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File: 1512686281345.jpg (12.58 KB, 320x180, jaquie.jpg)

No. 439930

Jaquie Blake Beckwith, AKA chronically_jaquie, is one of the general Munchausen's/OTT thread (>>>/snow/387658) Munchie Queens.

Instagram: https://www.instagram.com/chronically_jaquie
Instagram: https://www.instagram.com/helper_dog_harlow
YouTube: https://www.youtube.com/channel/UCKaX0dQwEUgTafzCZ2yEjUQ

- She has a Patreon for people to pay her to be "sick".
- She appears to have a few genuine illnesses, but overall contradicts herself 99% of the time.
- She has a button tube but shoves crap food into her pie hole most of the day. Claims she cannot tolerate her formula, and has to get a special type, but can eat fried crap.
- She has a service dog (Harlow) who does tasks that she is quite capable of doing (like grabbing a blanket across the room).
- Her service dog does not get worked the way a service dog should.
- She will not respond to messages online (except on her Patreon) because of "safety issues" (though we're pretty sure it's because she wants money to talk to her).
- She will not allow people to send her mail because she is too sick.
- Refers to herself as a "genetic anomaly".
- Claims to have EDS, POTS, narcolepsy, cataplexy, autism, unspecified immune problems, a mutated mitochondria, and too many other things. Surprisingly, Factitious Disorder is not on her list.
- She appears to be copying Mary Fray.

She enjoys deleting comments that call her out, and has an excuse or explanation for everything, something that is found psychologically in pathological liars.

Everyone is tired of her, even her family, and some people in the Munchie thread, so here's a place to talk about her to your heart's content

Previous thread >>>/snow/422534

No. 440011

File: 1512696850286.png (1.51 MB, 1242x2208, B0BE0BDC-CB58-4E7D-B6BB-18DAD0…)

Ok..

No. 440015

>>440011
she was wearing it all the time, what happened?

No. 440029

>>439707

late to the party, but i only lurk this thread every so often.

why does she even need ketamine for the hip injection? i get facet joint injections in my neck and all they do is put a numbing cream on my skin and i barely feel the needle go in. no anesthetic needed, so what's her deal?

No. 440042

>>440015
Seriously, isn't she supposed to be so sooper fragile that she can't be left alone without the emergency button? Doesn't seem like something you would just "forget" sometimes if you actually needed it for life or death situations.

No. 440061

>>440042
She not only researches systems, but pays for one, ends up choosing the wrong one, contacts the company, exchanges it. Receives new one, vlogs unboxing, can not get it to work. Calls company, figures it out, sets up emergency service plan with company, yet can't remember to wear it?!? Wtf? Not as much fun as she thought it would be? Sad it didn't come in pink?

No. 440070

>>440061
Does she not realize that in actual chronic illness it’s common to put off things such as cleaning and scheduling appointments and dealing with insurance companies, etc., because just normal life is so exhausting? Yet she’s on top of all those things.

No. 440120

>>440070
I have two theories on the clean house thing.

1. She just likes having a clean house. Since she's Jaquie she has infinite energy for things she likes, therefore the house is always clean regardless of how she is allegedly feeling.

Going against this we have the fact that she's an absolute slob at Janiece's house and is always creating piles of medical litter in restaurants. But that could be accounted for by those places not belonging to Jaquie so Jaquie doesn't care enough to keep tidy there. Also making a mess in public/at a friend's house means they can't forget you're soo sooper sick.

2. Judd does have some basic expectations he expects of his stay at home wife. He seems to be a traditional sort of guy who expects his wife to cook and clean for him and other than that doesn't mind what she does all day while he works. Maybe as selfish as Jaquie is, she's still self-aware enough to know the muchie train will get harder to ride if she starts slacking on her basic responsibilities. See also: no matter how crap she allegedly feels, she always has dinner prepped for Judd to heat up when he gets home. (Even if it's often a fuck you dinner of food he hates.)

Going against that is of course that Jaquie never does anything considerate for Judd so it's a stretch to think his opinion on the housework matters to her.

No. 440158

>>440120

I guess her playing the perfect housewife role isn't for Judd. It's to make herself look better. Pleasing Judd is just a byproduct. If she REALLY cared about making him happy, she'd at least cook him the food he likes. Not force feeding him fucking carrots for the fifth time that month.

Jaquie if you're reading this, please, please feed that man a steak. With potatoes and a good sauce. And beer. We all know you can't eat steak, but that doesn't mean he can't come home to one.

No. 440191

i really can't understand how anyone would fall for this level of munchie. this bitch has healthy hair, normal skin, the body of a moderately active person and claims how many illnesses? yes, there are "invisible" ilnesses but people tend to look like wrung out dishrags even when they have a tough flu.

No. 440220

Judd seems like a such a normal guy to me, so I have been wondering how the heck they are together. Jaquie is a child mentally, so I don't understand how Judd can be satisfied with their relationship. Does he not crave to be with someone who is an equal adult?
In some videos he seems sad, like the one where he took Jaquie taking photographs and he was talking about how she used to be… I think he was missing the old Jaquie.

No. 440254

>>440029

Ketamine addiction, or "being cute and loopy gets me lots of views".

No. 440262

>>440029
>>440254
True. But her version is that her doctor wants her sedated for the injection because her hip is sooo hypermobile that it's safer that way.

I don't know about hip injections, but I've had injections before in hypermobile joints. Once by an orthopedic resident who was so new to the job he couldn't keep up with the few patients he had and a more senior resident came in during the consult to tell him there's no shame in asking for help. He took that opportunity to ask his colleague what type of injection he should give me yet he didn't have a problem with actually administering the injection in the joint. And that was a shoulder that tends to dislocate with a simple sneeze. I've even had injections with lidocaine in the joint while it was dislocated to make it easier for the doctor to put it back in.
Soo.. I don't know, but if someone who is in his first or second week of residency can inject an unstable joint and it's even possible to inject a dislocated joint, I don't really understand why a pain doctor - the type of doctors who usually are the very best with a needle - can't do it unless his patient is fully sedated. In fact, I've NEVER heard of sedation for intraarticular injections. But that's probably because it is unheard of.

No. 440273

>>440262
If you were treating jaquie, would you rather have to deal with her awake, or be able to sedate her and do your job in peace without having to listen to her fake whining and dramatics?

No. 440274

Shocker: Janiece finally tried a bland diet and miraculously her stomach pains are gone!

Don't worry though, she's already setting the stage for chronic pain as her next adventure.

No. 440278

>>440273
Well, if they would forego the ketamine they could just inject her and ship her out of there. Now they'll have to get er in a bed and watch her pretending to be funny. Plus, if they stopped giving her ketamine there's a chance she won't enjoy her 'treatment plan' as much..

No. 440283

>>440220
Well yeah I could see how he might be sad for missing the old Jaquie. She went from being someone who did martial arts six times a week, was an avid photographer and wanted to be a war correspondent to someone who has completely given up on any semblance of a normal life and avidly collects munchie toys. If she truly had some horrible life changing disease that would be one thing. But she has Munchausen's with a few slight ailments and it has taken over their entire life. Every conversation, every interaction, every outing completely drowns in her super visible illnesses, symptoms and manufactured crises.

No. 440290

You’re all right about everything you’re saying. And sorry if this is a little off topic but I feel like this just also goes to show how fake she is and does things for attention. Saged for minor blogging but I have mastocytosis so occasionally wear a vogmask (not all the time like our munchie friend here), especially during allergy season or around my triggers. I live up north though so it’s cool. Anyways I’ve vacayed in FL and wore the vogmask it was TOO HOT to wear it. To an unbearable point. There’d be no way she could be wearing this mask at Disney world. It’s even hot in FL at night, not to mention so humid. I felt like I couldn’t breathe properly, even though they have a fiilter it’s not magic. Her heat intolerance can not be that bad. She just wears that mask for show. If she claims she can’t wear the compression stockings due to how hot it is in FL and her poor me heat intolerance than how are you wearing a fucking mask on your face? It’s 90 degrees year round Jaquie. It’s stifling.(medfagging)

No. 440314

>>440290
Jaquie’s not sick, everything she does is for show. She doesn’t have mast cell problems, as she doesn’t have the right symptoms, nor does she have any of the other illnesses she’s bought toys for.

No. 440334

why can't jaquie take a taxi to the infusion center?

No. 440370

>>440334
Because muh sooper severe immunodeficiency and germs y'all. This is the chick who says a public email isn't safe and receiving mail in a P.O box from fans is dangerous to her health. No way in hell she would ever use a taxi. Or a bus.

No. 440371

>>440370
And yet she eats out in restaurants all the time and visits Disney and chows down on her stupid Publix cookie…

No. 440376

>>440371
That's why this thread is now titled Adventures of Adjustable Jaquie because her illnesses and symptoms only exist if she can use them as an excuse to abstain from doing things she doesn't want to do. But if she enjoys something, then poof like magic she can do it regardless of what it contradicts.

No. 440378

One of the (many) things I don't understand involving Jaquie is how she is so worried about germs etc from 'fans' sending her things, yet she is fine with opening boxes from Amazon that were still filled by people who could have "passed on germs" to her. Wouldn't most germs that did manage to get into packages/letters have already died by the time it got her her anyway? She doesn't seem to mind opening up boxes of her medical supplies that were, again packed by people who go through a warehouse and pick the items off of shelves. Yet another example of Adjustable Jacquie I guess. What about the blanket she got for being so sooper special?

No. 440382

>>440378
I am not wk/ing her at all - but the ONLY thing I can think of that justifies her P.O. box decision is cigarette smoke. I have a house in one state and have been living in another state for about a year. Sometimes mail slips through the forwarding process and my parents collect it and send it to me. My mom and brother smoke. When I open packages from their house, anything inside reeks of cigarette smoke, whether it's letters, a catalog or something extra they sent. So if that truly is a trigger for her asthma then I can totally understand the need to keep that out. No one is smoking in the Amazon warehouse and the lady who makes those blankets makes them specially for the chronically ill. Otherwise she's just a moron.
Sage for blogging but seemed relevant.

No. 440389

>>440382

But if a fan is sending something to Jaquie then surely they'd know about her super serious asthma and not to smoke around her parcel?

No. 440394

Idk man germs are fucking everywhere you just can’t avoid them I’m sorry. Jaquie just needs to get a pink bubble next to live in and hop around in if she’s seriously that worried about the germs. There’s no real way to avoid it.

No. 440395

>>440389
LOL someone should send Harlow some Angel Eyes for those tear stains from her poor diet

No. 440399

>>440378
Honestly, one of the few things Jaquie does that I can get behind is her refusal to have a PO Box. People send youtubers all kinds of crap. Sure, the person sending it means well but most of it ends up in the trash. I don't blame Jaquie for not wanting to fill her home with tchotchkes viewers have sent. And we all know she would never respond to letters so it's better people don't send them and get their hopes up and inevitably get hurt when Jaquie doesn't reply.

Her nonsense about germs being the reason she won't accept mail is blatant bs but the not accepting mail is a good thing regardless.

No. 440400

>>440399

Not accepting mail is fine, but the lie that it's for health reasons to make her look THAT MUCH more sick …. ugh.

No. 440401

>>440378
I wonder if maybe she did have an episode of anaphylactic shock from something normal like a bee sting and it scared her or traumatized her in some way. I mean I have an unreasonable panic around water due to an accident during my childhood. I don’t swim. Maybe this is Jaquie’s way of coping? Any pshyc people know Iif this is possible?

Saged for speculation

No. 440405

She still calls the CNA who drives her around her "friend"…. Um. No. She is not your friend. She is a paid employee. She has to be nice to you. She doesn't spend time around you outside of her scheduled work hours. That is not a friend. (nothing against the CNA of course but clearly… Jaquie is delusional)

No. 440408

>>440405

That's so weird. Like, surely it would make her seem more ill if she did call her a CNA?

No. 440413

>>440401 Honestly I think Mary from 'The Frey Life' not being able to accept mail from other people with CF is the only reason Jaquie says she can not get mail cause of germs.

No. 440417

>>440413

Except that's a well known fact (especially to someone who has CF). But good spot, anon!

No. 440418

She is having trouble with her toooob again. She is soooper stressed bc "muh nutrishun" except the calories she gets from publix cookies, and chocolate covered rice krispy treats shaped like mickey mouse and cream soaked chicken and pasta, mushy broccoli, carrots of course, multiple fried foods, Menchie's, chocolate milk….. I just don't understand how she can live in such delusion.

No. 440422

>>440418

If she's just stop trying to purge through it, geez!

No. 440436

>>440405
Don't be so literal as to think you can't be friends with a person just because they are working- heck I call my colleagues friends. But I agree with what you're trying to say.

No. 440441

>>440436
Thanks for correcting me but agreeing. My day is complete now.

No. 440442

>>440436

Being friends with your colleagues, and being friends with someone paid to look after you is a bit different. I got on brilliantly with one of my social workers, to the point where he'd stay longer just to chat, but we could never be "friends" in that regard because it would have crossed a professional line.

No. 440448

>>440442
Yes, exactly. I even gave my home health nurse a small gift for her birthday because she rocked, but ffs I'm not going to say "yeah my friend came over and changed my line dressing and took labs" about a person that is paid to take care of me. It crosses a line between professional & personal that is there for a reason.

No. 440459

Because has no other "friends" besides Janeice..no one else can stand to be around her

No. 440476

>>440459

I'm just waiting for her to align herself with the kid in Everything, Everything and say it's because she's too immunocompromised to be around other people.

No. 440493

>>440476
She can't do that unless her next munchie toy is a bubble because how could she go to Disney with that claim?

No. 440541

In today's vlog… "I can't control when or if my feeding tube is going to kink again, so there's no point to [sic] stressing about it."

Hmmm, can you REALLY not control it, Jaquie? Are you sure about that?

No. 440560

>>440541

Her "unkinkable" feeding tube that still, somehow, keeps doing so.

No. 440689

In all seriousness, is it even possible for a feeding tube to kink THAT often? I mean, even in worst case scenarios?? With the most terrible tubes??? It just seems so unlikely that her tube would be kinking this often without some sort of outside interference, or she’s just lying about it. But follow up, if she’s lying about it linking, then she has to be doing SOMETHING in order for her doctor to replace her tube this often, right? They certainly can’t think it’s safe for a person to go under anesthesia this much…

No. 440716

>>440689
It’s not possible, even having it happen once is incredibly rare. She’s fucking with her tube somehow, although I more suspect she’s lying about it getting kinked, since whatever happened made the g port not work as well. I think it’s either been clogged because she purges through it (which could block both parts, g and j), or there’s something (or multiple things) she’s lying about. But there’s no way it’s been kicked every time.

No. 440718

>>440716
I also wonder if she’s just growing out of her tubes, and they’ve had to switch them to keep them from ripping out (because she’s gaining weight, which is obvious by her selfies). That would be by far the most entertaining reason kek

No. 440795

>>440262

My pain doc offers optional sedation for intra-articular injections, so it does happen. As with many things in US healthcare, it must be largely a matter of the doctor's preference and their particular approach to treating patients. But I'm pretty sure in Jaquie's case he doesn't want to answer a thousand questions while he's trying to do the injection, so sedation it is.

No. 440824

>>440795
Really? Wow, US healthcare is strange..


As to the feeding tube sage: I Really hope that surgeon she is going to see actually KNOWS a bit about feeding tube placements. If that's true, they will probably be able to tell her either a) what exactly is going wrong with her tube (probably that the GI screwed up the placement) and maybe be able to offer her a solution which doesn't involve having two tubes or b) tell her that an anti-kink tube can't possibly kink that often, and that something else is going on.

I honestly don't know what to believe. There has to be something going on for her doc to switch out tubes so often and to refer her to a surgeon to talk about having a seperate J-tube. But her explanation about there being only one place to put the tube because of her anatomy and because she is 'so tiny' just doesn't make any sense. So either the GI screwed up the placement and he just tries to explain his screw-up away (which I think is a real possibility; it's clear he didn't have much experience with this type of tube and we already know he can't be the sharpest knife in the drawer if he goes along with Jaquies shit) OR she is somehow messing with it and he thinks it is his placement.

It'd be interesting what the surgeon comes with, though. But her hesitation about having the seperate tubes becomes stranger and stranger. If after two kinks so close together your tube is showing signs of blockage within a week again, the expected reaction would be "OK, I'm done, let me have the second tube". But she's still hesitant. There just HAS to be something behind it and I don't know what it is. With her "I don't want to deal with this kinking and I don't want to have two seperate tubes but there's no other option it sounds like she is waiting for her doctors to find that other option, like offering her to have TPN ready whenever her tube kinks again?

No. 440839

"If I stand for more than a few minutes I'll faint" a quote from yesterdays "freedom from the pain" vlog. Yeah sure babe. Her HR was only 130 ffs.

No. 440848

In today's vlog she talks about how stressful it is when her tube stops working, because she gets sick and loses lots of weight. But when she says this she avoids eye contact with the camera and it just seemed super fake and rehearsed.

No. 440870

>>440824
Someone in the comments of that vid (don't know how to screenshot, sorry) mentioned it could be due to the high placement on her abdomen + vomiting that's causing it to kink. Jaquie responded that her GI also suggested it could be vomiting that's causing it. I assume she's making herself vomit deliberately.

As to her hesitation, she's shown plenty of times that she doesn't enjoy ACTUALLY being in pain. She just likes claiming to have chronic pain. Remember that time she used a medicated nasal spray while Judd was filming her? And it hurt so much she had him quit filming halfway which she never does? Yeah, that was her in actual pain. She also seemed to be in quite a bit of pain after her tube was first placed. Not surprising since they punched a hole in her stomach. I bet she's hesitant because she knows how much it's going to hurt to have another tube placed. But she also doesn't want to quit purging so she can't get herself out of this by not vomiting and claiming another tube change miraculously fix the kinking. Her muchieness may be pushing her towards getting a medical procedure she actually doesn't want for once to which I say, lol, well deserved.

Of course she could just playing it up to be a martyr. Poor Jaquie having to suffer so much, being forced to get a second tube she doesn't want etc.

If she did get another tube, would purging cause either of the separate tubes to kink?

No. 440884

>>440848

Well kek. This is because she's lying. She can still eat, enough to maintain her weight.

No. 440885

>>440870

Anon you are spot on.

From that video on "Judd Day" when she started complaining that her hip was subluxating, I can tell you it wasn't because she wasn't trying not to scream. She loves claiming to be in pain all the time and therefore her followers think she's some kind of calm angel, but she's not in pain to the degree that she wants them to think she is. Not by a long shot.

No. 441061

>>440870
No, if they give her separate tubes they would be just long enough to get through her skin/fat/muscle into the stomach and small intestine, not enough tube to kink. The downside is twice as many artificial openings in the body for possible infection (not that she’s concerned about that at all, having a continuously accessed port for non-continuous use). Or the problem could be solved altogether by getting rid of her tube, since she doesn’t get enough calories from it to make a difference, and obvious is far from starving.

No. 441095

>>441061

I bet she cranks up her feed rate for the days she sees her doctors.

No. 441103

File: 1512853968868.png (1.46 MB, 1242x2208, 8AB3A95D-D759-428D-B0A0-7967CF…)

Here’s why she can’t take a taxi

No. 441105

File: 1512854016047.png (1.43 MB, 1242x2208, FF055167-9C42-40A4-B594-09F2A8…)

Sorry don’t know how to put 2 images on 1 comment.

No. 441106

>>441103

KEK as if she'd actually get a taxi. If she didn't have Judd there who would film her??

No. 441107

>>441105

Are taxi drivers not regulated and licensed in the US like they are in Europe? (Not counting Uber/Lyft etc, since in my experience they have very few wheelchair accessible vehicles so I've never used them.) I think she's just making excuses.

No. 441112

>>441105
wtf? Is she 4 years old and has to have mummy and daddy with her at all times? Her excuses are becoming more and more intolerable.

No. 441119

Theory: She wants a powered chair because she can't vlog and self propel.

No. 441123

>>441103
That YT comment was so catty. I love that commenter

No. 441130

Any ideas as to why her IG account is suddenly so inactive? She hasn't posted since Nov 5. Harlow's is equally quiet.

No. 441169

>>441130

Because IG doesn't bring the money in.

No. 441174

>>441105
Is she seriously saying her parents have never taken a taxi? I suppose if they are as well off as we assume they would have had "drivers" when she was younger instead…?

No. 441179

>>441174

Most people manage to adapt to their situations. I'm pretty sure she can afford taxis, too. It's not about the cost. I'm 90% sure it's because having Judd there means he can film her.

No. 441188

>>441174
Maybe she's saying her family isn't comfortable with her taking rides from strangers either? I would find it hard to believe, with as many places as they supposedly lived while she was growing up, that her parents have never taken a taxi.

No. 441189

>>441188

But the difference from "taking rides from strangers", which makes it sound like she's saying she's not comfortable hitch-hiking, and booking a taxi which is regulated, licensed and has records is quite a leap…

No. 441216

>>441189
Taking a taxi isn’t special, while having to be driven places because of your medical condition is. Mary Frey doesn’t take taxis, so neither can jaquie. If jaquie had her way, she’d travel everywhere by ambulance.

No. 441217

>>441169
Maybe not directly but I know that I learned of Jaquie through IG's suggestion of Harlow's page. Reading through these threads over the last few months I also know that I am not alone in discovering her through IG. IG leads to YT, of which several of her videos are monetized and YT leads to her Patreon page. Ignoring IG is not a very smart business move on her part. There has to be something else to it. Especially since she gets so many ass pats there.

No. 441219

>>441216

A medical taxi would be kind of special though. I'm sure she could arrange something through insurance that was vlog-worthy, what with a wheelchair ramp and stuff.

No. 441234

>>441219

I don't know what the system is over there, but in the UK if you can't drive or take public transport for medical reasons then you can get picked up by hospital transport for your appointment and taken home again. Of course, because this isn't an ambulance but more like a minibus, there will possibly be (and usually are) other patients being transported too.

The reason Mary Frey can't use taxis is the risk of infection because a simple cold could put her in the ICU. Jaquie's deluded if she thinks her "immunodeficiency" is on the same level.

No. 441236

>>441217

Maybe she reads these threads and has seen how some anons have gone to the trouble of pointing out inconsistencies in her IG stories.

No. 441246

>>441234
It’s pretty hard to get medical transportation here if you are able to use other options and aren’t on government assistance. Since jaquie’s medically stable, can walk, and has private insurance, she’d be out of luck. A lot of medical transport companies also only deal with your insurance company (you can’t book it and pay for it yourself), so they’d know she had transportation and didn’t need specific medical transport. Besides, jaquie doesn’t just want a ride, jaquie wants to be driven, and strangers wouldn’t cater to her like her family does.

No. 441432

>>441105
O, Come On! She's nuts. She can't take a taxi because she isn't comfortable being driven by a stranger?? By that logic, public transportation has to be out, too. Not because her immunodeficiency (if she has that), but simply because the bus driver is a stranger as well. Somehow she doesn't have a problem letting strangers (read: nurses from the home health company) into her house, though. And she also doesn't seem to have much problems with letting strangers (read: doctors she hasn't seen before, like in the ER) treat her.

Taking a taxi is not 'being driven by a stranger'. It's using a service. Many, many people - ESPECIALLY disabled and chronically ill people - are 100% dependent on (wheelchair) taxi's to get around. But Jaquie can't use them because she isn't 'comfortable' with them. Go eat your fries, Jaquie.

No. 441459

Don't y'all know what stranger danger is?????? Kek

No. 441478

Her new obsession with Ketamine is super strange, me thinks Jacquie loves the K-hole. After a quick consult with Dr. Google the key side effects of Ketamine are
Disorientation and general confusion due to the drug's anesthetic nature.

Drowsiness.
Increased heart rate.
Elevated blood pressure.

Seems strange that someone with someone with such "srs POTS" would be going for such a treatment. I think she's exhibiting drug-seeking behaviour.

No. 441495

>>441478
still her heart rate only reaches 130. If it got higher, we'd be sure to know. If she had severe pots plus constant drugs that cause tachycardia, she'd be getting heart rates well above 180. But of course, that's not happening

No. 441516

>>441495

This is because she conflates orthostatic hypotension (extremely common) with POTS. She wasn't diagnosed with POTS but she's not letting that stop her claiming it. The power of positive thinking!

No. 441519

Not wking, but taking a taxi is common in some parts of the US but not all. In some parts of the US, you need to be very assertive with taxi drivers. In other parts, the drivers are very kind and courteous. I would not put Jaquie in a taxi by herself with a chair and a dog and all the things.

Also, taxi drivers don't like to go long distances and it sounds like the infusion center is far enough away from their house that Judd does not want to driver their twice.

So, the taxi does not sound like a viable option. A private car service, however, could be a viable option and approximately the same cost as the CNA.

I would assume FL has a lot of free or low-cost options for disabled folks, but the radius is usually fewer than 30 miles or whatever.

No. 441520

>>441519
why wouldn't you put her in a taxi? She needs life skills like nothing else. If she can manipulate doctors into whatever she wants, she can manipulate a taxi driver into getting her there.

No. 441531

>>441520

It seems like she had life skills but she's rapidly unlearnt them all in a bid to be the most sick and helpless person on the internet (except when it comes to persuading her doctors to give her unnecessary medical equipment and procedures).

No. 441547

>>441519
Yeah, in the city where I live there's an entire special transportation service for people who are unable to drive themselves or use public transportation some or all of the time. Jaquie would absolutely love a driver catering to her ridiculous equipment and getting driven around in a special vehicle the way only sooper sick special snowflakes can! Not any old pleb taxi.

No. 441549

>>441547

But not if she has to share it with other sick people, she's too special for that!

No. 441584

>>441549
She also probably wouldn't be the sickest/ most disabled person there, and we can't have that!

No. 441585

>>441584

Yeah the last thing she wants is actual sick people witnessing her ridiculous displays, pushing OTC meds through her port, filming herself having 'serious reactions', getting her fucking dog to get her a water bottle etc.

No. 441597

Can we all just take one hot second here to mention that she somehow found yet another gadget to add to her Barbie car?

No. 441606

>>441597
I haven't had a chance to watch her videos this weekend. What did she add?

No. 441609

>>441597 Oh yea , Cause attaching a normal over the shoulder type bag in the same style/position is not good enough for her , It has to be a wheelchair specific one.
>>441606

No. 441615

For anyone who has been watching J a while, did she used to have a more complex sense of humor? Now it's all, "Haha, Harlow don't eat the tree!" and you can tell Judd doesn't give a fuck. Did she used to laugh at genuine jokes?

No. 441639

>>441615
I've watched her for almost a year and never noticed a genuine sense of humor. The shit she laughs about now is annoying as hell. She needs a life so bad.

No. 441679

File: 1512935864910.png (1.65 MB, 1334x750, IMG_5084.PNG)

Little Miss Sooper Suhvere EDS

No. 441682

File: 1512935953662.png (918.75 KB, 1334x750, IMG_5085.PNG)

Twice in one day. Up and down repeatedly to help light the tree with no effects from muh EDS or muh POTS. Again… symptoms are adjustable when doing things she wants to do. And the day after IVIG no less…

No. 441694

>>441682
Also, isn't she supposed to be like…anaphylactic level allergic to plants? As in, has to wash her hands immediately if she touches grass? But Adjustable Jaquie wants a real tree, so up it goes, life threatening allergies be darned!

No. 441705

She will have anaphylaxis tomorrow… she ran out of medical emergencies, and that is why she needed the real tree.

No. 441725

>>441679
Up and down all over. In a crosslegged sitting position most of the time too. We also see that she can reach over her head to tighten it with an allen wrench.

Also, maybe BEC but of all self-assemble furniture, IKEA crap is some of the EASIEST to put together. She complains about how hard it is. They do a decent job of limiting the different types of parts and providing very well drawn instructions. I have a piece from the same line she is putting together in this video – it took about 30 minutes to put together by myself.

It's also wild to me she says she's "not going to touch it". That's not a choice you get when you bring a tree into your house. They drop needles and those needles will poke through socks. She's risking stepping on them but somehow her allergies are so severe.

No. 441759

>>441725
Especially where they put it. In the main doorway between the living room and dining room. If it was tucked away in a corner that she could completely avoid for the next two to three weeks it might… might be feasible. But there's no way she can avoid walking past that area. She's supposedly not steady on her feet either so it's possible she may end up brushing up against it as well. She's so inconsistent about everything except being inconsistent.

No. 441790

>>441759

I'm guessing the tree is going to cause her to need to push benadryl while vlogging a few times over the next few weeks, but "I just love Christmas, you guys, I can't not be positive about this!!"

No. 441796

At the start of today's vlog she said she slept in which is extremely unusual but she just "wasn't feeling well"… Isn't that supposedly every day?

I mean that's a good point. I don't know about you guys but being chronically ill and having narcolepsy means that mornings are really hard and slow. You don't just wake up bright and early first thing, get up, get dressed, do all your medical, drink some chocolate milk, and edit a damn vlog.

No. 441832

>>441105
sage for blogging but this pisses me off so much. as someone who can't drive because of disability I have to take Uber/Lyft to all kinds of medical appointments. even though I have MCAD, I don't strain my family and friend support system like this just for fun. I take a zyrtec, keep emergency meds on hand, wear a vogmask, and go into the world like a grown, independent adult.

No. 441835

File: 1512955137023.png (32.05 KB, 862x126, Screen Shot 2017-12-10 at 4.58…)

Long time lurker, relatively new to posting. Thought I would share some screenshots from the service dog community, none of whom subscribe to jaquie's BS. She's completely shitlisted and banned because she collects medical equipment, her dog's tasks don't directly mitigate her disability, and her dog is disgustingly malnourished.

No. 441836

File: 1512955171798.png (844.11 KB, 854x1136, Screen Shot 2017-12-10 at 5.05…)


No. 441838

File: 1512955306840.png (35.98 KB, 880x118, Screen Shot 2017-12-10 at 7.21…)


No. 441841

File: 1512955524055.png (260.93 KB, 792x942, Screen Shot 2017-12-10 at 7.22…)

kek anyone from this page happen to be on the thread?

No. 441849

File: 1512955701365.png (85.46 KB, 884x280, Screen Shot 2017-12-10 at 7.28…)


No. 441851

File: 1512955875637.png (159.2 KB, 702x590, Screen Shot 2017-12-10 at 7.29…)


No. 441856

>>441849
Gold star for you, Anon.

No. 441862

File: 1512956453105.png (679.51 KB, 722x1138, Screen Shot 2017-12-10 at 7.39…)


No. 441869

File: 1512956627505.png (960.91 KB, 876x990, Screen Shot 2017-12-10 at 7.43…)


No. 441882

File: 1512958520807.jpg (833.75 KB, 370x192, cgjck.jpg)

different anon but I'm in some groups too and found some call outs

No. 441883

File: 1512958677481.jpg (817.94 KB, 369x192, dryfgkhl.jpg)


No. 441889

>>441883
Don't forget her current fave "administered"

No. 441893

from what I gather, there are people who defend her in these groups? please tell me that's not true. In a group I was in, people usually looked up to her and often referred people to her videos… part of the reason I left that group. But I know if I happened to call her out in that group, people would be absolutely mortified.

No. 441900

>>441893
People sometimes defend her i.e. "everyone knows she's over the top and unethical, you don't have to keep posting about it" but I've never really seen people look up to her in the SD pages of which I'm a member. (People in the EDS and comorbidities pages do idolize her, unfortunately.)

No. 441904

>>441893
i've only seen a few posts from people that actually like her. most people in sd groups know she is full of shit

No. 441910

>>441900
people in pots and eds groups typically idolise her because to them that's what they think they should compete with in terms of symptoms and care. It also spreads the message of "only the sickest of all" get to have a tube, which Jaquie loves. Basically, if you don't have a tube of some sort, you're not sick. Or they use her as some sort of queen of medical information that we should all be referred to.

No. 441941

>>441910
I left most EDS/POTS/GP/etc pages a while back but she practically converts them to munchiedom by showing the "fame," attention, and toys.

No. 442121

File: 1513006248563.png (920.46 KB, 750x1334, A570E64E-C51B-4B41-BBD6-45B903…)

I thought this was particularly funny. From an interview she did with the AKC. In one year she went from wanting to be “independent”, without medical devices, to having every single one she could possibly own. Get help Jaquie.

No. 442125

>>441705

Not getting sucked into clicking on that video… but it's an ER trip today.

No. 442127

File: 1513007259261.png (449.04 KB, 851x437, Screen Shot 2017-12-11 at 11.4…)

>>440493


She's heeeeeere.

No. 442131

As soon as she said “bubble” I thought the same thing! She’s got to be reading this!! I think she’s toned things down a little in the last week or so. The sad part is I think she does have some medical issues- but the way she gets so excited about having procedures and stuff makes it hard to believe when she says she is struggling with anything. I hope she gets some serious help- mentally!

No. 442134

File: 1513009045705.png (2.25 MB, 1242x2208, IMG_4135.PNG)

Sooo, "I can't take narcotics y'all" = Gimme that sweet sweet dilaudid?

No. 442140

>>442125
Can anyone who knows about these sorts of things comment on how she was fine the day after IVIG and then going to the ER the next? Is it feasible the sideeffects would be delayed by a day like that?

The things she went to the ER for - headache/migraine, vomiting… obviously she can make herself vomit so that's easy to fake. Do they have anyway to test her pain level or would they just take her word for it?

What I'm asking is, is it possible she faked this entire thing and fooled the ER docs, or is it more likely something was actually wrong with her?

No. 442150

>>442140
I think if she stops IVIG, she wasn't lying. If she says she's gonna continue it then it's probably fake.

No. 442155

Also, why does fucking EVERY medication she takes HAVE to be IV?

No. 442156

I have an allergy question.

First, I couldn't watch the 8-or-so minute bulk of the ER video. It looks like she just sits on her bed and discusses IVIG, but again, didn't watch.

I don't understand about the pine needles. If she's allergic to touching them, and she says she has a "minor" allergy to them, and Harlow is practically laying on/eating the tree, wouldn't Harlow transfer "pine" to her?

Mary Frey, for instance, does not take her service dog to events where CF people are attending because she's afraid they won't be able to resist petting her dog and that they will transfer their sperimutum (is that what it's called?) to Ollie who will then transfer it to Mary. I guess this is a CF thing where they can't be near enough to transfer sperimutum (?) to each other. Oh, y'all probably know better than me what I'm trying to say.

But the question remains…if she's allergic to pine and Harlow is rubbing his face in it and then sleeping in her bed, well? Wouldn't she have some kind of reaction?

No. 442158

>>442140

Typically you’re most prone to have the worst side effects during IVIG but you can still have IVIG induced migraines but the likelyhood lesson the as time passes from the infusion.

