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Discuss people who feign or exaggerate chronic illnesses and medical crises for attention and asspats online. Previous topic focused primarily on Instagram accounts, but posts from blogs and other social media sites are admissible.
Previous thread: >>>/snow/408576
(yes there are A LOT; IG unless otherwise stated)
chloeschronicles_of_illness (insta) / Chloe's Chronicals of Chronic Illness (facebook)
diagnose rheuma (facebook)
outrageously_helpful_orion (jaquie's friend)
chronically_carmel / queerzebra (tumblr)
gorgeous_gatorade_princess / unicorn.spoonie
shelbiepaulley / beepaulley
Active Cows with Their Own Threads:
kelly.ronahan / me_and_the_mr [ >>>/snow/381123
chronically_jaquie [ >>>/snow/391202
What Is A "Spoonie"?
People who identify as 'Spoonies' are referencing 'The Spoon Theory,' written by a woman with lupus to explain the chronic illness experience to a healthy friend who asked her what it really feels like to live with her medical problems.https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
The 'Spoonie' Community is, in general, a legitimate supportive network for people dealing with chronic illness. In recent years, however, it has become polluted with SJW types and has attracted a new breed of attention-seeking catfish: people who lie about, fake having, and/or exaggerate existing medical problems and crises for no benefit other than to garner attention.
What Is Munchausen By Internet (MBI)?
From Dr. Marc Feldman, an expert in factitious disorders including Munchausen Syndrome, first described Munchausen By Internet in 2000:>>…the advent of online support groups, combined with access to vast stores of medical information, enabled individuals seeking to gain sympathy by relating a series of harrowing medical or psychological problems that defy comprehension to misuse the groups. Communication forums specializing in medical or psychological recovery were established to give lay users support in navigating often confusing and frustrating medical processes and bureaucracy. Communities often formed on those forums, with the goal of sharing information to help other members. Medical websites also became common, giving lay users access to literature in a way that was accessible to those without specific medical training. As Internet communication grew in popularity, users began to forgo the doctors and hospitals often consulted for medical advice. Frequenting virtual communities that have experience with a medical problem, Feldman notes, is easier than going through the physical pain or illness that would be necessary before visiting a doctor to get the attention sought. By pretending to be gravely ill, Internet users can gain sympathy from a group whose sole reason for existence is support. Health care professionals, with their limited time, greater medical knowledge, and tendency to be more skeptical in their diagnoses, may be less likely to provide that support.
Links to Articles and Info on MBI:https://www.munchausen.com
(Dr. Feldman's website)https://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239https://www.abc.net.au/news/health/munchausen-by-internet-what-drives-people-to-fake-an-illness/7631990https://www.theguardian.com/society/2015/apr/29/jules-gibson-munchausen-by-internet-sickness-bloggers-fake-it-whole-pantryhttps://en.wikipedia.org/wiki/Munchausen_by_Internet#Characteristics
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I covered her name, but I follow one young person with EDS (and more?) - IDK how old she is which is why I have covered her name. Anyway, she seems to be starting to copy some of the more prolific cows in her behaviour and it makes me sad that they're making their extremes seem normal to impressionable people.
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I'm sure that's great for her gut motility
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What an idiot
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Muh sooper severe gastroparesis
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The people behind her look pissed. I'm assuming they actually need their chairs…
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I was going to point out that she has her top rolled up to show her tubes off (and low neckline to show the port) but in this instance I GUESS I can give her half a pass because it's a healthcare protest?
There's no excuse for keeping a pulse ox monitor on her thumb there though. That's just stupid.
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This is before she started saying anything about her health
Ew ew ew ew burn it please. (No one wants to see a feeding tube stoma, it’s gross even if it’s your own). Also, plenty of people with Eds and pots and GP work and aren’t dependent on government health insurance. If you can go to dc and protest and meet with people, you can sure as fuck get a job and stop bitching about
how horrible your life is with illnesses you don’t have.
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Oh yeah, about that cEDS!
She’s in the 50% of people that they haven’t found the gene for? Aren’t like 90% of cEDS cases on COL5A1, COL5A2, COL5A3 on very specific
alleles?! But ya know, “I’m too rare” gets a lot more asspats than “oh I guess I don’t have any EDS type except maybe
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She could have stopped after the “cleaning the apartment to be done with it part”, but she had to throw in something about her sooper seveer POTS because if you don’t post something about it in every picture you’re onviously not ill!
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“kEDS” girl… Yeah, this looks like a shoulder that she is shrugging forward, not subluxed.
Every thing she says is written in the most dramatic way. I have never heard someone call themselves an orphan. And "ill suffer a slow starving death", "my life is ruled by." wtf. Not even mentioning that most of what she says is just plain lies.
This girl makes me want to scream.
She's a hyperbolic piece of shit who acts like she has a terminal illness. This bitch infuriates me because it's like she wanted to accessorize in order to be seen as "sick girl" to get herself all over TV and seen as an activist. It's really weird.
I've seen her post countless pictures of pills and alcohol but never any mention of physical therapy or compression stockings. Another person who just wants to look totally helpless.
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I wish people would pay for all of my medical bills! I'm actually sick though so I guess I'm fucked.
She says fainting will lead to her “eventually probably sustaining life-threatening brain injury” and that’s how she justifies her (lack of) EDS as a terminal condition, along with GP causing her to “starve to death,” except for all of those tacos she eats. Absolutely incredible.
Scammers take note. You too can make $52k, all you need is to be completely fucking insane.
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>>Has anemia with - for now - unknown cause'
>>Is an established munchie
>>Has a port and does her own port care
Am I crazy for thinking there's some clues as to the cause of her anemia in there?
>>424469>>My dog is telling me I need to sit down. I'm going to ignore it until my symptoms get worse so I need to lie down in the middle of the store.
Yeah, that makes sense. But only if your goal is to get attention. They had a wheelchair in the store and a bench, but just sitting down on either of them just doesn't scream "I am sick and helpless" the way lying on the floor with your dog on top of you does.
I know that when you are sick, sometimes you just need to do things and not care about what people might think as much. Honestly, I do. But why is it we see so many people lie or sit down in a store? Wouldn't you try to avoid things like that, by e.g. using a wheelchair, taking breaks sitting on a bench or a on a low wall, or going back to the car right after you detect the first signs that you might be going to pass out? If apparently service dogs can give their owner a warning 15 minutes in advance, you would think that would just about eliminate the 'need' to lie or sit in such inappropriate places.
Also if she's "passing out" from POTS she doesn't need a service dog. She would feel her heartrate go up. And very rarely would her HR start to rise like that, when you've stood up for long already.
And ofc if it was POTS she wouldn't faint AFTER lying down
She now claims EDS as well but doesn't talk about it or how she got diagnosed
Let me guess, she has a chiari malformation?
By that definition, dislocating a shoulder means that 'your arm is ripped from your body.' Ehm.. No.
Yeah the whole POTS "alert" is nonsense. If you can't feel that you're about to pass out then maybe you don't have POTS. Jaquie and a bunch of other people claim the whole syncope alert bullshit. I just find it had to believe that the rare skill of natural alert just so happens to magically appear in all of these random dogs. It's too rare of an ability for there to be this many "syncope alert" dogs nowadays everywhere you look.
I'd like to add though (without wking) that POTS patients CAN benefit from a service dog. I've seen dogs retrieve items, do a pulling type thing, and lay on the person's legs to help blood flow return. But this dog does nothing to mitigate her disability, except maybe comfort, and comfort doesn't count as a legal service dog task if I remember correctly.
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I find this girl so offensive. Who the fuck celebrates the anniversary of their first seizure (or even remembers the date)? She is so desperate for her diagnosis to be changed to epilepsy, it's pathetic.
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Gotta get that 100% necessary wheelchair that sweet sweet youtube money will pay for.
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HMG has started a new account for his teddy.
the thing that makes posts like yours so grating is that you start it by saying ~~MY~~ illness, so x.. yea you know, you can blog without actually blogging. a farmhand even gave an example very recently on how to do that. refer to it please if you insist on trying to convince youre WOKE or some shit. plus, blogging without sage, you clearly are just a one board anon or summerfag who actually has no intention of adhering to board culture.
whoever thought that 'tasteful' blogging was okay for just the munchie, jaquie, cass threads should be given the boot. so what exactly makes you more special than any other discussion on this site?
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Apparently it's just a bit of fun, guys
that's actually kinda cute haha. minus the weird feeding tube and medical bracelet thing. Actually, it's kind of creepy.
This board has turned into "stop self blogging" at posts that even say the word "me" and it's annoying as hell. If you're so concerned about it, ignore it and wait for them to be banned if it truly is someone blogging. Why can't we all be nice to each other geez.
Bear seems like the wishlist for all the accessories he doesn't have. He doesn't have a feeding tube and I don't think he uses oxygen. But he has taken it to the hospital with him and given it a foot brace when he supposedly hurt his foot.
The number of (actual) toys that HMG has in his room is astounding.
The pulse sensor kills me. I'm surprised we don't see more people choking on their coffee in this photo.
Question for those who are on tube feeds: Can you compare a day of feeding tube formula to a day of grocery-store food for me? I spend about $75 a week on food for one person. I looked at KF, because let's face it, any other formula just won't do, and it says $97/month for 12, but that doesn't seem like enough for a month. But again, I have to eat the old-fashioned way with a fork.
I'm trying to understand whether a person who has a job with living wage that allows ends to meet + occasional tacos, can afford formula without having to cut out necessities such as tacos?
I mean, I consider food to be life-sustaining, too, but I have never sent my grocery receipt to my medical insurance. Maybe I should…without my cereal and tacos and diet coke, I guess I would eventually die.
Sage for questions/half-ranting.
I don't have any tube experince myself, but from what i know, it's possible to get some meals by just blending the food you tolerate.
Then ofc it depends on feeding rates and such
Thanks for responding. By itself, formula is affordable.
However: I understand that the cost of formula is wrapped up in the cost of overall healthcare, including caring for the tube and treating the illnesses that led to needing a tube in the first place.
But, I find it hard to watch people fight for coverage of legitimate healthcare needs and then see this girl with her pulse oximeter. I kind of want to order one to see if my heart rate increases when I read these posts.
If I were a senator, I would not be convinced by her. She is capable of getting herself to DC so she is capable of scraping together enough $$ to pay for her formula. And, she can scrape together the $$ for a medical marijuana consult (and to pay for that out of pocket), so I would think she could scrape together the wits to figure out how to maintain her tube. Obamacare is not in good hands with her.
Well, only if she lives long enough to train the dog.
Insta: chronically.amy says she's vaccine injured.
I feel like I sound like a jerk.
I just watched some of her videos
In one she says she hasn't had anything to drink for 3 days (while still looking ok)
A few videos later she's drinking starbucks and getting her own car (despite blacking out, having seizures and fainting form dysautonomia)
Makes so much sense right?
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Sarah Grace is angling for EDS and trying to play it off as “I guess my dermatologist who knows so much about EDS thinks I have it”. If her dermatologist was actually smart, they would know that whatever SG claims in this post is bullshit and would not have sent her to see a geneticist for EDS.
God, I wish munchies would get off the EDS train. We get a bad enough rep with Lara and the Ehlers Danlos Fuck Up Society.
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Nicole was hospitalized again, guess what she missed?! LOL. Then posts this shit. I’ve never met a more outwardly full of shit munchie in all my life.
For the last time, fo to therapy Nicole, and stop being a useless piece of shit.
HypermobileGuy has posted multiple "oxygen" selfies before. He has a compressor (which anyone can buy on Amazon) and has previously claimed that he needs it to sleep because his "sats drop during the night".
I was thinking that if it was that super special, a med school team would be finding grant money and donors and tripping over each other to be the first team there to do it and document it.
I agree that I would think someone in the UK could do this surgery, but FB claims she's in Spain and ready for surgery. I just don't know what to think about it.
I just keep telling myself that there are people who have EDS and actually suffer from it. I don't want to become that cynical.
Sage for opining.
I've seen more than three appeals for funds for chiari malformation surgery, all from the UK to the USA.
I guess it's fairly experimental, or else they'd probably be doing it here.
Just looked up "chiari malformation." In the US, enough legit orgs are funding it and the diagnostic criteria seems definitive to make me believe it's a legitimate thing.
So, that begs the question of why patients in the UK need to come to the US. I did a very dirty search on Google, and the only conclusion I can draw is: Disney World.
If you come to the US, you can meet Mickey before or after your surgery.
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This guy is all of us man
Somehow I doubt that Tom Cotton, an Iraq war veteran, will be overly grossed out by this lady's noodly appendages, but I find it nonetheless absolutely cynical and abusive of her to put on every piece of medical equipment she can find, make it as explicit as she can (I've been running around with the same tubes she has for years and nobody was the wiser - you can effortlessly hide them and indeed it takes an effort to show them off like that!), even put on a fucking pulsox (anybody who needs constant pulsox monitoring, such as people on vents, have long-term pulsox probes, not some shit bought off Amazon), just so can be the sick chick that reamed Tom Cotton, because frankly, nobody else would give a fuck about her screaming otherwise. I'm also dubious as to the dude behind her using a nebulizer, which some people might mistake for an oxygen mask. I don't know if there was a concerted effort by these 'activists' to look as sick as possible or whether they're just pathetic, but I think this wins the crown, previously held by the Sarepta FDA duchenne kids roadshow, of the most cynical healthcare related PR assholery of the year.
I know of a much younger girl (I think only 17?) who went from the UK to have this surgery in Barcelona earlier in the year.
I don't know enough about it to know why the NHS aren't funding it. Though the NHS only funds evidence based care so it could be that not enough people have had the surgery successfully for them to fund it.
Or is could be that she doesn't REALLY need it.
When patients go abroad it is on a case by case basis so I don't know but it is interesting that the article and her crowdfunding don't at all mention why it isn't NHS funded or what appeals they made against that decision.
Who the fuck tubes themselves not under doctors advice!? You have to be pretty fucked up to consider that remotely normal, let alone post it online!
If you're vomiting so much you can't keep down liquids then
a) you're going to puke up a gastro tube!
b) GO TO THE EMERGENCY ROOM! They can give you IM anti nausea, if you can rehydrate orally you can go. You'll survive until you see your GI in a few months and they'll see you had an ER visit due to vomitting meaning
c) you might actually get what you want…though more likely IM cyclizine!
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Also on the chronically.ams track, how ana chan is this?! Obviously sucking in and pushing out her collarbones
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The fact that this girl, guy, whatever the fuck this is, gets what it wants medically, when people with real problems can’t, absolutely disgusts me.
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Also from Autumn, now mentioning her bleeding disorder seems suspect because it's been discussed on here. Hai gurl, hows your "EDS" doing?
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Oh no, my health is just getting so horrible what ever will I do!?
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You know, like healthy people get around nighttime from doing a bunch of useful, normal people shit during the day…
Because she shot herself in the foot with that one. Its easy to pick some random diagnoses and put them in your bio. It is harder to understand how one might affect another.
She got called out here (and in comments on her IG) asking how she could have easily gotten a PICC with her supposed blood disorder (that she obviously doesn't have). She is then left with either two options - remove it from her profile but raise even more suspicion about her claiming illnesses she doesn't have. Or do a little more research and go full out pretending that she does have it. Either way its super shady. After all why would a blood disorder you don't know much about because you "were diagnosed a very long time ago" be so important you have to list it in your bio. If it really had a big impact on you then you would know more about how it works. If it was just something that was briefly mentioned after a blood test years ago, it doesn't belong in your bio. She probably had at least one ear infection as a child - surprised she doesn't list otitis media in her bio.
I saw that video mentioned when Autumn had her own thread. I did actually just skim through the video. The person next to her does say they have it in the introduction and Autumn just mentions her genetically confirmed chronic illnesses. However when she starts talking for the first round she claims to have VWD similar to whoever was sitting next to her (and before that person took their turn to go into more detail). She then proceeds to say they ran some tests to make sure she wouldn't bleed out but that the surgery has lots of complications due to her other undiagnosed at the time chronic illness, EDS. Of course she claims that she "must have had it all her life because it was genetic but it only got bad in the last year" (which doesn't really mesh with her timeline since the surgery seems to have been 2 years prior). She goes on to blame the doctor for not knowing she had a condition that apparently she didn't know she had either. I thought the geneticist told her she didn't have EDS (but I could have my munchies confused).
