotics so they're "treating her as bacterial meningitis" to be safe.

No. 372357

>>372307

She just wants the drama of it possibly being the form of meningitis that can be devastating. She's going to milk this as a near death experience. She's going to get on television again, and say her story and everyone is going to give her all the sympathy and attention she wants.

She fucking brought this on herself. She always claims that super severe debilitating migraines, well now she has a headache from hell.

No. 372397

>>372357
But how do you know it's even real this time??

No. 372415

The degree of cognitive dissonance going on with Jacquie seems really extensive. Watching her stuff reminds me why no longer practising psychiatry was a smart decision.

More context regarding her would be really interesting. Also, her use of gesturing seems abnormal. The dialogue in her videos indicates extensive rehearsal and preparation.

It's tempting to try and deconstruct her but so futile. Her parents and Judd must be incredibly co-dependent based on how entrenched the role playing is.

It's grasping, but her dad is quite absent. He doesn't seem to have any place in her narrative. Brought this up to a this up to a former colleague and she asked if I was drinking again.

Sage for autism

No. 372426

>>372412
Any munchie worth their salt will be inflicting wounds and other problems to legitimize their illness

No. 372441

>>372415

It always feels like she's incredibly rehearsed, like she's said it five times. Her Dad had a stroke last year and can't drive, he also lives in Orlando. Everytime they're go up there they visit him.

>>372412


Wouldn't put it past her, she does scratch herself to make the angiodema attacks look worse/like they actually happen.

No. 372456

Thoughts from Jaquie's vlog.

Everything she's saying about her symptoms seems like she's reading it off of Google.

SHE WANTS TO CONTINUE IVIG?!?! She's fucking loving this.

Why is she pushing her own meds? I'm pretty sure that's against most hospital policies.

Her pain faces/noises are terrible/unbelievable.

No. 372474

>>372456
Of course she loves it. Jaquie lives for being sick, and getting rarer treatments and being in the hospital is what she loves the most. She is also spoiled and selfish, which is exactly what wanting to continue ivig shows. Who cares if it makes her even more dependent on people who now have to drop everything and take care of her. In jaquie's mind, the only person who matters is jaquie. Also, any doctor that agrees to try it again should not be allowed to keep their medical license. No illness that jaquie has (if she's even sick at all) is bad enough to risk the possible side effects. (Although whether or not she had meningitis is highly debatable, I'm guessing she just had a bad headache, since they didn't even check to see what bacteria she had. Unless she had just general brain inflammation, I'm not a doctor.)

No. 372479

>>372350
No, no, no. Meningitis can only be confirmed with a spinal tap, and then there has to be cultures to determine the type of bacteria before they start antibiotics. Everything she says is scientifically and medically wrong. She is so full of shit it probably just crept up into her brain kek. She has a bad headache brought on by a treatment inappropriately prescribed to her. And now she wants to keep doing it! What the actual fuck is wrong with her?? (Other than being probably the world's worst munchie at this point).

No. 372480

File: 1502739534225.png (1.53 MB, 1334x750, image.png)

Posing that fashionable bracelet for the camera

No. 372491

>>372480

She's gained a fair bit of weight since she got her tube.

No. 372492

>>372480

I can't get over how good her color looks. Even her lips are flushed. And her color isn't hectic or anything, she looks like she woke up from a good nap.

No. 372505

>>372257
Yeah I know this I've been here a while the issue is the formatting on my phone makes so I fuck up once in a while

No. 372507

File: 1502741183370.jpeg (92.21 KB, 750x749, image.jpeg)

>>372480
Play stupid games, win stupid prizes.

No. 372510

>>372507
>>372479
how does her mom or husband not intervene in all this? i feel a sense of sympathy for judd because he seems like a good kid (i'm old) who does right by his family. he doesn't seem to get any enjoyment in any of this and looks like he's going along for the ride at the most.

No. 372518

>>372510
Yeah no if you watch their q&a's and whenever they do instagram live things he's totally an enabler I don't feel bad. Also I'm pretty sure most of the time she does keep the home clean and cooks him every meal which seems to be his priorities is she cooks him food.

No. 372546

>>372510

I don't think he knows some of it honestly. She's always at her worst when he's at work or sleeping and then just tells him what happened and he takes her word for it.

No. 372550

>>372480

That is something that I find infuriating. When I ruptured my disc I was as pale as a ghost, I did not look like I'd just taken a nice refreshing nap.

I also would take pain meds and knock out, not lay there and vlog.

Sage for blogging.

No. 372553

>>372546

You have an interesting point there. In the past Judd has said that he sleeps so much better when she is in the hospital because he has to sleep so lightly when she's home in case something happens. But here lately it seems like he has been sleeping through All The Things. Maybe it's due to the schedule change but it definitely makes her seem more suspicious.

No. 372558

File: 1502745449396.png (1.11 MB, 1066x705, 20170814_161514.png)

She looks thinner in this picture from 2015 than she did before her feeding tube.

No. 372566

>>372558
why would she become a munchie it's so sad how selfish and depraved she's become. looks like she and judd had a pretty nice life before all this.

No. 372577

>>372507
She looks totally fine. No one who's actually sick in the hospital wants to take (let alone post) a selfie. She's such an attention whore.

No. 372596

>>372577
her teeth are atrocious but it's probably from ed?

No. 372599

>>372596
Yeah she probably does have an ED of some kind.

>>372480
Yeah she doesn't have that look like shit sick look that you sure as hell would have if you had some kind of meningitis

No. 372600

>>372596

More than likely. I don't remember them being this bad when I first started watching her. There are some days when her lips will be bleeding, it's terrible.

No. 372610

>>372309
>>372507
She's really ruining those teeth with inducing all that vomiting. She needs to stop or she'll rot them out.

Sage for Medfagging

No. 372633

>>372610

How old is she? I ask because it looks like braces (on my phone anyway). Not doubting she's binge/purger

No. 372637

>>372633

She's 21 I think. She hasn't mentioned anything about braces, and we all know she'd talk about how special her teeth are.

No. 372651

>>372633

Definitely purging. Why else would she want a tube she can specifically "vent" (purge out of). My guess is that she now thinks she can eat more and purge it easier, but obviously that's not working (getting fat there, Jacquie)

No. 372673

File: 1502816861391.jpg (577.97 KB, 1049x1224, Screenshot_20170815-082411.jpg)


No. 372674

>>372673

I bet she's so disappointed she has to try solid food. It's hard to purge when they're watching you.

No. 372696

>>372673
why the fuck does someone need to keep coming to give her a shower? shower by yourself you munchie attention seeking little shit.

No. 372698

File: 1502818344776.jpg (359.95 KB, 1052x1262, Screenshot_20170815-083031.jpg)

I'm sure it also has something to do with the fact that pain medicines fuck with your GI system

No. 372704

>>372673

Why yes, my whole life consists of making sure my patients ARE psychosomatising and avoiding having to look for an organic cause.

What the fuck, Carmel. Never mind your doc can't bill for a fraction of what he could for investigating organic causes - your constant banging on the 'it's not psychiatric!' drum makes it sound like you are in denial about the psychosomatic and psychiatric causes and contributing factors to your illness. Normal people want to get better, whether that's by way of surgery or medicine or therapy or an antidepressant. Munchies want the most fashionable, most 'I am totally not eating disordered despite my array of mental health issues… I swear, despite having a long list of them, my insistence on a tube to purge from is totally not an ED!' diagnosis that makes them feel like they're in a hospital drama.

Fuck. Right. Off.

No, seriously. Get the fuck out and stop blocking a bed that could be taken up by someone actually interested in getting better, not just in having the most fashionable diagnosis.

No. 372705

>>372698
I know teens that have been put on pain meds bc they legitimately need it. No doctor is going to deny pain meds bc a patient is "too young". Carmel is just another lying munchie who doesn't have her doctors quite fooled.

Sage for not contributing.

No. 372706

>>372479

Not necessarily. Cultures take time and meningitis kills fast, so sometimes empirical abx are started. Which is what contributed to abx resistance in the end, with old ladies and kids with cancer dying because some Munchie asshole wanted a fancy vancomycin or linezolid drip.

No. 372708

File: 1502819357663.jpg (162.76 KB, 954x640, IMG_2941.JPG)

Alexys is still seeking her paediatrician kek.

No. 372709

>>372268
feel bad for people at work who get in trouble for questioning someone with a service dog that has not had any training or certification.

No. 372712

File: 1502819576290.jpg (235.22 KB, 750x972, IMG_2943.JPG)

Desperate for toobz.

No. 372715

>>372706

Actually this is my experience. "Too young" for opiates for pain relief, at 27 apparently.
I understand why doctors are worried about long term use of painkillers, but you have to weigh that up against life-ruining chronic pain.

Saged for medblog.

No. 372716

File: 1502819688433.jpg (106.61 KB, 750x407, IMG_2944.JPG)

The beanie is back and she's got the munchie mask.

No. 372717

>>372705

She's too young for pain relief? Well, shit. Turns out my wife has been doing this whole medicine thing all wrong - as a paediatrician, she prescribes strong painkillers, including opioids, to people of all ages if they need it.

But hey, it may be different in Australia, so I just asked a former colleague who now practices in Sydney, working as a pediatric trauma surgeon. The full WHO scale is available to both adults and children, and is used in the same way as in the UK.

What the fuck, Carmel. What do you think happens to actually sick children - preteens dying of brain tumours with massive IICP and kids having osteosarcoma or survivors of horrible accidents or burns victims or, yes, young people with chronic pain or CRPS? "Nah, sorry, we can't give you opioids, you're too young, sorry you're dying"? What sort of fucking idiot believes her bullshit? There are even specialist pediatric and adolescent pain therapists and pain management experts. Besides, there are other non-opioid methods of dealing with pain, and if your doctors refused to give you drugs because of your age but were genuinely in pain, they would try those: targeted anaesthetics, dissociatives, midazolam for certain forms of chronic pain, musculoskeletal meds and an overwhelming array of interventions to manage pain, up to and including ablation.

I wish their lies weren't this contrived and ridiculous. Actually unwell people are getting the wrong idea.

No. 372718

>>372696

If you're too sick to shower, the nurses wash you. She's full of crap.

No. 372719

I wonder how many medical issues Jaquie has deluded herself into believing she has vs. ones that are fabricated, intentionally deceptive munchie games. Not that intent or lack thereof changes anything that's going on whatsoever.

Also, love Judd in today's video "she's full of it" kek

No. 372722

>>372715

There's no decent explanation for that, and while this view might prevail among older GPs, the good Lord and medical schools created pain specialists to not be stupid. Get a referral to see one, and have them tell your GP whether they think opioids are warranted. The only cautions about age and opioids pertain to letting the child handle the drugs, and possibly to the risk of them suffering respiratory depression harder than sturdier bodies, and methadone and kids don't play well together due to the NMDA effect, but otherwise no diff.

No. 372723

>>372719

Agree about Judd today, that was great. I think he is more over it everyday. It went from "ok my girlfriend has some issues but we still have a life" to she has publicly based her entire identity around being chronically ill and in order to be successful it now requires a constant roller coaster of issues. I mean she can't continue as Chronically Jaquie and be Chronically Well.

No. 372724

>>372698

To be fair, some doctors are reclutant with opioids but there's a plethora of other medications; non steroidal anti inflammatories and the nerve pain drugs e.g. pregablin. However, I suspect she's after the opioids which will slow down her mobility and get her closer to that previous tube she craves.

No. 372725

File: 1502820647978.jpg (310.23 KB, 1066x777, Screenshot_20170815-125320.jpg)

She probably cried sad tears when they told her she's going home.

No. 372726

File: 1502820826015.jpg (397.84 KB, 1077x889, Screenshot_20170815-131227.jpg)


No. 372728

>>372712

Not even just any port, a power port!

(The fucking moron does not even understand what that is. A power port means its power injectable. That is relevant for one single use, and no other: the injection, at relatively high pressure, of contrast media for CT. What she wants is a regular portacath, but she can't even get her bullshit right.)

No. 372731

>>372726

She conquered a medication that has side effects, you guize!

I have seen all of 2 (two) persons who were admitted for post-IVIG aseptic meningitis (which most of us call a 'bad headache' - as a doctor and a regular recipient of the fucking thing, I can tell you with confidence that if you've had migraines, you've had worse than what a bad IVIG headache is like!) - one went home the same evening, the other, a teenage girl with a severe immune dysfunction, the next morning. Four days for a headache after IVIG? Fuck me dead.

Q: has she explained what her mysterious immune dysfunctoin is? There aren't that many of those, and they're all usually diagnosed either by specific testing or genetics. You don't just have 'immune dysfunction' anymore than you would be diagnosed with 'autoimmune disease'.

No. 372734

Is there anything on elizadoda here? I'm so shocked if her name hasn't come up… she posts about having seizures everyday and vomiting and being incontinent and that the staff caring for her don't care and say she's making it up. It makes me question if everyone who meets her believes she's faking the validity of it.

No. 372748

>>372731

Not that I can remember, she said she had genetic testing done, and that's what confirmed the immune dysfunction, but I don't remember her naming it.

No. 372751

>>372723

A coworker of mine (I have his permission) has wasted almost five years of his life living with a Munchie much like Jaqui, who used him being a doctor as a card to get all the Munchie toys that a Munchie's heart could desire: tubes and a port and an SPC and multiple spinal fusions and a wheelchair and everything. My buddy is a little naive and his heart is a little bigger than his brains (when it comes to human relatoinships, anyway!), and he has a bit of a savior complex. So he thought he will be the one that gets her well, while she used him for all the toys. We staged an 'intervention" on my buddy when we had incontrovertible evidence that a medical crisis that necessitated him taking weeks off work from time to time, a job he enjoys thoroughly, was fabricated by her, to get, of all things, a fucking pacemaker (why?!).

He eventually dumped her, but ended up taking a two year absence from medicine, traveling and volunteering and doing the cool things they could never do because life revolved around her latest medical crisis, her health blog, her assistance dog and her ever increasing needs. He described the whole thing like being sucked dry emotionally. He's still in therapy and he still has problems trusting people.

The problem with Munchies isn't primarily that they're faking assholes who block hospital beds and waste precious resources and time. The problem is, they lock people who care for them into intensely captivating emotional relationships, with the constant subtle hint of deteriorations when their partner considers leaving them or even just wants something resembling a life of their own for a few hours. Munchies are not harmless sick people LARPers, and I don't think I understood until I saw what happened to my friend what insidious damage these people can inflict.

I really feel for Judd - he must see himself as a person devoted to the lives of others, that much is clear from his career choices. And with a worthy goal, that's superb. But Jaqui doesn't even appreciate him, and there's only so long you can drive a relationship on making dinner. He lives with the constant fear of her coming to harm - that's a voluntary decision, but in face of a completely exaggerated, manifestly fake 'illness', this is just too sad to watch. And of course he can't get out of this relationship because what kind of man abandons a poor sick girl and leaves her to her own devices (no pun intended).

Sage for blogging and story time.

No. 372759

>>372751

>The problem with Munchies isn't primarily that they're faking assholes who block hospital beds and waste precious resources and time.


Maybe not for you they're not. Yes there is almost always some kind of intensely personalized spiral of destruction for one person in a munchie's life, and sometimes the cost of a highly competent, resourceful person being burned out is one of the prices that come from being associated with a munchie.

And as much as I feel for your friend, he wasn't relying on, say, the time slot of the procedure that got the munchie her pacemaker. Imagine someone actually desperately in need of that pacemaker getting their procedure delayed because of the munchie– in fact, imagine all of the patients afterward that the surgeon and the rest of the staff needs to see. She impacts all of those patients, because she's sucked up yet more time, resources, money, and effort that she didn't need.

Yes, your friend was the center of the black hole of that munchie's vortex of need, but she managed to suck in countless peripheral people on her way there.

Sage because I've spent enough time in doctor's offices waiting for the overly-invested, perfectly healthy attention seeking dipshits to finish sucking up my appointment time to know how much they impact the lives of seemingly random patients.

No. 372761

Based on the context of Jacquie's most recent video, I am skeptical she was pushing narcotics. If she needed opioid analgesics she'd still be connected to IV/fluids, which she wasn't. Also, the volume of the analgesic solution was HUGE. I strongly believe she was pushing OTC paracetamol or ibuprofen though her J-tube. Ironically this is a tried and true way to cause GI distress as the osmolarity of kiddie analgesic solutions are very high. Looks great on camera though.

Jacquie is full of shit. I don't doubt she will continue on IVIG, although the benefits are dubious.

I'm enormously skeptical that what she pushed though her J-tube was narcotic. I worked in post-op/recovery for SO long and she gets what she says sets off a ton of alarms.

No. 372767

File: 1502824100056.png (343.1 KB, 1048x1163, 20170815_125011.png)

Why do all spoonies have nearly the exact same ailments. At least try to be original in your faking.

No. 372780

File: 1502825180350.jpg (869.28 KB, 1036x1661, Screenshot_20170815-132452.jpg)

Munchie starter pack

No. 372785

File: 1502825434849.jpg (570.75 KB, 1070x1595, Screenshot_20170815-132946.jpg)


No. 372788

File: 1502825740280.png (534.88 KB, 1242x2208, IMG_7207.PNG)

Scans looked like 3 people in the scanner but doctor insists I'm ok

No. 372789

>>372780
Possible OT, but what is that top middle pic supposed to prove? Aren't most healthy, flexible people capable of doing this?

No. 372798

File: 1502826486991.png (319.25 KB, 750x1055, IMG_9882.PNG)

I love how munchie Nicole claims "anaphylaxis" as an illness. She has FOOD allergies which may have led to anaphylaxis, and also using a wish granting company for fucking asthma and allergies?! Neither of those are warrant a god damn wish!! Way to steal a wish from a kid who's actually going to die you attention seeking munchie bitch.

No. 372806

>>372780
jfc i just saw the caption and the top of the pic and i really thought you compiled this from different munchies

No. 372811

>>372788

>ICD-10 of the DSM


sure, Jan.

No. 372840

I just watch The Frey Life if I want to find out what's coming up next for Jaquie, kek

No. 372847

>>372840

It's creepy how much she wants to be Mary, poor woman who has a disease that will likely kill her. She even copies the leggings, the annoying "good morning" and the way she does her vlogs.

No. 372858

>>372840

True. She has the dog, the leggings, the husband (although he's getting increasingly detached from it all) the port, the IVIG, the Jtube..the "intro" complete with cutesy clips and music, and pretty much follows the same format as Frey life's videos. Only thing she lacks is the deadly disease that shaves years off of your life and actually requires for survival/preservation of life the things Jaqui uses

No. 372864

>>372708

Guess she is finally admitting to an eating disorder - wonder if someone questioned her.

>>372712

Has she given up on her epilepsy? And I see she is back to "my poor failing organs". She is overly specific in some areas and then overly vague in others - guess she can't research it all and is worried about being caught in a lie

Maybe she ends up in the ER 4x/week because she is full of baloney - not actually sick enough to be admitted and they probably just give her a bag of saline to get her to go away. If she truly needed what she said then she would be able to get an appointment and not waste ER resources (cause you know the ER is for people who have real emergencies).

No. 372865

>>372858

Samefag but I've noticed that EDSers in general leech onto Mary (Frey life's) social media. Probably gets irritating. As miserable as EDS can make you (in some cases… the spoonies probably aren't even effected to that extent) id say Mary gets tired of all these people pretending they can even compare themselves to the gravity of her situation. I guess since CF is hereditary and EDS is hereditary sooonies immediately think OMG I RELATE I'm soooooper serious too

No. 372867

File: 1502833146100.png (242.07 KB, 736x1144, IMG_6189.PNG)

Surprisingly Dani didn't say she would research the possibility of an EDS diagnosis when some commenter mentioned it (why do the spoonies all seem to think that everyone has EDS)

She has been mentioning uping her pain/nausea meds recently - I don't know much about the effect meds have on the GI system but have have read this board long enough to know that it's not great - my bets is she is trying to do whatever she can to get the results she wants for her upcoming tests

No. 372908

File: 1502837839261.jpg (800.88 KB, 1076x1295, Screenshot_20170815-175255.jpg)

Was going back and looking at old posts. She is 100% thinner here than she was before her tube, but she was fine.

No. 372912

>>372908
Her teeth look better too.

No. 372931

>>372865

EDS can definitely complicate life and make you feel bad, but unless you have vEDS (which is very rare), you can still lead a fairly normal life. And all those things the munchies get, the braces and wheelchairs and what not, are not even good for most EDSers. A good doctor who's seeing someone just diagnosed is going to tell them to get rid of all that. Cystic fibrosis will
definitely kill you, yet that Frey girl is trying to live a normal life. Jacquie is trying to create a life out of malingering and mooching off of people. She can walk and eat and do things herself, she just chooses not to. She's getting away with it now, but it's not going to be so cute when she's 30 and 40.

No. 372959

>>372931
Yeah that's the thing, it's like spoonies think they have major bragging rights if they score an EDS dx and they almost always go through a progression of port/feeding tube and then extra mobility devices. hEDS is a mostly clinical diagnosis, meaning they can Doctor shop and eventually get what they want by being vague. And honestly the people I know who legitimately suffer the most from EDS are the ones who generally post about it the least. And very few of those, flaunt medical devices. It's like EDS has been turned into a status symbol among the spoonie community which is messed up

No. 372963

>>372942
Generally people who are actually interested in true healing and recovery and moving on with their lives are the ones who don't fantasize about tubes and actually make use of the abilities they have like a reasonable person.

No. 372981

File: 1502844499396.jpg (766.44 KB, 1039x1699, Screenshot_20170815-192636.jpg)

So, turns out she doesn't have a EDS diagnosis from the doctors that would matter.

No. 372983

>>372959
And a lot of those spoonies don't actually have EDS, after the criteria was changed this year. They don't seem to understand that it's not just being flexible, that there are many different things that go into a diagnosis. Unfortunately most doctors still use the old criteria, and only look at the flexibility part of it. But spoonies diagnosis themselves via the internet, because an invisible illness can be faked. And if you go see a new doctor, they often just go on what you tell them, not actual records. The only doctors really all that qualified to diagnosis EDS are EDS specialists.

No. 372990

>>372981
Omg she's finally getting put in her place. A random doctor can't just diagnosis EDS. But she's still trying to be sick, now she's moving on to mito apparently.

No. 372992

>>372990

Probably since EDS is too common now in the spoonie crowd for her. She needs to be special.

No. 372997

>>372990
that's an old ass post she still claims eds daily

No. 372998

>>372983
you don't have to go to mayo or cleveland clinic or francomano in maryland to get an eds diagnosis though

No. 373004

>>372998
Agreed, there are definitely EDS specialists out there not at either of those two places. But Jacquie still doesn't have EDS, and is still a munchie. EDS is still an easy way for internet munchies to claim a rarer illness without having to look sick, and anyone can buy braces and a cane and even a wheelchair. POTS symptoms can easily be mimicked by getting dehydrated and/or not eating. Munchies pick invisible illnesses because they're easy to either fake or mimic. And you can say whatever you want on the internet. I could make a profile right now in IG claiming any one of the popular invisible illnesses, and who's going to fact check it? No one.

No. 373006

>>373002

Yup. Also, even with the hypermobility type you still have to have other features of EDS other than just hypermobility. There are many, many people with benign hypermobility and no EDS, as well.

No. 373007

>>372997
>>372990

Yes, I'm sorry, that post is from 2016.

No. 373009

File: 1502845932345.jpg (627.22 KB, 1036x1380, Screenshot_20170815-192435.jpg)

Post from 2016.

Even the fucking doctor thinks that having stretchy skin and being flexible means EDS.

No. 373011

File: 1502846044164.jpg (862.44 KB, 1061x1752, Screenshot_20170815-191646.jpg)

Her diagnosis list from a year ago is incredibly different.

No. 373012

File: 1502846141187.jpg (621.88 KB, 1013x1189, Screenshot_20170815-191949.jpg)

2016.

She used to have abs.

No. 373013

>>373006
Yep. So many munchies will show up at their doctor's office going 'look at this weird thing my fingers do!' and demanding a dx for EDS, or tons of unnecessary, expensive tests that waste all these professional people's time. It's fucking ridiculous.

No. 373022

>>373004
totally agree with you. i would never wk her. she's clearly a fake. i'd have to be declared brain dead to wk that obvious liar.

No. 373025

There are definitely a lot of people who mimic or at the very least exaggerate POTS, but just from what I've seen is munchie tendencies tend to start with being legitimately diagnosed with POTS. Because, there's an epidemic of POTS patients who become obsessed and believe they have to find out what's "underlying* their POTS when sometimes there just aren't answers. In fact a lot of teens with POTS have idiotpathic POTS they will grow out of. Apparently people with benignly loose joints are more prone to developing POTS as a teen but that hardly equals EDS. I can't tell you how many people messaged me telling me to go tell my doctor to test me for Lyme way back when I first got involved with the POTS community.. Eventually the popular diagnosis to demand became EDS, and 98% of people online with POTS started claiming EDS as a diagnosis. Which in most cases meant going to doctor after doctor until one would concede that they have EDS. It became a hierarchy. I personally have both and to me all EDS really amounts to is something to stay mindful of and learn how to manage different symptoms, that are bothersome but not dangerous, hardly something warranting an entire new identity. But sadly, that's exactly what it becomes for the majority of teens who go to Instagram in search of comraderie with people who have POTS. I'm convinced that being a spoonie is the real disease.

Sage for blogging and not contributing

No. 373028

>>373025

It's ok also perfectly fine to be bendy. We don't have to pathologise and medicalise everything in this world. Many, many children are super hypermobile and it's normal. They'll either grow out of it or just live with being a bit bendy. Send them to ballet and not the doctor. I cringe a bit when I see people trying to get EDS diagnoses for very small children - who have nothing medically wrong with them - just because they can do funny party tricks.

No. 373051

>>373028
It's become creepily common to pathologies everything. Nobody is flexible anymore they have EDS, they don't have mild hypotension they have POTs, they aren't sleepy they have chronic fatigue.

It's like people willingly trade in their personality for a diagnosis and give up their life for a microcosm of symptoms and complaints. All their hobbies are replaces with researching diseases and medical equipment and wasting doctors time by documenting every breath of the experience. They cut ties with anyone who won't push their unnecessary wheelchair and treat a hospital ward like a resort or hotel.

I just don't understand how so many hundreds of people have latched on to this particularly shitty trend. Surely it can't just be because they get their asses licked by a few dumbasses.

No. 373067

>>373040
people will want more diagnsis, so theyll add in slightly abnormal imaging results or little problems associated with a condition. The amount of people ive seen list pes planus or some beniegn thing like marfanoid habitus body type to make the list longer is ridiculous.

No. 373070

>>373067
The more diagnoses you have, the less likely you are to get kicked off welfare, too. If the government can disprove one of their conditions these people can just hop to the next one.

No. 373074

>>372788

What the shit.

I've seen a lot of weird things, including people getting an MRI done while having sex (because art project and as MRIs don't involve radiation, some imaging providers are going to go along with a lot more than what is strictly medically necessary), but I don't understand. What is she on about when she's talking about her scans looking like there are three people in there?! I am trying to figure out what imaging artifact this idiot is trying to describe but coming up empty.

No. 373077

>>373074
My biggest question is what kind of MRI machine has enough space for two people to have sex in??? Wow

sage for off topic and being dense

No. 373078

>>372867

> everything in the body is connected


In most of the specimens here, we see a direct connection between their anorectal tract and Broca's area.

No. 373082

>>373077

A regular one. MRI scanners are more spacious than they feel like. And if the Dutch intracoital MR imaging study could pull it off in the notoriously tight Gyroscan 15, a 1.5T normal MRI scanner, then I'm pretty sure everything is possible :)

Reference: http://www.bmj.com/content/319/7225/1596

No. 373107

File: 1502853068297.jpg (16.95 KB, 200x200, IMG_4622.JPG)

>>373082


Ahhh wow you learn something new every day.

No. 373163

Janice was on the news and filed a federal complaint for being asked for an ID.

She's just as bad as Jaquie.

No. 373183

File: 1502871126525.png (117.76 KB, 750x1104, IMG_2003.PNG)

Nuuns are not pills, they're electrolyte tablets that can be bought at any sports equipment store. They're meant to be mixed with water. What even. This is what it looks like when you're trying too hard to be a sooper spoonie

No. 373185

File: 1502871336621.jpg (34.99 KB, 443x332, IMG_1634.JPG)


No. 373188

>>373183
Ahem, that'd be an Erlenmeyer flask, not a beaker. /s chemfag
Fuckin spoonies.

No. 373201

HEDS should also be diagnosed by a geneticist, even though there aren't genetic tests. I'm always skeptical when someone says they've waiting years for a diagnosis as it's actually fairly straight forward, if they actually had it anyway. People who genuinely do have HEDS tend to get diagnosed in childhood, so people not being diagnosed until their 20s strikes me as having been doctor shopping on discovering the wonders of spoonism. Also, people who get EDS on the back of a POTS diagnosis. Actual EDS should be present in early childhood well before POTS presents. So people who get a(possibly legit) pots diagnosis in their teens and then go on to get an eds diagnosis I find pretty suspicious

No. 373211

>>373183

Why are these IG EDS spoonies all the same? They wear zebra print, have "tubie" pads and sit in wheelchairs that they probably don't need. I thought the whole point was that they are sooper special snowflakes?! They're not on social media…

No. 373216

>>373201
A lot of (genuine) diagnosis especially for girls seems to come in the teen years when puberty hits and symptoms and problems present in childhood worsen enough to seek out a reason why.

No matter the age, it is a genetic diagnosis, always, but half these 'eds' spoonies probably have a JHS/HSD diagnosis from a rheumatologist who wanted them to shut up and go away, and think it's the same thing (spoiler alert kiddos: it's not).

No. 373217

File: 1502877742931.png (296.2 KB, 1536x2048, IMG_2956.PNG)

Carmel is upset that they can't find anything wrong with her and she's going home.
Pic 1/2

No. 373219

File: 1502877821003.png (272.28 KB, 1536x2048, IMG_2957.PNG)

>>373217

She's upset about lack of tube.
Pic 2/2

No. 373223

>>373211
I mean the tube pads are pretty self-explanatory. That's a legitimate need for someone with a stoma.

No. 373224

>>373219
yes carmel, what WAS the point of two weeks in hospital when there's nothing wrong with you and a flu crisis nationwide leading to a bed shortage?

No. 373232

>>373223

Yeah, they all need the pretty ones and they need to show 'em off too. <rolls eyes> why can't they have tubes and just have them? Why the need to display them?

No. 373238

>>373232
I agree there's no need to show them off but I think heaps of people, especially young women, would enjoy a prettied-up pad for their protruding intestine and bag o' turds.

There's plenty of milky shit than munchies do, a few girls with a cute sticker for their stoma seems kinda petty.

No. 373244

>>373201
I didn't get my diagnosis till my early 20's but I had originally been diagnosed with other stuff doctor told my mom put me in sports and PT and build my muscles up and keep me moving.

No. 373251

>>373244

anything else you want to share from your diary?
ps learn2sage

No. 373256

>>373183
Seriously claiming nuun as a pill? Yeah it comes with a tablet but it certainly isn't a medication - they sell it at every sports store, health food store, and even target. Its an electrolyte drink that lots of runners use (because it doesn't have a crap ton of sugar like gatorade).

Also they need to learn what "crushed" pill really means - breaking a tablet in half so that it fits in your "beaker" doesn't meet the definition

Sage for ranting as a regular nuun consumer who has never thought of it as a medication (introduced to it through running, used mostly by runners) and now for blogposting

No. 373261

>>373217
"If anything I'm worse"
Pretty understandable given you've just been hanging out at a hospital you don't need to be in…

ALSO they're probably sending her home because she just did that food trial and they saw that nothing too out of the norm happened. She chewed the food, she swallowed the food, and life went on.

No. 373265

File: 1502888327323.png (149.51 KB, 745x1194, IMG_2041.PNG)

Another vaccine injury. RIP.

No. 373267

File: 1502888666708.png (245.44 KB, 750x1081, IMG_2042.PNG)

"Spoonie squares" anyone?

No. 373270

>>373265
if chronically.amy is her spoonie account then what the actual fuck is fightchronicillness? these munchies have NO identity outside of being sick

No. 373271

File: 1502889495010.png (186.26 KB, 750x1105, IMG_2043.PNG)

Omg check out all this spoonie talk

No. 373275

>>373163

I don't think she's a s bad as Jaquie. I believe that she actually has things wrong with her, but being BFF with Jaquie hasn't done her any favors. She's slowly started being majorly OTT.

No. 373276

File: 1502890189774.png (188.39 KB, 739x1193, IMG_2044.PNG)

Quick munchies, this is the new spoonie style - swap out your vog masks today!

No. 373277

>>373275
you can tell she's always SO annoyed with jaquie when she's in a video with her.

No. 373281

>>373201
In all fairness it's easy to miss before symptoms become bad enough or noticeable enough to actually bring up to a doctor. So a lot of totally valid people don't find out they have EDS until later on because it's generally not something pediatricians are looking out for.

No. 373285

File: 1502892161591.jpg (235.01 KB, 1536x1081, IMG_2961.JPG)

Lol wut?

No. 373288

>>373281
12-16 age range seems average for legit eds diagnosis not munchie eds

No. 373291

>>373281
It's genetic and non deteriorative so there's no reason why symptoms should only appear later. As >>373288 says under 16 is about right.

No. 373293

>>373291

There are plenty of legit reasons why someone might not get an EDS diagnosis as a younger person BUT that is irrelevant because all the people we are talking about here are massive munchies.

No. 373299

File: 1502893821684.png (178.72 KB, 750x1128, IMG_2045.PNG)

>>373276
She also has a vog mask lol

No. 373301

>>373291
it does appear to worsen at/around the onset of puberty in a lot of people due to hormones affecting laxity in connective tissue for females.

It's unusual for no doctor to have suspected it - at the very least - by 16, if not fully diagnosed it or made referrals for testing and diagnosis.

No. 373302

>>373301
Thanks - forgot that bit about puberty. Basically within a few years of hitting puberty symptoms should peak, so people claiming they became symptomatic later probably don't have it.
Pots on the other hand can be triggered at any point, viral infections etc. But suddenly developing pots does not equal a missed eds diagnosis

No. 373306

>>373285

Wait is she claiming her heart rate was dangerous or her saturation? Both are fine?

No. 373308

>>373301
It can also worsen after pregnancy and many women don't get diagnosed until their 40's here.

It is common here to get a JHS diagnosis in early childhood and then go to a geneticist after puberty to get evaluated for EDS.

No. 373316

>>373277

Definitely annoyed. Jaquie and Janiece are friends because their husbands have been friends since childhood. Can't help but wonder how much of Janiece being friends with Jaquie is that tolerance that's required when your spouse or SO is friends with someone. It's not like Judd and Paul could stay close if Jaquie and Janiece hated each other.

No. 373324

So Jacquie can eat an arepa with chicken, mayo, butter and cheese but her meds have to go through her feeding tube because she can't digest them? And THEN she went out for ice cream covered in oreos and crap. She is ridiculous.

No. 373333

>>373324
do i wanna watch this shit or did you just summarize the fuckery for all of us?

No. 373334

>>373333
Pretty much summarized. Sorry about the spoiler. :/ It was only a 9 minute video but I am sure that others could find something to snark on that I missed.

No. 373335

>>373334
i'm watching this and wondering why her mom and husband contribute to the way she eats and what goes on in that house when the camera is off. her entire story just boggles my mind. it's so obviously fake.

No. 373389

Great comment from a user on Jacquie's YT today. Not sure if the rules allows a direct quote but the gist of it is, I am super sick and can't eat (due to an actual non-fakeable disease) and I love watching you and Judd eat all that amazing food.
Since Our Gurl has no ability to detect sarcasm I am sure she took it as the compliment it appears to be because it's not deleted.

No. 373403

>>373223

No, it's not, and we keep telling people not to get them.

In general, most balloon tubes and buttons are designed to work just fine without an added padding, but as some might have leakage, which is usually fairly corrosive and foul-smelling, we tell new gastrostomates to use a soft pad cut into to the midpoint from the middle of one side and ffs change them daily if not more often. Cute tubie pads are a fantastic way to collect bacteria that then can re enter the skin if the tube or button causes some abrasions or if the stoma canal has injuries. Unlike sterile disposable surgical dressing pads, which do not have a lot of anything that bacteria can feed on, tube pads from your favourite Munchie supplier are made of cotton filled, usually, with some spongy material. Add some sweat, formula and your average skin flora, and you get a fantastic way to cultivate your own little colony of MRSA. But since you're a good healthy Munchie, you'll be fine, you'll just have an ugly prurient and purulent rash. It'll be the old lady or the kid with cancer down three beds who will die as anyone and anything getting in touch with your festering tube pad starts to spread something that fucking laughs at vancomycin all over the ward.

Good job fuckers.

No. 373404

Jaqui thread plz. She's enough of a trainwreck to merit in depth risobovinological inquiry.

No. 373406

>>373404
seconded.

No. 373412

>>373271

Err that is an odd place for a port. This is the first time I've even heard of a port between the breasts and over the sternum. Ports normally go under the clavicles.

In other words: wtf.

No. 373423

>>373404

Yessssss!! If someone starts a Jaquie thread can you link it please?

No. 373426

>>373404
Thirded.

No. 373433

Reading the comments on Jaquie's vlogs just pisses me off. There's a young girl on there saying she's going to train her new puppy as a service dog for anxiety. I know there are people that genuinely have several anxiety and use a service dog, but NOT EVERYONE NEEDS ONE.

Sage for not contributing/ranting.