I’ve been told by many nurses and immunologists that it mainly comes down to rate. Yes some brands don’t do well with certain patients but the east coast is notorious for running it fast. Side effects, especially migraines are mainly related to rate so if they slowed it down and she’d likely not have any bad side effects.

She could have had a migraine just from serotonin imbalance however I don’t believe it was bad enough to warrant a ER trip. In my opinion, if you can open your eyes move and talk then you’ll be fine just gotta tough it out.

I have severe immunodeficiency (CVID -panhypogammaglobulinemia) and the last thing I would do is run to the ER for little things. Hospitals are dangerous for the immunocompromised and we have to be in reverse isolation, they’d never leave someone in the hall. Often hospitals even make it so when we’re in an elevator everyone else has to step out.

Sage for the long post, I hope I saged correctly. I just wanted to give a little info on IVIG and ER trips. Also as someone mentioned a while ago Panhypogammaglobulinemia isn’t a diagnosis itself as jaquie says, it’s a term used to indicate that all immunoglobulin are low.

No. 442159

>>442156
if she needs a mask to avoid allergens, yes. It should.

No. 442166

The ER put her in a hallway bed, obviously she wasn't sooper sick.

No. 442177

>>441796

I have a selection of Jacquie's smorgasbord of conditions, and I haven't woken up feeling able to get out of bed since I was about 11. Nothing about her daily activities and schedule (aside from her tube feeds) implies that she's unable to work or function like everybody else.

No. 442179

My friend was a big fan of our Adjustable Girl here, until I started pointing out all of her inconsistencies and showed her this page. As someone who suffers from POTS/EDS/MCAS she was absolutely furious that she'd been lured into all the fake bullshit Jaquie puts out. Now if only we could convince her brainwashed followers that their leader needs serious mental help…
>>442177
Truer words were never spoken my friend. If I had even half the energy she had…

No. 442193

There are objective ways to tell someone is in pain such as heart rate, blood pressure, rate of breathing. However these are not always reliable due to each individual's varying experience of pain.

No. 442220

>>442166
Now that you mention it, that's not the first time she's been in a hallway bed in the ER.

No. 442269

>>442220

Not to mention if her immune system was as bad as she claimed, I highly doubt they'd leave here hanging in the hallway.

In my area, the ER puts less severe patients in the hallway, sometimes they even open up fast track, allowing rooms to actually be used for sick people.

No. 442313

>>441851

kek whut?? She's her own PR team and the amount of energy she puts into "managing" her illnesses (aka her vlogs) proves she can't be as disabled by illness as she claims to be.

No. 442336

"Good news is, after a cocktail of some medications I feel better" girlfriend, everyone feels better after a cocktail. kek.

No. 442372

>>441900

A high-profile disability advocate included her shirts in a "disability-positive clothing" post on Twitter. I just wanted so badly to message them and explain why she's so awful. Also her shirts aren't "disability positive" they're just advertising for her!!

No. 442375

>>441941

Hermetically sealed house here we come!

She even keeps a fucking IV pole in shot even though she's using her dumb backpack??

No. 442377

>>442155

So she can justify having a port I guess. Also "muh gastroparesis", despite the fact that she could just take meds with her magical chocolate milk.

No. 442378

>>442156

Yes. Which either means she's lying about being allergic to the tree/"all plants", or she's as dumb as she is deceitful.

No. 442381

>>442158

Kek it's almost like Jaquie isn't actually immunocompromised….

No. 442406

File: 1513042807911.jpeg (256.61 KB, 750x1334, 1F8DDE27-BED2-408A-B986-298B1F…)

Got super pissed at her bullshit. It’s posted late enough her minions shouldn’t care but she’ll see it. I just can’t with her.

No. 442411

>>442378
If you’re allergic to a certain plant, you normally can’t eat it. If jaquie is allergic to all plants, she shouldn’t be able able to eat any plants. Yet she regularly eats plants, and even her special formula is plant-based.

No. 442412

>>442381
Somehow she’s had her port for a long time now, and has never had an infection, which is not uncommon for someone with a good immune system and much better hygiene practices. But is anyone surprised that another claim of hers is total bullshit?

No. 442424

>>442406

Did you actually post this?

No. 442426

File: 1513044482294.png (49.16 KB, 854x174, Screen Shot 2017-12-12 at 02.0…)

> congrats on being such a good munchie!

No. 442430

>>442412
I was actually going to ask if anybody has ever discussed her preciou port and it’s mysterious Disney magical powers. She’s had this thing for a whole year, right? And never claimed ANY problems with it? Not even allergies? In one blog she even said she had never missed her port during accessing, which anybody with even a little bit of port knowledge would know is total bull because ports shift and you will inevitably miss it at least once.

Her immune system is SO bad but no port infection?? Not even a localized celulitis at the site of access? I call bullshit in that too. I’ve heard of folks with perfectly health immune systems who get infection after infection. There’s no rhyme or reason to it just that you have a fucking needle in your chest 24/7 you WILL get an infection eventually in 9/10 cases.

How about her stupid MCAS diagnosis??? Let’s discuss the fact she uses normal tagaderm and chlorhexidine, two of the toughest dressing materials that can be used on central lines. Anybody with true MCAS would NEVER tolerate this combo, or if they did, they would eventually develop a severe chemical burn on the site due to constant exposure. She says uses skin prep, but so what? Most people with MCAS as severe as she claims don’t even tolerate the skin prep, there is a very common dressing combo for people with MCAS (not gonna write it here cause then next thing we know J will be saying she needs this special combo for her port) and the type she uses is nowhere near.

Those precious biopatches she wears around her port? (The little disk) also covered in chemicals most MCAS ppl can’t tolerafe and also almost never covered by insurance (she has the brand name and insurance will only cover generic) so if she’s buying that out of pocket, we’re talking about a $10 patch a week.

So this magic sooper sick girl has a port for a year and
-no infections
-no reactions
-no chemical burns
-no problems with insurance
-no mistakes being accessed

????

Ports have so many problems especially for legit patients. They flip, they hurt, they’re difficult to access, and not intended to be kept accessed 24/7. No way she has a port this long with no problems.

Two possibilities here:
She’s bullshitting about all of her conditions and therefore tolerated the port fine, like a healthy person. When anybody who actually needed a port would’ve had SOME sort of issue by now.

Or she’s somehow managed to cover up any issues she’s had with her port which would be surprising cause we all know she’d love those asspats

IS ANYBODY OUT THERE AS PISSED ABOUT THIS PORT THING AS ME???

No. 442435

>>442430

I've wondered this! I sometimes use Tegaderm and whenever I do it makes the skin underneath so itchy and angry! But she's fine!

No. 442436

>>442424
Of course. I can re- screenshot it if you want (or you can go look- it was a bit pointless to mark out my face)
The thing with Jaquie is that she uses up so many resources others desperately need. Like, she went to the ER for a headache. She got meds, a doctor, a nurse, supplies, a bed, and time that someone else needed.
There are people who can’t afford basic medical care and she’s throwing it away like it’s nothing. The ER is exactly what it says it is- an EMERGENCY room. A headache is not an emergency and neither is anything that ever happens with her tube.

No. 442437

>>442436

In that case, I think it's been deleted.

No. 442439

File: 1513045393240.png (445.54 KB, 750x1334, ACEF94C7-F0E8-41E1-8563-763B31…)

>>442437
Just taken a moment ago. I always see her vids late so I usually avoid getting deleted. I’ve posted similar stuff before on occasion but nothing as nasty, usually limited to what’s in the video (which, thanks to you guys, I get to mute).
Funny thing is, I get angriest at her when I’m sick (on top of the autoimmune thing). She enjoys her fake sickness while we’re all trying to cook, clean, get healthier, and live normal lives. But I digress.

No. 442442

>>442439

Ahh, not sure why I couldn't find it then. I guess it got lost among the love and prayers and "help me get a feedin toob too!" posts.

No. 442496

>>442426

Nah, a good munchie would have been sure to be admitted. Maybe if she keeps faking these reactions enough they'll actually take her ivig away, though.

No. 442505

File: 1513053876743.png (6.33 MB, 2208x1242, 22E7545D-7DCF-42A1-AD35-109C4D…)

Forgot her sooper important mask. Remembered a stuffed animal. Toddler Jacquie has her priorities straight.

No. 442553

>>442430
Yeah, it really bothers me too. She never talks about how much of a pain in the ass it is to restart your access because you missed your port or it just wouldn't flush. It sucks to have to redo the entire sterile field, sterilize yourself, and stab yourself again. I've only had mine since the summer but I've missed TONS of times and my Port moves.

I find it EXTREMELY hard to believe that she hasn't had any problems with her port given the list of diagnoses she claims.

I have MCAS and use Chloraprep because Iodine caused a horrid reaction the first time they used it on me. I also can't stand Tegaderm because I wind up scratching at the dressing until I tear it. I now use something other than Tegaderm which sticks a lot better and is less irritating for my skin.

(medfagging a bit)

I'm totally with you OP. It's absolute BULL that she hasn't experienced any problems, further proving just how adjustable our girl is.

(Sage for Medfagging in order to trash our Munchie Queen's claims of Port Perfection)

No. 442628

Lolcow

>>440824

I know it’s been a few days since your post but seeing that we find out in just a few short hours what the outcome is from this super important surgeon appointment (so important that she turned down a hospital admission (!!!) and accepted just getting “fixed up by the ER doctor” in her rush to the ER trip with mommy) I thought I’d add my suspicion in… I’m pretty sure she’s messing with her tube in an attempt to kink it. She has the sooper speshul syringe to empty the saline from the balloon holding the toon secure in her collection of Jaquieboner-inducing medical “gadgets”… I wouldn’t be surprised at all if she’s draining just enough water from the balloon and has figured out a way to kink it just to get her yummy Cat Valium. She seems to love the effect of Ketamine a little too much.

I’ve been watching Jaquie since her vlog started. I found her on IG (rather her account was suggested) and I’ve been building resentment since day one. She’s a manipulative, entitled, spoiled, dramatic, lying bitch. You can tell when she lies with that glance away she always does. She has a husband that enables her and who is outwardly miserable. All of the “right, Babe?!” follow ups to her questions confirms that. I laugh and I’m almost embarrassed for her at her self proclaimed kitchen prowess. She cooks the same nasty ass chicken every. single. time. In a few videos, it even looks quite diseased itself.

Here’s one thing that I’ve found interesting… she has this tachycardia that she claims to be sooo high all the time… yet has no doctor put two and two together to the fact that she nebulizes these steroids into her lungs several times a day and that those treatments RAISE heart rate? ALSO, tachycardia is a side effect that is well known for inhalers which she has at the ready in her collection of porn and could very well be puffing it a few times before she uses that stupid pink pulse ox meter to induce tachy episodes. And those are also known to lower potassium levels which also screw with muscles and your HEART! So she’s got this allllllll figured out.

She’s getting all of these clone vloggers running around now… Chronically Amy, who claims to be inspired for the name by our good friend… who is just horrifying to watch… something is wrong with her and her unhealthy looking dog. She passed out driving the other day and is back on the road today (on the verge of hospital for that malnutrition, guys!) to do some training because she is 17 and already a qualified dog trainer!! Then of course, The Spoonielife (@spoonielife_amanda on IG) who is a freak copycat down to the dog and matching patches and gear… and angioedema and IV Benadryl… pretty much all of it… to name the worst.

Anyways, let’s see what the extra important surgeon and GI appointments today… my bet is she’s pushing for TPN. Which is just absurd. But makes her more special, y’all.

I linked Amanda’s most recent video if anyone wants to see Jaquie 2.0…

No. 442639

Did she even tell her ER doc that she has EDS? Don't they know it's hella bad to combine hypermobile joints with steroids? Ugh.

Wait, no – get more steroids, Jaq! Maybe then you'll actually become dangerously hypermobile and sublux something for real! /sarcasm

No. 442645

>>442628
Do you think she's totally aware of what she's doing? Or do you think she's deluded herself into thinking she is actually sick? I really can't make up my mind!

The way she manipulates drs to get what she wants makes me think she has to know what she's doing, but then her weird, misplaced panic when she can't run her nootrishun because the tube kinks seems genuine in a way? Not the idea that she can't eat if the tube kinks, that bit is obviously bs, but her panic and how upset she gets about it seems real. Could it be that she's so deluded she really does THINK she relies on the tube for nutrition and therefore not having it freaks her out? Or is it just an eating disorder thing where she freaks out at the idea of eating when the tube isn't working because then people might realize she doesn't need it and she'll be expected to eat like a grown up?

I hope the surgeon tells her to take the tube out full stop.

No. 442659

>>442628
I can't watch even a few minutes of Amanda. I do know from her IG that it is almost Single White Female creepy how much she has copied Jaquie and that in the intro to her vlogs she steals the "don't you think we're better together" line that the Freys use. It's sad and kind of scary.

No. 442666

>>442553

Is it possible that Jacquie's port has NEVER been de-accessed?

No. 442676

>>442645

Honestly, I think she’s in full control and knows very well what this chronic illness cash cow is. The scary part is that she’s got these young followers who worship her starting to emulate her. These teen girls are going to start “being unable to eat without vomiting” and it’s dangerous, even possibly lethal.

One thing I forgot to mention in my post was she says something in her Sunday video that is a common drug seeker phrase. I learned from an ER nurse that when a patient is drug seeking they purposely play stupid and mispronounce the drug when talking to the ER staff, in most cases, dilaudid. ER Doc: “So, Jaquie, what’s worked for your pain in the past?” Chronically Waquie: “Ummm, well, I thiiiiink when I had aseptic meningitis I was given… uhhh.. diloolah… dilottie…diluted… dilaudid?! And that helped SOOO much!” And for as much as good ol’ Jaq knows about her “medicines” (I want to throat punch her every time she says medicines - a total copy on Mary Frey) you know good and well she knows what dilaudid is. She’s pretending like she’s never had it and you can bet that’s what they gave her for the completely made up bullshit case of aseptic meningitis. That was a definite clue to me that this is all made up and she has several problems and she (and Judd) is in complete denial!

I know she has to have an eating disorder covered up by her sooper turrible gastropuhresis. She loves “draining and venting” way too much. And her claim to not be mentally ill is just another lie. She has all of these easily faked conditions, all of these “clinical” diagnoses from her ever growing team of doctors… never does she ever seem to have any continuity in her care… there’s always something new. She never has posted an angioedema rash on IG or shown one on YouTube… just herself scratching herself to make herself red… anyone that scratches themselves turns red. Claims of throat “spasms” as she coined them… never been intubated… has a couple of times alluded to the fact that a few specialists have caught on to her bullshit lies… like that one allergist that Julian drove her to in I think February… and once during a hospitalization she had a bad specialist and she “fired” him. I don’t recall exact videos or dates for links though.

There is one video that she has where she was treated bad by some paramedics that I will try to find the link to today though… she is such a fucking princess that when they “tried to put an IV in somewhere I didn’t want and had never had, I went non-verbal due to my (also made up) Autism!” They then mistook her “rocking as a way to self stimulate” or some bullshit phrasing as being combative and had to restrain and sedate her and were apparently mocking her Autism diagnosis… probably because a) they also call bullshit and b) were tired of being her Uber. That episode (because it’s always a fucking drama soap opera) was super entertaining and equally annoying!

New video soon… over under on how many toobz Waquie will come home with soon! Ready… go!

No. 442677

>>442666


You know..I've never seen it not accessed. Like, ever.

No. 442684

>>442676

I remember that video and being so confused because she's never had an issue with being non-verbal/ rocking before. Which likely means 1) none of it went down that way or 2) she was putting on a show for the EMTs and that's just fucking lunacy. I can imagine acting in front of the camera/ vlogs, but in front of actual EMTs, in real life, no cameras around? She's a fucking nut bag.

No. 442693

>>442677

Because it is literally accessed 24/7 which is really why I think her immunosuppressive BS lies are lies… that much continued access really opens one up for infection. A normal person would have had sepsis at some point with all of her “emergency” port changes because the stupid fuckwit can’t figure out how to take a shower with the damn thing and keep it dry even after having it this long… over a year, y’all… don’t ya remember Jaq just had her “portiversary” where we got to hear that robotic and rehearsed “small device implanted under my skin to prevent repeated pokes…” line once again… and again… and again… the OCDness of her port care supplies alone makes me wonder if she doesn’t have OCD as well as all of her other hidden mental illnesses.

No. 442695

>>442676

She did her mistaken pronunciation of dilaudid again. Now you KNOW it is her pretending she doesn’t know what it is.

No. 442697

eat a hush puppy
…but i need to feeding toobz guys. i can't eat any food.

No. 442698

Wonder why she didn’t use her wheelchair at all today? (Insert eye roll here)

No. 442729

In today’s vlog little miss “I’m so heat sensitive” wears 2 sweaters, a T-shirt, hat, and scarf in 60 degree weather. Is it just me or would other people with heat sensitive die if they were that bundled up?

Sage for blogging but my heat sensitivity means that I don’t wear a jacket unless it’s 30 below, and even then, there are short sleeves under that jacket in case I get too hot.

No. 442732

>>442729

But obviously no compression socks, kek

No. 442734

>>442729
Kek she also suddenly doesn't have sensory issues because she likes winter clothes! That sweater looks itchy as hell.

And yes, heat sensitive person here - i dress in layers BUT they have to be super easy to quickly take off if I start overheating because no one wants to see me pass out with a sweater stuck over my head lol. I would NEVER wear two sweaters that were pullovers / didn't have buttons or a zipper in front.

I get that she live in FL and mentally she's used to a hotter temp, but if she really has such bad heat sensitivity her body won't care what she's used to.

No. 442773

Did I hear correctly that Princess Munchie prepared THIRTY TWO questions for the surgeon?!

Who the fuck prepares that many questions?!

No. 442780

>>442676
Is the vlog you were talking about?

She states she had been looking forward to hospital breakfast?! Who the fuck looks forward to hospital food?!

She's so daft, in an emergency, you don't get to decide where you get stuck.Oh and she started screaming she says? Guess her reaction wasn't so bad cause she could scream. Glad the paramedic called her on her bullshit.

No. 442782

>>442780

Good lord, does she touch her hair enough in that vlog?! Is this a sign that she's lying?

No. 442846

>>442773
And I'm willing to bet every single one of those 32 questions are specifically designed to steer the surgeon into doing exactly what Miss Munchie wants. She claims she is so undecided about the whole toob situation, but I have a feeling she has a plan and knows exactly how she wants things to play out. She doesn't strike me as the type of person to be so undecided about anything medical.

I mean anyone who has a complicated medical history or major disability will jot things down before appointments so they don't forget something (especially if it's a specialist appointment), but 32 questions is just over-kill!

No. 442874

>>442846

I suspect it'll be designed to steer them towards the drug that helps her that she can't remember the name of…. Diluted? Diddlud?

No. 442883

It's crazy that she meets this surgeon and feels he's a "good fit" for her, so she'll get surgery. She's "comfortable" with him. Why the fuck does it matter if you get along with your surgeon? How does she not see she's full of bullshit?

No. 442885

I'm surprised she let Judd play with her head/hair like that at the end of the vlog given her special, incredibly painful neck.

No. 442887

>>442883
Good point. A good personality fit doesn't equal a good surgeon. My knee surgeon is one of the biggest jerks I have ever met in my life and has a reputation for being a jerk but is a damn good surgeon. She is such a munchie moron. How is she able to pull the wool over sooo many people's eyes?

No. 442890

>>442887

It might not equal a good surgeon, but it does equal someone who is taken in by her bullshit.

No. 442894

Weren't most of us taken in by her bs to begin with, for some of us even to our own detriment? Not surprised new doctors get taken in as well- then they can't just drop a patient without evidence she's lying/ feigning- and Jaquie is too cunning.

No. 442897

>>442894

Is it bad that I feel a bit superior for never having trusted this one? Something always felt off about the extremely choreographed explanation-for-everything aspect of her posts.

No. 442912

>>442897
Yes, but what I mean is that we gave her the benefit of the doubt despite suspicions.

No. 442935

>>442628
I also want to add, she let it slip that she takes propanolol (I believe) for POTS. Propanolol and beta blockers in general are not good for asthmatics. Any legit doc who works with asthmatics will not allow you to be on them. I have POTS and started on propanolol. I have the mildest asthma you can imagine. It basically only flares during peak allergy season. Within a month of starting the beta blocker, I was winded just fell standing. My allergist insisted it be changed and sure enough it fixed the issue. I think she knows a lot of her meds cause certain side effects and she knows it can exacerbate certain conditions. Much like the asthma meds can play up heart rates.

No. 442951

>>442935

Not to mention, those of us who need EpiPens shouldn't be on beta-blockers because they block the EpiPen from working. My allergist found out I was on a beta blocker and immediately wanted me off incase I had contact with my food allergen.

No. 442958

>>442935
Also not to mention propranolol is a really 'dirty' drug because it crosses the bbb. It's not well tolerated by most people- horrible side effects. I'd imagine someone with so many health issues would not want to be on them because the side effects usually outweigh the pros and it's really not that effective. It's effective for mild pots symptoms and anxiety though. Jaquie being anxious despite being on propranolol says a lot- she has some extreme anxiety going on.

No. 442992

Jaquie must have received a personal Christmas miracle early—somehow her unique anatomy has normalized and now the surgeon can place a 2nd buh-un for her nutrition. Was there ever any doubt that a 2nd tube would be necessary?
Maybe the next surgeon can change the Fentanyl/Ketamine combo (for the complex tube surgery) to "Dah-loo-did"/Ketamine. Santa, please bring twin tubie pads–you can skip the new bikini since she now will have 3 surgical holes in her.
Missing detail–was it Julian that lifted their Ken & Barbie cars into his vehicle for the trip to the dogpark, or was it our favorite shape-shifter who can do AMAZING things like bending, lifting, crawling on the floor, going up & down steps, etc. whenever she forgets that she can't? Or who can eat fried hushpuppies and drink soda when she forgets that she can only "nibble" on Judd's food. Too bad she doesn't also forget to film it and expose her lies.
Looking forward to the orthotic appt later this month to get fitted for hip and knee braces—she's going to be the hot wife at the policemans' ball!

No. 442993

>>442958

Yeah that's crazy to me too. Surely it's not that hard to put her on some other cardio selective version. Way less/no side effects so you can up the dose if you have to. I believe fatigue is a side effect of the one she's on right?

(Sorry for blogging but it's relevant I believe)
I was on a similar beta blocker but I have issues with fatigue in general so they switched me to bisoprolol and upped my dose. Problem solved. And I didn't even need a port for infusions guys!!

No. 442994

Today Jaq was hanging out with Julian and she brought up how much lighter Harlow's color is compared to Atlas'. She said "we call her our sun-bleached dog".

Maybe she really is reading here. People were comparing Harlow and Orion's color very very recently.

No. 442998

>>442958

Propanolol nearly killed me (I have POTS and didn't know it at the time). So Jacquie must have a generally good constitution to tolerate it!

No. 442999

>>442993
propranolol definitely causes extreme fatigue- it also lowers your blood pressure sometimes to the point of making your fingers turn blue. If Jaquie has low blood pressure, why isn't this happening?

No. 443012

>>442998
This is such a munchie thing to say. No1curr about your medfagging.

No. 443045

>>443012
Oh, calm your tits. It's been established multiple times that sharing personal medical info when relevant to discussion is helpful to understand why munchie claims aren't realistic. And no, I'm not the anon you jumped on.

No. 443063

>>443045
There's a massive difference between sharing medical info in a useful way (which many anons do in the Jaq threads without being obnoxious), and hurr durr poor me, a basic ass beta blocker nearly killed me. If you can't see that for the OTT whining and self dramatizing it is then I don't know what to say to you. It doesn't contribute whatsoever.

And there's nothing wrong with pointing it out when anons start pityfagging about their own health or meds. 99% chance you've done this yourself, which is why you're bitching now.

No. 443080

>>443012
>>443063
Fucking this. Thank you.

No. 443096

So now that God has spoken to her that she should go for the two toobz… and she is saying it will happen in January…

Anyone with me that since Christmas takes the focus off her that her toob is going to kink conveniently to EMERGENTLY admit her? Since she seems to starve to death in a matter of mere hours without her speshul nutrition! Get that TPN and “IV delooted” ready for her, Doc! Right around Christmas to make it all about her… strangely, that’s right around when her angioedema (or recurrent anaphylaxis or idiopathic anaphylaxis) started causing her to be admitted for that on tap IV Benadryl. Anything to keep Judd all to herself away from his family. Maybe Judd’s Mom will pack her another ziplock bag of mashed potatoes to shove down her epic shit eating pie-hole in the hospital. Because they were so tasty, y’all.

All after a trip to Disney to show off the glow-in-the-dark Barbie Car, of course.

No. 443100

>>443096

Are they going to Judd's for Christmas?

No. 443108

>>443100

I think they're going to Judd's parents this weekend for an early Christmas celebration.

No. 443110

>>443108

In that case place bets now:
Tube kink
Occurrence of intolerable pain
or Sudden allergy to their Christmas tree despite being fine with her own one.

No. 443113

>>443110
Do we have to pick? Knowing Jaquie she'll work it all in. Don't forget the low blood sugar and syncope.

No. 443117

>>443113

If she ran her feed as she was supposed to and didn't snack on junk (despite being "reliant" on tube feeds) she wouldn't get low blood sugar kek

No. 443133

>>443110
With any luck, maybe her narcolepsy will flare and she will sleep thru the weekend so Judd can visit his family without her crap.

No. 443137

>>443117
But, isn’t the unnamed metabolic disorder that causes her low blood sugars?

Also, anyone find it strange she claims to have mito but never talks about it. Everyone I’ve seen with mito has been crazy sick… maybe Jaquie’s just saving that one up. It’s sooper rare just how she likes it.

No. 443141

>>443096
I think it's more likely that she waited to schedule the surgery for January because she's somehow kinking it on purpose. Therefore she knows it won't kink over Christmas, while she's enjoying herself! Adjustable Jaquie. How nice to not be sick over the holidays (make sure to leave your trash and medical equipment all over the houses you stay at though Jaq, can't let them forget how super sick you are.)

No. 443142

>>443113

Mmm yes… tontry and milk a Dexcom our if that sooper good Tri-Care. That system is around $1700 a month for the sensors, $2000 every three months for the transmitter and if you don’t have an iPhone to run the app or a G4 instead of a G5 you have to buy the receiver at another $2000ish… but Jaq will be so tickled… it comes in pink!

No. 443144

So I find it crazy to have 32 questions for a surgeon so I sat here and tried to think of just even 10… but then I was like… what Would Jaquie Ask?

1. Is there a weight restriction on lifting? Can I still lift hush puppies and Menchies? And Publix cookies?

2. Will there be copious amounts of Cat Valium for my anesthesia so I reach “therapeutic” dose?

3. Can you put me under an alias during registration? I’m internet famous.

4. Will the nurses fan me with epipens and spoonfeed me IV Benadryl? (And hold my camera?)

Really, though? 32?

No. 443195

>>443144

I don't know what's weirder, the fact that she had 32 questions or the fact that she counted them like it's a point of pride.

No. 443219

>>443144
Top kek thanks anon! Gold star for you

No. 443271

Are we sure about the propanolol? Because this
>>442935 post is a reaction to that post with the video of one of Jaq's clones, and I am very sure Jaq said in one of her vlogs a while ago that she can't take beta blockers.

So.. where does Jaq say she is on propanolol?

No. 443292

>>443144
Also:
5. will a seperate tube drain better?
6. can you do some lipo on me, since I am under already? Someone on the internet said my tummy sticked out.


But in all seriousness, WHY does she need to see a second surgeon? She likes this surgeon and thinks he knows what he's talking about, he has experience with this specific surgery, and she has already decided. What TF is the second opinion for??

When she was in the hospital for an NJ tube and one doctor started talking about a surgical tube, she didn't really care as long as she got a tube and would be getting nutrition. So her being overly cautious and asking 32 questions for a surgery just doesn't fit. She didn't research ketamine side effects, or the controversy of intra articular use of Toradol. Her port surgery was decided on really quick, and I'm pretty sure she didn't consult another surgeon for it. She didn't seek a second opinion for other invasive treatments like starting saline infusions and having a tube in the first place. What's more, she saw several doctors who either didn't approve of IV saline or weren't outspoken against it, but didn't want to prescribe it to her. She didn't take their opinions seriously at the time, but just shopped until she found a doctor who was willing to do exactly what she asked. She also didn't have any problems with doctors practicing outside their scope in the past, e.g. prescribing treatments they didn't have any experience with.

But NOW she needs to see a second surgeon? I don't buy it. From her perspective, it only increased the risk of coming across a doctor who will call her on her BS. I'm telling you she has an agenda with this, I'm just not sure which one. I think she is going for TPN, at least as a temporary option to 'keep her alive' when her tube kinks. She either thinks she can get more out of this than 'just' a second tube, OR she is just really afraid of the pain of the surgery. Or both.

No. 443317

>>442639
>>442935

Oh great. Let me get this straight. She takes steroids for her asthma, and those are bad for EDS. She takes beta blockers for her POTS and those are bad for asthma. Good medication for thing A = bad medication for thing B. Anyone got any other nice examples to add?

Aaaand now she'll probably mention in a video soon how a medicine that's good for one condition can exacerbate (one of her fave words!) another and oh my, y'all, my body is so complicated!!

No. 443476

Last night I decided to watch her vlogs pre-feeding tube to see how she acts in comparison to when the tube kinks now.

Tube kinks now- Exhasuted, can't leave the house, sleeps all day. Basically dying.

Prefeeding tube hospitalization- Was excited and filmed all the too many things she brought to the hospital. Didn't seem tired at all, in fact she seemed thrilled.

You'd think pre tube she'd be the worst she had been in her life. Honestly, she seems better than she is now with the tube.

No. 443489

Ok, Jaquie AND Judd are conceited assholes. Heard on today’s episode: “A lot of y’all are asking how to behave if you ever see us in public…” “it’s always good to meet fans!” Gag.

And that horrific pornstache has to go. He just looks like a douche.

Internet famous, guys.

No. 443516

>>443317

Well, I'm pretty sure she doesn't have EDS based on her presentation and ability to do things most people who actually have it can't do….

No. 443524

Today's idea of a fun adventure date: going to the zoo and buying Judd a new toy (he didn't find the one he wanted. He was legit sad.) They are both children.

Numerous times Judd filmed jaquie rolling away, way ahead of him ("and… There she goes"). So much for being able to roll along beside him, she's off and away with her new found independence.

Jaquie had a rule there'd be no med talk. Except for the times she couldn't eat, was nauseous, needed the IF zofran, and the times her arms were so weak she couldn't easily control herself going downhill. Oh and don't forget all the service dog talk about Harlow not going to the zoo despite being good at the zoo and being allowed to go to the zoo. Nah, she's not getting any much needed exercise today, she's staying home, alone by herself.

No. 443525

See if you guys can guess what she cooked for dinner after a self proclaimed, particularly hard day suffering from GP.

Here's a clue, it starts with creamy chicken breast and ends with pasta.

No. 443534

Did anyone catch the epic shit show that is Paul and Janiece on their live broadcast today? Talk about a couple of loot whores riding Jaq’s coattails… not only do they have an Amazon gift list but now a PO Box… I can not stand how Paul and Janiece talk about how they treat medical personnel… I’m sure Jaquie waived her teaching fees to make sure BFF Janiece knows how to tantrum her way into ridiculous diagnoses and even more ridiculous medical items… yesterday Janiece really talked about nurses like all they are meant to do is wipe asses. It was really not surprising seeing that she learns from the best.

So many people are just sucked in to Jaquie’s bullshit. Buying her awfully designed t-shirts… I saw a comment recently between two chronically ill BFFs… “Thanks for being the Jaquie to my Janiece!”

Just. No.

What’s really terrible is that there are genuine, clean, family YouTubers out there that recently got completely demonetized… yet YouTube trash like Jaquie and Janiece continue to make money on YouTube… there’s got to be something that can be done to get this bitch off YouTube… we just haven’t figured it out yet.

No. 443546

>>443524
Can you guys PLEASE fucking link the shit you are talking about? This thread is a wall of text with missing vlogs/images. Imageboard plz.

No. 443553

>>443524

You know she tells him “ok, film me rolling away for the vlog!” the entire time they are out somewhere where she can show off the Barbie Car. She looks so… pathetic.

Nope, nothing medical today. Full of shit. She didn’t want to disappoint and stray from the norm pathological lies!

Oh god I have Pail and Janiece’s live running and just realized they have superchat enabled and people are actually paying it!

Dafuq? Did someone drop these subscribers as babies? Mommy eat paint chips? People are that hungry for attention that they have to pay Princess Enema extra to be noticed?

I was in Jaq’s 50k live chat. That was just like 400 people paying $50 a pop for a Jaquie asspat in the live chat. More monies for those super hideous table mats and tubie pads and spare cameras and new laptops and sooper speshul bed…

No. 443568

File: 1513219117603.jpeg (466.54 KB, 1237x1510, D45EBD97-070F-4E5E-93FF-5FC42D…)

>>443546

Sorry anon. Most of what I was talking about was memory… but I did find a fake baby that the owner (Mom?) plays with (as an adult) that is watching Jaquie in my quest to find that post I saw months ago in to which I was referring… maybe that will help. I will do better anon. But for now fakerealbaby.

No. 443572

>>443489

I bet NOBODY is asking that. Nobody. She just wants to make out that they are doing so because she's so popular you guys.

No. 443573

>>443553

Do you think they declare their internet earnings to the IRS?

No. 443597

>>443568

lolz I love the idea that the #chronicallyjaquie tag is going to be taken up by this freaky melted looking doll

No. 443640

I have to comment on her “having” mito. I actually have mito and it’s hinestly awful. There are only 4 doctors in the United States and there’s a lot of medicine you need to be on. Also how she claims she was tested is not how they test for mito. So full of crap! And my bet on why she doesn’t talk about it. There’s very little information on it. Every persons is so different and can really effect them differently. No two cases look the same.

No. 443641

>>443640

The "no two cases alike" thing probably plays to her favor. She can be terribly afflicted but it's all invisible kek

No. 443671

>>443534
Janiece is just a terrible person. I don't even feel sorry for Paul, he knew what she was like when he married her. Janiece was so hellbent on bitching about the nurse that she never ended up saying how the drs appointment went. I assume it was another dr who couldn't find anything wrong with her. Whatever happened to her butthole PT?

No. 443679

>>443534
Link/embed please

No. 443726

File: 1513243510501.png (1.14 MB, 923x649, Screen Shot 2017-12-14 at 09.2…)

It's sad how normal and happy they looked just 2.5 years ago. No vogmask, no leggings, no V necks (so no "muh sensory issues"), no tubes flopping out all over the place. Ironically, this is what most actually chronically ill people look like - like everybody else! I guess this was before she decided to rebrand as The Sickest Little YouTuber.