While it is possible that she was connected to the other person on the panel because they had found each other while researching information about gender-confirming surgery with VWD, it still seems likely that Autumn's version is a bunch of baloney. The other person goes into more detail about how having VWD impacted the whole surgery process while Autumn is more like "I had a blood test to make sure I wouldn't bleed out".
I didn't watch the whole video because it was super dull - looked like the panel was poorly attended too (but I did get amused that they seemed to anticipate that there would be a sudden flood of people filling up the space). The individual who actually has VWD provided some useful information but the rest seemed to be a lot of whining about how the surgeons are terrible because they were uncomfortable performing gender confirming surgery on individual with chronic illness (um you can't blame a surgeon for being worried about performing a surgery on someone with a illness outside of their specialty and Autumn was blaming the surgeon for not knowing she had a disorder - that she doesn't actually have - that apparently Autumn didn't even know she had at the time.)
Ports are considered the safer central line.. lower risk which is why it's common. (Also why the majority of cancer patients have ports not hickmans)
But you would think the munchies would much prefer the other central lines..
Starting with the safest
Midline (not really a central line. More like a mix of a big IV and central line)
With a Hickman there is basically a continuous small tube and exist out of the skin with the same tube and Hickman are long. Some will curl it up like they do with babies, other tape it to shirts, it's long enough for these cows to really enjoy milking it for all they can and not have to get stabbed all the time!
A port is completely under the skin unless it is accessed. But even then it's not as noticeable as the other lines.
I hope the reason is the drs have suspensions on said patient and goes for the port for all those (and more) reasons above.
In the video she says she was diagnosed with VWD aged 15, yet on her IG when someone asked her about type she said she didn't know as she was diagnosed really young.
15 is not really young, and definitely not if you're having a lot of appointments (she was getting hormones/ hormone blockers and then had surgery aged 17).
I know we all know it but she is lying about the VWD, she hasn't been diagnosed with EDS (now hEDS in her IG profile!) or POTS…
Well I pressume a different doctor diagnosed her but originally I'm fairly sure she was told she didn't have it. I'll find screenshots later.
Also her GES study came back normal and now she has 'MCAS?' on her IG.
Basically she doesn't have an official diagnosis for anything in her IG bio - except for "mental health" because she can't go into menopause if she never had a menstrual cycle to begin with.
If she has all these resources to search for a physical diagnosis then she should have the resources to treat the mental health problems, which would probably "cure" a lot of the physical ailments too.
Chiari and Spinal fusions can be done by any neurosurgeon anywhere.
Chiari can be congenital in Down Syndrome.
Chiari is acquired with eds and the surgery poses bigger risks with eds patients.
No neurosurgeons in Uk right now are operating on eds patients with chiari and cranio cervical instability.
There are surgeons in the States and in Spain who have been operating on eds patients with Chiari and cci.
It seems like the new munchie flavour of the month though.
They are all buying neck braces without ever being diagnosed with chiari or cervical instability.
Only 2% of eds patients have chiari. But looking at the munchies it's more like 92%.
They all want it now it's so suuuper serious.
I don't think anyone would voluntarily go through that surgery without needing it though , even a munchie.
That is correct. NONE of her diagnoses have been confirmed by a doctor. Autumn is an out and out liar. Her Geneticist straight out told her she DOES NOT have EDS, but said and I quote “I’m taking that as a diagnosis of EDS” , she says she’s menopausal, however she’s biologically a MALE who had her balls chopped off electively, so any issues there is his own fault. The VonWillibran is constantly changing, first she was diagnosed when she was very little and doesn’t remember what type she has (which would be bullshit if you truly had it, it needs to be managed), the claimed to be diagnosed at 15, which was only 4 years ago as she’s only 19 years old, so it’s not something she wouldn’t remember. As for POTS , She’s never had Autonomic testing, no tilt table , no nothing, just found some bullshit doctor to prescribe what she wants, and then she keeps claiming random mental health diagnoses too, which keep changing… from BPD to Schizophrenia etc. it’s all made up!!!! She’s not one real diagnosis . Just straight up Crazy nut case
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Spotted on Ig.
I think they forgot that the T in pots stands for Tachycardia. Perfect heart rate there but they are having a bad pots week. Hmm
Maybe if they got out of bed their blood pressure would raise.
I'm not in the UK but what I know is that it is because of the high risk they will not operate on eds patients.
The opinion is if you fuse one level the next level will collapse leading to more surgeries. Which is completely true.
And decompression on an eds patient can lead to a range of issues during surgery.
Risk over benefit.
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Autumn does the same shit. This BP and HR are beautiful. Fucking stand up and do something for once and I bet they’d be even better. And THIS is what she’s getting a port for. Unbelievable
I know it's nothing that would keep you in bed for a week.
It had their first and last name I wasn't sure should I show it.
That’s only a mildly low BP (depending where the person’s normal baseline is), and the resting
HR is spot on for someone who isn’t active.
I think these munchies forget what their illnesses actually are. One, POTS is orthostatic tachycardia
– beats of 100bpm or more upon standing
(which she is not doing). The only way 81 would be POTS is if her resting heart rate were 51bpm or lower, which would mean a) she was super active (like an athlete) or b) she was having issues with bradycardia all the time which she would obviously mention. Two, POTS typically does not come with low blood pressure like these munchies claim; it’s usually a separate issue or just incidental low blood pressure caused by other conditions, medications, etc. Even the diagnostic criteria of POTS states that the orthostatic (standing) tachycardia is in absence of orthostic (standing, again) hypotension. I only mention standing so much because guess what she is not doing in that picture?! Three, if she hasn’t left her room in a week, her body’s current baseline for BP is probably pretty low because her heart hasn’t had to pump much blood if she’s been laying down…
Good heavens, the dumb is so bad with these people…
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Look Autumns POTS with no actual pots ??♀️
The indication for the CVC also comes into the differential. If a patient needs access every day, a Hickman may be preferred over a port. For cancer patients, labs and chemo are sometimes weeks apart and being able to deaccess in between is advantageous.
These IG fucktards who have ports but remain accessed all the time are ridiculous. Port placement is a more damaging procedure and comes with more complex mechanics and complication risks than Hickmans. I do wonder if ports are chosen because of lower munchie risk. It takes some skill to access a port; a Hickman line is easier to fuck with. So, pro's and cons…but yeah when I see these spoonfags with ports accessed daily, I have to ask wtf. If a port is continually accessed, the infection risk is basically the same but resolving it is a bigger pain in the ass because of the potential for device pocket involvement.
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Mixing antihistamines like candy: ✓
Prayers are helping: ✓
I'm really wondering what she's doing to make herself this sick. A high histamine diet? Putting something hot against her face? And why is her doctor buying this?
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It's weird/creepy enough that he has his own bear to take everywhere, but now he's meeting up with other bears too?
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How long do you think she’s had that hospital bracelet on for ? gotta show it off
I didn’t say 81 was tachy and very much mentioned how tachycardia was over 100bpm kek. Directly from my post (which was right above what you quoted):>>tachycardia – beats of 100bpm or more
I only mentioned how 81bpm could be POTS, and that you can have POTS without hitting “true tachycardia” if you jump 30+bpm (but your resting would have to be 50ish for 81bpm and stay there for a little to warrant a dx).
Reading comprehension, dear anon.
I've been reading about some of the most famous Munchausen's and MBP cases, and it scares me to think of the paths some of these spoonies may go down. Anyone familiar with the story of Beverley Allitt? She was a serial killer and nurse in Britain in the early 1990s, mainly targeting very young children. Her personal history is terrifyingly close to what these cows are like, minus the internet, obviously. If any of them end up having kids of their own then those kids will genuinely be at risk of MBP, which can be fatal. I know "think of the children!" is a cliché but, fuck, I'm chilled by this. The Mumchausen behaviour is scarily the same between people who kill their own kids, people who go on to become "angels of death" and large scale scam artists like Belle Gibson (who let's not forget, at minimum hastened people's deaths).
The ones who at least have other interests like fashion or whatever aren't so scary IMO, but those who are completely laser focused on their health like Jaquie and Kelly, Autumn, Chloe Leanne and Chloe Print Lambert, Chronically.ams, Paige, Carmel… their munchieness might be a risk to people around them as well, especially in future when they can't use their own image as a young woman to e-beg effectively any more. I could see any of those with a mysteriously sick kid of their own.
Most geneticists order panels now, unless there's a family history of a known mutation. Like the TAAD panel for example. Usually these will cover cEDS, vEDS, MFS, and LDS and some of the other familial aneurysm disorders.
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Paige got the flu shot, now angling for muh vaccine damage omg.
Which kinda puts her last few weeks of health related whining into perspective: unless you're an organ transplant recipient or on chemo, and no, apart from high dose AZA (300mg qd and above) drugs for MS/NMO don't count, you would not get the flu shot if you were in as precarious a health situation as she has claimed. Also, her trigger warnings on instagram stories about her weight? Big ED vibe.
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Meanwhile in The Other Vaccine Damage Munchie land.
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Pretty sure there’s no national hydration shortage…anyone else thinking maybe her doctor’s caught on that she doesn’t actually have pots? She doesn’t say what the new thing is, so I’m wondering if they took away her precious hydration. They just need to take out that damn port. She’s just an ana chan that found a way to get attention and lose weight with medical endorsement. Also, an ekg is a very, very simple test that is done all the time for lots of reasons, and I think people are starting to call her out.
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Here’s one of the comments, ironically also a Lyme person. No one else seems to be having a saline shortage… (let’s be honest, it’s water with salt in it)
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And let’s not forget her #testing #for #narcolepsy. Here’s a hint, Aubrey: Having an eating disorder makes you really freaking tired. Gotta love her wish for more medical emojis.
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Holy shit the comments are full of potential munchies and definitely ott spoonies. But let’s not forget all the tags! A little ways down the comments kek, but can’t possibly leave them off! How will she get that sweet, sweet attention without them?!?
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Check out this commenter, she’s got the munchie checklist of listed diagnoses, gofuckme (youcaring), and service dog with it’s own account. She’s public and is claiming nausea and vomiting even though she’s pretty big for having GP (not actual fat, but pretty pudgy for someone who can’t eat).
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So this munchie? not even a month ago had question marks by all her “diagnoses”, and now they’re in her header. Also, if you suspect you have GP or literally any gi problems, you don’t eat a bacon sandwich. I’m guessing she’s a munchie who’s angling for the whole port-tube-wheelchair combo.
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Here’s the next post. She’s asking about the ‘toys’ before she’s even been diagnosed. Also don’t know what a PRO test for eds is, but pots and GP tend to go along mainly with hEDS, and there are no tests for hEDS.
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And the classic angling for mast cell.
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Obviously starving to death
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What a wonderful meal for GP!!
Also, there is literally no way she could get tested, get results, and be diagnosed with all those things in less than a month. Autonomic testing alone takes a while, because it has to be ordered, pre-authorized by insurance, scheduled (and very rarely do you get an appointment quickly, since it’s not an emergencyj, then the doctor has to get the results, and you have to make an appointment with the doctor.
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(Last one, I promise!). Can’t forget the pill porn that looks like it’s mostly otc stuff!
She talks about the supposed hydration shortage in her recent videohttps://youtu.be/inzD0LkTQSI
She also talks about how she is in EXTREME pain but is able to vlog and is smiling and singing (“I ain’t got a needle in my chest, in my chest”) and bouncing around…
I get saline / ringer infusions for reasons other than POTS and haven’t heard anything about this hydration shortage?
There is no fucking indication of an allergic reaction there, especially nothing close to what an adhesive allergy / adhesive-triggered
MCAS reaction would look like. It’s not even remotely red, which typically happens when you rip something sticky off of even healthy skin. Ffs.
Essentially, yeah. It’s not like they’re going to die if they get one L a week instead of 2L a day. If they have tubes, they can put water and crushed NaCl supps (or electrolyte drinks) down the tube to prevent dehydration.
I mean unless their hospitals are useless and don’t know how to switch suppliers, my best guess is that the docs are using this excuse to stop using saline in these people who don’t need it.
The salt water will never be an issue, but the bags need to be produced since ideally they are only used once in a sterile environment, which can cause shortages on occasion. But no, just no.
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This is coming from the girl that regularly posts pictures of a good portion of her bare chest to show off her port. I guess it’s only not okay when she can’t IG it kek
Angie's out of the hospitalhttps://skagra3482.tumblr.com/
While she was in:
"I’m doing alright. Hospital’s been uneventful, apart from the fateful declaration that I don’t have a very treatable condition they were hoping i’d have, but we all knew that. Discharge was pushed back to early next week."
"The doctor and the social worker just came in to tell me that my commpacks referral was flat out rejected again and that it was because i was seen as so physically unwell and permanently disabled that the whole scheme was judged as unsuitable, and they said it’s usually for people who are at their worst immediately after leaving hospital and are expected to improve. I’m really annoyed about this. It was meant to be 3 hrs of care per week for 6 weeks but now I don’t even have that."
Do hospitals really send people THAT crippled home with NOTHING?
I feel as if all her tests come back as her not having having the damage, that's really all I can imagine would bar her from getting assistance that she needs?
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This is what a typical adhesive allergy looks like. If it's a holter or event monitor there might also be blisters and scarring. Whatever she's saying is wrong with her skin, it sure isn't an allergic reaction. I see nothing but someone who is too lazy to clean the adhesive off her skin. That black ring is dirty adhesive, at least a day old.
i cant wrap my head around over what im looking at =.=
is it a leg? a finger? an oyster? wtf is that?
2. What is that?
Cold and damp lock you up. -> RA
Heat and steam loosen you. -> EDS
You can keep your bra on for an ekg too
Speaking from experience lol
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In the diagnostic criteria it specifically mentions this about RA and eds.
A person has to meet criteria A&B as well as all other criteria if they have autoimmune condition too.
B meaning their parent or sibling must also have an eds diagnosis.
How many of these munchies with lupus, RA and heds actually meet this criteria?
Alot mention that their families don't even believe them so they are obviously not suffering from eds also.
More of a question of how the munchies can have so many disorders like RA, Lupus, eds and Lymes co currently ?
It doesn't seem possible.
Lupus/RA/sjogrens/sclereoderma together is MCTD/UCTD. It's typically 1 in 50,000. A bunch of my extended family and I have it due to genetics and it running through pretty deep.
Still work. Still socialize. No service dog. No social media.
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Autumn is trying to pull a Jaquie and claim that she can't wear compression garments because they caused "hot flashes".
Yes if you go back looking a her photos from August she is out in jeans and covered in braces she bought (for conditions she doesn't have and while on her way to buy more braces). All that neoprene is bound to make the average person hit in the summer. If you can tolerate the drug store braces and jeans in summer you should be able to tolerate some compression garments (I wear compression socks for running and they make "ultralight" ones - I know nothing about using them for medical purposes but I would assume they are better than nothing.)
She also wears a beanie a lot - even indoors so I am not buying this I get too hot business (not that I believe anything she says - how does she know that the "hot flashes" are from the compression socks and not from her imaginary menopause)
Well it doesn’t help that EDS and it’s comorbidities are the things these munchies are faking, thus causing issues for those actually with it.
But no, you’re right. It’s painfully obvious.
I was in the same situation, although they did give me a paper shirt to cover but I couldn't wear it properly.
And anyway, I doubt most doctors would even care/be uncomfortable if you were topless during, it's part of their job and they deal with much stranger situations.
His bear has a fucking NG tube!?
Is this how he's coping with not having one himself? Living vicariously through a fucking toy?
I get sympathy from people sometimes when I describe hEDS. I feel it's misdirected, because it's not going to kill me, it just meant something of a change in the way my life was going.
And I don't get how people are faking to get a diagnosis. I understand that they ARE, but I just don't get what the hell kind of doctor would be fooled by joints that aren't actually hypermobile or come out of place easily.
If you have to ask your Dr for referrals for specialists you're showing off a bright shiny red flag..
"My intestines hurt. I just need surgery to remove them because I lost control of my bowels when I had the flu that one time 10 yrs ago."