No. 373448

>>372767

Because these illnesses are 1) lifelong -> lifetime of munchieing, 2) treatment is palliative (see before) and almost all are a combination of subjective discomfort + a frequent and usually nonpathological objective finding that they're likely to have anyway. It is true that some of these illnesses do travel together (POTS and EDS have a legitimate association) but some of it is funny as they used to be believed to have been connected at some point, then we realized they aren't, but Munchies didn't get the message. GP is the typical example, which was believed to travel with EDS but turned out to have a primary neurological component (via interstitial cells of Cajal), meaning that there's no reason whatsoever why EDS and possibly general dtsaytonomia should necessarily be able to cause GP, at the very least not GP that does not respond to erythromycin and/or a GNS.

Incidentally, i see a huge dip in GNSs among GP spoonies. A decade or so ago most only had GP, about a third had T1D, and those who didn't respond to mycins weren't given a tube to Munchie around with, they were put on a list for a GNS trial. Now, virtually none of these sooopah severe GP patients seem to even have HEARD of GNSs. Which is a pity as I've had formerly tube dependent GP patients get the GNS, lose the tube and a year later successfully carry a pregnancy to term. The cost of a GNS is relatively low compared to long term tube feeding and almost negligible compared to TPN, so I'm rather surprised why many of these allegedly most severe cases ever don't even seem to have had the trial stimulator test.

No. 373452

>>372716

> pt monitor on but not even the sat probe is connected

> pushing simple saline with a gravity kit
> IV pump turned off
> strategically posing to have both in view though because soopah sick!

No. 373460

File: 1502910604173.jpg (272.79 KB, 732x1203, IMG_2962.JPG)

Cannot begin to describe how disgusting it is that Alexys has manipulated her doctor into this.

Pic 1/2

No. 373461

File: 1502910640939.jpg (165.83 KB, 750x766, IMG_2963.JPG)

>>373460

She is the worst munchie, ugh. Gross.

Pic 2/2

No. 373482

>>373460
>>373461

I call BS on Jonzie's part for multiple reasons (the first being that she is jonzie). She has a history of making stuff up.

- I find is suspect that she has chosen to make that post using a check-in at the children's hospital, especially since you can check in anywhere without actually being at that spot. She is the kind who would actually take a smiling or staged picture of herself if this was all actually happening (and she has used old pictures before to make it seem like she was in the hospital when she probably wasnt)
- She is still claiming to see the pediatrician and Peds GI - this is likely more due to the fact that she knows there are other people in the support group from her area and she is trying to avoid being caught in a lie by claiming she doesn't see the same doctors because she only sees children's doctors
- If she truly had been in the ER 4x/week for weeks then they probably would have caught the being on death's door
- No doctor tells a grown adult they are a "very sick girl". They wouldn't immediately admit you for all the procedures (note that she is specific about TPN and J tube but vague on fluid infusions and intravenous meds). They might admit you to run tests before deciding you need all that stuff and they would probably try the temporary options before the surgical ones.
- If the doctor looked at her history and saw her super sick organs they would probably be hesitant to resort to TPN before tube feeds since it is harder on the organs
- If you are so close to death, you don't post on Facebook. Must have been a miracle recovery.

In the event that she is in the hospital, it is more likely because she has done something to herself to make her sick.

Jonzie is one of the worst in terms of actually doing something intentionally to make herself sick.

No. 373491

>>373285

88% is low enough to be concerned, but people do walk around with saturations that low for extended periods of time with no damage. If it's consistently triggered by a 6 minute walk, that's one thing, but transient low sats happen a lot in the hospital. I'm wondering who told her that 88% is critical and emergent because they worried her for no reason.

The best treatment for POTS is dietary changes (small, frequent, high protein low carb meals) and a BMI of 22-24. Best way to gain weight is to lift weights, which won't aggravate their POTS like cardio will.

These people have an out of this shitshow- go with the "pure and healthy lifestyle" cured me. At least they'll be sharing a positive message and they can milk that shit 5ever.

No. 373550

>>373324

Why does she even show herself eating these foods? Is she that dumb?

No. 373561

>>373550
She's just that speshul. No one can tell her what to do and no one, including her doctors, know as much about her chronic illness as she does. "No diet suggestions please" Eye rolls for dayyys.

No. 373610

File: 1502926739516.jpg (199.21 KB, 1266x1154, IMG_2967.JPG)

Obviously not all vegans have eating disorders but a lot of people with eating disorders are vegan.

No. 373613

>>373610
For anyone here, just for reference, if you don't like the texture of any type of protein powder do this recipe
>your powder scoops
>froze banana
>spoonful of almond or peanut butter
>liquid of choice

It helps smooth out the texture so it's not disgusting. I like to use chai tea and add nutmeg and cinnamon. Works with whey based too.

No. 373621

File: 1502927590645.jpg (135.04 KB, 1266x636, IMG_2970.JPG)

She's going to lose weight on purpose, it's obvious.

No. 373627

>>373621
imagine being this upset at not getting a tube. geezus

No. 373860

>>373610
Alot of people with eating disorders become vegan to make it easier to restrict and have reasons for not eating what other people are eating. A ethical but destructive choice on their part.

No. 373908

>>373270
>>373412
This! Episternal placement makes no sense. There is insufficient room or insular fat protection, and this is a high-friction area which is a contraindication for implant site. No fucking way you'd get a port placed there. Landmarks for the would-be implanted device appear absent. Bitch be lyin. She probably took the needle off and just taped the back/set under Tegaderm. It is also possible that this pic is shooped.

No. 373914

>>373211
This is where the scene kids went. Think about it: same mentality of being unique through conformity, later on they recycle their old zebra print emo wardrobe.

No. 373916

File: 1502949983573.png (146.76 KB, 747x943, IMG_2049.PNG)

>>373908
Showing off both the boobs and the tubes

No. 373924

File: 1502951414857.png (44.53 KB, 313x276, Screen Shot 2017-08-17 at 1.29…)

having a period is a chronic illness now

No. 373926

>>373924
Wow and can turn the family dog into a service dog

No. 373927

>>373926

medicalize all the things.

No. 373929

File: 1502951812791.png (254.78 KB, 747x1129, IMG_2050.PNG)

First pic she's eating her popsicle and the next is a video of someone feeding it to her.

No. 373934

File: 1502952303816.png (18.25 KB, 299x93, Screen Shot 2017-08-17 at 1.41…)

why are spoonies so proud of their ports? I understand the use of saline in legitimately severe or limiting cases of POTS that arent controlled effectively with meds and lifestyle changes but what I don't understand is why the girls with ports just for saline make such a big grand deal about them. love having a port! And intentionally scheduling my salt water infusion so that I'll be hooked up in public.

oh and hashtag fighting.

No. 373943

>>373934
I especially love the 'spoonies' that go to the ER claiming dehydration, insist they need fluids hooked up to their port asap, then post a selfie all like: "grateful for this lifesaving device" (insert multiple emojis). Like yes, you probably would have died a horrible death without the unnecessary water you received through a hole in your chest and all that sooper special medical attention you received. Ugh. Next time drink a glass of water and do something that actually contributes to society. Then go ahead and enjoy the attention that comes from that.

No. 373981

File: 1502961672187.jpg (587.64 KB, 1920x1197, IMG_2973.JPG)

I wonder if this was in relation to posts like the ones from Alexys/Jonzie/babybear. Perhaps it was from someone here..?

No. 373982

File: 1502961740868.png (151.93 KB, 750x992, IMG_5244.PNG)

Finally discharging

No. 373983

File: 1502961791560.png (214.59 KB, 750x764, IMG_5245.PNG)

Bet she tries as hard as she can to get to the goal weight. Why are they going straight for a PEG?!

No. 373984

File: 1502961847109.png (116.97 KB, 718x520, IMG_5246.PNG)

Not taking her tube begging

No. 373988

>>373983

If she has gastroparesis, a PEG will cause the same issues as oral intake…? She's full of it.

She's basically going home to lose those 3kg and then she'll return to get her precious tube. It's an eating disorder. You don't need a medical degree to see that.

No. 374001

>>373916
Wow, I stand corrected. Never seen a port placed episternally. First time for everything, boys and girls. This is such a shitty location, I wonder why her surgeon did this. For modesty reasons perhaps? I predict complications from choosing that placement site for reasons previously stated…but of course that will make yer typical spoonie very happy. More attention when sepsis, skin necrosis, migration or erosion result.

And my favorite part about just this screenshot alone (I fear I'd have contamination nightmares if I watched the whole damn video):
>Wears mask
>Wears gloves
>Leaves frilly bra on where fabric interferes with adequate sterile field.
B-but…muh kamera pointz! Fuck all teh riskz!

No. 374024

File: 1502968012103.jpg (106.86 KB, 1536x625, IMG_2978.JPG)

lol wut?! What does that even mean? She's refusing to eat.

No. 374025

File: 1502968112469.jpg (84.93 KB, 1536x563, IMG_2977.JPG)

I thought you said food was in your stomach, Carmel? Why all the tests on your bowel if your esophagus is the problem? You also said they didn't find anything wrong with you…? Can't keep up with your own lies you want a tube so bad.

No. 374041

File: 1502971122846.png (741.59 KB, 937x600, wtfcarly.png)

How the fuck does Carly manage to do a full on dance class with her sooper srs POTS? I have a different disease, but when my resting heart rate was something like 140, I did not have the energy to go flailing around in a dance class.

Like… I just don't get pictures like these. It's like they're either too stupid to know how chronic illness actually affects you, and therefore don't know that their inconsistent experiences are making them seem more like malingerers, or they're too prideful to give up other activities that make them special, like dance. Kelly was the same way, doing ridiculous poses in hospital hallways.

There has to be some absolutely aggressive jockeying for a port to be going on in order for a doctor to cave and give an otherwise healthy young woman a port.

No. 374042

File: 1502971636598.jpg (105.42 KB, 524x146, eh.jpg)

>>372164
Wondering what her Rheumatologist thinks about her oh-so-inflammed joints and her flushed face, when he sees her photos. Hopefully she doesn't send him the photos of her dirty fingernails and long tooth nails.

She changed HMS to EDS and afterwards to HMS without seeing a doctor. Is she lurking here? Wondering why she insists on keeping CPS(Chronic Pain Syndrom) and HMS in her bio, but not her severe chronic sinusitis and colitis?

No. 374062

Why do so many munchies (Jaquie and Carmel to name a few) have a bacteria filled pink stuffed animal they haul to the hospital - and in Jaquies case - appointments and bed etc? What adult
does this? Nurses is there a mental box called munchie that immediately gets a check mark or at least a strong consideration when you walk in and see said pink stuffie next to an adult patient?

No. 374071

>>373988

The sad thing is, even eating disorder patients can get turned away from treatments (ones that aren't feeding tubes included) until they are "sick enough" i.e. below a certain weight, which fuels the whole cycle. But the Munchie issues are just ridiculous; Carmel's making it way worse for herself.

Bets on how she will be able to ~magically eat solid food again if she gets the sooper speshul tube?

No. 374105

File: 1502983623244.jpg (507.03 KB, 1042x1330, Screenshot_20170817-102511.jpg)

Wanted to share this exchange on Carmel's latest post.

No. 374106

File: 1502983678146.jpg (362.38 KB, 980x952, Screenshot_20170817-102543.jpg)


No. 374124

>>374106
Ugh this all screams ED. She got the doctors looped in to her game and she's probably so far in that she doesn't realize what she's doing anymore

No. 374140

jaquie's new vlog is a huge delivery of milk. says she can't take narcotics because of her gp. eats horrible food right after.

No. 374144

>>373983
Maybe I'm a wimp but I'll never understand why these girls get so overly excited at the thought of having a hole punched through their muscles/abdominal wall/stomach and getting a tube put into it, and dealing with the pain and leakage? Ive had nasal tubes but never a peg and I thought it was normal to be glad to not have to go through that. cant you get a hobby to be excited about instead?

Sage for semi blogging/rant

No. 374148

>>374041

Yeahhh with even moderate pots dance class ain't happening. At least for longer than like 30 seconds. Unless the saline is helping her that drastically.

No. 374173

>>374124

Exactly. Why can't she just live off a full liquid diet? She can easily get her full quota of calories..if she wanted to…she doesn't though. She wants a tube and she has an eating disorder.

No. 374191

I laughed at Jacquie having Judd give her narcotics while she was asleep. If you can sleep through the pain, you're clearly doing fine. Not to mention you never give narcotics to someone who's asleep or lethargic.

She seems less than enamored of her tube. She's not on 12 hr much less 24 hr feeds. She only seems to actually have it connected when she's in public, which isn't surprising.

Her gastroparesis allows her to gorge on fatty chicken pitas and ice cream apparently, but she can't take liquid medication…

Jacquie's level of delusion is incredible. I can't help but wonder if we're witnessing some perfect Storm of Munchausen's and Munchausen's by Proxy with her.

No. 374214

>>374191

You're right, she only runs feeds for maybe half the day. She claims she's not reacting well to the formula and it leaves her bloated and with stomach cramps, she was talking about switching to an organic fomula and I couldn't help but laugh; she stuffs her face with shit, but wants organic formula.

It's like she's too stupid to realize that between the feeds and what she's secretly eating when her Mom and Judd aren't around she's going to be bloated, that happens when you over eat.

No. 374253

>>374191

Interesting that you bring up the Perfect Storm, I was wondering that myself yesterday. Although from watching months of this fuckery I am starting to wonder if maybe her mom and Judd aren't buying it like they used to. Idk. So much going on in that house and those relationships. So much weirdness.
Has anyone noticed that she somehow is able to eat that stupid free Publix cookie EVERY SINGLE TIME she visits regardless of her symptoms or supposed severity of her GP? Is she that stupid? Does she think that we are that stupid?
And last comment - it was super weird to to me that the chick who shows us every morsel of food that goes into her body was super secretive about the "snack" her mom made her. No camera view, no description at either mention - both when she ate it or after she supposedly puked it up. Why the secrecy now? Reading here Jaquie? Hi!

No. 374260

File: 1502999530759.png (243.84 KB, 1536x2048, IMG_2980.PNG)

Someone else is calling out Carmel. There's been a few comments like this. She's so transparent.

No. 374261

>>373276
Forgive my ignorance but what the hell is a "mini migraine"? Wouldn't that be… a headache?

sage for stupidity

No. 374292

I think it's laughable that Jaquie wants to be an occupational therapist. She has shown no evidence of enough intelligence to make it all the way through to a master's. It's only been recently that she has started accepting that her "body and health" can't handle it. It's fucking stupid that she claims she can't take online classes. If she would talk to the disability office she could get it to where she would get extended deadlines if she happened to be in the hospital.

No. 374301

>>374191

No kidding, Jaquie seems at least equal parts delusional and Munchie. Which conditions she's convinced she has and which she's putting on for attention is impossible for me to pick apart. There's no way people munchie this hard without halfway deluding themselves, is there?

No. 374314

File: 1503006188877.jpg (695.86 KB, 1053x1750, Screenshot_20170817-163506.jpg)

I think I found a new one!

No. 374318

File: 1503006354816.jpg (499.36 KB, 1066x1454, Screenshot_20170817-161532.jpg)


No. 374320

>>374314
What has she done that is milky? Spoonie accounts are not all OTT or Munchie accounts. GTFO just posting a profile with no details why you think they belong in here.

No. 374321

File: 1503006484429.jpg (613.03 KB, 1040x1442, Screenshot_20170817-161547.jpg)

Caption from the above

No. 374322

File: 1503006612127.jpg (400.68 KB, 1056x988, Screenshot_20170817-163449.jpg)

>>374320

How's this? Asking for that sweet IV water to do infusions at home.

No. 374323

>>374314
I went through her page and holy cow she is some prime pillporn fodder

No. 374325

File: 1503007036403.jpg (861.19 KB, 1080x1615, Screenshot_20170817-155513.jpg)

Always gotta have that port in full view, even when going to a dingy concert where hundreds of people can breathe their normie germs all over it

No. 374331

>>374322
What is she asking for saline for? I swear, it's just like with tubes. A few people with severe cases of POTS started getting IV saline for legitimate reasons and then slowly every POTS spoonie on Instagram starting wanting it and a precious port or picc. When those things should be absolute last resort.

sage for rant

No. 374334

File: 1503008201969.jpg (835.09 KB, 1076x1839, Screenshot_20170817-171331.jpg)

Everyone wants to be Mary.

No. 374346

>>374024
I love how quickly Carmel has "deteriorated" since the hospital stay when nothing was wrong and she didn't get the tube. Before she WAS eating solids, especially soft foods for all her speshal barium testing etc.

Fucking hell she's so infuriating because I live in the same city and have been to Flinders Hospital which is the one she's had a 14 day Munchie respite in… wonder if any of my med friends have treated her…

No. 374376

>>374346

fellow adelaide-chan, hi!

sage for stupid (it's freaky when cows and farmers are so close to home, no?)

No. 374378

>>374376
Fuck me didn't think anyone from Adelaide would be on here!

Yeah, I acrually found Carmel while going through the Flinders Hospital tag because there's heaps of fattys with "anorexia" on that one posting about their "eating disorder ward" stays etc.

Sage for non contribution

No. 374386

>>374260
carmels answer to all the commenters answers advising her to try fortisips or juices is that she can't have/eat fruit. like bitch come on! its sound more and more concrete that its and eating disorder than anything. shes been banging on and on about her esophagus and food getting caught in it, but how in the world would a liquid impede nutritional intake then if you could take a barium swallow test a few times gladly.

not enough eye rolls available for how full of it when she tries to play it off like she doesnt want to go straight for a tube

No. 374390

>>374314

This is like Kaydee reincarnated! Great find. We really needed another BPD/addict munchie to fill the void Kaydee left. The delusional Munchies can be a bit repetitive.

No. 374416

File: 1503016536864.jpg (660.22 KB, 1072x1542, Screenshot_20170817-193449.jpg)


No. 374439

>>374416
>>374390
>>374314
>>374318
other than blasting lolcow openly on ig this chick screams selfpost to me, or at least just garden variety ig sick girl. nothing special. why should we care?

No. 374441

sage for samefag but kadee worthy?? i had to take a step back. gurl come on. it really has to be a self post. you have to be kidding me.

No. 374442

>>374439
There's a reason people end up on this thread. We don't post about people with legitimate health issues who aren't over the top. If you end up on here, it's time to sit back and take a good, long look at your life choices. Even having legitimate health issues doesn't give anyone the right to shirk all responsibility and live life expecting everyone to take care of them and have everything revolve around them. There are plenty of people out there living mostly normal lives (work, school, social lives, etc.) with way worse illnesses than any of these fakers.

No. 374443

>>374439
just another cow who thinks the world revolves around her.

No. 374444

>>374386
Just like fucking Jacquie. And when they get tubes, they go right back to eating! Or not eating, and not using the tube, plenty of those as well. Eating disorders all around.

No. 374445

>>374331
And saline is usually a last resort, on top of medications (if the medications alone aren't working). But meds don't make them sooper speschel!

No. 374458

Hi, this is Hannah (chronically_confused). I hope I'm posting this correctly since I've only ever lurked before. I'm doing my best to answer the questions you all seem to have about me, even though I don't really know why I was posted here. I am currently getting monthly IV hydration at the hospital on an outpatient basis if I need it. Sometimes I do, sometimes I don't. My lupus (I have SLE- but it primarily affects my kidneys, stomach, bones, and muscles) dehydrates me more quickly than a healthy person. Someone here compared me to Kadee, saying something about BPD and addiction. I have anxiety and depression, for which I take antidepressants. That's it. I do take pain medication but my doctor obviously prescribes it and has done random urine screens per office protocol. The pain medication is for the degenerative disc disease, not lupus. Lupus just caused the wear and tear on the discs to speed way up. Do I think the world revolves around me? No, but I used to. Moving out and living with my fiancé really helped me grow up. For this, I'm thankful. Do I think I'm special? No. Lupus has been easier on me than so many others. I still have both kidneys and haven't had a blood clot. I'm fine with answering any questions you have, but may I say that from lurking here awhile, it seems like it's only about one or two people really fixated on me. I did upset Carmel yesterday, she deleted the comment I posted but it wasn't too nice- I basically said that she wasn't getting a tube and she was wasting a bed. I don't know if she knows about this site but she could have posted me, I suppose. I'm just pretty confused as to why I'm here? I don't even post once a week on IG.

No. 374461

>>374416

Fair enough about the saline. Truly if you've spent enough time on this board you realize that nearly everybody here is sick in some way and that the suspicions aren't about the legitimacy of the illness so much as they are about the big beautiful narrative that gets built around these things and turns them into the most important thing in life. Almost everybody who makes an account just to talk about being sick gets pulled into it. Maybe even unintentionally. But it trains you to see every detail as something that everybody is obligated to know. It gives you a complex of your world revolving around you and your symptoms. Many people have realized that so much more is out there for them after reading these threads, deleted their spoonie account, and moved on with a much healthier mindset. Maybe you'll be next. Being sick sucks. But You don't have to let it take over everything. Now that you've seen your name pop up here, just think about it.

No. 374464

>>374458

What did you say to Carmel? That's the real milk right there.

No. 374466

>>374458
Hannah, I have bad degenerative disc disease. In fact, I just had a spinal fusion in L5S1 because of it. But it is NOT a disease. The name is a misnomer. It is a natural process that EVERYONE has to some extent. It is part of the aging process. Get over yourself. You DO NOT need long-term pain management for degenerative disc disease. You take ibuprofen when necessary, and maybe a low dose pain med for more acute symptoms, and maybe surgery when it calls for it, like me.

Degenerative disc disease is also not a reason to go on SSI for fuck's sake. Non-spoonie people who have it still work. They just manage the pain while working (again, like myself).

You are not fucking special or severely ill. You have some very manageable conditions. Most people with Lupus and degenerative disc disease work jobs and have active, fulfilling lives.

Quit with the attention-seeking drama, and move on with your life.

No. 374467

How convenient for Carmel that she's vegan and "intolerant" to fructose.

No. 374469

>>374191
Or just do a liquid diet. If you can eat that much solid food, then if you're struggling, do liquids. But somehow she jumped right to a tube, and a gj tube at that. And a tube she's not using, because she "can't tolerate it", yet she's still eating and very obviously gaining weight?? I sure hope someone calls her on her bullshit, she's scamming so much money from people to pay for these medical interventions she doesn't need.

No. 374471

>>374467
That's exactly what all the anorexic vegans say. And let me guess, she's also intolerant of fats, right?

No. 374472

>>374466
Yeah, wking yourself is not a whole lot better. If you were really over thinking this way (and this goes out to any spoonie out there), stop posting, move on with your life.

No. 374474

>>374461
I am trying to be more careful about what I post. It was actually lolcow that made me stop posting pillporn and stuff like that. I'm even trying to think of a new name that doesn't include "chronically" in it. I have another friend who recently did that because of people like Carmel and Jaquie and so on. Thank you for being kind.

No. 374476

>>374474
sorry the internet is hard for you.

No. 374477

>>374466
Sorry, wanted to add that if you haven't had surgery for your degenerative disc disease then you really don't have it that bad.

Sage

No. 374480

damn cant believe hannah and carmel go to the same hospital
like wth is in the water round those parts?!

sage for non contribution

No. 374481

>>374471
>>374467
so no carbs, fats, sugars…if she were gunning for an eating disorder dx, she sure would give mls a run for her money for the worst case of anorexia ever. but its gastroparesis. but im fairly certain it will be the worst case of gastro because all the tests came back negative and all the drs are stumped and yet she still sufferes..

No. 374482

>>374477

No need to pull the "im sicker than you" spoonie crap.

No. 374483

>>374466
I should have been more clear. I have degenerative disc disease in my neck. So when I was first diagnosed with it, I was put on a second NSAID and used ice packs. I did that for over a year until it became dangerous. My skin was breaking down because I was relying on the ice packs to numb the area, which meant I didn't wrap them in anything. I tried every single NSAID. I kept getting worse. I wasn't sleeping- even with my sleeping pill (which I've been on since age 12 as a psych med). Eventually the stress made my lupus flare up pretty badly and I began pain meds. That's a decision my doctor and I made together, kind of like the decision for me to apply for SSI.
I know I'm not special. I never thought I was.
You probably have a much higher tolerance for pain than I do if you got by on ibuprofen. I really admire that kind of strength. For the record though, I didn't ask for pain meds until more than 18 months post diagnosis when I had no more options left. I'm not even on a strong painkillers. I know people like Chloe and various others get meds like morphine or Fentanyl patches, but I don't take anything even close to that.
As far as surgery, I'm eligible for it but most surgeons are wary to do them as I'm just 21.

No. 374486

File: 1503023026239.png (3.41 MB, 1536x2048, IMG_2983.PNG)

Purging makes your potassium drop,

No. 374487

File: 1503023060962.png (2.24 MB, 1536x2048, IMG_2984.PNG)


No. 374488

>>374480
We don't. I live in the US. I had commented something to her that she later deleted but it basically said her doctors were smarter than she is and being vegan is no reason to not abide by their suggestions. I said that since more than a few doctors said she didn't need to be there, to be happy about that and to free up the bed for someone who needs round the clock nursing care, IV meds, or daily scans. She seemed to be hinting that they weren't letting her stay because she doesn't have private insurance (and I really don't know much about AUS healthcare) but that even in the US, she wouldn't be allowed to stay. A few hours later, it was deleted.

No. 374491

>>374106
WTF? Why can't she drink ensure? That shit is high as fuck in fat, vitamins and kcals plus it doesn't even taste too bad (when I was sick it got me weight restored fairly quickly).
I mean, I know she's starving herself on purpose, and I can even see the appeal of a tube from an ED pov bc that means complete control, but surely the Dr's etc would stick her on something like ensure before giving her a tube?
Stick her in IP and gavage her and pump her full of ensure for 2 weeks and I bet all the $ I have that she would be completely weight restored.

No. 374511

Carmel gives pretty good milk but she seems insincere af. She's gonna end up in the failed munchie dumpster, stuck with normie diagnosis ED and other psych issues.

It is funny that Carmel wants to stay in the hospital 15+ days. That would drive a normal person nuts. I can only imagine the banal drama she kicks up in private in her spoonie circles.

When munchies don't get things there way they seem to become unhinged which is what we see with Carmel.

Contrast this to Jacquie. The world is her oyster. She's free to do whatever her munchie heart desires. She's reached some sort of critical mass and has fair prospects of channeling her Munchausen's into any form.

These are good cows. We're living in interesting times friends. We could probably collaborate and compose an interesting analysis of IG munchies.

No. 374527

Why the fuck does Jaquie eat that God damn cookie if her immune system is so compromised. Does she not realize how many people have touched that thing? Same goes for eating out, why does she eat anything that wasn't made in her own kitchen?

No. 374529

File: 1503028333491.jpg (541.13 KB, 967x1733, Screenshot_20170817-225106.jpg)

She really does have an excuse for everything, doesn't she?

No. 374537

>>374527
Because there is nothing that seriously wrong with her

No. 374538

File: 1503029753893.png (110.54 KB, 750x1096, IMG_2102.PNG)

Here's another begging for tubes. More pics to follow

No. 374539

File: 1503029784195.png (193.14 KB, 750x850, IMG_2101.PNG)

Caption for the above photo

No. 374540

File: 1503029803745.png (192.69 KB, 750x1194, IMG_2100.PNG)


No. 374542

File: 1503030438562.png (94.37 KB, 750x1091, IMG_2103.PNG)

Of course riding the IV pole

No. 374543

File: 1503030457138.png (200.06 KB, 750x1199, IMG_2104.PNG)

Oh

No. 374546

File: 1503030678533.png (253.5 KB, 750x1099, IMG_2105.PNG)

#munchiegoals

No. 374547

>>374543
Oh my Christ this is… Anyone that tumbles has def fell on their neck and guess what? They survived. Esp. Without neck braces IM DYING AT THIS

No. 374549

File: 1503031070497.png (242.92 KB, 750x1097, IMG_2106.PNG)

In other news: the rest of her posts are definitely hinting at GP, but she's so uninformed it hilarious

No. 374550

>>374540

Good job on threatening a doctor to get your stupid tube. Because, you know, you can't buy alcohol but you sure know what's best for you better than us. Ok, fine, kid. Enjoy your nose hose.

Also, I'm so glad we've got Munchies who, with their copious experience of endoscopies, know exactly how long an NJ insertion should take. Lol fuck off.

(Sane people explanation: it's easy to put in an NG: you simply shove it up the nose and it will eventually end up in the tummy (or the lungs, but we prefer that not to happen). NJs are trickier, they have to be led past the pyloric sphincter and through the duodenum into the jejunum. By the time we get there, the pyloric sphincter is generally shut from all the messing about upstream, and getting the scope through can be a real struggle. Maybe Miss Spoonie McMalingerson would prefer we just shove the fucking thing through, huh?

The sense of entitlement in these useless fucks is starting to really grate on me. I don't like entitled sick people to begin with, but entitled healthy people pretending to be sick is a no-no.

No. 374551

>>374529
that sensory issue sure came out of left field huh? but carmel is fixated on that manometry, but when that turns out to be normal she wont have much else to lean on to cry about her esophagus not being able to handle food. manometry, barium swallows, purees, liquid diets, what else does this bitch want? oh yea….a fucking tube.

No. 374553

>>374549

I wish I could un-read that.

No. 374554

>>374546

Tubie pads: $20.
T-shirt: $35.
Sitting at home browsing chronic illness tumblr and being happy for having a tube sticking out of your stomach while sane people of your age are looking at starting a career, a family and a life rather than seeking refuge in pretending to be sick: priceless.

No. 374555

>>374549

If you have libido, you're not in serious pain or on serious painkillers. Speaking from both ends of the stethoscope: actual serious long term pain represses libido, and so do narcotic painkillers. So, err… she's either talking shit or talking shit. We regularly have people with intestinal tumours and other nasty and painful shit ask for help to get their libido back and are even willing to cut back on their pain meds. It's highly unlikely that anyone in as much pain as she claims she is would want to have sex, never mind as to whether they could.

No. 374556

File: 1503031632983.gif (544.53 KB, 275x154, 1429261659288.gif)

>>374549
this is a new low

No. 374561

>>374551

It won't, OM is really easy to fake, even without muscarinics. I hate OM as far as tests go - it's expensive, it is not diagnostic of, frankly, anything and it makes me have to deal with the physiology staff, who are notoriously ill-tempered (so am I, but I am a doctor, and I get to be an asshole). Not only is it highly susceptible to the usual suspects, the intra-subject variation is pretty bad. It screams 'last attempt before psychiatry'!

That said… what's it with the sudden rise of sensory disorders among spoonies? The ME/CFS lot used to have them, but it seems to me that Vogmasks are so yesterday and the current fashion accessory in vogue is a bright pink pair of headphones. I've seen people with autism and some cognitive disabilities benefit from them, especially in unavoidably loud areas, but the bullshit that these Munchie fucks are claiming about sensory hypersensitivity blows my mind sometimes. It's a real condition, it just has nothing to do with how the Instamunchies of the day present it.

No. 374564

File: 1503032657182.png (483.3 KB, 934x602, Screen Shot 2017-08-18 at 12.0…)

I just happened to balance my phone just right and take a video of myself coming out of a seizure!
No way. Absolutely no way.

No. 374567

>>374564
holy fucking christ

this piece of shit right here… I wonder if she's even seen a full on convulsion? My sister had febrile fits as a young toddler and they were terrifying to watch… she recently started having convulsions again and she's been diagnosed with an incurable brain tumour, so I guess she has the ultimate in munchie dreams, a terminal illness

sage for incandescent rage

No. 374597

>>374458
Don't selfpost. Don't blog. Go away.

No. 374598

is there any info on "my titus 2 journey"?
I had a squizz at her facebook and I'm wondering if the daughter's exhibit genuine symptoms because they've been told their whole lives they're sick and so have a psychosomatic response or are they playing along because mum manipulates them or are they now in on the whole awful MBP saga

No. 374624

File: 1503042834516.png (333.67 KB, 680x1025, Screenshot_2017-08-18-00-28-35…)

https://themighty.com/2017/05/fighting-chronic-pain-illness-without-a-diagnosis/

Her pain has no diagnosis, yet she is on oral morphine and is discussing injections with her doctor.

She crowdfunded for her nebulizer. Does the NHS not supply them? She needs it for her allergies and when recovering from her frequent seizures.

She lost her lighter under her boob where she stashed it because her clothes lack pockets. Why is she carrying a lighter? Surely she doesn't smoke if she requires a nebulizer.

Her hand and wrist joints are so loose that they require frequent bandaging and her thumb keeps dislocating, but she bravely perseveres in knitting Spoonie Squares!

No. 374625

>>374561

It's easy to fake? Can you say a bit more please? Also you say it's not diagnostic of anything, so why do they do it? Just curious 'cause I've seen a lot of munchies say they have oesophageal dysmotility.

No. 374626

>>374622
Actually often the NHS don't provide nebulisers for various reasons, they will prescribe the nebules but you provide the machine. However they can recommend many places that will lease you one for a very small price, or they will often lease you one or actually you can buy them for less then £50 and they work fine. Crowd funding or go fund me or anything for such an item is a joke. Why is it ok to ask people for money for something everyone else pays for themselves??? In the U.K. we are so lucky to have so much of our treatment paid for. I don't think some English "spoonies" fully appreciate how truely privileged they are to be able to call an ambulance without having to worry about if they can afford it!
It's like when I read that vaccine injury chloe is applying for a grant for £30000 to make a wet room in their house, but that wouldn't be enough so she needed a go fund me or whatever. You're potentially being given £30,000! Be grateful you live somewhere that will even give you that rather than asking for more money from people who worked hard to earn it! Grinds my gears. Sorry for the rant/no new milk

No. 374638

>>374624
Somebody's clearly trying for an EDS diagnosis…

No. 374642

>>374626

I think Chloe's Chronicles aka "vaccine injured Chloe" is trying to be like the other Chloe who was on DIY SOS and got the new house.

No. 374646

>>374624

I mean this kindly but she is really putting a lot of pressure on her joints by being overweight and losing some would probably help her a lot more than necking morphine.

No. 374650

>>374642
Why are the UK Chloes such thirsty cows? It's as much about the money for them as the emotional gain.

No. 374651

File: 1503048300456.png (636.33 KB, 750x1334, IMG_7103.PNG)

This cow is absolutely beaming at her taste of a real tube - unfortunately for her it was just for a manometry test. Uploaded 3 other photos include an IV in her hand and IV fluids. 1/2

No. 374652

File: 1503048360970.png (380.89 KB, 750x1334, IMG_7104.PNG)

>>374651
Oooh medical mystery Carmel doesn't think the doctors don't realise she's obviously fucking purging? How else would ones potassium go down!

No. 374654

File: 1503048823729.png (737.78 KB, 679x1179, Screenshot_2017-08-18-02-30-32…)


No. 374657

>>374652
tells someone suggesting bananas she can't eat them. uses fucking banana emoji. i realize how petty this observation is but she fucking annoys me.

No. 374658

File: 1503049161793.png (803.34 KB, 684x1012, Screenshot_2017-08-18-02-31-00…)

Prior to crowdfunding her nebulizer, she posted many photos using this mask with oxygen at home after acquiring the mask in a visit to A&E. Notice that the bag is not inflated, whereas it is inflated when she uses it with her nebulizer.

No. 374659

File: 1503049233283.png (633.41 KB, 681x969, Screenshot_2017-08-18-02-16-36…)

Quetiapine for epileptic seizures?

No. 374661

>>374652

What the actual ever loving fuck is day leave?! I get why it might be appropriate for people who are in hospital long-term but for Carmel..? Top kek.

No. 374662

File: 1503049496999.jpg (58.26 KB, 578x322, IMG_2272.JPG)

>>374561

Ok, so in medicine, we look at tests from two aspects - sensitivity and specificity. Say you want to create a tool that detects if someone or something is a dog. So it may look at whether it has four legs - most dogs do, so it's pretty sensitive, but very non-specific while a test that looks at, say, whether it looks like a photo of a Golden Retriever is going to be very specific (few non-dogs look like one) but miss a lot of totally legit dogs (not very sensitive). We use the first type of test to screen for disease and pick out folks who might benefit from more intensive testing.

OM depends very significantly on the resolution of the system used, the experience of the techs (units where a lower volume of OMs are performed p.a tend to be up to 25% wrong, which is bad). Equally, interpretation of an OM is a bit of an art form and many docs, myself included, are absolute shit at reading the results.

Finally, a pretty large number of asymptomatic people have abnormal OMs. The enclosed image shows what a hi res OM topogram looks like. The interpretation relies so much on experience, I'm often uncomfortable accepting results unless they come from a known centre of competence in OM.

As for faking, I'm not gonna give tips, but faking dysphagia is pretttty common. So much so, a more specific and better technology called deglutition surface EMG can be used to detect whether muscles of ordinarily used in swallowing are, err, recruited by the patient. Of course, none of that can differentiate between factitious and somatoform dysphagia…

No. 374663

File: 1503049641043.png (527.93 KB, 676x1170, Screenshot_2017-08-18-02-14-17…)

>>374555

Those hashtags tho. #sexy #ballgag #chronicpain

No. 374664

OMG the movie is a fundraiser for Carmel? Ew, could she be any more munchie? I'm embarrassed for her and her smug face every time she pulls that stupid smile in hospital.

No. 374666

>>374567

Inoperable but benign brain tumour fag here (I could technically say I'm self-diagnosed: I collapsed at work and my colleagues dragged me into an MRI and I read my own MRI, so technically I diagnosed myself first, then a neurologist… then again, I'm a doctor!). I am so sorry about your sister. My heart breaks for families who have to struggle with the terminal illness of your loved one. Best wishes for your sister' health. I hope she's receiving adequate care and will be able to enjoy her time left here on Earth

Sage for no milk and unusual outburst of compassion.

No. 374669

>>374646

God, I hate this bullshit.

We have a steady stream of people with joint issues who wrangled themselves a gastronautical referral from their doctor so that we can prove they have an organic or metabolic reason for being overweight because they are fed up with their doctors 'blaming their health issues on their weight' aka suggesting that someone with EDS might not want to gorge themselves on shit tier food and balloon up like Randi (Harper, not The Great).