No. 443828

In today’s video she didn’t do the squinty eye thing when she was “exhausted” from prepping Harlow’s raw diet for two weeks. I think she is reading here. (I tried to attach the video, but I’m unsure if I did it right until it posts)

No. 443842

>>443828
LOL she says 'wants to take the best care of Harlow that she can' while at the same time admitting she feeds Harlow raw meat that has been frozen-defrosted-and-refrozen. Gross.

No. 443845

>>443516

Well yeah. Most certainly she doesn't. Not sure she has asthma either, considering how little she coughs when she has a cold… I'm just saying – making yourself more sick than you (allegedly) are by taking tons of meds is such classically munchie behavior, and I refuse to believe she hasn't looked up and memorized ALL the contraindications and side effects of ALL her medications long ago…

No. 443850

>>443828
I agree, it seems as though she is reading here. Showing lots of love to Harlow and the entire vlog is devoted to her nutrition. Lots of people have been paying attention to Harlow's health these last few days and so she needs to address it.

Same with the Star Wars toy - focusing on that. There was discussion about Judd being ignored here and now they may a special trip for him to find a toy he wants.

I have mixed feelings about her reading here if she is. Instead of focusing on what people are saying and catering to that, she just needs to be honest. Catering her content to this crowd (or any crowd) to try and provide answers to every question is just going to be exhausting. She will always have critics.

No. 443854

>>443842
I've only seen the first few minutes of this video, but I've noticed her prepping in stages and defrosting the meat she had already prepped in the process of adding other meat/veggies/whatever. And refreezing it later, of course. Yeah.. that's gross.

Also, I don't get why people feed their animals human-consumption-quality meat. There's LOTS of reasons why it is better to consume less meat/animal products in general (environmental, animal welfare, geopolitical, world hunger, health, etc.) and many people nowadays reduce their meat consumption. But at the same time, more and more people start to feed their pets raw, which means they need to eat a LOT more (quality) meat. It doesn't make sense to me.

I know that's not really a lolcow-worthy topic and I don't plan to make a discussion out of it, but when she says "Everything I feed Harlow could also feed a family" she acts like that is a good thing, while many people think that this is actually a big problem.

No. 443856

Also.. (samefag, sorry) her "I know that feeding raw is not feasible for everyone, so I'm not putting anyone down who doesn't do raw" is only making is worse. She does this a lot: e.g. about her Patreon: "I know not everyone can donate, and that is OK", blahblah is doing exactly that. Before she said it, I didn't even think that she was trying to say everyone should feed raw or that she thinks feeding raw is superior. But the second she says that, it becomes condescending. "I know it is not feasible for everyone". Not Jaquie, not everyone WANTS to feed raw. Some even think it is a bad thing. Not only for the reasons I mentioned, but there's also a lot of vets who don't support it.

The more she says that there is nothing wrong with doing things in a different way than she is, the more it sounds like she thinks she is superior for doing it the way she does it.

No. 443872

>>443856
Totally agree. It didn’t cross my mind either until she said “I know it is not feasible for everyone"
Also, did she mention anything medical for her besides her talking about the new surgery and how she will handle the raw feeds then? Usually her whole videos are about all her medical crap and the last few days it’s barely been mentioned except for the surgery stuff. What would have made her tone herself down other than reading here?

No. 443874

>>443842

And leaves it sitting out at room temperature while going to watch Glee

No. 443895

>>443872
I'm still torn about that. There are definitely coincidences but there is a part of me that doesn't see her or Janiece having control not to post here if they were reading here. And they are definitely not posting here.

No. 443912

>>443872
I already thought I couldn't possibly be the only one. It's condescending AF when she says it like that. And as I wrote, she does that A LOT. "I'm not saying everyone should do this, I know not everyone can.." Yes girl, you just did.

>>443874
Probably almost a whole day. She takes hours prepping, and leaves everything out on the counter while she takes her many breaks. And when she decides to add something in, she defrosts all the 'baggies' and does the same thing before she refreezes it yet again. But I'm glad to know she doesn't worry about the bacteria. She really should, though.

>>443895
YES. Sometimes I think she must be reading here, but most of the time I don't. Like you said, she probably won't be able to control herself. I also think she would adress it in her videos if she did. And while I can somehow see Jaquie being smart enough not to react and just ignore it alltogether as to not make things worse for herself (I think if somehow her followers would come here, a lot of them would see our side as there is a LOT of evidence), I cannot see Janiece ignoring it. And I don't think Jaquie would keep something like this a secret from Janiece. She seems to vent a lot to her (hence the 'body transplant' remark which she somehow thinks is very funny even when she repeats it again and again).

So.. I'm not sure. I think a lot of the 'coincidences' when she seems to adress something that was discussed here quite recent is because lolcow spills over a bit in her comment section on both YouTube and Instagram. By that I mean that either farmers react to her saying things we discussed, OR that other people just notice the same things. Her inconsistencies aren't subtle, so we're definitely not alone. I know there are many people who 'converted' to our side after they read stuff about Jaquie here, but I'm pretty sure there are just as many who found this site because they knew Jaquie is full of shit (I can't be the only one, can I?)

No. 443915

>>443912

The subtext of "I'm not saying everyone should do this, I know not everyone can.." is "But if you can, you absolutely, 100% should."

No. 443983

>>443912
Well said regarding whether she reads here or not. I was going to post the same thoughts.

No. 443990

>>443912

It's so hard to ask questions about things in her videos. I've seen people ask innocent, genuine questions, and have 5 or so of her "fans" answer for her either obsessively or defensively.

No. 444037

File: 1513290552539.png (1.01 MB, 1136x640, IMG_5110.PNG)

I realize that I'm somewhat late to the party but this is her earlier this week, on 63 degree day, wearing a sweater, hat and scarf inside and eating hush puppies after the appointment for her second feeding toooob.

No. 444054

>>444037

Is she actually drinking that soda? Because for severe GP that would be very inadvisable.

No. 444070

File: 1513294118526.png (9.19 MB, 2208x1242, 394CDD5F-E252-4F33-A35F-85AE84…)

>>443828

No… she did her faker face right after she was done and the prep was put away… and she walkered herself to the couch to die. I’m pretty sure we can’t go a full episode without seeing that cringy liar face.

No. 444078

>>443854

Anon brings up a good point here and just something I find ridiculous is where she buys her quality meat… Sam’s Club bulk. This isn’t meat that is organic, range-fed, no hormones, etc. Nope, it’s just plain ol’ chemical filled chicken boobies. It’s like the people who make that sooper speshul bone broth… from a Foster’s Farm frozen chicken. It’s been proven that you may as well drink that $1.69 store brand preservative filled broth instead and save yourself the work.

Btw, WTF is wrong with this chicken she is using for dinner one night a while back? It’s seriously diseased… and if you want a good laugh, check that IG account out. I’m dead. Can’t. Stop. Laughing.

No. 444086

>>444078
The picture is stomach turning. Nice advert to your page though. One post and zero followers. I am sure you just stumbled on it and are in no way affiliated.

No. 444102

File: 1513296876465.jpeg (163.08 KB, 1233x1191, C9085B85-72E8-4787-814E-D734A9…)

>>444086

No big… here’s just the chicken. Closer up. Almost parasitic.

No. 444105

>>444102
no one cares. find some other milk

No. 444106

>>444102

So she's super immunodeficient and already easily malnourished so you'd think she'd be careful with raw chicken which can cause salmonella. But no, no gloves, and I'm willing to bet she doesn't use a nail brush either.

No. 444108

According to Jaquie's surgeon a GJ tube is not a good long term solution. So is it odd that Mary Frey has had one so long? Who is the odd statistic? Mary or Jaquie?

No. 444109

>>444108
how about odd that most people 100% tube dependent have mickey, gj, ect. All 1 permanent tube not 2 jfc.

No. 444111

>>444109

It’s rare, that’s for sure.

That straight j surgery is going to just wreck her. It’s way more invasive and intensive. I just don’t see how Jaquie is going to do well.’she had a hard enough time with the trans-j. I’m sure mommy will be right by her side… with the camera.

No. 444112

File: 1513298005544.png (1.26 MB, 1334x750, IMG_5112.PNG)

It's kind of hard to tell in this picture but he is pushing against her head. And she's laughing and laughing. Shouldn't that be a big no and/or pain t r i g g e r for someone with soooper suhvere EDS?

No. 444117

>>444111

Yeah, anyone would have problems after a surgery like that. Despite the fact that she'll probably recover utterly normally, she'll have weeks and weeks of going on about her poor healing due to EDS (which she doesn't have) and "weird anatomy" (which she doesn't have either).

No. 444120

>>444112

Wow that's as close as they've gotten in ages.

No. 444170

File: 1513300672193.png (1.8 MB, 1334x750, IMG_5114.PNG)

>>444120
And it ended like this

No. 444187

Veterinary student here… just want to add that in addition to other pet health issues which I won’t go into, raw food diets are absolutely not
advised for pets who have any contact with immunocompromised people(we call them YOPIs or young, old, pregnant, or ahem jacquie immunosuppressed). There are a couple studies out there that show dogs can become subclinical carriers of pathogenic bacteria such as salmonella when fed a raw diet, not to mention the parasites they can pick up and pass on from raw meat. They may never show clinical signs of infection but will continuously shed the bacteria especially in their saliva and in their feces. FYI There is nothing magical about dog saliva, they just aren’t affected by certain pathogens like salmonella in the same way as humans. Additionally, if the water dish isn’t being sanitized after each time that Harlow drinks from it, it too is just one big breeding ground pool party for pathogenic bacteria. If Jacquie is as immunocompromised as she says, I can’t believe she’s not picking up diseases from Harlow, who’s constantly fetching items with her mouth. orrrrr plot twist jacquie’s chronic vomiting and occasional diarrhea is actually recurrent food poisoning from her dog.

No. 444241

>>444187

I want someone to point this out to both Jacquie and Janiece on YT so badly.

No. 444252

I would love to see her reaction to someone telling her this!!

No. 444255

File: 1513306653475.png (4.01 MB, 2208x1242, IMG_4151.PNG)

>>444170
I was super surprised to see that - it's literally the most affection I've ever seen between them.

And to the anon who commented on how he was pushing/pulling her head and neck - holy hell that looked violent! Especially for someone who supposedly has such a "painful and hypermobile" neck. (No, I'm
NOT saying Judd was abusing her.)

Just that I'm shocked she didn't cry out in pain or ask him to stop! Even horrified that he did it in the first place tbh - does he perhaps know that a lot of her joint/neck issues are exaggerated or put on?

No. 444275

>>444255

I bet there'll be lots of comments about how much that must of hurt her, and then tomorrow's vlog will include her remembering to mention how much her neck hurts.

No. 444285

>>444275
It's actually from Monday's vlog. I'm just super far behind in my Internets this week. No mention of neck pain in Tuesday or Wednesday's vlog. Must be the magic Special K she gets.

No. 444293

>>444120
>>444275
As far as I can tell, most of the comments are along the lines of "omfg sew kyute". But it's possible she deleted any commenters that were concerned about her neck.

No. 444332

>>444108
Mary Frey actually doesn’t have a GJ, she has a straight J and has always had one. She’s ever had a GJ because of her enlarged spleen making that not a good option for her.

I will say that most non-munchies who are tube fed due to Gastroparesis do seem to get J tubes eventually, but thatsvafter years and years of issues and typically the problem is the J portion reversing back itto the stomach, not linking.

No. 444373

>>443317
sage for medfagging
steroid pills are not contraindicated for EDS, only corticosteroid injections which break down collagen

No. 444519

>>444111
No one recommends separate tubes for eds unless there’s no other option. And a GJ tube is perfectly fine for long term use. A GJ also never, ever kinks as much as it does for jaquie. There’s something going on that we don’t know about, because her story doesn’t line up with the commonly known facts.

No. 444529

>>444519
I think so, too. But HOW is it that both her GI and the surgeon seem to agree on the fact that two seperate tubes would be best for her and will solve the problems she has with her tube? I don't understand it.

No. 444557

>>444529

We don't know that they originally did. Jacquie might have talked them into it?

No. 444574

>>444557
True, but whatever happened during that consult, in the end they agreed to do the surgery.

(Or that's what she tells us anyway, but I've said before that Jaquie is more subtle in her lies and I don't think she would lie about the surgeon wanting to do the surgery. Maybe about who's idea it was in the first place or about other suggestions they may have had, but not about the end result. Her whole deal is that she gets doctors to do what she wants, so she doesn't have to lie about what they say. And in the past she has shared when doctors didn't believe her, only to be a martyr about "how that mean doctor was so rude and how he didn't understand her illnesses", blahblah.
So long story, but I mean to say that I believe her when she says the surgeon agreed to do the surgery.)

If they would feel strongly enough about something not being right with this young and seemingly healthy lady who so many illnesses that she is a statistical anomaly and claims her anti-kink feeding tube kinks on her all the time, you'd think they would at least try to find an alternative that doesn't involve cutting into her belly and giving her another medical toy. And if they would suspect and eating disorder, you'd think they would try not to give her access to her stomach at the very least, and you'd hope they would refer her to a psychiatrist/clinical psychologist first. I've heard that in some hospitals, it is standard practice to have every patient that is refered for PEG placement accessed by a psychologist. They wouldn't even have to suspect an eating disorder or factitious disorder to do that: a (surgical) tube is a life changing thing and it's good if doctors make sure a patient knows that and has the right support to deal with that. Of course there are situations in which it's very clear that a tube is the best option (children with severe mental AND motor disabilities, people with cancer in especially the GI tract, etc.) but when it comes to things like motility disorders or even IBD where there's almost always multifactorial issues, I think it's generally a good idea to have a psychologist on the team. Who of course has no choice but to depend on the information he or she is given by the patient and maybe their doctors, but at least it's a start.

No. 444624

She LOVES to abuse the ER.

No. 444627

With the saline shortage how the hell is she still getting saline at the frequency she does?

The infusion center I go to has cut back on saline usage in every way possible, no more munchies coming in for saline for sooper suhvere POTS.

No. 444629

>>444624
Can someone help me understand how things work in the US, please? What is the difference between Urgent Care and the ER? Is it normal to go to an urgent care for a hive that won't go away instead of making an appointment with your GP to have it looked at?

Is it just me or does it look like she's starting to get a sore on her bottom lip around 9.02 in that vid? What's the bet she's going to end up spreading infection all over her body either on purpose or due to her inability to keep anything sterile?

No. 444630

>>444627
Same reason she gets everything else she gets: her drs are suckers and money talks.

No. 444631

>>444629

Urgent care is for people who don't have insurance, or if you can't get into your GP and don't need to go to the ER…it's like an in-between.

No. 444649

In today's spew of nonsense, Jaq tries to convince us she doesn't know what Ativan is.

No. 444690

>>444631
>>444629
Urgent care is where you go if you think you have strep or a UTI or something that needs an antibiotic but you can't get into see your primary care. People who get migraines and are required to go to an ER for injected medication (if the migraines are that bad) could go to an urgent care instead and be seen much faster than at an ER. Our urgent care can take care of broken bones, concussions, stitches, etc. If you walk into urgent care with heart attack symptoms or appendicitis symptoms, for example, you are sent to the emergency department at the hospital. Our Urgent Care is not on the same property as the hospital.

However, at the hospital where we travel a lot the Emergency Room begins with a triage area where everyone is assessed right away upon arrival (no waiting). Those who are emergent are sent through one door right away. Those who need "urgent care" are sent through a different door. Depending on your issue, the waiting can begin.

No. 444710

So, wait. The vet student says that Harlow's raw diet could be causing the puking. Then, today's vlog, the vlog RIGHT AFTER the raw feed prep vlog begins with vomiting?

Wow…I wonder if there's a pattern…raw prep day, vomit day…

No. 444718

File: 1513368456148.png (1.6 MB, 1334x750, IMG_5121.PNG)

Miss I'm so weak and dizzy from vomiting and muh POTS/EDS uses her walker as a step stool.

No. 444723

>>444718

Need to repo the walker and the barbie car and give them to someone actually in need.

No. 444724

>>444710
I don't know whether to believe her on the vomiting or not. Supposedly she is so incredibly sick yet manages to pick up the camera in the midst of a vomiting spell. And then after a short nap finds the energy to dust, clean the upstairs bathroom, restock the medical fridge, do her entire medical routine (on the floor of course) and fold laundry. Seems weird to me. Vomiting for hours should take a lot more out of her than that. Especially someone so "fragile"

No. 444731

>>444718
Yeah. Seems like someone who really needed a walker and wheelchair shouldn't be able to climb anything. Let alone a device not meant for climbing.

No. 444735

>>444649
Did I understand correctly that she okayed receiving TWO injections (lidocane and Benadryl) in order to lance a boil?

Nevermind the IV Benadryl and Ativan.

No. 444747

She's changing her intro y'all. Because some of you have complained that it's too long. And she thinks it's too cheery because this vlog is seriousness, okay?

No. 444772

>>444735


All of that shit for a fucking boil?

No. 444774

I just can't believe she wouldn't read here. It's 6th result on Google for "Chronically Jaquie" and "Jaquie Beckwith" and 7th for "Jaquie Blake youtube." I would be shocked if her fans didn't tell her about this page if she didn't bother to Google herself.

No. 444782

>>444774

I think she ignores it, and probably deletes the comments referring to it. I'm surprised we don't get more Jacquie fans sperging out in here tbh, they'r so quick to reply to anything questioning her in her YT comments.

No. 444797

(apology upfront for medfagging)
Maybe if Dr. Quack hadn't discontinued her antibiotic treatment early after her toenail surgery, she might not have had another occurrence of MRSA. The MRSA staph superbug is known to camp out quietly in the body waiting for an opportunity to cause reinfection. Most common sites are for entry are the nose and skin but staph can also enter the body thru portals like invasive lines—hmmm, like a medport, feeding tube, or her fave–her hip & neck injections. Exposing herself to possibly contaminated raw meat by prepping it without gloves is totally ignorant–even her dipwad BFF Janiece wears gloves to prep b/c some raw meat is known to carry staph & salmonella. The other likely ways to be exposed is in medical facilities and we all know this healthcare junkie has been overvisiting those. That supposed bugbite on Judd's arm (he's still sporting a bandage) is a classic presentation for staph to show up but she hasn't spilled on whether his was MRSA or not–cuz it's not about Babe, y'all. The final piece of this puzzle is that is is very contagious, spread from sharing washcloths, towels, bed linens, and in her case with her butt boil, the toilet–didn't see her on the floor scrubbing that today.
But we all knew that with the holidays coming up, she would have to rev up her medley of diseases & symptoms so she can ruin everyone's fun–maybe even a trip to the hospital for more comprehensive care, b/c she is such a complex case. Sadly no treatment has been discovered yet for her #1 diagnosis–the disorder of deception.

No. 444801

>>444797
>>Sadly no treatment has been discovered yet for her #1 diagnosis–the disorder of deception.
O, but there is, It's called the truth. Some people don't want it though, because it's contraindicated with attention whoring and making money off of lies.

No. 444834

File: 1513380186992.png (1.27 MB, 1282x715, perfume.PNG)

Can anybody confirm that there are perfume bottles in Jacquie's bathroom? Right above the left side of the mirror. Those all look like scented body mist or perfume bottles to me – an odd choice for somebody as supposedly sensitive as she is.

No. 444842

>>444834
That is definitely perfume and you get ALLLLL the Gold Stars for that catch anon.

No. 444850

How is it that there are never any signs of vomit on her (only) sweater? If she vomits so much and so violently there has to be some backsplash…

No. 444852

>>444844
Wtf is this?

No. 444854

>>444850
Another thing I have noticed is that she rarely has her hair pulled back during these "episodes" I don't puke often but the hair always, always goes back.

No. 444855

Oh my god Jaquie. For someone so in pain all the time she doesn’t know what the hell pain is. All the angst and even a fucking Atavan for a butt boil?! You don’t have chronic pain. Not even close.

And what’s with letting our hair hang in the raw meat? That is so disgusting

No. 444856

>>444855
her hair is so gross- raw meat, dirty counter, toilet, puke, not washed for days/ weeks, etc etc, list goes on.

No. 444857

Jacquie had a more productive day than I did. Good lord I don't know how someone with 56 diagnoses can clean their whole house, vlog, edit yesterday's vlog, nap, and visit urgent care and the ER.

I'm genuinely curious what she thought urgent care was going to do for a persistent hive.

Also, I&D's hurt everyone. It's not easy on everyone else and just painful for her due to her sooper speshul lidocaine metabolism.

No. 444858

>>444855
She needs to just chop it off. It looks awful. You only ever see split ends like that on homeless people or drug addicts.

No. 444874

>>444529
Jaquie purposely goes to doctors who aren’t knowledgeable about eds, pots, mcas, and GP. If she went to real specialists, they’d have her figured out in a minute, like when she went to mayo. Instead she’s found doctors that go along with whatever she wants, because they don’t know any better. If she actually had eds and GP and went to real specialists, they’d never allow her to have a single tube, let alone two, since she’s got absolutely no positive test results or even real symptoms. However, she neither has GP nor goes to a GP who has any knowledge of it.

No. 444889

>>444863

Someone please put this anon out to pasture, idk what the fuck they're tripping on.

No. 444901

>>444856

But she uses those dry shampooz! And body wipes from Amazon.

And bullshit she doesn’t know what Ativan is. It’s actually one of the medications used to help with mast cell reactions - she has to know.

No. 444912

>>444858
But ermagherd hair cuts are so traumatic bc of muh sooooper speshul SPD and autism. I can't believe y'all would want me to go through that!

No. 444913

File: 1513385675040.png (6.1 MB, 1242x2208, 22913D09-C2A3-49F9-8D7F-6A3CCA…)

>>444834

Definitely perfume/cologne. Here’s another shot of it… can’t tell brands but it’s definitely not on Jaq’s safe list since a lady walking by her with perfume sends her in to a reaction.

No. 444914

>>444913
Funny how that happened in the ER while she was checking in lol.

No. 444916

Her fucking housework montage today. She gets so much done. I can't do half that shit on a good day and I don't even have half the conditions she has. But she's doing all that on a BAD day??

Saged for blogging and I'm sorry but I'm so fucking sick of this bitch claiming to be the sickest but then doing a bunch of stuff most people who are chronically I'll can only dream of.

No. 444921

After her housework montage you'd expect her to be wrecked but nah. She's lying in bed without her droopy eyes or monotone voice, she's still pretty awake and excited. Except for a couple of brief moments where she mentioned she was pushing a zofran and hooking up to her fluids or feeds or something. both separate times she mentions this, she suddenly closes her eyes and sighs like she's sick/in pain. But then continues on like normal. It's just normal at this point for her to put it on when she mentions she's using meds or not feeling great.

No. 444945

Scent sensitive but cleaning products are ok. I'm not even scent sensitive but I hate most cleaning products. Sage for blogging

Also, regarding that access why didn't she goto her primary? They can easily lanse and drain that shit.

But no, business of blogging requires serious medical visits, y'all.

Regarding why she and Judd got married - my theory. She was about to loose her daddy's insurance. Most insurance covering dependants require the child to be a student to continue coverage past the age of 21.

Everything is business to her. How is X benefiting ME?

No. 444948

>>444852

Same person who posted anti-fat memes in the general Munchie thread? I'm sure there's a thread for that already…

No. 444949

>>444945

Additionally Judd has that sweet sweet TriCare Prime which has a $0 for everything.

No. 444950

>>444874

This is what confuses me. Why don't they send her to actual EDS etc specialists ??

No. 444952

Average primary care doc and even other specialists may not know names of real EDS docs.

No. 444955

>>444952

That's not really an excuse to keep bullshitting along with her, it just plays into her hands.

I can guarantee if she saw the EDS specialist who diagnosed me, she'd be going home with an exercise plan and nothing else.

No. 444965

>>444955

If she saw a real EDS doc like Dr. Francomano she wouldn't even get an EDS diagnosis.

No. 444980

File: 1513392927027.jpg (202.56 KB, 1080x543, Screenshot_20171215-205414.jpg)

Not only is there multiple perfumes and colognes, but a candle!

No. 444981

File: 1513392943406.jpg (38.82 KB, 462x275, Screenshot_20171215-205120.jpg)


No. 444991

>>444980
That certainly makes her claim to have an anaphylactic reaction to a passing woman's perfume highly suspicious (not that it wasn't already…)

No. 444996

>>444950
Lots of doctors don’t want to admit that there’s something medical that they’re not experts in. Jaquie has purposely shopped for and sought out those types of doctors, the ones that jump into invasive treatments that are outside their scope of practices. It’s wrong and incredibly unethical, but unfortunately happens.

No. 444998

>>444991
Yeah, she’s never showed any symptoms of anaphylaxis, pretty sure it’s pure bullshit.

No. 445018

I wish there was a way to expose her.

No. 445033

>>445018

You'd think pointing out inconsistencies like this in her comments would get a few people to sit up and pay attention. Did anyone comment about the perfumes?

No. 445036

>>444078

Has this "chronicallywaquie" spoof page been removed already?

No. 445043

>>445036

Yep, I tried to access it 6 hours after anon posted and it was gone

No. 445077

>>445036
It was gone within a half hour of it being posted here. I called the poster out because there was one post and zero followers, they were clearly advertising - and poof it was gone

No. 445097

File: 1513403434722.jpeg (264.15 KB, 1242x2009, 035D3A0F-672B-47F5-AB23-C9D2FC…)

>>445036

I’ve seen a few of these “fan pages” pop up now and again in hashtag searches. There was a point in one of the live videos (no link because it was before the IG save ability on live feeds) where someone asked her and Judd what they thought about the fan pages and they gave a super cheesy: well we are so flattered when fans show support, y’all… then someone asked how it felt to have so many followers stuck up their ass and Judd replied with some equally as cheesy reply to the tune of we love all of our fans but he was so flustered by the trolls it was kind of funny to see him lose his cool… maybe it was the middle finger emojis that got to him.. hard to tell.

No. 445106

File: 1513404613093.png (8.39 MB, 2208x1242, E67A7560-63F3-474B-BDA2-012A7F…)

Any other anons excited for the speshul new merch?

I’m telling you right now… there’s gonna be stuffed plushy Harlows… just like the plushy Ollies. I’ll be shocked if I’m wrong.

I wonder what they are pulling in monthly… I think six of the patrons pay $50 or more… and the others probably give her a nice chunk. Furthermore, I wonder what Jaq would have as an excuse if someone asked for the receipt showing their super generous donation to the Red Cross. I don’t recall if it was supposed to be part of the Patreon month or T-shirt proceeds that were to be donated but I do remember they said they’d be donating. Maybe it fell way of the subtitle promise, too.

No. 445109

>>445106

Her merchandise is so tacky though!
It doesn't have a slogan or theme that you could show without also showing that you're a fan of FAMOUS INTERNET SICK GIRL CHRONICALLY JAQUIE. Because it's about her. Every single time.

No. 445111

So does Jaquie not realize if she keeps getting these MRSA infections no doctor in their right mind will give her another hole? I feel like she's so caught up in having something 'wrong' that she isn't thinking it through. She munchies her way into new ailments every damn day, but now it might actually come back to bite her in the ass. Her doctor isn't going to want to slice n' dice our speshul snowflake if shes truly teaming with MRSA. Or maybe he will, and she will go septic and finally learn what really sick feels like. I'm interested to see how this goes.

No. 445122

>>445111

That's a really good point.

Unless she doesn't actually have MRSA and she's just making a huge fuss out of a minor infection, and the treatment-resistant bug will miraculously have disappeared when it's surgery time.

No. 445135

>>444945
Yes! Use your damn Dr for this type of thing. It annoys me to no end that people go to the ER for shit like this! And then wonder why they have to wait so long. Stop using the ER as your personal clinic.
Obviously I feel strongly about this

What’s with the absence of Instagram posts from her?

No. 445158

Funny how Jaquie only got problems with lidocaine not working AFTER someone told her she might have EDS, eh?

Here is her port video, where she tells how the sedation didn't work well, but "I didn't feel any pain, because they numbed it."
(Not sure if the embedded video goes directly to the right section, but if it doesn't, that section is here https://www.youtube.com/watch?v=unYZo0XzMoE&t=639s)

I find it so infuriating to watch how often she repeats that lido doesn't work for her and that "my body metabolizes it soooo fast" (sometimes it doesn't work well in EDS (mainly hypermobile and classical types) but they don't know why, and it has been disproven that it is because it metabolizes faster) while a) it doesn't work like that (as I just wrote) b) she doesn't have fucking EDS and c) she didn't have any problems with it before. Like I said, she was wide awake for her port surgery but because they used a local, it was just weird but not painful. And when she had her bone marrow biopsy the doctor said he would use a ton of lidocaine and she would be allright and she wasn't worried about it at all (that actually IS very painful and the doctor shouldn't have said she wouldn't feel any pain - but the point is, when he said he would use lido and it wouldn't hurt, she believed him because she knew lido worked FINE for her).

Now I REALLY start to think she has a drug problem. She knows the lido works well for her and she still gets not only Ativan to calm her down, but also her second favorite IV drug - Benadryl. And as someone else says: she needs all this to lance a boil AND is still worried about it? Yeah, now I understand why she doesn't want the J-tube surgery. Her pain tolerance must be very, very low. (NOT that she is to blame for that, but instead of whining about her severe pain and having all sorts of drugs pumped into her, she would do better if she just acknowledged this and learned some psychological stategies to better deal with her pain.

No. 445159

>>444949
Prime is only free if you see a military doctor and there's no way Queen Jaq would go and let them tell her she's full of shit. However the copays are dirt cheap, roughly $12 per doctor visit and $20 for an ER visit.

No. 445171

>>445158
Why are the comments disabled on that video? She must have got some pushback.

No. 445191

>>445171
Nah, I think she had them disabled from the beginning. She has it on all her "all about my special conditions/treatments"-videos. I think it's just that she expected to get a lot of questions/remarks on that kind of videos and she decided it was easier to disable them beforehand.

No. 445210

>>445111
She isn't planning to get her separate J tube until next month so she has to have something wrong in the meantime because if she isn't sick, she doesn't have a damn thing to vlog about. Just the fact that she was ok delaying the J tube surgery is suspicious since she flips out every time the tube kinks, making her seem overly confident that it won't kink before the surgery date. She's gunning for a hospital admission for IV antibiotics to FU the holidays and keep the attention on herself. After all, she drama-ed it up going to the ED for a butt boil when she has a hotline to several docs that could have lanced it in the office. Of course that was so she could get better drugs for it.

No. 445242

I think Jaq is a hot ball of MRSA and these little pockets of infection are going to keep popping up. She prepared her IV solution on the floor in the last blog–no hand sanitizer, no alcohol prep pads to clean the port tubing, etc—just setting herself up for more infection. Also, she kept talking about what "we" did for the butt-boil-draining—"we used lidocaine", "we injected benadryl"—is she now scrubbing in and assisting on her own procedures now?

No. 445272

File: 1513439175249.png (958.66 KB, 750x1334, IMG_5124.PNG)

It really is creepy how much this chick has copied Jaquie. Right down to the weird open mouthed grin and the thumbs up. Oh and the Mickey button.

No. 445273

File: 1513439332413.jpg (97.29 KB, 1789x581, CQOEEkx.jpg)

I did a search for the use of Benadryl for local anesthesia: I had never heard of it and am a bit of a nerd like that. One of the things I found was a YT video taken in an ER where a resident was suturing some woman's hand with the use of benadryl as an anesthetic: https://www.youtube.com/watch?v=XvVAZO6gZEg Apparently, it worked very well (other articles I found seem to support this, too).

In the comment section, I found the attached conversation. It's been mentioned before on here that in some patients benadryl gives some sort of a rush, but I'd think it would have to be quite pronounced for patients to feign symptoms just to get it. With the way Jaquie uses benadryl "just in case" and even when she knows it will probably not do anything, I really wonder if this is why.

As a side note, I find it interesting that I've discovered more than one type of off-label use for a certain medication that I had not heard of before. Last time it was intra articular injections with an NSAID, and now it is benadryl as a local. You'd think borh of those would be known in the EDS community, but they are not. I don't know what that tells us, maybe that Jaquie is VERY good at making doctors think she is really desperate for relief of her symptom of the day? Not only does she get top notch treatment that normally is only reserved for patients that are more severely affected with the conditions she may or may not even have (like IV saline for POTS, a J-tube for GP, IA injections and IV ketamine for pain, etc.) but it also seems like doctors go out of their way throw anything at her that could maybe treat her symptoms.

Also interesting is that we learned in yesterdays vlog that Jaquie does NOT share anything medical. Rather, she only shares the things that either fit her image or become dramatic. She didn't vlog her going to urgent care for her butt boil and said she wasn't planning to tell about it because it was "kind of private" (like that ever stopped her from showing us her precious tube pads, but hey). But when she was sent to the ER, she did vlog there. This is in line with her not telling about a toe infection that she said she had for over a year and only mention it when she got more invasive treatments for it. My theory is that she was somewhat embarassed by the toe thing. It makes me wonder though what else might be going on that she doesn't share. And even more, what her reasons are to not share. Normally, she not only shows us her tubie pads, but she also vlogs herself coming out of anesthesia not being in control, and herself in a most vulnerable state in a hospital bed after surgery and/or an allergic reaction. I don't know, but when I'm not feeling well and am in hospital I only want people there who I feel very close to. There's people I go along with great and even those I consider friends who I would NOT want at my hospital bed, let alone share a video of it with strangers.

No. 445276

>>445273
I agree she isn't sharing everything. In the comments on her video about the consult for a second tube she mentioned that was the third opinion she'd sought out and the next surgeon she's consulting will be the fourth opinion. Assuming her regular GI doctor is one of those four opinions, she hasn't mentioned who/what/where/when the other opinion was or what they said. (I wonder if she consulted another surgeon before this one who recommended against a second tube?)

No. 445277

>>445276
O wow, that is so interesting. And odd. Who in the world needs FOUR opinions on a surgery like that? On any surgery, for that matter? If she didn't share it, I think chances are that some doctor recommended against it. Or she means her GP or her "POTS doctor" is onboard as well? (They always are anyway?)

No. 445290

>>445273

Oh anon I snorted laughing… thank you. So I wonder what Judd would think if he knew Jaq was sneaking off in the night to IV Benadryl for her female pleasures. Poor guy. He’s so fucked. Stuck. He’s got to be embarrassed always following (camera in hand of course) the Barbie Car around with its EDC lights (wouldn’t those lights be bad for epileptics like Jaq?)… and I’m guessing that he hates when she makes him take the camera out on his boring errands. It seems so forced. Much like their conversations with each other.