"I have a heart murmur I need to see a cardiologist. You're too stupid to not hear this deadly murmur to send me to a cardiologist based on your own medical knowledge and concern. It's my body my attention needs. I know my body better than you and I know medicine better than you. Just do what I say." "
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Wait I’m confused. You need a port to get saline so you’re not “potsie” , yet you need a wheelchair because you’re potsie… yet you’re not even potsie whatsoever at all not even a little bit … please what the actual fuck is wrong with you autumn. YOU DO NOT HAVE ANYTHING WONG WITH YOU YOU FUCkING NUT JOB
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This is “kEDS” girl. Don’t you think if she was actually “bad enough” that she needs to run to urgent care all the time and that her PA would get upset that she didn’t come in sooner for fluids that they would set her with scheduled fluids on a certain time frame so she wasn’t wasting the time of UTC staff? I mean, if infusions are actually doing that much good for you, and you’re having to get them frequently, it seems like it would be in the best interest of doctors, nurses, and patient to schedule them. Little wait time for patient, doctors/nurses who know it’s scheduled and can set it up, etc etc?
It’s obviously her CRPS and spinal cord injury that caused decreased ROM kek. She probably got the JHS/EDS diagnosis (which I’m 99% sure her geneticist also told her she DIDNT have, like Autumn) based off of the new “you can have this if you have historical
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I think this girl has been mentioned once or twice before. Not sure if she’s full munchie but she’s very much OTT if she’s not. She just recently got a port for saline infusions only and named it. Claims that she hasn’t had any luck with meds over 5 years, but saline over the past month had been a miracle drug and they quickly decided to put in a port (this seems super quick, since you would thing doctors would make sure that the effects of saline treatments don’t stop working a few months in before going through with a risky surgery). Not surprising that the never mentioned that compression stockings and graded exercise therapy didn’t work for her. She’s also considering vlogging about EDS but constantly talks about how she’s too tired to do much of anything. Shoot me.
At least she says she doesn’t want a service dog right now…
Autumn has the half-trained service dog.
Autumn mentions in an Insta post about taking Percy to Lowes and how well the dog walked by her side the entire time (only pooped on the floor once).
While service dogs are allowed everywhere, are SDITs also allowed? I think stores need to make that clear for both handlers and customers who think dogs in the store are well-trained SDs.
RANT - please ignore if you want - I cannot tell you how much more closely I pay attention to the distance between dog and my kid after reading this forum. I used to totally ignore them because I thought they all were excellently trained.
Now, I worry my child will startle one of these dogs (won't happen because I move my kid into a controlled space like the cart, hold hand, etc.), but I wouldn't have done that before this forum. I would have assumed I could just redirect errant child and apologize to handler if it happened, but excellently trained dog would not be scared or startled.
Ever notice how people who say things like that about themselves or their relationship with others usually say exactly the opposite of the truth? People who say "I know I often ignore my symptoms too often and I should listen to my body more" are often the biggest whimps out there. People who say they do say 'yes' to others too easily and should take care of themselves more are often the most egotistical people you've ever met, while people who actually think of themselves of egotistical are often the people who should
say 'no' more often and who should learn not only to care for others, but also for themselves.
Of course this isn't always true, but it is something I often notice. So I wonder if people who say "my doctor will tell me I should've came earlier" are actually those people whos doctors are thinking of making up an emergency on the spot if they see their name on the calender.
Maybe your grad students are better at hiding it? I have learned it over the years from other people reporting what grad students post on social media. They love it when a professor notices them, even in a "get your shit together" way.
And they also love to complain about how much work X gives them and it's a brag-complaint. "Joe gives us so much shit to do that I'm barely sleeping."
"Well, at least you don't have Alex, who assigns 10 research articles, half are written in Spanish, and on top of that, I got added to the project he's doing for NSF, and it's gonna take every waking hour…"
They appear to to be a complaining, but are trying to one-up each other.
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Let’s see how long it takes autumn to delete these posts. She always deletes anything even slightly against her wishes
I am female, I'm at "that age" and hot flashes run in the family females. They are called "flashes" for a reason. Hot…and then you're not, but also, you just adjust the rest of your clothing choices accordingly.
Also, Autumn reports giving up PT for now because her health just won't allow it.
To me, those are two signs of someone not actually wanting to get well…not trying compression and not doing PT.
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I’m not a regular commenter here but I’m in a dysautonomia group. At first, I thought it was helpful but anymore I can’t stand the people who are posting. It’s fucking ridiculous. Nobody fucking cares, Mitchell.
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Yes she is angling for a lightweight wheelchair. She has another picture in that exact wheelchair further down in her IG (where she uses lots of Lyme hastags) although I would think that if she owned it we would see it more. She sat in that blue wheelchair during the panel she was on about disability (but got in and out of it with no problem - she could have sat in a normal chair for the panel but that wouldn't make her special enough). She also seems to have bought herself a variety of braces, canes, and forearm crutches in the past. Someone must be funding her (since she could only last 1 shift working) so she can buy these toys.
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A little more digging reveals that the wheelchair is hers. She also seems to have a rollator, cane, forearm crutches, "a fancy leg brace" that she wants to deck out with lights because it is so "cool", multiple heart rate monitors.
And they seem to be going to shelters to try to find a dog that would be a "good fit" for her needs. I could be wrong but I would guess that traditional service animals aren't found at a shelter (esa yes but not a true service dog).
Someone is supporting her financially and taking way to many pictures of her at all her appointments.
Kek, look at her playing on the crutches
SO SICK THO
These add up to so much $$$
Smart crutches are £100 in the UK
A leg brace has to be several hundred $, same with the chair even if it is second hand. The another £200 for machines, neoprene supports etc!
Also why would you see an orthopaedic surgeon if you weren't in need of a surger evaluation?
In the UK we see primary doctor (GP), then Physio/ maybe a hospital doctor (consultant/ registrar) then only if they requested scans and x-rays and they came back with problems not fixable via PT would we see a surgeon. So it would be really weird in the UK to get a surgeon prescribing anything! We also would view PT or braces as a 'prescription' either.
I'm not sure how much this is a difference in our medical systems and language and how much is Autumn bullshit!
I am sure all her toys add up since she sees to buy most of them on her own and not through insurance - the exception seeming to be the leg brace.
It very well could be that she saw an orthopedist who sees patients in an office and also may perform surgery a couple of times a week - and she is just emphasizing the surgeon part to see more dramatic.
In the US, you need a doctor to prescribe PT if you want it to be covered by insurance. I think the average person might say they got a referral for PT but it is technically a prescription/doctor's order. It seems she went to an outside clinic for PT so it is possible that her doctor actually wrote a physical prescription down.
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It does seem like the weird tape was placed by whatever PT she was seeing - which seems really odd because every PT I have worked with (professionally) has access to KT tape (they sell it everywhere for the average person too these days). And for someone who claims to have the world's most unstable joints and spines and no muscles she seems to get around fairly well.
I don't know about shoulder instability (and don't care to learn) but I assume that someone with the issues she claims would not be able to suspend themselves in the air like she is in the picture - that is a pose of someone playing with the crutches not of someone who needs them for what she claims she does (and I am aware that there are many forearm crutch users who can do that - but they aren't claiming the same issues Autumn is so please no stories on why you can do flips with your crutches)
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Was going through the list of munchies from the thread header, and found this. This is from months ago, my guess when she was first posted here. Claims that her accounts are private but… this one is public. kek.
Shout out to all the spoonies getting called out for being ott, if you don't want someone calling you out on bullshit, stop making Instagram or Facebook accounts.
>for me and me alone
Yea if you really wanted privacy and a way to journal feelings, you would have a paper journal and not something easily accessible on the internet with your real name location and age freely accessed by others. Don't act like a victim when you willingly powerlevel on the internet
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Yes. Tomorrow Autumn gets her port and it’s a big and exciting… EXCITING.. day. What an ass.
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What the fuck is feeling “potsie” supposed to mean. You can’t feel potsie if you don’t have pots. She probably just starves herself and is dehydrated, that’ll make you feel like shit. People are absolutely sick of her and her bullshit. Who the hell gets excited about a port? Who the hell in their right mind would give her a fucking port??
Does anyone know what happened with her Lyme disease that she originally claimed? She just seemed like she forgot about it, like it wasn’t cool enough for her. At one point she was also hash tagging MS, so who knows what her deal is.
I seem to be learning from the Jaquie show that a wheelchair eval is more like a sales pitch: Here's all the things…what do you need (i.e., want)? Now of these things, let's see what insurance will approve.
My question…could anyone call up for an eval or does a physician have to write a script for the eval itself?
To me, it seems like anyone could get an eval and you only need the script if you want insurance to pay?
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Found Autumn's personal IG (izeki3l). Nothing about her super speshful illness (and nothing since January- probably around the same time she joined the 'spoon community' and started her 'journey.'
I could be wrong but I think anyone can request an evaluation. And I am sure the company will be more than happy to show you all the fancy extra features.
If you want the chair including all the bells and whistles then you will need a medical professional to write a script for it - and likely will need them to justify why you need each custom feature.
There are plenty of people who get custom chairs outside of insurance (I know of several kids with spins bifida whose family decided not to go through insurance to get their wheelchair because insurance takes so long and they wanted custom features to allow the child to participate in wheelchair sports).
Autumn will have to get a doctor to sign off on the chair if she wants it through insurance - and that won't guarantee the insurance will cover it.
I am guessing she will convince her family to pay for it and then move on to a new toy. She seems to go through toys quickly and loses interest in each quickly - the canes, crutches, braces, and old wheelchair don't show up much after each initial few posts. Even the PICC isn't as present as I would expect for someone so excited about it - probably because she has already focused on getting the port so the PICC is boring to her
Sage for blogging in advance, but i'm pretty sure it depends on where you live, what insurance you have and such
Where i live you have to send an application describing what you need and why you need it. Then you will have an assessment with PT & OT talking through your needs. They will require documentation that you either have an illness who means you're automatically approved (MS/ALS/CP and such) or a script from a specialist saying you would benefit from a chair.
It's a lengthy and tiring process, but it seems to be easier in the US (especially if autumn gets approved)
Was this Instagram photo removed? I can't see it.
The comments to Autumn's post yesterday are all "You need to exercise, not get a wheelchair." ALL of them.
Do you mean @ninajean? I don't think she's OTT. Not everyone who posts about their health is.
(inb4 hi nina - no, not her, but often agree with her comments.)
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Wonder what his real name is …
She got posted in one of the early threads but it was an obvious vendetta post, you can tell when someone doesn't actually display munchie behaviour and yet gets a lot of shit written about them by 1-2 posters here that it's not really an OTT/munch thing but some personal issue.
My impression is most of the call out comments (@ninajean and others) are usually written by legit disabled people who don't revel in their illness.
I went back and looked at all her "older pictures" to see what the deal was with her changing diagnoses. (I would add screenshots but I am clearly too lazy to do that/make a collage)
Keep in mind that this has all seemed to take place in about 6-7 months.
Her current IG appears in April. She claims she was diagnosed with chronic lyme disease on April 4th adding to her "steadily growing list of conditions" - she doesn't specify the other conditions and only uses lyme/chronic illness/spoonie hashtags
- On April 6th she says she probably has pots and is being referred to a cardiologist. She adds the pots hashtag
- On April 7th she asks about how to buy a wheelchair
- On April 8th she lists her diagnoses as Bipolar, chronic lyme, POTS, von willebrand, and surgical andropause. She claims the POTS was recently diagnosed - even though she hadn't had the testing yet
- On April 10th she buys herself a wheelchair
- April 10th-16th she documents her wheelchair adventures and the fact that her family are "borderline abusing" her since they don't think she needs a wheelchair and is "catastrophizing everything and making life harder for everyone else"
- April 24th - she gets at 24 hour holter monitor that she proudly shows off and says the echocardiogram and tilt test are coming up soon. She adds a fibro hashtag at that time
- April 25th - she is told she may have babesia and that she doesn't have chronic lyme - she doesn't believe the doctor. Around this time she starts asking people about different side effects
- April 29th - she starts questioning if her joints look right when extended
- May 2nd - she tells her doctor she has muscle weakness and is "tripping" (both which were mentioned as med side effects) and the doctor refers her to a neurologist and once again says she doesn't have lyme. She continues to use the lyme hashtag and adds als and ms hashtags (cl
- May 3rd - she has the tilt test
- May 4th - sees a cardiologist about results and says that despite the "weird tilt test results" he doesn't know what she has (suggesting that he didn't diagnose her with lyme). She says he referred her to a neurologist
- May 8th - sees a rheumatologist who says she is "definitely hypermobile" and that the lack of hormones could make everything worse and that she is will see a geneticist. The eds hashtag gets added to the list. This is where the lyme hashtags disappear
- May 14th - she asks what symptoms people with EDS have and what treatments they are getting. She seems to claim EDS, POTS, CRPS, Fibro, GP and more
- May 21st - says the POTS doctor wants another tilt test because the previous one didnt show specific info about blood pooling. Is started on meds Starts to claim IBS at that time
- May 24th - says she wants saline infusions but its not part of the treatment plan
- May 26th - goes to ER saying her BP was low and she wanted to get IV fluids. Claims the fluids helped and she will talk to her doctor since its the only thing that has helped.
- May 29th - says she is having trouble telling temperature and feels like there are bugs crawling on her which she says she read could be a symptom of fibro and me/cfs - she adds peripheralneuropathy and me hashtags
- June 14th - moves to Oklahoma to be with gf - debates getting a service dog
I will see if I can timeline the rest of her diagnoses journey later.
Basically - she asks people about symptoms of various diseases and then adopts those symptoms. Nothing ever seems to be confirmed but she reads a possible diagnosis and adopts it. She abandons it when a new/better diagnosis comes along. The number of specialists she is able to see in a 2 month span is astounding.
Wow, good work anon.
Seems Autumn wants the Sickest Little Warrior award without having to actually be sick, just add a few diagnoses in a week and hope no one notices!
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MyBlondeVoyage's time at the Breakspear Clinic is nearly up. From her posts she's been having a nice time when not attached to unnecessary drips of woo juice - lots of meals out in London and going out with friends. But she's still definitely sick, guys. She can feel the strep dying inside her.
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(samefag, pt 2/2)
If she saw this many docs in two months, and wracked up this many diagnoses, imagine how many diseases she could add to her hashtag gallery in a full year. Hell, she may end up in a full body splint with a halo holding her delusional head up & 24 hr nursing care by Christmas at this rate!
And thanks for putting that timeline in, it actually helped me realize just how bat shit crazy this chick really is.
Legally they can't give her IV potassium unless she needs it..i mean I guess you could find a suicidal or physcopathic doctor to rx potassium IV when she doesn't need it..even qhen people need IV K, they monitor you closely. Its dangerous deadly.
And in the states it typically is done in hospital only..not at home and not even in infusion centers (Little exclusions as always) because of how dangerous it is.
I may have missed something but where did you find the potassium and iron infusions?
Well yea..its also in tpn (up to high levels) but if she posted a K infusion that size it's in the hospital..which is why I highly doubt that bag is K.
K and iron are not woo juices..and iron infusions are a black to light brownish color.
Also iron infusions don't really hurt..sometimes if you only need a little they will do it as IV push, and the taste is the thing to complain about not the non existent pain.
The iron drips don't hurt. They are diluted too..still it's that taste and other side effects she doesnt complain about.
Doesn't she have a central line?
Nothing hurts through a central line..nothing hurts through a midline..or am I confusing her with another munchie?
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This reads like a lot of going out and effort from the POV of someone who actually has POTS and EDS.
She's forgetting the main activity when you're that ill is to lie on the sofa and try to preserve some energy. But I guess chasing doctors and looking up possible diagnoses is just too much fun!