It's infuriating to see the typical spoonie algorithm: out of work due to 'pain' but plenty of energy to 'raise awareness' and various cutesy activism shit. I have no problem with activism, but effectively choosing not to work and doing activism instead of work and expecting the same approval as people who volunteer their free time is just ridiculous (see genuinely ill but super-OTT Lucy Watts, who got a fucking MBE for moaning about her health issues!).

Sage for rage.

No. 374670

>>374652

Hand IV? Ooooh somebody is starting to jonesy for a port/PICC line/Groshong. Purge, get dehydrated, have some caffeine and God's own ultrasound assisted IV team won't get a needle in you, preparing the route for that sweet, sweet and superbly visible clump of metal in your chest that you can wear like a Purple fucking Heart.

No. 374672

>>374654

> cracking bones with every move


…is to the best of my knowledge not a symptom of EDS. Don't lax ligaments mean fewer fractures as forces dislocate rather than break the bone?

No. 374673

>>374661
>>374652
I know it's very strange, I've only heard "day leave" in the psych ward (UK) because people there are basically being held there.

All other patients can come and go as they please (as long as they are able to walk etc) and as long as they are not criminals or a psych patient who are being kept on the ward. Obviously we don't let those with severe dementia, or anything that makes you confused like that, out unless they are with family etc but I have never heard that as being called day leave.

But i guess, maybe it's different in NZ.

sage for medstudentfagging

No. 374674

Her unexplained chronic pain illness journey started after she collapsed at work with right side abdominal pain in December 2014. She underwent an appendectomy and was diagnosed with PCOS. In January 2016 she had her first seizure; her seizures are clonic and tonic-clonic but non-epileptic in origin and defy diagnosis. She has been in hospital over 100 times. When her pain is not quelled by morphine she calls the paramedics. She overdosed once when she took too much in an effort to avoid A&E.

No. 374675

>>374624
What kind of incompetent pricks are feeding these girls morphine? When did it start getting handed out for aches and pains when it used to be "well yes sometimes bodies hurt take a paracetamol, stretch, and get the fuck out of my office"

No. 374676

>>374669
Jesus christ, I just looked her up and she is the most ott bitch I've seen yet. Google her, farmers. I have no idea where to even start. How the fuck did she end up with an MBE? What were they thinking!

No. 374677

>>374658

Using a rebreathing mask with a neb? Not my area but that's highly suspicious. Especially as the fine neb mist would just condense and deposit unless directly inhaled. I think she connected a prtial rebreathing mask to her neb to make it look more like she's at the hospital receiving oxygen and also sooper srs Frey Life Knockoff Syndrome.

No. 374680

>>374659
First and foremost: no. Quetiapine is a seizure antagonist. Were she actually epileptic she would have been put on epilepsy medication e.g. Gabapentin, lamotrigine etc. Not to mention these things take like an hour to kick in so there's no way it would be effective in "knocking you out before you had a seizure." This is such bullshit. .

No. 374681

>>374672
in almost all cases, bones aren't fragile as a result of eds. Even though it's mentioned with breaks, this cow probably means cracking, as in with cracking your knuckles, displaced gasses causing sounds?

Why do these munchies not realise hypermobility, especially of the hands is a NORMAL VARIANT of humans. Quiz your peers and 4 out of 5 probably have a joint with a large range of motion than is "normal". Hypermobility itself, is not a rare disease, a few dislocations and some joint party tricks does not an EDS diagnosis make.

sage for ranting?

No. 374682

>>374663
We all know the #ballgag isn't used for its intended bdsm "aesthetic" it's so her bf can make her shut the fuck up… This is poetry, a munchie who can't can't cope with pain/discomfort into a kink that predominantly involves pain/discomfort for pleasure… Oh wait… I just answered my own question there.. now I need brain bleach/copious amounts morphine…

No. 374683

Caption: "So here's my first proper diary video. I'm in A LOT of pain and my flare ups usually go away after a few days but at this rate I may end up in hospital. Hopefully it doesn't end that way."

Day 5 of a pain flare. Pain level easily 9 out of 10, several seizures that day with urinary incontinence, vomiting, but so hungry and eagerly awaiting her boyfriend's return from the chippy.

She prefers having the paramedics rather than A&E treat her pain because the paramedics give her injections and entenox (nitrous oxide combined with oxygen). She rolls her eyes with glee when she says entenox is the best pain relief she has ever had.

She is 21 years old.

No. 374687

>>374483
>>374483
Neck, lower back, it's all the same. If it's sooooo bad you need SSI (what a joke) get surgery for it and move on with life.

I know this from experience. My stepdad had a ruptured disc in the neck from it. He got surgery and went back to work. And he's in his '50s.

Quit being such a crybaby dramaqueen.

Sage

No. 374692

File: 1503052286048.png (957.62 KB, 683x1009, Screenshot_2017-08-18-03-26-47…)

>>374680

She has neurontin in her meds box. What else do we see?

No. 374696

>>374677

She appears to be using it only with saline, and she has a proper nebulizer mask as well. She has mentioned using it for as long as an hour after experiencing difficulty breathing, chest pain, and tachycardia.

https://www.instagram.com/p/BWeowOjgEaT/?taken-by=twistedchronicwarrior

No. 374697

>>374683
Oh fuck! I thought I recognised her…I know this girl!!! she's been a personal cow for a while. This is an "of all the Munchies in all the world moment", She craycray and not in a psychologically impaired way just in a robyn way.
Saged for the weirdness of reality vs the internets.

No. 374698

>>374646

But if you take lots of morphine, your gut will slow down and then you get your precious gastroparesis diagnosis.

No. 374699

File: 1503052994393.png (575.82 KB, 681x1036, Screenshot_2017-08-18-03-27-42…)

Her seizure condition defies diagnosis.

No. 374701

File: 1503053291395.png (742.07 KB, 686x987, Screenshot_2017-08-18-03-23-20…)

She recently bought a used pushchair for £10 for her boyfriend to push because the pain in her arms and shoulders is too great for her to self-propel her wheelchair.

No. 374702

>>374699
Because she doesn't have epilepsy, she has medication induced seizures pedominantly.
Saged for specualtion although maybe medpharmafag can corroborate?

No. 374704

>>374677
>>374696

She says that asthma is one of her seizure triggers. The nebulizer helps her "come round" from her seizures.

If she has diagnosed asthma, why is she not prescribed asthma medications, either in inhalers or nebulized, to prevent the asthma attacks? This would, in turn, prevent her asthma-triggered seizures.

"While I'm grateful that I don't have epilepsy I'm also upset that doctors haven't been able to find a cause. Its upsetting that they've seemed to have given up in trying to find a cause and all the while I still get hurt."

https://www.justgiving.com/crowdfunding/nebuliser4sophiebull

No. 374705

>>374670
She literally had a comment suggesting a PICC and Carmel's replied "hmm no one's mentioned a PICC" "they had to get an expert in to find a vein" and her current hand IV "kinda hurts too"

Carmel stop being such an obvious munchie

No. 374707

File: 1503054629425.png (256.82 KB, 683x840, Screenshot_2017-08-18-04-07-39…)


No. 374722

File: 1503058191134.png (254.59 KB, 1536x2048, IMG_2986.PNG)

Chinese food makes a lot of people feel nauseous especially if you eat too much which, let's face it, she probably did.

No. 374723

File: 1503058459598.png (299.82 KB, 760x1019, Screenshot_2017-08-18-11-57-18…)

>>374704
Wait for the gofundme for this or the pip backpayment.. whichever comes first.

No. 374727

>>374722
she's stupid as fuck

No. 374728

>>374702
>>374699

Or psychogenic non-epileptic seizures (PNES) which can be caused by dissociative episodes which she has stated that she experiences. The EEG results would seem too indicate this as well.

Sage for speculation.

No. 374729

File: 1503059599238.png (917.52 KB, 800x1063, Screenshot_2017-08-18-05-06-00…)


No. 374731

File: 1503059813075.png (731.84 KB, 678x1042, Screenshot_2017-08-18-04-58-39…)

>>374624
>>374658
>>374704

Confirmed smoker.

No. 374738

I'm super confused about Chronictwistedwarriors nebullizer shit. Could someone from the U.K. clarify?

She claims her doctors won't prescribe because of NHS strain so she gofucksme to pay for the stuff…so does she actually have a valid prescription for this stuff or is she basically self treating?

No. 374740

File: 1503060715198.png (995.35 KB, 683x1154, Screenshot_2017-08-18-05-39-56…)


No. 374741

File: 1503060752061.png (407.17 KB, 686x1172, Screenshot_2017-08-18-05-40-23…)


No. 374743

File: 1503060769099.png (363.03 KB, 678x1082, Screenshot_2017-08-18-05-40-34…)


No. 374747

>>374729
>>374731
>>374699
She's on medication that increases respiratory depression, as well as medication that carries a seizure risk. She's also taking opioids which, surprise surprise, make you nauseous as hell and slow gut movement. No wonder she feels ill.

No. 374750

>>374738
Doctors rarely prescribe nebulisers in the UK, even for breathing issues. With asthmatics they rarely prescribe them due to the amount of potential for self-medicating/over-medicating instead of seeking medical advice.

No. 374751

>>374738
>>374704

The NHS rarely covers nebulizers. Medication requires a prescription. She appears to be using it only with the saline she ordered and not with medication to treat asthma.

"When oxygen is provided or a nebuliser in hospital I come around far quicker and the after effects of the seizure wear off incredibly fast.
Now while I adore the NHS my doctor won't give me a nebuliser or oxygen due to funding. I've tried to beg for it but it doesn't seem to be happening, however they suggested Amazon; to get my own. Wonderful! Although I'm too unwell to work, I have absolutely no money at all."

No. 374757

>>372040
>>372040
>>374723
Omg being a doctor and reading all this crap really makes me mad
QUIT SMOKING you IDIOT, you don't need a stupid mask, you just want it to look "sicker"… if they threw you out of the hospital it's because they KNOW you're full of bullshit
sigh… she's just an obese attention seeker
just lose some weight and quit smoking and you'll feel better! I hate people who can't see obvious problems and have to blame it on made up crap… agh

No. 374758

>>374751
> my doctor won't give me a nebuliser or oxygen due to funding. I've tried to beg for it but it doesn't seem to be happening, however they suggested Amazon; to get my own. Wonderful! Although I'm too unwell to work, I have absolutely no money at all."
Apart from ESA, carers allowance, and PIP. Which amounts to around £300 p/wk (not including hb). Ughhh so very very poor…

No. 374766

>>374751
Here's an idea for her, stop smoking and eating sh*t, like takeaway, the money you save you can spend on all the medical crap you want?? (Which you will probably find you don't "need" half as much)
Claiming lung issues and poverty when you smoke is infuriating!

No. 374767

File: 1503064906505.png (542.84 KB, 679x1158, Screenshot_2017-08-18-06-44-36…)

Fledgeling munchie? She has been an Instagram spoonie for only a year, but she already disparages her doctors and has self-diagnosed or suspects that she has EDS, POTS, epilepsy, and a rare gastric condition. She is quickly collecting props and invented Spoonie Squares.

No. 374770

>>374731
Her doctor told her that she should get a face mask to avoid triggers which would cause breathing issues but didn't tell her to fuck right off when they learned she was a smoker? Maybe it's a Canuck thing but around here a doctor will demand that you quit smoking, especially if you're complaining about something regarding the lungs. I've heard of doctors refusing treatment until you quit for certain problems to make sure the smoking isn't causing something that you're presenting with (if it's not a life or death thing).

sage for not understanding how the world works

No. 374771

>>374767

So basically backing the DWP into a corner threatening to kill herself if they don't shell out for her fake fu*king disabilities. Disgusting.

No. 374784

>>374771
Worst part is she'll be awarded higher rate care due to "mental instability" it's unlikely she'll get the full mob component as she CAN mobilise 20metres with the relevant aides. I've got me a real life terminal illness and still don't qualify for pip.

Sage for dwp rage.

No. 374789

>>374770
I think her doctor was just trying to get her out of his office tbh in the most tactful way possible, both her and her mother have been quite vocal about her (many) dr's skepticism and dismissal of her blatant munchiness, she doesn't have dissassociative fugues she has childish attention seeking tantrums, there a whole world of difference, paramedics treat her at home as she's on hospital nope list irl.
Saged for bitchiness but I just can't with this girl.

No. 374791

>>374707
getting a second hand in to help find a vein if the first person cant hit one is not a huge fucking deal carmel. doesnt mean they are flying in the experts from the government to swoop in to study your rare case and special veins. and ofc a needle in your hand hurts!!

No. 374792

File: 1503068575784.png (751.82 KB, 671x1173, Screenshot_2017-08-18-07-38-39…)

Likely due to her suicide attempts and unintentional morphine overdoses.

"I'm being careful, oral morphine is incredibly addictive and countless times I've taken morphine when I didn't need it as much just to make me sleep through my days."

"I strongly dislike the stuff, it tastes awful, the side effects are terrible, and if I'm vomiting then it's useless as I can't keep it down. I've begged the doctors for other options like morphine patches or even morphine injections but they declined. The next step down from this that I have us cocodomal. If none of these drugs work then usually it ends in a trip to A&E."

"Co-dydamole didn't help my pain, just made me very sick, then tried me on codine and it did the same thing. I was on Tramadol for a year and at the time I didn't feel like it was working but when I was taken off it I noticed the difference, now they won't let me back on it. I've asked over and over and they say "no its addictive"….then they give me morphine…makes sense…"

No. 374796

File: 1503069794707.png (650.8 KB, 687x1179, Screenshot_2017-08-18-08-13-40…)

This is the same mask she was given in A&E four days prior and which she now uses with her nebulizer. Curiously, it inflates when she uses it with her nebulizer but does not when she uses it with oxygen.

But didn't she also say that she needs her nebulizer because her doctor won't give her a script for home oxygen?

And yet her doctor prescribed a migraine med that decreases her oxygen levels enough to necessitate oxygen?

No. 374797

File: 1503069927170.png (536.96 KB, 720x1280, Screenshot_2017-08-18-10-21-38…)

Apparently she's well enough to chug stomach melting gutter wine. This IG community is one hell of a rabbit hole.

No. 374806

>>374797
Oh, definitely. 95% of the spoonie community on IG is an absolute train wreck

No. 374809

>>374796
this reeks of crap tbh, the fact that her migarine pills cause her to need oxigen to slpee is such a stupid concept to begin with, no doctor would prescribe something that made the pacient need oxigen (???) like wtf? the story seems so fake imo, besides, people who use O2 at home don't usually wear masks like that one, but the ones that go into the nose

No. 374816

File: 1503072212642.png (890.73 KB, 657x687, Screenshot_2017-08-18-16-09-38…)

>>374797
And mobile enough to do this…. but still wonders why her pip was reviewed.

No. 374817

File: 1503072214588.png (862.96 KB, 680x1163, Screenshot_2017-08-18-08-55-05…)


No. 374822

File: 1503072540332.png (661.84 KB, 673x1015, Screenshot_2017-08-18-09-06-39…)

And now she inexplicably vomits everything she eats.

No. 374823

File: 1503072733056.jpg (658.39 KB, 1060x1382, Screenshot_20170818-110758.jpg)

Just wanted to drop this in. A 9/10 headache and she doesn't want to go to the ER because she wants to see her friend come to town. Bullshit.

No. 374827

>>374823
No one with 9/10 can write on IG. I reckon the 1-10 scale should be adjusted to added 'ability to instagram' where 7-10 indicates not using IG. Might prevent munchies from claiming 10/10 pain which basically renders you unconscious. Anything above a 7 is a definitely red flag if they're typing.

No. 374831

>>374823
it boils my blood when i see anyone claim a 4-10 on pain scale and still be able to use social media/take pictures/function normally. like get tf outta here. and claiming dumb stuff like mini migraines or saying they have migraines and still being all over the internet or vlogging or something. mls is great for that

No. 374833

>>374831
Especially considering a 6 is considered to be like 'multiple bee stings' and an 8 is comparable to cchildbirth. How many pregnant women do you know online whilst giving birth?…

No. 374834

>>374823
Can't read anything on a giant poster - CAN read & type perfectly on a tiny LCD screen. Hmm.

No. 374838

>>372040
>>374823
thinking about headaches can cause headaches, too many pain pills can cause headaches too… these people infuriate me

No. 374840

>>374833
not to white knight these idiots but the pain scale is subjective, 10 being the most intense pain you've felt in your life, so ofc, even a small injury could be a 10 if the patient is a stupid munchie

No. 374845

>>374840
subjective sure, but nurses and drs will also keep in mind 10 being like head-on collisions and childbirth. so i understand that they may have not had a 10 experience to measure, but "ma'am what are you feeling on a scale of 1-10, 10 being the worst in your life?" "9" Then they proceed to go back to IG? seems pretty suspect…

No. 374856

File: 1503077609134.png (165.51 KB, 500x647, tumblr_inline_nz8nk5rlmy1s83pj…)

>>374840
>>374845

This is my favorite way to explain the pain scale.

sage for non-contributing to the main topic

No. 374859

I have seen o2 given for cluster headaches but never for normal migranes.Chasing another diagnosis ??

No. 374866

Seconded on Lucy Watts. She's definitely sick to a point but she's a singularly unpleasant and a huge Munchie.

Highlights include:
- forcing his way into Together for Short Lives, a campaign for children's palliative care, despite not being terminal - we who knew her as a patient were rather shocked to hear how much more seriously she presented her condition than it actually was
- lots of suspicious line infections
- obligatory assistance dog
- Hickman line, drainage bag and her fucking urinary catheter all exposed, arrrgh
- both she and her mother are extremely pushy, collecting all sorts of awards and accolades for not doing shit
- she is actively imitating a genuinely ill young lady - every time she gets something, Lucy's gotta have it too
- she collected money, among others with the help of her former classmates, to attend school: as soon as she had her wheelchair, she decided she was too sick to go to school
- she cocreated a charity to fund the research of Prof. Aziz, a neurogastroenterologist who thinks everybody with nondiabetic GP has some connective tissue issue, and keeps diagnosing everyone who has GP with EDS and POTS depending on symptoms. PORT, the 'charity' supporting research, has been a vehicle to keep his research, which his widely accepted and loved spoonies but generally scientifically debunked
- other highlights include starting a charity (Lucy's Light) for herself and being an ass to everyone when admitted - not the 'I'm in pain' kind to ass but the 'I know everything' knid fo ass. She was once invited to speak to some med students about palliative care, which she now reflects on as 'lecturing' to med students.

No. 374872

>>374702

Medication induced is unlikely given her meds. PNES on the other hand is not. The propranolol suggests a panic disorder, so she might be somatising whateverp that's about.

No. 374875

File: 1503079187363.jpg (77.14 KB, 414x436, deformed.jpg)

>>372164

I guess my fingers are deformed too.

No. 374884

>>374872
iirc she was given the beta- blockers when chasing a pots diagnosis whilst using caffiene pills to achieve her "tremor" and "arrhythmia", I've known of her since about 2015, there are some glaring discrepancies in her symptomatic story telling, her version of reality is skewed by "chronically instagram" fantasy which then becomes a self fulfilling prophecy. The second attention is taken away from her she has a crisis of some kind, she will end up hurting herself unintentionally but WITH intent.

No. 374891

jaquie vlogged. talked about how her gi doctor said she really needed her tube. next scene: eating mac and cheese.

No. 374898

File: 1503083773927.jpg (122.44 KB, 444x720, IMG_0596.JPG)

>>374856
We liked to use this one among the staff when I worked in a sub-acute rehab

Sage for off topic but thought it might be appreciated by this crowd

No. 374903

>>374891

Eating mac and cheese, broccoli and bread crumb coated chicken. Da fuq? I have never seen her as giddy as she was in this video. She is absolutely over the moon about this new feeding tube.
One thing I don't follow that she said today, but I also have zero medical background so maybe it does make sense, but she said that one of the reasons she really needs this tube change to happen is bc she is not tolerating her feeds well and wants to change formula. Couldn't she try a new formula with the existing tube?

No. 374908

>>374903
reading your summary anon is why i absolutely cannot watch her vlogs. i think my heart would explode from anger.

>>374898
>>374856

i appreciate these on a deep level ty anons! the pain scale gets confusing, and its always laughable when you here people brag about having a high pain tolerance because there certainly are different types of pain blah blah. like ive given birth, so ive felt that sort of pain, now i compare that to other things i feel so what might be an 8 will be a 5 for me, you never know.

No. 374911

>>374796
In the UK chemists and general practitioners don't deliver Oxygen. She is talking utter crap. Also,the supply of home oxygen is strictly regulated and that doesn't include use at home for the effects of a migraine medication.

No. 374915

>>374654
Wait, I can do that with my fingers. Shit, should I be in the hospital? Do I need a feeding tube and morphine? Can my cats be trained as service animals? What instagram filters would best express how very sick I probably am? Plz advise, lolcow!

No. 374916

>>374903
You can absolutely trial a new formula without changing the tube!

No. 374918

>>374915
oh shit! dont forget to tell us your IG name complete with chronically_ or lifewith. somewhere in it. that way everyone knows your super serious about it. you need a go fund me too.

No. 374921

>>374915
I can do those both too. Time to create a spoonie instagram account (would chronically_cow be nice??), start doctor shopping for an EDS diagnosis, train a sheep as my service animal and buy a wheelchair because I might soon be too fragile to walk.

No. 374922

>>374918
oh my god spoonie starter pack 101:
IG name with chronically, fighting, warrior, or lifewith in it. chronically should be your first choice if you want to gain followers though!
make sure your tubes/tubie pads are showing in every picture and if not, show off your port outside your TARGET MOSSIMO SHIRT
leggings. you're only allowed to be photographed for your spoonie account in leggings.

advanced spoonie pack:
create a helper_dog handle for your service hamster
use multiple emojis to express your contempt at doctors during your totally necessary 15+ day hospital admission

bonus super advanced spoonie:
create a binder with all your medical records in it to drop on doctor's laps the SECOND they walk in the room

No. 374924

>>374903


Oh my god she is exhausting. Like, she is just so high energy, and chipper, and so oriented and just…? The most healthy person I have ever seen. She's so well nourished and energetic.

Also who can talk this long about their illness? 10 fucking minutes? Jesus, even when I'm having necessary talks with people who aren't my medical professionals, I can keep it under a minute even with QnA. And that's with an actual seizure disorder not in remission that is likely to affect others.

Also "severe state of chronic malnourishment", no Jacquie. You were never extremely malnourished. You were slender and you exaggerated your physical symptoms to make it appear like you were more fragile than you were. Purging will put stress on your autonomic system that will make it appear like your baseline is worse off. Even simple dehydration is enough to scare doctors, because it can make it look like your body has all sorts of unpleasant problems.

Also the solid food looks atrocious. I don't even have stomach problems, and that would probably stop me up. All of that processed food would send any healthy person over the edge ffs.

No. 374928

>>374924
she is the definition of fun sucker every time she can't do something because of her spd or because she's exhausted or because it will aggravate her pots that doesn't exist

No. 374929

>>374658
She's not on oxygen just wearing the mask otherwise the bag would be full. Jeez some people!!!

No. 374935

>>374692
Is it not more what you don't see + a hell of a lot of over the counter medications and vitamins!

No. 374941

>>374738
You can get a nebuliser on the NHS. Respiratory consultants are the only ones who can start home nebulisers but the hospital will supply a nebuliser for you. Many buy their own because the NHS ones are old and clunky. It's hard to get news at home as so many abuse them and it really is hard to get them and once you have them you have very strict rules on using it.

No. 374963

>>374911

Agreed. Also, at-home oxygen isn't given to anyone known to be smoking (via NHS anyway) as the tanks are flammable. Blood tests and breath tests are given to confirm that the recipient hasn't smoked in 3 months.

No. 374985

File: 1503096587146.png (584.71 KB, 1536x2048, IMG_2993.PNG)

I'd bet my last $5 that she's after a permanent tube.

No. 374986

File: 1503096743143.png (2.81 MB, 1536x2048, IMG_2994.PNG)

Surely you have a tube BECAUSE you can't eat. Yet, they all still try….

No. 374993

File: 1503098839491.png (1.32 MB, 750x1334, IMG_0298.PNG)

Not sure if anyone has posted Or looked up epileptic bear before but she has all the diagnoses from
Eds to cervical cancer to super severe ePilepsy with lots of seizure pics and medical accessories

No. 374999

File: 1503099559144.png (1.1 MB, 1536x2048, IMG_2996.PNG)

>>374993
How is she even alive?!

No. 375004

File: 1503100500461.jpg (92.66 KB, 1536x563, IMG_2998.JPG)

"Severe vitamin D deficiency"
Is that the best you can do?
Isn't it something like 75% of adults are deficient?
Sit in the sun!

No. 375007

File: 1503100978931.png (256.88 KB, 1536x2048, IMG_2999.PNG)

It's really not that common to get kicked out of GP surgeries in the UK, so the fact that this is the 4th one is concerning. She really, really needs proper mental health help. Also, tramadol AND morphine for hypermobility pain is just insane.

Pic 1/2

No. 375008

File: 1503100995658.png (244.6 KB, 1536x2048, IMG_3001.PNG)

>>375007

Pic 2/2

No. 375009

>>375007

Although it's not clear, I watched her video and I'm sure she said she was on both tramadol and morphine. I may have misheard. She def said she's going to keep going to hospital though….waste of precious A&E resources!

No. 375011

File: 1503101293447.png (594.45 KB, 687x1172, Screenshot_2017-08-18-16-54-15…)

Sophie has been declined further treatment by a fourth surgery and by the pain specialists.

In the UK, if doctors suspect that a patient is a munchie or is malingering or has a conversion or somatic disorder, do they not refer them to psychiatry or communicate with the patient's existing mental health provider?

No. 375012

File: 1503101328735.png (237.61 KB, 684x657, Screenshot_2017-08-18-16-54-32…)


No. 375015

File: 1503101983641.png (207.5 KB, 1536x2048, IMG_3002.PNG)

Going through older IG posts, Twisted ordered a pulse oximeter and asked about PoTS and got this response.

No. 375018

>>374903
She could definitely try a new formula with the same tube, even if she gets her precious gj button, only the outside is different. Still the exact same tube inside. Or she could just not, since she's fucking eating more than most people, including people without major GI problems. Her doctor is a fucking idiot for going along with her plan. If you have GP, they automatically give you a gentle formula that nearly everyone can tolerate. I'm seriously so over her lying shit.

No. 375019

>>375011
A common thing with munchies in U.K is to move from surgery to surgery when they don't get the drugs they want. They move on and try again. I reckon this is what she doing not being kicked but saying that as a cover. Do none of these get that tests that come back negative and no reason for "illness" is because nothing is physically wrong.

No. 375020

File: 1503103087121.png (322.63 KB, 1536x2048, IMG_7386.PNG)

>>375018
Someone prescribed her ice cream, what a fucking joke. There's tons of comments about how "cute" her tube is. What the actual fuck.

No. 375025

>>375020
This girl pisses me off more than anything else

No. 375028

>>375015
Her pulse didn't even rise the amount necessary to be pots, but anything to add another hashtag on Instagram!

No. 375030

>>375011

https://www.instagram.com/p/BVFYF8Jg5xy/?taken-by=twistedchronicwarrior

In the second clip she says that her GP refered her to MH who said that her pain is not psychosomatic.

No. 375040

>>375028
Also, pots usually is more than just an increase in heart rate. And being dehydrated will minic the same symptoms in many people. But the hashtags kek

No. 375042

>>374924
I'm gonna laugh when Jacquie gets too fat for her new tube kek. She's really gaining a lot of weight for someone who can't tolerate her tube feed.

No. 375045

>>374654
Fuuuuck. I just did those parlour tricks with my hands as I lay here in bed. If I can bend my fingers like this (and I am creaky old lady), the absolutely ANY woman can. What a faker.

This thread makes me furious like no other.

Sage for no contribution

No. 375046

>>374915

Go for black and white filters if possible. Moon, willow, and inkwell add a really nice raw emotional mood especially to pics that include your toobs and devices. When using b&w filters never forget to come up with some kind of quote to convey the beautiful metaphor that is your tragic life.

sage for giving horrible life advice

No. 375052

>>375040

THIS. Dehydration, which naturally results from either legitimate GI problems or intentionally not eating and drinking in order to convince doctors how sick you are, can mimic POTS. So munchies will naturally arrive at the conclusion that they have POTS sometime after they start seeing doctors for GI probs. When if they would adopt the proper diet changes, and would drink a few glasses of water, the "POTS" would go away. See on Instagram it all automatically goes together. Everyone has EDS&GP&POTS. In reality plenty of people who truly have POTS don't also have GP and all those companion diagnoses. In fact the majority of people I know with POTS, including myself, don't have GP. And plenty of people who truly have GP don't have POTS. Instagram munchies see it as a list to check off when reality is not like that.

No. 375054

>>375015

Twisted indeed ordered a pulse oximeter and proceeded to post a lot of pics and videos of sitting around with it on her finger

sage for not contributing

No. 375056

>>374663
>>374549
Why the fuck does this lard think anyone wants to know about her sex life? Urrgh the mind images are going to induce psychosomatic vomiting, and probably PTSD.

Sage

No. 375059

>>375056
This, thank you!

No. 375060

>>375054
Screenshots please!

No. 375070

File: 1503108859750.png (1.68 MB, 800x1075, Screenshot_2017-08-18-19-10-06…)


No. 375072

>>375052

Thought I was the only one with POTS who didn't have GP or EDS. I'm super bendy should I make a chronicinstagram being flexible and demanding fluids from ed when I'm attention starved?!
Makes me so angry when people cry POTS over a slightly elevated HR or claim they were diagnosed without proper diagnostic testing and very quickly. A POTS diagnosis can take a long time.

Also the only major risk with POTS is you pass out and hit your head. It's not a life ending terminal illness.

No. 375073

File: 1503109160718.png (660.32 KB, 800x695, Screenshot_2017-08-18-19-17-22…)


No. 375074

File: 1503109249134.png (319.04 KB, 1242x2043, IMG_4783.PNG)

>>375060

Exhibit A

No. 375076

File: 1503109345855.png (312.07 KB, 1242x2084, IMG_4784.PNG)

>>375060

Exhibit B
Can't remember which post but someone commented telling her that wearing nail lacquer can distort pulse ox readings. She responded basically saying that her machine is the same whether she wears it or not. Most spoonies would think they were dying with an HR of 174.

No. 375078

File: 1503109393821.png (320.26 KB, 1242x2021, IMG_4785.PNG)

Exhibit C

Can't say I didn't see that coming.

No. 375080

>>375076
Someone of her weight and lack of fitness probably just hase to jump up and down for a few minutes for this to happen.
Also monitoring to this extent will exhibit a psychsomatic response as focusing on numbers and anxiety will ratchet the hr up.

No. 375081

File: 1503109547811.png (336.34 KB, 1242x2025, IMG_4786.PNG)

>>375060

Exhibit D

No. 375083

File: 1503109604687.png (319.27 KB, 1242x2010, IMG_4787.PNG)

>>375060

Exhibit E.

No. 375085

>>375080

It's also worth noting that deconditioning itself can disguise as POTS. Doctors used to equate pots and deconditioning but have since moved towards an understanding that conditioning doesn't cure true POTS.

No. 375087

>>375081

I love it when the munchies do the whole "muh heart" thing. It sounds more dramatic to pretend its a heart condition.

No. 375090

>>375087
Ironically if you have POTS you're heart is generally perfectly healthy and strong.

No. 375091

Oh my god, the things I would do to have numbers as good as that.

Someone needs to tell her that those are really good. Like really really really good. Numbers I'll never see again in my life.

No. 375092

Nevermind the effect of all that morphine on her heart rate and blood pressure.

No. 375094

>>375087

Especially the oxygen. The oxygen could not be any better.
>>375092

That was my first thought- a lot of meds have an effect on your heart rate and blood pressure. I mean depending on what she's doing with that nebuliser can't a lot of breathing treatments even do that? Not a medfag so may not know what I'm talking about.

No. 375096

>>375094
Morphine is a depressant that will drop hr and bp.

Nebs have a good chance of causing tachycardia as it's a steroid and stimulant.

No. 375099

>>375096

as far as the morphine goes something's not really adding up. As if anything ever really adds up with these people

No. 375101

>>375094

She's using only saline in her nebulizer, not albuterol.

She has never posted a pic of her oxygen "cans."

No. 375102

>>375101
Wouldn't they do a compressor for home oxygen? Or is that just a an American thing?

No. 375103

I'm surprised twisted hasn't asked for that sweet sweet fentanyl yet.

No. 375104

>>375099

She said "oh a bottle of 100ml lasts a month" and then lists how she starts at 5ml and if not better, she'll take a bit more. There are a couple of other posts where she admits she takes it for reasons other than pain. They are on to her which is why she gets "deregistered" at GP surgeries and kicked out of A&E.

No. 375107

>>375096

Nebulizers can deliver bronchodilators such as albuterol or steroids or a combination of both, but she is using only saline in her nebulizer which she ordered herself. In the video she posted when she received the nebulizer she mumbled something about needing to get a script for the meds, but she never posted to confirm that she had gotten them.

Sage for longtime nebulizer fag.

No. 375109

File: 1503111090980.png (1.16 MB, 1536x2048, IMG_3003.PNG)

Jaquie finally got her beloved button. Now she can eat all the crap food she wants and purge to her heart's content via the G port. Yay!

No. 375110

>>375019
It's highly illegal in the U.S. to doctor shop like this. American hospitals as well as physicians keep close track of pain meds that are prescribed, and some even make you sign a legal document agreeing only to fill scripts signed by one specific clinic or hospital. Do they not do this in the UK? People go to jail for doctor shopping in America.

Sage for dumb question

No. 375114

>>375042
Our fatty freak has her new tube and she's entirely, abnormally too excited about it.
And this is total BEC but wtf is up with that stupid open mouthed face that Judd uses in almost every picture or vlog? Fly catching us for frogs?!?

No. 375115

>>375109
Note that her port lumen is still dangling out in the open, even though she said the reason she does that is to avoid tangling it with the dangler jtube…

No. 375117

File: 1503111640788.png (1.57 MB, 800x1168, Screenshot_2017-08-18-19-51-29…)

In April Sophie bashed her knee in a fall resulting from a seizure. She was given the mask in A&E. Over the next few days she was pictured using it at home. A follower then questioned her about her home oxygen >>374796. Not once did she photograph the "cans."

After she got the nebulizer she posted several photos of herself using the mask but with it inflated. Hilariously she hashtagged them #oxygen.

No. 375118

>>375115
Of course it is. And she must, must let it dangle outside her shirt while showing off her precious "buh-in" bc any device not visible might as well not be there.
She'll probably start wearing halter tops.

No. 375119

File: 1503111893192.png (1.13 MB, 800x798, Screenshot_2017-08-18-20-03-02…)

After she got her nebulizer.

No. 375122

File: 1503112191166.png (179.93 KB, 750x1088, IMG_5264.PNG)

Apparently she had to watch her every move and lost all her hair from being suh sickly

No. 375124

File: 1503112330102.png (827.05 KB, 681x1173, Screenshot_2017-08-18-20-08-21…)


No. 375129

File: 1503112689185.png (658.12 KB, 683x1090, Screenshot_2017-08-18-20-14-17…)


No. 375130

File: 1503112789959.png (1.03 MB, 676x1086, Screenshot_2017-08-18-20-15-45…)

>>375119

All that knitting despite her painful, loose, cracking joints and frequent thumb dislocations.

No. 375131

File: 1503112828331.png (726.54 KB, 677x1043, Screenshot_2017-08-18-20-10-39…)


No. 375136

>>375102
>>375117

Sophie has not mentioned undergoing spirometry or a lung function test.

Nor has she mentioned using a peak flow meter which most pulmonologists require of their asthma patients. The only asthma med she has pictured is an albuterol sulfate inhaler.

http://www.nhs.uk/conditions/home-oxygen/Pages/Introduction.aspx

No. 375137

>>375136

and may I add it's surprisingly not that hard to get an albuterol inhaler.

No. 375151

>>375109
Holy shit she's gaining weight. She's got a freaking moon face. Probably purging too, but not enough to keep from ballooning up from all the crap she eats.

No. 375157

>>375118
She will probably say the halter tops are because of her SPD tho kek

No. 375158

>>375122
kek one like. Was it her?

No. 375160

>>375131
Definitely thought she got someone to take this pic while she was in the psych ward

No. 375179

>>375072

You're definitely not the only one. I'd go so far as to say it's MOST pots patients who dont have GP, and quite a lot who don't have EDS. The whole idea that the three always go together is just the result of it becoming a social club on instagram. If you have POTS, you know its debilitating and hard to live with, but like you said, it's also not on par with terminal, really harmful illnesses. By automatically grouping it with GP and EDS and a whole list of conditions on instagram, spoonies paint it in a progressive and catastrophic light. It makes you feel like crap and forces you to change your life, but its not this thing that automatically equals immediate multiple diagnoses, tubes, ports, and a warehouse of medical equipment. I'm in some POTS groups on Facebook and ALL THE TIME there are people posting saying things about how they feel like POTS is going to kill them, and asking how it affects your lifespan. So this whole spoonie narrative rubs off on unsuspecting people who go online looking for answers after being diagnosed with pots.
And on the other hand, it's also a lot more extensive of a condition than the instagram munchies seem to comprehend. If their heart rate goes up a little, likely from deconditioning, dehydration, or even med side effects, they immediately go looking for a pots diagnosis and get so excited when they get it. Its all stupid.

No. 375189

>>375179
Yes! I do have POTS and agree with you wholeheartedly! Deconditioning is a massive part of the illness as so many people have to stop their lives and readjust and then get worse as a result. It's totally life altering but in no way terminal.
So many people think because their hearts a little fast or jumps up on postural changes it must be POTS. But no. Just no. It's so much more.