I do think Jaq gets some sort of physical pleasure from these medical goodies. She’s always SO excited to show y’all her new XYZ to help “mitigate her disabilities” with illness ABC… and it’s almost orgasmic to her. I believe this is a thing… like that show “My Strange Addiction” where these peeps get off on loving pool toys, weird shit like coffee enemas, have relationships with their cars… one lady was so addicted to butt injections to make her ass bigger even at the expense of her health… she ended up getting ass necrosis or some shit. But she just couldn’t stop. Much like our Medical Barbie.

I watch this YT video and the way she says the stuff in the intro sounds like she’s seriously about to explode with pleasure. “…and a service dog!” Harlow is of zero use here… especially since Jaq has the Barbie Car to schlep her shit around. Oh wait, those alertz tho.

I wondered once how Jaq got her internet fame… I dug around a bit and (this was long ago so no visual milk) found out that she started all of this by submitting a video of Harlow doing pointless tricks “mitugatin’ those disabilities, y’all” in stores… to some local news station and then it exploded because people like dogs that do tricks, not because of Jaq herself. I will try to find where I came across that.

No. 445303

>>445272

This girl is sick… in the fucking head. I watched all of her YouTube videos and she’s like a Jaq clone… right down to the IV Benadryl, Golden Retriever with matching custom patches to Harlow’s, excitement at her j-tube Button, she got the same fucking adjustable bed as Jaq the day after Jaq, the Kate Farms speshul nutrishun, anaphylaxis, even the fucking narcolepsy! It’s really creepy. Oh and she’s getting a Barbie Car from the same place Jaq and Julian did. She complains a lot about her treatment from the Florida Hospital system and doctors that are mean and don’t believe her.

Jaq’s got some of the creepiest stalker followers.

No. 445306

File: 1513444066877.jpeg (109.12 KB, 1136x640, B09057FC-0387-443D-9197-5350BE…)

Do arms way above her head, and this time she uses head phones for her sensory issues again?! She’s so special (insert eye roll here)

No. 445309

>>445277

I don’t think it’s a matter of getting four opinions but moreso shopping for a surgeon who will do the procedure on her. My guess is that she’s receiving pushback from these docs not wanting to cut her open again… so on to the next and the next and the next. Until she finds one who will hook her up to her special K and pop a hole into her MRSA infected body and give her that dilaudid… and Ativan… and Benadryl… and zofran… and Toradol.

No. 445310

>>445306

Thank god that pornstache is gone. He looked like the biggest douche.

No. 445328

>>445306
Adjustable Jaquie again! The neck & shoulder pain magically disappeared in the Magic Kingdom! She should permanently move into the Cinderella castle, because her pain magically disappears, she can magically eat & drink, & she can race around in her magic Barbie car.
Sure hope Judd's mom stocked up on Lysol disinfectant to sanitize the bed, chairs, toilet, etc. that Ms.2nd Butthole uses at her house this weekend.

No. 445355

1) In today's vlog, Jaq wears an actual outfit. I'm surprised she doesn't make a huge deal out of it.

2) Genuine question: if her tube is (likely) kinking because she's venting, won't the G tube continue to kink even when she has a second J tube? Won't this actually solve nothing and ultimately end up wit them removing her G tube or something?

No. 445383

>>445309
Either that or she's hoping number 4 will suggest TPN. That's the bestest, most -clean- way to take in "muh nutrition" without having to dirty herself with actual human food.

No. 445385

I just remembered Jaquie was supposed to have a dietician appointment some time back and she was 'interested to see what they had to say'. Did she ever go?

No. 445386

>>445385
If she did they must not have told her anything she wanted to hear because she never mentioned it. It was supposed to be at the end of October.

No. 445400

>>445386
If I remember right, it was cancelled because she had some kind of medical emergency at the time. I don't know if she rescheduled it, though.

No. 445453

File: 1513462159964.jpg (217.85 KB, 1920x1080, CHVY0wh.jpg)

do i need to comment on this pic or does it speak for itself? if i may add though that no one wants the mask and wheelchair in their picture. she could've easily stood up and taken the mask off for a fucking picture. jesus christmas. literally.

No. 445477

>>445453
Oh my fucking god. At the verrry least, take off the mask and put your hands on your lap. She's not gonna roll away. If she put her hands/feet down it'd almost look like she was sitting in a chair.

No. 445484

>>445453

If she's got the Smartdrive, she doesn't fucking need the gloves since you barely need to use your handrims to turn, but no, she's gotta look sooper sick.

Also, Judd is REALLY against holding her hand, he said again in today's vlog "let's not go that far" in regards to her rolling next to them so they could hold hands.

No. 445485

>>445355
The G-tube will be a straight tube that goes from outside into her stomach. She could easily replace this tube at home. The tube could clog, however. The interesting thing is that if it clogs, she could simply deflate the balloon and pop in a new one since the clog won't be bigger than the tube itself. But, her doctor does not seem to give her extra tubes. Mary Frey, for instance, has an extra one at home for emergencies, should she need to change her tube.

Some J-tubes can be replaced at home, depending on the type of tube, placement, etc. Regardless, I imagine it will be a shorter tube that does not need to "u-turn" so it should not kink.

I know she could have two buttons, but I wonder if any of the surgeon consultations are about finding one that will put in a button tube rather than a large tube like she had originally?

No. 445491

She is putting the raw food meals in the same cooler as her medical stuff. Is this safe? After the vet student chimed in, I can't stop thinking about bacteria.

No. 445505

>>445453
Doesn't it look like Judd's mom, sister and her boyfriend are trying not to laugh? Even Harlow looks like, "Oh Sheesh!" with her eyes shut. I'm surprised it wasn't a sideview of the Barbie car with her wheel lights flashing!

No. 445515

Armyfag here, Judd is a reservist (pretty sure anyway that he's not s active duty) so he has what's called Tricare Reserve Select. He has to pay into the program and unlike Tricare prime, with no copays or premiums (100% free full-coverage insurance for the service member and their dependents) it is not a full-coverage program. Jaquie is still having to pay a premium and co-pays for her treatment, and with how often she goes to the doctor she's probably spending a small fortune every month on medical expenses. My god. At least she has that sweet sweet Patreon money, right?

No. 445526

Judd and co left jaquie in a corner somewhere so they could go on some rides (she was too tired) and when they got back she'd apparently fallen asleep. But her mask was off. Even Though she was outside and there were people walking by.

So she can take her mask off outside if it means she can be more comfortable/sleep, but she can't take it off for a photo.

No. 445541

>>445491
I can’t imagine this being safe at all. I’ve been told that my saline bags have to be kept in a ziplock bag even if they ARENT stored on top of bacteria-covered “raw food” Honestly it’s like she WANTS to get a port infection. The few times I’ve seen her wipe her clave with alcohol before accessing, she barely touches it and you’re supposed to wipe for 30seconds! How has she not gotten sepsis yet I wonder??? It seems nearly impossible

No. 445559

File: 1513475570499.jpg (252.84 KB, 1073x981, Screenshot_20171216-204715.jpg)

Well,well, well…

No. 445569

>>445484

honestly, can you blame him? if she's rolling along in her magic power chair and he's walking next to her holding hands, it'll look ridiculous. it's just so extra.

No. 445570

>>445559

I also wondered about the snow at Disney. Given that it's probably some cheap, powdered detergent, I imagine someone with MCAD couldn't handle it.

No. 445572

>>445515
But, Tricare is probably a secondary insurance, right? Judd probably gets insurance through his employer and Tricare is probably a secondary source of insurance.

No. 445585

>>445572

Possibly…

Either way she probably met out of pocket maximum which will be on the low side (3 to 4K) with either on Tricare or Judd's PD plan, so I'd imagine after Q1 everything's been free this year.

With what she has had so far she hit that fast.

No. 445587

>>445559

I wonder what stupid fucking retort she will have.

That family photo is just so awful. Should be a submission for Awkward Family Photos. She is such a blatant attention seeker. Judd’s Family probably enjoy the time away from her at the park since all she does is talk about herself and her medical pR0n. The gloves are stupid. The lights are stupid. The service dog in hot pink. Stupid. All of it. She needs to munch her way into the loonie bin.

No. 445590

>>445587
When they got to disney Jaq had Jud's sister leaning over her shoulder and in the shot. She was talking about how they'd found the fam there and how glad she as to be spending time with her or something. then immediately jumps into talking about her fucking ass abscess. Her sister in law still learning over her shoulder and smiling. "My bum still hurts, from my abscess but I'm still here to enjoy myself" (not quoting directly but it was cringey af)

No. 445605

>>445135

She gets enough attention and money from YouTube.

No. 445608

>>445541

It's almost like she wants sepsis. I mean, she wants "sepsis" ("omg I have sepsis you guys") but not actual sepsis.

No. 445618

>>445608
No worries because 2 days after she was diagnosed with aseptic meningitis (after 2nd IVIG) she was out of the hospital and out running errands with Babe. So much for her severe immunodeficiency.

No. 445622

>>445453
This pic is beyond fucking words even for munchie queen of the year. I mean seriously, who wears a vog mask in a family photo?!? This is incomprehensible.

No. 445634

>>445306
Does she ride the rides at Disney? Because with eds you’re usually told that any kind of ride, especially roller coasters, is off-limits. Disney is the exact opposite of the place a person with eds/pots/mcas/gp would do well in, yet she’s totally fine there.

No. 445640

>>445634

I'm not sure if she goes on the rides, but it also seems that rides would be contraindicated in cataplexy because they involve adrenaline and excitement.

EDS doesn't necessarily preclude people from rollercoasters though (personal experience), as long as there's adequate restraint.

No. 445657

>>445634
The rides at Disney are some of the tamest you'll find at theme parks with the exception of a few. None that I went on when I was there caused me any damage or pain later. (However, I did not go on any true roller coasters because I'm not an idiot.)

No. 445740

File: 1513518324454.png (7.4 MB, 1242x2208, 82D456FB-6AFD-4269-A1F5-821F91…)

I have noticed often that Jaq gets her nails done. Right now she is sporting a really nice French’s mani. Another trigger for mast cell is nail salon fumes. I don’t see her having steady enough hands to do this nice of a job herself, so she has to go somewhere. Once again, Adjustable Jaquie shows us she’s not sick at all. Those fumes have a tendency to make a normal person feel sick let alone one as sooper sick as Jaquie. She also got them done for her ridiculous Target dress wedding… no issues.

No. 445744

I went back to the beginning to try to find some of the videos where she appears to actually be getting off on medical shit. Didn’t have to look too far to find the first ridiculous one. Fast forward to around the 5:50 mark. It is fucking frightening how amped up she gets about “getting to” access herself. Fucking sick. No normal person gets that excited about accessing her port for the very first time on her own. She almost gets out of breath because she is talking so fast and excitedly… also, where is her sooper speshul cataplexy right now? Isn’t it supposed to trigger when she gets really excited? This bitch is such a joke. Clearly from day one in her “vee-logging” adventures.

No. 445747

>>445744
Wow, she sounds awfully cheery at the end of this. Between the enthusiasm and the actual outfit, she looks so different.

No. 445749

>>445744
She has come a long way in her YT performances. She was really manic in this one–over being sick? No monotone, tight-lipped blah face for sure. Funny that she pointed to her neck and said her top rib was out of place–no ribs in your neck, Jaq. And wearing normal clothes? At least then she had normal tops/pjs, but the noticed toddler uniform was also visible. Actually was compliant and went to PT–and drove herself! The downward spiral begins…

No. 445757

>>445749

Yes! Manic is exactly the word I was looking for! I've seen it in a few videos where she can literally barely contain herself when she talks about her illnesses or medical pr0n.

I am truly shocked that with her low immunity that she has not gotten sepsis for as much as she abuses her port. Medfagging a bit, but I've gone through three of them in about six years and lost two due to sepsis… She really would have had some sort of problem by now if she were so sooooper sick.

Also, having a port… I don't think I could talk about it for five minutes let alone 36 minutes.

She really has changed since the beginning videos… adding more illnesses, getting her acting down, perfecting her munchness. I really can't believe she's been doing this for a year now and still has such a base of loyal whackadoos that follow and stick up for her when anyone says boo to call her out. I can't wait for the day that she goes down in flames.

No. 445761

I find it funny that she talks about (10:43) how much sedation she got for her "twilight" port surgery and it didn't work at all, guys! Seems like her fascination for those anesthesia drugs started back in the beginning… she talks about Fentanyl, Versed and that good ol' IV Benadryl she loves so much… and how she got a FULL dose of each one and was wide awake…

Does someone have an opiate/sedation tolerance? Not our innocent Jaq who is so against narcotics, but she'll happily let doctors pump her full of horse tranquilizer… Special K FTW, y'all!

And on that note, after thinking about her poorly acted out naivety to "dilooted" and "What is Ativan?" she is SOOO full of crap! Dilaudid is like the go-to in post-op units! She is such a fuckwit.

No. 445763

>>445744
I don’t even know who that Jaquie is. Like.. she’s a completely 360 different person. In this video she seems so alive, happy, animated, independent, and mature. I just simply do not understand how she took such a turn for the worst and went full blown adult fake autistic baby with every single tube she could find. Also .. what happened to her MALS? Did she mention that surrounding her double-toob explosion? Wouldn’t that have also caused complications on top of her “weird anatomy?” Somebody enlighten me.

No. 445764

>>445761
Since the port video is being discussed, any idea why that is the top suggested video on YT when typing "chronically jaquie"? At least on any device I have ever watched her on, it always always populates chronically Jaquie port in the search field as top suggestion.

No. 445771

I haven't watched this whole video but wow, Janiece hasn't spoken to her dad in four years! Between that and her crazy mom, it's no wonder she is the way she is.

No. 445783

>>445453
That wheelchair fits her so poorly. How can you call that custom??

No. 445790

>>445763 (I don’t even know who that Jaquie is.)
Jaquie is just a social misfit who fell into the YT open grave of child-minded mostly girls who gain attention and "love" from anonymous media followers, rather than form relationships with REAL PEOPLE. She found that she can get love, attention, & money under the guise of being a chronic illness advocate, when she is just a munchie who has NOTHING to offer other than having/faking illness. I say open grave because once she obsesses illness to the degree of living it out EVERY SINGLE DAY with no other goals, aspirations, or insight on living a productive life despite a few MINOR medical speedbumps, it will be very hard to crawl out of that open grave and undo all this insane overdramatization of illness. Even on the days she doesn't feel sick or doesn't have an appointment, or is only making creamy chicken and soggy broccoli, she has NOTHING to vlog so she has to produce/fake symptoms or she will lose her audience. I'm not convinced of the autism thing–she just seems like an immature lost child who is scrambling for attention and plays out the childlike "I'm so innocent" role to keep her "service humans" on call because she is "chronically sick and helpless". It kind of explains the vogmask/wheelchair family photo–she was at Disney–she couldn't be at Disney having too much fun because she is chronically ill.
Who is Jaquie if she is not sick?

No. 445791

>>445763
She was tested for it and it turned out she had it (that part you probably know). During the highlight of her recurring anaphylaxis her GI wanted her to go to a surgeon about it but she would have to travel out of state and she was not well enough for it. There was a mention of her records being sent to him, and then in was dropped.

I don't know what happened there, but I find it strange: MALS is supposed to be curable, and if you have such severe GI probs that you need a permanent feeding tube, I would first want to make sure if a fixable problem maybe would give enough relief that I wouldn't need that tube. The same goes for her GI, who seemed very happy to just put in a tube. Even gave her a surgical tube right away, despite Jaquie saying that the NJ was OK because it was a more temporary option so it could easily be removed if it turned out she was just in a flare.

>>445783
Yeah, it's terrible. We discussed it more in depth when she first got it. But she still keeps saying that it is so great because it is made specifically to her measurements and it fits her like a glove. Well.. no, it's terrible. Her posture in it, the way she has to move her arms to propel.. everything. Nothing about that chair actually fits her.

No. 445803

>>445790
Yeah, that - I think - is the problem with 'illness vlogging' in general. I was talking to my sibling the other day how I watched YouTubers who do this and how the problem is that if you make your channel about illness, every crisis you have is going to get you more views. So they have to go to the ER with minor things, vlog themselves being sick, have new crises, etc. Even for those who don't start out with fake symptoms I think it is very hard not to focus too much on the illness part of their lives and not make anything illness-related thing bigger than it is. If you look at Jaquies view counts, the most views she gets (outside of Harlow-focused videos) is when she is in the hospital with some sort of crisis. The same goes for most other illness vloggers. Look at Aubrey for example, most of her vlogs have a couple of hundred views at most, often in the 200's. But her "I have cancer" vlog has and the one following that "at peace with my cancer diagnosis" have over 3K. It's crazy. And it's the same for Jaquie, although she has so many crises lately that the effect is less pronounced now.

No. 445804

Today, she complains that the cold weather makes her body pains worse. She's…inside, so that's wild. It's currently 76F in Florida, so about room temperate. But she's also heat intolerant so I guess no temperate on this Earth is good enough for Jaquie.

Literally minutes later in vlog-time, she says "It's a really nice day out". But it's too cold. But it's a nice day out. No consistency.

No. 445809

File: 1513529435538.png (1.84 MB, 1360x715, bread.PNG)

Ew! As Judd films folks sitting for Christmas dinner, Jaquie is touching and ripping off a piece of a roll. She puts it in her mouth. It's barely in frame but it's there. She doesn't take the roll. She just picks bits out of it while it's still in the bread basket. Happens around 6:28

No. 445817

>>445809
She's disgusting. Everything is about her and she's soooper speshul so no one will mind of course.

No. 445822

>>445809
What a pig, eating from the bread basket, spreading her MRSA fumes. Notice the glance at the camera at 6:23 where she has her sick look on, making sure Babe catches it. Who is surprised that she is oh-so-sick since Judd is with his family having a good time? The misfits answer to family fun is to go crawl into bed.

No. 445824

File: 1513530385253.gif (2.52 MB, 500x333, giphy.gif)

>>445809

>MRSA bread basket


All I can think of when I see her touching things that are shared with others.

No. 445831

>>445803
Girls like Jaquie and Janiece who claim all these illnesses and get attention completely dishonor people who are truly sick. Check out Tiffani Ntanos and you will be totally frustrated and hate J & J even more.

No. 445837

>>445809

Hah! I came to post this SAME photo. I instantly thought “EW! MRSA hands in the buns!” She is gross. I wonder when she showers because her hair always looks split and oily. She probably has a butt boil from lack of hygiene. Babe probably sleeps in the spare room so he doesn’t have to smell her, not because of his shifts.

She literally did NOTHING at Disney that would bring on these terrible pains. And what about her Cat Valium? It seems like it didn’t even work at all this time. It seems like too much risk for the little to no benefit she is receiving. Oh, but then she wouldn’t have the loopy footage for her YouTube.

Jaquie doesn’t know what pain is. She can’t handle even the slightest discomfort. She makes a mockery of chronic illness and chronic pain. It’s no wonder actual sick people who are in pain get treated like they are nutjobs. Because people like Jaquie the twack abuse the system and make healthcare professionals lose respect. I don’t know how anyone can have any semblance of respect for her.

She needs to be stopped. At the very least demonetized. There is no reason anyone should pay for her stupid Patreon… (now everyone of these little bitches are getting Patreons - Janiece (who thinks Chia seeds are pronounced Chai seeds… what a raw diet guru… definitely need to pay her for her sage wisdom)… Service Dog Paws… that’s one I see being talked about a lot because she’s a fraud just like her buddy, Jaq. But they are all just copying Jaq because they see how popular she is and how much phat loot she is getting from her chronic illness cash cow.

No. 445841

>>445831

God I know. Poor Tiffani. Breaks my heart to see her struggle. I just recently started watching her and you’re right… watching J & J just makes me so frustrated at the complete and absolutely disgust glamorizing of chronic illness that these snatches put on playing hospital all day every day. Jaq literally can not make it through five minutes in a conversation with anyone and not mention something to bring the conversation back to her sooper sick self.

No. 445849

Jaquie playing up her pretend autism today by asking Judd's mom why she was crying when she opened her gift. Like, even if Jaquie honestly didn't understand the concept of crying because of being touched by your son's thoughtful gift, you'd think she'd assume tears = someone is upset. Did she ask "why are you crying?" with any kind of concern or care for Judd's mom's feelings? No. She just blurted out "Why are you crying?" really brattily and demandingly and snottily.

She's not autistic, she's just a jackass.

No. 445853

>>445849
Spot on analysis. Wouldn't you love to talk to Lauren (Judd's sis)? She & Steven are so normal, happy & fun–I would think Judd would realize he's missing out with Poorme—I mean Jaquie.

No. 445858

>>445849
Again she makes a mockery of the reality of the diagnoses that she claims. Anyone on the ASD spectrum considered high functioning and even those on the lower tiers will know by her age that sometimes people cry when they're happy. Although for those with ASD emotional literacy isn't innate, they learn well through experience. They're not aliens who cannot understand human emotions or social etiquette, even if it is difficult for them to learn. Enough people are under the mistaken belief that people with Autism lack empathy without Jaquie reinforcing it so she can seem extra special.

No. 445862

6:27 today's video, Jaq is ripping a piece of bread off from a roll that's still in the basket. jfc, maybe Judd is okay with you mutilating the communal food, but do you think his brother in law wants a roll you've ripped a chunk out of?

No. 445864

>>445858

This is what's so frustrating about it. She's 21. Has she never seen someone cry from happiness? For Christ's sake, she's been watching Glee lately– she's seen it happen at least 10 times on that show.

The fact that she's able to come up with these autistic shows so quick on the spot, though, makes me think she's pretty smart and quick. I know she's got to be decently smart to hold together this whole charade, but she can really think on her feet.

No. 445865

>>445837

I was confused about the pain from Disney thing, too. What about Disney was so taxing on her special illnesses? If her wheelchair is as amazing as she said it is, then how is sitting in it for 2.5 hours so much harder than sitting on the couch? The day prior, she cleaned her whole damn house– how would that not be more painful than sitting around Disney.

No. 445867

>>445865

It's sympathy– "You need to feel bad for me because I can't ever have any fun– whenever I have fun, I'm contained to bed from the pain!"

No. 445869

Does it seem at all that Judd has grown increasingly "over" Jaquie in the last couple weeks/ months? He seems to have roughly no patience for her AT ALL. Today when she said that the dinosaur's squeaking would bother her, he was quick to say, "It'll bother all of us."

No. 445872

>>445864
She was bawling tears of happiness when Judd got back from deployment. Never mind having seen someone else cry from happiness, she's experienced it herself!

No. 445934

>>445872
She's an ass. God forbid someone do something to take attention away from her. How does anyone tolerate her?

No. 445935

>>445791
If jaquie has mals, she would have lost weight. Her weight has never been less than “healthy”.

No. 446010

>>445790

But she doesn't "advocate" for anything, just talks about herself all the time! The only "advocacy" she does is on her own behalf.

No. 446015

>>446010
THIS! She isn't alone either. Jaquie if you are raising awareness you are perpetuating stereotypes and stigma the chronic illness community deals with. You are doing fuckall except portray an OTT caricature of your diagnosis-go-round charade. This seems to be a common thing with #spoonie / MBI accounts, but people like Jaq are among the worst.

No. 446331

>>445841
Just watched a few of Tiffani's vlogs than went over to Jaquie's. The difference is STAGGERING. What a whiny, narcissistic twat Jaquie is. She's in bed moping about joint pain while Tiffani can barely choke out words as her diagnosis starts to settle in. Wow. Just wow.

Safe for rage

No. 446332

Anyone notice how in today's vlog Jaquie is constantly sitting on her wheelchair cushion?? I found it very odd, I can't see the point in doing so.

No. 446334

>>446332
I don’t understand why she’s always in her wheelchair at home, especially when she’s showing herself cleaning and doing other physically-demanding things.

No. 446336

>>446332
I think she said Judd thought it would help with her open wound on her bum.

No. 446352

>>446336
If I had an open wound on my bum, I would do things that didn’t involve sitting. But it’s jaquie, so how would anyone know she needs asspats if she’s not sitting in her wheelchair in public?

No. 446353

>>445867
I feel like she sees actually ill people talk about being in pain after going out and doing things, but doesn't realize that it's because those people actually DO things. A lot of people who use chairs for similar illnesses to the ones she claims do it BECAUSE they can go out without being bed bound for a while after.

No. 446360

>>446334

In case anyone forgets about her super serious ehlers danlos syndrome?

No. 446368

>>446331
In the past 24 hours you've mentioned this person 4 times. They've NEVER previously been mentioned in any thread. Are you trying to use this as a platform to promote your on YouTube account? Stop.

No. 446370

>>446331
Tiffani is a quad from a diving accident and was admitted to the hospital because her weight dropped to 67# and she is getting TPN and a GJ tube. Who do you think needs a feeding tube more? The cookie-eater-bun-snatcher—I'll just have a nibble of Babe's—or Tiffani?
Saging/raging!

No. 446379

>>446370
I didn't say she wasn't ill/injured or didn't need whatever she had. I know nothing about her except what your shameless promoting of her SpoonTube has told me.

If you think so highly of her you should not want her name on this website.

No. 446389

>>446379
Exactly. This is a place for shameless cows not real victims.

No. 446412

>>446370

Stop power-levelling, if it's not about you.

No. 446418

>>446370
This girl's situation doesn't pertain to the discussion at all. Let's get back to the milk.

No. 446542

Throw back to Christmas last year, thanks for suggesting it.

WHen she 'came out' with her autism and stated blaming everything on it and her ESSPEEDEE.

And all that outside time with no mask? What about her allurgies.

No. 446593

>>446542

Yes, that's a suspect thing. She never used to "appear" autistic. Late diagnosis is a thing, but it doesn't suddenly change your entire personality.

No. 446606

>>446593
I think she just claims autism so she can be rude, selfish, and lazy and have all her “sensory issues” , with an excuse. Her behavior is worse and quite different from someone with true autism, in the aspect of how she’s never sorry for her rudeness, and she never tries to work on improving her relationships with people. She also seems to forget to be autistic a lot of the time. Just like her other illnesses, her “autism” is adjustable to fit what suits her at the time.

No. 446609

It's so hard to pinpoint exactly when Jaq "turned"– from normal-ish, to munchie, to QM (queen munchie). Turn to QM seems recent. Video from Sept 10, she's walking around Janeice's neighborhood with her walker, talking about prepping for Irma. She doesn't even have a segment afterwards talking about how "exhausted" she is. If she did that today, you know she'd need her wheelchair….

No. 446621

>>446609
She didn't have her wheelchair in September though. If she did, you can bet your bottom dollar she would have been riding around the neighborhood instead.

No. 446624

>>446609
I think it started when she got her port, and went even more downhill when she got her precious toob.

No. 446632

>>446609
During Irma, both Jaquie and Janiece mostly forgot to be chronically ill (aside from the ridiculous get on the floor to move her walker over a baby gate incident). It's almost like having something interesting to concentrate on besides themselves was all they needed…

No. 446633

>>446621

She would have, yeah. But she didn't have one and still managed to walk around without complaining about it. She wasn't even pretending she needed one– that's the difference. In the couple weeks before the wheelchair, she was constantly talking about how much it would help her. As of September, though, it didn't really seem to occur to her yet.

No. 446637

>>446624

It must've been slightly before that though, no? The QM in her is what drove her to get those things.

No. 446640

April 6th video, she's at Epcot WALKING around with DENIM SHORTS. definitely munchie, not Queen Munchie.

No. 446643

>>446640
I would give her QM for that exact reason though. With no real worsening of symptoms or diagnosis she went from someone who would go to Disney on her own, wear normal clothes, WALK and do somewhat normal things to someone who regularly dresses like a toddler, can't or won't go anywhere alone, has a walker, a wheelchair, daily decorative tubie pads (which are often the highlight of her entire day)their lives completely resolve around what are essentially minor ailments while she whines and moans like her very life is at stake. Many of us have wondered how many of her symptoms are brought about by medicines she is taking and not by actual disease. She can run circles around many in the medical field in terms of knowledge yet acts like she doesn't know what Ativan is. Everything about her is munchie and I for one would be willing to deem her QM.

No. 446670

>>446643
Not only did she have no worsening of symptoms, just before she got her barbie car wheelchair she actually got BETTER and was able to walk without her walker more because she restarted a specific med for her POTS and there was something else that I forgot. But of course then the chair came, and everything is focused on her chair and her special smart drive.

Also, remember how just before she got her tube she said the NJ was a good idea because maybe she was just in a flare and the tube could be removed if that turned out to be the case? Since she got the tube she claims to be completely dependent on it, even to the point of not being able to go to night-only (or, in her case: day-only) feeds because she can't even eat 30% of her daily needs. Oh, and don't forget that since she has the tube, she suddenly can't drink enough, as well. For someone who has only borderline slower gastric transit, that's really something.

(Though technically it's possible that her stomach got worse between her last GES and the point where she 'needed' a feeding tube, but since her doctor is an idiot and didn't even retest when his patient with hardly slower gastric emptying suddenly claimed she couldn't eat at all (while barely loosing weight, one might add) and she also didn't request is (and she's not shy in requesting testing when she thinks it'll help her case) we cannot know if that is the case or not.)

No. 446708

File: 1513619830730.png (1.89 MB, 1334x750, IMG_5136.PNG)

From yesterday's vlog. Everything hurts so bad, I can't sleep, I can't get comfortable, but I can pick up the camera!!

No. 446749

She was back in the ER for her ass abscess you guys. Oh and relentless vomiting.

No. 446763

>>446749

What could the hospital even have done for her severe nausea? She's got IV zofran at home (in case you didn't know, it's IV). What super special med did they give her that fixed it, and why didn't she mention it to us?

No. 446771

>>446749
She said she's been in the ER three times this week - once was buttboil, once was this latest time for nausea, what was the third time?

No. 446774

>>446771
Her well timed IVIG reaction.

No. 446782

>>446771
Twice for buttboil

No. 446787

File: 1513624466467.png (Spoiler Image,1.12 MB, 1334x750, IMG_5138.PNG)

Omg you guys. Why????? Must we see this?

No. 446798

>>446606

I don't know a single autistic person who will act shittily and selfishly and blame it on their autism. She's found her golden ticket.

No. 446803

>>446624

What's really ironic, is both the port and the feeding tube were implanted in order to give her MORE energy and make her less sick.

How's that going, Jaq? kek

No. 446807

>>446708

Her camera is just over half a pound in weight, but it should still cause tiredness to hold it up like that while lying down, especially if she has POTS or EDS….

No. 446808

>>446771

If she has MRSA and an open wound she should be staying the hell away from the ER!

No. 446813

I know someone legitimately in a wheelchair, severed his spinal cord and therefore paralysed from the waist down. he rolls himself to work and uni everyday on public transport and most certainly has none of the extras Jaq Attack has. Her babyish behaviour and complete dependency on others is nauseating to watch and a fuck you to everyone out there truly suffering with chronic illness.

No. 446841

>>446813

While I agree that Jaqiuie is being ridiculous (going from quite independent to totally helpless baby despite her "enabling" tools and toobz), there are differences between disability and chronic illness which causes disability. But i basically agree with you that she's a big MRSA-riddled fuck you.

No. 446855

>>446606

What about her sooper important occupational therapy (aka teaching her how to do human things that children know how to do) where she learns how to look both ways before crossing the street and also gets a lesson on how to find the deli counter for her meetz. Funny, she sure has no issues finding that fucking Publix cookie bakery. She hasn’t spoke of OT in like half a year. You’d think of her autisms were soooo bad that she’d be going at least once a week. “I almost walk in front of cars because of my autisms.” “Ermagrrrd the noises so loud from car wash! Where are my speshul headphones?” Sorry no images or links… just remembering some of the stupid shit she says.

However… I did find something interesting and her reaction to what Babe says even more interesting. In this video… they are supposed to go Star Wars (February 2017) and Jaq doesn’t like those movies. Strangely, Jaq has a reaction right before they are supposed to leave for the movies and they had to go to the ER instead. Then Babe comments here at around 12:18 that he thinks it’s a conspiracy theory that she didn’t want to go see Star Wars so she made herself have an allergic reaction… Jaq says in response: “Oh, goodness.” And she tells him to hush.

No. 446858

>>446855

Kek, well, she does do that "hand to head" thing a lot when she's exaggerating it seems.

No. 446867

>>446763

Maybe it’s because she got that yummy dilaudid she loves so much and you know she got some IV Benadryl that she gets off on.

No. 446871

>>446787

Omg wtf does he think this is okay???! It’s burning holes in our retinas. Scarring us for life.

No. 446879

>>446867

I think she can dose herself with Benadryl can't she? I'm sure she's done it on a vlog before, in public, in a restaurant.

No. 446896

>>446855
Autismfag here. I want to rage.

I have EDS&ASD. - Aspergers to be exact

She is fucking stupid and an insult to people with genuine autism. I have never used my autism as an excuse. Granted I am 25 and still have problems wearing some clothes, but I at least have the decency to stick to black clothes, you can't go wrong with black and black, it's descreet and you don't look like a needy 10 year old. As for flashing her mobility aids, and dragging attention to herself, most of us with genuine autism prefer to stay out of the spotlight and are more introverted and shy. The way she is acting does not portray autism, just pure attention seeking.

(Sage for blogging - but I felt it necessary to give an opinion from an autistic persons perspective )

(I am female - diagnosed at 14) and it is more than possible to learn to cope with it. In regards to her not looking both ways before crossing the road, do what I fucking do, wait until all the cars have fucked off then get across as fast as possible. That's the logical thing to do.

No. 446902

>>446871
It's both of them honestly. He can sit around his house any damn way he pleases but she should have sense not to film him like that and even if she didn't (which she clearly doesn't) he should be like, wow, that's for us only. Edit that shit out.

No. 446922

>>446902

It's his house too, he can lounge around in garish short shorts if he wants to! It's more on her for filming it, just like she does everything - like intimate family gatherings. I can't believe Judd's family haven't told her to put the damn camera away.

No. 446925

>>446902
Yes, THIS. He can walk around naked for all I care, it's their home after all. But we do not, I repeat we do NOT have to see it.

And why did he change his shorts between the frozen song starting and him picking Harlow up, and did she edit it as t make it seem those things followed each other very closely in time? I actually had to go back and check it as I thought "wtf did he really just change his shorts?". He puts them on specifically to bathe Harlow, yet needed to change them? WHY?

I also want to know how they were able to help her nausea if she already has IV Zofran? And is she setting things up for TPN - or something else - when she said sometimes she is too nauseous to run her feeds?

No. 446939

With the amount of zofran and Benadryl she uses, she must never take a poop- that stuff is sooper constipating

No. 446947

File: 1513635142571.jpeg (258.71 KB, 1242x733, BC7FC314-BB7A-483B-8C55-6824B0…)

I’m just gonna put this right here… her followers are fucking delusional!

Jaq is the new Jesus. WWJD, y’all!

God is pleased with her, guys.