Autumn's August-October Timeline. Summary - POTS doctor won't diagnose her, give her fluids, or see her again. She decides she has GERD/GP. Starts and stops PT because she is too sick to exercise (maybe PT would fix that). Finds cardiologist who will help her get fluids. It should be noted she travels out of state several times during this period (with wheelchair/crutches hoping to get early boarding) and while she complains of being tired she seems able to do the things she wants and doesn't need IV fluids during that time
August 2nd - sees “orthopedic surgeon” who prescribes full body PT and a fancy leg brace. Says doctor was very nice and knows a lot about EDS
August 3rd - sees POTS doctor who “barely spend 10 minutes with me” and is completely against infusions. Claims he is booked for follow-ups until January 2019. Says she will have to find another doctor
August 5th - claims flare mental health, specifically psychotic symptoms but never specific
August 6th - started on pyridostigmine and says her stomach really hurts and her pupils are small - worried because one website says it is signs of a serious overdose and another says its fine
August 8th - starts PT - says she has a left bend in thoracic spine but it is also left turned which is supposedly impossible, has 0 muscle in her back, joint instability, and muscle degeneration everywhere. Gets the crazy tape on shoulders
August 11th - complains of loss of temperature sensation and numbness in hands and mouth. Claims she is bumping into everything. Hashtags proprioception. Sits on floor of CVS while buying wrist braces - has on two knee braces (she moved her first one to the other leg) and an elbow brace
August 16th - starts EDS support group by her
August 17th - goes to primary doctor. gets referred to cardiologist, neurologist, hematologist and given topical ibuprofen. Thinks she needs another saline infusion but doesn’t want to go to the ER to get it
August 18th - has PT, claims to love it, new tape on shoulders
August 23rd - sees rheumatology to establish care - given a muscle relaxer. Claims she is having bad muscle spasms, shooting pain, and lots of diarrhea
August 24th - decides to make hEDS info cards to give out to everyone who asks “oh what happened”
August 29th - having trouble finding a doctor who believes in saline infusions (its been a month since her last one!). Is confident she has GERD and pretty sure she also has GP so will ask her primary doctor for a GI referral. Goes to ER to get saline infusion
August 31st - asks people with GP to tell her how it started and initial symptoms
September 4th - says GI symptoms getting worse (bloating and diarrhea). trouble breathing and on call nurse says she should see doctor immediately but doctors office is closed. Starts using all the gerd/gp/gi tags
September 5th - someone told her about costochrondritis and macs and thinks that is the cause of all her problems
September 12th - its so hard to have undiagnosed symptoms and be pretty sure of the condition but have no doctors to treat them
September 13th - decides to use wc all day and wants ultralight wc through insurance
September 17th - reading book about MCAS
September 18th - postpones PT indefinitely because her flare isn’t getting better and until she starts to get working treatments she can’t workout
September 24 - videos of stomach and neck “spasms” (note - I could easily recreate these videos on my non-chronic illness body)
September 27th - new cardiologist is willing to help her get IV fluids
Final installment to come
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Just noticed those very nice high arches, which would, more likely than not, not be present with EDS.. and if her knee hurt enough for a brace she wouldn’t be throwing it up there like that.. AND also with her claiming her balance issues, would not be balancing on one leg like that for a picture… fail.
I am not familiar with home infusions - is it the kind of thing where a nurse comes and sets it up and then you are responsible for stopping it/taking the IV out?
I am trying to figure out how she quickly went from something that was supposed to run 3 hours to running it over multiple days. Unless the person sets it up and then leaves - allowing Autumn to mess with the rate (or just leave the IV in and claim it is running when it isn't).
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Pic 1/2 cause I couldn’t get comments in….oh so “underweight”
She doesn't need the infusions at all. She went straight to deciding she needed infusions as soon as she decided she has POTS - which has never been diagnosed (if the most recent doctor gave her the diagnosis I suspect its because she went to that appointment claiming she already had the diagnosis - and since she had doctor hopped so many times across more than one state it is harder to track down the records).
Not surprising for someone who goes out an buys a wheelchair less than a week after they suspect they might have pots.
She also mentions trying salt tablets/drinking electrolyte water after she is given home infusions. I am no POTS expert but I would think it normally goes the other way around. And since she doesn't have GP there is no reason why she can't drink the water she needs (no fancy water bottles in any of her pictures).
She claims she ran 2 liters over 2 days - I am still not sure how she managed to do that with an IV placed by home health (but once again I have no experience in that area).
She is the perfect example of how doctor hopping and shopping can help you get what you want (I think it really helped that she moved in between and was probably able to go to the ER claiming she needed fluids but hadn't been able to establish care with a new doctor yet). I am just shocked she is able to get appointments with specialists so quickly.
The only thing wrong with Autumn is a variety of mental health problems - the only issue she almost never talks about and hashtags. If she is able to see all these specialist she should be able to find a decent therapist
This was taken before she "confessed" that she had anorexia (or a history of anorexia). Although I suspect that this was part of a plot to start angling for a GP diagnosis (even though it was several months before she decided she had GP). She is pretty good at asking people how their illnesses first presented and then adopting those symptoms (although she really did not seem to present with many GP symptoms I see so many complain about).
I would believe anorexia or some other body dysmorphic disorder before I believed any of her POTS/EDS/GP nonsense. She seems to think her body is messed up which is why she keeps trying to mess it up/present it as messed up.
She started by saying she was getting a trainer but that person bailed before meeting (possibly before she had a dog).
I believe this is a rescue dog she picked out (and gave a service dog IG the exact same day). She has mentioned a trainer once (maybe). At one point she talked about the dog graduating - but I think that was more from a general dog obedience class. As far as I can tell the only "training" the dog has gotten is standard dog training (walk on a leash, don't eat everything you see, etc). At some point she even mentions not paying any attention to him for a while.
I am just really surprised that she hasn't put the dog in a vest with a million "service dog in training" patches and paraded it around - she loves her accessories (although it seems like this dog is probably a bit too rambunctious to be a SD but rather would make a good pet)
if there's a thread on service dogs can we please talk about the service dog free press lol cause that dude is milky as fuck.
i mean from being banned from training and selling SD's in the state of new york to literally faking his own death, dude is crazy.
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If we’re on the topic of SD, there’s a munchie on Youtube named Service Dog Paws. There have been videos of her just laying down on the floor and expressing anger when smaller children who don’t understand they’re working yell things such as “doggie”. She has stated she has severe anxiety and PTSD, but then proceeds to call out a woman with a dog in Walmart at the check out lane.
It makes zero sense!
In the UK we just have guide dogs and hearing dogs that are allowed in all shops etc. The initial training isn't done by the individual but by specific charities.
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She also claims; EDS, POTS, and scoliosis.
We do have service dogs for people with severe disability too. Canine partners is a Uk based assistance dog programme, but it is very strict and they don't just hand dogs to anyone. They have their own OT's and PT's who assess you etc & you need to do a 2 weeks residential owner training with the dog too.
I got mine through canine partners. I am not going to list my reasoning, but the dog is my lifeline. I wouldn't be able to work without him.
Sage for uk service dog fagging
A lot of them have a dx of hypermobility and EDS is just the natural progression of bullshit. vEDS if you want to be superspeshal but only with a 'clinical diagnosis' and no genetic confirmation with lots of trying to prove that all of your internal organs have probably ruptured and nobody noticed it because doctors are incompetent.
New cow o/s who has at last count 24 dxs/conditions with one dx claimed and rising hospital glam star with secret groups, diagnosing other people and advising how to lie and get past ED for tests.
They all have csf leaking out their noses and dying and have all the dxs inc chiari.
Anyone else wish they’d all just get dragged into traffic by their super special spoonie service dogs? I’m not a terrible person, but there are some people the world doesn’t need kek
Sage for no contribution(USER HAS BEEN PUT OUT TO PASTURE)
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Yeah it randomly shows up in her hashtags about a week or two ago and here's how she addresses it…
So…service dogs are supposed to be ignored, but how many of you pay MORE attention to them (where they are in relation to you in a store, for instance), because you don't know if it's an SD or an SDIT or a half-trained SD?
I only know blind SD handlers IRL and their dogs are amaze-ing.
But, if I ran into one of these other dogs…well, I guess I discriminate and watch closely out of the corner of my eye…sigh…this is what this board has brought me to doing…so if handlers want to know why people are watching, well, it's because of this issue.
Orgs that train dogs give away SD fails all the time, and these are great pets, but even the best trainers know not all dogs make good SDs!
Sage because I'm a terrible person who doesn't trust SDs on the spot.
Nah, I just hope the "really amazing medical alert" dog does a huge deuce on the floor in Wal Mart.
The cows with self-trained unlicensed SDs are harming the people who actually need them.
top kek, of course OP thinks she's the only person in the entire UK who really needs a service dog and anyone else even considering it must be a munchie.
So how about you fuck off, babe.
I'm going to hell.(USER HAS BEEN PUT OUT TO PASTURE)
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mary's cringefest with the children hospital clowns again
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robinmarceline on IG
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Yes well that’s what was the impression but seems not
She doesn't have veds. Total exaggerating OTT variety of munchie. She has mild HSD at most
Also she's unbearable, her tags give a good snapshot.
Yes. Yes it would be unusual. As we see often with SD cows, it's usually complete bullshit too (see: Jaquie's thread).
What would be useful for a wheelchair user, is a service dog that can open pull doors (using a tug of war style toy), get things from low shelves in the stores etc. I've seen them at work and they're awesome.
you are clearly a bit hypermobile. Stop fucking milking it, no one cares.
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Oh God. One of our resident Narcissitic Sociopaths™ seems to have taken to twitter…
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“kEDS” Girl. Kek.
(Image 2 to follow)
The narcissitic part, at least. The sociopathic part she can’t seem to wrap her head around, though I guess few people openly admit to be a sociopath or psychopath.
At least she’s talking about other stuff than her sooper serious health issues (like her “vEDS” that she claimed for years online — and I’m sure offline too — and turns out she doesn’t have?)
Agree, even if she does have hEDS (which she kinda can't since she hasn't seen a geneticist since the new diagnostics according to the screenshots) she is way over killing it, making it her identity. She also manages to dance in her wheelchair and self-propel!?
If you have suspected vEDS then they DO test you.
Especially if they are going to do major surgery like a hysterectomy!!! Honestly, if you've got vEDS it doesn't matter how bad your gender dysphoria or period pain they will avoid surgery at all costs, they know you're going to die young so they are way more lax about what painkillers etc they'll give you.
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Poor, poor Aubrey. They had to stick her hand 3 times (this isn’t normal for multiple stabs?)! And she has a port that can be accessed and isn’t infected; why place a standard, or even peripheral, IV with a perfectly usable port?
Why is she in the hospital?
Maybe her port is in use already. can you even use ports for two things at once? Or maybe the doc knows shes a munchie and wanted to give her something she didn't beg for kekk
It doesn’t looked accessed at all. No lump where it is and no tubes sticking out the top of her gown.
I sure hope it’s the latter kek
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"Allergic to exercise" "elite gymnast" UK munchie flashing back to having gotten some award for being a special brave soldier, despite only having left hospital a few hours earlier. Well who's got time to be sick when there's attention to be had for being super special? If anything trumps sympathy it's trophies for being the sickest, rite?
I vaguely remembered something about EDS not being eligible under paralympic classification, and i can't find a category here that she'd be eligible to compete in if her only "disability" (though I'd hesitate to call it that) is MCAS. She's won lots of British competitions for disability gymnastics under the "physical disability" category nonetheless, but Paralympic guidelines are very strict.https://www.paralympic.org/classification
Yeah I'm not sure what the international (non Paralympic) disability competitions are like for classification.
While I was having a poke around I also found this article which states she shaved her head for charity since her "condition was causing hair loss" anyway (probably mild, as many illnesses do affect hair growth and quality). But
I've seen SO MANY OTT COWS shave their heads when there's no actual reason (inc alopecia) for their hair to have fallen out. It's just another attention move. https://www.wirefm.com/news/local/warrington-disability-champion-shaves-hair-for-charity/
That was in Sep 2015 but in this puff piece for her TV documentry the next year it says it was the "stress of the reactions". Likely.. http://www.dailymail.co.uk/femail/article-3971382/The-woman-allergic-Gymnast-reveals-trauma-rare-condition-seen-hospitalised-40-times-two-years.html
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Just to add, one last bit.
In the article about shaving her head for charity she said it's instead of a bucket list where she meets famous celebrities and has amazing experiences because she wanted to do something good instead.
But what's this?
(Ok, that's enough work for someone I hadn't even heard of a month ago.)
Also she's training in a gym with multiple others so can't control what chemicals, scents, products etc are brought into the environment.
And again, "allergic to exercise" but able to win gold medals in competition.
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i dont know why anyone would consider doing that, especially without gloves other than to get an infection but wtff?
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Autumn apparently does not have the ability to talk about anything without throwing something in there alluding to her illnesses. Sleep for the next week? Really? You can't just say you had a good Thanksgiving with family and leave it at that?
They want to meet someone with ACTUAL weird anatomy AKA a pregnant woman! Everything moves around to make place for the baby yet, shockingly, surgeons can still do emergency surgery!
People seem to think that when you operate on someone everyone has identical insides (except super special munchies) but that just isn't the case, again surgeons manage! Even in emergency surgeries without detailed scans etc :O
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Sorry but 10/10 pain is such excruciating pain you can’t talk, walk, and you can barely keep consciousness… nice try. You’re probably at a 4 if you can type and talk about a blog and manage to make a car ride and walk into your home and take a picture and post it.
Because she likely had a perfectly good/normal Thanksgiving (I wouldn't be surprised if she was shockingly "symptom free" and able to fully enjoy the festivities (even though a month or so ago she was convinced she had severe GP).
You can't let people know you are a big faker so throw in a few complaints to distract from the fact that you were able to participate in all the fun activities despite being too sick to go to the supermarket every other day.
Thanksgiving can be fun and tiring for those without any illnesses - basically Autumn had a normal person day but needs to distract from the fact that she is conveniently able to do things whenever she pleases.
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Aubrey is now so sick she haaaaad to go to the ER on doctor's orders, y'all! Quick, another selfie amidst the 10/10 pain!
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I think I found a Jaquie inspiration account. She talks about ketamine, how she prefers to be on a real food formula because it's better, how she has a team of doctors and she switches doctors a lot. It's like looking at Jaquie's account, but the person actually seems sick!
She's whiny because she's ill but she is very normal in comparison to the others.
There's plenty of actual cows to choose from.
Not OP, and I don't know this person's account well at all (only seen her around a few times), but it's no more
of a vendetta than loads of others who've been posted rarely or for minor irritants. Sometimes it's just obvious that an anon is riled by a particular account or randomly hates someone who is inoffensive. Don't WK for this one in particular because it's embarrassing.
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Just stumbled upon this possible cow. Sorry if she’s been talked about before.
She claims eds among other things but posts videos of her doing dance moves I️ don’t think anyone with eds could do. She’s also just super cringey???
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Forgot to add the pic my bad
And she haaaas to have it hanging outside of her clothes instead of hooked to her waistband or in a pocket.
The bag prob comes with it but it's so freaking short…
wow thats amazing, im sure since youre anonymous that your 10/10 is actually 10/10. please take your blogging back to instagram.>>431414
anyone who is tube fed for so long and is still super skinny including pots in their diagnosis parade is really suspicious. of course your heart is struggling you malnourished ana-chan
>but she really is super ill!!
sure but you ladies say the same thing about mary f and that chick is a cow herself..
kek she's been mentioned before but thanks for bringing her up again
(Also she's a "little" and tag her things with ddlg but allow minors to follow)
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i honestly wouldnt be surprised if her medication could have caused pancreatitis. its not horribly uncommon. and why for the love of god do spoonies quantify every last little thing?
>muh needle sticks! so many!
yea, well thats what happens when youre in a setting like that. ER, surgery, what to you expect? Make a mountain out of a molehill they say..>>431488
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Here’s the thing…. you just said they removed a mass off of your pancreas… which causes SWELLING/inflammation…
Pancreatitis… also known as Swelling of the pancreas… would be an expected finding after such procedure completed yesterday … I’m sure the admission is not for pancreatitis… it’s probably for pain control, for that 10/10 pain
lol we posted at the same time..
but honestly compared to her other sooper serious pain selfies, she really does look uncomfortable here.
but i guess thats what happens when you actually feel a decent amount of pain. these women are so used to saying theyre in immense amounts of pain but when they actually feel it, its way more than they bargained for.>>431510
didnt you know anon, anorexia is so 2010 gp is the new ed
Unless they started tube feeds only recently? It can take many months to gain back the weight if you've lost a lot.