No. 375190

>>375070

So wait, she claimed to have withdrawals going off 5-15ml of Oramorph (10-30mg) PRN? For one, people who responsibly use PRN opioids, even at a vastly larger dosage, do not experience withdrawal, so either she's talking nonsense when she says the bottle of Oramorph lasts her a month, or she's lying to show what a Super Serious Pain Issue(tm) she has.

No. 375200

>>375190
Bullshit. Not WKing her; this chick is very likely a drug seeker and prime munch material, but you absolutely can experience withdrawal from regular use of opiates, even short-acting PRN dosing, and definitely at larger doses. Assuming that if someone is responsible with their meds, they will not experience withdrawal, is patently false.

No. 375203

>>375073
Yyyyyyyeah that mobility scooter will totally help her give her heart the necessary exercise to keep it from deconditioning… I stopped believing many, or even most, cases of POTS were anything other than plain and simple obesity + deconditioning + a super sedentary lifestyle after briefly experiencing it myself (look for my forthcoming chronically_zebra_unicorn_life_with_assistance_gerbil_steve Instagram) following a very long (8 weeks) hospital admission during which I was not in a state to get out of bed most of the time. By week 3-4, the few times I had to get out of bed to visit the crapper I felt immediately dizzy and tachy upon standing up. And guess what, that's actually normal. Two weeks of gentle graded exercise and I was back to my old self, spending most of the day on my feet (any time I am not spending shoving tubes down peoples' throats, I'm probably running after their various and diverse needs on the world's only ward spread out between two buildings (whoever designed that should be shot). Bottom line, what most of these people experience/describe as POTS is a combination of dehydration, deconditioning and a sedentary/recumbent lifestyle, and it galls me to no end that we let them occupy slots in the already drastically overloaded cardiac care system instead of being told to do some effing exercise (because telling hambeasts who are topping 250lbs as they come into clinic with their mobility scooters that perhaps the best treatment for their issues would be not gorging themselves on vast amounts of shitty food tends to earn you some time with the Trust's complaints coordinator).

No. 375205

>>375110
Hahaha, the US is the worst of all for doctor shopping. Look at Jaquie, bitch. Or the munchie mum with the two daughters. Or babybear! All the US munchies, high or low profile, doctor shop to high heaven and you're deluded if you think that isn't happening. It's much more difficult to see different doctors in the UK because generally you're kept in your own geographic area even if they legit are lacking certain services. Socialised medicine is generally a good thing obviously and we are lucky to have it, but it does result in a postcode lottery where some people automatically get much better care than others. You can't seriously think the US is better at restricting doctor shopping? It's all about drugs, that's all.

No. 375206

>>375200

Given how she describes her use of morphine, including using 15ml prn, you get, roughly, one instance of using it every 5 days or so, assuming she's truthful about a 100ml bottle lasting her a month. Oral morphine has peak levels after half an hour and a half life of about 6 hours, so by the end of the day, it has cleared from her system. She definitely would not have wirthdrawals from that, maybe some discomfort as the dose expires.

No. 375209

>>375129

Spreading positivity? That's a very odd way to misspell chlamydia.

No. 375214

File: 1503125458321.png (578.82 KB, 640x1136, IMG_7056.PNG)

This article just makes me think about all of those 'vaccine injuried' munchies

http://www.dailymail.co.uk/~/article-4798978/index.html

No. 375217

>>375203

That's not her scooter; she was using one supplied by Ikea for customers.

She did get her first wheelchair a year ago, though.

She has not claimed to have POTS, but she seems to always be fishing for potential new Instagram spoonie diagnoses-by-association. Her primary complaints are undiagnosed pain and seizures.

No. 375223

File: 1503126930111.png (48.07 KB, 678x160, Screenshot_2017-08-19-00-11-37…)

>>375217

How that shit starts.

No. 375225

File: 1503127095419.png (608.3 KB, 679x1034, Screenshot_2017-08-19-00-13-32…)

This happened on May 1. The injury happened April 21.

No. 375227

>>375122

Pretty sure she said she shaved all her hair off without knowing like when she "didn't even know she'd overdosed on morphine" in some sort of dissociative state. Think it may have been on the YouTube video shared up the thread.

Completely boggled by this one. Never known someone so nonchalant about calling ambulances or complain about vomiting when she's chugging friggin morphine like water.

No. 375230

>>375223

I'm in a few EDS groups and it is hilarious to notice all the trends. Suddenly everyone has GP and POTS. The new trends here seem to be bladder problems and cluster headaches. Maybe we should invent a medical problem and see if we can start a trend?

Sage for being petty

No. 375234


No. 375237

>>375227

Morphine is not a dissociative drug. It can't cause you to dissociate. Hence, nonsense.

No. 375239

>>375237

She has dissociative episodes due to schizophrenia.

No. 375240

File: 1503128832413.png (989.34 KB, 682x1034, Screenshot_2017-08-19-00-36-10…)

You're dehydrated.

No. 375241

File: 1503128891221.png (867.25 KB, 800x1063, Screenshot_2017-08-19-00-43-11…)

Sophie's first morphine overdose.

No. 375242

File: 1503129009882.png (1 MB, 679x1148, Screenshot_2017-08-19-00-38-19…)

Sophie's second morphine overdose which, combined with her history of suicidality and prior sectioning, led to >>374792

No. 375249

File: 1503129527229.png (621.7 KB, 684x1033, Screenshot_2017-08-19-00-57-01…)

What is her mask hooked up to? Her teddy bear's ass?

No. 375255

>>375214
so convenient to be able to blame the psychosomatic paralysis which doesn't add up and/or is munchausen's relating to her sister being sick with cancer on vaccines hey!

No. 375269

>>375255

Even the way she's sitting in that wheelchair suggests psychosomatic paralysis. People who are actually paralysed don't sit like that.

No. 375272

>>375269
people with psychosomatic paralysis experience it the same as actual paralysis. This cow? she's faking, her whole insta just illustrates it perfectly.

No. 375281

>>375272
Her spoonie insta is chronicallyrubyy and she's faking for sure. Friends with Chloe Leane and the rest of the bloodsuckers of course. How they can bring themselves to waste resources like that…

Vaccine injured is code for personality disorder at this point, at least on social media.

No. 375284

File: 1503140277914.png (938.28 KB, 750x1334, IMG_7113.PNG)

Carmel's had "day leave" for her super speshal mystery digestion problems that no test have detected and that the hospital tried discharging her from ages ago. 1/2

No. 375285

File: 1503140419381.png (246.7 KB, 750x1334, IMG_7114.PNG)

>>375284
Oooh a sore neck and a headache… is she gunning for a meningitis work up? Wants an unecesarry lumbar puncture so she can stay another few hours?

Relevant because it's been in the news here where Camel and I live in Adelaide that a 23 year old woman (same age as Carmel) has been diagnosed with meningococcal disease.

No. 375286

>>375285
'escaping the hospital' to go see a romantic comedy about a woman suddenly having a infection and being hospitalized?
10\10 munchying right there.

No. 375289

File: 1503141954787.jpg (556.54 KB, 2048x2048, F63DE354-7BA8-4403-A57E-E6364B…)

>>375242
The shittiest is probably that shes one of those cunts who posts art with no mention of the artist at all, plus the one with the caption 'cute' is tagged with #ddlg

No. 375290

>>374214
Looking surprisingly mobile for someone that apparently needs so much help around the house and a customised wheelchair!

No. 375293

File: 1503143830171.jpg (34.56 KB, 480x480, dd2c77a7d7e730362c87f6666b0939…)


No. 375295

>>374666
Thank you.
Yeah, she has a glioblastoma multiforme at 35, so she's pretty young for that sort of cancer, it's pretty fucked up.
We're lucky to have public health care here and, while it can be slow and is overburdened, we have really good treatment options (there's even cancer specialist hospitals) so she's in good hands.
She's back to working part time and going to the gym when she's not on her chemo week (1 week out of every 4) so she's really trying to stay as well as she can for as long as she can.
Honestly, I reckon I'd be malingering if I had terminal brain tumour, but she's just trying to live as normal a life until the tumour progresses to the point of her being incapacitated.
That's what blows me away, these young women resigning themselves to an invalid's life when people who could do that with no judgement are out there squeezing as much activity as they can into as much time as they have.
So seeing that soft white bitch claiming she managed to catch her seizure by deftly balancing her camera just infuriates me, she's pretending to have something that is a terrible thing to live with and making light of it, like how is she so fucking full of herself that she's unable to recognise how goddamn offensive that is?! Gah.

sorry, sage for rage and so on

No. 375305

>>375110
It's not illegal to doctor shop in if you switch around to a bunch of different doctors it's more of a changing your storying and lying and say different things to different doctors to try get narcotics which depending on the few states that have rules about it there isn't much they are doing about it other than ban you from said hospital that you were doing it in. Not a felony unless you're getting it to sell then they can charge you with something.

But for the people who are slightly muchie and continue to use the same symtoms over and over again until a less knowledgeable doctor decides to help that's not doctor shopping that's "seeking" another opinion.

No. 375307

>>375295

>That's what blows me away, these young women resigning themselves to an invalid's life when people who could do that with no judgement are out there squeezing as much activity as they can into as much time as they have


Tbh, it's be because it's fucking terrifying thinking that you have a few years max before your body can't do anything at all.

That's what these munchies with mild or non-progressive illnesses don't understand. They're clinging to their continued narrative of victimization because they always have the option of stopping when it gets too scary or when it stops benefiting them. See: EDSmama, who spent years in a wheelchair, crowing about dying from EDS, until miraculously through the miracle of faith, woo, and clean eating she was cured!111!

Blog here: https://edsmama.blogspot.com/

When you don't have the option, and you're staring down the certainty of your body withering away no matter what you do, despite healthy living, medication, whatever, you're going to get as much of what you can out of your body while you can do it.

I'm stuck in this situation right now. Over a period of 4 years, my trunk and shoulder/pelvic girdle has wasted on average 4 inches, which is unable to be restored through nutrition and exercise, because polymyositis is just like that. But I'm going to spend what time I have and what strength I have doing the most insane shit I can do, because fuck if I know when I can't even stand up from a chair anymore.

Sage for blogging

No. 375311

>>375293
Wtf??? If you able to sob and cry then you're not hurting enough. Have any of these idiots ever felt actual breathtaking pain?? They type where you don't inhale too deeply because it hurts too much to breathe???? The louder you "sob" the lesser your pain. Apart from stubbing your toe/trap a finger, that's legitimate fully appreciated real pain right there..

No. 375320

File: 1503151309772.png (842.5 KB, 936x604, wtfcarmel.png)

Ugh Carmel is such a dipshit.

>asking about why I'm smiling even though I'm in the hospital well to me this is the best place I can be I was really struggling and scared not being able to eat at home so I'm just so happy that they are taking care of me here


actually admitting that they are filling your cluster b vacuum of need is fucking stupid.

Glad that the docs wised up pretty quickly and ejected her asap once they discovered there was nothing physically wrong with her. These fucking morons blocking beds and sucking up resources.

No. 375323

>>375320
Why is she even in PJs? There's literally no need, she's well enough to get up and out of the bed. If you're over the age of 8, wear real clothes (even if that means leggings and a tshirt) in hospital if you're well enough to be getting up and about, then again, I suppose munchies are against doing things that make them feel fresher and less sick.

No. 375339

File: 1503155316877.jpg (201.91 KB, 878x2043, IMG_3009.JPG)

She needs a wheelchair with a neck rest but can sit on this wall?! (Cropped because there's a child in the pic)

No. 375341

>>375285

Can't eat anything. Buys a chocolate and hazelnut candybar.

Totally how digestive issues work.

No. 375344

>>375225
Looks like a cut she smeared blood around. I'm no medfag but I'm guessing if you split your knee (not just the skin above the knee) open the last thing you'd be thinking about is taking a fucking picture. Poor baby got a cut and a bruise.

No. 375346

>>375290

Wow check that crippling POTS

No. 375365

File: 1503158452537.png (1.49 MB, 1334x750, IMG_5033.PNG)

Jacquie is beaming today and talking about how proud she is of her new GJ buh-in. Lots of Munchie porn including her putting on her specially ordered "toobie pads" for the first time.

No. 375366

>>375365
Ive avoided her vlogs for so long bc I already find her obnoxious without videos as well, but I watched one today and my primary thought was
'damn Judd seems like a nice guy.. I feel bad for him'

sage for pitying the cows husband

No. 375369

>>375365

Highlights include:

-A super closeup of the current dangling tube that is viscerally unpleasant.
-explaining the button tube allows her to "vent" undigested food and acid. (so basically purging)
-validation of a constant stream of medicalized attention, as the button tube is only supposed to last 4-6 months. ffs
-hasn't eaten since 8:30 the previous night u guize like omg (slices of chicken breast god)
-defends her solid food choices, she hardly ever eats all of what's on her plate!
-wears the vogmask while in the pre-op suite, but not in the car??? (why has none of the medical staff caught on to this???)
-she seems pretty together for having gone under general anethesia. Also pretty high energy after surgery, this chick must have the stamina of the insane.

She just flaunts every aspect of this incredibly unpleasant procedure, and to be honest it actually made me queasy. Hworf.

No. 375376

>>375094

Many people I know who've used nebulizers (including myself) have experienced tachycardia after a nebulizer. It's a pretty common side effect that's no big deal

No. 375390

>>375249
Lol she was able to take photos and a video wow. #twitching haha

No. 375410

>>375240

"Cannulate?" Munchies love using their medical terms.

No. 375411

>>375281

I wasn't going to mention ruby here, as tempting as it's been, but… her little sister (won't name her because she's younger than 16) is in remission from cancer. Red flag?

No. 375420

>>375366
Her vlogs make great pre-bedtime viewing. They're funny enough to cheer me up and boring enough to make me ready for sleep. I'm looking forward to the next few weeks when her g tube will clog as it's not designed to vent cookies and mac and cheese. She'll be in the ER with it clogged and it'll be a whole drama.

No. 375421

>>375376
Screw nebulisers, you can get tachycardia just from salbutamol/alberterol

No. 375427

>>375225
I see she looked up 'EDS', saw 'loose skin' and immediately got the message.

This girl will claim vEDS before the year is done, trust me.

No. 375429

>>375240

And also fairly fat. She IS outside the range for which our average healthcare system was designed for, and the fact that her subcutaneous blubber is enough to make her veins in the antecubital inaccessible explains a lot about the actual source of her malaise.

No. 375436

>>375242

1) who the fuck gives Oramorph to a schizophrenic with a mental history longer than my forearm?
2) so she OD'd on Oramorph, big fucking deal - the maximum she could have had would be, what 200mgs MST? If you're not opioid naive, that would probably not cause you to get too sick. When I worked in a hospice, we had the odd dying person who had a little too much Fentanyl, we simply watched their pulsox and cranked up her oxygen. Oh wait, you don't actually have home oxygen. Haha.
3) anyone with her history should have naloxone at home.
4) Oramorph is a bad drug mainly because it's so fast acting, and based on stomach contents, rather unpredictable. Someone like her could safely be given a low dose (12mcg) Fentanyl patch or a buprenorphine patch with small amounts of bupe pills for breakthrough pain. Not only is she big enough for it (you need body fat for the fentanyl patch to be effective in slowly releasing the stuff), she would have a lower abuse and suicide risk, especially with buprenorphine's antagonism/agonism property, and best of all, she could have a constant dose rather than using her medication for pain relief as a help for calming down. I absolutely, passionately hate benzos, and yes, it can cause respiratory depression, but giving the mentally ill chronic pain patient a script for a tiny amount (say, .25 Xanax, Rx 5, refill after office visit or phone call only) actually reduces the addiction risk - with something to manage the upsetness and agitation, they can use the narcotic solely for the pain, preserving low dose effectiveness while getting better relief from their non-physical pain.

Sage for medfagging.

No. 375439

>>375293

This is bullshit.

For very obvious reasons, the body doesn't get 'used to the pain', and if spoonies had 9+ pain all day most days, they'd be dead.

Seriously. I've seen, from both sides, the kind of pain where the patient is just given one shot of fentanyl after another because their pain is making their blood pressure and heart rate go up high. I've seen people pass out from pain. What I haven't seen is the slightest bit of evidence that these people are enduring horrible high level pain all day, unless you count dumb emoji overuse, constant fishing for another diagnosis, clinging to doctors and their stupid obsession with zebras (oh fuck off, 'zebras' in the med school phrase refer to really rare diseases, not your run of the mill GP+EDS+POTS triple bill) as symptoms.

No. 375440

>>375411

2/3ds of Munchies have a close friend or relative who had a long term severe illness.

No. 375460

>>375365

Is there a emulative precedent for her doing "thumbs up" every other sentence. I can't be asked to watch The Frey Life, much less Munchie YTs. They're really uninteresting. In general this seems like a relatively closed sphere of interest. If you aren't chronically ill or a munchie, it's boring.

Jacquie in general displays atypical gesturing and speech, but it could easily be performative.

Her GI doctor works at Mayo so that explains a lot IMO. Private clinics like that will rarely be skeptical enough to send you for an in depth psych evaluation. It's not even directly because they're greedy. Doctors there tend to have an intervention heavy mindset. Plus they know you have the means to go elsewhere if they don't cater to you.

>>375366

I don't discount that Judd is probably an ok guy. Jacquie going off the deep end is relatively recent, as is them being engaged. It's not surprising he feels compelled to bend over backwards. He probably thinks the more effort he puts in, the faster she'll improve physically.

Unfortunately, catering like this is very enabling. His good intentions are probably making things worse.

Jacquie can play this game forever. He can't, unless he's a masochist.

Still sometimes people with low-self esteem latch onto this sort of thing. Playing the hero gives them a sense of value.

No. 375468

>>375460
Mayo is especially intervention-heavy, more so that the vast majority of hospitals and clinics. As in they'll briefly try something less invasive, but very quickly will jump to invasive. And people assume that going to Mayo automatically means your illness is very rare or serious, when in fact anyone who's insurance is covered can be seen there by simply calling and making an appointment, like any other clinic. You don't even need a referral unless your insurance requires it. Jaquie is not rare or special like she claims, she's just an overdramatic lying munchie kek.

No. 375469

File: 1503173620592.png (209.69 KB, 1466x815, IMG_0237.PNG)


No. 375471

>>375460

There's a particular mindset of person who is easily suckered into a long relationship with a sociopathic, abusive Munchie. Especially given Judd's military past, I can see how he feels like he's giving up his life, his energy, his time and, quite frankly, probably a lot of his expectations of a relationship's physical parts, for something worthwhile. He might even feel that this is a cross to carry and something that to an extent ennobles him. The reality is, he's being used, and he'll become the villain rapidly, as soon as he stops playing the game. Which he eventually will, one way or the other.

Jaqui is a thoroughly unpleasant creature judging from the videos. She's gone past the 'I'm sick and this is how I'm coping with it' to 'look at my cool sick people toys!' The excited anticipation with which she awaited her tube, her general demeanour etc. are all red flags. Of course, her mother and Judd seem to enable her, which is sad. With proper psychiatric treatment, she could possibly have a decent human relationship, not living a Frey Life knock-off.

Somewhat cruel question: what will Jaqui do it and when the girl from Frey Life succumbs to her illness? Sure, these days people with CF live longer, but it remains very much a life limiting illness. Jaqui's whole ambition is to ape the Freys, from the trailer to the tone, but it comes across so artificial, derivative and feigned…

No. 375481

>>375471

And honestly the Frey Life is actually at least a little bit interesting. They cover a lot of things in their vids that aren't directly related to cf and actually go out and live life, as much as Mary's health will allow. Which I think ties in to what someone said above. Most people who are actually critically ill try to get as much out of their lives as they can while it's possible. whereas jaquie somehow relates literally everything in her videos to chronic illness, and her life, at least as portrayed in her videos, is sitting around talking about being sick, or making videos of self administering meds in public. .And go figure- she's not the one with a life threatening disease.

No. 375487

>>375469
Judd's poor face. If he's thinking and feeling what his expressions are saying, something could snap there sooner rather than later.

No. 375516

File: 1503178666186.png (485.78 KB, 1241x1448, IMG_4811.PNG)

This isn't exactly milk and is probably petty but am I correct in saying that the eclipse itself poses no actual danger to your service animal unless they decide to share at the sun? I mean how different is that than bringing your dog out on any other day? kek

No. 375527

File: 1503179907007.jpg (807.44 KB, 1050x1769, Screenshot_20170819-165724.jpg)

She's so fucking happy.

No. 375531

>>375527
She needs to tuck the port tubing out of the way; could have done this all along and not claimed it was going to get caught in her beloved feeding tube; a loop in the tubing and a piece of tape is what lots of people with ports/broviacs do!

Of course, most other people with central lines are not complete munchies!

No. 375535

File: 1503181716347.png (548.42 KB, 750x1334, IMG_5034.PNG)

"Oh cool!"

This is why Munchies are so toxic. Feeding tubes are not toys, they're not cool, they're not exciting. Fuck Jacquie for promoting this kind of behavior and minimizing the struggles of those who actually need these interventions.

No. 375538

>>375527
Why does she keep saying it's "more versatile" than her previous tube? It's literally the same thing as a non-button tube, just the outside tubing can be disconnected (for people that actually want to minimize having a tube when it's not running). She can purge out of it the same she was with her old one. There is literally no difference in how the tube works. Button tubes are good for kids who pull on tubes and adults who want to hide their tubes better, or those munchies who just want to be a little more extra (and we know exactly what category Jacquie falls into). I swear the on,y reason her dog has it's own IG is to give Jacquie another opportunity to show off her sooper speschel "illnesses".

No. 375541

>>375531
Like she's doing any sort of activity that would cause any tangles. She's literally the laziest cow out there.

No. 375542

>>375527
She was IGing about how she's worried about her dog, but oh, wait! Here's a picture of me showing off my speschel toobz

No. 375543

File: 1503182239772.jpg (226.61 KB, 1543x1536, IMG_3018.JPG)

Last comment!

No. 375547

>>375543
Omg too funny. That's exactly why she got the button. And if her GP is as severe as she claims, eating is still not enjoyable at all, no matter how quickly you "vent". She's going to eat whatever she wants because that's what she's been doing this whole time.

No. 375549

>>375543
What's recommended to eat to "keep your stomach functioning as much as possible" is small amounts of easy to tolerate food, like saltines and purees. Not mac and cheese and cookies like she eats. She's definitely going to clog the g tube part soon

No. 375552

File: 1503183560286.jpg (263.52 KB, 1543x1184, IMG_3020.JPG)


No. 375553

>>375549
Yes but she'll enjoy that because it means she gets to go back to one of her favourite places - the hospital - to get it unclogged.

No. 375554

>>375549
Yes but she'll enjoy that because it means she gets to go back to one of her favourite places - the hospital - to get it unclogged.

No. 375575

how is she so excited for a feeding tube? you can tell when judd was alone in the car at the end there he was definitely mocking her but with her "autism" she probably doesn't get it at all

No. 375588

>>375543

There is absolutely no evidence that someone in GI distress eating food they might throw up will restore their GI function or keep it from deteriorating. In a normal person, GI peristalsis keeps going whether the stomach is empty or not. There exists a protocol intended to get the intestines going that uses a slowly increasing trickle feed starting at a relatively low rate, but given that she can process formula (unlike most people with severe GP, who tend to reverse peristalse it back from the jejunal tube up to the stomach and then up the oesophagus, leading to dark, bile-stained vomit), she must have some intestinal function left. Often, when we give patients with GP jejunal tubes, it is to give their stomach a break, and then slowly reintroduce some food through the G-port alongside the main feed in the J-port, and slowly shift incoming balance towards the G-port. Indeed that, rather than 'venting', is the main reason we give G/J tubes rather than straight PEJ/RIJ tubes. Bottom line, she could have a far easier time if she just stopped eating orally or chew/spit, for a few months then slowly start a trickle feed in her stomach. But no, she'd rather eat, the piggish piggy pig that she is.

Btw, if your doctors want you to vent, you get given a script for Farrell bags (vacuum bags to vent into). Venting with a syringe is extremely stupid and can cause major damage to your stomach, as can trying to suck things then squirting water through the G-port. The G-port is not designed to suction much because it doesn't have a hollow lumen, its lumen has an annular shape as it has to accommodate the J-tube in the middle. So it will get clogged at the first bite of food. Worse, because buttons are far softer, the suction that the G-port experiences causes the sides of the tube, which ought to rest in the stoma, to bend inwards. This has an effect as if you used a sort of peristaltic pump to suck gastric contents into the space between the stomp and the tube. The results are predictable: irritation, infections, sepsis, up to and including peritonitis and/or death. That's why Farrell bags have a relatively low suction compared to plugging a syringe on it and tugging on it. Venting and Farrell bags are intended to relieve gaseous dilation (usually from bacterial overgrowth) and bile, not to remove what you have eaten, you esting-disordered Munchie fuck.

Sage for medfag rage.

No. 375589

>>375552

Bullshit. I've seen people being given actual life changing treatments like GNSs and pain neurostimulators and better meds that mad their issues go away. They were like 'whoa, neat!' but I've never seen this behavior in anyone we did not suspect of being a Munchie.

Rather, it seems that all these medical interventions - and these specific ones - are seen by the Munchies to validate them, to externalize and show that they really are 'very sick', and buttons are more popular among long term tubies and of course much more comfortable - the point is to fake disease, not to pretend to be unwell, after all!

No. 375595

MLS milk goldmine.

munchies say the most darnest things, endlessvoices/ MLS edition.

So many to choose from..hard to pick. Best vid yet.

"Hope she (therapy) doesn't yell (karma for all her yelling/fighting with her drs perhaps?)at me and get on my case about my anorexia and my little slip in going through right now. I'm not on purpose it's (insert list of course included gp)"

"Constant nausea constant pain is how my body deals"

"She kept bugging me about getting a job and(not sure if she says bugging brining up or breaking) up with my boyfriend."

Paraphrase)I'm on disability. Not ready to work. Tired after 10 min standing. Worried about keeping disability with therapist hope other Drs will say I need disability

Mentions malnutrition and having to eat or drink because she doesn't have any tubes, lost of more on going symptoms so on.

What's been bothering me is she keeps mentioning her anorexia is slipping but she's not on purpose. In that case it wouldn't be her ED..just side effect of her super special severe illnesses. I'm pretty sure her therapist would know if it's sickness related or ED related..and MLS keeps mentioning it and trying to sound convincing by pawning off as side effect from this super special presentation of GP that suddenly because the center of her world as soon as her manipulation paid off and got the GES.
She would be having this much trouble before that ges had it always been as bad as she cries but it wasn't. It was IBS first and probably still is. She only started to post pictures of her sticking her stomach out and leaning back when she decided it was time for more attention other than self harming and a stable ish eating disorder got boring.
If they believe it's more an ED than anything she ain't getting help for her special GP unless it's severe and they actually see her making effort (yea right)
I love that she has maintained the anorexia diagnosis. She may have met the qualifications in the past but right now she does not. So she's got a history of anorexia and currently has EDNOS.
Got to have that long diagnosis list eh?

No. 375596

>>375376
>>375421

But Sophie is not using it for albuterol or any other meds, just saline.

No. 375603

>>375595
MLS is awful and a bad example, but people don't automatically get their diagnosis changed from anorexia to EDNOS when they're going through recovery. Most clinicians retain the anorexia diagnosis if that's what was determined in the first place, unless the nature of the eating disorder drastically shifts to the point that a major rediagnosis is genuinely necessary (e.g. AN to BED).

Sage for ana fagging

No. 375606

File: 1503189905962.png (617.6 KB, 677x1034, Screenshot_2017-08-19-17-38-37…)

Requires canes, crutches, wheelchairs, and mobility scooters in the shops but is not so disabled that she cannot climb her 200+ lb body into a cramped caravan bunk.

No. 375611

>>375606

Not to mention climbing up and down a little rickety looking ladder and sleeping up there when she's so prone to seizures. What a bizarre specimen

No. 375613

>>375595

Can't stand to watch her vlogs.
At least it sounds like the therapist might actually be trying to push her a bit and not just coddling her. MLS spends all her time thinking that she is sick when really she just seems to perseverate and over-exaggerate every minor ache and pain.
She claims she is "slipping" with her anorexia and can't tolerate anything but has eaten ice cream after being told not to and then recently ordered Chinese food (and I imagine that cheap Americanized Chinese food is the furthest thing someone with GP could be eating). When called out for it she claims that she just had to give in to the craving. Claims she can't research the diets because she can't look at a screen too long but spends all day watching netflix, vlogging, and posting on IG. She has been going on about her heart and feeling like she is going to pass out (while looking absolutely fine) so I suspect she is also angling for a POTS diagnosis.
Glad the therapist thinks she should be getting a job - clearly MLS is just too lazy or too afraid that work will be too hard. If she had a job maybe she could focus on coming up with some sort of purpose in life that doesn't involve being a special snowflake. Unfortunately, I think she grew up being told she was a special snowflake, so its unlikely she knows how to find an identity outside of it.

No. 375627

>>374483
you sound like every other pillhead on SSI.

No. 375629

>>375311
It depends where the pain is and what's causing it- severe migraines don't cause stabbing pain but they can cause you to cry whereas a cesarean incision may not hurt that much but if you cough it's agony
it's generally dependent on what the injury/cause of pain is as to what type of pain you experience

No. 375646

>>374549
>>374659
right, because if you're schizophrenic and "too sick" to take antipsychotics, no biggie. this fucking moron. is schizophrenia the fallback they prepare for when their bullshit is exposed? "i was delusional!"

No. 375647

>>374701
ah, he will soon suffer the same pain.

No. 375660

>>375596

Right, I forgot about that.

Is there actually any medical benefit to doing saline nebulizers? That just sounds pointless, to make her look sooper speshul but I'm no professional.

No. 375661

File: 1503198756631.png (1.24 MB, 1536x2048, IMG_3021.PNG)

Just over a week ago, she was complaining she vomiting after eating one chip but it seems she can eat again. These munchies seem to have selective vomiting problems, even when angling for a sooper serious gastroparesis diagnosis. And when they do eat, it's not foods that are recommended or foods you would expect they MIGHT digest e.g. chicken broth and salted crackers.

No. 375662

>>375606
I wonder if her very serious chronic pain is manageable for her entire vacation or if she'll have to to visit A&E. Usually, the munchies manage to do things like; get away on holiday, when it suits them.

No. 375679

>>375662
They also coincidentally have their worst symptoms when no one else is around or looking at them. The health care system often depends on self-reported symptoms, which I'm sure is how most of the munchies manage to get treatment.

No. 375703

>>375595
Dani comes across as someone who got put on disability for a short term mental health deal and then grew overly accustomed to it. Now she looks at us as having to work, not getting to work.

No. 375705

>>375646
As if schizophrenics too sick to medicate aren't deemed as a risk and involuntarily hospitalised. What an idiot. Does she really think services would just let an unmediated schizophrenic run around administering other medical shit to themselves?

No. 375804

File: 1503217186012.jpg (2.74 MB, 1242x2208, jzU94yF.jpg)


No. 375805

File: 1503217326153.jpg (540.29 KB, 1242x2208, bpHUn1x.jpg)

> guisssse my pain is literally a 9/10 right now ;P

Fuck me someone wipe that godawful grin off her face that she has in every. single. photo. or so god help me !!

No. 375806

>>375660
Nebulised saline can help losen secretions. Nebulised saline doesn't speed up recovery from seizures or help during an asthma attack. She's a munchie!

No. 375811

>>375805
Too young for triptans? Sounds really strange.

What's up with all the undiagnosed Endo and ASD people out there?

No. 375817

File: 1503221242023.png (74.95 KB, 672x302, Screenshot_2017-08-20-02-24-51…)


No. 375819

>>375805

Triptans are approved for adolescents, are not pain killers, are not regulated and most people tolerate it well. They are stocked by virtually all hospitals I've ever worked at both as injectable and oral. I get a migraine once a year or so, but it's incapacitating - my first impulse is to beg the first nurse I can get hold of to go grab me some Imitrex from the med dispenser, stat. Maybe she's affected differently but just about everyone I know myself included who has severe migraines looks like death. One of the juniors I work with gets them once every two months and I've sent her home every time because she looked like an extra from a zombie outbreak movie. So somehow I have a hard time believing her story - both the part with her having SO SOOPER SUHVEREH symptoms and getting nitrogen only, but then taking selfies with that shit eating grin with her tongue half out.

No. 375821

>>375817

Well, nebbing saline will do fuck all for that, so good luck.

No. 375826

File: 1503222342995.png (153.11 KB, 689x456, Screenshot_2017-08-20-02-42-37…)

I eat and vomit and eat and vomit and eat and vomit…I love my body!

No. 375834

>>375826

Err, of course she's allowed to do whatever the fuck she wants. But she is actively making her 'illness' (largely consisting of a body overloaded by shitty food and underdemanded by lack of exercise) worse.

She's pathetic, and her 'disabled body' is a pathetic excuse for the fact that she's given up on herself and is content to gorge herself on food and live the glamorous Munchie life until she gracelessly expires at a devastatingly young age from heart disease caused by shitty nutrition rather than her range of 'health issues' that only exist in her head.

No. 375837

>>375806
And she has asthma (that would likely be improved by her losing weight) so I doubt she's got a chest full of non-shifting secretions

No. 375844

>>375837

Does she truly have asthma? The only asthma med she has is an albuterol inhaler. No other inhalers, no peak flow meter, no leukotriene inhibitors, no mention of spirometry and lung function tests.

Sage for asthma- and COPD-fag.

No. 375845

>>375805

I'm surprised she wasn't given sumatriptans. It's not a narcotic and only $6 in Australia on a prescription. Take one and 20minutes later migraine gone. Magic. I have migraines and sumatriptan is a lifesaver.

And how are these spoonies even positing on Instagram in a migraine attack? When I get a migraine attack even looking at my screen makes me want to vomit and there's no way in hell im taking a selfie

No. 375848

>>375844

She doesn't. She has what is politely called 'periĂ³dus exercise induced dyspnea of deconditioning' and usually called 'too fat to breathe without wheezing'. She's morbidly obese with a heart that's grown lazy from not doing shit other than laying around and/or sitting in a wheelchair she doesn't need, so even relatively small exertion results in wheezing similar to asthmatic exacerbations.

No. 375850

>>375848

*periodic

No. 375852

>>375805
I cannot believe how long this chick has spent lying unnecessarily in a hospital bed. What a colossal waste of resources. The nurses and doctors must be rolling their eyes so hard.

No. 375853

Chronically Carmel is going to hop on the chiari/neck instability bandwagon soon. I predict a neck brace in her near future.

No. 375859

>>375805
"too young" does she think they leave kids/young people with cancer or arthritis or even kids with legitimate ehlers danlos syndrome with absolutely nothing for pain? When there is indications that there is real and actual pain and no risk of abusing medications they'll weigh up the vast variety of pain medications and give the most appropriate one. Too young? more like too obviously fake.

Sage for ranting

No. 375860

>>375853
She'll have a hell of a time getting her fancy up right MRIs and finding doctors specialising in either condition in australia, especially south australia.

No. 375863

>>375860

I'm in Qld and I had a client at work tell me she had the Chiari operation and showed me her scar so I guess those services are in Queensland at least.

No. 375866

File: 1503228248780.jpg (27.23 KB, 480x480, IMG_0010.JPG)

>>375805
Holy shit that cancerous emoji use

No. 375873

>>375863
For severe/actual chiari patients there are services in Sydney, Melbourne and QLD, but I don't think there's anything in SA that really specialises, understands or treats Chiari/CCI especially if it's bullshit.

sage for unsure

No. 375879

So endlessvoices is whining about how mean we are. Aw that poor little girl has to face reality here, too bad.
C'mon don't be such a snowflake just think about how you act and that there's a reason why you're discussed on lolcow.

No. 375881

>>375804
This is not a face you can pull if you have a migraine

No. 375896

>>375853
You don't suddenly develop chiari and cervical instability. It's something that you're usually born with, and also it has symptoms other than a "migraine " you can smile and take selfies through. Also, if you just have the cervical instability, it often only requires PT to strengthen the muscles in the neck, not a fucking brace that further weakens those muscles. And a brace does little to nothing nothing for chiari, which is a malformation of the skull. Chiari itself doesn't automatically require treatment, in many cases monitoring is the best course of action. Surgery is only used in the most severe cases of either condition, neither of which she has.

Sage for medfagging

No. 375932

>>375603
>>375603

I was having trouble trying to explain what I was thinking but yes, you are right about the ED diagnosis.
>>375613
She keeps bringing up her anorexia is slipping, to the point therapist is having to encourage her to have anything even though it's so hard being so sick.
That confuses me some. I feel like her therapist would be over aware of her health, and having seen her in pain,cry,look awful, etc and her general downward drop to over all health, shed have a much more reasonable approach to help her get help and feel better as well as being the spine when the Drs have turned her away or claim nothing is wrong.
It makes me wonder if her therapist believes it is 100% real or if it's a mixture of having some health issues, but are exaggerated or if it's all a hard lie or somatic etc.
Her therapist knows her personality and knows what to lookout for such as her malingering and manipulations (not been sly at all with that..bruised IV turns DVT, anorexia turns worst in state, punching wall turns bruised arm from passing out turns fractured turns nerve damage, black out turns 2nd degree burns turn 3rd, you know the story)

I am so anxious for her testings. I hope they get to the bottom of it, regardless what it is or is not, to help her at least feel a bit better some how.

Anyone else notice in some of her videos she has a kangaroo feed bag filled with water (I'm assuming..its clear) hanging on a plastic clip on the wall?
She's gotta be using it for something..id be surprised if that plastic clip would have help that much weight for so long (like if she hung it when she tubed herself a long time ago and just left it there)

No. 375935

File: 1503252814124.jpg (475.67 KB, 1080x1920, Screenshot_20170820-131030.jpg)


No. 375936

File: 1503252843189.jpg (267.33 KB, 1080x966, Screenshot_20170820-131144.jpg)


No. 375939

>>375896
She probably just has a headache from all that purging.

No. 375945

>>375896

It's another great disease that is diagnosed entirely by common symptoms accompanied by subjective distress. Spoonie wonderland!