No. 446959

>>446947
They gone done lost their damn minds.

No. 446977

>>446939

You are so right. Especially IV! She won’t take narcotics but she will pump herself full of Benadryl and Zofran which is almost worse. Those could be causing the worsening GI problems she has… in fact if you push IV zofran too fast, it can actually have the opposite affect and make you vomit more/worse.

Not to mention the long term use side effects with either of these are not very good. Anything from permanent tremors to early onset Alzheimer’s and cognitive issues… that are permanent.

No. 446988

She packed all her refrigerated medical supplies for the trip in the raw food cooler.

Prepped raw food, vomited next day. Traveled with banana bags in raw food bag, vomited so much she had to go to the ER.

I have no idea if there is a connection.

No. 446998

>>446988

I begin to wonder if she has like salmonella or E. coli or something from her nasty kitchen preps and horrible personal hygiene. The girl is a slob. There’s only so much an alcohol swab can do to clean the claves at the end of her port line. If she’s got chicken foot juice on it somehow since her chicken feet hang out right under the banana bags in the ice chest… yuck.

No. 447005

>>446998

Ugggh that's like basic kitchen hygiene. If you store vegetables far away from raw meat, how far away should you keep your fucking IV BAGS.

No. 447007

File: 1513638962956.png (8.32 MB, 2208x1242, FAB15A5A-4F34-4ADE-AB91-D05F9C…)

>>446922

Jaquie just doesn’t care if anyone else is embarrassed as long as she’s the center of attention… like when her mom was helping her into bed at the hospital when she supposedly had meningitis and gave us this gem… Mom I’m SURE wouldn’t want her holy ass and see-thru pants on YouTube.

No. 447011

>>447007

Christ. She has no sense of anyone else's dignity.

No. 447031

Is there some sort of psychological condition that causes people to get physical pleasure (like a medical equipment boner or orgasm) because I see her act like she is in this youtube video and she appears to get off on touching and showing her new feeding tube porn to the world. Any new Etsy item to glam up her feeding tube and port and saline bags (they go in a backpack ffs no one is going to even see that shit) seems to just fill her full of over the top pleasure. It’s creepy and sad. She’s just gone QM… sad because like where does she go from here? Say she gets outed as a fraud… so will Babe… and there goes his job. They are frauds making money with their scammy Patreon page and he would get shitcanned if that got back to his department. Jaq isn’t just taking herself down this shit show As The Saline Bag Drips soap opera, but Judd and the rest of their families too. She’s such a self centered asshole.

No. 447043

>>447031
>>Jaquie: - Was just sitting cross legged on the floor
>>Jaquie: "I subluxed my hip yesterday, so if I get up I'll hurt myself more, therefore I'm having Harlow fetch me stuff."

And you're right, she really seems to get some sort of a high from all her medical devices and accessorizing them. She is waaay to excited by anything medical. Always 'looking forward' to appointments and treatments, and 'really liking' or even 'loving' her doctors/caretakers.
I mean, when she got her dangler tube exhanged for a button, she literally said she was 'proud' on her feeding tube.

No. 447045

>>447043
(sorry, samefag)

O, and don't forget the "I feel so productive" after she sat in that big red chair. I was 'exhilarating'. Judd looked genuinely worried for her in that vlog.

No. 447047

>>447045

Her idea of "productive" and "adventure" is drastically shrinking.

No. 447051

>>447047
Jaquie, acting 'autistic': Well, that would be an adventure!'

No. 447054

>>447031
She looks chunkier than before. And there’s no way she’s gained weight just through tube feeding, with that little tiny bag she only runs during the day.

No. 447056

This is maybe a weird thing to ruminate on, but since clothes cause her so much apparent physical discomfort, I can't help wondering what kind of bra she wears.

No. 447057

>>447031
Wtf was this? They go to lunch and she's like I am full and then keeps eating veggie fries. Doesn't finish her sandwich - because full - but then orders chocolate bread and eats it only after once again declaring she's full. Just fucking eat Jaquie, no gives a shit. Judd is definitely not perfect but I have no idea how he tolerates that munchie bitch.

No. 447060

>>447031
Did anyone notice how she said the good thing about not eating much is leftovers and enjoying it two or three times? And Judd said and then you get to enjoy it again after you throw it up.

No. 447061

>>447057
Because he’s in too deep. If he left her now, he’d look like a total douchebag who abandoned his poor, sick wife. Plus, I think he likes the attention as well.

No. 447062

>>447060
I wonder if he knows she’s bulimic

No. 447064

>>447062
I don't see how you could live with someone, let alone share a bed with them and not know that.

No. 447067

>>447061

Yeah, the weird bonus to his mental munchie child-wife documenting her life on the internet is that he now has people who care about him whose comments he can read every day. I doubt Jaquie shows hiim that level of attention - when his arm was infected I asked about it on her YT and she was like "oh it's fine". 2 days later he had to go have it drained.

No. 447068

I wonder if they ever have sex…… imagine her and all her tubes flopping around omg

No. 447070

>>447064

I used to think my bf years ago didn't know I was bulimic because I'd use mouthwash etc, but he could smell the vomit from my nose. Sorry for TMI, but if she's really making herself sick he'll know.

No. 447072

>>447031
Judd - I love Star Wars, she doesn't even try.
Judd - I love my pick-em-up truck, she hates it and won't spend time in it.
Judd - I hate carrots and she doesn't give two shits and serves them to me anyway.
Judd - I tell her what kind of food I like and she won't even attempt to make it.
Relationships are about compromise but damn. I wouldn't care what people thought of me at this point if I were him. He's giving up his whole life in exchange for what strangers might think. Because anyone who knows them is going to see in no time that Jaquie is a self absorbed narcissistic munchie queen from hell.

No. 447088

>>447070
He can smell the vomit for sure, but thinks it's due to GP or CVS or any other of her fifty chronic illnesses. Conveniently Jaquie is only afflicted by these diseases when Judd is at work so he just has to take her word for it. You never see a clip of Judd sitting on the floor with Jaquie while she's vomiting, rubbing her back or offering to bring her zofran. Nope, it's always shrouded in mystery - unlike the butt boil, which is an "adventure" we all were privy too and was talked about loudly at Disney and at family Christmas.

No. 447091

>>447070
True, but she can explain that away with first "muh Cyclic Vomiting Syndrome" and now "muh Gastroparesis" making her sick. She just has to keep the bathroom door closed so he can't see her purging.

No. 447093

Yeah she can cover it up for awhile, but the truth will come out eventually

No. 447097

>>447091

Well, keep a look out for calloused knuckles. Though she's probably got a pink sparkly toothbrush to ram down her throat because it's prettier.

No. 447105

>>447097
Knowing Jaquie, I wouldn't be surprised if she uses medications to induce vomiting. As one anon said before, pushing IV zofran too fast can make you vomit, and I'm sure she's on a multitude of other medications that can do the same by themselves or in conjunction with one another. Maybe that's why she's so insistent on using IV zofran instead of regular melt-on-the-tongue oral zofran like everyone else in the world.

No. 447110

>>447105


So like "I feel so nauseous, I need to push some Zofran…..but super fast so I throw up!"

Well, it's safer than Ipecac.

No. 447192

>>447105

Mary has a port too, and she often needs Zofran but she takes it orally. What's the difference between her and Jaq here? I'm not a medfag. Mary often needs zofran quite suddenly too.

No. 447219

>>447192

Jaq's super severe Gastroparesis? Kek

No. 447223

>>446855
In this, she said one of her doctors said she could just not go to the ER after she used an epi. I have always been taught that epis were just to buy you some time until you could get to an ER or similar treatment. Can anybody weigh in on this? This seems like risky advice for a doctor to be giving out.

No. 447237

>>447223
medfag here. home health nurse to be exact. we were taught in nursing school that if we have to use an epi on a client/patient we should then call 911 for them as a safety precaution and the EMT on the scene decides what to do from there. the patient is also trained to have their caregiver call 911 in the event of using an epi.

No. 447268

>>447223

Here in the UK we are also told to go the hospital or call an ambulance after using an Epipen.

No. 447269

(Sorry, samefag)

Both in case the Epipen hasn't stopped the reaction entirely, and because of the physical effects of the adrenaline shot.

No. 447320

>>447237
I had to do epipen training to work in education, definitely not a nurse tho, and we were taught to call 911 immediately, that it really only buys you 15-20 minutes, and the reaction can start again.

No. 447324

>>447192
I think it’s because Mary is on some heavy duty antibiotics for her CF. They can make you’re stomach really upset. Mary ain’t perfect but at least she isn’t addicted to having her port accessed 24/7 like Jaquie. Don’t get why Jaq can’t take the disolveable pills.

Correct me if I’m wrong but don’t the disolving ones bypass your stomach? Isn’t that the point?

No. 447328

>>447324

They might still end up in your stomach to an extent, but they are meant to be mostly absorbed by the buccal mucosa (inside cheek).

No. 447329

>>447328

I think Jaq prefers the IV version firstly for the drama of it, and also because it's quicker in its effect.

No. 447342

>>447329
It’s literally just for the attention and the spoonie points. She eats so much junk, it’s pretty obvious that her stomach is fine and that she doesn’t have sooper speschel nausea that needs iv zofran.

No. 447352

>>447329

Just as some IV drug users develop a psychological addiction to the ritual of injecting.

No. 447417

>>447223
I think at this point the ER had seen her dozens upon dozens of times post-epi and she was fine. They probably were just sick of seeing her 3-4 times per week for the same self-induced "emergency" hives

No. 447561

File: 1513680172861.png (454.43 KB, 976x457, Screen Shot 2017-12-19 at 2.38…)

So apparently, Jaq has always been the epitome of fashion, y'all… From 2015. This is not okay. Back when she used to talk for Harlow on IG in her account's infancy… she used to say "my mom" and now she says "my girl" and for some reason the "my girl" is way more obnoxious. Just like her fucking hospital sock sandal wearing. Gross.

No. 447613

>>447031
>>Is there some sort of psychological condition that causes people to get physical pleasure (like a medical equipment boner or orgasm) because I see her act like she is in this youtube video and she appears to get off on touching and showing her new feeding tube porn to the world.

Yes, it seems like some sort of version of abasiophilia. But this type of OTT excitement about all things medical is part of Munchausen too.

No. 447645

Where I live, if IV zofran doesn't work, you get phenegran up the butt! But Jaq is too much of a princess for that

No. 447674

In Janice's video today she's complaining that she can't digest her pain meds and her gi doctor told her to wait for her test results so she's looking for a new doctor. kek. Does she want a toob like Jaquie for her "severe stabbing stomach pain, nausea, no appetite" or special IV medications?

No. 447734

>>447674

She’s been angling after it for a while.

No. 447735

>>447674
It certainly sounded like she was angling for IV pain meds and she's gonna doctor shop until she gets them.

Whatever happened about the butthole PT? Did she ever get the results of the anal test she did?

No. 447737

>>447735
Yes. The tests confirmed that she did in fact have a stick shoved up her ass.

No. 447746

File: 1513703735289.png (89.11 KB, 746x545, IMG_5141.PNG)

Someone with a YT account please please respond to this and ask her what is unsafe about emails…

No. 447748

>>447746
Will do. She probably won’t respond.

No. 447813

>>447737
Do you know in which video this is?

No. 447818

>>447746
so she can't answer emails but welcomes "fans" to approach her in real life? someone ask her about this because it doesn't add up

No. 447825

Just posting for proof it was asked because I’m sure she will delete it.

No. 447827

File: 1513709655855.jpeg (190.22 KB, 640x1136, 7AD03ABF-53BB-4E1F-83B3-6F75DC…)

Sorry I attached the video and not the comment on the last post and it wouldn’t delete it.

No. 447830

>>447674
What kind of pain meds does she take? For some meds it's normal to see them in your stool. Especially with extended release tablets. It looks like they are whole and undigested, but they're not. I have it with one of my meds. Asked my pharmacist about it the first time it happened as it had me wonder, and he said it was completely normal. She could of course ask hers, or even check the leaflet or google her brand of pills for it, before declaring she now has a general digestion problem instead of only rectal dysfunction.

No. 447843

Wow. I just saw two or three of Janieces recent videos, and you can just see her decent into munchieness. In this video she is saying "I am not ruling anything out at this point" and "I think the next step is to look into my small intestine". Yeah, that's not your job, woman. Let your doctor think about what to rule in or out or what to look at next. The sad thing is that you just know that she won't stop. If a doctor tells her that nothing is wrong with her, or that she just needs to do her PT and only come back after she's been compliant with therapy and THEN still has issues, or just plain calls her on her BS, she won't believe them. Jaquie well be telling her to advocate for herself and she will say things like "I know my body" and stuff, and she will doctor shop until she finds someone who is willing to give her whatever it is she wants (I don't know what that is, tbh. As I see it, if this >>447737 anon is right, she's got two options: go do PT or get herself a shiny new colonostomy bag. But right now I'm not sure what she is going for.. pain meds? A toob? I really don't know). It's sad.

No. 447914

>>447843
Munchies seem to think that if they pressure doctors enough and have enough testing done, an illness will be found. They refuse to accept that they’re fine. Any normal person would be happy that they could be better after some pt and simple diet changes, but for her it’s not enough. Not special enough, I guess, or invasive enough (although butthole pt sounds pretty invasive to me kek).

No. 447923

>>447843
She talks about her bowel movement far too much. It’s gross.

No. 447967

I think she must read here as today she used a mask when using the dremel on Harlows nails. Usually she doesn't.

No. 447972

>>447674

Her GI probably wasn't concerned (which made her mad) as what she describes is often what they call 'ghosts'. The meds get absorbed but the shell remains whole.

Saged for medfagging.

No. 448035

>>447843
Does Janiece not drive? There are early videos of Jaquie driving but I don't think I have ever seen Janiece drive.

No. 448111

>>447972

Some extended meds are designed so you poop out the outer shell. She's prob on extended release pain med since all states are cracking down on IR pain med scripts

Sage for medfagging

No. 448150

>>448035
She probs does not because of her soooooper severe narcolepsy. Most of the vlogs I’ve seen of her she’s like bed ridden because she can’t even keep her eyes open. If it’s one condition she does have it MIGHT be the narcolepsy.

No. 448176

>>448150

I have narcolepsy, and I thought Janiece had it and Jaquie copied her. But then I found out that Jaquie was actually diagnosed first. Janiece copies everything Jaquie does, so I now think it's another case of that and neither of them have it but Janiece is just better at faking it.

Jaquie and Janiece both get Xyrem for their fake narcolepsy, which costs $5000 a month and is GHB. Given Jaquie's love of ketamine and benadryl, she's probably into Xyrem for the high, too.

The online narcolepsy community has a good amount of munchies and hypochondriacs in it. I guess it's easy to convince yourself that feeling tired or worn out is a special rare disease and not depression.

No. 448182

Today Mary Frey's blog is titled "This is Life Changing" and is about Walmart grocery pick up. Talk about clickbait. It's nice to see Mary copying Jacquie instead of vice-versa for a change.

No. 448207

>>448182
I watched this today and it was ridiculous. One thing I can give Judd is he actually gets out of the car and helps load while Peter just sat on his healthy ass and watched someone else load all their shit into the car.

No. 448214

>>448182

Sees “today’s video sponsored by Walmart” in the near future for both the Freys and Beckwiths. Gag.

No. 448223

>>448182
Someone’s sure late to the party kek. Pretty sure this has been a thing for almost ten years

No. 448225

>>448182
Also, how sad is your life if grocery pickup is exciting enough to warrant its own video? There are plenty of people with cf that have lives even when they’re very ill. Groceries aren’t really a highlight

No. 448264

>>447843

Has she given up on the diet she was supposed to be doing?

No. 448357

>>448264
As far as I'm aware, she did that exactly one day and discovered she did really well on it. Then next day they went out to eat and she would be eating shit that doesn't agree with her but "it'll be worth it" and now after a week or so she is going back to it because she is in such severe pain. She said she hadn't eaten for the whole day and the day before she also barely ate. Then right after her "soup and bread" meal (they apparently can't think of anything else that's bland) she decided her diet "isn't working anymore" because she is still in pain.

She also has decided that because she poops out her pills (which as several others and myself too have said her is completely normal for some meds) she has a digestive problem, her pills won't work AND she needs to see another doctor because this one doesn't listen. Her 'problem' is completely normal, but instead of asking her doctor and/or pharmacist "is this normal/what can this be" she decides it is something big and changes doctors over it.

She also decides that her "abdominal pain meds" (wonder what those are - there aren't many meds specifically for abdo pain and most don't work very well anyway) don't work because she pooped out the empty shells (which, admittedly, look like they are the whole pills - which is why you research a little or just ask your doctors about it if you don't know what it is). The one test to determine of pain meds work is …. drumrolls if your pain gets better or not. So if she thinks her meds don't work because she pooped them out, they probably didn't do much anyway. Either because her pain isn't as bad as she says, or because she is taking a medication that doesn't do much to begin with.


I also agree that she is talking far too much about her bowel movements. There are ways to discuss these topics in a normal and - for lack of a better word - professional way. It doesn't have to be weird and dirty and it doesn't have to be avoided alltogether as well. It can be done. Not by Janiece, though. The way she talks about it really weird.

No. 448365

This video was suggested to me after I watched yesterdays. She looks so nice in this one. So normal. I think she actually was/is quite pretty, as long as she takes care of herself. Her looks, her demeanor, her gesturing, her talking.. it's all sooo different from how she is now.

I get that doing a daily vlog probably means that you don't do as much effort to look good as opposed to doing tutorials or more presentation-type videos on YouTube, but by Jove does she look better in those videos! And I don't just mean her clothing and the fact that she is wearing a necklace, but no 'sick face', no whining, actual smiling.. it's like discovering she has a 'normal twin'.

No. 448385

>>448365

I think maybe part of the problem IS that she's committed to doing a daily vlog. It means she doesn't have time for other commitments.

No. 448399

Jacquie also lied about her old service dog oakly, she claimed he had arthris so she gave him to her dad but on Janece's personal account she had oakly for months before getting orion…. I wonder why she lied.

No. 448407

>>448365
She sure looks good when she is not doing a sick face and do some grooming.
Judd must be disappointed when he sees those old videos when she used to have some interest in things and looked like an actual active 20 something.

No. 448417

>>448357
I have to admit I've never heard that pills can go right through you like that and it's normal, so I'd probably be freaking out too, but what I don't understand is why the doctor didn't just explain it over the phone when she called? Although I wouldn't be surprised if he or the nurse did explain it and Janiece either didn't listen, didn't understand or simply decided she knew better because Janiece always knows better.

Every test she's done so far, apart from the anal manometry has come back fine, right? So it's not really surprising her doctor isn't making her a priority. Yeah it sucks to have to wait, but of course the doctor is going to see people with more urgent conditions first, esp over the holiday season when they want to spend time with their families too.

No. 448477

in today's video at 14:00, Harlow's laying down and her hips are REALLY uneven– can anyone weigh in on this? my pessimism told me it's because Jaq was counterbalancing on her too young but maybe dogs just sit like that sometimes.

No. 448479

>>448399
I think it was that she couldn't do mobility with the other dog, but maybe at the time Janiece didn't "need" mobility?

No. 448507

Jaq claims this J tube surgery will be her first time getting general anesthesia.. I call bullshit

No. 448511

>>448507
>> I call bullshit
Why? I think it's extremely likely her other procedures were twilight sedation. As far as we know, she never had major surgery. Port and tube (G/GJ/PEG/trans-J) placement tend to be done with twilight rather than general.

Also: why would she lie about that? Munchies tend to exaggerate, so would sooner call twilight sedation general anesthesia or refer to any small procedure as surgery, not vice versa.

No. 448531

>>448511

She's had ketamine and propofol, both are used as general anesthetics. She also mentioned her more extensive toe surgery would be GA I believe.

No. 448595

>>448531
Her toe surgery was ketamine

No. 448695

>>448477

Hip dysplasia is very common in golden retrievers.

No. 448698

>>448479
Nope Janence said he was a mobility service dog for her…

No. 448702

>>448698
These munchies seem to get illnesses through osmosis.

No. 448704

>>448702

Or simply just reading about them kek

No. 448781

Today's vlog starts off with Jaq's poor acting skills… It's so fucking weird. She starts the vlog with a distracted "good Tuesday morning everyone" then fakes a shocked second take at Harlow who's standing right there staring at her holding a Christmas ornament. And she's all "what do you have? Oh my gosh, harrloow!" Then gets into a cutsie personal anecdote about the ornament which she and Judd got as their "first Christmas ornament of their marriage"

No. 448788

Direct quote from today: "this feeding tube has literally saved my life. It has helped me so much in my battle against gastroparesis."

Sure Jan. She just had another creamy chicken pasta meal with a glass of milk on the side. No complaints afterwards either.

No. 448791

>>448531
It seems weird to me that she'd like ketamine so much. The khole basically just feels like you don't exist. I find it weird a narcissists would go looking for a drug induced ego death.

No. 448792

>>448791

I'm not sure if medically administered ketamine gets the patient in a true K-hole. She didn't seem to experience the "coming out of it" effects like intense vertigo, nausea, vomiting etc.
(I've used it recreationally)

No. 448793

What is the big deal with her and recipes? I don't have a recipe to share with y'all I just do it from memory … well if it's memorized write it down and share it. Or don't. But stop making excuses that don't make sense

No. 448795

>>448793

It's okay, no one wants to eat that foul ranch chicken.

I suspect she isn't sharing because it's incredibly GP-unfriendly and anyone with actual gastroparesis would call her out on it.

No. 448802

>>448788
It saved her by letting her eat all the shit food she wants and gain weight, while being sick and special. She doesn’t even pretend to have GP symptoms any more, yet she’s got multiple doctors and many, many followers convinced she needs separate feeding tubes to survive.

No. 448806

Just quit with the recipe excuses already… I can't share a recipe with y'all because I do it from memory. If it's memorized write that shit down. Or don't. But stop making stupid excuses.
I would guess she isn't sharing bc it's either direct plagiarism or she knows people will be all.. how can you eat x,y,z?

No. 448828

Even if recipes are from memory, one can generally share what to do and include, even if you do not measure and do everything by eye. That can at least help other avid cooks figure it out. She's being special - obviously thinks she's a good cook. Putting pre made msg laden sauces, dressing and soup hardly makes you a good cook, unless we are talking depression era wives cooking on tiny budget for a big family.

No. 448879

>>448781
Yeah, it definitely came across as her trying to act! She’s not good at it though and I think she’s getting called out on a lot of things. The recipe thing made no sense either until someone said that people would point out that she shouldn’t be eating the stuff so that’s probably why she won’t share it. We all know that she shouldn’t be eating any of the crap she does if she was as sick as she claims to be though. She infuriates me.

No. 448893

File: 1513833246974.png (935.85 KB, 750x1334, IMG_5164.PNG)

Another munchie (copy cat Jaquie) with IV Zofran … what is with these Florida docs? Ports, Mickey buttons, IV meds. I don't get it.

No. 448898

Jaquie's eyes are so fucking droopy from all the benedryl I am so sick of her face

No. 448901

>>448898

maybe her flat affect isn't fake sick face, she's just stoned on benadryl all the time!

No. 448924

>>448901
Kek yeah iv benedryl supposedly gives you a buzz

No. 448929

>>448924

She needs to be careful to not build up a tolerance and watch out for adverse reactions from prolonged use.

No. 448935

I'm sure she'd treat adverse reactions with… more benedryl. Or another visit to the ER. It'd make a great video. Sigh.

No. 448938

So I just found something interesting… I’m this youtube video from 1/2/17 Jaquie gets IV Benadryl and Ativan because she “panics when she can’t breathe” and Jaquie says they gave her a very small dose of Ativan. (Starts talking about Ativan around 3:25 and again at 5:15)

“Because of the Benadryl and the Ativan I was able to sleep really well.”

So her little “What is Ativan?” bullshit from the butt boil lancing ER trip was pure lying and acting because she clearly fucking knows what Ativan is. She talks about it again later in the video about how it’s used for POTS to bring her heart rate down.

Once again, we catch the bitch in her lies.

No. 448943

To me her questioning Ativan and saying it doesn't really work is a huge sign that she is an addict. Ativan is an anti anxiety med they give before a procedure when you are nervous. It is only meant to take the edge off but she wanted a drug that gives her a real high like pain meds. I can tell that if a drug doesnt give her a noticeably high effect immediately after administered she complains that she thinks its not good enough.

No. 448944

>>448943

Shooting everything through her port is giving her unrealistic expectations of medications.

No. 448955

>>441869
I’m late to this party but the fact that she wears her port line out of her shirt irritates the snot out of me. I understand it’s annoying to have that dangling down your stomach but a camisole with a shelf bra is the perfect holder.

Sage for rant

No. 448960

>>448938

Her HR was around 144bpm when she started filming her HR monitor, stayed there for a bit but she was working herself up while she was explaining she was having a tachy episode. So it jumped up over 150. That kind of proves that she is capable of inducing symptoms just from stressing herself out, right?

Also funny watching how much she enjoyed all the attention she got that day. Everyone else looked pretty bored meanwhile Jaq is all smiles and peppy attitude sitting there with her oxygen.

And towards the end of the video she has another allergic reaction. She has a rash and starts coughing and talking with a very strained voice, like her throat is closing. Then in the next clip she says all she needed was half a dose of the old IV benadryl because all she had was a rash and a cough but her throat "wasn't closing".

No. 449081

>>448938
Fantastic catch, anon.

I agree with >>448943 that trying to make it seem like Ativan is a drug unknown to her is REALLY suspect.

I'm still mad at myself that I believed her when I first started watching her videos. The more time goes on, the more her story unravels.

No. 449093

>>449081
It's like she's faking the lack of knowledge while inside she is doing cartwheels over knowing she's about to get some.

No. 449134

>>448960
Inducing tachycardia is not that hard at all. Especially for someone with bulimia who’s dehydrated and probably had fucked electrolytes. It’s why a lot of people who claim pots probably don’t have it, being dehydrated and other things (caffeine, rx drugs, stress, eating disorders) can induce tachycardia in a healthy person.

No. 449143

She bitches about her blood sugar and is clearly angling for a dexcom, but drinks sweet tea?!

No. 449145

>>449143

Doesn't she complain about LOW blood sugar?

If she ran her feeds as she was supposed to, and didn't eat junk food as her only oral intake, then I bet she'd not be having blood sugar problems at all.

No. 449149

>>449145
If she ran her feeds as she is meant to (or just followed a GP diet!) then she wouldn't have 'random' low blood sugar drops. If you have constant nutrition running you basically can't get low blood glucose…
Even where patients with anorexia are going through medical refeeding they can ensure their blood glucose remains stable and they avoid refeeding syndrome (and in the UK you only get medical refeeding at BMI 'almost death', not like 15/16). If they can manage it in severely emaciated patients I think they can manage it in Jackie!

No. 449161

>>449145
Especially since she’s been on tube feeds for such a long time, and is at a normal weight. There is no reason for her to have low sugar. And let’s not forget that she eats food all the time, and doesn’t have GP. We know she’s not getting very many calories from her tube, yet her weight has either been stable or increasing since she’s been on tube feeds. I wouldn’t be surprised if she’s setting up to angle for TPN, since I’ve seen people on IG go on it if they can’t keep their blood sugars stable (more in children, but jaquie is just a big toddler anyways).

No. 449168

>>449143
It's shocking how profoundly boring she is. She never should have started daily vlogging, not just because it's terrible for her mental health and exacerbating her munchie-ness, but because she has fuck all to show us. How can one human being be so vapid? She should ask her doctor to do a personality transplant next. God knows she needs it more than any of the other shit her doctors do for her.

No. 449169

>>449168

Yup. Literally the only interesting thing about her life is how "sick" she is. She's done the equivalent of making a spoonie Instagram account and updating constantly. And if she reduces her output now, she'll lose money. She's got to stay committed to the lies.

No. 449185

File: 1513880057433.jpg (144.7 KB, 1750x546, CVMmLwL.jpg)

>>449143
That's funny. Because yesterday in the comments she said to someone that she told Judd no on the pork. Guess he won the ensuing argument?

The reason I noted this yesterday is that I found it odd that she said that she wasn't willing to cook something she couldn't eat herself. Because, if we believe what she says (we don't of course..) then she cooks all the time for "her family" (being Judd) without being able to eat herself. Todays video is even dedicated to that subject, and it's not the first time she adressed it. Of course, we already knew that she cooks mainly for herself. Every time Judd doesn't like something, she goes "well, I liked it". And that to her is the most important reason to cook whatever she does.

(Also, what's with her "I don't have a recipe.. blahblah". Did anyone ever ask her for a recipe? Just like her "I know that not everyone is able to feed their dog raw and I am not putting anyone down for not feeding raw" when I didn't even think she was trying to say other people should do the same thing she does until she said that, her nonsense about a recipe does the same thing: before she mentions it no one is thinking about it, but the minute she does most people will think 'why on earth would I want a recipe for this??' She probably thinks she is some huge role model and everyone wants to be like her. Which, sadly, is true for a small minority of emotionally vulnerable young woman and teenage girls. She should be arrested for contributing to the emotional detriment of a minor/minors.)

No. 449447

Judd called her Miss Blake in today's video and she corrected him and said I am Mrs Beckwith now. Interesting…

No. 449457

>>449168
Agree. Boring and repetitive as fuck. She's like a train wreck and I just can't look away so I watch her most days and omg she says the same things over and over. I am human and I enjoy the taste of food. I cook for my family because I love cooking and they need to eat. How many times can she POSSIBLY answer the 'is it weird for you to cook or go to restaurants if you can't eat'? And how many people do you think are really asking it? I just don't understand how she has any long term supporters at all. People who showed up last week, sure whatever. People who have been around for six months or a year… how are they not bored to tears and/or infuriated at her yet?

No. 449468

>>449457
But she goes to restaurants and cooks and eats in both situations, literally films herself eating. Who does she think she’s fooling? Does she think people are that stupid?

No. 449531

>>449468
Her excuse for that is - my GI says I need to try to eat to maintain what gastric functioning I have left. So that's why she eats cream soaked deep fried food on the regular.
Yesterday she drank a smoothie and today says it caused incredible nausea and pain. Except she drank it midday and ended the vlog late evening gushing about what a wonderful day she had. She's just a liar. And not a very good one.

No. 449562

>>449531
No GI doctor would make someone with as severe GP as jaquie claims to have eat. Especially if they already have a feeding tube and supposedly throw up everything they ingest.

No. 449686

Pretty sure the "no recipe" thing is just another one of Mary Frey's coveted traits that Jaquie needs to constantly emulate. Seriously, if you think Amanda copying Jacquie is creepy, you guys should see all the things Jaquie siphons from Mary…

Mary will often comment that they don't use a recipe when they're shown cooking things, so OF COURSE Jaquie can't use one either.

No. 449690

File: 1513914116584.png (66.54 KB, 651x746, IMG_5170.PNG)

Jaquie wearing a mostly normal outfit really accentuates how over the top screamingly gaudy that chair is. It's harder to notice when she's dressed like a toddler because so much of that is horrible. But when she's dressed like an adult that chair is atrocious

No. 449720

>>449690
Oh look, the attention hooker is out on the town.

No. 449748

>>449185

Doesn't she know that pork is the other white meat? <- old U.S. Advertising campaign for the pork industry. In case anyone is confused.

No. 449753

Her necks hurts and that's why she's resting with the heating pad. But the pad is placed so the contact to her neck minimal compared to shoulder and head. I'd have rolled that shit up to actually touch my neck to ease pain. Also, heating pads dont get bot enough for severe neck pain.

Sage for blogging.

No. 449764

>>449753
I do agree that her heating pad placement is always weird to me. She never rolls them up and where are the five billion pillows? Most people with chronic pain need multiple pillows just to get comfortable on a good day let alone in bad day. I mean I’ve never even seem her use a damn neck pillow! Anybody with neck pain would use some sort of support for relief.

But some heating pads may get hot enough for deep relieve info the neck muscles. However, they’re pricey and definitely not the one she uses.

I think possibly the biggest thing that pisses me off is J’s “chronic pain” She was in severe pain, but still technically made the car ride home and then it was good after resting for just a few hours? No neck migraine or muscle spasms??? She makes a joke out of people with real life severe chronic pain who are literally nonfunctional if they drive for longer than twenty minutes and take days to recover from severe pain not hours. I wish someone would point out to get what a joke her pain is.

No. 449781

Gets away with all of this because she patrols the comment section and blocks anyone that questions her. The questions/comments still show up for the blocked person, but no one else can see them. Tell me how sick she really is if she feels good enough to do that? She’s literally insane and need help. Her parents, Judd, and her friends are all enablers.

No. 449831

>>449781

Ugh that’s what pisses me off most I think. She deletes and blocks anyone that says boo to her in the comments if she can’t come up with some outlandish lie. So her followers see that “Jaquie never gets hate because she is such a positive and wonderful role model.” In fact, Chronically Amy talks about how she herself gets haters but Jaquie doesn’t get any… so I replied to her video saying not to kid herself about Jaquie not getting hate… and Amy blocked me and deleted my comment. They are all so fucking delusional!

No. 449953

>>449748
Pork is actually in the red meat category. The advertising campaign claims it's, "the other white meat", but it's technically red meat. It is based on myoglobin.

No. 449997

Little miss gets a migraine from perfumes sets her new Scentsy warmer in todays vlog.

No. 449998

>>449997
This bitch is certifiably crazy.

No. 450006

>>449997
Please, please, please someone call her out on this.

No. 450010

She's looking at sunglasses in today's vlog at Target while sitting her wheelchair and says "I can't see myself in the mirror, because it's too high but Judd says they look good" ARE YOU KIDDING ME???? Her legs WORK. Stand up. She is not paralyzed. She is acting like she is completely incapable of using her legs. The same chick that uses her walker as a step stool can't stand up at Target while trying on sunglasses. Her followers are the dumbest most gullible people on earth.

No. 450015

>>449997

Tries on sunglasses in Target but can't receive mail because sick.

Her wheelchair propulsion skills are SO bad.

No. 450017

File: 1513964358894.png (92.69 KB, 738x510, IMG_5192.PNG)

Nothing like a comment of clarity followed by complete and utter delusion.

No. 450022

How the hell can Gastroparesis flare? It's not an inflammatory condition.

No. 450051

File: 1513967851340.png (148.15 KB, 750x745, IMG_5193.PNG)

>>450017
Ms Adjustable has an answer for that!

No. 450052

>>450051

Typical Adjustable Jaquie, when you're allergic to scents, you don't get to pick and choose.

No. 450058

>>450051
I have to admit, I don't know about MCAS, but between that, her asthma, SPD and migraine, it seems HIGHLY unlikely she would be able to tolerate any kind of perfume or strong scents.