But yeah, it is worrying that many doctors don't seem to see the relationship between eating disorders and (presumed) physical illness in general and the GP/POTS combo in particular. I once heard a dietitian say that doing a GES in someone who is severely underweigth isn't much use, since the stomach is almost always slower because someone hasn't been eating. So even if the reason someone didn't eat much for some time was because of real physical symptoms, a GES might still not give a valid result. I'm guessing the results are influenced by not using the stomach and not by BMI per se, so sticking an NJ down to pump some calories in and re-test in a few months won't do in that case. And as long as someone claims not to be able to eat orally and the results show GP, no one will force the patient to eat as much as they are physically able to. So it depends a lot on the patient and how hard they actually
are willing to try. For many of them, just start eating and gradually increasing the amount will cure them. But how to solve this without patient cooperation and
without deception (e.g. putting in an NG and telling them it's an NJ) - I don't know.
Oh nuuu her heart rate is sooper high!
Or maybe it's because you were dehydrated and now have fluids so your body is trying to get them where they need to go.
Also, she described the reaction on her insta as:
"tachycardia which was making me jittery, short of breath, and slightly nauseated."
That happens to everyone if they push the saline too fast. I get nauseous even if I run my saline at regular speed… [insert huge eyeroll]
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Rare male cow Hypermobileguy got a new toy, but doesn't give a lot away as to why (see next pic)
115 is my "I've just eaten a small meal" HR, if that's any kind of help.
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Spotted a potential new cow in my explore tab .
EDS-POTS-MCAS triad, service dog in training, vogmask…
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“Don’t forget I’m in the hospital! I’m really sick, so sick I’m in a custom hospital gown and smiling and sitting on the edge of the bed! In 10/10 pain, but I totally posted my vlog and on ig multiple times! But I’m really, really sick!!”
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“10/10 abdominal pain! Ignore that I’m sitting in a position that requires the use of all my core muscles.”
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So exhausted from lying out of her ass and preparing for her port to be placed tomorrow. She’s so excited she finally gets something to play around with that she can fuck with and get sicker if she pleases. Autumn you need HELP .
The satisfied grin she has.
I can't believe she was only 'diagnosed' or suggested to have pots and whatever else less than a year ago and she already is having a port.
It takes at least a year to try different medications and get the dosing and regime right before you'd notice good improvements.
It's very treatable.
The infections in the port will be next.
You think that's fast? Jaquie had hers in three months. Must be an all-time record. She was angling for IV fluids before she was diagnosed with POTS.
(I know, she has her own thread. Won't mention her again.)
What I don't get for Autumn is that even if her doctors would think a port would benefit her, she already has a PICC line. Which is in for how long now? Two or three weeks
? First of all, I don't understand why they put in one if they knew she was going for port surgery soon. Second: if somehow her doctors didn't communicate with each other and she got herself a shiny new PICC line without the doctor who decided on her port placement knowing it.. why not just wait for a while?
Third question, and then I'll shut up, but for how long has she been on IV fluids? Isn't it good practice to test a treatment before cutting into a patient, if at all possible? I've read somewhere here that the effect of IV saline tends to wear off in POTS patients. Even if that wasn't true, it is known that the more invasive a treatment is, the bigger the placebo effect. IV therapy - any
IV therapy - has been shown to have a much larger placebo effect than e.g. a simple pill. So even if someone really has POTS and really benefits from IV fluids, it is very possible that any physiological effect is boosted by the placebo effect. A placebo effect tends to wear off after a while. So it makes sense in more ways than one to have a patient try out IV fluids for an extended period of time (say a few months) with either a peripheral IV or a PICC line before deciding on a surgical central line.
But of course our resident munchies are different. Just like they don't start out with a nasal tube like most patients and only decide on a surgical tube if it's clear that a) all alternatives are tried and they cannot maintain weight without tube feeds and b) they will need the tube for a long period of time.
No, they go straight for a surgical tube. Because it makes so much sense, of course.
I agree. I don't know how they are getting IV infusions and ports/piccs so fucking fast! It took me 3 years after diagnosis for my cardio to even consider it, and then another 6 months of peripheral IV's to get a port because the IVs were helping so much at the time.
I'm just flabbergasted that doctors are just handing this shit out willy nilly. I thought most docs would have the common sense to try everything non-invasive before even remotely touching on the topic of surgery!
Also so true with Autumn. If they knew she was going to get a port, why give her a PICC? That's just asking for an infection (although I'm sure she'd love that since it'd mean she'd actually be sick).
Sage for a bit of medfagging, but I'm just so fed up with these Munchies being able to snatch up what other people wait years for in a matter of months.
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Look how fucking happy she looks in her thumbnail. She's not even trying to hide how giddy she is to be admitted.
Autumn tried one medication and immediately stopped it I believe. She has conned the doctors by doctor hopping and it really helped that she moved states. She was able to go get fluids at the ER a few times after she moved and I am sure she told them it was her usual treatment but she didn't have a chance to establish a new doctor yet. Two doctors before she moved didn't diagnose her with POTS (the last wanted more testing but she moved before that ever happened). She seems to have found a primary doctor who doesn't know much about pots/eds and autumn has convinced her she has it and saline is the answer. After the first POTS doctor in her new state basically laughed at her and refused to see her again she found another doctor who she convinced to give her saline (again never actually saying she was diagnosed). She then seemed to manipulate her IV during the home infusions and told her primary doctor it was leaking so the primary got her a PICC.
She has been very savvy with doctor shopping and changing states pretty much ensured that it would be difficult to get her real records so she is able to convince doctors that she had diagnoses and treatment plans.
She is under 20 and likely still under her parents insurance which must be amazing because she sees a new specialist once a week at least. She decided she was too sick for PT and didn't even consider drinking more water until after she got the home infusions
And she may not have necessarily claimed it was her regular treatment but she could have just gone to the ER claiming all the right symptoms to get herself a saline bag (especially if she suggested it helped in the past). She could have put down diagnoses on the intake form and since hospitals/doctors have to request records from other hospital systems which takes time and paperwork (and still isn't a guarantee - I have waited weeks for a clients paperwork only to have them send everything except the documentation I needed). By the time they get those records she would have already been treated and released - paperwork probably completed and nobody checking to see if the records ever came through and were accurate. In the mean time the new documentation she had created by that ER visit may state that she has POTS because she reported it and if new doctors start looking at that paperwork (because nobody has time to search through mountains of paperwork and summaries are often copied/pasted from one document to another) they may not realize that the diagnoses listed were self reported and not given by someone with a degree.
Having dealt with medical paperwork I can see how it is possible to create this mess so that self diagnoses look like real ones and the fact that she moved out of state really helps.
Doesn't help that she found a primary doctor she can manipulate - that doctor doesn't know much anout pots and never prescribed saline herself but was willing to help autumn out with a PICC placement when she went to her saying that she was having difficulty with the iv for the treatments someone else prescribed (and probably lying about how often she was supposed to get those treatments - if the doctors are in different systems it could take a while to verify what autumn claims). And even though autumn has super powers that allow her to get specialist appointments in less than a week she probably told the primary doctor she had a long wait until the next available appointment with the specialist
Autumn's claim that she is taking it easy really just means she has been doing normal people things and enjoying the holiday festivities but can't document it on IG because it would give away the fact that she is only sick when it's convenient for her.
But I expect lots of selfies and thumbs up pictures for her port placement.
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Saw this that Kati posted. She's begging for $1000 to keep herself from getting evicted, but she recently had the money to travel to apply for a medical MJ card? She said the application was $250, why not put that towards rent?
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Her bumpin' musical tribute to Percocet.https://www.instagram.com/p/BbQAvmhgxlb/?taken-by=sweetspoonieprincess>>432627
is her second service dog. She just had to give up her first dog that was in training due to behavioural issues.
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Twofer: Paige 'Messner' Patching watching Mary 'Edmund Hillary' Frey. In hospital, no less.
>>431878APPLE, INC. NOW GROWING THE MUNCHIE OTT COMMUNITY ONE WATCH AT A TIME
How long until Apple is inundated with email complaints from physicians whose offices are crowded with Apple Watch wearers worried about their heart rates?
(Sage for speculation)
I think he has already gotten diapers.
But how long until the bear gets a catheter?
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Super excited for that special totally unnecessary port!!!
No matter how often I read here, I'll never stop to be amazed at the fact that so many people take selfies in this sort of situations. I can kind
of understand it when someone has an active YouTube/Instagram account that they make money with - it's kind of a job to them. (Although making money by whoring your illness is imo kind of repulsive, but that's a matter of opinion, I guess.)
But 'normal' people, people who have a social media account just to get in touch with other people? (Or whatever people have those accounts for - I myself have never seen the appeal.) If you are having an operation, even if it's a minor one, or if you are at the ER or even just your primary.. I don't get it. I just don't. Wouldn't your attention be focused on the operation, preparation, getting well afterwards? I cannot imagine lying there and thinking "o wait, have to post a selfie in my gown". I don't think that's normal behavior. I can understand a little bit that someone would write a post afterwards
, in much the same way most people would text their family or maybe one or two of their closest friends. Even then I personally think it's too private to post there, but if you are in a community of other people with similar medical problems and
the account would be private, I would understand that.
? Posting your most intimate medical details, pictures of yourself when you are most vulnerable, on a public account?? Imagine you would do that you would apply for a job some time after and your boss-to-be would read all that? I'd be horrified. Not only that, I'm pretty sure that would bump you to the bottom of the list. It shows not only that you have certain medical problems an employer would rather not you have, but most of all it shows horrible judgement to post that kind of pictures of yourself.
People like Autumn I don't really feel sorry for. I do in a way; she obviously is mentally unstable, but at the same time she is very deliberate in what she is doing and she knows
she is fooling her doctors.
But I DO feel for those young girls who don't know what they are doing. Those who might or might not have minor medical problems are maybe even a real and serious chronic condition who post this kind of pictures because they see others in the 'spoonie community' do the same and think it is normal behavior. Someone should protect those girls against themselves, because they have no idea what they can get themselves into.
I'm rambing, I'm sorry. But I just don't get it. And I also think it is dangerous. As I said, I don't have a social media account so I don't know if this is already the case, but they should post some kind of disclaimer at least
. Warn people against posting personal and especially medical information about themselves, especially when their account is public. Have them tick a box that they are over 18 and understand that it is not recommended to post this information and why, I don't know. It's the least they can do.
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Let the port problems, sepsis and countless pictures of her port hanging out commence.
True! I don't have VWD but even I was already bruising after my port insertion! It's fucking traumatic for your tissues because they do blunt dissection using their finger to expand the pouch usually. This leads to a shit ton of swelling and bruising.
Also, I was nowhere near looking as happy and smug as she does. I was nauseous and totally out of it for about 2 hours after I was discharged. How the fuck is she so alert?
(Sage for a bit of medfagging)
Are you fucking…
How was she not nauseous out of her damn mind? I nearly puked bc they gave me oral pain meds and I didn't have anything in my stomach yet. I couldn't bring myself to eat until much later that day. This is such fucking bullshit.
Welllll she's actually a he so there you go!
TBH I wound t be surprised if his (Autumns) fatigue is real but that's it. Having no sex hormones probably fucks you up
I fucking hate this cow. She pretends she's some activist to get sympathy and $$$ but she's just like the fucking Rachel Dolezal of chronic illnesses.
Not to mention she's constantly traveling and buying expensive shit. I guess she just expects people to pay her bills for her… and she's not a fucking "orphan" either! Her mom died when she was young but her father recently passed away. She's 26.
It's easier than some things, but with the new criteria of hEDS it's quite "hard" to get even if you lie about stuff
But i guess it depends a lot on where you live, many places in EU getting a POTS diagnosis just means your told to drink a lot and eat some salt
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Already being called out.
Ehm.. some people just do well with general anesthesia. Some people are puking their guts out, others eat a sandwich and cycle home (yes, I'm dead serious, for some people it is
that easy). There's a lot of bullshit to go around, her simply being able to tolerate general anesthesia is not it. Her going to a bagel shop when just a few weeks ago she was convinced she had GP.. that's another story.
For the lolz. .
I bet there are lots of people who hate watch.
For the lolz. .
I bet there are lots of people who hate watch.
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This cow and her fake EVERYTHING. All at the expense of others. No way an adult would buy this if they legitimately couldn't eat it. Waste of money and food.
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And two weeks later here she… Keep in mind she was prescribed morphine the previous month and certainly does not have fragile tissues.
"Gastiric pacemakers" do literally nothing for motility. They only help with nausea and it's not even a guarantee. In fact, my motility specialist (he literally wrote the book on gastroparesis) refuses to work with them because they do NOTHING for gastroparesis.
These people just want invasive surgeries and devices. The bitch refuses to even TRY prokinetics. My doctor would have dropped me for being noncompliant and not wanting help if I pulled any othe shit she did.
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Back at Breakspear….
Well of course her ECG is normal. There's nothing wrong with her except for being deconditioned and (perhaps) some food intolerances.
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Again, normal people just get the flu shot (and have had it a couple of months ago for maximum effectiveness).
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So this one cow I have stumbled upon which I am not entirely sure if they are just OTT or what it’s hard to catch a pattern because the majority of their struggles are posting in the snap chatty part of IG including more than I have screen shot but she has posted a lot of fishy stuff lately including some diabetic test where she supposively wasn’t allowed to eat or drink anything for 24 hours including water. (I call bullshit on that) do not have that screen shot but again she only puts stuff that lasts 24 hours. I believe she also said some shit about needing surgery for her heart that has six chambers and needs money because it’s a year wait for surgery to make it four chambers. I thought heart issues like that were discovered at young ages and taken care of it at young ages? Now apparently her liver doesn’t work either: I have a feeling if she was in this bad shape every two second ig pictures would not be happening
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Another photo I believe this one may have her name on it
She did claim that her BP tanked when she got to the bagel place and that she had to lie down on the booth. Could have been from her fake POTS or could have been because she just had surgery.
Based on her claimed bleeding disorder I would think she would get more observation/take more precautions - but thats probably fake too.
Plus she is probably so excited by her new toy that she just can't wait to show it off. Going home and lying in bed isn't nearly as good as lying in a public place.
And yes - you have to love (aka hate) how she was convinced she had GP a few weeks ago but has no problems eating.
There are several other factors besides diagnostic criteria (which has already been discussed ad nauseum on this thread)
- just because you claim to have a diagnosis on social media doesn't mean that a doctor actually gave you that diagnosis. We have seen munchies fake documentation. Some just go out and buy the toys themselves. Nobody has actually diagnosed Autumn with EDS but that hasn't stopped her from claiming it (and she sees doctors who don't know a lot about it and give her toys based on reported symptoms). Just because someone lists a diagnosis doesn't mean that a doctor actually gave it to them.
- Doctor hopping can make it easier to get a self-diagnosis documented . Tell a new doctor you have been diagnosed with disease x. They write it down in the medical history section. It can take a while to get medical records from another practice so the doctor may not get a chance to review previous records before completing their own documentation so they have to go with what the patient says (and more patients are likely to omit diagnoses than make up extras). Once you get one or two doctors to document the self-diagnosis, that information may begin to get transferred to new documentation and lose the part about it originally being self-reported. (For instance - I have a client whose mother moved in and out of the state a few times within a year. During one of the moves she was able to convince someone to give the client a diagnosis of autism. This client does not exhibit any signs of autism and every other other clinician I have spoken too agrees with me. However, since they have supposed prior documentation of an ASD diagnosis - I have to put it down and use it as my diagnosis treatment code).
- Not everyone has access to specialists. I have worked in some more rural parts of the US where there is only one doctor in the area who pretty much has to see everybody in the town. It is not as easy for those doctors to get tests/labs done and they know it can be expensive and time consuming so they do the best they can with the information they have. They know it isn't ideal but its better than nothing.
Yes Autumn takes it to a completely different level of craziness.
The only illnesses she doesn't obsess about are her mental health issues (which she acknowledges she has but never discusses). I would guess that all of her physical symptoms (like the fatigue) could be explained by her psych issues but psych issues haven't gotten her enough sympathy points because she doesn't "look sick" so she has just moved on the making stuff up.
With changes in technology I can see how taking selfies in hospitals and whatnot is becoming more commonplace (in general our lives are much more documented and much less private). I can even understand posting some of it to social media because for some it is a representation of their life - but I expect to see other aspects of your life too. If you have no other pictures besides medical/sick pictures then you have a problem. Autumn is a prime example of someone who is sick when it is convenient for her - she doesn't post during the stretches when she is doing "normal" activities (like during Thanksgiving) because she doesn't want to let people know that she isn't as sick as she makes herself out to be.