No. 375956

>>375945

low-lying cerebellar tonsils can be a normal, incidental MRI finding. If they're below a certain level, then yeah they may cause a problem. Otherwise, it's baloney. Sick of these spoonie munchies making normal, human variants into diseases. Carmel is too dim to even hide what she's angling at next. Her stupid gummy grin irritates the fuck outta me. Imagine being an actual sick patient next to her in hospital. .

No. 375957

>>375859

My fiancee is a paediatric pain management physician. I told her about the 'too young' issue (I don't ever encounter paediatric patients, save perhaps in emergencies, so I have no idea). According to her, 'too young' means, if the patient is an adolescent, that they feel s/he is after some secondary gain in looking for the medication or treatment. Or to put it more bluntly: s/he is a drug seeker or a Munchie. In those cases, there's some reluctance to administer narcotics, for one simple reason: if you suspect the patient is already after a morbid secondary gain, you do not want to give them another or reinforce it. Children who for some reason 'flee into treatment' (the adolescent version of Munchieing, which apparently is a lot more common, where children or adolescents seek a safe place and find that hospitals will give them the attention and catering for their needs that they crave) shouldn't be given narcotics as that'll just give them a bigger, more chemical incentive to stay medicalised when they already medicalise the shit out of their psychiatric/psychological distress.

Otherwise, paediatric pain management follows the same WHO ladder, get the same PCA drugs (on different settings) and especially in palliative care they get pretty high doses of pretty serious opioids (including fentanyl and hydromorphone).

There is one aspect of treatment that is indeed not given to young people because they're too young for it. Except in palliative care, irreversible ablative treatment is nor normally provided. Oddly, you don't see many of your spoonies go for that. I also haven't seen many of them with spinal cord pumps/stims. Odd…

No. 375958

>>375936
sage for me being stupid but what exactly are you pointing out here? it looks like a vent bag or a feed bag but i thought she stopped self tubing? jfc

No. 375962

>>375958
It is a formula bag for tube feeds. I can't tell if it is a gravity bag or a if it goes to the pump and if I remember correctly (it's been a long time since I've worked with NG/G tubes for feeds) you can use the pump bags as gravity bags.
You can see the tubing hanging down from it but I couldn't get a clear picture of that part..it has clear fluid in it and that's a weak little plastic holder..shes brave doing it like that honestly..but if it is water I guess that's way better than formula bursting everywhere.
But..why does she have it?
She supposedly got rid of that stuff (pretty sure she meant throwing it in a corner for later)
Is she tubing herself again actually off camera? For water? Maybe that case of formula she swore she didnt have and couldnt afford?
Silly me, she won't drink because of her anorexia again, and it helps her keep fluid down with her special GP again!
>insert eye roll <
She had to know it was hanging there in her videos….super surprised it hasn't been brought up at all.

No. 375974

>>375516
That's correct, animals are NOT in danger. There's a reason why we don't hear about thousands of birds, cats, and dogs going blind in other parts of the world during solar eclipses. I believe it has the potential to cause damage, but animals are smarter than munchie girls and don't care to look up at the sun.

sage for ot

No. 375978

saged for blogging a bit but i wanted to tell you guys that you helped me a lot. reading this page over the last few weeks has been an eye opener. i closed my spoonie account and have moved on from needing to post about every detail of my life. so thank you farmers!

No. 375981

File: 1503258932502.png (540.31 KB, 573x3000, munchiecow_emily_lou_jones.png)

On the note of bracing and Chiari, meet Emily Lou Jones from the picturesque People's Republic of Croydon. Emily suffers from a debilitating disease that makes it impossible for her to have photos taken of her without at least two (non-prescription) braces and her nasogastric tube (explain to me the benefit of an NG tube in her situation?!) in full frontal view. Emily is a DIY Munchie: because her doctors took one look at her and told her her joints are OK, she's just a little large, she went on and started shopping for every conceivable brace she could get, and a powerchair, which she has been using for three years (and you wonder why she can't walk… nobody who's been in a powerchair for three years and whose ligaments and muscles were stiffened by a set of BYOBraces will stand up and start walking - it takes serious long-term physio to get back there). She managed to get herself a feeding tube, and now fights doctors so she could insert her own, and eventually get a permanent one - which she is not getting, because there's nothing wrong with her digestion (evidenced by the fact that they pulled her PEG). And like every good Munchie, she decided this will be her life: "permanently wheelchair bound and tube fed warrior for life!" She speaks of her tube feeding and her wheelchair bound existence (totally voluntary, btw: at no point did she become suddenly unable to ambulate or stand, but rather decided that instead of physio and a pain management plan, she'll cry start tears until someone ponies up the money to get her a wheelchair). She has, of course, jumped on the POTS + CFS/ME + EDS bandwagon, and guess what she loves to talk about more than anything? Her health/disability! Including the 'wheelchair' drawing from that pathetic series of Carol Rossetti's "It took Lorena a long time to find her sensuality, and other bullshit stories with ethnically diverse female protagonists having a disability and/or an abortion" drawings. And of course if like her, you collect enough conditions, you end up having a related awareness week/month all around the year! Ain't that cool?

Top notch Munchie. A++++, would not friend again.

No. 375992

>>375981

Power chairs really should be for those who have some level of paralysis or very severe physical impairment.

No. 375993

>>375981

Sage for stupidity but what purpose does wearing knee braces have if you are in a wheelchair "unable to move much/walk?" Wrist braces for joystick? I get maybe when transferring to and from chair if she were truly range limited but even then it just seems odd to me.

No. 376000

>>375981
is that her real face in that feeding tube awareness photo? She looks like she's wearing a mask or is using some creepy snapchat filter

No. 376003

am i the only one who has noticed the weird new trend of rollators? Every munchie seems to have one all of a sudden.

No. 376006

>>376000
that picture seriously freaked me out when i scrolled past it. very unfortunate.

No. 376015

File: 1503264774493.png (228.57 KB, 750x1193, IMG_2133.PNG)

Wait. Sepsis from what?
Lol another munchie still wasting a hospital bed

No. 376020

>>375962
Anyone who wants to can order those feeding bags off the internet. We all know she's self-tubed in the past, I wouldn't put it past her to do it again. With all the crap she eats, she obviously doesn't have GI problems that require a feeding tube, so she's just wasting money ordering that shit.

No. 376021

>>376015
I don't understand how these munchies get hospitalized for so long. They're not having symptoms that can't be treated outpatient.

No. 376022

>>376000

Seems to be her real face, if other photos are anything to go by. Eyes maybe slightly enlarged. The fuckery is mainly in the make-up.

Sage for useless garbage OT

No. 376023

>>376015
Love how munchies are so excited by the hospital/tubes/possible infections. Normal people avoid that shit as much as possible, but they're putting in exclamation points and posting grinning selfies.

No. 376028

>>376021

This is what I work hard for…
This is where my tax money goes…
Munchies stroking dogs and pissing themselves with happiness over tubes,

No. 376029

>>376003

Rollators are comparably cheap, about an order of magnitude cheaper than powerchairs. They're also more frequently used by people who need ambulatory support rather than complete mobility support, e.g. people who are weakened by illness or old age. As a result, it's more acceptable to stand up and walk around if you have a rollator. At the same time, it makes them look pathetic, because woo! that must be awesome.

No. 376033

>>375992

What pisses me off about Munchies in electric wheelchairs: I stuff myself with insanely toxic medication and spend two hours a week getting even more toxic and ridiculously expensive medication injected into my veins so that I can hold off the disease that will, by the time I'm 35, probably leave me in a wheelchair. I'm 29, I already require a cane most days, so I'll be lucky if I make it to 35. I am, frankly, scared shitless.

To Munchies, on the other hand, it's like a fashion accessory. In my day job, I come across a lot of these EDS/GP Munchies, being a gastrofag. So a number of them have asked me to sign a paper in support of their application for a wheelchair (wheelchair services are notoriously strict and slow in the UK). Now, I'm not an orthopod and can't tell a humerus from a gluteus, so my usual response is 'give it to your orthopod'. At which point it turns out inevitably that the orthopod has told them to get bent. If you sign off on a lot of wheelchairs, the NHS Business Services people might look into why that is the case, so orthopods and rheumatologists need to act as strict gatekeepers of who will get wheelchairs, especially expensive electronic ones.

Typically, they then give me a half-assed justification about being too weak due to their GI problems (it wins them a referral to an EMG, if it comes back normal, I'll tell them I would see weakness if it were there, and go take it to your ortho), or - the best one so far - that because they're on >12 hour feeds or TPN (which is at best 10 hours - I don't know any exclusive TPN feeders who can accomplish their full 3 litres or so in less than 10 hours), they'll need the wheelchair to be able to hold the pump and the feeding bag. So I hand them a backpack that is designed to hold their bag and their pump. I've had some of them burst into tears at that point.

I get it, Ehlers-Danlos is a shitty disease. But by deconditioning your body and sitting on your ass all day, you harm your overall health. The only treatment for EDS that I think has a decent evidence base is to strengthen core and skeletal muscle to the point of it acting as a sort of stabiliser for the wonky joints. Most of the wheelchair-seekers don't know what living in one involves, they just see these Instagram 'spoonie stars' using one, and think that sitting in their wheelchair with a rapidly ballooning weight will somehow validate their own latent doubts as to the credibility of their faked illness. They don't realise the cardiovascular damage, they don't know what it'll do to the veins in their legs, etc. A friend told me about a girl insistent on how she couldn't walk due to her joint issues, arriving already in a rented wheelchair and wanting a powerchair, of course - because she barely has the strength to move the joystick, never mind push herself. She was >250lbs and wheezed just from trying to sit up, so definite DVT risk. My friend explained to her that she would need to be on daily injectable anticoagulants. She realised that means shots in her belly, every day, and they're not pleasant (she had them before briefly, I think). Suddenly somehow her interest in a wheelchair waned.

I sometimes really don't understand what's going on in the head of these people - and I meet them near daily.(Nice blog)

No. 376035

>>376015

Month long hospital admissions are things that should not generally happen, definitely not for someone who is not in long term acute distress.

Few things get me as alert as patients who experience sudden emergent distress as soon as it's decided they can go home. I've seen this happen up to 4-5 times (!) with the same patient on the same admission, and it's a dreadfully bad sign. Usually, after the second, if it's even mildly suspicious, I will gently propose a psych referral.

No. 376038

>>376033
First, this isn't your blog. But yeah, EDS does not immediately require a wheelchair. In fact, it is totally possible to have EDS and stay out of a wheelchair for most, if not all, of your life. Granted it's work (PT, doing a exercise and strengthening routine), and longer distances tend to require breaks, but it's possible. You can even have a feeding pump in a bag and walk! But munchies are lazy, so why bother to try anything other than demanding a wheelchair.

No. 376040

>>376035
If you need a month in the hospital, you better be pretty much dead.

No. 376045

>>376040

Especially in the UK where they basically kick you out, even after major surgeries. However, these girls exaggerate and lie and make up every excuse so the discharging doctor has no choice but to order more pointless and expensive tests.

No. 376058

>>375469
Why the fuck do spoonies latch onto vogmasks so hard? Their website even says they don't do dick as a disease barrier.

No. 376066

>>376033
No one gives a fuck about your journaling bullshit shut it
>>376058
Just another fancy look I'm sick item, they are pretty cool for their intended uses but the spoonies have made it so I feel embarrassed I own one for its intended uses.

No. 376071

>>376033
Please shut up about your disease that is so much worse than EDS, no one cares.

You're right that too many people ask for and get wheelchairs, but you're making your point look stupid with all the blogging. Gofuckmes for chairs are the most fucking irritating thing on earth, why does anyone donate? If you do really need one you'll get one from the NHS.

And then there's Chloe Print Lambert and the movie chair her parents so enablingly coughed up for.

No. 376076

File: 1503271677975.png (Spoiler Image,222.04 KB, 748x1184, IMG_1685.PNG)

I've been following this girl for a while and she gets on my nerves so bad. She doesn't have any real diagnosis' or illnesses. Once anyone gives her a suggestion she immediately shoots it down and calls them a dumbass. She has constant stomach pain and posts pictures of her bloated stomach and cries about gluten intolerance but keeps eating gluten. I can't stand it.

No. 376083

>>376071

The oddest thing about Chloe PL and that chair is that she sits cross legged in it. Firstly, that is the worst way to sit if you have EDS. Secondly, if you clinically need such a fancy wheelchair with a tilt and leg rest, it's because you CANNOT cross your legs.

No. 376092

>>376076
Her account is locked- care to post some milky screenshots? I'm particularly interested in these instances of calling people a dumbass kek

No. 376093

File: 1503273445648.png (1.68 MB, 750x1334, IMG_7134.PNG)

Carmel is the worst when it comes to her attention seeking posts. Letting everyone know she "pooped today! Avoided an enema!"

No. 376098

File: 1503274113715.png (171.9 KB, 750x1178, IMG_1686.PNG)

Yeah here you go. There's lots more too. She posts 5-6.. things a day it kills me. She cries in photos. She is THE MOST dramatic little bitch I've ever come across lol. I can not stand. She also went to be tested for EDS and claims of dislocated things all the time. But was doing flips today!!!!! And jumping in the air. So annoying. I'm in the spoonie community too, but I've actually been ill since I was a child so I'm not a faker. Hence how I follow her. And I've been watching this website for a while so it's quite interesting.

No. 376101

File: 1503274152331.png (Spoiler Image,218.64 KB, 750x1186, IMG_1687.PNG)


No. 376102

File: 1503274192440.png (Spoiler Image,204.58 KB, 750x1135, IMG_1688.PNG)


No. 376103

File: 1503274209536.png (Spoiler Image,209.19 KB, 747x1123, IMG_1689.PNG)


No. 376104

File: 1503274267108.png (Spoiler Image,133.36 KB, 749x1113, IMG_1690.PNG)

She claims to have POTS too. But this isn't even high for a POTS patient. Give me a break. I'll show you high.

No. 376105

File: 1503274305977.png (Spoiler Image,196 KB, 750x1108, IMG_1691.PNG)

She posts lots of pics of how many pills she takes. Of course

No. 376106

File: 1503274333108.png (Spoiler Image,228.94 KB, 750x1116, IMG_1692.PNG)

Pathetic crying face

No. 376107

File: 1503274350440.png (Spoiler Image,244.93 KB, 750x1114, IMG_1693.PNG)


No. 376108

File: 1503274433390.png (Spoiler Image,140.87 KB, 750x1075, IMG_1694.PNG)

Last comment calling her out. She started deleting a lot of them!!! I'm pissed. I called her out a lot too. Obviously I'm not giving my insta away though. And someone apparently insta "bullied" her when really they just messaged her saying stop fuxkin complaining of GI issues when all you eat is SHIT

No. 376109

>>376105

I bet at least half of those pills are otc/supplements. Spoonies looooove their pill porn.

No. 376112

>>376108

Sooo basically she's building a "muh chronic pain!" Narrative around IBS. A condition that TONS of people have and most of them just change their diet and get on with life and deal with it. Not make super spechial spoonie posts every time their stomach hurts or post pics in their undies to show off their bloating.

No. 376119

File: 1503275090591.png (Spoiler Image,165.46 KB, 750x1119, IMG_1695.PNG)

Oh I found it's it. It's really comical. She can't even defend herself. One time I messaged her and asked her diagnosis' and she told me she had too much brain fog to remember everything LOL

No. 376120

>>376113

DO EET FAGGIT.

No. 376121

File: 1503275107018.png (Spoiler Image,166.88 KB, 750x1122, IMG_1696.PNG)


No. 376122

File: 1503275158934.png (Spoiler Image,156.81 KB, 750x1130, IMG_1697.PNG)


No. 376123

File: 1503275181409.png (Spoiler Image,348.83 KB, 747x1127, IMG_1698.PNG)

Can't even properly defend herself

No. 376124

>>376120
oooo i just read her instagram story now i'm annoyed enough to do it. she didn't poop for a week. that's not ibs-c you dumb cow that's run of the mill constipation. omg she is milking this hospital stay and taking up a bed someone can actually use

No. 376126

>>376102
>>376101
>>376105
its amazing when munchies eat like shit, take lots of laxatives and stuff, then get bloated and gassy as a normal side effect of it then cry gi distress. like gurl come on. what did you think?

No. 376127

File: 1503275500206.png (955.54 KB, 694x1184, Screenshot_2017-08-20-17-23-05…)

Sophie immobilizing the joint below her wrist. Is she still on her caravan holiday so she doesn't have her usual braces and bandages with her?

No. 376129

File: 1503275572853.jpg (104.66 KB, 750x550, IMG_3026.JPG)

Alexys aka Jonzie aka soap eater aka babybear photo

No. 376130

File: 1503275626651.png (298.7 KB, 750x1334, IMG_1744.PNG)

>>376129

Pic 1/2
(Oh and btw NOBODY was actually asking after her! Kek)!

No. 376131

File: 1503275644189.png (294.7 KB, 750x1334, IMG_1745.PNG)

>>376130

Pic 2/2

No. 376132

File: 1503275711992.png (259.94 KB, 750x1334, IMG_1747.PNG)

>>376129

"I wanna purge through ma toob for mamabear snuggles"

No. 376133

File: 1503275849597.png (Spoiler Image,117.96 KB, 750x1132, IMG_1699.PNG)

Complains of subluxations even though she didn't get the much wanted EDS diagnosis from the geneticist prior. But she always uses motorized carts and literally just lays in bed all day because of her "undiagnosed chronic pain and dislocations/subluxations"

No. 376135

File: 1503275992099.png (Spoiler Image,236.56 KB, 750x1134, IMG_1700.PNG)

Because YES doing flips in the air would be COMPLETELY manageable for someone with chronic pain/fatigue and dislocations/subluxations like you claim lol. And it's even GOOD for it yep. Because that would really fucking help my EDS,doing a god damn back flip into the air, that wouldn't dislocate anything. She claims to dislocate going to the grocery store but not this???

No. 376137

File: 1503276039047.png (Spoiler Image,182.18 KB, 750x1112, IMG_1701.PNG)


No. 376149

So, I saw this on a much loved spoonie's Instagram. And I was like… 'my doctor held me hostage? That's weird…'. So I went to watch (https://youtu.be/HUlBTo3nJhY). The batshit insane is just, fantastic.

- Nasty doctor questions her being in a wheelchair despite being able to walk? SHITFLIP! Parents enable fine.
- Mom can't explain situation but tells ER doc to call her normal physician. ER doc says 'no time for that' - we don't normally have time for that in emergency care. Patients should be able to bring notes if they have a health issue they think we wouldn't understand.
- ALL OF THE DOCTORS KNOW WHO I AM!
- LAUGHING panic attack!
- Parents flip out when docs try to give her an antipsychotic to calm her the fuck down. "She's not psychotic!" Momma has a degree from the Medical College of Dumbass U.
- Demanding doctor call doctor in other town, again…
- "Swelling in her brain and spine"… err what?
- Doc apologises, but she's being a petulant cuntette.
- Recommends an airlift (!), she's totally gleeful how her egregious mistreatment by the doctors meant she didn't have to pay a dime for the airlift… her arrogance is disgusting.
- Turns out her SOB was a sfx of CellCept… the moron went to ER, then had to be airlifted, when she could just have read the fucking drug information sheet!

Over to the other annoying girl, who is complete batshit. I kinda stopped watching here because I was reaching dangerous levels of blood pressure, but… honestly. What the fuck.

And guess what her big-ass health issue is? Conversion disorder.

No. 376151

>>376133

1) it's called your foot falling asleep

2) if your hip is even just subluxated you won't just sit there. Most of these people who claim EDS or hypermobility have no idea.

3) I bet her Snapchat friends don't even look at her stories anymore.

No. 376154

>>376093
Wtf she has a migraine and is posting fancy IG stories. Looks like she's got headphones in too. And lol if ur room is too bring turn the fucking light off. I just can't deal with this, you don't have a fucking migraine Carmen

No. 376155

>>376123

If she wasn't offended by it why would she make a big post about it to all her followers? Just more of the attention seeking behavior encouraged by the spoonie community.

No. 376157

>>376154

She just wanted to show off the IV in her hand. She's sooper sick, you know.

No. 376158

>>376107
I don't know what to do about this extremely severe pain, must post IG selfie. Kek

No. 376166

>>376151

I fucking love the casual 'oh, my hip subluxed/dislocated' stories. Reminds me of the young female I once saw in an A&E (I was a patient) - she was in the bay next to me, so I overheard most things. H/o EDS + POTS of fucking course, pt lucid, GCS 15, oriented X3, claims pain 8 but laughing and chatting and breathing normally, normal HR and BP. She WALKED into the A&E and she sat with her knees pulled up halfway and spread. The A&E doc looked at her, listened to her story, and said:

Doc: So, can you hear that screaming?
Girl: Uh, yes?
Doc: That's a guy from the RTA up on the M40 who dislocated his hip. We've got him on Entonox and it's barely touching it.
Girl: [silence]

Seriously, EDS folks have the shit explanation that because their ligaments are loose, they do not feel as much pain in a dislocation, but there's no evidence for that - a lot of the pain is actually not from the ligaments but from the dislocation itself, so even without ligament tears a dislocation is pretty nasty.

I swear, some people…. :/

No. 376169

>>376109

Only a few supplements/OTCs (such as the big-ass ibuprofen), but she does have four 100mg Gabapentins instead of a single dose capsule. Also, tamsulosin HCl… haven't seen that drug in years! And of course she's on Xanax (tiny oblong pill between her fingers) - I am sure that's a great drug to be on with POTS!

No. 376170

Exactly. If any of these people are experiencing anything it's a mild subluxation. Not a full on dislocation let me tell you. I have EDS and have known since childhood I've had both and I could tell you the fucking difference please god. Get over it.

No. 376183

>>376107
I swear to fuck, LadyObsidian follows every fucking dramatic cunt on Instagram

No. 376186


No. 376189

>>376186

"Inspirational soap"

Kill me now.

No. 376198

File: 1503281645549.png (41.82 KB, 594x461, carmel.png)

cant decide if shes going to sperg out and cry h8ers or just delete the comments. 1/2

No. 376200

File: 1503281660845.png (10.96 KB, 296x243, carmel2.png)


No. 376204

>>376200
samefag, this was carmel obviously. sorry..

No. 376205

>>376186

If you can't afford a box, Sophie will knit you a Spoonie Square with her dislocated fingers in between her seizures.

https://themighty.com/2017/08/spoonie-squares-free-gifts-for-people-with-chronic-pain-illness/

No. 376208

Sophie tells us what it's like to have one of her seizures which defy diagnosis and for which she has been given no medication.

https://themighty.com/2017/06/what-a-seizure-is-like/

No. 376219

Is there a term for the romantic partners who become the unwitting codependent caretakers of munchies?

Although in Twisted Sophie's case, she appears to have met her boyfriend-cum-caretaker in a healthcare setting.

In an open letter to her boyfriend, she writes:

"I give you myself. The half that needed you to make me whole.

This chronic pain journey has been a rough one. But if it’s given me anything, it’s you. Without my pain I wouldn’t have met you.

So thank you, chronic pain, for allowing me to meet the man I needed to make all of this agony worth it."

https://themighty.com/2017/05/boyfriend-caretaker-thank-you-letter/

No. 376223

>>376200
Thanks for saying something. Geeeezus Christ. You said it really well too. It was firm but not to the point of bullying or mean. I'm watching it unfold from my insta

No. 376227

>>376200

I'd be lying if I said I haven't been sitting here refreshing her instagram for the last few minutes waiting for the responses kek but for real. I like the approach you took. She calls her insta "Chronic Illness Realness" You gave her some realness. In a 100% reasonable way.

No. 376229

>>376219

People who write for The Whiny are Munchies unless proven otherwise.

No. 376230

>>376227

She doesn't come across as very smart and that's the problem. She is far too obvious about her desperation for the tube. Most of the other munchies are more subtle.

No. 376231

>>376229

I hate the Mighty. Fuck off with "I wish you understood my illness" baloney. Just get on with your life.

Also, most of the articles are written badly - average grammar and they often don't get to the point for ages.

No. 376233

File: 1503284078632.png (224.11 KB, 750x1270, IMG_1702.PNG)

She didn't have much to back up lol

No. 376234

>>376233

That sums up our hospital-loving Carmel "sick chick" - that's what she thinks of herself. How very sad to have nothing else in your life.

No. 376236

>>376129

Has she brought the beanie back instead of the epilepsy helmet - no mention of the epilepsy so maybe she realized it was too hard to fake 100 illnesses at once. But always the beanie to make sure we look like a sick cancer patient. Although I wouldn't be surprised if it was an old photo and she is making up a bunch of stuff. And who always takes these ridiculous posed photos.
Of course we should mention her doctors are used to treating super severe malnourished people - they gained all their experience from her
Also she always says she is "in hospital" - she is from the US, where people say "the hospital" but she copies the lingo from around the globe
>>376130
And I always find it suspicious that she gets very specific about some things (feed rates) but then super vague about others - I am getting "certain medications, vitamins, minerals, and electrolytes via NJ".
>>376131
"It's early on in my stay" - probably planning to do all she can to stay as long as possible. Also make sure everyone knows she is at the children's hospital.

No. 376237

>>376231

in theory I understand the idea of writing things to help shed light on what it's like to be truly, actually chronically ill- the problem is, as already pointed out, the majority of the people who write for that site are the kind of girls who end up on lolcow. And secondly if you were so worried about people "understanding" your illnesses you would want to be treated normally and not spend all your energy making poetry out of your many "severe" symptoms. It's a site that just perpetuates this whole problem. Most of the people who are legitimately chronically ill have different priorities than blorging about it constantly and pretending to be a hard hitting journalist.

No. 376240

>>376208

and uses terms like "tonic clonic" and "grand mal" to categorize them. Am I incorrect in saying that non epileptic seizures are not classified that way? And if the seizures aren't showing up on EEG they're obviously non-epileptic, correct? If a seizure isn't epileptic it isn't due to abnormal electrical discharge in the brain? Maybe I'm wrong and there are other causes of seizures besides epilepsy and PNES but someone feel free to medfag.

No. 376241

>>376236

Her feed rate is quite high for someone as sooper spechul and sick as her. Also, it wouldn't massively surprise me if it's not a NJ but actually a NG tube as they think she's anorexic and not eating again. I don't believe half of the shit that she says.

No. 376243

>>376129
Sage for non contribution but why is she doing the fucking Matilda the Musical pose? lol

No. 376248

>>376243
because baby bear must be feeling pretty proud of herself for getting her new munchie accessories. out with the old dx of the worst case of super cereal anorexia and in with gp, pots, eds, epilepsy, and whatever else…

No. 376251

Carmel keeps shooting herself in the foot and it's funny. She says she can't eat solid food but presents no valid medical (non psychological or psychiatric) reason as to why she can't drink Ensure/Boost and just live off them for a while. Oh…except she's vegan but I'm sure there are vegan supplements. "Vegan" is code for eating disorder in her case. If she won't drink the supplements because her veganism is so important, then they can't go down a tube either surely?!

No. 376255

>>376240
there are other causes besides epilepsy and PNES, but as those are seizures, they show up on an EEG like epilepsy does. she's full of shit.

No. 376261

>>376233
Thank god, somebody is finally calling her out AND calling the EDS Society out (as an eds patient it's so obvious they're full of shit and run by people like carmel)

Sage for non contributing/blogging

No. 376268

File: 1503286272788.png (56.16 KB, 296x369, Screen Shot 2017-08-20 at 10.2…)

"You don't know my pain! You can't take away my positivity!" Carmel exclaims to the person who has vEDS.

No. 376269

>>376126
i feel like it has to be some kind of weird bulimia thing that compels them to post pictures of the comically shitty food they eat alongside emoji novels about their debilitating GI problems.

No. 376271

>>376269
well since eating disorders are so 2009 its no longer in fashion to call it that. gastroparesis is the new hotness. why bother with eating anymore when it can slide down a tube for you. but why stop there when you can get a gj and purge some solids if you miss a tasty reuben.

sage for dumb

No. 376272

File: 1503286813824.jpg (279.2 KB, 750x1334, IMG_7151.JPG)

>>376268
Carmel's gonna have a legit psych break down now lel

No. 376273

File: 1503286900174.jpg (Spoiler Image,272.42 KB, 750x1334, IMG_7152.JPG)

>>376272
"Muh low potassium!"

Yes from purging Carmel. You want to alter your obs by vomiting & you want to lose the 3kg so you can get your tube. If your situation was as dire as you pretend you would be emaciated by now.

No. 376274

File: 1503286924571.jpg (200.73 KB, 968x551, Screenshot_20170820-224025.jpg)


No. 376277

>>376273
it's very rare to not vomit bc your not sick, i was under the impression that was how the body worked? It's also very common for them to not find anything wrong with your stomach when there's nothing wrong with it? Not how it works Caramel, not at all, does she even realise how ridiculous she sounds?

No. 376279

>>376271
yeah, but it's just curious to me that they almost go out of their way to post pictures of their shitty diets as though it doesn't create a glaring inconsistency in their super serious illness narrative.

No. 376281

>>376261
The EDS Society is complete shit. I've long wished there was a way to get them thoroughly audited as I doubt the books are in good condition.

No. 376282

>>376279
its so wild. with munchies, its like there doesnt even need to be actual proof. like realistic scientific proof that something is really wrong with them. they soak up each others stories regardless of plot holes, i think, because they are so focused on their own narrative, that they cant see through the shit and see how fucked it all sound when the pieces dont all fit.

its been said before, the bulk of these dxs that are being sought out are easy enough to fake so bam, minimal work, glam dx. and some dont even bother with an actual dx. they brazenly say they are self diagnosed.

so grab some medical accessories off the internet or the various prescriptions and vitamins and away you go. take a bunch of photos and caption with sob stories and pepper in how strong you are though that you are still living through it all through the grace of god and they all eat it up.

No. 376286

File: 1503288060368.png (1.27 MB, 1920x1080, Screenshot_20170819-212033.png)

>>376236
She's not the only one trying to expand her vocab with special and "wordly" words she hasn't before used.

No. 376288

>>376285

Oh and apparently this was the day she was diagnosed with EDS. Prior to that, she was all about the Lyme and ME.

Gawd, she's full of shit.

No. 376290

does carmel not realize she's talking to someone with veds every time she rails about how much pain she's in?

No. 376292

>>376288
she was diagnosed under the new criteria? the criteria designed to weed out munchies like her? there is no hope for the world

No. 376294

>>376292
the criteria that was partly voted on by the EDS society so go figure the munchie enablers failed at that too

No. 376296

File: 1503288522215.png (1.19 MB, 1536x2048, IMG_3028.PNG)

It gets better. She was swallowing these giant pills on July 15 but admitted to hospital on August 3 due to her sooper serious malnutrition and not able to swallow anything other purée??!!!

No. 376301

File: 1503288831102.png (192.79 KB, 1536x2048, IMG_3029.PNG)

Anyone else imagining Carmel sitting there and counting her 59 symptoms?!

No. 376302

>>376294
"I never gave up" Never gave up trying to reach that sweet sweet fake diagnosis so she could beg the government for money to be lazy.

In Australia people with legitimate EDS of any type are given Disability Pension, IF they can give sufficient evidence of the functional impacts of the disease, which prevents them from working full time. It's actually extremely easy for barely even sick people to get DSP, so if centrelink's doctors, psychologists or anybody thought she was even remotely sick, she'd have the payment.

She's in australia, where we have a public health system why the hell does she need a gofuxme anyway.

sage for rage

No. 376303

>>376301
"tests included blood, urine"

poor fucking little shit munchie faker had to get pokey poked in her widdle arm and make pee pee in a cup. so tragic. so near death.

No. 376316

File: 1503290217141.png (273.02 KB, 1536x2048, IMG_3030.PNG)

Interesting about her whole family being sick. It's just "normal" for her.

No. 376317

File: 1503290227592.png (241.36 KB, 1242x1107, IMG_4831.PNG)

What I'd like to know is why she has conditions listed as "undiagnosed" in her bio. I guess that means she's decided she has mast cell, autism, sensory processing disorder, and endometriosis, but she hasn't been successful in finding doctors who will grant her those diagnoses?

No. 376319

>>376315
ASD = autism spectrum disorder

>>376316

Classic way that munchies start - someone in the family being sick and craving that attention.

No. 376320

>>376317
i have so much milk on that endo undx she has listed but i don't have screen shots because she deleted my comments a few weeks agoooo

No. 376321

>>376319
imagine being jealous of someone because their body is failing them and others show compassion and help. these are some seriously fucked up people

No. 376322

Why is it that this website reminds me of a House episode

sage for pointless off topic observation (but think about it. A House episode about a EDS/POTS/GP/Seizure Warrior/Fibro/Endo/SPD/bubonic plague spoonie munchie)

No. 376325

I'm waiting on a tranny munchie. I feel like it'll be the best milk ever.

No. 376327

>>376320
Can you at least give us a summary of what happened, even in your own words from what you can remember? Please :)

No. 376329

>>376325
not that making fun of people for being trans is cool, or at all ok, Luke (Hypermobileguy) is trans ftm. All the munchies are biologically female, is it a hormonal thing or hwat

No. 376331

>>376327
carmel is another kelly. a symptom hijacker. shortly after i commented carmel about what i went through with adeno/endo all of a sudden it appears in her undx. now every pain in her ovary is "MY ENDOZ!1!1!1"

No. 376332

Yeah I was going to say making fun of trans people is not cool if that's where you were going that's not what this site is for my dude

No. 376335

>>376325
You'd fit in better at KF.

No. 376337

>>376331
I wish they'd get her out of that hospital, stop her blocking a bed and push her to get on with life. With psych help as is probably needed. She doesn't come across as maliciously vampiric as say Jaquie or Kelly, but she's going down a bad road.

No. 376340

>>376337
They keep trying to discharge her and then suddenly new, hospital stay prolonging symptoms appear. It's disgusting.

No. 376349

Ok. Someone shed some light on something for me. Why is it that so many spoonies claim both EDS and Lyme? Lyme is contracted through an infectious process, and EDS is hereditary, so why is it that so many people seek an EDS diagnosis after a while of claiming chronic Lyme? Like they don't even attempt to explain the correlation or why they would just happen to have both. It's never made sense to me but there's a HUGE LYME+EDS+POTS+etc narrative that's been going on for years

Sage for not contributing/treating lolcow like yahoo answers.

No. 376353

>>376349
because sooner or later either lyme or EDS doesnt' seem exotic enough to them, so they seek out a new reason that they're special snowflakes, and 'find' it in which ever of the two they didn't already claim to have. There's the tiniest symptom overlap, and everybody knows on instagram you need 5+ diagnoses PER symptom, even though in the real world, you'd only be able to have one of those diagnoses.

No. 376357

>>376205
Bahahaha. "just put it under the pillow or even not use them at all" -Sophie

No. 376362

>>376322

But it's never Lupus.

No. 376363

>>376316

>My mum lost an ovary to endometriosis so we think that's why we look pretty similar


My sides!

No. 376365

Has anyone heard or seen anything from JBN

No. 376369

File: 1503295994624.png (2.82 MB, 1521x1923, alexys.png)

>>376129
I AM STILL
IN A DREAM
SOAP EAAAAAAAATERRRRRRRRRRRRR

No. 376370

File: 1503296041177.jpg (10.21 KB, 236x196, bd7e69455061ac1b2d069dca0cb2d7…)


No. 376374

Laughing so fucking hard at the the drama in the spoonie "community". Too much to screenshot because it's literally just one big shit show.

So glad I got out of that when I fucking did. Thank you lolcow for opening my eyes.

No. 376380

>>376374

It's not a community at all really. Congrats on making the choice to get out of it.

No. 376396

I too left the community (after being posted on here, and realizing I didn't need to post every time thing on the internet). It's been refreshing and now I can't stop watching the downward spiral of others.

Funnily enough, Jacqui posted in the gastroparesis group I'm a member of on facebook, asking about her precious GJ button, farrel valve bags, and the like. Would anyone like screencaps? It's quite long and she pretty much sounds like a complete munchie dumbass grasping for answers, claiming she takes in 10% orally (kek), can't handle things like steak (more keks). If anyone's interested I can cap if in the morning but the entire thing screamed of her basically asking for tips on how to purge out of the G. Not meaning to blog, but as someone with separate g and j tubes i can't even hold down simple chicken noodle soup, how the fuck is this lying bitch eating full meals!?

sage for slight blogging and possible non contributing

No. 376400

>>376396
Yes. Let the milk flow.

No. 376402

>>376317
How could she have Lyme disease in Australia? I know it can't be 100% ruled out, and people travel, but at least pick something realistic.

No. 376403

>>376402
but then you can't whine about how sick you are and how no doctor and not even the government believes you…

No. 376404


No. 376415

Can't screenshot it but Carmel made a new post about how she got attacked & bullied on her last post.

No. 376419

File: 1503304170831.png (2.04 MB, 1536x2048, IMG_0245.PNG)

Just when you thought you've seen it all: beauty pageant with obscenely visible G-tube and Farrell bag. Because GP is much more acceptable than anorexia,

No. 376420

File: 1503304306782.png (587.19 KB, 1188x1701, IMG_0246.PNG)

And some more whining from the same cow… didn't you know death has knocked on her door many a time? #fuckoff

No. 376430

File: 1503306433050.png (990.87 KB, 750x1334, IMG_7162.PNG)

Lel Carmel pretending she suddenly hates the hospital. Also for someone who "doesn't have an eating disorder" and "needs all the calories she can get" why is she drinking a Powerade Zero?

Munchausens/eating disorder/trying to lose weight for a tube is very obvious Carmel.

No. 376432

>>376396

Yes please to screen caps!