No. 450075

>>450058
Oh but she can! She's allergic to scents, until she's not. She's allergic to scents and plants, until she wants a LIVE Christmas tree. She's sensitive to noises, until she's doing something she wants to do. She has sooper suhvere gastroparesis, until presented with cream soaked or fried food. Or candy/baked goods. She has sooper suhvere POTs and can't stand up at Target but can climb her walker to dust to the top of the bookcase. She has heat sensitivity and has to wear a toddler outfit everyday because sensory processing disorder, y'all… until it gets cool enough for her beloved winter wardrobe and then she can wear a stocking cap and hat indoors for hours and a plethora of itchy sweaters. She is sooo full of shit.

No. 450272

>>450022

Lots of munchie spoonies do the whole “flare up”thing when they clearly know nothin about what is actually a flare up,

No. 450320

>>450017
That's just it, I doubt she ever truly feels 'awful'. I highly doubt she has 90% of the conditions she claims or at least is exaggerating them to the extreme. If she really felt as 'awful' as she claims she wouldn't vlog with a monotone voice and 'sick face', she'd be in too much pain/too sick to do anything besides stay in bed or curl up on the couch.
>>450051
I've started using wax melts recently and sure, some of them are a lot stronger than others but putting in half a cube vs. a full one doesn't make a difference in how strong the scent is! The wax still melts and gives off the same scent at least in my experience. I tried breaking a used and re-hardened piece of wax into a couple of pieces because although the scent was ok, it was overpowering. My eyes still burned once it melted! She is so full of it!

No. 450347

File: 1513990058102.png (49.58 KB, 855x225, Screen Shot 2017-12-23 at 00.4…)

> Only I can have the good stuff. You're not special.

No. 450349

>>450075
oh my GOD the heat intolerance bullshit drives me insane. in one recent video her and Judd acted like 64 was 24… and this was at night. so during the day when she literally wore like 2 knit hats, a thick sweater, leggings with thick socks and UGGs… it must have been at least 70. she's not heat intolerant, obviously. how the hell can you have heat intolerance and wear all that when it's ROOM TEMPERATURE outside and even hotter in the sun?????????

No. 450361

>>449764

You can tell she's bullshitting about her daily "chronic pain" because of how much of a fuss she makes when she's actually legitimately in pain (not necessarily acute pain, but you can tell the difference in her voice/manner).

No. 450362

>>450010

She could have had Judd help her up to look in the mirror if she wanted to save face, but of course he had to be cameraman. Not husband, unpaid filmographer!

No. 450364

>>450347

Wait, isn't all pain connected to the Central Nervous System?

No. 450371

>>450362
She doesn't need help looking in a damn mirror. She crawls all over the floor, climbs stuff, gets up and down off the floor all the time, kneels, bends, cleans the house from top to bottom. She needs mental help before anything else.

No. 450391

>>442992
About who loaded the wheelchairs…Julian used his rollator at the dog park, not his wheelchair. He also seems a little more reserved in this video.

I hope Jaquie finds some inspiration watching Julian's live his life.

Julian, you need to vlog!

No. 450395

>>450391

No, Julian needs to keep living his totally normal non-look-at-meeee life. And get better friends.

No. 450416

>>450391
Of course he’s reserved. He knows about this place, he’s been here, he probably still lurks here at times. Being in her vlog knowing that she doesn’t know all the while knowing we are going to discuss it must be very very weird. I almost wonder if that’s why he canceled this past Monday’s dog park “adventure”

No. 450457

>>450416

It's only an "adventure" for poor Harlow who only gets taken there when Jaquie feels "well" enough :(
Seriously, this poor pupper doesn't get anywhere near enough exercising.

No. 450542

File: 1514002555042.png (30.95 KB, 394x222, Screen Shot 2017-12-23 at 04.1…)

kek

No. 450550

Jacquie linked to Julian's Instagram and well, he's pretty milky in his own way.

But at least he got a professional trained service dog from an accredited charity. I think he's the first person I've found who gives me cow vibes who did that, so I'm still on the fence about him.

No. 450577

>>450550
Can you post a link?

No. 450597

>>450550
I just looked at Julian's Insta. The parallels…just wow…

positivelych.ill_julian

No. 450610

File: 1514008426896.png (744.47 KB, 794x522, Screen Shot 2017-12-23 at 05.5…)

He had a go fuck me for a service dog too, but it only raised $300. (He got one anyway.)

No. 450637

how did Jaq and Julian meet?

No. 450640

>>450610
Further proof the whole spoonie community is mentally fucked. It’s completely possible to be chronically ill and lead a fairly normal life, but you sure wouldn’t know it looking at IG and YouTube.

No. 450646

But julians different, he does have a normal life he has a fiancee and goes to collage, these "spoonies" are entitled assholes. At least he has a life.

No. 450680

>>450610
Agree with the anon above - at least he's not in his wheelchair here. It's still prominently placed in the photo and is still OTT, but for god's sake at least he's not suddenly a parapalegic when he uses his like Jaq

No. 450691

>>450637
At college, I think.

No. 450723

>>450680
Yeah, agreed. Jaq acts like she can't simply get up she expects everything done for her. I think this guy has a nerve disease which like stop the function in his legs, something like that. He seems like he actually needs whereas Jaq just wants the attention

No. 450733

>>450272
There was recently a whole discussion about this on a medium-sized account I follow, chronicmotivation - just checked and it's six posts down. (Before anyone jumps on me for self promoting, farmhands can see my ip is on a different continent to the account owner in NYC.) Anyway, people's personal definitions of flare are bizarre! It does seem like some want it to have no specific meaning and just be in general usage as a term for feeling worse.

No. 450737

I think flare is quite a harmless term, to be fair. It's just commonly used to mean your symptoms are "flaring" for means of description. It's used by a lot of non-munchies. But munchies abuse it and make it seem like something only a munchie spoonie would say.

No. 450806

>>450646

Is he really? Look at the hashtag abuse, and if you go through his IG he adds on illnesses and symptoms to the hashtag list. One seizure? Hashtag epilepsy!

No. 450808

>>450691
>>450637
To the Anon who found his account: I am wondering…Do you think this is J's ground zero inspiration account? Bonus: She can ask him questions in person?

They dropped out on medical leave the same semester (I think). Both were really recently diagnosed with autism as well. Go to the same POTS doc (who found that doc first)?

He went from walking to being a rollator user all the time and needing a wheelchair part-time in less than a year because of a legit medical condition that he mentioned here and on Instagram that causes progressive mobility impairment.

He wears compression stockings and is trying to live. I don't care if he's OTT. He's moving forward, as Harlow's girl would say.

No. 450813

>>450646
Well technically Jaq had a fiance too. For about a week before she married him. And she is supposed to return to school in January just like Julian. There really isn't that much difference between them

No. 450827

>>450737
"Flares are for now, not forever".—because when you are Adjustable, NOTHING is forever—only when you remember to have pain, weakness, nausea or allergies, or when your incredibly boring life allows you to dream up a symptom to vlog.

No. 450830

>>450827
It was so instantly obvious that will be her next T-shirt slogan. She hasn't announced it yet. But she will.

No. 450847

>>450806
He puts Jaquie to shame when it comes to hashtag use. Talk about OTT.

No. 450908

>>450806
I have to admit I didn't search for yis insta, so can'tt really say anything about him personally. However, I do think there is a difference between the hard core munchies like Jaquie (and Aubrey, Autumn etc.) and those who somehow get sucked into the whole OTT spoonie thing by following the bad examples of others. This is actually quite sad: they probably reach out to others looking for genuine support and get deluded into thinking it is normal to hashtag every single symptom, have their diagnoses in their bio, sharing inpiration porn and calling themselves a warrior is normal behavior when you are a 'spoonie'. Some of them probably get addicted to the instant gratification that is likes and comments on the internet or try to one-up the one-uppers and they spiral out of control. Others hang around for a while until they go back to their real lifes. For his sake, I hope Julian is of the latter category.

No. 450918

File: 1514049661832.png (874.33 KB, 750x1334, 7DBECB38-1505-4D25-B472-669921…)

I found her dads Instagram and look at this!

No. 450919

Hi guys. This is Julian. I do lurk here. Every day actually. I like to see what people are saying. Sometimes it’s interesting to me and sometimes I think it’s ridiculous. I’ve always been the type of person who likes lto be aware of what’s happening everywhere. I also like to see multiple perspectives and opinions of others and I think there’s value in that as well. I’m going to school for psychology so I think it has a lot to do with that. I think all of you are entitled to your opinions and perspectives as long as you don’t harm others or take it too far which I hope none of you do. As long as you feel you can sleep at night then that’s on you not me. I realize there are people in the spoonie community who do unsavory things as well and I’m not blind to this. I think it’s possibly why I started to change my posts from health updates to just positive life posts about how to live with health struggles. However yes I still use hash tags because I still have lots of friends and I still want to reach those who may be struggling. I just simply want to let people know you can still live your life I guess. Anyways yep I do have a progressive Demyelinating sensorimotor nerve (Peripheral) condition that has quickly wrecked my body. I was diagnosed at 18. So I used a cane, walker, and now usually a wheelchair. I still use the walker when I feel that I can. Because I really want to maintain walking and my mobility and muscles and I don’t want to decondition. I don’t think I’ve ever hash tagged epilepsy I think I hashtag seizures. I don’t have epilepsy nor have I ever claimed to I have convulsions or Dysautonomic seizures occasionally from … dysautonomia. So yep. Anyways if you have anymore questions feel to ask me. I’m open to questions about MYSELF. Not Jaquie. I don’t speak for her.

No. 450920

>>450919
If I did hashtag epilepsy I will change it because I did not realize

No. 450925

>>450919
Very respectable post. Good on you.

No. 450927

>>450920
Oh and also I did have a “gofuckme” for Atlas my service dog. But none of the money went to me. Per the organization New Horizons I was asked by THEM to raise as much money as I can. Because he costed them 25k to raise. So it was for them not me. It’s something every recipient of New Horizons has to do.

No. 450931

File: 1514050868845.png (786.25 KB, 640x1136, 15B67615-8D3D-4E57-84B0-B2F6FF…)

>>450918
Good find! If you zoom in on this pic (pretty low quality but you can still see), she’s got a full plate with bites taken at least from the roll. She’s not even trying to order something GP friendly.

No. 450949

>>450919

"I’ve always been the type of person who likes lto be aware of what’s happening everywhere. I also like to see multiple perspectives and opinions of others and I think there’s value in that as well. I’m going to school for psychology so I think it has a lot to do with that."

Dude, it has nothing to do with that. It has to do with being a human– it's not special. jfc

No. 450950

>>450949
Nope. Not trying to be special just simply telling you about myself because you were talking about me. And actually not everyone likes to know people are talking about them. Some people choose to ignore it. Some people don’t like other people’s opinions or perspectives. I was just telling you I do. That’s all.

No. 450954

>>450950
…so which one is Jaquie? At the very least you could let us know if she's aware of this page.

No. 450957

>>450954
This is Julian not Jaquie. I don’t speak for Jaquie. Sorry. We are separate people living separate lives who hang out occasionally as friends. What she does or says is on her.

No. 450962

>>450954
Considering that she deletes any comment on her YT or IG that she doesn't like or agree with, it seems as though if she did know about this page that she would ignore it because she can't delete anything here and she would just dig herself a deeper hole by defending herself bc we can all see through her bullshit.

No. 451020

>>450962
Well I did comment on her video and asked her if she had googled herself and looked at the 6th or 7th thing down. I asked her what a Munchie was…. it stayed up for probably 12 hours because it was when she was with Judd’s family, but I was blocked and only I can see the comment now.

No. 451036

I know nothing about feeding tubes, but is it normal for a rep to come to your house and to discuss which model is best for you? Or is it you get what you get?

No. 451050

>>451020
You can actually get banned from this website for cow tipping. FYI.

No. 451055

>>451020
WHY would you do that?

No. 451121

I honestly didn’t know it was against the rules or I wouldn’t have done it. I apologize. I was thinking of all these young kids that blindly follow her and hope to be like her. It’s horrible. I was also thinking of all the people who really do have chronic Illnesses that need some of the things she had and she doesn’t need them and how upsetting it must be for them to see her get anything she wants so easily. I meant no harm to the group here. I’m pretty new here. Again I’m sorry.

No. 451191

>>451121

Read the rules and lurk more before you post again.

No. 451210

Don't know if anyone else noticed it, but I'm pretty sure Jaquie didn't swab her blue IV connector OR the IV tubing connector before connecting them. She'd just been touching and pulling the IV tubing connector through her backpack and the blue connector had been hanging against her shirt. GERMS.

I think maybe she had the cap of the IV tubing on, but you still wipe the ever loving shit out of both connection points with an alcohol swab unless you want an infection (which I'm sure she'd love).

No. 451217

My question is how does she manage to get so many flipping brand reps for different medical gear to stop by her house? I work in a hospital and normally we don’t have brand reps working with patients or explaining why this thing works better than another, etc. maybe it’s a home health thing? She had both the wheelchair rep and now the J tube rep come in and of course she convinced both of them to be on camera, ugh.

No. 451229

>>451217
Yeah, it’s super weird and I’ve never heard of it happening for anyone else. I’m sure daddy’s money and connections have a lot to do with it. Especially since a lot of the time you don’t get to pick what kind of tube or line or equipment you get. Not every hospital has an agreement to be able to get a certain brand from the manufacturer. Of course, if your money bags daddy pays for everything, you can order and pay full price for whatever you want.

No. 451242

>>451217

I can only vouch for the wheelchair rep part being normal. When I got my wheelchair, NuMotion gave me the option of home delivery or delivery at the rehab center.

No. 451307

Guys please go watch Janiece’s new vlog. I don’t know how to embed so if someone can please do. She’s in the hospital. It’s a good one! Laughable. They are trying to find an underlying reason for her sudden high heart rate and changing blood pressure. Ummm… weren’t you diagnosed with SOOPER SEVERE POTS?????

No. 451317

>>451307

Also her sooper “ high blood pressure. She’s angling for a toob and a port, watch this space…

No. 451341

The video of Janiece in the hospital.

No. 451361

>>451317
Except iv fluids wouldn’t really help if she’s got high blood pressure, right? Pretty sure she’s just really, really out of shape from doing nothing all day pretending to be sick.

No. 451363

>>451341
Ugh gross. Maybe she thinks a Christmas hospitalization is the final thing she needs for munchie fame!

No. 451386

>>451341

Her heart rate is so high! 135!

Shows monitor reading 117

Her blood pressure is dangerously high! 130/90!

I almost laughed out loud at that part.

And they admit her for these normal vitals and normal test results? I can't believe her insurance is gonna pay for that. Can't wait for all the vloging about her stool during the prep for the colonoscopy. I'll be shocked if they find so much as a polyp.

No. 451391

>>451341
"Her heart rate jumps from 80-135 for no reason!"

Maybe because she's self-inducing tachycardia whenever someone comes in the room kek

No. 451392

>>451386
Yeah, I think my eye roll broke the sound barrier on those vitals. And why the fuck are they giving her IV antibiotics for a mildly elevated pulse and bp?

No. 451419

>>451386
Wooooow so high! That's hilarious. I can't believe she was admitted! Thank you for watching because I can't bring myself to do it

No. 451429

>>451341
Wait, what? Janiece tells Paul she doesn't feel well and the first thing he does is check her heart rate? That's so weird. Checking if she has a fever, I get, but is checking someone's heart rate something people when they say they feel sick?

No. 451461

Who wants to bet Jaq's gonna have a medical emergency now that Janiece is getting all the attention for being in hospital?

No. 451479

>>451461
No doubt, especially since her extended family is going to be in town, staying in her guest bedroom… sorry, her medical supplies room. What better audience for a crisis?

No. 451480

To Julien: most of us here have nothing against you and don't want to bring you into this. I post here because I think Jaquie is doing damage to young girls (and boys) who watch her videos. It happened to me and I'm in my 20s. When you see someone getting state of the art care that's quite excessive and mostly unnecessary (main example is Jaquie's port for her orthostatic intolerance), you begin to think that your doctors aren't helping you enough by exploring other options, or that you're not sick enough to get even basic treatment, you lose trust in your doctors. You doubt yourself and tell yourself it's because you're not sick enough, which will be to your detriment -you believe someone like Jaquie is much sicker than you and so gets whatever help she needs no matter how invasive. It creates a culture of competition, which is really dangerous if young people are competing to get any sort of tube which can lead to serious infection or death. This is just one example. Everything goes to a whole new level when you discover that Jaquie was never properly diagnosed with the conditions she claims (eg GP and pots), so we see this emotional merry-go-round happening to her viewers/followers when really Jaquie's story is full of inconsistencies and unapologetic exaggeration. I don't want to bad mouth her here, never will and never have. I only want an outlet to talk about what I and many others see wrong with what she says and does. And it helps my own sanity to know that other people are noticing the same things too.

Sage for blogging- tried to keep it relevant

No. 451481

>>451480

Sorry I can't really add anything but I just wanna say that I couldn't agree more… Jaquie is doing a lot of damage to a lot of people with what she's doing.

No. 451494

>>451481
And the worst part is that she doesn’t care. Textbook sociopath and narcissist who only does things that benefit her. I wonder though, how far she would have taken things if she didn’t have a rich family that spoiled and enabled her. Chronic illness isn’t cheap, especially if you demand all the toys and treatments (that you don’t need). She pays thousands of dollars for things, which an ordinary sick person would either not have or have covered by insurance, and that most munchies can’t afford. She’s also got the rich girl complex of the world revolving around her.

No. 451496

Janiece is giving "early exclusive details" regarding her current hospital stay on her PATREON. Check her latest story. I fucking can't.

No. 451497

>>451494
I bet that if she didn’t have a family and social media profiles that gave her wads of cash, she’d be a drug addict. She already pretty much is, but she uses her “illnesses” to justify her somehow legal drugs. There’s no established treatment using a lot of the things she has prescribed for the conditions she claims, especially the ketamine.

No. 451498

>>451496
If you’re sick enough to be in the hospital, you should be too sick to vlog. What a disgusting money grab. I hope her insurance knows they’re paying for her to rake in cash while faking illness.

No. 451502

>>451496
Link, faggot!

No. 451512

>>451121
There's ways to call someone out or to just give information to their followers in the comments without practically inviting her worshippers to come here and spam the board with how awesome and how really sick Jaquie is. I agree that she is doing damage, like this post >>451480 explains very well.

Not only is it implied that your doctors don't do anything for you if they treat you like they would treat anyone with a given disorder, but sometimes she even says it. She will reply back to comments and tell people to find another doctor if their doctor does not want to give them a port or a tube. It's horrible. Watchful waiting is a thing and in many many cases it is the best thing to do. Even if someone following her does not turn full on munchie, they might end up with some pretty nasty iatrogenic damage that they would not have had if they wouldn't have followed Jaquie. But as said, please do not send people over here because most of the time it doesn't help. Also, as many of us have learned; calling Jaquie out outright is a waste of time. Your comment is deleted and/or you are blocked. If you time it right, it might take a while till she reads it so many people can read it. But most of the time, it's better to be a bit more subtle so your comment isn't deleted.


>>451341
I just saw the vlog, and I really don't know what to think of it. It could be there's really something going on. But as with the boy who cried wolf, it's very difficult to know when someone is actually sick with these internet munchies. Although I have to say, even if she really is sick, using that to get more money from her Patreon account is one of the most disgusting things I have seen on here. And that's saying a lot.

No. 451513

>>451502

It's in her story on IG. You can't link to that. It was just the words "if you want any extra early exclusive details check out our patreon" over a picture of Paul grinning like a moron and doing double thumbs up (in the hospital room).

No. 451527

Sage for dogfagging/late to the dog conversation

I'm a veterinary nurse and none of the doctors I've worked with would ever ok a raw diet for a sooper sick "immunosuppresed" client with a working dog like Harlow. It's risky enough for a normal healthy person to handle that much raw meat, let alone someone with a central line. And like the vet student said, Harlow could/probably is harboring and shedding all kinds of yummy bacteria like salmonella and e. Coli, how this wacko hasn't ended up with real life sepsis is a miracle. Not surprising she and Judd have been getting abscesses though.
Also As someone else pointed out, Harlow's hips look off, and in her Christmas Disney video at one point Judd is filming from behind, and you can see Harlow's gait looks off and her hips are swinging, early signs of hip dysplasia. A working dog like this should be on a high quality dog food, preferably with some kind of joint protection, not sams club discount meat.

But in all her blogs has she ever mentioned taking Harlow to the vet? Maybe she has, I find it difficult to watch her videos so I don't know. Its just sad to see such a lovely dog with such a dumbass for an owner.

No. 451529

>>451527
She has taken Harlow to the vet for various things but not for a while. Not to wk but I do feel for her in a way. My cat has food allergies and it can really rough to find something she can eat without developing a reaction and it's horrible watching her scratch herself raw. So I can see why Jaquie could be suckered into thinking a ~natural~ raw diet is the way to solve it. It was fair enough to try raw feeding to see if it worked but it clearly isn't. Harlow still looks awful.

I wonder if Atlas and Orion will develop similar health issues since they share the same mother?

No. 451539

I noticed she feeds Harlow cheap meat they don't seem to want to eat. Why feed her shitty meat with all kinds of hidden additives?

No. 451543

>>451529
Yeah I just saw her video where she explains the food allergies. I can totally understand the frustration of trying to find a food that works, but there are quite a few prescription diets specifically for dogs with sensitivities/allergies that generally work great and provide all the needed nutrition. it would be so much easier and safer for her to try those instead of jumping straight to raw.
What really bothers me is that she's advising other people to try it without asking their vet…most people don't know what they're doing and can end with with a very nutritionally unbalanced dog that will lead to more serious health issues. I've seen people that hear raw diet and think that means they should feed raw ground beef chuck for every meal…
I'll give it to Jacquie that she's a talented trainer, but she has no right/credentials to be giving out nutritional advice.

No. 451555

>>451539
In her last raw feeding diet she says she buys stuff for her that she would feed her family. Granted I don't see either Jaquie or Judd signing up for a big plate of organ meats and the dog can't just eat raw chicken. So it's hard to say. Not really something that can be tested due to their eating preferences.

No. 451576

>>451480
>>451480
Julian is no Jaquie but he's no saint either. He lurks here on a daily basis by his own admissions - a series of threads that exist for the sole purpose of snarking on one of his "friends" and calling out her bullshit. What kind of person wants to read that type of stuff about a "friend" on a daily basis?!? If a page like this existed about one of my friends I would either be too enraged to read here or it would have opened my eyes and I would no longer be their friend. But Julian plays both sides of the fence and that's pretty shitty behavior. I'm sure some of will defend him and that's fine, but how would you feel if one of your friends was doing this? I am not defending Jaquie, I post here a lot, I am just saying consider how many kudos you are willing to give Julian. He may not be full munchie but he is a two face.

No. 451656

>>451576
Fair enough that I figured someone would say that about me. It’s not that I enjoy reading here nor did I claim to.. maybe like I said sometimes interesting yes. I said I like to know what’s going on around me and behind my back. I do consider Jaquie my friend so when I found out people were talking about her I wanted to be aware of what was going on. Especially when I saw my name coming up multiple times in previous threads. I’ve also heard in the past she’s had threatening and or scary situations with threads so I like to be aware of that as well. I did however say everyone’s entitled to their own opinions. Which is completely fine. What point would there be to arguing with people? I don’t see one. I don’t see that I’m doing anything wrong by keeping a close eye on what people are saying. I’ve always done that in my life in all scenarios. I think anyone should do the same. But you’re right I am not a saint. Not even close.

No. 451660

>>451656
lmao so do you tell her choice bits about what anons say? seems stupid to go around collecting information on your friend just because.

No. 451686

Sure, sit on the floor a whole bunch, thought you had sooper suhvere joint pain.

She also acknowledges her IG silence today.

No. 451687

>>451656
Her husband is a cop. I'm pretty sure he has the resources to be all over this if he felt it was "dangerous"
But thanks for playing

No. 451692

>>451686

Holy shit that brush she showed was so nasty.

She's such a fucking princess, can only use her blow dryer for 30 seconds at a time, I highly doubt that.

No. 451693

>>451686

Anyone else think her hair looks the same as when she was "malnourished"

No. 451700

>>451686
I'm curious to know how someone with severe joint pain and whatever the fuck EDS can use a squatty potty. She's mentioned it before and it's in the background in this video.

No. 451705

While searching for a video of the squatty potty I found this gem of Miss Immunocompromised holding her phone after she fished it out of the toilet… go to the 5:00 minute mark

No. 451712

>>451686
This was supposed to be 'hacks' for people with chronic illness? That's odd. I'm chronically ill, and literally everything she did or talked about in this video I either can't or can't do without help. Sitting on the floor, sitting cross legged, cleaning my house, taking care of a dog, showering by myself, doing my hair, and yes..: pooping.

I don't normally think of these things and I don't tend to compare myself with Jaquie or other people I see on YT. But as it's supposed to be tips for people who are disabled/chronically ill, somehow I couldn't help noticing her doing all these things I - and many with me - can only dream of being able to do.

No. 451713

>>451705

Why the fuck didn't she buckle her pants before picking up the camera?! Gross.

No. 451716

>>451713
Ehm.. she didn't. Judd came running up the stairs when he heard her. Ok, she left in a part where she was standing with her belt unbuckled, but I don't really care, to be honest. If people can vlog in their PJ's or in a hospital gown, they can vlog with their belts unbuckled. It's not like her pants are still on her ankles.

No. 451719

>>451480
i was a follower of jaquie for a few months before i found this thread, and i agree that she can be quite damaging in many different ways, it left the impression that "she's way sicker than me but she's so much happier and does more (of course when her conditions miraculously let her)" for the few months i followed her and it really leaves you feeling guilty and critical of yourself for feeling and doing things that are completely fine, but also realizing how inconsistent she is and getting out of it leaves you feeling like you cant trust yourself anymore because your whole idea of what is and isnt appropriate behavior is basically crushed. it also skews your view on current and future doctors and what to expect from them, like the other poster said.

it's really easy to get sucked into following these types of people when you're going through something seemingly similar and are looking for support, and the damage just goes on from there, and the worst thing is is that the whole time you're seeing whoever you're following as helping you deal with things when really they're just ruining your perception.

sage for blogging but it's relevant to jaquie's impact on her followers

No. 451732

>>451700
I use a squatty potty because it really helps me go faster so I don't have to sit on the toilet for any longer than necessary.

Sure it hurts my joints and makes my legs go numb, but sitting on the toilet for too long does that to me anyway so I figure I'll just get it over with faster.

But honestly all of these hacks are bs…Seems more like hacks for people pretending to be sick…

No. 451735

>>451732
Yeah but are you able to step into a tub? She supposedly can't but can hike her knees up to her ears to shit.

No. 451737

>>451735
Not that anon, but I couldn't step in a tub but am pretty sure I would be able to sit with my legs up provided it doesn't take too long. It's different because you aren't putting weight on your knees or hips. Although I have to say my hips are pretty stable compared to how Jaquie claims hers are.

No. 451744

>>451735
It's pretty hard for me to step into a tub, which is why I sit and spin on the edge, but even that isn't great.

I can't sit in the positions she seems to contort her body into on the floor. It seems absolutely nuts for someone with "sooper hypermobile" joints to sit cross legged or on their knees. I got in trouble in gym class when I wouldn't sit "criss cross applesauce" because it hurt too much.

No. 451828

>>451686
She mentioned using toilet paper between tegaderms. Does she just..rip it off the roll where it's been in spray field? Really?

No. 451846

File: 1514157980762.png (91.07 KB, 453x749, IMG_5253.PNG)

>>451744
You mean like this?

No. 451861

Janeice is…weird. In her latest vlog, she’s now complaining that her blood pressure is super low and her heart rate is still too high. Apparently - according to her - the drs want it to be 60 when normal HR is between 60 and 100. I wonder if she genuinely misunderstood or she’s acting it up.

No. 451863

File: 1514160097194.png (2.95 MB, 2048x1536, 01B8E799-BC83-47A5-907E-65317E…)

Great comment!

No. 451873

Janiece is wayyyyy too happy to be in the hospital at Christmas
https://www.instagram.com/p/BdGsB8UAm0e/

No. 451887

>>451861
yesterday when her bf panned to the machine for her heart rate her blood pressure showed 123/76 that doesnt seem low at all??

No. 451890

>>451846
YES!

I could NEVER sit like that. My knees would be screaming at me and my ankles would be shot.

EDS my ass.

No. 451900

>>451890
not true. i'm not wking because this bitch is fucking fake as shit but i genetically have eds with all the joint pain and bullshit that goes with it that miss adjustable claims to have and…i sit like that. constantly. it's the only position that's comfortable for my bendy body. if my legs are straight out or positioned "normally" i feel extreme pain. sorry to edsfag but i don't want you to think that every EDS person can't sit that way…because some of us do FOR comfort!
>>451890(medfagging)

No. 451909

I just want to chime in on how J is affecting/influencing her audience. I used to be a fan and I found myself slipping down the slope of being OTT after some of her videos about pushing for dx and mobility aid stuff. I have issues with blacking out and being unsteady on my feet and quickly found myself wanting to get a walker, and some other bits she's paraded around. But I actually sat back and realised what was happening and snapped out of it. Especially when my fiance actually pulled me up on how I suddenly felt like I needed all the things J has. It's actually quite scary when you think about how she tells her viewers to persue particular treatments and find a doctor who will do them. Along with advertising her gadgets (and improper use of them). She is creating a shit storm ot munchies for sure.

No. 451933

>>451900
That's interesting. I'm sorry I assumed it'd be painful for everyone, because having my knees bent like that and any extra weight atop them is unbearable for me.

I try to avoid sitting on the floor as much as possible because the only comfy positions are laying down or the fetal position.

No. 451952

>>451900
But she say her hips are really bad, sitting like that would effect her hips badly, I have eds and it effects everyone differently. My hips pop out when i sit on the ground with my legs crosses and when on my knees

No. 451971

>>451873
Janiece hates her inlaws (and I'm sure they return the favor) so it's no wonder she's stoked to be anywhere other than a family gathering at their place. Plus she gets Paul all to herself like this.

No. 451980

>>451971
Why does she hate them?

No. 451985

>>451861
Both Js hate the attention to be on anyone or anything other than them. No wonder they hate the holidays. So Janice is hospitalized for completely normal vitals, and jaquie is talking about her new tubes and all her illnesses, although I wouldn’t be surprised if she has some sort of crisis tomorrow.

No. 452037

>>439930

Also the squatty potty reduces straining which can contribute to developing / exacerbate existing pelvic floor dysfunction.

No. 452066

>>450919

The only "seizures" that occur from dysautonomia occur when fainting, limbs can "jerk" upon collapse which can look similar to a seizure.

No. 452068

>>451317

I have "hyper POTS" so had dangerously high blood pressure for a while. It's not hospital worthy, just take some fucking Rampiril instead of taking up a hospital bed.

No. 452078

>>452068
Well, if it's true that her HR went from 58 to 130 without any obvious cause, then that is strange and I can imagine the doctors being careful about that. The thing is that with people like her, there's no way to tell what is what and what's real and what's not. She also seems not to understand doctors very well on a regular basis and/or draw her own conclusions based on very little. Like saying the doctors want her HR at exactly 60, or that she should go for number two every single day (everything between once every two days or two times a day is considered completely normal). Or when she decided her GI problems were getting worse, she needs to see her GI ASAP and her pills won't work because she 'doesn't digest them' when she found ghost pills in her poop (also completely normal, see e.g. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4110830/).

No. 452087

>>451985
They don't "believe in invisible illnesses" aka think she's a lazy sack of shit. There was also some wedding drama - Paul's parents are Catholic and wanted them to marry in a Catholic church but Janiece isn't Catholic so they had their wedding in a garden somewhere. Which is fair enough, it's their wedding, they should do what makes them happy but Janiece is also super ignorant and thinks Catholics aren't Christian so I can't imagine they've ever had a healthy talk about their religious differences.

Before this hospital drama she was talking about how she was going to have them add soup and bread - the only bland food can think of - to the Christmas menu just for her. Which makes me think she's a pain in the ass guest too. Who demands things catered to her instead just bringing her own food if she decides at the last minute she needs something different.

No. 452099

Regarding Janiece and her "my heart rate has to be at 60": that seems to be accurate. I've done a google search and for contrast CT of the heart the target HR is about 60/65 or lower, as I understand it because that gives the most clear images. It is however quite common that people have a resting HR above that (as I think we all know) so often they'll have to bring the HR down with medication.

If she would've just explained that, it would've been different.. And although she and Paul made it seem like she had some kind of cardiac emergency, she has been cleared by cardio now and everything is OK. I still wonder if her HR really was all over the place and if so, why. As I understand it, cardio has cleared her now and what's keeping her is her GI (issues). I don't know why they did another upper and lower scope when she's already had one quite recently that came back clear and why her GI said she might have Crohn's when they already considered that and ruled it out as well? GI also said it might be IBS; didn't she recently bad mouth a nurse for even suggesting it might be IBS? O, and Paul 'advocated' for her and asked if home saline infusions would be a good idea if her diarrhea persisted.. WTF? How about taking metamucil or another oral med for diarrhea instead of jumping to home infusions?

I think the anon who predicted she'd be angling for a port and tube soon was right. Sadly. Someone in the comments of a semi-recent video also suggested she should be tested for EDS because it could be GP. Really. She's hispanic, so there's a chance she has some degree of hypermobility. The whole EDS diagnosis has no meaning whatsoever anymore with everyone who is a little bit hypermobile finding some doctor to diagnose EDS. When are people getting it in their thick skulls that hypermobility does not equal EDS and that EDS is a LOT more then just being a bit flexible and having some health issues that may or may not be totally unrelated?

No. 452114

Omg people have chronic diahrrea ALL THE TIME and manage to stay hydrated orally!!

No. 452157

>>451846

In this pic she's "triangle sitting" which is weirdly comfy for some people (inc me and I have EDS). The problems come when I try to stand up again. She gets on and off the floor suspiciously easily.

No. 452162

>>452114

That doesn’t get YouTube asspats though. Plus, she gets allllll the attention on her. No idea why her husband puts up with it, especially as he has a genuine condition (Crohn’s) and appears to be actually struggling with it symptom wise. Yet, he manages to work and live.

No. 452163

>>452157

You need a lot of body strength to push yourself up off the floor. She claims muscle weakness.

No. 452178

>>451887

It's the tiniest bit low, but definitely not hospital worthy.

No. 452181

>>452099

It sounds VERY farfetched that GP would be the first "symptom" of EDS. It's not an effect of it, it's more to do with the ANS and it's only because EDS and autonomic problems seem to appear together that GP is being added into the "triad". Or "quadrangle of Munch" if you include MCAS.