Autumns "medical journey" has taken place in the last 6 months - interestingly after she started her first year of college. She then claimed that she didn't want to drop out but had to because she wasn't well enough to continue (right after she was supposedly diagnosed with chronic lyme and then suspected pots and bought herself a wheelchair). If she truly thought she couldn't finish the semester due to a medical issue I would have expected a leave of absence instead of straight dropping out. She also already seemed to be planning to move in with her girlfriend who lived out of state before she planned to drop out making me thing that she really just couldn't handle the college life (which would be fine - its not for everyone) and needed an excuse to bail.
She went to the POTS specialist in Oklahoma and claimed that he only spent 10 minutes with her, didn't believe in saline, and said they didn't have any openings for a follow-up in 2019.
Sounded more like she saw a specialist who didn't believe she had POTS (especially since she probably went in claiming it and saying she needed saline despite having tried nothing else). The no follow-up until 2019 (when it only took her a couple weeks to get the initial appointment) sounds more like an excuse to prevent her from coming back.
Its hard to have information removed from medical history - doctors can't go back and change other doctor's notes (you aren't even supposed to go back and change your own note). They could certainly write a new note listing the reasons why they do not feel she has POTS. However they won't be able to release that information to any other doctors (doctors within the same practice can likely easily look it up in an electronic medical record system - but the patient has to give permission for a doctor to receive and give information). If a patient knows a doctor will have written something unfavorable about them - like denying a diagnosis - they are likely not going to grant permission for that documentation to be released. The average individual probably doesn't realize this and signs the release forms without really reading them but I bet patients like Autumn who are knowingly manipulative are a little more careful about what they sign.
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I really just don't understand the whole spoons/spoonie thing.
I get the spoon theory in the context of the original story in which the author randomly grabbed something at a cafe with a friend to illustrate a point. But if you don't know that specific story then spoons just doesn't translate well - as a individual of average health I don't go walking around with spoons.
And Autumn the nurse wasn't giving you a spoon - the nurse taped a spoon to the pen because they were tired of people stealing their pen. Although the spoonie trash can does apply to Autumn - she wastes all her silly "spoons" on plotting her next medical scheme instead of doing adult things.
Apologies for my spoon theory rant (it makes a little more sense once I read the original story but drives me crazy that it's always just explained as "normal people have lots of spoons")
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Autumns way of asking people to tell her all their symptoms so she can figure out what medical drama to stir up next - she tires of her toys very very quickly so she will need to plan something new to keep herself entertained
And I am not expert on ports - it seems odd to me that her doctor was like "you can access it immediately but waiting a few days might be better". Since theoretically her saline infusions are scheduled shouldn't there be a more definite plan regarding accessing the port? Like wouldn't you want the first access to be done in a clinic to make sure it works okay and not just letting the home health person have a go at it?
With my Port insertion I'm pretty sure I only had the dressing on for a day. I had surgical glue covering the incisions so I could shower almost immediately, just couldn't bathe until the glue came off. (But I couldn't actually shower because I couldn't lift my arms higher than a few inches above the bottom of my ribs).
They accessed the port right after insertion, but then with my EDS the surgeon wanted to wait a full week and a half for the swelling and bruising to go down before accessing it, he didn't want to access right away because it would traumatize the tissue more.
Also, the docs should have told her what to do in the discharge papers.
I'm chronically ill but I've always felt that way about the spoon theory too.
'The healthy have a luxury of life without choices' - not true. Many healthy people feel tired, run down and have to make decisions about what tasks they can and can't handle. Can I go to the grocery store today or will I be too tired after work? That's normal life for every human being. Most healthy people I know have days where having a shower is too much effort and where they're too tired to do the dishes and so on.
'Most people start the day with energy to do whatever they desire' - no. Most people I know have to drag themselves out of bed and force themselves to do things they don't want to because that's life.
The whole theory posits that if you're sick, you have limited energy to do daily tasks, and if you're well, you don't have that problem. But it's not true. It's not sick versus well. None of us are rarely ever 100% well. Being ill is more on a spectrum in my opinion. Some days you wake up with aches and pains and an upset stomach and that's just the human body.
Alright about sage but not remotely a blog post, can u even read
I literally said 'I'm chronically ill' because my point was despite being ill I don't support the spoon theory, otherwise it would be easy for someone to automatically discredit my opinion because 'You can't understand because you don't know what it's like.' Learn what a blogpost is.
still not using sage huh newfag.
there are like 15 posts a day from anons that are along the same line as yours.
there was literally no contribution to your post that hasnt already been beaten into us. sage is for non contributing posts, take this kind of shit to ot if you so must air out how youre ill all the time and how youre better than other people. if you have to declare youre better than a cow, chances are, you arent
Agreed about using the sage (hint newfag - put the word sage in the e-mail field)
The post in question seemed an appropriate response the the post I made about autumn and hating the spoon theory - and argued that "spoonies" aren't any more special than the rest of us. It seemed to clarify my point about the spoon theory more.
The post before it (>>433397) was much more of a blogpost with excess information about how the poster was so sick they couldn't lift their arms up and how because of their super severe EDS they needed extra healing time - all of that info may have been true but it didn't really address the question asked about autumn's post-port instructions but rather was a comment on how the poster was better than autumn.
There are way too many people who post on here who seem to be trying to validate their own illnesses/behaviors. If you are going to post a comment about how your illness is more severe than a munchies - just stop. And in general learn to use the sage
I didn't mean for it to come off that way, rather try to give a comparison/other view on how post-port insertion can be.
I do realize it seemed a bit medfaggy, but I was trying to explain what was recommended for me as someone with the disorders Autumn supposedly has and how her post-op behavior was odd. I also could've been clearer about answering the question about accessing the port right away.
I don't understand why she would refuse something that could help her!! I mean, Reglan isn't the best, it can cause dyskenesia effects if taken constantly, but I'd rather be able to eat properly every few days than have a fuckin tube jabbed in my gut.
I keep forgetting these aren't normal people and the idea of major surgery is appealing to them.
Because Reglan isn't invasive nor can you see it, I guess.
This idiot also takes a new depression medication (Trintellix) known to cause orthostatic hypotension AND intense nausea. She's actively causing herself problems.
But who cares, she has all of her toys and gofuckme money already!
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Dani cant stop mentioning that she sees her neighbour everyday? Are we supposed to be impressed?
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Because Dani reads this thread and tries to adjust what she posts based on comments that are posted here.
- Make a comment questioning the health of her relationship with her bf of 14 years and all the sudden she claims they are going to move in together
- Make a comment that she does nothing but obsess about her symptoms and that she has not job/hobbies - she starts to mention reading a lot more
- Make a comment about how she doesn't seem to have any real friends and the only people she sees/spends time with are her parents/aunts - she starts to mention the neighbor she visits every day (even though she has previously never mentioned it).
Its just her trying to respond to criticism here. If she is truly spending time with a neighbor I hope it is someone approximately her age and not an elderly lady that she swaps woe-is-me medical stories with
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I know every approved drug for MS in the UK. None of them even remotely look like what's in her little pill box, and no, none of them (with the exception of AZA, which is not REALLY an MS drug) can be given as a liquid (long and complicated reasons but the point is that slow absorption is pretty much a desirable factor). She's lying her ass off, which is none of my business, but it is kinda odd to see someone with allegedly relatively severe MS yet zero symptoms and no mention of either daily meds or IV immunotherapy.
Tl,dr: fucking stop munchieing and up your venlafaxine instead, ffs.
Not a medfag, but but I thought the most common and best MS drugs had to be injected?
I have breath mints that look like the top left pill. On closer inspection, I see drug labeling on it. But, is that a TicTac in the upper right bedtime slot?
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The “autumn got what she wanted” smirk is getting stronger and more frequent . Now to see how long it takes her to “do things herself” and get a line infection and end up in hospital. My predictions are soon, considering her spoonie powers are strong lol
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Update on a previous cow, Ruby (whose little sister had cancer).
Ruby spends this humble-bragging about the new mobility aids she has installed in her house that allows her to take a bath.
Now, I've only had a few moderate episodes of a muscle wasting disease, but by my experience the legs this chick sports are in no way wasted or incapable of supporting her weight, or even in allowing her to walk or climb stairs. Her legs look well groomed, well muscled, and well nourished.
Legs wasted from disease have been in my experience some of the most visually shocking, and not something you can fake.
When your fat gets eaten away and your muscle pack decreased in a very short amount of time– short as in due to some inflammatory or pathological factor– rather than under use or voluntarily decreased food intake, it's visually obvious. It's honestly not "invisible" like these bitches complain about. People can see wasting under clothes. It's upsetting.
Ruby is fine and healthy. She has normal muscle mass and normal fat amount. I wish she would stop taking advantage of the people around her, who are already traumatized by their younger daughter having cancer, to milk them for sympathy for her nonexistant diseases.
That yellow & white drug in the lunch section is Gilenya (fingolimod). >>433767
Not true. These days the injectables are the least effective MS drugs on the market with oral and intravenous drugs having a far greater efficacy. I understand in some countries though they are commonly the most prescribed because they are cheapest for insurance.
She claimed she was diagnosed with chronic lyme and was put on antibiotics. About two weeks later she sees a new doctor who suggests she may have babesia and places her on a new medication. That doctor told her chronic lyme wasn't a thing and that lyme tests are accurate (suggesting that her tests said she didn't have lyme). She doesn't believe the doctor. She sees the doctor again a week later who reiterates that she doesn't have lyme.
At this point she has decided that she has POTS and EDS and possibly MS/ALS and is pursing multiple specialists. A month after she claimed diagnosis of chronic lyme she sees the rheumatologist who says she is hypermobile and adopts all the eds hashtags and the lyme ones disappear and aren't mentioned again.
Basically chronic lyme wasn't getting her what she wanted (although it has worked for other munchies) so she aggressively pursued other diagnoses.
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I can’t even with this munchie. Let’s just say you’re not making friends not because you’re sick autumn, it’s because you’re a nut job who lies
The fact that she
states that she is disabled, and literally has no disability whatsoever is outrageous. And to so confidently announce that out loud to a group of people, AND next to someone who is clearly
disabled… just unbelievable and disgusting.
Wasn’t expecting that low ass voice either lol
Autumn bought the wheelchair a week after getting diagnosed with chronic lyme and deciding that she had POTS. Because clearly the first course of treatment is buy yourself a wheelchair. She whined about her family giving her a hard time for using the wheelchair - probably because she DID NOT NEED IT (and was probably making everyone else's life hell asking them to push her around). She clearly is standing up and walking around just fine before the panel begins and then sits herself in the wheelchair and rocks back and forth instead of sitting in a normal chair - probably mad that the person next to her looked more disabled.
- I will say that while the person next to her mentions vWD first, she does go into the details of her surgery and how it supposedly affected her first. That being said the other person's story sounded much more realistic/plausible and since I believe Autumn helped organize the panel it is possible she met that person before hand and poorly copied their symptoms. >>434014
I found her whole surgery story a bit odd and like she was trying to make most gender-confirmation surgeons out to be villains. She basically blamed her doctor for healing complications when she herself claimed not to know about her "lifelong illness" (I believe she is hinting at EDS as the cause for her healing issues - even though she has never been diagnosed). If she truly had healing issues I wouldn't be surprised if they were self inflicted. >>434025
Autumn very clearly asks people what their symptoms were, how did they first present, etc… and then just adopts those exact symptoms. All of her claimed illnesses are ones that she suspected and then has tried to convince doctors that she has.
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I can't remember if Molly's been discussed before. But maybe 2 GI doctors told her it was in her head because … it was. She has ostomy but no actual GI diagnosis.
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>I got to take that as an opportunity to teach my cousin all about Olly
If my cousin's ostomy bag started leaky probably foul smelling excretions, I would nope the fuck right out of the Thanksgiving get together. If you need to validate your shitty life choices by making a very private medical device and its workings public to garner attention, then you need corrective behavioral therapy way more than you need the ostomy bag.
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Auuuughhhh she just gets worse and worse. Here she goes into graphic detail about "Olly":
> Olly is actually the end of my small intestine, called the ileum, and he sticks out of my stomach through a hole in the skin.
I have only had maybe three cows to date that have made my physically nauseous reading their pages. Poking the end of your bleeding small intestine is definitely one of the gut roiling descriptions that will haunt me for a while.
Why doesn't she realize that this isn't social awareness, but a fucked up form of attention seeking?
Where is my brain bleach.
Maybe you missed the part where the first post mentioned at least two doctors said it was in her head, and they could find no clinical reason for her symptoms. Even her colonoscopy tests were fine. But she pushed and pushed until she could find a doctor who would diagnose on reported symptoms alone, and managed to net herself a prop to show off how sick she was.
She doesn't have any kind of actual disease or disorder that would need an emptying bag. If you actually have Crohns, or ulcerative colitis, or anything like that, a case that is severe enough to warrant an emptying bag would also absolutely for sure show up in the kinds of blood tests they do to check for these autoimmune conditions.
The reason why it's gross isn't because she's doing regular stuff for having a bag. The reason why it's gross is because she's not sick, she's pathologizing vitals that are normal for an active, healthy young woman, and she's using the bag as an attention gaining device.
Oversharing or explaining your medical problems isn't the same thing as actively gunning to tank your health. I read an account of a guy with an ostomy bag, who was a construction worker, and ended up prolapsing his bowels into his bag because he was doing heavy lifting. I thought that was tragic, but not disgusting.
Molly is just disgusting. She's healthy, but continuously drags her family and everyone around her to continuously notice just how sick she is.
Molly's first post claims chronic constipation as one of the main reasons for the ostomy.
The progression of her tags is interesting. In the begining it was just, #ostomy, #chronicillness
In spetember some of the big colon/stoma tags were added #nocolonstillrollin and #girlswithguts
September 22 she was diagnosed with pots and eds. These tags are then added. At this point she attributes her gut motility issues to EDS.
The fact she says it's chronic constipation as the reason for the bag, but then also says that she was hospitalized for "runners colitis", which is basically exercise induced diarrhea, is completely opposite of each other.https://en.wikipedia.org/wiki/Ischemic_colitis
Note that the wiki page says there are definitely blood test and colonoscopy indicators for runners colitis (when she initially said her examinations and the colonoscopy was clear).
Is she your personal cow or something? (Honest Q)
I've seen her a few times on IG and thought she was one of those genuine cases where they couldn't figure out what was wrong with her but could fix the problem. I mean, most ana-cows go for the GJ-tube so she didn't stand out as one to me.
She is fucking insufferable! She straight up claims she has EDS in this video
! Also, she considers her surgery a "botched" procedure? Fuuuuuuuck you Autumn. She definitely displays an aggressive, dismissive attitude toward health care professionals; a common munchie trait.
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Oh yeah - she's already got a port lined up. Because in addition to her no-dx ostomy she has, you guessed it, EDS & POTS and needs those sweet, sweet saline infusions.
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Speaking of EDS, it seems like she has fallen into the regular trope of the munchies singling out a doctor who is compassionate but steps out of his specialty to give them a dubious diagnosis.
In spite of Molly saying she got a diagnosis of POTS and joint hypermobility, this Dr. Sica fellow doesn't sound like he's 100% equipped to sally out all of these diagnoses. You can see his faculty page here:https://medschool.vcu.edu/expertise/detail.html?ID=183
But also it sounds like all and sundry munchie and OTT spoonie has crawled out of the woodwork to get this guy to slap on the diagnoses. Googling "dr. sica dysautonomia" returns the top result as a pinterest page, and then handfuls of personal blogs coaching others to find a doc (with Dr. Sica being mentioned specifically) to diagnose POTS. (To be clear, I'm not slamming this Dr. Sica, I have a feeling he's a good guy who wants to help people, but these cows take advantage of that.)
What I'm saying is that it sounds like Molly is doing her research to find someone who is eager to slap a diagnosis to validate her ileostomy. If she can't blame Crohns or runner's colitis, then she's going to grab for the first diagnosis a qualified medical professional is going to offer.
Bizarrely, she has more or less written off the input of actual gastrologists, because they won't give her what she wants. In that first post where she decries medical professionals for not believing their patients, she specifically singles out one Dr. Butt.