No. 376433

File: 1503307142178.png (857.31 KB, 750x1334, IMG_7163.PNG)

>>375853
Ironic you say that considering she's gone and likes this seemingly real spoonies post regarding her latest neck surgery. I've noticed a lot of Carmel's posts mimicking this girls experience…

No. 376435

>>376296
I'm no pro but two of those pills look exactly like the fish oil and vitamin c tablets I take

No. 376441

>>376292
To be fair I think the new criteria is pretty good - but not been started everywhere yet. totally depends on how doctors carry it out.

No. 376447

OT but one of the things that bugs me about these dipshits is how much they've disallowed the possibility for actually sick people to discuss what's going on with them. Because it seems like EVERYONE'S got EDS/POTS/ASD/wtfe, it's harder for sick people to go to their boss "hey I got this thing and it affects me", and their boss to take them seriously.

I ran into this with my supervisor not taking my seizure disorder seriously, I think because she works with a lot of college age kids who've perfected the art of begging illness to get away with shit, the idea of my shit being serious just sort of didn't occur to her.

It's not like instagramming my probz or these bitches instagramming their probz would have helped me. But that they DO just dilutes the appropriate level of concern. It's like giving everyone compassion fatigue all the time. People who are only peripherally associated with these cows irl, but you know these bitches hoard attention so they make friends requests with everyone, get deadened to the constant distress these cows are projecting.

So when people with actual distress are seen in a non-medical concept, people have no more fucks to give.

No. 376450

>>376430
got totally called out and taken down 5 notches by actual sick person, can suddenly eat and wants to go home

No. 376453

File: 1503314604585.jpg (27.42 KB, 512x342, apex.jpg)

>>376369
bless anon

>>376430
in her post, she mentions that her blood pressure was low, 80/50, and hr was high, over 9000, so that coupled with the low potassium seems to be a good indicator of dehydration or purging to me, but im not medfag. i know thats been speculation for awhile but shes throwing out numbers and she clearly isnt eating much but fudging results when she can to be in the hospital for almost a month with NO FUCKING DX.

>>376450
exactly!! and all those ass kissers not even understanding those awful mean bad commenters feel real legit pain not those ghost 8/10 instagram worthy hip dislocation pains. fucking trash

No. 376455

>>376453
and she makes that ugly smirking face in every picture. she looks legitimately ugly and evil and like she knows exactly what she's doing.

No. 376456

>>376455
its very punchable. but poor widdle carmel is shaken up by the chronic illness realness from last night. she actually looks less aly manic in her photo >>376430 compared to the others. still grinning like a maniac. but you can definitely see that she got a dose of reality

No. 376457

>>376456
i think she expecting the big bad meanie to back off and she got scared af when she had to defend herself

No. 376458

>>376457
oh absolutely! munchies eat each others stories up without questioning a single fact. so when someone steps out of the woodwork or a person who actually is sick says their full of shit, they have no idea what to do because they dont actually know how to link their various stories together so that their exaggerations line up.

No. 376460

>>376458
she got more and more crazy the more she was told there was nothing wrong with her

No. 376462

File: 1503317912729.png (36.36 KB, 750x181, IMG_1455.PNG)


No. 376464

>>376460
lmao she was getting unhinged! out went the emoji vomit, i could practically see the angry self righteous tears. how dare anyone actually question the fact that i literally cannot swallow anything even though a month ago she was swallowing handfuls of tablets and she had eaten ice cream the day before. this girl is a fucking nutcake

No. 376470

>>376447
They also make doctors less trustful of people with EDS/POTS/etc when they figure out their patient is a munchie

No. 376480

there's a cult mentality when it comes to these munchies blindly posting supportive comments as a reflex

No. 376483

>>376396
Screen shots pleaaaaase I need the milk

No. 376514

File: 1503326643430.png (158 KB, 1198x658, Screen Shot 2017-08-21 at 9.42…)

That thread from Jaquie's 8/18 vid is still going strong

maybe one of the mods is getting sick of her shit, too

No. 376521

File: 1503327602108.jpg (2.22 MB, 1536x9585, IMG_0253.JPG)

I give thee… @pinkglitterykisses.

- Totally functional intestinal failure, check.
- TPN fed despite an intact GI tract, check.
- Names her tubes, check.
- Every medication, however mundane, has to be photographed (seriously? fexo?!)
- Wheelchair for no discernible reason, check.

Winneeerrrr!

No. 376523

>>376521

WTF are the big light/dark blue capsules with the black middle?

No. 376525

>>376521
God, her comment on that last pic. You're not a nurse, you're a lazy attention whore who can do a very simple medical procedure (not even a procedure). Whoo fucking hoo.

No. 376526

>>376514
So she's finally getting called on her shit. Good. She's over there gaining weight like none other while people who actually need tubes are desperately trying to keep weight on to be at a minimum. What a selfish, greedy cow.

No. 376528

>>376525

I think her fascination with her medical procedures reveals her particular morbid secondary gain: a lot of Munchies wanted to be doctors, some made it as far as allied health professions, and they see fooling doctors and getting to direct a patient's medical treatment (their own or, in worse cases, those of a child) as a sort of revenge and setting the world right to align with their fantasy entitlement.

No. 376533

>>376526

Well, that'll be fun when she gets fatter and fatter and her button starts to pinch. I saw it with a girl who was overfed and ballooned, and the button's outer edge cut into her flesh. She ignored it until she no longer could. We had to dig the button out of a lake of pus and gastric bacteria and leaking stomach contents (as a button is pulled, it narrows and no longer fills the entire stoma tract, letting her delicious tummy contents seep out. Weeks on Vancomycin and she was right as rain, and they reduced her calories, but it was a long and drawn out process with an ugly scar.

No. 376536

>>376523
According to my Google fu they are an over the counter diet pill

No. 376542

>>376536

THAT might explain why our pharmacist couldn't recognize them.

No. 376546

>>376542
K E K because surely diet pills and intestinal issues really are a winning combo.

No. 376549

>>376040

Even then- I coded and I was only inpatient for 5 days after. If you're immunocompromised you don't want to spend a second more in the hospital than utterly necessary to stay alive.

No. 376550

>>376542
Because you can't see numbers it's either a supplement or MAYBE Tylenol if she's got it turned to not see numbers but googling blue pill with dark band several forums say diet pill.

No. 376552

>>376521

I'm going to assume she's ott I would hope doctors didn't just give warfarin out just because. I know it's not the higher dosage but it's a high enough dosage that if there isn't actually anything wrong with you it could cause some harm.

No. 376553

>>376058
They were designed for air pollution, so if you have asthma and there's a high pollution day, they make sense.

I can't say I understand them in a hospital setting. Maybe to minimize people's perfumes in the hallway, but why would you use a $32 mask for that when you can use a 3M disposable one that won't bring germs home?

No. 376555

Carmel's followers are throwing the expected pity party for her after she was so brutally and viscously attacked! It's all part of the whole spoonie victim mentality. I halfway wish people would go back and call her out again on her newest post about how she was bullied. Her followers need to wake up to how they're being played but then again they're all living in a fantasy world too.

No. 376559

>>376555
im tempted to go back. i mean it wasnt bullying. the two main people texting back and forth with here were bringing up valid points and the one had veds and carmel wants to sit there and say that she has no idea what chronic pain is like.

overall it was people pointing out plot holes and her floundering. again, notice the less than manic grin on her face as she so ~bravely~ shovels puree down her now functioning esophagus

No. 376562

>>376559
her sense of self entitlement was shocking especially because of who she was talking to and discrediting. i wonder if she treats doctors and nurses like that when they tell her things she doesn't want to hear?

No. 376564

>>376553

They were also designed to filter the wearer's breath, to eliminate the spread of germs from a sick wearer (hence the carbon filter output valve that filters much more than the mask itself).

They would be really useful for illness prevention if these people would sew a carbon filter layer into the inside of the vog masks which would filter smaller particles of what they breathe in (I know of ONE of these spoonies who was bright enough to do that), but most of them are too lazy to do that and don't actually care that the masks don't work because "look at me, I am sooper speshul sick and have to wear a mask!"

No. 376570

anyone heard anything from shelbi lately or is she actually shutting up for once (hard to believe with her)? her IG says "friends and family only" but I find it hard to believe that she's not opening up to a bunch of strangers still for some asspats. last time I heard she was claiming she was dying from heart failure because she hadn't been eating, and she had to stop working so she desperately needed to find ways to make money kek

wondering if she's angling for TPN, hospice, and/or disability payments?

sage for curiosity / noncon / OT

No. 376585

kek Jaquie's concerned about weight loss resulting from venting and draining the tube, weight she "worked so hard" to gain by only being able to eat little bites throughout the day

I find it interesting that she mentioned weight at all. Hmmm.

No. 376652

i am one of the people who called our carmel last night and her spoonie army is still harassing me.

No. 376658

>>376652
i only check ig from my computer so thankfully i dont get phone notifications or im pretty sure id be getting harassed too.

No. 376660

>>376658
the same people harassing me are stupid enough to request to follow me

No. 376665

>>376652

Harrassed? I don't think sending mean messages to you on Instagram constitutes harassment.

Spoonies really lack perspective. It's an IG community of board emotional teenagers desperate for drama. I have no clue what kind of crap goes on in spoonie world, but we all know it's petty.

No. 376666

>>376665
telling me to crawl in a hole and die and stuff. harassment was a strong word. they're still delusional.

No. 376671

>>376666
Not hard at all to change your settings on IG so no strangers can "harass" you

No. 376682

File: 1503344410208.png (484.34 KB, 1242x2092, IMG_4875.PNG)

1/2

No. 376683

Sorry, Jaquie. Not buying it at. all. that you just don't want to have a feeding tube. No one who has gone on and on and on for months like you have about getting a GJ Buh-In is suddenly sad because they have one. The negative comments to your YT and the ones posted here may be causing you to change your tune publicly for a few minutes but I don't buy it at all. I also think you probably ate that chocolate chip cookie as soon as the camera was off. I mean, you are the girl who twice now has sat down to a meal of chicken after getting a feeding tube placed.

No. 376684

File: 1503344461951.png (490.47 KB, 1242x2111, IMG_4876.PNG)

2/2 not everyone is buying it with Carmel.

No. 376688

>>376261
god i hate the eds society. thought i was the only one

>>376441
the new criteria seems to be bullshit to me, tbh. but i could rant about that for hours

No. 376689

>>376683

Not whte-knighting, but the glottalization (i.e. swallowing) of the interstitial double "tt"s in front of an "n" is a pretty prevalent thing across American dialects, and doesn't reflect on the level of education of the individual.

Find something else to focus on, like her upspeak.

No. 376694

>>376689
The whole post wasn't about that, I am not the only one who has bitched about it. So why don't you get over it.

No. 376697

>>376689

I love me a cunning linguist.

No. 376698

>>376694

because i'm here to mock people for their malingering behaviors rather than incidental speaking patterns, and mocking people for their speech is petty and distracting from their actual shitty behavior.

No. 376704

>>376698
Congrats. It's not against the rules, you probably say it that way too which is why it pisses you off. Now move on.

No. 376710

>>376683

She was practically giddy when telling the camera what an emotionally draining day she had.

Judd looks like he wants to die every time she mentions venting/draining.

No. 376734

File: 1503349171654.jpg (537.4 KB, 1242x2208, 6YByCef.jpg)

>I'm allergic to my own tears

Are you fucking kidding me

No. 376743

File: 1503351106235.jpeg (35.91 KB, 480x640, puffy_eyes_cry.jpeg)

>>376734
>I choke and swell up when I cry
>Conclusion: I'm allergic to my own tears.

Imagine being so socially isolated that you've never seen another person cry before.

No. 376744

>>376585
It is physically impossible to gain weight by only eating a few small bites through the day. You can't even maintain weight that way. Jaquie is only having weight because she's stuffing her face with junk. She's definitely going to gain past being able to have that button, even though her weight was normal before she started gaining. Even with purging she's going to keep gaining weight, there are not many thin bulimics out there (most are normal to overweight). Plus purging out of a tube isn't as efficient as people claim, most venting is for fluid (like bile), and not after a full meal of solids. And those button tubes have limited sizes, a lot of adults can't have them. GJ tubes are supposed to just be for people who can't eat or can only eat very, very little, not cows like jaquie.

No. 376746

>>376365
No; she's gone all quiet since she got her nose hose returned!
She knows she has psychosomatic vomiting and also that her seizures are psychogenic (psychological) in nature. These apparently got worse when her feeds were stopped and she needed to goto A & E several times each week for 'flares'

The 'flares' seem to have magically reduced now she has her sooper speshul nose hose back.

She seems to have some insight into her problems but not enough to stop going to A & E so frequently with psychological issues, none of which are either an accident, or an emergency.

No. 376749

>>376744
People don't seem to understand that purging doesn't control your weight. You still absorb most of those calories.

No. 376751

>>376744

In addition to secret eating, she'll be gaining weight due to the feeds. She is also barely mobile, so probably doesn't need as many calories as most young women her age.

No. 376753

>>376749

Depends how "good" you are. You only absorb nutrients when your food gets digested. Your stomach doesn't digest food, that's the job of the small intestine. If you're quick and thorough you'll at least maintain, if not even lose depending on other factors.
/ana-chan

No. 376755

A lot of people are anaorexic and their stomachs are shit. Then when they start binging and purging, they won't digest food at a decent rate, so people who have been anorexic long term are more likely to lose weight from binging and purging more than walquie Jaquie

No. 376756

>>372040

She has her feeds going super slow at 15-20 mL/hr because she "cant tolerate" a higher rate. That's only ~500 to 1000 calories a day depending on what formula she is using. More evidence that she must be eating like a pig when no one is around if she's gaining weight this fast.

No. 376762

>>376432

i just got home and snapped them all, let me edit them, figure out how many there are, and i'll post them! the milk is flowing

No. 376763

Given that Jacqui can eat small bits and pieces of relatively demanding food, I see no reason why she could not have done a long term trial of high calorie oral nutrition (Ensure shakes, etc). I get it, they taste like shit, but she doesn't seem to realize the long term damage she's doing to herself and her intestines and her life and her everything.

Most nutritional formula is designed to be nutritionally complete so in general, you aren't supposed to eat anything else. As for her tolerating only a low rate, that seems to be pure symptom borrowing. I wonder if her endgame is that sweet, sweet TPN (we have seen that money is apparently no object when Jacqui wants some Munchie toys!). There are people whose plans are designed to provide supplemental nutrition (typically, these people have cancer or CF), but for a FGID, it's rather odd that she's eating normal food at the same time. Especially if she indeed does have a functional stomach motility issue and perhaps some mild intestinal involvement, giving her stomach a complete rest for a few months might be beneficial,

Bottom line, stop pigging, you stupid Munchie fuck! Also, as explained… a G/J button is very bad for purging.

No. 376786

File: 1503357523705.jpeg (241.47 KB, 750x991, fullsizeoutput_1c42.jpeg)

1/6 of Jacqui from FB

No. 376787

File: 1503357548976.jpeg (155.22 KB, 747x1200, 1503355781795.jpeg)

2/6

No. 376788

File: 1503357593122.jpeg (206.74 KB, 736x1196, 1503355932994.jpeg)

3/6 sorry for the sloppy editing, was doing it really fast!

No. 376791

File: 1503357651585.jpeg (243.29 KB, 738x1199, fullsizeoutput_1e5c.jpeg)

4/6

No. 376793

File: 1503357683630.jpeg (185.21 KB, 750x1205, fullsizeoutput_1e5d.jpeg)

5/6

No. 376794

>>376786

Is that from G-PACT main? Or GTL?

No. 376795

File: 1503357754647.jpeg (201.43 KB, 746x1206, fullsizeoutput_1e5e.jpeg)

6/6

No. 376797

>>376794

adult tubies! i thought it was from one of the gastro groups but i made a mistake, that's why it took me so long to locate the post. she made another post today which led me to find this one again

No. 376802

>>376793
>lol doc says dont binge how silly!

yea cus he knows you are. we all know you are. and now youre gonna have a harder time purging that food out. god its disgusting

>>376762
ty for pulling through anon! was waiting all day

No. 376806

File: 1503359162772.png (758.02 KB, 679x1166, Screenshot_2017-08-21-16-24-50…)

Please teach me how to be a better munchie.

No. 376808

File: 1503359204725.png (275.74 KB, 677x813, Screenshot_2017-08-21-16-25-18…)


No. 376818

>>376802

no problem! had a crazy day but we all need our fill of queen munchie jaquie and her super serious case of gastro

No. 376821

>>376795

Jesus, now she's asking for direct help in purging. It made me laugh where she said she's getting 10% of her intake from food and the rest from her tube feeds (that she can't tolerate kek). If that were true she'd be losing weight instead of ballooning up. With the shit she eats, it's not going to all come out her tube.

No. 376822

>>376808

It's just a big competition over who's worst. Goddamn spoonie Olympics.

No. 376828

>>376734

Allergic to her own tears … that is a new level of sooper munch

No. 376830

i'm gonna market 'spoonie munch cereal' that's just a box of air and see how many of them end up allergic to it

No. 376831

>>376763

Trying to think of Jaquie as someone other than a person I detest, it is quite scary how an undiagnosed eating disorder can run you into the ground (especially yonewhen you're a munchie fuck)

but I still hope she gets what's coming to her after pulling all this malicious BS on everyone in her life.

No. 376833

>>376763

Trying to think of Jaquie as someone other than a person I detest, it is quite scary how an undiagnosed eating disorder can run you into the ground (especially when you're a munchie fuck)

but I still hope she gets what's coming to her after pulling all this malicious BS on everyone in her life.>>376831

No. 376848

>>376833
Yeah she definitely doesn't deserve anyone feeling bad for her. She's loving every second of undeserved sympathy and attention.

No. 376851

>>376833
>>376848

I was seriously so disgusted when I saw her post and I feel so terrible for the people in the group who give her advice. I wish I could tell them how much she's lying, especially about her oral intake - that's what got me the most. I didn't even realize it was her as I read the post at first and then suddenly it dawned on me. Complete BULLSHIT that she's only doing 10% oral intake. Definitely more like 90%, considering how much she's gained and how much she films herself eating. Can't wait for the day everything comes crashing down around her, tbh. kekkkk.

No. 376858

>>376033
Nobody cares, share your diary entries somewhere else and at the VERY least learn to fucking sage that blogshit

No. 376883

File: 1503368083389.jpg (1.05 MB, 796x3092, Screenshot_20170821-210245.jpg)

"Wouldn't make it to my 16th"

I still just love that she was begging to continue treatment hopping because she was going to die without it. I mean it was so serious that her dr said she may need dialysis for her super special failing kidneys due to the most special-ist serious ED ever but insurance refused to pay for a hospitalization.
But she managed to be fine..what a mystery.
She needs to share how she magically cured her failing kidneys without medical intervention. Millions of people would benieft from the cure!

Also..not sure the proper word to use for her photoshopping skills here.

No. 376898

File: 1503369913815.jpg (983.57 KB, 2896x2896, 20170821_211652.jpg)


No. 376901

>>376883
man, her granny face must really be getting to her. lol the insecurities sure show through in those photoshop skills.

shame because >>376898 in that black and white dress, she could really pass off as some kind of professional of some sort. but unfortunately, shes forever the ana mindset of recovery but still want to be a child.

No. 376906

>>376901

Yah

This is a possibly crass post for some, sorry in advance

these pictures just scream a young grade school teacher and devoted religious life style. Nothing wrong with either of those but at least she looks better than she ever has (I've known her for a long time) and seems to have decided to be something vs special ED that almost killed her dozens of times of course.(at least for now).shes still full of herself, ott, and an arrogant munchie (extremely obvious..she follows a lot of illness pages and in treatment she was awful by hurting others she was jealous of and in my case asking a million questions about my health problems so she could try to fake them when in hot water) but maybe this new life will do wonders for her, but I just have a feeling she's going to be in and out of treatment (hopefully not literally treatment hopping again) well into her 50s and 60s and/or her munchie side will grow and she will hop on the trendy illness train.
She spent so much time in treatment that she is so far behind in real life. I think when she fully realizes what she did it will be the start of her spiral downhill and get in a mess with more than just an ED (SH,alcohol/drugs,sex) , and unfortunately I fear she will opt for suicide. She's had a few "attempts" (as in- being bored and upset she was discharged and has to spend a week in cali for a mini vacation to take up time before a bed opened up in another IP facility, or having to be home a few days in critical condition known as attention deficiency requiring a bottle of baby Motrin..) I sincerely hope she doesn't go that pathway, and she proves us wrong and actually becomes a proper member of society..but with as much time she lost being locked up, it's going to be a rocky road.

I suck at shortening what I say, apologies.

No. 376911

>>376901
I'd bet my big toes that she would have been cute if someone had of taken care of that insane underbite she's got. Not stunning, but a fair cutie.

No. 376915

>>376911
it'd help if she didnt smile like a serial killer. She smiles with her teeth but her smile looks so fake, its like she wants to kill someone

No. 376917

so since when was the purpose of this board to pick on people's appearances? Not wking at all but can we stick to milk please

No. 376921

>>376917
Yeah I agree with this comment. Yall are getting quite mean for no reason. I see nothing interesting on her profile other than she was legitimately anorexic in the past and got help for it. Nothing really to make fun of there. So honestly it's pretty fucked up, shut up.

No. 376924

>>376915
Word. I get the same creep-out reaction and can't stand to look at her wide-ass maw.

>>376917
Where the fuck do you think you are?!

No. 376939

>>376921
And you too: Where the fuck do you think you are? This site isn't a hugbox. Fuck off with your wk-ing. If you knew this girl's history you would know she is a massive attention whore and seriously toured ED treatment centers for YEARS, like her goal was to be in them all. She begged to continue her treatment-hopping bullshit but ultimately her parents stopped funding it. She threatened she was so sick she would die if she didn't get to continue her IP tour, but magically she got better, how bout that? Fuck off with your baaawwwing and policing.

No. 376944

>>376939
I didn't say this site was a hugbox I'm just agreeing with the person above that if you don't have interesting info on a person than don't post. You guys are just blatantly making fun of appearance, not giving milk. So fuck off wit ya bullshit lol. It's boring and just rude. I go on this site to call out people on their fake medical bullshit not bully their appearances. It's boderline bullying. That's all I'm saying.

No. 376946

>>376944

having an underbite or whatever has literally nothing to do with being OTT/Spoonie/Munchausen. I know exactly where I am

No. 376949

>>376898
She's been discussed for years in the anachan thread. She doesn't belong on here.

No. 376952

>>376949
Thanks for clafiying and backing up. Now can we can we move onto something actually milk worthy?

No. 376959

>>376944
>>376921
>>376917

I think you need to read it again..because if you had you'd see that she wasn't originally posted because of her appearance minutes ago. In fact, it's posted because it is the latest milk on her and she has been asked about.
Some of the appearance replies are rough but honestly people have been SO SO much more brutal on appearances than this on this site.

It's noticeable you decided to look over the purpose of the posts and latch on the appearance replies. Selective "reading"
That makes it seem you are being "fucked up" since that's all you took from the posts..

And several mentioned she is looking better even with the editings..thats not being mean.

She is a munchie
She is a bit more low key with it specially social media,(MBI) but IRL in general and ip, she is not low key about it at all.

No. 376963

File: 1503377922160.png (208.9 KB, 1536x2048, IMG_3032.PNG)

Carmel just explaining to a follower that she is partiently waiting for her tube. She's so fucking stupid because she doesn't even hide her plans to eat less, lose weight and get the tube. She's not very intelligent which doesn't help.

Pic 1/2

No. 376964

File: 1503377934755.png (199.28 KB, 1536x2048, IMG_3033.PNG)

>>376963
Pic 2/2

No. 376973

>>376959


eh just get off of it already. if she's munchie, fair enough. But bringing up her underbite or appearance is almost as petty as the munchie behavior we sit around and talk about on this site in the first place.

No. 376974

>>376973
Honestly, fucking yawnnnnnnnnnnn

No. 376976

>>376959
Thank you.

No. 377018

File: 1503391354578.png (290.83 KB, 1536x2048, IMG_3034.PNG)

Carmel is finally no longer wasting health resources and a hospital bed! She was awaiting mannomety results but I assume from her post that the were normal kek.

In a previous post, she told one person she can only eat half her daily intake and the next comment, it was 30-40%. She absolutely ignored the questions as to why she can fucking drink her calories. Oh no, she did say "muh nausea and bloating".

No. 377024

>>377018
realized she doesn't have veds and can't compare or be in the most pain so she's quitting kek

No. 377028

>>377018
knowing carmel those mixed emotions were definitely because the results were normal. so no immediate rush to get her super serious toobie in. poor thing.

>>377024
nah i think she will continue, maybe for awhile she will calm down but my bets are certainly placed that she will continue to starve and beg her way to a precious feeding accessory.

No. 377030

>>377028

Or she'll find herself another easily fakeable condition.

No. 377037

File: 1503397497516.png (890.4 KB, 674x1040, Screenshot_2017-08-22-03-20-14…)

>>376786

Now she says she has an AMT button not a Mic-Key.

No. 377044

File: 1503399632613.jpg (308.65 KB, 750x1334, IMG_7199.JPG)

>>377028
And older post from Carmel… she's so desperate she doesn't realise how much she's spelling her eating disorder out - how does she know she's only eating 300 calories unless she's somehow counting them and making sure? Hmmm! And her mum putting a tube in fucking lol!!!!

No. 377046

>>377028
>>377044

We're pretty strict in Australia. I don't see an Australian doctor giving her a nose hose for the sake of it. If anything they would give it to her for a short period of time and send her to inpatient ED therapy.

No. 377053

>>377037

Eh. Mic-Key buttons used to be the only brand and hence so ubiquitous that for the longest time people referred to all buttons, manufacturer regardless, as Mic-Keys.

No. 377072

>>377046
people can get GJ's without a gastric emptying study, malnutrition (!), weight loss or literally any tests to prove anything other than bulimia.

It's fucked, but it happens here as well, so she won't have much trouble getting her beloved nose hose, or she'll buy it on ebay and end up inserting it wrong and aspirating into her lungs kek.

No. 377074

>>377044

WHAT THE ACTUAL FUCK?!? Her mom was going to tube her?! Literally how do her followers not realize she is a munchie fuck? I don't give two shits if her mom was an ICU nurse, that's absolutely fucked.

No. 377075

>>377044

I love how she was planning to go to hospital - munchie as fuck. She's actually not even smart enough to pretend she doesn't want the tube. Most of them at least pretend for a while.

No. 377076

File: 1503409267413.png (174.7 KB, 713x600, IMG_0166.PNG)

Awww JBN super proud of herself for not "needing" A&E for a whole fucking month. Gold star for you #supertubie

No. 377077

File: 1503409445538.png (334.92 KB, 736x1078, IMG_0167.PNG)

JBN bragging about her uhmazing charity work again. Fuck off Nicole we all know you do this to promote yourself not the fucking charities. If you gave a damn you'd donate more than £4 worth of fucking food and you wouldn't run to IG to post every donation you make.

No. 377079

File: 1503409661207.png (179.61 KB, 750x1077, IMG_5295.PNG)

Carmel fished for Addisons but failed

No. 377080

File: 1503409718430.png (212.46 KB, 750x1090, IMG_5296.PNG)

Also apparently requires(d) a cpap for sleep?!

No. 377081

>>377072
is that @Richelle_Elissa you mean by tube for GP with no GES?

No. 377083

File: 1503409854835.png (178.07 KB, 712x889, IMG_5294.PNG)

And also, of course, sees a naturopath filling her head with loads of bullshit like swelling in her brain and convincing her to detox to cleanse the supa serious toxins from her body

No. 377084

>>377083
"severe brain inflammation" hun you'd be in ICU if you had severe brain inflammation not taking smiling selfies in your weed shirt (and she wonders why she has cognitive dysfunctions)

No. 377087

File: 1503410176713.png (289.89 KB, 742x1071, IMG_5297.PNG)

Also since when is prescribing doxycycline risky for a doctor? Want to protect your medical license? Put it down for Carmels acne. Not her imaginary Lyme disease her naturopath claims.

Also Lyme isn't agknowledged in Australia and I don't know how or where she is going for testing. But any medfags are free to full that in.

No. 377088

>>377080

Man I can't stand her ugly squinty eyed smile. She looks so shift and insincere. She's punchable af.

No. 377090

>>377079

How annoyed must the nurses and phlebotomists be with munchies and their incessant photos and videos.

No. 377091

>>377087
Any lab in australia can test for lyme (especially if you've been overseas during/immediately before onset of symptoms.

Usually these tests are negative and they then spend $100s to send their blood to the US bc it was a "false negative" then they get that sweet sweet lyme diagnosis, gofuckme tens of thousands to go to some shifty treatment centre in cyprus but spend most of that money on a london holiday.

They're then magically cured and can suddenly go on 5k runs and eat and drink and no longer have gastroparesis + vomiting 20 times a day (see @daisysperspective for an example.)

No. 377093

File: 1503411180516.png (283.85 KB, 750x986, IMG_5299.PNG)

Prayed to every god that is was Lyme so she wouldn't die.

Also she mentions treatment making her sick but mentions it being Doxy? That shits tame as fuck.

No. 377095

>>377091
One of her posts mentioned raising funds for Malaysia for hypothermia treatment.

No. 377096

If Carmel knows that stopping some of her supplements causes a drop in her potassium along with prolonged enforced dehydration if she will stop taking them at home and do her best to get as sick as she can with low k and scream even louder muh heart! If she gets it low enough.

No. 377104

Jaquie "Feeding tubes aren't always glamorous" Um, no Jaquie, they are never glamorous. Only in your weird little munchie mind. Necessary at times, yes. Glamorous, never.

No. 377106

>>377093
i imagine doctors would be a bit put off if a patient came in saying they are presenting with 40+ symptoms.

she says lyme rage, i say a personality disorder. what an attention seeking little leech. shes intense. robyn is always my munchie choice #1 but i think carmel is coming in close second.

No. 377139

File: 1503417791552.png (113 KB, 640x1136, IMG_0650.PNG)

>>377093
Oh, Carmel. At least pick a disease you could have actually gotten.

No. 377142

>>377139
She says she didn't always live in Australia and therefore got it in another place. I believe she said camping. Classic story. Get her lies straight at least sheesh. :p

No. 377145

>>377037
First, those two buttons are pretty much the same thing, they just look different. The j port on the amt button shares the same extensions as both ports on the mickey GJ button I believe, but you have to have a different one for the g port on the amt button. So really the only thing she couldn't do until she got the new extensions was "vent", aka purging for her. Amazing how the medical community is enabling her.

No. 377146

So Jaquie starts today's video saying she's losing weight and needs a super speshul organic formula that her doctor approved because it's too dangerous for her to lose weight and ends it by eating a plateful of dinosaur chicken nuggets with ranch, asparagus and mac and cheese. She spends half the video going on about how she doesn't even feel hunger anymore and gets all her nutrition from her feeds but then eats a pile of crap. Why? Why? Why? She has rationalized so much fuckery to herself. It's amazing.

No. 377147

>>377146
I don't know what I did wrong with the spoiler image on that last post but it's not there. Sorry.

Sage for stupidity.

No. 377155

>>377146
TBH I kno this chick irl and you are even making some good points. It's scary.

No. 377168

>>377093

So, off to some woo clinic she goes for overpriced Doxy! Sweet!

No. 377178

>>377168

Btw, my favourite Munchies are the patients who tell me they have 'neurogastrointestinal Lyme syndrome'. I normally politely ask them if they could help me as I can't find it in the ICD-10. Usually, I get a rant about pharma companies and vaccines, so I ask them if they then prefer their endoscopy done by an unvaccinated doctor and without midazolam and the lidocaine spray in the throat. Man, the weather tends to change when they hear that.

Sage for medfagging..

No. 377179

>>377155
She's absolutely ridiculous. Sits around eating junk, how does she have people convinced she's already "losing weight" after something like a week with her precious new t00b?

No. 377183

>>377074

As far as I'm aware, nose hoses are 'by order' nursing interventions, meaning even a LNP or PA can only do it on the express order of a licensed physician who must have examined and consented the patient first. So normally, tubing your child would be a career-ender for her, and rightly so. There is so much that can go wrong and I never let a nurse insert a G-tube without being in the room. GJ tubes, on the other hand, can only be inserted endoscopically, and that's the tube she needs if she really has a medical need, rather than just wants a nose hose for photos (is she going to a beauty pageant by any chance?). So unless mom has an endoscope at home and is scope qualified, which I haven't seen in an ICU nurse in, like, ever, this will be fun.

No. 377184

>>377179

She has said that she never eats everything on her plate and she often vomits even if she doesn't eat those "few bites". The irritating chick has an answer for everything.

No. 377186

>>377178

"Neurogastrointestinal lyme" eh? Sounds like it needs a tube, especially one with a venting port!

No. 377187

>>377184

If only her answers actually made any sense (or could be corroborated by, you know, the video footage she flaunts). Her vlogs really discredit all of her munchie claims, if anyone pays attention even half of the time.

No. 377195

>>377146

Organic formula?! There are no medically approved 'organic' formulas, as far as I'm aware. All of them are generally made of the same disgusting stuff, so there. At the same time, there is such a thing as 'elemental' formulas, which our not very bright girl might have confused it with. Elemental formulas are for people whose digestive systems are either allergic to a wide range of proteins or can't break them down, so instead of a protein mixture, it contains a mixture of pure amino acids, much like TPN. I seriously doubt that she is getting that, however, as they're very tightly regulated (they're very expensive and not normally given above an age of 10 save in confirmed MCAD and EOE).

No. 377196

>>377155

Do you have any great stories?

No. 377198

>>377195
kate farms and/or liquid hope. she's probably angling for one of those.

No. 377199

In Jaquie's video from 8/19, she starts out complaining about her throat, but progressively slips back into her monotone like she forgets. When she speeds the video up, even her fake strained swallowing disappears.
Also: in the end of the video when she flushes the J port of her tube, watch the way she slams down the plunger like it's a 1mL syringe. A person with any level of intestine dysfunction would be doubled in pain from a flush like that into the jejunum. It feels like being punched in the gut.

No. 377206

>>377198

Any doctor who endorses either of those should be struck off.

No. 377207

>>377206
i know that lol they just seem to be trendy among spoonies for some odd reason

No. 377208


No. 377209

File: 1503427567903.png (3 MB, 1536x2048, IMG_3036.PNG)

Oh lookie.

No. 377217

>>377208

Because there is no RCTs, no evidence for its suitability, entirely resting on a combination of giving often very, very, very ill patients something that convinces them it has something that others don't have when in fact they make claims about nutritional completeness that have absolutely never been properly proven in humans with impaired digestion, etc. Last I recall, we practice evidence based medicine. As one of my teachers used to say, nobody forces you to practice evidence based medicine, you all know where to write if you want to surrender your license.

No. 377218

>>377209

I looked at those ingredients and sweet shit with all the fructose and polyols and complex sugars, I cannot even conceive of living off that shit.

No. 377227

>>377199

I had a g/j to power me up during chemotherapy and even without a motility disorder, squirting water in like that would cause agonizing pain. The maximum sustained rate of water into a J is 300ml/hr and 600ml/hr for G tubes, the maximum flush rate should not exceed 5ml/s, or 10ml/s for a short single burst when unclogging. In fact generally, no home nutrition pump will allow you to exceed those rates - only hospital pumps will, and even those are capped.

No. 377245

>>377195

Supposedly it's something made by Kate Farms that she found online during her "research" and she has convinced her Dr that is it the best possible option for her even though insurance likely won't cover it. So she clearly has $$ from somewhere because the site I found shows that a case of 12 is $108.00 and she has found yet another Dr who can be manipulated into giving her whatever she wants.

No. 377246

File: 1503430959181.jpg (526.3 KB, 1047x1035, Screenshot_20170822-142646.jpg)


No. 377249

File: 1503431574450.png (166.92 KB, 636x784, IMG_2507.PNG)

>>377246
Still got the portacath hanging out even when it's not in use!
Suppose she won't get speshul spoonie points if it's tucked away like most normal people!

No. 377252

>>377247

I think it's hilarious that she eats absolute shit, yet wants organic formula.

No. 377254

I'm confused why none of these folks are wearing compression stockings if they have POTS. That's a standard first line of treatment and most people with POTS who want to function wear them every day, especially if they'll be on their feet all day or going to the gym. They have them waist high for people who get blood pooling in their stomach/GI issues from POTS.

No. 377255

>>376963
Her symptoms and everything don't match up at all. She's so dumb. It's highly likely she's in hospital for an ED and is posting otherwise on IG. I've known a couple munchies IRL that do that and I'm always like WTF.

No. 377256

>>377246
too self absorbed to even @ the kate farms insta kek

No. 377257

File: 1503432191439.jpg (52.87 KB, 540x540, IMG_3289.JPG)

>>376523
OTC peppermint IBS capsules

No. 377259

>>377252
It really is OTT. Couldn't eat grilled chicken because it smelled too much like the steak it was cooked next to, instead she eats nuggets and mac and cheese yet mussssst have organic formula. Crazy. Chick is crazy.

No. 377267

>>377093
Sounds like the tests were all inconclusive and she thought "well that doesn't mean I don't have it, so let's go with I do have it".
Kek how she explains treatment will make her Lyme go away BUT DONT FORGET I STILL HAVE 4 OTHER CHRONIC ILLNESSES

No. 377279

File: 1503434533318.png (178.75 KB, 750x1195, IMG_2140.PNG)


No. 377282

File: 1503434732980.png (167.3 KB, 750x1079, IMG_2141.PNG)


No. 377286

File: 1503435316215.png (191.59 KB, 750x1069, IMG_2142.PNG)

>>377282
Had to check out wheelchair_doc and now I'm wondering what makes them a doctor? Plus that long diagnosis list ending in "etc" screams munchie

No. 377291

>>377155
>>377286
that website though…sections for each of her diseases…

No. 377300

>>377286
seems as though she is a legit medical dr- she did a biomed engineering degree then went on to medicine. Her website mentions her being on residency during 2012, although she took a leave of absence which seems to be where her munchie-ism started.
Either that or she is just really incredibly unlucky. (kek as if)

No. 377301

>>377249
What must her doctor think when a healthy patient walks in with a service dog, walker, and a portacath being misused? Quickly pudging up despite "malabsorption" and the need for a feeding tube? Seriously, whoever her doctor is needs to be outed and reported for letting this fat fuck get all the latest accessories despite being the picture of health. Asinine.