No. 452182

>>452163

If she has such bad muscle weakness she should be in physio 1-2X a week with daily exercises because weak muscles with EDS means constant dislocations.

Of course, she doesn't actually have EDS, so…

No. 452184

>>452114
I haven't been keeping up with the sagas of janiece's bowel movements but I think her issue was chronic constipation? Now she's pooping too much? Maybe she needs to ease up on that enema fetish.

No. 452199

>>452184

She said that alternate between constipation and diarrhoea which sounds like classic IBS but I’m no medfag. Also in one vlog, she said that in one day, she had constipation AND diarrhoea. I think she misunderstands constipation. Is it a US thing to get admitted so easily? In the UK, you have to be actually really ill to be in hospital.

No. 452237

>>452199
You can actually have diarrhea AROUND severe constipation (I think it's called paradoxical diarrhea) especially if you become impacted. It's pretty miserable. I was actually hospitalized for this before due to the unmanageable dehydration because once you get that constipated I guess your body doesn't even want to keep down fluids!

Sooo it's possible but somehow I think she would be telling us all about it due to her weird scat fetish if she had paradoxical diarrhea.

No. 452239

>>452181
you guys don't seem to get it that non-munchies have this "quadrangle of munch" too - how do you think people like J&J have it- it didn't just fall down from munchie heaven for them.

Sage for rage

No. 452262

>>452239

We do get it. You’re missing the point that they all seem to have the quadrangle.

No. 452265

OMG janeice had a normal colonoscopy but apparently she may still have Crohn’s (ok I can see there’s a small chance) but when they told her it might be IBS, Paul “advocated” for her and asked about Home saline. What the fuck?!

No. 452289

>>452265
There's literally no reason she can't drink enough to stay hydrated. Why the fuck does he want a munchie wife? Does it make these guys feel special to "help" their "ill" wives or something? She doesn't know that she has EDS or that her collagen is affected in any way yet she's completely rolling with the assumption that she has a genetic mutation AND it is actually causing a deficit in collagen quantity and/or quality. He should be discouraging this insanity! This girl is a fucking idiot and I don't believe half of what she says because I'm not sure she's intelligent enough to understand her doctors.

No. 452302

>>452289
Wait, Janeice is claiming EDS too?!

No. 452303

>>452289
If anything it should be suspicious that two women who are best friends magically have the same, not super common illness, despite having no symptoms until adulthood (impossible for eds), especially since at least one of them (jaquie) has specifically been told she doesn’t have it. Also, why do munchies seem to think they can acquire genetic disorders as adults? It’s absolutely ridiculous.

No. 452401

>>452302
I thought so but I might be wrong, I don't actually watch any of her videos. I know a commenter suggested she look into it so it's only a matter of time. That EDS rant is applicable for most of these munchies though!

No. 452418

>>452099
Most CT's nowadays don't take hr before scan. If you can drink the barium you're good. And if she's having such major stomach problems an abdominal CT is a few hours of time for possible answers - a heart rate of 80ish won't stop a doctor. If she's freaking out and making her hr like 120 then the doctor might say "we would like to see this closer to 60 then 100" but that doesn't mean it has to be 60.

No. 452423

>>452265
normal colonscopy means no chrons or colitis honey. There's almost no way the biopsies will come back for chrons and even if they did, the disease would be so miniscule there would be no way it's causing her supposed symptoms. She's gonna get slapped with an IBS dx and be super angry because "they just haven't found it yet"
Also stomach problems doesn't mean saline jfc. She's gonna get some nice IBS drugs that don't do anything.

No. 452444

>>452423

Is she still sticking to the FODMAP diet? I know friends with IBS who swear by it. Earlier this year she tried it for 2 days and got bored kek

No. 452488

>>452444
Neither of the J’s want to actually help themselves feel better, although their only real problems are eating shit food and being horribly out of shape.

No. 452489

>>452488

Well I knew this about Jaquie. Her walker, wheelchair, joint injections, ketamine infusions, port and t00b - NONE of them have helped her be more "healthy", she's getting worse if anything, less and less independent and closing her world off. They're not a means to managing illness for her, they're accessories as she plays The Sick Girl.

And Janiece is trying, obviously, to be like her so she can live on the Patreon/ad profits too. Except she's nowhere near as smart (see: devious), and her videos are somehow even more boring than Jaquie's.

No. 452614

>>452199

No. I have no idea where these two get their medical care but I've never seen anyone get admitted that easily. I've begged to be admitted and been sent home feeling terrible with abnormal labs and everything saying an admission isn't justified. She's the healthiest admitted person I've ever seen.

No. 452665

>>452418
They wanted to do a CT of her heart, not her stomach. Which is already strange: she's basically having two emergencies at once. Except of course that they aren't emergencies, because she's had these symptoms for ages. That's nother reason why there is literally no reason why she should be in hospital.

OK.. IF her HR really jumped from 58 to 130 without a clear cause and she was feeling very poorly (although I guess with Janiece there's no way to tell) that could somewhat justify them going to the ER. But she's been cleared by cardio now so I don't understand why her GI thinks it's a good idea to keep her there. He certainly saw no reason to see her earlier when she called last week, and there's been no change in her symptoms. Except of course that she refuses to eat now, which could be the whole reason her HR and BP were off a bit and maybe is the reason they are keeping her? I don't know. And how the hell they think home IV saline is a treatment for diarrhea and how her doctor can even think that would be a good idea, is really beyond me. She can drink ORS if she really thinks water isn't enough. Of course we don't know what her doctor really said, but if that's true then I am really astonished by how truely unethical and stupid her doctor is. She was going to seek another GI doctor for a second opinion, but I guess now she can smell that central line she'll suddenly decide she can trust him again.

It's getting crazier and crazier. I thought Jaquie was super obvious in her munchie-ness and the way she manipulates doctors. I thought she shopped around so much that she was able to somehow find the most unethical nitwit-doctors in the South, but it appears that those aren't too hard to find if we look at Janiece. I really have no words for this stupidity. No mean accomplishment, I tell you.

No. 452718

If Janiece is using the same hospital/medical system as the endoscopy and colonoscopy she got done on 9/19/17 they shouldn’t need another one… unless she is taking after her biffles, Jaquie, and shopping around until she finds a GI that will say what she wants to hear. Getting repeat ass prods… gross.

Janiece and her obsession with food and poop and enemas etc…is so gross. It’s almost as if she has a fetish for it like an anon mentioned at some point…

Dude oes anyone remember back when she went for her “colon and endoscopy” on August 18? This was the screenshot of the “attempted” procedure… I say attempted because Janiece and Paul “advocated for Janiece” and all of her chronic illnesses… and her priorities for said procedure that day.

“I did my eyebrows for this procedure. I’m not going in to this all ug-ly! Puh-lease!”

Her ignorance really starts to shine around 2:20. Around 3:54, she discusses how Jaquie was “knocked out all day” due to their narcolepsy but Janiece says she won’t knock out until she stuffs that ignorant piehole with a “proper meal” from her favorite restaurant that she can’t remember the name of which Jaquie and Judd turned them on to. Nope, she’s not nervous about the procedure or anesthesia. She’s just worried about shoving Belgian waffles down the hatch.

But not to worry because they (the medical team) all suck in Janeice’s eyes and she decides she’s too good for this lacking staff and will find a more qualified doctor and anesthesia team. They told the anesthesiologist about J’s REM intrusions and her violent shaking upon waking and she was screaming last time and how she was screaming that they were choking her or some shit. Basically being the fucking wack job Janiece is (around 8:24 in the video she talks about this part) they were trying to get general anesthesia for her ass procedure. Who the fuck are these people?

They act like Janiece has 37 illnesses and that narcolepsy is a terminal condition.

Oh and don’t worry, guys. She got to eat afterwards… sushi after a colonoscopy and endoscopy.

I, too, am asking myself who is munchier..$

No. 452727

>>439930
Why have non of Janiece's doctors put two and two together that no gallbladder can cause diarrhoea?! Give her some colestyramine and send her home.

No. 452731

File: 1514298908830.png (3.11 MB, 1242x2208, 3284D9D2-4688-49A4-844B-57A766…)

>>452727

Seriously…. especially how that slob cow eats. I remember one video a couple months back how she said she was a size zero. Uh, on what planet?!

This photo is of her comments to the YT video I posted a few mins ago. Her cocky attitude toward medical professionals is so disgusting. And how Paul enables her… more disgusting. Jaquie and Janiece have a terribly toxic friendship. Their marriages are even more toxic. The whole situation with these bitches is just freaking pathetic. I hope their fraudulent activities get outed soon.

No. 452732

>>452718
Yeah, that was crazy. If you know sedation is THAT problematic for you, you just ask them to do it without sedation. It's uncomfortable but normally it's not painful. The lower scope can be, but if you're really worried about that you could opt for IV pain meds instead of twilight sedation. Or maybe if you think you're such a special case, you talk to your caretakers beforehand instead of showing up and demanding they adapt the procedure to you super special needs.

P.S.: is it normal in the US to call a gastroscopy an endoscopy and only specify the kind of endoscopy when it comes to a colonoscopy? Because they both are endoscopic procedures, as is anything that's done with a scope (including keyhole surgery). I find it annoying that she and Paul say "colon- and endoscopy" so much when they mean colon- and gastroscopy/lower and upper GI scope. But maybe that's just me and it's just a US thing?

No. 452736

>>452731
>>Doctor didn't know how to handle special cases

Wow. That's incredible insulting. Although some cases are more complex than others, ALL cases are special in it's own way. Does she think all his other patients are completely healthy?

I hate how they insult doctors and nurses and still be a sanctimonious ass about it. She does it all the time and makes people think that is normal. She even encourages it, making herself to be a good example of how you 'advocate' for yourself. NO Janiece, advocating would be if you called ahead and worked with your doctor to find a good solution. Showing up at the appointment and being a princess AND insulting the doctor afterwards on YouTube for the world to see is just being an obnoxious entitled brat who wasted a doctors' precious time so that another patient had to needlessly wait longer. You really need to learn the difference between those two things, ESPECIALLY if you're going to tell other people how they should communicate with their caregivers. Wow.

No. 452745

>>452736
it boils my blood when spoonies bitch about incompetent doctors and stuff. oh im sure that your 12 hour google session has taught you more than a qualified professional with years and experience under their belt.

No. 452802

>>452745

Sage for blogging/medfagging. As a chronic illness patient I learned the benefit and importance of having say even just your primary care doctor on your side let alone specialists (well, all of your care team really…) when it comes to having a quality of care. An example would be my case and an original lax primary team to get a diagnosis. Instead of googling symptoms and possiblies, I was googling doctors and reading reviews. Instead of going from doctor to doctor to doctor I did enough research to get like two of the top guys and met with them and then went with my gut and who I “clicked” with better. I had a diagnosis in about two weeks and have been with that doctor for years now. Continuity of care is so valuable, especially with complex medical cases like Janiece and Jaquie claim to be. The more a patient has to re-explain their case and symptoms, the more there is a possibility of certain things being forgotten or misconstrued.

How much salt do you guys think is in Janiece’s “delicious soup and bread” and contributing to her soooooper high heart rate?

>>452732

When I’ve had them done here in the US it’s an “upper GI” and a “colonoscopy” for upper and lower scopes. Sometimes they do them alone and sometimes they do both during the same twilight sedan

“For all you fellow Spoonies out there that are always asking my advice…” —Janiece said that in one of her more recent videos (sorry I tried to find the video but couldn’t find it)…. there is no way in hell I would ever ask that bitch a DAMN thing. She is so full of shit.(sorry for breaking the rules of the site BUT)

No. 452806

Today's vlog is almost unbearable with the fakery. She literally EDITS IN a soundbyte of a burp for Harlow. As in, Harlow actually burps on camera, but she edited in a sound effect for some stupid reason.

"I know I'm going to have a very merry Christmas, even with chronic illness". Of course you are, Jaquie, because you'll just adjust your symptoms to let you do the things you want to do and conveniently get you out of things you don't…

No. 452826

>>452802
sorry anon, you may actually have good info in your post somewhere, but you sound just as insufferable as all these other ott spoonies

No. 453729

>>452806
I know zilch about video editing. How can you tell that she edited in the sound?

No. 453768

>>452806
It does kinda sound edited in…

And as for the rest of the vlog, I still don't get why she doesn't prepare her IV/Feeding supplies someplace slightly cleaner than the floor. Sit at the table or even just the coffee table for heaven's sake! It'd be a lot easier to clean up a feeding spill at the table than on the carpet.

For someone with super sever POTS/EDS she spends a lot of time on the floor, and unless she's just crawling around that's a lot of position changes from floor to standing.

No. 453772

>>453768
She’s just begging to get sick, isn’t she? Accesses her port in public places and with dirty hands, preps her supplies on the floor. Apparently sepsis is the new munchie trend? Hopefully her followers with similar devices don’t follow suit.

No. 453776

>>453768
Anyone who actually has EDS and Pots tries to avoid the floor if possible, as it is difficult to get off of, even if you’re in good shape. And with eds, getting comfortable on the floor is challenging if not impossible.

No. 453810

>>452802
What are you talking about? Salt helps to reduce heart rate in pots patients, which is why it's often recommended to up the intake.

No. 453822

>>453810
Do you think she actually has pots? Because I highly doubt it, in which case, salt would cause high blood pressure. Really I don’t think either of the Js have pots or eds or gi problems outside of IBs. It would be a pretty big coincidence for two (adult) friends to magically develops the same illnesses, especially so far out of puberty.

No. 453825

File: 1514325633006.png (6.5 MB, 2208x1242, F7E28E12-E1B4-44E3-82CA-51C2CA…)

So much milk today!

In today's festive Christmas vlog we learn that Jaquie is doing duonebs at least twice a day. This is so wrong. You shouldn't be doing duonebs (or any short-acting beta agonist) more than twice a week unless you're specifically using them immediately prior to exercise to prevent exercise induced asthma. And we know Jaquie doesn't exercise. If you need them more than twice a week your asthma is poorly controlled and you should be on a maintenance medication actually meant for that purpose, like an inhaled steroid and maybe a LABA with it. And what is the biggest side effect of SABAs like duonebs? Tachycardia.

So why Jaquie is doing duonebs at least twice daily? Or at least telling us she is… Well I figure:

1. Her asthma is being very mismanaged by one of the doctors she shopped for
2. She has to get those sweet, sweet nebulizer clips for they vlog like her idol, Mary
3. It's part of her plan to AST…always stay tachycardia
4. Some combo of the above

No. 453831

And of course we also get a Christmas hospital update from Janiece. Who is still somehow is the f'ing hospital. Eating bacon today and confined to bed.

Today Paul tells us how she might have Crohn's because her colon turned irritated when touched during the scope. And then he says he's jealous? Wtf is that supposed to mean?!

They also talk about two more outpatient tests they're going to do.

So far we're on to what- day 4 of this hospital stay? And she's managed to have a normal cardiac eval, normal scopes, eat bacon, tell us about 3 outpatient tests she's going to have, and whine about her narcolepsy. And that's about it. Why is this chick in the hospital?!

No. 453840

>>453831

I was asking the same thing. How is her insurance okay with this completely pointless stay? She’s probably getting pumped full of narcotics for her sooper turrible pain, leading her doctors on with anything to keep her there, how Paul is ok with this and recording these completely boring, embarrassing, proof that nothing is flipping wrong vlogs is beyond me.

They said her white count was up, but that could be from something as minor as a UTI.

I think the jealously comment may have been because he was jealous that she now has made him completely not unique with his diagnosis or something along those lines.

No. 453845

>>453840

Yeah I really don't understand how these people get to stay in hospitals forever (there are people in comas who have shorter hospital stays!), but then again everyone I've ever known who has been in a hospital wanted to get out of there ASAP. I guess if you insist on staying they just let you?

No. 453847

>>453831
I guess this is their version of a pricey hotel stay! Let's see how many nights…

No. 453848

>>453845
Exactly! Just for reference (and not that I’ve ever given birth) in the UK, you are sent home 24-48 hours after a c section.

No. 453852

In the Christmas Day vlog, Jaquie filled her feeding bag and said she does it every 24 hours. I know nothing about tube feeding but that bag looks small. Does it contain all her nourishment for the day?

No. 453866

>>453852
Even if it doesn't, we know the cream-soaked chicken, menchies, and French fries will have her covered!

No. 453872

>>453852
I noticed that too. I don't think she means she fills it once a day I think she means she changes the bag itself once a day. But at first I took it the same way you did.

No. 453873

>>453852
To be fair, and not to wk, I took it to mean she replaces the tubing once a day. She's been shown just topping off the bag before. We all know the feeding tube isn't her main source of calories, though.

No. 453922

I agree with many that I'm dumbfounded how they can managed to get inpatient admissions for symptoms don't seem to require it. That alone, fine, the ER doc was being overly careful.

But doing tests inpatient that can be done on non-emergent bases? Why?

Must be slow week for the hospital (because any normal human being wants to be OUT of the hospital over a holiday) and they are relishing the extra $$$.

I also had a thought - FL is closer to all those Caribbean med schools that people end up at if they cannot get into a mainland med schools.

Not really knocking Ross or St. George's, but both do truthfully attract bottom of the barrel — and grads from those schools that are really good probably end up more north or on the coasts where the top ranking hospitals are. I have seen few Carribian med school grads as docs and they were good. But I also live in the NE and residenciess and fellowships around me are highly selective.

FL probably gets more of the bottom of the barrel, there aren't as many top ranking hospitals. I wonder if any of that accounts for the confusing excessive care that J and J are getting.

Sage for blogging/medfagging

No. 453928

>>453922
You really could be onto something, anon. They obviously have no shortage of doctors within their ability to scam at their disposal. This wouldn't be happening if either J's care was in a single medical system or with legitimate specialists instead of their jack of all trades GP's.

No. 453956

>>453873
The bag itself would still have to be changed. Yes, she tops it off… throughout the day. She uses a very small sized bag and it only holds one 11oz container of formula at a time. Most of us think she's running her feeds way too low but even then I doubt she's only using 11oz a day.
But general recommend use is to change the bag itself every 24 hours. But obviously she was clear as mud since three different people took it three differenr ways. But she's going to be a communications major y'all!

No. 453998

>>453845

I’m pretty sure that there is a legal thing where you can get an extra 24 hours out of them if you “don’t feel safe or comfortable” going home when the doctor discharges you. I tried to google it but wasn’t able to find the exact thing… I’m pretty sure it’s a Medicare law (even for those with private insurance) but only buys someone an extra day. I could totally see Janiece and Paul doing that to get an extra 24 hours of munchie room service provided by the Refreshments and Narcotics nurses. Or maybe by Paul solely to escape serving her soup and bread for a day.

No. 454016

>>453831
She's whining about her narcolepsy but also says she isn't taking her narcolepsy meds… why doesn't she just take the meds?

No. 454045

>>454016

I guess she can't bring them to the hospital and the hospital won't give them to her. But, like, maybe if you're having heart problems it's not wise to take a stimulant. Also, why would you even want to be awake and alert when you supposedly don't feel well and you're stuck in a hospital? When I have a cold, I usually skip my meds to get as much rest and miss as much feeling crappy as possible.

No. 454064

>>454016

Can only take what is ordered for you in the hospital

No. 454076

>>454064
Not true. If the hospital does not have the patients medication, the patient can bring theirs in from home and the nurse will send it down to pharmacy, so they can dispense it however many times it says on the bottle. But the patient is not allowed to dispense their own meds; it HAS to go down to pharmacy.

No. 454086

>>454076

By ordered I meant prescribed. It still needs to be approved by the provider. This, home meds are not always approved for hospital use for various reasons.

No. 454087

>>454045
Has she ever mentioned what she is taking? Not all narcoleptics take stimulants. If she does then you could be right: if you don't have anywhere to be and are resting all day, you generally wouldn't need stimulants. However if it is bothering her so much (like e.g. she isn't able to hold a normal conversation or if she is the type of narcoleptic who falls asleep on the toilet or in front of their plate) she should just take her meds. She is cleared by the cardiologist, so I assume whatever she takes normally with her POTS she can take now as well.

I know she was trying to get her insurance to cover Xyrem, do we know if she started it yet? Because some of the more common side effects include nausea, diarrhea, vomiting, lack of apetite and abdominal pain.

No. 454093

Jaquie’s video for 12/26… Jaq and Judd go to Best Buy and put that hard earned Patreon and YouTube money to good use for a brand new fancy TV. Also, Jaquie tries to wheelchair into the handicapped stall in the bathroom there and encounters a giant shit that she can’t get to flush and because she already fell today, she couldn’t walk into the normal person stall. Finally she squeezed Harlow into a small stall and goes potty like the big girl she is. Judd laughs his ass off and literally rolls on the floor of Best Buy laughing at his wife.

What was wrong with their giant old TV? The new one was so big that Judd had to go home to get his “pickemuptruck” because it was too big for Jaq’s Ambulance.

Those wheelchair gloves… ugh. Jaq should have called Janiece in for tips on handling the handicapped stall load since she’s the poop professional.

No. 454104

>>454086
If it is beneficial to their plan of care, it would be added by said provider.

No. 454105

>>453845
Medfag here- Patients at our hospital do have this option. Upon discharge orders from the doctor saying they are medically cleared to leave, the patient can appeal this decision. For whatever reason. (I've usually hear "my pain is still a 10/10" or "I'm just not ready yet.") Both of which are complete bs. These munchies get their extra day, and then discharged after. It's sort of like appealing any decision, takes a few hours to get looked over, and 90% of the time they lose the appeal and are discharged the day after. I feel they should be charged out of pocket for that night if their appeal is denied.

Sage for medfagging.

No. 454107

>>454093

Why the fuck does Harlow have to go with her to the bathroom? And did she take her wheelchair into the stall too seeing as she apparently couldn't stand up? (Sorry haven't had a chance to watch the vlog yet)

If she has to use the toilet when she is in her chair and can't stand, would she transfer herself the way actually-wheelchair bound people do? Or do you think she just kinda stands up to transfer? I'd love to see how she uses her body when no one's around, especially when she is in one of these states.

No. 454117

>>454107
It's bs hat she can't stand. You're looking too far into it.

No. 454121

>>454104

Right. And that's the point. Whoever is following her in the hospital either doesn't think she needs it or thinks it's causing harm

No. 454125

>>454107
>>If she has to use the toilet when she is in her chair and can't stand, would she transfer herself the way actually-wheelchair bound people do?
Of course not. If you are able to stand at all, that is by far the easiest way to transfer. Especially if you are feeling weak or you are sick, you don't do things that are actually harder on your body, like making a transfer using only upper body strength. Although, I have to say: Jaquie is known for doing things the hard way. Just think of how she put her walker over that doggie gate at Janiece's.
(Just to give an example: I myself am pretty much wheelchair bound and can walk at most three or four steps with aid. I still transfer mostly by standing up first, especially at the toilet where you have to undo your pants which is even harder to do sitting down.)

There is no need for her to take her chair into the toilet. She doesn't even need to use the disabled stall. If she can sit on the floor and get up again, she can sit herself down on a toilet without using the hand bars. They don't even have bars in their own home. And don't say she uses her walker for that, because you cannot put your body weight on that to sit down; just to steady yourself a bit when you have poor balance.

But come on. I am about 95% sure that afterwards she went home and sat on the floor. She has NEVER used her chair inside the house, which tells us that even on very bad days, she is able to walk at least a few steps with her walker.

>>454104
Hm… I'm not sure how this is in the US, but where I live sometimes the hospital (and any apothecary, for that matter) has to order meds that aren't used very widely, which could very well happen with meds for narcolepsy. So if you're in the hospital for only a short time you might have to take your own meds. They generally don't like it if you do that, but with meds they just don't have they sometimes ask you to have someone bring them from home.

No. 454129

File: 1514375104147.png (6.74 MB, 1242x2208, AEAA22E8-2F3C-4269-81F4-615849…)

>>454107

You know, for counterbalance. And yes! She took the Barbie Car into the handicapped stall and then couldn’t get the giant poop that was waiting for her to flush so she ran out to Judd apparently exclaiming loudly that she had to pee really bad! So she could have saved a ton of trouble and stood her ass up, walked into a stall, peed, exited. But no, she had to make it 300 times harder just like anon mentioned she did with the doggie gate.

And her reasoning for needing the Barbie Car and/or Harlow in the shitter is because “guys, I already fell today because my legs aren’t working.” Or something along that line of BS. She will lay with her head in her own toilet “vomiting profusely” while her hair and port dangles in that cesspool of a bathroom dripping with MRSA… but she can’t/won’t flush a public toilet that has a log in it. Gag!

Oh and speaking of her nasty hair that dangles in Harlow’s raw diet prep and into her toilet seat… we know where she gets it from as seen in this photo. Nasty.

No. 454175

>>>Hm… I'm not sure how this is in the US, but where I live sometimes the hospital (and any apothecary, for that matter) has to order meds that aren't used very widely, which could very well happen with meds for narcolepsy. So if you're in the hospital for only a short time you might have to take your own meds. They generally don't like it if you do that, but with meds they just don't have they sometimes ask you to have someone bring them from home.

Janiece said that the hospital won't let her bring her own meds and they won't order them for her either. Not sure why you're arguing about this.

No. 454186

Janiece’s holier than thou attitude makes her look like such a cocky bitch. She said some pretty awful things about nurses and how they are just there to take her temperature and blood pressure. My BP was rising just watching her vlog today. RNs are not her personal slaves or “minions” as she refers to them around the 3:20 mark. And they were “double teaming” her. They are “just RNs” again today.They’re the ones that bring you your precious pain medications, Janiece. You may want to rethink how you talk about them and treat them. And apparently the nurse tells Janiece’s GI that Janiece told her to “shut up” and Janiece denied that of course… the nurse was probably telling the truth. And then Paul and Janiece go on to both talk about how nurses need to treat their chronic illness patients with kindness. Hippocracy much? Janiece is home now already bitching about the horrible diet she has to be on and how it’s not wat SHE wants to eat. She’s feeling so shitty because she eats so shitty. She really isn’t the brightest when it comes to self care. Paul pretty much has to treat her like an infant to get her to eat better. What’s next? Him playing spoon airplane with her beloved soup to get her to eat right?? “Vroooooom vrooooom, open up!”

No. 454199

>>454175
>>Janiece said that the hospital won't let her bring her own meds and they won't order them for her either. Not sure why you're arguing about this.
Am I arguing? It's difficult without intonation to convey what you are saying, but I was simply wondering about it.

IMO, if we're going to call people out, it's better to check if the conclusions we draw are based on the right information and the right conceptions. Otherwise we'd be pretty much the same as the munchies who immediately say they've got diagnosis X whenever a doctor mentions it or orders a test to rule it out.

But if you want to know why I wondered, I missed the part where she said they won't order them and won't let her bring them either. I just heard Paul say "they are not providing them", so that was what I was going on. In my experience, that doesn't always mean that the doctor in charge thinks you don't need the meds, which was what someone said. That's all.

No. 454206

>>454186
Am I the only one that is just super annoyed by the way she's speaking in this? (Slow, slurred) Or is that how she always speaks?

No. 454220

>>454093
>>Jaq's Ambulance.

Top kek, anon.

No. 454221

>>454206
It's pretty typical for her. It's her version of Jaquie's sick face. Janiece's voice is part of the reason that I just can not with her videos. I usually make it to about the three minute mark and bail.

No. 454228

>>454206
Hey don't want to WK but it's been mentioned that she has hearing problems. Could be a result of that and if so I'd be hard pressed to criticize her for that.

No. 454230

>>454228
Maybe. But when I said it's like Jaquie's sick face I mean it comes and goes. She CAN talk normally, like if she is excited about going to Food and Wine Festival at Disney etc.

No. 454232

For someone so obsessed with having a wheelchair you'd think Jaquie would be better at driving the Neon Demon.

Honestly, if she's gonna have Harlow work with her Barbie Car then she needs to go to some kind of Wheelchair Skills Clinic so she can improve her maneuvering and what-not.

Also, at the end of yesterdays vlog when Judd is videoing Jaq and Harlow from afar it looks like Harlow's hips are swinging pretty significantly. I compared it to a video of a golden with hip dysplasia and it looked kinda similar, but that might just be me.

I don't want that poor dog to suffer anymore than she has to, but I doubt Jaquie will listen to anyone who points Harlow's swinging gait out.

No. 454243

>>454186
Wow. I just saw that video. I'm not a nurse, but I am SO offended on behalf of every nurse out there. I cannot believe she actually said that!

Also: her "they don't understand narcolepsy, they wanted me to get up and be active but I have narcolepsy so that's gonna make me worse" is simply NOT true. Yes, true narcolepsy messes up your sleep. But its main symptom is sleepiness that occurs in a low stimulus environment. So getting up and actually doing something will HELP. Most narcoleptics don't fall asleep as long as they're active, but will fall asleep watching TV, reading a book or sometimes even during a calm conversation, especially if the other person is doing a long monologue.

I know that some narcoleptics will fall asleep literally anywhere doing anything and there's also the risk of automatic behavior, BUT if we assume that she's not on Xyrem yet, she is most probably taking a stimulant. That doesn't do anything for her sleep, it just helps keep you awake. And suprise suprise, so does being more active.

Plus, normally she doesn't want to take naps during the day because of her REM intrusions. She also says that she doesn't take her narcolepsy meds every day. But NOW she is off her meds and she can only sleep? Sorry, that just doesn't add up. Normally, a few careful planned naps throughout the day are the first line of treatment for narcoleptics. O, and having a steady rhythm, which means waking up and coming out of bed in the morning at just about the same time every day, and of course going to bed at the same time as well.

She is offensive AF. Beyond it, even. The nurses were trying to help her because activity is not only good for narcoleptics, but also for people who are deconditioned, supposedly have POTS and are having GI problems. Being in bed all day is bad for everyone, even more so for someone who is already chronically ill. She was putting herself at risk for blood clots by being too inactive. The nurses were doing their job for which they are highly trained. Which is not just carrying out the doctors orders, but also observing the patient, looking at the patient as a whole and not just their current symptom and making sure they aren't leaving the hospital more sick than when they came in.

Though I do agree that if you're REALLY sick anyone being cheery can be annoying and even talking can be too much, but she is very clearly not even close to that state. She is just entitled and unbelievably offensive.

I am sorry for ranting, but I am really furious because of her offensive bitching. O, and she needs to stop talking about her poop. There are ways to talk about GI problems without talking about poop in literally every video. We don't want to hear about her poop, we don't want to see it, we don't want to smell it. And we don't want to hear about it. Also, we don't want to hear about it. Got it, Janiece??

No. 454248

>>454093
It's a $1300 TV. Is there any way they are supporting their lifestyle on Judd's income?

No. 454250

>>454243
Of course she didn't want to get out of bed. Her defining personality trait is laziness.

Wait, that's unfair. Her defining personality trait is being an unrelenting bitch to everyone she encounters. But laziness is a close second.

No. 454251

>>444854 It looks like Jaquie had deleted the most recent video. It says it has been removed by the user.

No. 454253

File: 1514397635281.png (246.74 KB, 750x1334, IMG_5289.PNG)

>>454251
She did. But not before I grabbed this comment. Check it out y'all… she helps educate nurses in training

No. 454257

>>454253
Wait, why did that happen? Did anyone see it before it was removed? I wonder if she got some backlash for suddenly not being able to go to the toilet without her barbie car.

No. 454263

>>454257
I watched it and was trying to keep up with the comments as well. I am not sure why she pulled it. The Barbie Car bathroom debacle was ridiculous, they gave us a view of the TV box so it's pretty easy to go online and figure out how much they spent. But aside from that it was pretty much typical.

No. 454273

>>454232
Sage for dogfag but Harlow is poorly bred. Definitely hip dysplasia and there seems to be something wrong with her eyes as well. She should NOT be using her for ANY mobility work. I’ll pretty sure harlow had a surgery as a puppy to correct her eyes too but that didn’t seem to work

No. 454298

>>454273
Harlow is one of the most poorly bred Goldens I've ever seen. She behaves well in public, but she isn't a service dog. Besides picking up items off the floor (which we all know Jaq can do herself) she doesn't know any tasks that specifically mitigate a disability. She shouldn't be used for mobility work AT ALL, much less wheelchair-related tasks like pulling (I don't know if Jaquie has started Harlow on wheelchair mobility tasks yet, but I'm sure it's coming). Sorry for dogfagging, but it enrages me to see Harlow being touted as the pinnacle of service dogs when she isn't a service dog at all. A very well trained pet with great public access manners, but not a service dog.

No. 454321

>>454273
>>454273

Yeah, I don't know what shady breeder they got her from, but it's really sad. I can't watch her vlogs, because just seeing Harlow makes me sad… she should be fed better, exercised better and definitely not used for any mobility!

No. 454323

>>454298
Service dogs that do no disability mitigating tasks are all the rage in the munchie community. It drives me batty. Harlow could easily be replaced by one of those sticks with the claw handle at the end that lets you pick up things without bending over. Oh. And some common sense like getting your blanket before you sit down.

And Harlow does more than a lot of the dogs on YouTube. I really can't figure out what Orion does.

All of their tasks can be replicated by less invasive, readily available devices. But then they wouldn't get as much attention or opportunities to make YouTube rants about how businesses have wronged them. Anyone can buy a $10 grab stick. It takes a truly special snowflake to need a service dog.

Ironically, the really sick people don't want to have an animal to be responsible for.

No. 454337

>>454251
Someone needs to start recording her videos and reuploading them.

She knows she's been caught out and has taken the video down for that reason I am certain of it.

She's made an ass of herself and Judd is so over it, she's a damn laughing stock.

No. 454340

>>454257
She put the video back up and I didn't watch it carefully enough the first time to see what she changed if she changed anything. The swingy Harlow walk is still in there, as is the lolrant about the bathroom and the huge new TV…

No. 454351

File: 1514407891005.jpeg (367.29 KB, 1242x2067, 6DF51CED-E20F-4FD9-9F4B-37DA85…)

>>454321

The breeder is at the bottom of this screenshot I found one days while back. She really is poorly bred and I’d guess in pain from the way her gait is.

No. 454355


No. 454357

File: 1514408608472.png (3.61 MB, 1242x2208, 5DF24562-25EB-4333-BAEF-A36971…)

Why she had to reupload

No. 454359

I’m pretty sure Jaquie accidentally released her upload too soon because it showed up at like 4 am her time and I think they usually go up at around 11 am-ish her time. I only saw it pop up on an alert but not on the “recently uploaded” area. So who knows why she pulled it and then re-uploaded it. I’ll try to rewatch it to see if I see any difference.

No. 454361

>>454359
Is it shorter, maybe? I'm not sure but seem to remember it was more like 13 minutes?

No. 454367

>>454361
No, I have a screen capture of the first one, time on the first video was 10:48.