If you Google Dr. Butt gastrologist, I'm fairly certain this is the guy who told her to get a life:http://www.delawaregastro.com/index.cfm/fuseaction/site.physicians/action/dtl/phys/99855464.cfm
So it sounds like the specialists for handling something as severe as a ileostomy didn't want to do something so invasive, so she managed to munchie her way into getting a visible prop for what seems like blatant orthorexia and anorexia. She's made posts humblebragging about her underweight BMI.
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Because these are totally things someone with gastroparesis can eat…
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I’m pretty sure these medications would NEVER be prescribed in conjunction due to the massive interactions that’d happen, ESPECIALLY in someone who claims to have seizures…
Can a medfag confirm/explain this further?
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It's hard to see but that pill does have the 2 yellow bands - you can see them just above the 'c' in Lunch. Paige has also posted medication lists before that have included Gilenya and have had her name clearly printed on them. I don't think there is any dispute that she is on Gilenya.
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New cow? Not sure if we’ve ever spoken about her. But classic POTS/GP claim, and just decided to shave her head… probably so she can get some sympathy points out in public so she “looks sick”.
Pic is captured “bald is beautiful”
Honesty surprised Autumns no on this level yet, although she has said she wished she was bald and had cancer so she looked sick
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So now she needs iron transfusion? And unsurprisingly, she “can’t tolerate” her feeds because of her “pancreatitis” that was so bad she couldn’t vlog or post to IG or, oh wait, she could do those things and was smiling at every point during her hospital “adventure”. Anyone else get even more of an ana chan vibe from her now? She clearly was fine, but used her recent procedure get hospitalized and get all that sweet sweet attention also have an excuse to not run her feeds. And that’s an ana chan “trick” some use who even aren’t munchies, get hospitalized for a supposed “physical illness”, get an excuse to not eat while being somewhere you can’t just walk to the kitchen and get food when your “willpower is weak”. Aubrey is clearly capable of eating, since she went weeks without a tube and didn’t have any serious consequences and didn’t even lose weight in any noticeable amount, and even now she doesn’t run her tube at a fast enough rate to giver her even close to a survivable amount of calories. And she shows off her body like an ana cow, including the angles she takes her selfies at. It’s almost like she’s flaunting how she’s skinny and getting away with that
Pancreatitis is pretty rare as a unique event, usually it's associated with severe gallstones or with high alcohol consumption.
Gallstones, it should be said, are themselves highly associated with crash dieting.
Because Autumn reads about a disease and then definitively decides that she must have it.
Upset stomach? (after being started on antibiotics) - must be GP (and not medication side effects of total bs). No surprise when her GES came back completely normal!
Ask about symptoms of the medication you were prescribed. Describe these neurological symptoms to your doctor. Must be MS or ALS - totally not a just common side effects of the meds you are taking
Follow every spoonie on social media, mimic their symptoms, and then ask them questions. Someone tells you about MCAS so you must have that.
Autumn's main problem is related to mental health and while she mentions it in her bio it seems to be the only thing that she does not obsess about.
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>>434156>>I've never ever heard of someone with EDS needing an ostomy JUST for gut dysfunction from it
I have. Usually it's a combination of things like bad motility, prolaps(es) in the pelvic area which makes for a nice vicious circle with the former, stretched out portions of the colon, diverticulitis, years of opiate use, wheelchair use making the motility even worse, etc.
Having said that.. scrolling through her Instagram without even knowing her story one can see that she is kind of obsessed with her ostomy. To the extent of what she says in the attached screenshot.
I don't mind people wanting to raise awareness and showing their bag in pictures. Although I have to say, personally I don't find it very good taste to make pictures of yourself with a clear bag and no cover over it. Or at least post a warning and put a spoiler on it if you're going to show your actual poop. Otherwise, I don't care. As long as you use either an opaque bag or put a cover over it, I'm OK with people showing their bag while wearing a bikini or whatever. It's part of your body and that's OK.
I'm even OK with people naming their ostomy. It's not my style, but if you like have a particular noisy ostomy and want to call it Bert, I don't care about that. I even get that people can be glad with their ostomy if it saved their life or gave them a much better quality of life. That's all fine as far as I'm concerned.
But she just takes it too far. Showing it off in almost every picture? Calling your ostomy "a cutie
"? Now that's creepy. She reminds me of Jaquie's showing off her tubie pads in every other vlog, and saying she was "proud of her feeding tube" when she got that precious button. Now that
I think of as being quite.. strange.
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(sorry, samefag; don't know how to attach more than one pic)
Also, if she actually has EDS, she has EXTREMELY
good control over her joints and muscles. That's a screenshot from a video that can be seen here https://www.instagram.com/p/BZuOVbcgWEM/?taken-by=mollyollyostomy
I'm not saying someone who is able to do that can't have EDS, but I think it's fair to say that if someone with EDS has that kind of control and strength, they'd probably be (very close to) asymptomatic.
Although I guess it is possible to have good strength and still dislocate joints with sudden movement or while sleeping (you can have all the strength you want, it's not gonna help you if you go limb during sleep) but well.. I think it'd be quite rare.
Found another EDSer who has an ostomy. She was suffering from rectal prolapse (see her 4th post from the bottom) which is a huge part of EDS and a big reason to get a bag.
She tags all the ostomy tags, then the pots, eds, mast cell, and endometriosis tags.
She also gets saline and has a port kek
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Why aren't her neighbors helping her pack as she is just so sick and they know that since she visits with them everyday..or the boyfriend?
Anyone else get the feeling she is getting pulled out of government housing finally?
That's got to be a blow to her given every year she starts panicking grasping onto anything she can to claim so helpless to keep her disability and housing.
She used to complain that she hated the housing because she had a curfew (I've only heard of that in therapeutic type housings, but maybe it's a thing) and no one could even spend the night with her and absolutely not stay more than a few days like a boyfriend would do to get away with living there but not get caught.
I really don't think she has a boyfriend and I don't think he's using her to get laid.
She never complains about being intimate and as sick as she is and all her major issues having sex would pose a problem. (I think she's talked about it once in many yearss)
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Oh no y'all! Aubrey is back in the hospital, details in tomorrow's monetized vlog!!
Oh I really hope they notice her taking cheery selfies and treat her with high suspicion.
All I have tonight is shoulder pain but it's enough for me to be utterly bloody miserable. I'm not giving a thumbs up if you paid me.
Definitely not good at being subtle about it - there have been multiple times where she straight out posts asking what people's symptoms are, how they started. It has happened several times in her IG stories but there are even a few straight IG posts of her asking.
I think its partially due to laziness but also partially her being a smart munchie (or at least maybe learning from experience). If you show up at a doctor and start listing the first 4 symptoms that show up on a google search (and do it multiple times for multiple illnesses) it is going to look more suspicious. She seems to try to find out how the illness may start and progress so that she can slowly start introducing those symptoms to her doctors
I am both surprised and not surprised by the lack of posts following her port placement. She is either trying to lay low because more and more people are catching on to the fact that she is making stuff up. Or she accomplished her goal of achieving a port and now is bored of it and must figure out her next move. (She seems to get very excited by new toys/possibility of new toys but then gets bored of them very quickly - all her mobility devices and braces only make a few appearances and then disappear).
She never posted anything about her custom wheelchair evaluation. She clearly doesn't need a wheelchair - much less a custom one - so I doubt insurance would cover it and that price tag may be too big for her parents to pay for it (seeing as they thought she was crazy for getting the original one in the first place)
Now she has upped it to 2 neighbors! So sad that she feels the need to adjust her life story in response from a website that does nothing but criticize her.
Has she actually said that she has to leave her current housing or is it more that she is just saying that she is planning on moving. Based on her response that she is "still searching but trying to get stuff done early", I suspect that she is still pretending that her and her boyfriend are going to get a place together. I highly doubt that will ever happen - the only reason she started claiming it was because the health of that "relationship" was questioned on here (because if you have apparently been together for 14 years but you barely see each other, live close by but not with each other - and aren't a religious pair that believes in no sex/living together before marriage, and don't help each other out - its probably not a good relationship).
Her claims about the housing are very strange indeed - I am in a different state but go into a lot of section 8 housing/government homes and have never encountered those rules. There are typically conduct rules that can get you kicked out of the housing but not curfews and I haven't seen limitations on guests visiting as long as they adhere to the conduct rules - aka don't deal drugs or destroy the place). She seems to have a "rare" unit in her building (a double unit combined into one) so it seems silly of her to risk losing it. Even if she loses disability she probably still qualifies for government assistance based on her lack of income.
The neighbors she visits are probably some sort of elderly couple who take pity on her but can't "help" her because they old and have their own health problems. She used to give a play-by-play of her day in her videos and never mentioned visiting neighbors.
Criticized for not having a hobby - stress that she is reading
Criticized for her unhealthy relationship - claim they are moving in together
Criticized for not socializing with anyone except her parents and aunt - claim that she visits the neighbors daily
You may have a point about her thinking she should be recovering.
It seems very likely that she reads this thread. More and more people are commenting on her inconsistencies. If she reads here enough she would realize that it raises suspicion when people post a ton/do things when they are supposed to be recovering or are supposedly in pain.
I wish that when she asked other people about symptoms/disease progression that someone would start to throw out some really random symptoms and see how long it takes for her to adopt them
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Okay so there's a huge munchie growing on insta. Today she posted two answers from her sarahah account (anonymous questions) that make it seem as if her "pots" is caused by an eating disorder. You just know that next she's going to be saying she has GP.
Picture confirms that she has not eaten for days at a time which makes her dizzy and ligthheaded.
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(part 2) Then in the next one she says that those same symptoms are what tipped her off to POTS.
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The question she replied to was "have you found a new place?"
This just confuses it more..she talks about not having much money, and the boyfriend obviously doesnt get paid much either given he couldn't pay the car note that she had to pawn her rings he gave her and borrow from her father to keep it from being taken..shes section 8 and I think her weird rules are because she is lying about her relationship all together. But yea it makes no sense to give her housing up..specially if it's a nicer place than the others and low rent (or is it free?)
Even if the rule is real about visitors that guy could easily live with her there. And then he has more money because he has cheaper split rent with Dani in housing.
The boyfriend has a place….why would she not move in? She has said he lives alone. It just doesn't add up why she is looking for a new place in her situation.. which is why I really think she's loosing it. That or last minute something will happen and she will not move and stay there another year. It just feels like this is another freak out about trying to manipulate the government like she does every year.
She meets with her case manager a lot! Or it seems like….i find that strange too..if she were as sick as she says she would be getting better response from Medicaid as this case worker knows her situation very very well..its weird.
Most likely making up rules to try to explain why her "relationship" seems so strange. A group home or halfway house might not allow visitors and have a curfew. However, I have never heard of section 8 type housing having a curfew. If the boyfriend were to move into her apartment they would have to let the government know he was moving in and his income (and depending on his income it could change their voucher amount or make them no longer eligible). And being a homebody who doesn't get out much - I doubt she is doing anything that would annoy the neighbors/landlord enough to report her even if he did move in.
I don't think the "boyfriend" has any intention of moving in with her. If anything he may have agreed to look for a place but will probably find reason after reason to not do it. Since neither seems to have much money (she claims he gets final say on the house since he will be paying for most of it - which basically means he can put it off indefinitely). She is either just claiming to be looking for a place to try to stop the rumors on this thread (since we know she reads it) or this boyfriend does exist and he is just stringing her along.
It sounds like she was originally put on disability for her eating disorder. I suspect it is the mental health issues and not the super severe GP that has kept her on disability this long (although she said that even her therapist thinks she needs to come off disability). I don't follow her most recent account but didn't notice her talking about a case worker a ton. It could be because there is someone checking in with her regarding her mental health. Case workers usually have crazy caseloads so trying to help her with her exaggerated medical problems is probably not a priority.
I doubt she will be kicked out of her housing. As annoying as she can be (in terms of being a cow) she probably isn't a terrible tenant - her rent gets paid (she has said her father has promised her she will always have a roof over her head and food in her fridge so even if she can't pay someone will). Her apartment certainly isn't clean and she may punch the occasional wall (but probably not hard enough to break the wall) but in general she probably isn't doing much damage or creating a lot of noise.
In her financial situation, it makes no sense for her to move out - unless she were to move in with the "boyfriend" at his current place (and for her sake I hope not - if that relationship is real it is 100% not a healthy one).
Oh but she is starving! It's why she's trying so hard to manipulate her Drs into getting those cool tubies for whoobie pads and buy a ton of crop tops to "challenge her ED"
And she's in a research study she must be very sick or she wouldn't need to be in the study! (I think she feels this way about the study..that she's a special enough case for research and only really sick people and/or really rare diseases can do.. which is not how it works but the way she stresses the study really makes me think that is what she thinks about it)
And lets be honest, she will have a
wheelchair before long..not by dr order, but I'm sure she will eventually just buy one online or a used one and claim it's from an order due to her severe GP, all her bad dizziness and fainting and 247 feeds(because she's starving to death and can't tolerate night feeds despite physically being able to do so) so she doesn't need that backpack anyway because what is the point of doing tube feeds( you've fought so hard for years to get) if it's hidden in a backpack when in public? That's the whole reason she needs tube feed.
God I really hope temple resists this tube crap and strings her along to prevent additional manipulating and dr shopping..thankfully temple knows their shit and it's pretty hard to munch compared to other GIs..they work with a lot of ED patients there..tubes are invasive and temple knows her history so that keeps me hopeful because the poor girl will end up severely damaging herself if not killing herself with a tube.
Speaking of her living arrangements if she were having all the symptoms she says she wouldn't be living alone..or driving or walking places.
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I can't help but notice that lots of MyBlondeVoyage's posts while she's been "in hospital" (aka at the alternative medicine clinic) have involved going out with friends in London, modelling on shoots etc. She must be cured!
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Oh shit fam…She has a super rare tumor. Can't say I saw it coming, but I bet her munchie self is shocked beyond belief now that she's actually (if she's telling the truth) sick.
Cancer!? Oh wow, she actually looks unhappy to be sick.
So that's Lyme, GP….and cancer. I'm guessing the stuff she's exaggerated will fade into the background now. What's the type of tumor?
It's a Neuroendocrine Tumor, which can be benign, Pancreatic Cancer.
And I agree, she did look quite distressed and not all that happy…But hey! If they're gonna do chemo she already has a nice port for them to use.
Treatment depend on the kind of PNET it is.
So the thing they removed from her pancreas then?
If she has pancreatic cancer, that's a fucking awful blow for her. It's very rare in under-50s.
But they want to be sick but in control. Calorie controlling through their tubes. Carefully curated illnesses, arranged perfectly for their vlogs and Instagrams.
Cancer won't play nice with that.
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Whoops, meant to attach the screenshot of her insta post.
If it's true, that's awful, of course. But I'm not sure we can take her story at face value. I'm not a doctor and don't know anything about this type of tumors, but is it possible she has a benign tumor and is just telling us it is cancer? Or - maybe - just is straight up lying?
I don't know - of course munchies can get genuinely sick. On the other hand, lying about cancer is pretty common among patients with factitious disorder and seems to be even more common in MBI.
Since it was (if I've read this right) a mass incidentally found during the surgery to remove another (benign) mass, perhaps they took a biopsy?
That's me being very generous.
Yeah, I'm wondering about this, too. Especially with a sibling with a pancreatic mass– shades of Ruby Shallom are starting to creep in here. Some of the worst munchies have used cancer as a fake illness.
I'm going to say that I'm remaining skeptical until she posts some kind of legit documentation, or she shows overt signs of suffering from cancer. If it's benign, she should be fine– benign masses suck, but they don't have the systemic affect that malignant masses do.
But otherwise, I'm going for her letting people believe she actually has cancer, when she has some kind of benign mass that has the possibility of becoming cancer waaay down the line. Sounds more her speed.
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presented with "kek"
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They did do a biopsy originally.
I am suspicious as well. What are the chances of someone who desperately wants to be sick actually getting an illness? We already know she’s lying about being able to eat, and let’s be honest, chronic Lyme isn’t even a substantiated illness, let alone one that can cause pots and GP (way to go, Kate’s farms, enabling malingerers one munchie at a time). Sure, she looks upset in the video, but in her IG post she looks pretty damn excited for someone who has cancer. And nowadays a good percentage of cancer is treated outpatient, they prefer to have people in the hospital as little as possible because of the risk of them catching something. Also, if you found out you had cancer, would your first reaction be to YouTube and IG it? Cancer is a munchie’s wet dream, but they’re only looking at it from the perspective of all the attention the patients get. Who knows if this is just another ploy for attention. I won’t believe it until I see some sort of proof.