No. 377305

>>377249
that fucking thumbs up ALL THE TIME

No. 377355

I didn't think much of Dani/endlessvoices/MLS's temper tantrum and declaration that she was so upset about her name apperaing here that she was going to stop posting - but it has occurred to me that this is supposed to be the week of her supposed testing (which she made a huge deal about prior to getting the appointment and then was suspiciously quiet/vague about).
I wonder if she is waiting to see what the results are (if there are even any actual tests being done) and she plans to disappear for a little while before making a comeback and making no mention of the tests or their results in hopes no one will remember and call her out. If the tests are actually happening I can't see how she would be able to resist the medporn pics

No. 377367

>>377301

So she's a fall risk blah blah blah but she let's that portacath dangle. I would think fall risk would mean minimizing shit you could possibly get caught on and throwing yourself off balance but what do I know?

No. 377374

File: 1503439835833.png (56.26 KB, 331x541, IMG_2508.PNG)

>>377077
That time when she had a NP airway for
her 'endless seizures'
She forgot to add the psychogenic part!

No. 377384

>>377077
It would be better if she did something extra special to raise awareness! Donning the same sash and writing the name of the charity on some piece of scrap paper isn't really raising massive quantities of awareness.

Why doesn't she stick to a few close to her heart charities and do something amazing? There are some amazing challenge/endurance events available and none of them involve nose hoses, cheap felt tips, scrap paper and a sash given purely for taking part!

No. 377385

>>377300
learns about numerous medical conditions
suddenly "experiences" numerous medical conditions

I think most medical students go through a period of thinking they have what they're learning about, but get of it. This chick never did. She rode that train all the way to munchville

No. 377386

Is there a reason we don't post about jonzie/ mama bears IG? Today's posts are insanely milky

No. 377387

>>377374
Sage for nit-picking, but look at them uneven eyelids. Poor girl should save her spoonie money and get that fixed

No. 377390

>>377374
Oh she could take selfies during endless seizures?

No. 377391

>>377386

I thought she deleted her IG. It's back?! Share!!

No. 377395

>>377257

Fuck me, I'm a gastroenterologist and I've never even SEEN these. Wow.

No. 377396

Yes it's back and milky AF. Hold on let me find some good ones

No. 377399

File: 1503441221770.png (675.01 KB, 750x1334, IMG_5150.PNG)


No. 377400

File: 1503441245082.png (754.69 KB, 750x1334, IMG_5151.PNG)


No. 377402

>>377286

Ok, so we've got autism and NMO and EDS and CCI and GP. NMO is autoimmune, autism is weird, EDS is congenital, GP is not autoimmune unless AAG, and CCI may be an EDS sequela.

The likelihood of someone having a relatively rare neuroimmune disorder, a congenital collagen disorder, a congenital neuro developmental disorder and a neurogastroenterological disorder all together is minimal. Each of these conditons is fairly rare, and somehow even someone with a DO (from what fucking university, dear God?) should figure out that all of this because of various and etiologically divergent causes is highly unlikely.

On the other hand, guess what explains most of it? Benign hypermobility and conversion disorder.

Or Munchies.

No. 377405

File: 1503441400351.png (993.5 KB, 750x1334, IMG_5152.PNG)

Note that the tube is WAY too long to be an nj…. totally is a ng

No. 377406

>>377374
Sage for potential whiteknighting (or rather it coming across as it). Nicole originally had an epilepsy diagnosis. The photo was taken when she was diagnosed epileptic so she probably didn't think to put it down as psychogenic. She now accepts the diagnosis and isn't claiming epilepsy anymore

No. 377408

>>377385

I was totally convinced I had cancer during M2.

To be fair, I did have cancer.

Cue all my classmates shit scared that their med student's hypochondria conditions are going to be real, too!

No. 377413

>>377406
You may be right but despite the 'endless seizures' she managed to take a selfie!

No. 377417

>>377413
If I remember correctly the photo was taken the next day so the seizures had stopped. Sage for potential white knighting

No. 377435

>>377405

Why the fuck is an adult fucking WOMAN playing on a kid's toy like this?! She needs serious psychiatric help.

No. 377440

>>377399

ARRRGHHH her filthy fucking Vogmask, capturing all of her delicious oral flora, inches from stuff that goes straight into her veins. Makes the nonexistent hair stand up on my back.

No. 377445

>>377405
That's either the longest J ever made, or it's an NG. It looks like a much higher gauge tube than can be inserted as an NJ, too. Specifically, it looks like a drainage NG, which is sometimes used for feeding (there's nothing special about it that makes it a drainage tube, except its large gauge - for drainage you want the largest gauge tube you can get). It's also uncommon with N* tubes to let them hang out just like that - they snag too easily. Most patients prefer them behind the ear. It's also held in place very weirdly… typically, tegaderm on face is the preferred method. Normally, a patient can only refuse that if they have a good reason, such as an adhesive allergy, which is very rare.

No. 377446

>>377435

Music therapy. She's in a children's hospital, so the therapy offerings are probably mainly geared to their main audience, not the odd 'straggler'.

No. 377452

>>377402
Don't forget the "etc"! Who knows what's included there! Guess it's meant to be a mystery, leaving the average person thinking wow what a sooper speshel spoonie. But I think it's code for munchausens

No. 377454

>>377405
Trying to disguise herself as a five year old cancer patient?

No. 377458

>>377454

I'm not sure whether to feel sad that she has a serious psychiatric disease that makes her this way or to feel furious that she's so attention seeking.

No. 377460

>>377279

"self caths herself"

Something no doctor would ever write. I'll let you figure out why.

Here's what I think the tenor of that report was, as opposed to how crazy cripplepunk girl perceived it: "patient looks like a medical equipment collector… I don't want to give her a piece of expensive hardware to inject into her spine the same substance that, at the highest oral or xd dose she could tolerate, isn't helping her below an 8 according to her own position". Doctors have an interest in successfully treating you and no interest at all in putting a hugely expensive intrathecal opioid/conotoxin pump in someone who is on Medicaid, will still be unemployed regardless of the incremental change in pain levels and looks like she has made being sick her primary profession.

No. 377466

>>377460

"Self caths herself" isn't grammatically correct anyway.

No. 377476

>>377452

Let me give you a more sympathetic take on her, after reading her blog etc. Med school is hell, internship even more so. And you basically agree to be tormented for a decade before you can start raking in the benefits. There were days during residency I did not see my wife for days and we worked at the same hospital! So it's hard on many, and makes many think twice. Is this what I want? Am I going to take a decade more of this?

So she might have opted, perhaps not even entirely consciously, to give herself a graceful way out and declare herself to be too sick to continue in medicine. At the same time, since she finished med school, she is, technically, a doctor, and gets to prance around in that role, even though she has basically zero clinical practical experience that would underpin what she's saying. Her life is a list of weird accidents: born with autism, TBI @ 19, EDS, NMO, etc. - a lot of improbable conditions that together are even less likely, and realistically more a consequence of overly relying on Hiccam's Razor ('patients will have as many conditions as they'll damn well please') and a lack of sane diagnostic parsimony. But they're a great out for her - she's still a doctor, after all, and among Munchies, a fellow Munchie doctor is like solid gold - someone who gives them all the belief and support that they could ever wish for!

Too bad, because she could have been saving lives, even if she wasn't the best of the best. There is, and always will be, a need for mid-range doctors (keeps me in a job!). But no… instead of being a servant in heaven, she chose to be a king in Munchie hell.

No. 377484

>>377246

Her favorite doctor is the one that's stupid enough to still be agreeing to all these things she doesn't need.

No. 377485

I need to stop googling the conditions some of these people complain of, because it inevitably leads back to a condition I'm experiencing, and since these munchies do love them their long, intractable, serious conditions, the results of these conditions are scaring the ever loving fuck out of me.

The latest was this munchie doctor fuck, who's complaining of what amounts of a fairly mild case of cervical kyphosis (i.e. military neck). Hint: EDS is not a cause of cervical kyphosis, though that TBI (if she did suffer one) would have done it.

Man I am not relishing the idea of slowly becoming paralyzed, as I have cervical kyphosis. My rheumatologist suggested I stop sleeping on my face and sit up straight. I'd rather believe I can fix my problems through behavioral changes than going straight to omg i need a neck brace u guize.

No. 377486

File: 1503446503379.png (1.51 MB, 800x1169, Screenshot_2017-08-22-16-32-23…)

As long as she can still operate the remote and play computer games.

No. 377496

>>377486

I'm no doctor but what the fuck would bandaging your arm like that even do?! This looks useless, wouldn't you have to include the lower part of your hand/around the thumb as well to stabilize your wrist??

No. 377497

>>377386
You have access to what has always been her personal IG - thanks for sharing!

>>377400
This looks like a stock photo. The angle taken is odd and looks very "textbook photo". Plus the sheets don't match the ones in her other photos and the IV site is different. "My infusions" and "special life in a syringe" is just so vague. But remember she is the sickest of all the spoonies.

>>377454 - Trying to look like a sick little cancer patient is her typical MO

>>377435 - Because she wants everyone to think she is a sick little girl. She has always tried to use and abuse all the services meant for actual sick children. My questions is what adult is taking pictures of her playing with a children's toy like this. I would be embarrassed to be seen with her pretending she is 2 and not a 20-something. and how is she getting away with still being in the children's hospital after the last debacle (I am not convinced she isn't make this whole thing up and using old photos)

No. 377500

Oh Jonzie, I doubt to high heavens that anyone other than you have said that you are an "extreme fall risk"

No. 377538

>>377405

I'd bet my last $5 that it's an NG tube and she's just been admitted for the same old thing.

Noticed that she's changed her bio to "tubie" which says it all really.

No. 377545

File: 1503450586964.png (249.4 KB, 1536x2048, IMG_3038.PNG)

Chloe's seen a speshul doctor who's given her lots of validation. Lucky for her, he also indulges in her favourite hobby - criticising the NHS and her treatment. Not amazingly common for a reputable, respected doctor to do that, so I can only imagine who it was she saw…! He sounds like a money grabbing private doctor ad the tests are only available privately.

Pic 1/2

No. 377546

File: 1503450608320.png (254.69 KB, 1536x2048, IMG_3039.PNG)

>>377545

Pic 2/2

No. 377548

>>377538
I absolutely hate adults using 'tubie', even the ones that actually need tubes. Tubie is only cute for babies and young children; I hate when adults infantalize themselves and their illnesses (real and especially imagined). The whole concept that you can't be sick and need medical interventions and be a functioning, responsible adult at the same time is ridiculous. There are plenty of seriously ill adults that choose to not go down that path, and who actually have jobs and social lives and a focus other that being a speschel snowflake. Sure there are limitations, but being chronically ill doesn't immediately turn you into a bed-bound, totally disabled pseudo-child.

No. 377552

>>377546
That's not how dislocations work, you moron. Even in EDS full dislocations are fairly rare, especially in someone who never leaves their bed.

No. 377555

>>377546
Here we have "I read lists of symptoms on the internet that now I'm telling you I have so I must be really sick since I'm telling you I have these things" syndrome. Amazing what enough money to the right (idiotic) doctor can do for you!

No. 377556

>>377552

Angling for an EDS diagnosis, no doubt.

No. 377557

>>377556
Of course she is. Lyme probably wasn't panning out, so she did some internet research and is starting her dr shopping with her sob story

No. 377559

>>377497

i did a reverse image on the picture using google and nothing came up but munchies are known to rip pics from other spoonie IGs. Not sure if Instagram photos come up on reverse image search on google.

No. 377561

File: 1503451262780.png (Spoiler Image,137.24 KB, 750x1088, IMG_1712.PNG)

I posted earlier about her and how I can not stand this chick and she just keeps getting worse. WILL SOMEONE PLEASE CALL HER OUT???? I have more pics to come. She is insufferable

No. 377562

File: 1503451300449.png (Spoiler Image,316.5 KB, 748x1105, IMG_1713.PNG)


No. 377563

>>377561
she follow req'd me 6 TIMES before i finally blocked her sage for non contrib

No. 377564

File: 1503451395706.png (Spoiler Image,293.86 KB, 750x1028, IMG_1714.PNG)

I can not take the attention seeking bullfuckery. If you kno what u aren't supposed to eat DONT EAT IT! And she doesn't even have like any real fucking diagnosis'. All her posts are negative.

No. 377571

>>377564
All she does is complain about her super speshul digestive probs and how she can't shit. She downs mag citrate like it's her job.

No. 377575

>>377571
I just can't stand the crying photos n complaining. Like seriously.. why the f are these people commenting OMG I'm so sorry bb:( when she purposefully ate something that's going to make her sick??? And you're telling us it's not possible for you to follow a diet? Are u kidding me? Can't stand the stupidity

No. 377577

>>377575
Maybe she should take diet tips from Carmel who claims not to be able to eat anything,

No. 377578

>>377546
>described it as one big disease without a name

yea, munchausen syndrome. for which if he speaks of it, no shekels in his pocket

No. 377597

>>376883
her face looks like a 7 yr old's self-portrait

No. 377625

File: 1503457393503.jpg (1.15 MB, 1080x1920, Screenshot_20170822-204141.jpg)

This chick has less than 60 followers, so I blocked her name, but this is the munchiest shit I've ever seen on my personal feed.

No. 377631

>>377545
I hate when munchies say they were unconscious…NO, you were fucking asleep probably from all the fucking drugs you've begged for and load up on whenever you please.

Sage for wanting to slap every munchie

No. 377634

>>377546
Wait….is this the Chloe that recently argued she's never brought up anything mito related???

No. 377640

I've recently gotten interested in Jacquie's videos. Some Harlow videos were circulating around FB a while back for me and people were very skeptical.

In her lastest vlog, she comments that the eclipse isn't happening and "We'll see if it happens" and comments that people watching the eclipse with glasses must not be seeing anything. She's a fucking idiot. They were in a zone of partial eclipse and you can observe it. She's so fucking stupid.

What really tips me off about Jacquie is her utter lack of any personality outside of being sick and whatever can kill time on the TV. Her life seems completely void of hobbies, interests, even sedentary ones.

No. 377643

>>377625
What the actual fuck. I don't know what else to say lol

No. 377647

File: 1503459645624.png (224.82 KB, 750x1183, IMG_2154.PNG)

Thoughts on this one?? Came across her insta and noticed she posts pic from Snapchat, which the munchies I know IRL always do…but could just be a coincidence. Anywho she's not too OTT (I think?), but the hashtags OMG

No. 377650

File: 1503459794747.png (180.44 KB, 750x1116, IMG_2155.PNG)

Vog mask? Check!
Neck brace? Check!

No. 377652

File: 1503460080646.png (Spoiler Image,171.71 KB, 750x1073, IMG_2157.PNG)

In case you're interested…,

No. 377654

File: 1503460308943.png (Spoiler Image,237.66 KB, 750x1139, IMG_2158.PNG)

I'm sorry, but it seems your snapchat filter didn't work this time, your face just looks normal. It seems your double chin is showing though.

No. 377659

File: 1503460665632.png (Spoiler Image,166.44 KB, 750x1080, IMG_2159.PNG)

Omg fail. That's the fibula actually.

No. 377661

File: 1503460760370.png (144.92 KB, 747x1017, IMG_2160.PNG)

The comments haha

No. 377662

File: 1503460868833.png (212.27 KB, 750x1133, IMG_2161.PNG)

Woah sharing fellow munchies

No. 377668

File: 1503461322147.png (215.35 KB, 750x1114, IMG_2162.PNG)

fyi

No. 377673

>>377640

In some of her older IG posts she seems to have some level of personality. She would actually make allusions to having a life beyond being a munchie. She was also surprisingly active which is hilarious as she needs a grandma walker to go to the pisser now.

She really went fully delusional in record time. It's bizarre. Her posts from ~8 months ago seem really lucid. She seemed really normal.

Some people are just born to be munchies I guess.

No. 377674

File: 1503462296804.png (139.68 KB, 750x1074, IMG_2163.PNG)

"#servicedog" when in another post she said: HE IS NOT A SERVICE DOG.

PS, this is the girl with the port between her boobs in case you're wondering lol. She also made that poop post

No. 377679

>>377668
"Eating lots of fiber…….. I'm also not eating much"

No. 377680

>>377597
Holy shit this is gold. Anon I like you

No. 377683

File: 1503462806254.png (245.83 KB, 750x1077, IMG_2164.PNG)

Aww look at her owie

No. 377690

File: 1503463686276.png (152.72 KB, 749x1160, IMG_2166.PNG)

Another one that sounds like they're trying to hide their ED under a pile of self-dx

No. 377691

>>377640
I was just going to ask if anyone had noticed she was searching for the eclipse. She mentioned that it just must not have happened in her area.
I am still stunned at how simply stupid some people are.

No. 377693

>>377690

my first thought was "what the heck does the turtle emoji have to do with EDS"

No. 377696

>>377693
as much as the tiger emoji has to do with TMJ

No. 377704

>>377690

not WKing at ALL, but she does have a really shit case of anorexia but seems to enjoy all her medical toys and hospitalizations, documenting everything meticulously. i followed her for awhile for the sheer milk of everything prior to finding this forum, and contemplated posting her here several times. if you go back far enough she has full body pictures and is deathly ana-skinny, has been admitted for sepsis several times, has tubes, etc. but seems to follow typical munchie behavior, ie vog masks, naming medical devices, bringing toys into the hospital, numerous doctors, shit like that. quite an interesting one. reluctant to take pain medication but claims to be 10/10 at all times.

definitely check out underweight_spoonie and spoonie_from_serbia. magdalena was featured in a post a few up, they're identical twins who were up until now diagnosed, not quite sure now munchie they are but they're definitely OTT. had to stop following them when i transitioned from spoonie to regular account because it was just too much and i needed to cut the cord from spoonies entirely.

No. 377705

>>377704

shit i mean the twins were undiagnosed, this is what i get for posting after i've taken my meds

No. 377711

>>377704
They are 100% anorexic and so is happy guts. I've reported hg's pictures in the past and I know others who have too but Instagram never does anything and she bitches about it, so why bother. She pisses me off so much. Why not just admit you have an eating disorder rather than a physical issue?

That's how I feel about Jaquie and chloeschronicles too. Jaquie's spiral makes way more sense if you think of it as a desperate need for control (I know that's not all that EDs are, reformed anachan here, but it's often part of it) and a morphing from conventional purging into munchieism. I wonder if she got caught in bulimic behaviors and this was her out? "Oh no, I'm vomming because I'm SO SICK." Chloe Leanne is clearly an anorexic with conversion symptoms at most. The worst thing about both of them is how they're bleeding their fans dryer than Kelly is the blood banks of Canada. I don't know how they can sleep at night, either of them.

No. 377722

>>377711

yeah the twins claim they don't have an ed and claim they can't gain weight due to connective tissue disorder. bullshit.

No. 377738

>>377722
the only CTD that /can/ affect weight gaining ability is Marfans, which is very rare. Sounds bullshit.

No. 377741

File: 1503471133706.png (208.73 KB, 750x1184, IMG_2171.PNG)

Finally getting what she wanted! How I don't know. Lol but she thinks that'll be her last pic with nose hose…unless they leave it in till she's recovered from her surgery.

I'm so fucking angry that they just get whatever they want like this just for fun

No. 377742

>>377738

their mother had marfans as they say, but she was also undiagnosed so they aren't entirely sure. but having marfans and surviving an identical twin pregnancy? is that even possible?

No. 377744

>>377742
considering the complications with regular single fetus pregnancy and marfans, it's unlikely unless it was a very mild case. It's not hard to diagnose marfans (simple genetic test) either you have it or you don't.

No. 377748

>>377744

that's what i was thinking, too. they've posted pictures if you go back on their feed and she looks to have common symptoms but the girls don't have marfans or EDS, just CTD as diagnosed by a geneticist. and only one was diagnosed, as they're identical and the genticist took a sample from one twin

No. 377767

File: 1503473731791.png (187.06 KB, 750x1202, IMG_2173.PNG)

>>377722
Yeah can't claim they don't have EDs and then post body pics like this..

No. 377774

File: 1503474490718.png (148.21 KB, 750x1226, IMG_2174.PNG)

How did she take a picture in the ambulance if she was convulsing and experiencing auras (at the same time)???

No. 377776

File: 1503474687963.png (195.05 KB, 750x1198, IMG_2175.PNG)

She's still confused yet posting on IG……. definitely OTT, every time she has a migraine she says it's the worst attack she's had, every.single.time.

No. 377790

File: 1503478336507.jpg (87.74 KB, 768x768, IMG_2176.JPG)


No. 377814

Why do so many IG spoonies have "undiagnosed" or "medical mystery" in their bios? What are they undiagnosed with? The ones who say "undiagnosed" always have it written followed by a list of about 8 things they say they're diagnosed with anyway….

No. 377847

I don't get Chloechronicles. She's clearly angling for an EDS dx and all her apparent symptoms match up, but EDS is genetic? Does she's seriously think she can pretend that's from vaccine injury? At least chronically ruby has symptoms which 'COULD' be vaccine injury (but unlikely are).
It's like saying you fell over, broke your leg and gained congestive heart failure…

No. 377852

>>377847

A lot of what she says makes no sense. How did she get home if she was unconscious? Or does she mean she fell asleep with exhaustion in the car?

No. 377853

File: 1503488153447.png (69.18 KB, 671x320, IMG_1477.PNG)

because someone with vEDS is gonna look up to this smirking ugly waste of space?

No. 377854

>>377853

"Strong and positive"

The only positive thing about Carmel is her positive attitude towards getting a tube.

No. 377856

>>377847
she says alllll over the internet that she has EDS, from a vaccine. Vaccines don't change your DNA dumbass.

No. 377858

>>377814

Realistically speaking, there aren't many medical mysteries. I work at a tertiary referral hospital for, among others, gastro. So we get the people who show either unusual symptoms or inconsistent symptoms there are only a few ways to really be a 'mystery': novel contagious diseases, the rare hitherto unknown genetic disorder or the sick patient who has no subjective issues but a vast range of objective complaints that point into all directions. The last group are inevitably Munchies.

In my field, I've maybe seen two new conditions that weren't solidly known to us when we went to med school (a decade and a bit ago). They don't just appear in otherwise healthy young women who show all signs of histrionic personality disorder and an obsession with their illness. They're not medical mysteries, they're instances of a widely documented phenomenon - health hysteria and good ole' FII.

TL;DR: if I find bacteria from your poop in your line culture, you're not a medical mystery, you're a sick fuck who is injecting her own shit into her IV line so that we can risk future populations and spend vast amount of money treating it with abx of last resort and hugely expensive novel antibiotics. Your fellow insurance policy payers thank you for your rising premiums.

Because let's get it straight: every unnecessary wheelchair, tube, line or day in hospital means either a premium increase or someone being denied the care they need. Do they care? Fuck they do.

No. 377859

>>377856

That's basically the anti-vaxxers level of intelligence.

No. 377866

>>377853

Jealous, haha. I mean, having survived leukemia then gone on to finish med school and practice full time, I'm bursting with jealousy about a girl who bravely endures a self inflicted hospital stay to get the toys to keep up with the other spoonies. Jealous as fuck.

I don't get how these people see themselves as heroes. I mean, there was nothing heroic about me getting sick and then getting better, it's what everyone would have done, and there's nothing heroic in their big-ass struggle that they themselves ought to know is largely fictitious. I sometimes feel they're the offshoots of this stupid heroising of sickness we started with shit like 'cancer warriors' and 'fighting cancer' and all that. When you're sick, you get treatment and you try to survive it. There is no big time for a heroic choice, to decide whether to run into the burning building or not. I get that little kids with big grown-up diseases may benefit from the rhetoric, but it's given us this bunch of Munchie shits who are after just that heroic attention.

No. 377869

>>377858
Most current medical mysteries are either unknown chromosomal abnormalities which would be devastating from birth, or infectious disease stuff. Not clearly known conditions

No. 377870

>>377866
What you're saying runs along the lines of disabled people being inspirational for shit everybody else does, like getting out of bed, or whatever bullshit, it doesn't make us inspirational and it's a really dumb rhetoric, like with "chronic illness warrior" or "fibro fighter" or whatever the latest buzzwords for making these people and their fake or exaggerated illnesses larger than life and oh so very brave/

No. 377871

>>377870
Plus if you listen to any actual disabled public speakers/role models they all say that they hate being called inspirational just for existing. They want to be inspirational for their actions regardless of disability

No. 377873

>>377871

Which is what makes people like Carmel so infuriating. She wants ass pats for coloring stupid pictures and grinning like a twat whilst in a hospital bed for a psychological problem.

No. 377880

>>377873

…for which she consumes scarce rresources (beds) so that she can be instagram famous without having to or know anything.

No. 377881

>>372040
>>377776
These people love to have convulsions don't they? even if it's just shaking from pain/fever, no, everything is a convulsion and it must be epilepsy!! omg so annoying
sage bc rage

No. 377890

>>377870
you forgot "spoonie strong". barf.

No. 377891

>>377873
you mean she wants ass pats for "colouring in".

No. 377896

>>377891
yet another child's activity popular amongst adult "spoonies" next they'll be wearing diapers and need a dummy for their chemical sensitivities instead of a vog mask and all be using prams to be pushed around everywhere.

No. 377916

Kek you seen this? The constant validation Nicole is seeking is sickening. I flooded her with lots of hate and it appears she's taken it all to heart and claims we are bullying her, how pathetic do you get!

https://onemorestep2.sarahah.com(USER HAS BEEN PUT OUT TO PASTURE)

No. 377922

>>377916

Hi Kelly.

No. 377937

>>377814

Undiagnosed or a Medical Mystery because there is nothing to diagnose. Because they make up symptoms or obsess over every little ache/pain/slightly abnormal number (I would bet that if you ran every scan/lab on a normal healthy person you would run across some abnormalities that are ultimately meaningless). So while undiagnosed or medical mystery means no doctor can give you a diagnosis or figure you out because there is nothing to diagnose or because your made up symptoms don't match any known diagnosis. However, to a munchie, undiagnosed or medical mystery seems to mean "I am so special and so super sick that I am in a league of my own"

No. 377939

If I watch Jacquie "forget" her blanket on the other side of the room, my eyes might roll out of my head. If she is so focused on "making it to the couch" before she "passes out," maybe just keep the gd thing on the couch in the first place.

Pretty sure the dog is over it, too. kek

No. 377941

>>377916
Where does it say she's being bullied?

No. 377946

>>377939
Mhm. Don't you think it's interesting how just a couple of months ago in that video with janiece she was WALKING at disney but now she can't even walk to the couch?? How did she decline so quickly? And by what? It makes no sense. It's funny how you can go back in her videos and see.

No. 377949

>>377939

Not only that but if she really DID pass out, why go downstairs when she's alone just to take a nap? She was already in her frign bed. Stay in bed until you feel better or someone comes home. And did anyone notice this just happened to occur when she was alone? Again? All of her major issues here lately seem to occur when she is alone in the house or everyone is sleeping. Judd on couch and Mom in chair? Everything is fine. Mom leaves and Judd goes to work? Erma Gherd, drama. Just putting it out there but I have also noticed she gets a ton more views when "Service Dog" is in the title of her YT video. Just saying…

No. 377955

what is with jaquie's squinty face when she's suddenly tired???

No. 377958

>>377896

A lot of them already do. But no, the next Munchie fashion accessories will be oxygen and/or CPAPs/BiPAPs worn all day like people with end stage lung disease and certain neuromuscular diseases affecting the lungs do. You can already see some angling for them.

No. 377962

>>377949
No one who actually has pots passes out as much as jaquie claims to. And the only reason she could possibly get that worse that quickly is if she did it to herself by not doing anything and getting deconditioned. Which is fairly impossible in that amount of time unless someone was totally bed bound. Jaquie can walk and eat and not pass out just like a normal human being. The only thing wrong with her is her obvious mental illness.

No. 377963

>>377937

Correct. The term is 'incidental findings'. Run a full body MRI scan and you're guaranteed to find a spot somewhere. Run a lot of non-specific blood tests and there'll be something off. One of our teachers in med school had us all go for full CBC + CHEM20 + LFT, bone profile etc. None of us (50 people) had a perfect blood test, and the class included everything from chubby kids to former elite athletes going for a career in ortho. Nobody's bloods or scans are perfect, and we know that. That's why we 'clinically correlate' the findings. For instance, Kelly has those spots that she thinks are proof of her having MS - but correlated clinically, she has at best some minor symptoms that are non-specific and which her histrionics weave a whole complex story around. Equally, the meaning of a slightly elevated LFT is different between, say, me (doesn't drink, doesn't take any liver-damaging drugs) and an ICU patient on a hundred medications with suspected internal organ damage.

No. 377964

>>377958

I already get a lot of munchies asking me where I get my oxygen tanks because they are out of breath too because their pots is "so severe". The last thing you need with pots is more oxygen as most people with pots have hypocapnia.

If you really need oxygen a doctor will prescribe it.

They also hate that they can't smoke or wear lip balm while on oxygen. If you truly need the oxygen both of those are not something you are upset about.

No. 377967

>>377962
Pots is not the life sentence munchies make it out to be. Yes, the symptoms can be annoying and incredibly frustrating, but it doesn't limit any activities (the more active you are, the better, in fact). Even severe pots that requires medications and infusions doesn't limit anyone's ability to lead a completely normal life. A wheelchair or needing someone to get things for you is unnecessary except in only the most extreme cases, of which jaquie is most definitely not.

No. 377969

>>377946

Using mobility aids is a self-fulfilling prophecy (which is why I loathe them). You might have experienced this when you had a broken leg: after six weeks in a cast, your leg muscles were so visibly atrophied, your legs looked freakishly uneven, right? Walkers/rollators modify your gait pattern from the normal upright walking pattern to a weird toe-striking walking pattern. Wheelchairs are even worse and I find it borderline criminal to prescribe them for POTS but then not provide them with cardiovascular PT and compression leggings. You see their feet swelling from the pooling as their heart reconditions. The human cardiovascular system doesn't consist of the heart, it also consists of your skeletal muscles that are necessary for keeping blood pressure and circulation up. POTS patients should be given graded physio to help them build more muscle, compression gear and shitloads of Florinef, not powerchairs. MUGA/sestamibi scans of the hearts of quadriplegics over time show that the heart rapidly loses its ability to keep up as the skeletal muscle can't compensate anymore - that's why you have to gradually sit up a quadriplegic, lest they lose consciousness from orthostatic hypotension. The same goes for braces: braces weaken the limb, so it will be less stable, underlining the need for braces. If you are healthy and if I gave you a pair of AFO braces to wear for two months, you could not walk without them at the end of the two months.

TL;DR: most of the wheelchair and orthotic prescription practices are borderline criminal.

No. 377970

>>377955
It's because she's getting fat and has bulima face

No. 377972

>>377939
I still don't understand why she doesn't put a blanket on the couch or under the coffee table. Plenty of people keep blankets draped over the couch or an arm of it. Then she'd never forget it.

But she also wouldn't have another Harlow trick that she can film. Of course.

No. 377974

>>377969
Yes, THANK YOU! This is exactly it. The Mayo Clinic even refuses to see and treat pots patients who won't follow an exercise regimen. Any good doctor for pots (and eds for that matter) won't prescribe wheelchairs or braces for exactly this reason.

No. 377975

>>377964

…and panic attacks/anxiety/hyperventilation, all of which are made worse by more oxygen.

(Short explanation: these conditions induce cerebral hypoxia and thus fainting etc. by inducing vasoconstriction in the brain through high O2/low CO2 in the blood (hypocapnia). Paradoxically, lots of O2 in the blood and little CO2 means tight cerebral blood vessels and low tissue O2/high tissue CO2. CO2 is a potent cerebral vasodilator, which is breathing into a bag, which will contain less and less O2 and more and more CO2 helps panic attacks - it dilates the brain's blood vessels and perfuses the tissue and you're all better.)

No. 377976

>>377969
We all know jaquie's doctors are total irresponsible idiots who prescribe her things she doesn't need (like her precious purging button).

No. 377979

>>377974

The overwhelming majority of bracing I see is self-prescribed.

Example: if you see someone with those knee braces, Aspen collars, non-shell back braces, black/tan wrist braces: those are all commercially available to anyone. ANYONE.

(K)AFOs, shell back braces, wrist braces, etc. are not.They need to be made to measure, and the process is not simple, and is only done on medical prescription. Very few spoonies have one, and man, are they craving them! Powerlevel: I have a few benign brain and spinal tumours that press on nerves so I can't lift my feet properly. I was given a really cool AFO brace to compensate. As I see patients, some of whom have or claim EDS, their first question if they catch a glimpse of it is 'how can I get one of those'. That's when I make a little 'F68.1/2dy g/n?' remark on their chart.

No. 377981

>>377979
that's irresponsible of you as a physician to note factitious disorder on their chart unless you thoroughly evaluated them after they make that statement to you. some people really do want options to feel better and as laypeople they don't know it may not be for them. sage for being an asshole. sorry.

No. 377983

>>377962
Why doesn't she wear compression? Some pots patients pass out frequently (not as much as she claims but more frequently then others) but they wear some form of compression! Socks, stockings, hose, and best of all ab compression (probably won't work when you have went and punched holes all in your belly) but some form of compression is the first line of a pot's patients defense!

No. 377985

>>377981

Note the question mark. By law, if I ever suspect any condition, I have to note it. If I no longer feel that suspicion is warranted, I also have to note it. Also, I'm hoping that despite being an autistic fuck, I know people enough to be able to differentiate between 'oh, I hope I will get better with that, what's that?' and 'shiny eyes wow neat toy! how i can haz?' :)

Also, I am a ridiculous asshole. I've sent more people to psych referrals last year than the entire orthopaedics department. I'm a neurogastroenterologist, so when they came along, they knew that they bargained for a doc who will look at their GI problems from a neuro angle, and that includes the connection to the psyche. I don't often suspect factitious disorder, by the way. Perhaps once every other month.

No. 377986

>>377981
im sure physician anon isnt giving us all the details. cool your jets. thats the amazing thing about these fakers is that they know what they are doing. so stop telling anon how to do their job.

No. 377987

>>377983

Why do NONE of them wear compression? I mean, I don't know, it's not my field but from what I see, there are excellent studies and quality evidence for them, and yet I have seen zero Instagram potsies wear them.

No. 377988

>>377976

I don't think they are. I think she doesn't have a single hospitalist or general internist or family medicine practitioner who would hold the threads together. Her PCP is acting as a moderately good gatekeeper, but not a coordinator. So nobody sees the whole image, none of her doctors - ironically, we might see a more holistic image of the Munch than any of her individual physicians. And so she can tell the gastronaut her story of gastro woe, etc. and she'll get a very isolated treatment that's all about her stomach. I think it's partly the US system, but it's not much better in the UK. Munchies can prosper because this fragmentation and lack of communication between physicians.

No. 377989

>>377986
dude i'm in the medical field too relax. saged for my assholeness.

No. 377991

>>377985
You're doing way more than any of those munchie's doctors who allow them all the ridiculous toys they have, or who even cut unnecessary holes in people who demand their sweet, sweet tubes. Psych disorders are way more common than people realize.

No. 377992

>>377987
It's fucking stupid to not wear them idk how u couldn't. And it definitely is possible to pass out quite a lot . But once you LEARN what to avoid like a smart person should you start to lessen the passing out. I've had pots for years, never go anywhere without compression stockings up to my belly button, use a wheelchair but I was not prescribed without PT and strict exercise regimend. So even though I'm using a wheelchair I exercise every other moment I get

No. 377993

>>377985
that makes sense thank you for explaining when you really didn't have to. i'm cool with being wrong about you. my bad!

No. 377994

>>377987
I'm surprised as well, since there's so many colors and patterns available. Probably because they look too much like normal socks and tights, not speschel enough! Although anyone who lives where I do, I understand, it's hot as fuck most of the time

No. 377998

>>377994
ive seen a few munchies post a pic or two of them wearing fashion compression tights before theyre never seen again. i imagine when you dont actually need them, having compressed tissue doesnt feel good after awhile.

No. 377999

Jaquie can't bend down to get a blanket or pick up dog toys yet somehow she managed to get up and down off the floor 3 times during her training session with Harlow in today's video.

Also, wasn't Harlow trained to alert to her narcolepsy? She claims that Harlow was alerting to a POTS fainting spell and that Harlow knows she will faint 15 mins ahead of time. She has zero understanding of how POTS works. Not a medfag so correct me if I'm wrong but Harlow can't alert to orthostatic hypotension because there is nothing wrong with her until she stands up. I guess Narcolepsy wasn't interesting or special enough for her so she's stopped advertising it.

No. 378000

>>377993

Hey, you had a legit point. Labelling is a dangerous, dangerous thing and can divert care on the wrong pathway. And I am of course not a shrink so the most I can do is to 'suspect' and refer. Thanks.

No. 378001

>>377999

> Not a medfag so correct me if I'm wrong but Harlow can't alert to orthostatic hypotension because there is nothing wrong with her until she stands up. I guess Narcolepsy wasn't interesting or special enough for her so she's stopped advertising it.


Correct(ish). Harlow may be able to alert her that she has low BP making her more prone to orthostatic hypotensive/tachycardic episodes, but (1) she's supposed to be basically always in that state, (2) indeed, she cannot alert her 15 minutes in advance unless she's Harlow the Magic Dog who Sees the Future in Advance. Which she isn't.

Bottom line, I concur with m'learned friend, Jaqui has no fucking idea of what she's talking about.

No. 378002

>>378000
In my opinion, everyone should have a regular psych evaluation, since there are so many undiagnosed people out there, who have things like depression and anxiety and eating disorders, and would really benefit from early intervention.