They told her it was cancer, but after they called to say it was benign, and after she was back at the hospital. That sounds fishy to me, labs are super careful about not screwing up that kind of a thing, and it sounds like she went back to the hospital on her own accord for whatever reason, and they just happened to tell her. Also, we saw her gowned up for a procedure, but did anyone actually see evidence of them going into her pancreas? (Bandages, bruises, anything?). How do we know she’s not in the ER for another random complaint, and that she actually had a biopsy done? Munchies have lied about having cancer before, she wouldn’t be the first. And we know she lies; she lied enough to get herself a port and a feeding tube.
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Call me crazy, but this doesn't look like someone who’s upset about being diagnosed with cancer (although she jumped on that tag right away). She looks positively thrilled, which I’m sure is helped by the nearly 200 comments about how everyone loves her and how brave she is and asking how they can help, etc.. (Not to mention that she’s drinking carbonated water, which would make anyone who actually had GP or mals pretty sick).
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Of course she’d love that, being the center of attention
They don't mess around with the pancreas..pancreatic cancer has one of the highest deaths..so any type of and normal tissue would be biopsied anyway.
So if she was or she's Baylor in Houston she will not get away with faking these motility issues at all..the motility Drs at Baylor are the big guys in Houston. I've had encounters with a couple of people faking GP and dr Shari dies not tolerate that shit at all.
Maybe that's why she hasn't been back? Or if she is still going to Baylor maybe that's where this cancer scare stimmed from?
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This girl cannot be for real.
Christ alive. Her vlogs are such melodramatic bullshit. She's really reveling in being able to sob over what she's calling "terminal illnesses", like her gastropareisis. It sounds like the local offices around her have more or less turned her away, most likely because she's perfectly fine but shopping for diagnoses.
I feel like she doesn't have a grasp on the actual severity of her conditions. Even if she does have GP or some lung disease, they aren't "terminal", any more than any chronic condition is "terminal". Just because it can cause your death doesn't make it a terminal condition.
She just loves milking this frail, brave young woman wading through some unfair circumstances.
Get a life. Get a job. Finish school. Stop saying stupid shit like, "She didn't gain no weight." shudder
Here's a timeline of the Aubrey cancer issue. I've been watching her videos for awhile.
Her history is very weird, and I now have a question. Mmedfag help me out, at the end please, with my question.
She had epilepsy before college, and then developed lyme disease during college from leading camping trips for first-year students coming to college. She has been fighting lyme for awhile, although I don't quite understand the length of time for that. She also has a POTS diagnosis, GP, and???
Her Austin GI sent her to Houston for the celiac plexus block. That doc found "a mass" on her pancreas and took a biopsy.
The celiac plexus block was outpatient, so when she got back to Austin (where she lives), she started experiencing pain and went to the ER where she was admitted for pancreatitis.
She was then discharged after a few days, went home, pain continued, and she was instructed to come back to the hospital if she still had pain after three days. On Day 3, she got the call that her mass was benign. On Day 4, she still had pain so she decided to go back to the hospital and was getting her bag together when the doctor from Houston called back to say that her mass was indeed a tumor. he did not use the word cancer.
She now has a dilemma. The GI, that she loves, does not have practice access at the hospital that she likes. So why doesn't she like her GI's hospital?
Well, that's a bit murky, but I think it's because when she wanted her feeding tube placed, she went to that hospital and the GI surgeon refused to put the tube in and made her cry. So they ended up at the hospital that she likes and that's the one she goes to now, but her GI doesn't have rights there. They were "nice" and put the tube in.
So, when she went back to the nice hospital's ER because of the pancreatic pain, she told them about the mass/diagnosis, and they got her records from Houston, connected her with the cancer team in Austin, and one of those doctors told her she had cancer and admitted her to the cancer floor.
That's how she found out the tumor was cancer.
The feeding tube story is sort of interesting, too, because when she first went to get an NG tube, the GI at the hospital wouldn't place it without liver tests, upper GI scope, etc. They placed the NG tube and then realized the hospital didn't have the formula she could have while on whatever diet she follows for Lyme, so she went home with a tube and no feeds.
The pancreatic cancer team told her she will need additional tests to make sure she doesn't have additional tumors because this tumor can grow on other organs.
So, medfags, is it possible that she has other tumors (or even just this on) that have caused all her symptoms (from lyme symptoms to GP symptoms) for this long? Her celiac plexus block seems to be working so that makes me wonder, too, if she has things wrong, but not lyme and not GP?
Pancreatic cancer isn't usual in her age, so the docs would not have even considered it when she showed up as a 20/22-year old complaining about symptoms.
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This munchie again, saying the vaccine caused her autoimmune disease (EDS) it’s not an Autoimmune disorder?
From Houston's side of that it's believable..those GIs are not the most pleasant people unless they are very interested in your condition..Baylor is the big place in Houston got Motility now and they do not give tubes out like candy. They are very big on the pacer and domperidone treatment and of course research and all that. So if she was in their radar with questionable GP chances are she did not enjoy those Drs. They are great Drs for people who they feel aren't wasting their time and know their shit very well. I wish theyvwould send eveeyone with questionable motility issues to them first to weed out the munchies and others..Austin is much smaller and doesn't have a big motility facility with Houston being so close…which is likely why she was sent to Baylor in Houston for better testing, second opinions and more options.
What isn't making sense to me is this block is basically 2 shots into nerves near the spine..they put one in each side and use xray or fluro to make sure they are in proper place, pain med is administered and needles come out and bandage goes on.
It is near the pancreas and they use this block for a lot of cancer pain..
Now I'm wondering how her amazing Dr decided to check around her other organs during this block (not a surgery)
If they used a fluro then it's likely when they injected dye to test placement it was obstructed by this tumour..but for them to biopsy it they'd have to remove the needle, insert the larp one to make a puncture for a biopsy needle to get it which is not a big deal but it would not be possible to look at her organs without putting her under general and setting up for an exploratory larp or a make shift one some how..they usually just give mild sedative or conscious sedation for these blocks.
Am I missing something or misinformed about something here? It doesn't make sense
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Little miss Von Willebrand.. yet no bruising around the port site. Miraculous really
I think she was out for the celiac plexus block.
And she said the doctor told her he decided to look around while he was in there…She describes his process fairly clearly in the celiac plexus video. I'm sure he was curious about the feeding tube and port and all the things and asking the bigger question, "WTF???" if only to himself.
I could see him (and I don't know anything about the medical side of any of this), but I could see him noting potential pancreatic pain when he did a physical exam, along with the all-encompassing question asked by knowledgeable docs, "WTF???" and deciding to look while in there, if only to show a med student something.
I am still very on the fence about Aubrey…She's is OTT, but she tries to live. She dropped out of grad school but she is going to classes to learn to code and she works part-time. She's OTT for sure (just look at the thumbnail of her intro video) but when she looks pleased at getting admitted, I always get the sense it's because someone finally believed her symptoms for a change.
Now…having said that, I don't for a minute think she was in 10/10 pain as she reports when she went in for pancreatic pain. But I do believe she was hurting and I do believe something is wrong with her. I'm wondering if she watched Jaquie and others and confirmed for herself via Dr. Google that she has lyme and found a doctor that supported that theory, when in fact she has something else entirely that has gone undiagnosed, the edge of which was uncovered by the Houston doctor who did the celiac plexus block? Now, the team in Austin will figure out the rest.
I watched her "I have cancer"-vlog. It's weird to watch and I really
don't know what to think. But if she is telling us the truth and she really has cancer, her reaction to that news is imo really unhealthy. She is endlessly summing up the positives of this news and not showing any actual distress over it.
At 7.50 she tells us she is being admitted to the cancer ward and the doctor just told her she has pancreatic cancer. Without any change in her voice of demeanor she says "That was really hard to hear him say that. So.. I have cancer. That's a lot to digest. But.. I have already fought so hard, and I know I have the strenght to get through anything that is thrown at me. I have a lot to be thankful for, and if the next thing I have to do is beat cancer, then that's what I am going to do."
And how does she end her vlog, the vlog of the day she hear she has cancer? She rounds her video up by basically saying "There are a lot of positives in today.. I am a fighter, I know I can get through this, etc., etc."
It's weird. I know we all seem to be a bit more careful than with other issues, probably because it's about cancer. I mean, accusing someone of faking cancer when you're not really sure is pretty horrible. But that's also true when it is about other disorders or illnesses. We all know Aubrey has either factitious disorder or a somatoform disorder combined with an eating disorder (and when a patient only lies about things surrounding food and eating I think most clinicians would be a bit hesitant of adding a diagnosis of factitious disorder). But personally, I don't feel I 'know' her well enough to be able to tell if she would actually go as far as fake cancer. And if she does, her husband must be in on it, too as he was with her during at least a part of her vlog. To me, is different from exaggerating and/or lying about symptoms to get certain treatment(s).
But there are several odd things to her story. -First of all, like another anon pointed out, how did they find a tumor by accident during a plexus block?
-How can they make a mistake like that? (She was first told it was benign)
-She is admitted for her pancreatitis, but is admitted to the cancer floor. Is that a commom thing? She also immediately speaks to the surgical oncologist and they already seem to have a treatment plan.
-Her flat affect and her frequent use of the word 'cancer' without any show of emotion. She showed a lot more emotions when she was in hospital and they wouldn't give her a tube, to name an example. But in this vlog: no emotions, not from her and not from her husband.
-It's a neuroendocrine tumor that as I understand it can grow on different kinds of organs, but one doctor also told her she has pancreatic cancer. My understanding of cancer is that you only would call it pancreatic cancer if the tumorcells were pancreatic in origin, right? Then would a neuroendocrine tumor on the pancreas even be refered to as pancreatic cancer?
On the other hand: her cancer vlog is viewed about twice as her most popular vlogs so far.
She looks genuinely pleased/happy with the while situation.
And absolutely feeling those pain meds..so if they admitted her for pancreatitis it is a painful condition but it is not cancer.
But since her brother had this it's very possible she actually goes have a tumor they need to remove..pancreatic cancer is terrible and has a low survival rate so for anyone who's dr somehow saw any abnormal anything on the pancreas they are going to do biopsies and remove it cancerous or not.(there's always exceptions of course)
It doesn't make sense that he found the tumor doing a block..its two needles xray or fluro..so the only way would be if he got super lucky and injected the placement dye check right near this tumor and the tumor would have to be obstructing the dye from flowing past it.
It's possible but for the dr to have looked at other organs she would have more than just 2 needle pokes. There would be a camera and anchor, and 2 "arms" at the very least which is 3 separate incisions..maybe they told her it looked begnin but will see what the biopsy shows..that would make a bit more sense with the different claims..it annoys me because she's trying to come across like she's got a serious cancer going on when in reality she is either lying and manipulating (all the inconsistencies and hospital hopping..Austin is capable of doing that block..) or she has a tumor/mass or abnormal issue they biopsied and will just remove and send her on her way..shes repeatedly said she's lucky they caught it so early..and here brothers was removed and is fine..
if it were pancreatic cancer they'd be aggressively treating it immediately if so not loading her up on pain meds for pancreatitis..
With it being a Neuroendocrine tumor is it possible that its a growth or a blockage in her glands that produce hormones?
Has she been having any major blood sugar issues? You can have blood sugar issues and have a fine pancreas but you can't have a sick pancreas and fine blood sugar. (Again always exceptions)
its just a strange situation. I don't know what to believe. But regardless of her situation she definitely reached her munchie goal with this..everyone is talking about it..itll be interesting how it plays out.
She's my all time favourite munchie!!
Claiming she's dying because Dr. told her her POTS and GP is terminal
She also says she does not have CF but something very similar (Kek)
Says she hasn't been drinking for over a week and doctors still denies her a toob
That poor poor girl
If it’s cancer, the tumor is malignant.
Benign tumors are not cancer, but sometimes they can possibly
become malignant, at which point it’s cancer. But a benign tumor isn’t cancer, it’s just a tumor.
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I’m not a doctor or a pathologist, but there’s a pretty obvious difference between cancer and not cancer, and you’d think if pancreatic cancer was a possibility, they’d do the testing as soon as possible, instead of saying that they don’t know.
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Whether she’s actually sick or not, she is absolutely loving all the attention. Also, what happened to her “pancreatitis” and “10/10” pain? As soon as she got a “better” diagnosis (if she was actually diagnosed with cancer or not), all that seemed to be forgotten.
"I'm truly at peace with with this diagnosis"
What? I can't think of any reason to be at peace with "cancer" (even faked cancer and exaggerated benign growths)
"I know everything is going to be ok"
Because you know it's simply a little mass near a duct that is being removed.
"I'm confident they will get everything out with surgery"
Because she knows it's benign and easily removed. She watched her brother have surgery to remove the growth. But hey maybe she will get "lucky" and they will do an exploratory surgery while in there and find many tumours (I get a feeling she is going to claim this even if it's a total lie)
That feels so off to be said after what she is claiming..and it's strange she didn't address the diagnosis and full plan..
She doesn't really refer to all the other illnesses that way. She names them and goes into details with them.
Typically if you have a risky cancer treatment tends to involve a little bit more than just surgery to remove the mass..
This photo turns my stomach it's insulting
Because she's not mentioned chemo, treatment, just "lucky it was caught early" and boundless positivity, I am seriously doubting she's been told outright that she has pancreatic cancer. If I had to bet, I'd say that it's a benign mass that will be removed, but she's going to tell everyone it was cancerous but she doesn't need chemotherapy - either wilfully misleading people or because she's an idiot that doesn't realise benign tumors aren't cancerous.
But probably the former.
Sarah smith was that girl who was anorexic but a several years ago was pretending she had cystic fibrosis, she was one of the first munchies to scam people out of money doing a gofuckme and all that; she told people she had a fatal illness to get money and attention, but took it to an extreme. She ended up getting found out and now lives in obscurity in Michigan.
But Aubrey’s lack of treatment plan and test answered doesn’t fit a normal cancer diagnosis. I’m pretty sure she’s assuming or at least saying cancer, when it was either just a tumor, or she’s in the hospital for something else.
Holy shit this is giving me some hardcore
Vampire Munchie Kelly vibes.
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Chronicallyp mustn’t have gotten the diagnosis she wanted. What an asshole
What the?? She is an adult is she actually full on slapped a doctor she would not get away with it in any UK hospital unless she was on a tonne of meds or something/ coming round from an epileptic (not PNES) seziure (in which case she wouldn't be instagramming!). What the hell is wrong with her????
Her account is private so I can only see her bio but…wtaf…
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Seconding the anon calling bullshit on this. Lying about assaulting a doctor is almost as pathetic as actually doing it. She needs to grow up
Seriously. It really doesn't matter how sick you are there is no way they would leave you feeling like you'd 'gotten away with it'. Even if you did this because you were incredibly ill (say severe psychiatric distress, autism etc.) they very much let you know it was wrong and the potential consequences, even if the doctor doesn't choose to have you transferred/ spoken to by the police/ press charges.
NHS staff put up with a lot of crap often from patients who are genuinely ill and don't understand their actions but they still make it clear it is unacceptable.
My autistic brother broke his arm and had to have it treated, he hit a member of staff in the process because he didn't understand. He was even more upset because he had hurt her (though not actually injured her). The hospital didn't call the police or anything but they did make it very clear it was unacceptable (obviously they did this in language etc that he could understand).
This is just disgusting behaviour from an adult with full capacity.
do people in the uk actually assault their doctors so much that you all need a PSA about it? wtf??
like honestly you have to be the scummiest person on earth to want to physically injure a healthcare worker.
Yeh…good luck getting a psych bed in the UK. It is freuqent that there is no bed in the entire country avaliable.
Which is basically why we have PSAs in the emergency department reminding people not to assault staff (that and drunk, injured people).
What happens when one government decides as many people as possible should be treated in the community and then then next govenment cuts most community care!
Which is why it is particularly bad that certain UK munchies use up actual millions of pounds on unnecessary treatments.
Yeah, it's a real problem over here. Mostly drug/alcohol-related though, not just random spergs.>>437119
explains the issue pretty much spot on.
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Sucking in to show off her “tubie” pad.