No. 378004

>>378002

I personally wouldn't do that, mainly because of the same reason I find full body MRIs a dumb idea. None of us are psychiatrically perfect. I thought I was perfectly fine, until on a whim I filled out a depression inventory (not one of them online tests, but the BDI, which is what clinicians use), and it turned out I'm on the margin of being severely depressed. Whereas I thought I just had an overall melancholy attitude. Had I had this emerge from an official assessment, I would potentially experience the illness just because I am/was dwelling on the illness. Also, too many psych assessments make Munchies learn how to fake being psychiatrically fine and credibly deny eating disorders and clearing the way to the promised land of Squirting Disgusting Soybean Extract Based Emulsion Formula Into Your Intestines Through A Plastic Tube Live On Instagram.

No. 378007

>>378001
Here's the deal with passing out with pots: you feel it right before it happens. Your heart rate doesn't shoot up without you feeling it, and you can tell you're going to pass out by how your head feels. Then you sit down, and nothing bad happens. It doesn't take 15 minutes, and a damn dog won't know before you do.

No. 378008

File: 1503510143401.png (860.44 KB, 750x1334, IMG_5155.PNG)


No. 378010

>>378004
That is a good point that I didn't think about. I'm sure there are plenty of doctors treating munchies that appear to actually be sick, when really the munchie's just gotten very good at faking (or causing) symptoms.

No. 378014

>>378008
Um, doesn't anyone remember her previous GES that said she was TOTALLY FINE?!? You don't go from not having GP to suddenly being unable to eat anything. She's an anachan, always has been, probably always will be. She just wasn't getting the sympathy she wanted from a mental illness, so she decided to make it a physical one instead.

No. 378016

>>378014

Also if she truly has GP as severe as she claims she does there is no chance in hell she is able to drink almost an entire bottle of ensure in one go!

No. 378019

>>378014

Probably because she got in trouble with the ED doctors there (I believe) and kicked out of whatever program she is in. She still wants mamabear cuddles so she has to induce a new illness so she can find a new mamabear

No. 378023

>>378000
exactly! so many of these girls want the labels but what happens when a legitimate doc like you gives them one they don't want? can't pick and choose now can we? you made a lot of sense for sure.

No. 378025

>>377916

Hey Kelly! Preeeeetty sure flooding her with hate is, in fact, bullying. Bragging about it just makes you look equally as pathetic seeking validation kek

No. 378026

>>378008
that pose, blanket, wheelchair, NG tube.. poor me, I can drink 2/3 of an ensure bottle in one go, so sick and speshul
why do all of these munchies go for the same illneses?

No. 378041

File: 1503513768556.png (1.9 MB, 750x1334, IMG_5157.PNG)

How on earth is she breathing if it's still stuck in her throat??

No. 378043

>>378041
Pills can't get 'stuck' in your throat… I was actually reading about it the other day. I think whatever I read said it's near enough impossible and any feeling in the throat is psychosomatic.

No. 378047

>>378041
Why can she now eat once out of the hospital lol

No. 378048

>>377967

Not whiteknighting but pots, LEGIT pots certainly does limit a lot of activities for a lot of people. Not the basic activities of daily living like munchies make out (aka getting a service dog to push buttons for you and get water for you, getting a wheelchair/walker/rollavator) but it can be very limiting. Of course an illness being limiting doesn't equal life threatening or technically serious. But a lot of people who truly have moderate to severe pots don't live "normal" lives. the way these munchies exploit every little thing just makes people more skeptical of people who are genuinely limited by pots and WANT to be living their lives normally, not use it as a sooper spechial crutch, and it's not right.

No. 378051

>>377858

They care only to the point of SJWing about how "I am a prexisting condition" and pretending they know anything at all about how the healthcare system works and how they are playing into it

No. 378055

>>377999

She also failed to mention her epilepsy in connection to today's flashing lights on that stupid helicopter. I guess that's not in style anymore?

No. 378058

>>378008

Makes me wonder if they decided to try the liquid GES.
I'm sure she cried enough after her normal GES, they are shutting her up by doing a liquid GES while she plays it up as her GP is so severe she can only drink a little.
GES studies are not an exact science. There isn't really a right or wrong way to do it..its not regulated. Like an xray, it is either normal or it's not.
The GES is done differently at each center sometimes down to different Drs. The meals are different, some are done standing, laying down, elevated laying down, 2 hr straight then over or a single picture at 30 min for next 4hr, some places rob you and go for 6 or 8 hrs (which is still not regulated well..some say it makes no difference, can be calculated at 2 hr, 8 he gives more depth, etc)
That causes irregular results obviously and I think that fact is why so many anachans go for GP.
But they are idiots.
I'm curious what she will say about her new results.
It kills me she says "to see how severe my gp is"
Gag
I'm really curious about if they are changing the ges to a liquid GES or if they kept it for meal ges..liquids go faster

No. 378069

>>378023

Not pretty things, actually. Merely mentioning 'psychiatric cofactors' tends to incite furious rage from parents, even if the disease involved is very well known to have psychiatric correlates. But no, every parent is sure they baby bean is perfect, which is why I am fucking glad I mainly work on adults.

But yeah, I haven't seen many people take the message gracefully. There were a few exceptions, for sure. One was incredibly scared she had intestinal cancer. When I dx'd her with conversion disorder after every test came back negative, she flipped her shit. So I sat down, and we went through all the films, all the scope videos, all the scans with her, showing that she was indeed 100% ok. A year later, I got a letter from her, saying she hasn't had a single reoccurrence of the symptoms since then. There are some magical instances, but mostly, suggesting that the patient doesn't have a honest-to-goodness physical disorder is inviting a shitstorm. Not once have I first briefed hospital legal, then had a rep from legal and my boss (head of GI) present in the room, and it still ended up in a shitstorm.

Sage for diary.

No. 378077

>>378058

I'll be honest… I'd phase out the GES as a screening test.

One, how bad the GES is does not seem to correlate with patient experience of severity.

Two, GES is easily manipulated. Not going to say how, but suffice to say there are OTC meds that get your stomach to a state of almost absolute stasis.

Three, any GES done outside the referring hospital is a crock of shite. I haven't seen a radiology facility who do GESs ask the patient what meds they are on. Even if they do, the best they can do is to ask the patient to stop taking them 3 days before the test, but what's the guarantee of adherence? And frankly, testing for cholinergic levels is pointless. A facility I know took temperatures and checked for mydriasis, but that's hit and miss - some people have naturally wide pupils and some people can have buttloads of antichols and still be barely above normal bodily temperature.

Bottom line, GESs are way too easy to cheat. A negative GES ought to rule out GP, but a positive GES should not necessarily mean it's GP. A GES conducted under medical supervision with the patient being under 3-day 24h observation would be ideal, but is unlikely to be feasible.

No. 378078

>>378008

The cancer kid hat shtick is making me want to punch the screen. Every. Time.

No. 378106

>>378078

I know. It makes me sick. She is not a nice human being.

No. 378122

>>378041
>>378043

Pills can get "stuck" in your throat - but it is very rare. I have witnessed/given at least 100 modified barium swallow studies and I think I have only seen a pill get "stuck" once. And in that case the person has a slight structural abnormality and weakness/sensory loss due to a stroke. The structural abnormality wouldn't have been an issue had it not been for the stroke causing the weakness. Even then, they were able to eventually able to swallow the pill with some maneuvers.
Usually, the feeling of something stuck in the throat (globus sensation) is not actually the result of anything stuck. The more common cause is reflux. In this case the cause is likely just pure imagination.
If there truly was something stuck in her esophagus and not her trachea then she could still breath. And in this case its because she is straight up making things up.

No. 378128

>>378122

She probably has a bit of acid reflux, like many of us. Munchies make it into a disease. The rest of the population take an antacid.

No. 378147

File: 1503524482274.png (858.74 KB, 750x1334, IMG_5159.PNG)


No. 378148

File: 1503524733136.png (4.15 MB, 1242x2208, IMG_7510.PNG)

She's been hankering for a pic for her woo treatments for a while now so clearly those emojis are secret tears of joy.

No. 378151

>>378147

Kill me now. I was the sa,e age when I went through cancer, I think (I don't m is how she is so I'll guess 22). The only support I had was a weekly visit from a lovely chaplain plus getting the anointing before I started chemo. So please someone explain why the fuck a grown ass adult is playing cancer kid in a paediatric hospital complete with music therapy?

No. 378152

>>378148

There's no such thing as a permanent PICC line. PICC lines are all temporary.

No. 378157

>>378147
She is a disgraceful human, pretending to be a child, using resources for actual sick kids. How do they not see through her bull?! She needs long-term intensive psychiatric care.

No. 378158

>>378148

Can woo-woo clinics insert lines?

No. 378179

>>378148
>>378008

I'm pretty sure this is an NG tube.

No. 378194

>>378179
It's definitely an NG. There is nothing wrong with that woman's gastric motility. Her tests were normal. They are probably feeding her because she refuses to eat due to her anorexia. She's a liar and tries to pretend she's physically sick.

No. 378198

>>378158

I'm sure some can and do.
The first time I was discharged with a picc the home health head nurse came out the first time and told me that I wouldn't see him again unless I needed a new picc for whatever reason. He would do it at my house.
I have animals and hearing that just freaked me out.
Thankfully never needed that but there is no way in hell id have ever let anyone do that..but some people do..sometimes they will place a picc bedside in hospital(how my first was done) but at least then they have everything needed and available other resources in case needed.getting it placed in IR is ideal and way safer.
Maybe her woo woo clinic will give her a nice shiny ambulance ride to a real hospital for a picc (which is far from permanent)
I don't get why they don't just use a midline on her if she's honestly blowing through IVs enough for them to consider a picc..but I wouldn't be surprised if that's B.S., just her tired of a "boring IV" and needing the attention and wanting to make those sweet special I'm so sick picc line photos.

No. 378201

File: 1503530843040.png (581.74 KB, 1536x2048, IMG_3044.PNG)

"Oh noes, I totally accidentally lost weight and hehe, I'm so skinny I wear children's clothes."

That's an eating disorder!

No. 378205

File: 1503531193666.png (1.54 MB, 1080x1920, Screenshot_20170823-182452.png)

Beautiful strained collarbones, errrr, hair, beautiful new hair you can't really see..

No. 378207

>>378205
This looks like a really bad meth-fueled mugshot.

No. 378210

File: 1503531817283.png (8.28 KB, 296x243, aubreyj.png)

>>378201
she definitely likes to remind people that she can fit into kids clothes. i laughed when i saw babybear commented on this photo
>>378207
i was just about to comment that lol nothing like a little road meth mugshot to show off those totes collarbonez

No. 378214

>>378205
Her overbite makes me cringe like damn someone give the girl braces. Both her younger sisters had theirs corrected (one of them is ridiculously pretty) and honestly if Ariana had hers done she wouldnt look half bad (you cant see it in the picture but she has amazingly blue eyes)… but no. And so we are subjected to more overbite-induced-grimacing.
Im also not convinced that she was ever that underweight. There is a lot of pushing her collarbones forward and taking photos of her face from waaay above her head, but lots of the photos that include her legs she is decidedly not-spoopy in. And certainly not ~OMG MUH ANOREXIA IS SO SOOPER SRS I NEARLY DIED~ as she would have people believe.

sage for being a bitch

No. 378229

With Jaquie I've noticed that as soon as she gets a newer, more extreme medical gadget/device, she loses some of her older less exciting ones. Her earlier blogs used to feature her endlessly having to wear giant headphones in public because of her sensitivity to noise or giant post cataract surgery sunglasses because the sun was problematic for her. I have not seen either in months. She was obsessed with the infusions and banana bags for her POTS when those were new and now she rarely mentions those because it is all feeding tube and all wheelchair all the time. What happened to the glasses and headphones? Surely the feeding tube didn't cure her noise and light sensitivity issues?

No. 378231

>>378214

I've known her for a long time..she is more than a monster to others in treatment and out. I have watched her attack another until she was reduce to just crying..and not show any concern what so ever.
She was at one point pretty small, but she was also pretty young and growing so she looked way smaller than she really was..she had the stupid positioning down back then! I don't think I've met anyone as selfish and self absorbed as her.
90% of all her pictures are like you said extremely stupid for ana points.
I wish I haven't known her for so long because her story is so inconsistent, full of lies and manipulation..her story changes, she reposts pictures and she has stolen many pictures from others.
Her sister is beyond beautiful. Both are, and her brother (who also had braces. Ariana did too but didn't fix her underbite due to anorexia)
She went on a rant a while back about wishing she could dye her hair but her anorexia was so severe she couldn't. Wtf? She got called out on that one and pitched a fit and eventually was blocked from the support group after several people reported her for that type of behavior as well as attacking other members. (As in you're too fat to have an ED. Look at me, I'm dying)
She turned down a full scholarship to Baylor college to focus on her ED (treatment hop)
She's a closet eater and will do whatever it takes to be the center of the world.
Her personality is honestly just horrid..id put hers up with ash..def. the black sheep of the family. It is sad because she had as much potential as her siblings but fell through and I think watching her siblings be amazing at everything and go so far in life is making her feel left behind and that fuels her on going super severe battle of anorexia (notice she leaves out a lot of the other issues that go with an ed?)
I do hope she gets a grip on herself. I hope this is it and she won't be so intimidated by having a life with her now seeing how far behind she is in real life..i hope she uses it to motive herself to move forward in life and not use it to go back into her super special deadly anorexia

No. 378232

>>378205
I knew she looked familiar! She's like a less crusty looking version of nevertrustmysmile123, aka Jackie the cow stalker. '

No. 378237

>>378232
lol so jaquie wants to be mary and nevertrustmysmile123 wants to be jaquie?

No. 378262

>>378229

And now that she's got the feeding tube, she has magically stopped having her "angioedema attacks". She did mentioned mast cell disorder again in passing in a recent vlog even though she was told by her doctors it's just angioedema (aka swelling). That diagnosis wasn't unique enough for her and she had to move on to GP and toob drama.

Next she'll move on to her custom wheelchair and her supposed MALS (probably will weasel an unnecessary surgery out of that one along with some EDS delayed healing drama)

No. 378266

>>378229

She was originally saying that the noise set off her cataplexy but then she got that autism diagnosis (which I don't doubt) and now it's part of her "bring up my SPD at every opportunity". Strange that her guy friend also got an autism diagnosis at age 20 around the same time - which munchie copied which?? She has also said that laughter and loud noises set off her cataplexy but there was plenty of screaming and laughing and being starlted in today's vlog w/ the helicopter and no cataplexy.

No. 378283

>>378266
Honestly that's the only diagnosis she has that I believe

No. 378285

Funny that now Carmel isn't in the hospital she's not daily shit posting with her nasty grin. Also if pills were regularly getting stuck in her throats wouldn't there be ulceration from the pills breaking down where they shouldn't be?

It frustrates me so much when other people with POTS do nothing to change their lifestyle. Unless you really can't, exercise, fluids and medication usually improves your quality of life 100%. Stop whinging and using a wheelchair when you don't need to.
If you're going to pass out from POTS boy do you know you're going to pass out. It's not pleasant and you sit the fuck down. Ugh. A dog cannot tell you 15 minutes prior. It's instantaneous nearly.

No. 378296

>>378285

I am completely shocked by how many unscrupulous doctors there are in the US who will place ports for saline for POTS. It would be different if these girls were bedbound and have tried everything. However, you can tell by their IGs when this is the case. They are not that bad i.e. Jaquie but somehow their Drs will place these ports as if the risks aren't even there. Then again, I think US doctors place feeding tubes far too quickly for the gastroparesis snowflakes also. In the UK, you'd get a long trial of an NJ (and have to be pretty damn sick) and told to drink 2-3 litres of water, sodium tablets and compression clothing etc.

No. 378297

>>378296

^^ obviously the latter would be for POTS. Hardly anyone gets saline infusions in the UK and it's not as if there's an epidemic of sooper serious POTS in the US.

No. 378300

Lol fucking Jaquie heard that the eclipse was harmful to pets eyes, so she said she was going to keep Harlow shut inside with the curtains closed. Then yesterday she said someone told her animals don't usually look at the sun because they have the instinct not to.

What a fucking idiot. What did she think was gonna happen? Giant solar flare?

No. 378307

>>378300
She needs friends, she needs a life and she needs interests outside of herself and her sooper speshul made up neeeeeds. She is pissing away her life and Judd's and for what? Her comments about the dog and the eclipse show what a weird, tiny, isolated, sheltered, fucked up world she has created for herself and is enabled to stay in. I go from feeling sorry for Judd and her Mom to thinking they are all just weird and somewhat sick.

No. 378313

>>378266
if she actually had cataplexy (or narcolepsy, or epilepsy) she wouldn't be legally allowed to drive, which i've seen her do, by herself in multiple vlogs.

No. 378316

>>377683
This doesn't even make sense. They're both basically the same procedure, one is for RSD/CRPS in a lower limb (Lumbar block) and one is for RSD/CRPS in an upper limb. So why the hell would a doctor just change the limb they were targeting? Unless she claims to have "full body RSD". Even still, a doctor will not just give you a sympathetic block in your neck, instead of your back, without discussing it wtf?

No. 378317

>>378210
Does it creep anyone else out that jonzie capitalized "children's" as if it were the hospital? Or something idolized?

No. 378320

File: 1503543674028.png (1.56 MB, 750x1334, IMG_1479.PNG)

she's gonna regret that decision if her fake endo turns out to be real

No. 378323

Yeah, the fact that she goes back and forth between needing a med alert system because she may pass out at home any time and just driving Harlow to vet appointments by herself is just another example of how her stories just don't add up. When Judd was in training and around more often, she seemed to stop driving all together. After he started working a regular schedule and before her mom moved in, she had to get places herself and managed to drive just fine. Now she can't walk across the living room to get a blanket. If she were as unstable as she pretends to be, she should not be driving at all. It makes zero sense.

No. 378324

>>378316
I have been wondering if any munchies with CRPS would show up. That's a harder one to fake. But I've heard of people putting their leg in a bucket of ice water before going into a doctors office, to fake the discoloration, and temperature changes, and burning holes in their own skin, so anything is possible. It's probably easier to fake things that are invisible, I guess, hence why it's been reasonably safe from the Munchies grips. Most just stick to the EDS/fibro/POTS/CFS/gastro train.

No. 378328

>>377999

It looks like Jacquie is teaching Harlow to hand her wallet to cashiers in anticipation of her wheelchair usage. I have never seen a wheelchair user do this. It doesn't make sense. You can reach most pay counters even from sitting down.

Also, seems a little gross.

I have no expertise but it seems like a silly thing to teach Harlow, even for Jacquie.

No. 378330

>>378328
people with like quadriplegia do that, because they CANT reach up to the counter, jackie can STAND up and give it to the cashier, but then she wouldn't look suuuuuper sick

No. 378332

The way Jaquie flails her arms around dramatically for 15 minutes at a time in every vlog makes it clear that she does not have mobility impairment severe enough to require a dog to hand her wallet to a cashier. Ugh.

No. 378338

She's obviously very good at training dogs. Too bad she can't get a job training actual service dogs for people who really need them instead of training her dog to do what she can clearly do for herself.

No. 378349

>>378320

Why? Mirena's are one of the best treatments to help control endo.

No. 378357

>>378266
I've actually known I've had Autism since I was young and my older brother has it too. Thanks though.

No. 378364

>>378229

not to mention, for the sound sensitivity, earplugs are an instant and subtle solution, are like 80 times more effective than giant headphones, and they don't draw attention like they do. Oh, never mind

No. 378365

Jacquie's delusion made for good schadenfreude until I watched Frey Life. I'm pretty cynical, but I was effected seeing someone constantly coughing their lungs out and still try to live a meaningful life. Frey also makes me feel bad for smoking a pack a day.

It makes Jacquie's crap seem so pathetic. Jacquie is Jacquie's biggest problem, not her illnesses. Maybe in some odd way there's justice in that.

No. 378371

File: 1503548350282.png (837.51 KB, 750x1334, IMG_5160.PNG)


No. 378372

NOTICE

Thread has reached 1100 posts. The thread will be locked and you will be unable to post in it shortly after it exceeds 1200 posts. Please begin preparing a new thread and post a link to it when it's created.

No. 378374

File: 1503548380054.png (224.13 KB, 750x1334, IMG_5161.PNG)


No. 378375

File: 1503548404811.png (1.01 MB, 750x1334, IMG_5162.PNG)


No. 378376

>>378364
Typically ear plugs/buds are 1. Annoying because they'd fall out or you'd keep having to adjust. 2. Many autistics have sensory issues to things being in their ears so this isn't even an option. 3. A lot of the "headphone/earmuff" thing has to do with the pressure added making you feel more comfortable sensory wise and "safe". 4. I've gone to many Best Buy's, Walmarts, looked online and they don't make noise canceling ear buds anyways.. or at least NOT like they do headphones.
Please learn something about Autism you uneducated fuck.

No. 378381

>>378380
Sorry it's just something that irritates me that I feel people do not understand about Autism. Because I get constant questions and stares about my headphones. I understand what you meant but maybe I shouldn't of called you a name so I am sorry.

No. 378383

>>378376

I use noise canceling foam earplugs every single day that go inside the ear and literally cannot fall out, due to my own sensitivities that pretty much make me impossible to be around. To be fair I dont have autism and yea, I dont know a whole lot about it, so sorry if I stepped on any toes, but I was talking mostly in relation to the people who have been discussed here who play the SPD game and get the headphones and then ditch them when they jump on a new bandwagon. Either way, cool your jets.

No. 378385

>>378381

sorry i edited my comment and it didnt post until after you posted this. But anyway, no worries. Name calling kind of comes with the territory here haha

No. 378390

>>378381

(and you're not entirely wrong. It definitely wouldn't hurt me to educate myself about autism and understand it more.)

No. 378395

>>378357
Did no one notice this lel

No. 378396

>>378357
>>378395
oh shit! wonder when we will see a vlog about this. or maybe she will learn from kelly lmao

No. 378397

>>378395

she has clearly stated in a vlog that she was not diagnosed until recently tho?

No. 378399

>>378396
Thats the only thing she's going to comment on? Out of everything said, she only corrects the autism one? Which basically means she's admitting the rest of her 'illnesses' are bullshit…

No. 378438

>>378397

Yes, she says she was just diagnosed at Mayo about a year or so ago.

No. 378441

>>378399

I've never heard her mention an older brother?

No. 378501

>>378395
>>378441

Could be her friend? He was mentioned about receiving a late dx also?

No. 378519

>>378077

Here they often don't even do a GES. They will admit you a few hours before an endoscopy and make sure you don't eat or drink anything. If they then see food in your stomach during the endoscopy they know you might have GP.

No. 378520

>>378357

Hi Jaquie. How come your gastroparesis is severe enough to need a venting tube and J but you can eat of mac and cheese, fried foods, cookies and non-purée vegetables etc? Even "a few bites" would make most people violently and seriously unwell. It's not like you do it occasionally. I get why you might be desperate if you hadn't put a morsel of food past your lips for weeks but every day, you try to eat something completely inappropriate. Everyone knows that "safe foods" may be different from person to person but really, it ain't gonna be fried food.

No. 378539

>>378357
>>378441
Maybe he's told her to keep him out of this vlog fuckery? She also mentioned that she's had to let go of a few important people along the way bc they don't believe her. Is he one of them? Regardless her vlogs have changed subtly in the last 10 days to two weeks. I've been pretty sure she's been lurking here. Thanks for the confirmation Jaq!

No. 378541

File: 1503578671793.png (270.77 KB, 748x320, Screen Shot 2017-08-25 at 8.06…)

I think that comment was her friend, not Jacquie.

No. 378544

>>378539
The comment above was me defending myself not Jaquie. The user below me is correct. I am always on these websites.

No. 378545

I have been on here like this whole thread

No. 378554

>>378545

Why are your vlogs exactly the same format as the Frey life? She has a hideous disease that will probably kill her before she even gets to be middle aged.

No. 378557

>>378554

So will Jacqui's. Munchies live short, miserable lives unless they get out early. Many die because, funnily enough, docs don't take them seriously. Play stupid games, win stupid prizes,

No. 378560

>>378554
Oh my goodness. I'm not Jaquie. I'm her friend. I was defending myself against the autism comment. I've always known I had autism is what I said. That's all I said. But my parents would never take what the therapist would tell them because they were always so in denial about mg brothers autism in the first place due to his low functioning autism. So hearing anything about me set them off. So I wasn't able to take a proper test for learning disabilities and neuropsych exam until age 20 and actually get what I needed then due to them always being wrapped up in my brother.

No. 378561

>>378396
>>378545

I'm so confused. Who's who on this thread?

No. 378567

>>378560
Have you told your friend Jacqui about this thread?

No. 378586

>>378560
If you're here, you're not her friend, you're her 'friend', probably just as fed up as us, if not more so. Is she this dramatic IRL?

No. 378611

https://www.youtube.com/watch?v=hg1gPLAG9Q4
jaquie changed her tune a lot since may when she said she has more to life than her chronic illnesses

No. 378618

>>378611

She still says that sometimes but never stops talking about her many illnesses. Even when they're doing something non-illness related she has to bring up a symptom, its relation to her diagnoses, and what that disease/condition is. I thought she made those "All about XYZ" videos so she wouldn't have to keep explaining them but she's so obsessed that she can't stop.

No. 378625

https://www.youtube.com/watch?v=pDDlyfl1iJc
new vlog. admits she doesn't brush her teeth "for a few hours" after vomiting. somehow has no cavities after a dental checkup. can i punch a wall now?

No. 378633

>>378625
You're not supposed to brush your teeth within an hour of vomiting as it will damage the enamel.

No. 378634

>>378375
A GES is still one of the best tests for GP, and Joniez's was normally, i.e. she DOES NOT HAVE GP. She has very un-speschel anorexia and a very serious case of attention-whoring. Just like Jaquie.

No. 378722

File: 1503596195217.png (249.3 KB, 743x1166, IMG_2179.PNG)

TBH all this pics together kinda creep me out. It's like horror movie twins, especially how they don't smile and always have the same expression.

Anyway, is someone gonna make a new thread? Gonna need it soon and idk how kek

No. 378735

Vent and drain and push IV Zofran to sit and eat a HUGE pile of fried shrimp. Jaquie, you are such a mess.

No. 378764

>>378735
you can tell judd's getting tired of her

No. 378776

File: 1503599708349.png (676.13 KB, 750x1334, IMG_5163.PNG)

Somehow I find it hard to believe she actually wants to go home

No. 378781

>>378560

Jacquie's SPD dx is really doubtful anyway. She's claimed to have cyclic vomiting syndrome and migraines. She's clearly disposed to neurological prodromes.

Her obsession with causal explainations for her issues is dumb. Seeing as many specialists as she does is counter productive.

Young women with as many trivial neurological issues as Jacquie weren't catered too 10-15 years ago to the extent they are today. There's next to nothing that can be done for they beyond a script for a gabapentinoid or tricyclic.

No. 378785

>>378764
Agree. I mean he obvs loves her or he definitely would not still be there let alone married but I can't help but wonder if he was hoping all of this drama would calm down after they married and she felt more secure. Instead it seems to have ramped up. Also, I think it would be hard to be a vlogger's SO under the best of circumstances, the camera is always getting shoved into private moments and daily life, but when the vlog focus is chronic illness it seems the intrusion into daily life would be double that of a typical vlogger. Constant focus on drama b.s and the loss of privacy. Idk how he does it honestly.

No. 378801

>>378776
Doubtful - she probably just knows she has to appear like she wants to go home.
Either that or her tests came back fine and so they aren't going to give her all the super special treatment she wanted (all the plans for surgeries that are up in the air could just be things that were mentioned when she questioned all the worst case scenario - and she isn't a worse case senario). These doctors may be catching on to her being a big faker.
Also from the pictures posted here it seems she has dropped the mysterious epilepsy in favor of just trying to pull of sick cancer kid. Or does her epilepsy only appear when convenient.

No. 378814

>>378801
shes in tears because shes not getting the surgury. it was planned for tomorrow but my bets are that yea, she doesnt need it because most likely her testing to prove her severe gp came back fine. things arent going her way so now she wants to escape the mean ol doctors telling her she just needs to treat her eating disorder and go back to her hug box at home.

>>378809

doubtful. shes a malingerer and will latch on to anything so she can feel special and loved and hang on to her childhood. hence an adult woman still seeking care in a pediatric setting. how nice it must be to have play doh on demand and people come see you and speak to you in hushed babytalk.

No. 378825

>>378328
Dogs can be trained to do this but it's for people with little motor control not lazy cows.

No. 378827

>>378722
Might be the creepiest IG I have ever seen. Partly bc it's unintentionally creepy.
We do need a new thread. Idk how to start one either…

No. 378851

Frey Life 8/21 "adrenaline crash"
Jacquie 8/23 "health CRASH"

idk I'm probably just paranoid now, but still. kek

No. 378867

>>378827
I will do it. A few moments please, dear fam. I need to find a good header pic.

No. 378869

>>378851
FUCKING SERIOUSLY?! I cannot stand this bitch!

No. 378897

my physical therapist remarked today that that anyone with eds who relies on a wheelchair is doing themselves in and will destroy their body by being lazy. sage for whatever i did here. but i'm lookin at you jaquie.

No. 378900

>>378869
TBH the whole 'crash' thing was stolen from oncology. Cancer patients sometimes have a rapid decline of blood counts, which we colloquially refer to as crashing counts. And of course cardiovascular collapse is sometimes referred to as a crash, hence 'crash cart'. But I have no effing idea what either an adrenaline crash or a health crash means.

No. 378901

>>378897

Your PT is sage.

No. 378909

Children's hospitals treat up to age 25 here in US. And most of the children hospitals have a floor or part of a floor for eating disorders. That's where a lot of these older teens young 20s get their fix for being so special sick.
It's both a good and bad thing.

No. 378910

>>378869

And she went to the bathroom to purge- er, vent, sorry- her stomach contents for (at least) the second time that day, if we should believe she only does it when she says so on the vlog.
In a nasty public bathroom. If she gets those fucking bags she'll do it everywhere, I hope someone catches on to her shit fast for this.

No. 378911

>>378897
Absolutely. For 99% of even more severe EDS cases wheelchair use should be occasional for special events/things which would otherwise not be doable.

No. 378929

>>378851

Why oh why does Jaquie want to be Mary?! Mary is a lovely woman, I'm sure, but she has a disease with an average life expectancy of under 40. That's beyond shit.

No. 378932

File: 1503612270175.png (52.77 KB, 609x553, IMG_4466.PNG)

>>378910
>jfw "not everyone has a feeding tube" when judd makes a poop joke
The way she insisted several times that he bought the blanket and that it wasn't expensive was creepy.

No. 378933

>>378932
>>378910
She has repeatedly justified their purchases in the past. It's odd. Obviously we have no idea who is watching but it makes me wonder if they owe someone in their family money or something. Repeatedly insisting that something is not that expensive is a weird, guilty "tell" that something isn't quite right.

No. 378948

>>378933
Well, she has stated that her father bought her car…so I'd consider it likely that he may pay for some of her medical bills & rent on their large waterfront townhouse.

No. 378956

>>378910
Wowza..surely She isn't that dumb?
Anyone healthy or not will have pure acid/bile come out of a stomach drain in the morning..

No. 378964

File: 1503615115050.jpg (634.42 KB, 1051x1711, Screenshot_20170824-175001.jpg)

A PERFECT example of her no longer having hobbies. She USED to be an avid photographer, she still could with her vlog camera, but no, she's too sick.

No. 378980

>>378964
Why is that stupid portacath still dangling outside her shirt? Put that shit away Jaquie.

No. 378992

>>378910

It is absolutely dumb to 'vent' your stomach unless you have one of the specific indications for it (reverse peristalsis filling your stomach with bile or being on J-feeds/TPN that leave your stomach empty and causing you to either vomit up gastric acid or the superfluous gastric acid causing you to develop gastric wall damage and you can't take misoprostol for whatever reason).

Plain venting aka opening the valve and letting bygones be bygones is not a great idea. One, in general, most PEGs are placed relatively high (although if a J extension is envisaged, they might be lower), so you might not get any output at all. If it's a little lower, you will get rid of fluids you drank that are still in your stomach + stomach acid. Your body produces a more or less constant volume, but removing it all the time means you lose fluids that way, and considering you can't exactly gulp down a bottle of fluid, you are gonna miss it (unless you really want to have those juicy, juicy POTS symptoms).

Farrell bags. Now these sound more clever, but keep in mind they were not invented for tubes with lumina in them, such as a PEG/J - indeed, a separate G and J is usually what we do for people who do legitimately have a need to drain (we're talking people who have nearly lost the ability to speak at some point due to violently vomiting up gastric acid and bile, not Munchie McMuncherson). As such, the remaining lumen from the PEG/J may not be enough to keep it from getting clogged (the 'maximum transmissive diameter', i.e. the maximum size of an object that can just about travel up the tube if it's under the vacuum of the Farrell, is calculated as G inner diameter minus J outer diameter divided by two. That's usually not a lot, even fibres in smoothies can clog it up.

Now we're going into demented territory. Flush-suck is a bad, bad idea. Not only is a fast flush a major trauma both on the stomach wall and definitely on the extremely sensitive cilia on the wall of the intestine, it's also pretty painful (I did it once, and didn't care to repeat it ever again, neither for myself nor a patient). Even worse, it basically acts as a peristaltic pump, slowly moving stomach contents into the stoma, which is a really, really bad idea but a great way to get severe bacterial infections rewarding you with weeks in hospital!

Bottom line: unless explicitly told by your GI (as in, "Miss X, you fucking need to vent that fucker!"), don't. If you do need to vent, try laying on your back and gently opening up the G-port - sometimes the accumulated air etc. getting out helps a lot. Anything else is not venting but suctioning, and is in and of itself a dumb idea save a very, very few circumstances, and it annoys me to no end that these 'super tubies' are doing it routinely, one learning from another. Jesus.

No. 378995

>>378980

Eh, some people prefer it outside as the swab cap/Curos cap (the green thing at the very end of the blue bionector) has a fairly sharp fringe that feels extremely unpleasant against the skin.

No. 379000

>>378964
she had real skills that's an incredible photograph. it's sad what she did to her life.

No. 379020

>>378992

That makes much more sense. I couldn't figure out why she kept calling it "venting" when she was clearly doing something else altogether. Ugh.

No. 379021

Decided to drop in and take a break from the Jacquie show to see if anyone remembers my personal cow, Captain Angry Bones. She finally got to have her speschul dysautonomia tests, and apparently she has all of them. Here's yesterday:
https://www.facebook.com/CaptainAngryBones/photos/a.1446892858879963.1073741828.1445856738983575/1979583872277523/

But don't worry, guys; she's already feeling totes better. Here's today:
https://www.facebook.com/CaptainAngryBones/photos/a.1446892858879963.1073741828.1445856738983575/1980099658892611/

No. 379034

>>379021
wow. When most people are diagnosed with dysautonomia, they get their scripts filled, try to follow doctors orders as best as possible, and MAYBE change their routine up a tiny bit to deal with symptoms. But even there, most people with POTS or any dysautonomia diagnosis would have already have been making little changes BEFORE diagnosis because of symptoms making it too hard to do certain things for as long as most people. Not just suddenly when they get diagnosed, unless they truly didn't know that something was making their POTS worse. Jesus, these people tick me off.

No. 379071

>>378995

There's ways to deal with that other than having to have your line on display. Wrap soft tape around it, or tape it to your bra. Jaquie just loves the attention she gets from showing it off.

No. 379074

>>379021

Caffeine makes POTS worse. You don't self-medicate with it. If her POTS is as bad as she claims, she wouldn't be able to tolerate caffeine. And jumping to infusions is not a good idea, at least if she's going to demand a central line or port. You should start with less invasive things first, much that's apparently not the munchie way.

No. 379076

>>379020

Yeah, she doesn't need to vent. Especially with the shit she's able to eat. She's purging, plain and simple.

No. 379080

New thread:

>>>/snow/379077

No. 379095

>>378323
>>378313

Medical providers are legally obligated to report to DMV a patient who experiences a sudden loss of consciousness or who is diagnosed with conditions which cause a sudden loss of consciousness.

No. 379132

>>378964
There's literally nothing to stop her from continuing with photography other than laziness, you can do photography from a wheelchair, or from the couch with a drone these days…

No. 379190

>>379132

I've seen people use those special eye camera things 'cause they can't use their limbs. Jaquie can't even get herself a blanket, so why would she try?!

No. 379426

File: 1503671266693.png (309.06 KB, 630x306, mqpj5rD.png)

halfway through the video she is absolutely GIDDY and BEAMING about her custom wheelchair

No. 379428

File: 1503671422671.png (343.57 KB, 636x314, xAemEKL.png)

the face of someone who needs a port, a feeding tube, a walker, a service dog and a custom wheelchair

No. 379829

>>376883

This is the type of shit that needs to be spoilered.

sage for late af

No. 380230

File: 1503770512893.png (Spoiler Image,702.19 KB, 750x1334, IMG_3115.PNG)

Did this bitch ACTUALLY just say that her golden retriever doesn't go for walks??? She takes her to the dog park maybe once a month. Poor, poor Harlow.

No. 380715

>>377384
>>377077
She made 36 appearances netting a huge $13.88 per appearance.
That's some next level fundraising failure

No. 380716

>>377385
I wonder if she tends to minimise other people's conditions due to that munchie ~sickest of them all~ competitiveness

No. 380809

>>374325
So, real question - doctors will just put a port in you for no reason? Just because you claim some symptoms they can't prove? Isn't a port a serious thing to have?

No. 380813

YOU FAGS KNOW THERE IS A NEW THREAD?

No. 387889

File: 1505604186497.png (275.71 KB, 1230x1974, IMG_1691.PNG)

Probably not a munchie, most likely actually sick but just OTT. So sick that she's on disability at age 21 but well enough to go drinking? Interesting.(USER HAS BEEN PUT OUT TO PASTURE)



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