No. 454376

>>454351
>>454351

Well. they have two stars on Yelp, not a lot of comments on Facebook. People complaining about their dogs being malnourished, needing supplements and straight up dying. They are charging around 2000$ for a puppy. And they recommend buying a load of supplements for puppies, which seems extra dodgy. All of this just makes me angry, they obviously don't care if the dogs are sick or not..

No. 454378

File: 1514410419473.png (177.67 KB, 750x1334, IMG_5512.PNG)

There are lots of reviews (if this is the same breeder) reporting buyers receiving sick dogs, dogs dying suddenly, etc. Nobody seems to have received a refund, either. So it appears that Harlow came from your standard puppy mill, and is about as healthy and well-bred as any dog you'd find in a shady pet store.

No. 454384

>>454367
That's what it is now, isn't it? Then it must be unchanged.

>>454355
Funny. They had to buy their bed through financing, right? But a 1300 dollar TV when they already have a working (and large, and modern, etc.) one is no problem? Do they by any chance have more patrons?

>>454323
What I find most odd is that they always seem allowed to have their dog visit them when they're in hospital. I have a friend with an actual service dog, he never had his dog 'visit' him during hospital stays. He brings him when he goes for appointments if his wife can't be there of course, because he wouldn't even be able to travel without him. But if he is admitted he doesn't need the dog because he can call a nurse if he needs help. And when you spouse comes by to visit, you are by definition not alone either, so the dog simply has no function there and therefor is not even allowed. Not that he cares that it's not allowed, because as I said, you don't need a bleeping dog when your spouse is sitting next to your bed and on top of that there's nurses 24/7 who are only one ring away.

No. 454386

File: 1514410886239.png (123.08 KB, 497x819, yelp.PNG)

>>454378
>>454378

Another lovely story from Yelp.

No. 454389

File: 1514410945417.png (96.34 KB, 1173x487, comm.PNG)

About the breeder.

No. 454405

>>454384
>>Funny. They had to buy their bed through financing, right? But a 1300 dollar TV when they already have a working (and large, and modern, etc.) one is no problem? Do they by any chance have more patrons?

Their patron number is actually slightly down, to 202. I do remember her saying that she and Judd weren't buying each other gifts this year and instead were getting something for the house. Plus they probably got Christmas cash from the parents. I agree though, they spend a shit ton of money. Way more than his salary likely allows.

No. 454408

>>454389
From reviews I saw it is part of their contact that to keep the guarantee you feed a certain food and the supplements, both of which give a kickback to the kennel. I was also seeing many people saying they trick buyers with the training they offer; and that they don't really train the dogs at all.

No. 454422

In two different pics she's on the floor, on her knees in front of the super scary plant (christmas tree) but you know, adjustable jaquie can do what she wants!
https://www.instagram.com/chronically_jaquie/?hl=en

No. 454597

File: 1514424999889.png (1.34 MB, 1536x2048, EC465779-BE60-4010-A3A6-5F3F4D…)

Look who’s bitching about how she was treated in the ER for her sooper serious (fake) illnesses. What a whiny bitch. Also, her port line is out when they’re not using it. How tacky.

No. 454599

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No. 454600

File: 1514425089861.png (269.13 KB, 1536x2048, BCBF726B-AFDC-4FD2-B0DC-627429…)

>>454599
Sooper seriously sick but can’t forget those fifty thousand tags

No. 454603

File: 1514425260886.jpeg (300.48 KB, 1536x2048, 7F02CDD3-406F-4F77-A382-5D5B89…)

>>454600
Good lord getting tricks from other munchies

No. 454611

Anyone else notice that Jaquie doesn't seem to have her port dangling out randomly in public anymore? I feel like we see less and less of the port dangle but I could be wrong

No. 454621

>>454611
She’s got her Barbie car and her precious feeding tube now, (that probably attract more attention), and the novelty of her port has worn off.

No. 454631

>>454599
Fucking Christ she tagged the hospital. What a needy munchie piece of work.

No. 454655

>>454599

Refusing medication she "can't take" then she takes it "for humor" lol ok… Wtf? I wonder what the medication was.

No. 454672

>>454655
I wondered about this too. Why would you go to the ER for nausea anyway? And then take a pill to humour a doctor… They're there helping people with medical emergencies, not (questionably) chronically ill people with nausea… Yes they treat chronically ill people on a daily basis numerous times a day who are having actual medical emergencies. Does this girl think everyone else in the ER is absolutely not chronically ill and she's the only one???? Her logic and common sense is so off.

No. 454718

File: 1514430421321.png (1.48 MB, 750x1334, IMG_5293.PNG)

Drama queen

No. 454759

>>454718
She must think she's pretty important. How pathetic.

No. 454814

>>454718
Having that many haters doesn’t make you important or popular or even right. Instead it usually means you’re a gigantic cunt who’s self-absorbed, and that people genuinely can’t stand you.

No. 454884

>>454378
Jaquie mentioned Julian's dog, Atlas, had the same mother as Harlow. Since he reads here, I hope he takes Atlas to be properly checked out by a vet.

No. 454927

>>454273
>>Definitely hip dysplasia
I feel you can't say that by just looking at how a dog walks. A friend of mine has a dog who walks exactly the same, another one has a dog who weirds every vet out by how they sit because apparently most dogs who sit like that have hip dysplasia. Yet they are both checked and do not have it. Jaquie says she had Harlow checked out and she is cleared for mobility work. Although we know that Jaquie doesn't seem to have much of a problem with lying, she did a pretty good job training Harlow and worked with professional trainers who know what tests should be done on a dog used for mobility work.

The thing is that I think that too much speculation put like it's a certainty is not helping our case. If for example one of Jaquies followers would find this thread and all we do is speculation and conspiracy theories, they'll just think we are a bunch of crazies who simply hate on Jaquie. If we stick to the clear inconsistencies in her story and the things we can actually prove, they won't be able to dismiss us so easily.

I don't mean to say that we can't also speculate and have fun with all sorts of theories, but you say she has definitely hip dysplasia. That's different from saying that 'she walks like a dog with hip dysplasia' or 'I wonder if she is properly checked out.'

No. 454930

>>454814
What haters is she talking about, anyway? Did people finally tell her not to offend the people so many sick people depend on?

No. 454989

Why does Jaquie need gloves to use her wheelchair when all she does is tap her special bracelet to get it moving now, never even touching the wheels?

No. 455000

>>454989
Because normally when people can only see your upper body, they can't see you are in a wheelchair. When you are wearing gloves though, they can.

Most people don't like wheelchair gloves anyway. They are sweaty and can cause blisters. If they want extra grip, they use a push rim cover. And IF wheelchair gloves are used, they are mainly used by people with a high spinal cord injury because they can't put their fingers around the push rim. With push rim covers and/or gloves you can push yourself using the palm of your hand without having to wrap your fingers around the push rim. This all to say: most people in her situation wouldn't use gloves.

No. 455008

>>455000

And she can't wear compression stockings due to being hot and sweaty but gloves are fine

No. 455017

>>455008
Well doh, stockings are worn under clothing. No one can see them, so it's obvious she can't use them. Silly you. Not that she ever tried them, (the doctor who recommended stockings for her was the same doc who started her on IV saline) but still.

No. 455027

>>453825

has anyone commented pointing this out? I'm willing to bet her response would be that her asthma is much more serious and special than anyone else's so she has to do the duonebs twice a day.

No. 455030

>>453831

Maybe Paul is "jealous" because if Janiece does have crohn's, then it's very very mild. He'd probably love to have a case that mild.

No. 455033

>>453847

Does anyone else think Janiece is malingering so she doesn't have to spend Christmas with Paul's family?

No. 455059

>>455033
I wouldn't put it past her. Not just to avoid them, but also to show them how she is really sick.

Someone in the comments asked about her HR and 'wasn't that the reason you went in?' She replied that she 'also went for her GI issues'. (sorry, can't screenshot right now). That's not how Paul tells it. He said she was screaming and suddenly unwell and he swooped her up and hurried to the hospital because her HR was odd. Doesn't sound like the had time to say to each other 'you know what, my GI symptoms are pretty bad and now my heart feels funny too, maybe we should go to the ER?'

What's even more is that her GI issues are not an emergency in any way, shape or form. Even if she's not eating, that's no reason to go to the ER. If that was a medical emergency, everyone who has a stomach bug or the flu and can only eat vegetable broth for a few days would be admitted. She has a chronic problem and those don't belong in emergency care. I think she just couldn't stand the fact her GI did not think her having ghost pills in her poop warranted him clearing his schedule for his most special patient.

No. 455063

Janeice is totally malingering, plus wants her spoon or brownie points

No. 455065

>>455059
A million times this. She was pissed she couldn't get an appointment until the end of January so she manufactured an emergency (or talked herself into a panic attack, hence the high heart rate) and went to the ER to stick it to her dr for not falling for her bs.

No. 455079

Oh ffs, Janiece and Paul constantly complain that all the nurses they encounter are shit at their jobs. Janiece is also a total cunt to every nurse she encouters.

How do they not see a connection between those two things?! Why oh why would any nurse go out of their way to do ANYTHING for these fuckers when they act like such bitches at all times?

No. 455113

In today's Toys with Jaq, she pursues braces. She's never even dislocated a joint, though?

No. 455116

>>455079
The other thing that is so wild to me about their trip is the refusing to call ambulances in Janieces supposed emergency. If you're that concerned for your wife's safety, a team of trained professionals with the ability to go around traffic and stabilize her is safer than "hitting 100 mph on the highway to the hospital" as Paul said. What an absurdly dangerous thing for him to do and then talk crap like EMTs wouldn't be fast enough.

No. 455117

Jaquie will have the AFOs on when she's in the wheelchair, I guarantee.

No. 455128

>>455117
Why in the heckity heck does she even need those? Her ankles seem perfectly fine when she's sitting on them as they are plantar flexing.

Kek at this rate she'll have a Barbie Pink Exoskeleton.

No. 455131

>>455116
I have a sneaking suspicion that Paul wants to come off as the manly hero here, especially given how excitedly he recites his reaction to the "emergency".

No. 455139

God just imagine her patented montone sick face with a neck brace kek, how much do you wanna bet she’ll get it in Barbie pink?

No. 455170

File: 1514482101427.jpg (452 KB, 1242x1805, jaqsnek.jpg)

>>455113
I noticed she had her phone in the X-Ray room…

No. 455171

File: 1514482165913.jpg (162.13 KB, 1242x1001, taraatack.jpg)

>>455170
Tara strikes again! Points to her for the snarky remark!

Thing definitely do work differently at Jaquie's hospital!

No. 455177

>>455131
Didn't Janiece say he wants to get a Doberman or a Rottweiler and train it as an attack dog? He's definitely got some macho manly man overcompensating going on.

No. 455186

That's a company that sells braces and also evaluates patients for them? That's not suspicious at all. Why not see a physiatrist who is, you know.. independent? Someone who doesn't have any interest in recommending braces but who actually wants what's best for you medically?

No. 455215

>>455186
Because they wouldn't prescribe braces to someone who doesn't need them of course.

I wore AFO's for many years due to cerebral palsy. They are commonly made of a type of hard plastic which gets very hot and sweaty and uncomfortable! Heat rashes are quite common in the areas where there isn't as much ventilation in warmer weather (it gets even hotter in FL). If she claims she can't wear compression stockings because of her heat intolerance, she definitely won't be able to tolerate AFO's!

These days they also sometimes make them out of carbon fibre. I can't give my opinion of these because I haven't used AFO's since my spinal cord injury 13 yrs ago, but design wise things haven't changed much and from what I've heard the carbon fibre ones are just as hot as the plastic version, especially since black tends to attract more heat.

How much do you want to bet she will pick a very childish pink pattern for hers though and wear over her leggings instead of under her clothes like people who actually need them do? Also, I'm guessing once she learns about HKAFO's (hip-knee-ankle-foot orthotics) she will have a brand new set of those before too long.

No. 455220

Lol! It's like the pain management clinic I went to that gave everyone a huge back brace no matter their diagnosis so they could bill your insurance!

No. 455259

We should make a timeline of Jaquie's descent into munchidom, complete with dates she acquires all her new toys. I've seen a rapid increase over past few months of new toys at a rate that's ridiculous even for someone who's actually chronically ill. I feel like if we laid everything out, we'd see how she really jumps from one hot-pink accessory to the next.

No. 455310

>>455113

Seems like persuing these life changing braces would have been better done before getting the $20k Barbie car

No. 455318

>>455259
I've got nothing better to do with my life today…So down the Instagram rabbit hole I go!

No. 455319

>>455318

someone did this already. might want to look at that before you spend time repeating the effort

No. 455320

>>455319
I haven't even started, but just looking at how her tags change is very enlightening. I wish there was a way to make a chart of which tags she uses, when she started or stopped using them, etc.

No. 455327

>>455170
People very, very rarely get AFOs for eds, if you really need ankle support, a normal ankle brace is recommended as it allows for movement but keeps the joint in line. But PT is the first and preferred treatment, as with anything with eds. Of course jaquie doesn’t have eds, so she doesn’t give a shit about what’s best or most effective.

No. 455331

>>455327
Not only is it ridiculous that she is getting AFOs but its ridiculous that they even did xrays to look at her knees. Xrays only show bone and tell you nothing about soft tissue, which is what is actually impacted in EDS.

No. 455341

>>455331
Plus, X-rays in eds almost always look normal, unless there’s a joint that is currently completely dislocated.

No. 455346

>>455327

And PT might take effort, so that's out. Even if it would make for some good vloggable moments

No. 455349

>>455331
I think she said they were looking for patellar femoral syndrome (I could be wrong- not going to watch today's vlog again). She says it's because of eds, but it's pretty common in a lot of people, and is diagnosed by X-ray. It's just a roughened cartilage surface from growth spurts or athletic activity or age (or about 20 other things including being a young female), and it's not fun, but it's not permanent or debilitating either.

No. 455351

>>455139

She mentioned about 5 times that the AFOs are custom so you know she’ll ask for pink.

No. 455353

>>455349

Yeah, mild blogging but I had that. It was diagnosed in PT and cured with PT (and time). I kind of thought it was a nonspecific term for knee pain with no other clear cause.

Even if her x-ray shows PFS, how will that change the treatment plan?

No. 455364

>>455170
I swear to god this cow would rather be immobilized in a full body brace than go to physical therapy and put in effort to actually get stronger. She makes me sick.

No. 455366

JanJan's blog for today. Somehow even more obnoxious than usual. She starts by saying she's to tired and weak to even throw Orion's ball. Proceeds on to bash her GI doctor's staff for most of it (I'm getting the impression that office has some sort of good cop/bad cop kinda thing going on with her), and ends with her saying how her stomach hurts but Paul is forcing her to eat.

No. 455367

>>455353
>>I kind of thought it was a nonspecific term for knee pain with no other clear cause.
It is. And it cannot be diagnosed with an X-ray.

No. 455370

File: 1514496759346.png (3.05 MB, 1242x2208, 62153364-1B39-489D-9558-6CF490…)

JanJan knows what she can eat, and doesn't need advice, y'all. Except, apparently she doesn't. Because she repeatedly says her stomach hurts Everytime she eats.

No. 455378

>>455368
She really thinks she is their sickest patient, doesn't she?

>>They didn't realize how severe I am

>>The doctor even came by on Cristmas
(she seems to think that makes her very special)

And now Paul, when his secretary said "normally it doesn't work that way" when he asked for the test to be scheduled without them seeing the doctor first replied "well, normally you aren't admitted to the hospital for four days over Christmas, but stuff happens". O FFS. People are in hospital during holidays ALL the fucking time. That doesn't make you special. Then they bitched about the staff wanting to check it with the doctor first. That is their job. Instead of bitching about it and telling them how sooper sick his poor wife is that she was in hospital over Christmas, he could have just said "I know this is not how you normally plan those appointments, but dr X told us to call you and scheduling it, could you maybe check with him and call us back? Thank you very much".

They also mentioned his last name during the video. I'm pretty sure he doesn't want to be featured in his entitled patients' vlog.

No. 455380

>>455378
They need to learn that you attract more bees with honey than vinegar. I think Jaquie has learned that. If JanJan ever wants her port, feeding tube, and personal Barbie car she needs to start being nice to these people.

No. 455427

In today's vlog around the 2:20 mark when she is trying to fix the wiper with her mom, you can hear her dad having a phone conversation about an account and the number "300,000"

No. 455563

>>455170

AFOs ? She doesn't even have foot drop! But I guess she'll take whatever she can get to make her look sicker. I guarantee she'll wear them for a few videos before getting bored of them (and will blame it on her sensory issues).

No. 455576

>>455563

I was going to comment on this. She certainly doesn’t walk like a person who has foot drop!

No. 455577

>>455576

Nope, she walks perfectly normally! As if there's not really anything wrong with her.

No. 455585

>>455563
Don't mention that. Foot drop will be the next thing she gets to try and justify her AFOs.

No. 455588

>>455370
She’s not exactly starving to death kek.

No. 455595

>>455351
That’s not special at all, all AFOs are custom. But they’re not indicated for EDS at all.

No. 455605

Yeah… no drop foot, and that's fairly obvious. Unless, she decided to show off some… difficulty walking and ended up mimicking drop foot by dragging/slapping, because so weak from EDS, can't pick my feet up y'all.

No. 455608

>>455427
Wow you are right. I'm not sure what's worse. Jaquie laughing hysterically at her poor mother trying to fix the car or her choice to vlog and talk loudly over what seemed to be an important business conversation in the back seat. She is such a selfish intolerable cow.

No. 455616

>>455608
Spoiled rich girl strikes again. She wouldn’t be quite so much of a munchie without the cash to pay for it all. Unfortunately, it’s also made her a huge bitch.

No. 455622

>>455585
She already is. Supposedly the brace evaluation tech told her she has foot drop.

No. 455654

>>455622
She most definitely does not have foot drop. I’ve seen her walk plenty of times in plenty of vlogs perfectly fine. None of her conditions even fit having foot drop anyways. I’m 130% sure that she faked it in front of him like she probably fakes many of her symptoms in front of doctors. It’s not hard to do. We could all walk differently if we tried. She’s a fucking joke.

No. 455662

>>455654
I agree. I YT'd foot drop in general and after watching people walk that do have it, there is NO effing way she has it. I noticed when she was talking about it she did her side glance away from the camera "play dumb" routine. She is seriously mentally ill.

No. 455668

Anyone know when she got the walker? I went and looked at her first ever video and she's like a completely different person. It's only been a year since all this started it's crazy

No. 455688

>>455662
Especially since the majority of people who actually have eds aren’t decked out in braces all over their bodies. Maybe one or two joints, even intermittently, but anyone with eds knows that constant bracing can make joints worse. The people with eds that have every joint braced all the time are usually OTT themselves, as it’s pretty rare for someone to have that severe of a problem in that many joints. Not that that matters at all in her case though, since she’s been straight-up told she doesn’t have eds. Also, if her knees and ankles are that bad, how is she able to crouch on the floor and get up multiple times a day?

No. 455697

So what kind of doctor is ok with a FITTER diagnosing their patient and asking for a script for another brace?

If fitter is saying patients needs more brace it could be legit, after all they are doing custom bracing every day, but some of it may also be "oooh… more codes to claim!" So, a bit sketchy IMO.

Also, doctors and clinical staff in generally watch patients walk, even when it's not an official neuro exam. It's easy to catch malingering that way. Tell the med assistant/nurse that brings the patient into exam room to watch gait, and record inconsistencies.

So drop foot? Sure…

No. 455754

>>455697

This was my thought too. If a chief complaint is her is falling and foot drop is super obvious, why wouldn’t it have been caught sooner by one of the 15 doctors she complains to on a weekly basis?

No. 455757

>>455697
Except this is jaquie’s doctor. Who somehow hasn’t caught on that she doesn’t have eds, or pots, or mcas, or GP, or any of the other illnesses she claims but very obviously doesn’t have. She’s found herself a real moron, so I doubt how she walks would even register as something he was supposed to look at. Jaquie looks at her doctor less as a medical professional and more of her personal prescription pad.

No. 455777

Hanger clinic is gonna laugh her out the door or they should. I cannot believe she munchied her way into an appointment with them.

No. 455778

I noticed on instagram her POTS doctor picture has a little patient wallchart that says something about abdominal pain and dirrahea. So her POTS is most likely a primary care doc as many have mentioned, because neither a cardiologist or a neurologist would have poop related wallchart in the exam room.

POTs doctor is also the one prescribing Benadryl and I think the IV zofran. Allergist probably saw through the Benadryl aborting anaphylaxis bs and thus that 'bad' appointment.

No. 455816

I liked how she said they were only going to talk about braces for her most problematic joints- then she proceeded to list every joint there is except your ribs.

No. 455824

>>455778
To add to my previous post…

Also noticed, same chair/floor/cabinet as POTS doctor. A poster on a C-Diff vaccine trial. More poop stuff.

In the same insta post, is discussion about IVIG and swithing to Kate Farms… but she doesn't call this doc her POTS doc, but another specialist.

I guess it is possible multiple specialties can share the same clinic space, or one PCP she's got wrapped around her finger.

No. 455828

>>455816

Ribs/sternum can be problematic… I guess I shouldn't mention the name of that syndrome.

No. 455849

>>455824
I think she’s got one pcp that does everything but gi, but helps convince the gi to give jaquie whatever she asks for. Or maybe her pcp recommended the gi doctor, and they use similar methods of inappropriately diagnosing and prescribing things. Or money-grubbing jaquie found two money-grubbing doctors who go along with unnecessary diagnoses and procedures because they get big pay outs from either jaquie’s insurance or daddy’s credit card (or both).

No. 455870

At the 4:40 mark in this video she talks about how her doctor is sending her for another opinion with another allergist/immunologist at the University of Florida. I'm wondering what the point of that is. Are we going to get another video about how horrible the appointment was and how she trusts her doctor? I wonder if her doctor realizes he got in to deep in her Munchidom and wants someone else to do his dirty work.

No. 455936

>>455870
She said it was specifically for her IVIG reactions. She's gotten bored with her commute to and from the infusion center - or babe and mom have - so she's switching back to home IVIG. But since her whole reason for going to the infusion center was her alleged allergic reactions, what's a munchie to do? She has to come up with a miracle solution to the allergy situation. I hope this allergist tells her to remove her port too and I hope they tell her PCP she's getting high on IV benadryl. Not that it'll make a difference but one can hope.

No. 455937

>>455777
Pretty sure that's the place she went to and the dude gave her another brace on top of the six zillion her doctor wrote a script for…

No. 455963

Idk if anyone has brought this up yet but the part in today's vlog where she sat there on her ass laughing at her mother who was struggling to put her windshield wiper back on pissed me off so much. Her mom did not look amused AT ALL and even her dad wasn't totally into it. What a brat.
Sagerage

No. 455965

>>455936
Her ivig reactions that are “so severe” that she does it outpatient when it’s fairly standard to be inpatient for each session kek. It feels like she’s just passed from specialist to specialist because no one wants to deal with her malingering (even though they’ll happily take her money). Even when she goes to the er they stick her in the hallway.

No. 455967

>>455963
She’s a selfish bitch who doesn’t care about anyone else except what they can do for or give to her.

No. 456006

>>455963
Just so you know, you didn't actually sage your post. You have to write sage in the email field to sage correctly.

But I agree, it was really bad mannered of her. She's such a brat.

No. 456070

>>455870
She said something like, "My doctor thinks it's a good idea that…" and that always seems like code for Jaquie asked and the doctor agreed.

No. 456143

>>455259
I did something like that. Two series: I started out with how she got her port and the IV saline infusions, and then I went through Harlows account (she had that earlier then her own) from the beginning and the onset of symptoms.

You can find the IV saline saga here >>407607
And the other one here >>414965

(I am sorry to self-promote my series, but as someone asked about it.. O wait, I am not sorry. It was a LOT of work, I earned it, kek. Besides, if someone is interested in doing something like this, they don't have to do what I did again. Just start at the end of my last series, there is plenty more to post about. I'm not donating (much) more of my time to the Jaquie cause, so if someone else wants to: good luck!)

No. 456203

>>452423

>normal colonscopy means no chrons or colitis honey.


Normal colonoscopy means no colitis, but it definitely doesn't rule out Crohn's, which can affect any part of the digestive system but most commonly the small intestine, which can't be viewed with a colonoscopy. I have bad Crohn's and every colonoscopy I've ever had has been normal, but upper GI scans (capsule endoscopy, MRI etc) always show a disaster in my small intestine.

If she's had normal endoscopy results for the rest of the GI system as well, though, then yeah it's not Crohn's.

No. 456219

>>455688

exactly anon! With EDS you brace/splint after an injury or if you're walking on a prone joint. Continual bracing will only make your joints worse, not that there's anything wrong with Jaquies in the first place.

No. 456222

>>456203
She's had an upper scope as well. Although of coure that only goes as far as the duodenum. Hence the scheduled pill cam. The thing is that her doctor is apparently thinking about Crohns based on her normal colonoscopy, because her colon seemed to become irritated when he touched it with the scope? I'm not sure what that means, any medfags out there? I think the anon who said that it means that IF she has Crohns, it is such a mild case that she should be pretty much asymptomatic. It definitely doesn't explain why she can't eat or why she has diarrhea every day.

BTW, anyone know if she is still on laxatives? She was trying to get some kind of special and very expensive med for obstipation covered (anyone have an idea which med that could be?); is she still working on that? Because unless of course she has paradoxical diarrhea, I think they'd better skip that. Even if she would have alternating constipation and diarrhea (again: textbook IBS) something that would work on both seems to be a better choice. But metamucil is a common drug and I suppose that in the US as well, you don't need script for that? Then it's very possible insurance doesn't cover it. It's very cheap though, but of course that means that Janiece cannot use it. She's obviously too special for that.

I find it very odd however that she hasn't scheduled her pelvic floor PT yet. Her doc said even after her hospitalisation that the more they'd get her stool under control, the less pain she'll have. So.. they already said physio would pretty much be cure, yet she doesn't seem to be in any hurry to take care of that.
I also don't understand if she has paradoxical diarrhea or if she went from obstipation to diarrhea or if it alternates. Not sure if I want to know, but it seems odd that Janiece doesn't seem to know it as well.

Several people have commented that maybe she should be on a diet because of her cholecystectomy. That most people cannot get away with eating fatty foods after that. And some people told her their own experiences with that and how their doctor first said they could eat anything they wanted but they discovered later that they couldn't. And every single time, Janiece answers to say that that isn't true and that her doctor said she didn't need to be on a diet and that she trusts her doctor. OK.. if I was in bad abdominal pain to the point of not being able to eat, basically being bedridden, being hospitalized and taking painkillers for it, I would definitely TRY a diet if I knew that some people in my situation found relief with it. It's not like it's a very complicated diet and it's extremely easy to just try it.

So she either isn't really in so much pain, or she just doesn't want to get better. Or - most likely - both. I'm pretty sure she didn't mention diarrhea before her surgery. In fact, she had obstipation for a while after her surgery and then suddenly started to complain about diarrhea. It's also pretty much textbook IBS, but of course that's too mundane for Janiece to have.

No. 456237

>>456219
She made it look as if doctors disagree wether use if braces and splints is a good idea in EDS. But they don't. EVERY DOCTOR who is not an idiot agrees that generally it's a bad idea and you should only use them in very specific situations. Like on a joint that is so unstable it will dislocate with normal movement, because that will only stretch the tissues more and make things worse if you don't use some kind of support. Basically, only to prevent damage AND after proper physio (which means doing daily exercises for at least a few months) has failed. And even then, physio should continue after you start using a brace. Of course doctors could disagree about when a patient is at that point where NOT using a brace will actually be worse, but ALL doctors agree that you do NOT prescribe them for pain management. The only thing that she has mentioned that sounds semi-decent use of a brace is using a neck brace during long car drives. And in any way, prescribing hip, knee, neck AND wrist braces all in one go is completely crazy. She never even mentioned knee or wrist pain before. Hip pain she did, but it's almost impossible to properly brace a hip. The people I know who actually have hip subluxations do not use a brace. I know someone who tried them, but found they were very uncomfortable and did nothing to keep her hip stable.

Jaquie also has a very odd choice of shoes for someone who supposedly needs AFO's. I'd say start with a decent shoe that supports your ankle. Though the things she showed are not really AFO's; they look more like an anti-dropfoot orthosis. Except that we'ver never seen her walk like someone with a drop foot. She may very well have weak flexors, but if that's the case she should be in physio for that. If that somehow doesn't work, then they could ask a neurologist and/or a physiatrist to assess her further. It should never be the tech fitting you for braces to suggest something like that.

No. 456318

>>456237

Re: shoes

One of the first things I was told when I was dIgnosed with EDS was what kinds of shoes to wear for optimum ankle support/injury prevention. But of course,she wasn't diagnosed with EDS, was she.

No. 456333

File: 1514567506598.png (5.15 MB, 2208x1242, 58CDC0B8-D1AC-40A7-9410-57225C…)

Today we learn Paul and Janiece's last name

No. 456337

File: 1514567675165.png (600.82 KB, 861x572, platenumber.png)

>>456333
We learned their license plate number a while ago.

No. 456338

File: 1514567709077.png (2.09 MB, 1242x2208, 6BA62B35-EB8F-4E36-9BE8-4EBB9F…)

We learn this while he's out buying her a $700 camera so she can vlog more easily. She seems super grateful and excited about this. I have to hand it to Paul. He's an awesome wrapper.

No. 456350

>>456333
5 Minutes of digging have provided a (maybe/speculative) report of Janiece trying to scam someone. Interesting but I won't post a link because this website has her address on it and someone doxxed her.

Quote from the website "This buyer try to scam me: want to return a product that once unsealed and used we can not. After 3 month and lost her ebay case she charge back with her credit card compagny stating she never receive it!!

Beware, she is a fraudulent one!!!"

No. 456355

Jaquie's cousins seem so normal and fun.

No. 456358

>>456355
If anyone is interested, simply paste the quote into Google. Pops right up.

No. 456368

>>456350
Did some digging and yes, that's her. I don't know if it's against the rules to post the links to prove it, though.

No. 456377

During today's vlog, Jaquie's cousin tells us that she would sometimes fall asleep when she got into first place in Mario Kart when they were kids. Credit to cataplexy claims? Maybe. Excuse for everything else? No.

No. 456411

Doxing is not allowed. Cut that shit out.

No. 456414

>>456377

also says she used to dress up and pretend to be a doge everyday until she was 12. until 12? I'm not sure what that's a point for other than being immature for her age and having parents who are indulgent.

No. 456415

So one of Jaq's cousins works in LA in the film industry, presumably a fairly fast-paced and social lifestyle. The other is getting his master's degree from Oxford in the philosophy of physics. 1) How tf is Jaq such a dud and 2) How do these people put up with her, family be damned.

No. 456421

>>456377

did we watch the same vlog? I didn't hear that…

No. 456431

>>456414
I did that, too. With a friend. Sat back on my heels and hopped around while holding hands. We alternated being the dog. Even in school. We were five, though..

No. 456462

>>456431

So in other words, exactly not the same thing at all?

No. 456468

File: 1514578571451.jpg (446.34 KB, 1078x1523, Screenshot_20171229-141252.jpg)

So Janiece got an associates from Le Cordon Bleu, and was working as a pastry chef at Disney. WHY WOULD SHE GIVE THAT UP? I understand someone who has the illness she claims giving that up, baking on that scale is hard, but she doesn't have anything that would prevent her from working!!

No. 456484

One thing I'm wondering if Jacquie will mention is the ongoing IV bag shortage. Hospitals are having nurses push some meds by hand slowly and are moving to oral meds when possible. I also wonder if it will impact her home health company. For how long it's been going on, I'm a little surprised she hasn't mentioned it.

sage for spec

No. 456492

>>456484

Even if it's affecting her, I bet she'll pretend it isn't, because she has to keep up the pretence of being the most seriously ill

No. 456497

File: 1514581834355.jpg (394.5 KB, 1080x1120, Screenshot_20171229-150152.jpg)

This isn't really that milky, but I had to share. Janice's highschool boyfriend killed his mother. His mother had warned Janice that he was dangerous.

Picture of the two of them. Sage

No. 456505

File: 1514582402645.jpg (Spoiler Image,451.26 KB, 1072x1503, Screenshot_20171229-151909.jpg)

>>456497
In case anyone is interested.

Sage

No. 456513

>>456505
That I do feel sorry about for her. Must be a very traumatic experience.

No. 456559

>>456513
That's my thought. This happened in 2015, maybe it was triggering for her?

No. 456589

>>455215

They’ll be pink zebra stripes… you know to “spread awareness” for her sooper severe EDS.

No. 456597

>>456462
In other words, very different indeed. I thought I was childish for doing that, but twelve? And asking others to pet you, licking their hands and stuff? That's a whole different level of crazy.

No. 456614

>>456597
Saging, but to your defence I don't see how five year olds acting like five year olds in your case is "childish", because you WERE children not nearly teenagers.

No. 456672

>>456431

And very rare (a zebra!) except for all the munchies on YouTube and Instagram

No. 456679

Around 9:12 "after you got the narcolepsy you would fall asleep whenever you got first place"

Odd way of phrasing it, you don't "get" narcolepsy like you do the flu, but just might be his syntax and diction

No. 456685

>>456679
And you would think that would be "before we knew you had the narcolepsy." Like, that was a symptom that prompted the investigation, and then got better with treatment. Not something that started now that you have a diagnosis to support that behavior.

No. 456689

>>456685

That was my thinking as well, seems like she has a long standing history of developing the symptoms after getting a diagnosis.

No. 456745

File: 1514594246225.png (9.75 MB, 2208x1242, C55C5814-5F0F-4CEF-BAE4-5082AF…)

>>455662

Harlow needs braces more than Bionic Barbie does.

Jaquie is a horrible faker starting with “faker face” followed by her OTT “Noooooooo pain! no pain!” ketamine post-op. And now we have the fake foot drop… also faking ignorance of not knowing what Ativan and dilaudid are. Oh oh! One of my favorites is her hideous “proposal” video that was so obviously staged. Wait, there’s mooore! We then have her ranch dressing retrieving service dog reaction.

But Janiece takes the cake on this one. She and Paul so staged the “surprise” Canon G7-X Mark II. Did she even say thank you?

No. 456820

>>456421
9:05- cousin Dan says it after she says how he always beat her at Mario Kart

No. 456824

File: 1514614613502.png (3.84 MB, 1242x2208, 23E382A7-2A53-4B20-ADAD-5FE2BF…)

4 upvotes and not deleted yet. Wonder if any of her fans know what a furry is

No. 456825

File: 1514614629788.jpeg (651.44 KB, 1228x2131, 88E1EE28-2CAB-46BD-98CF-F0EF3C…)

There’s something off about Jaq’s MRI details. They would have had to de-access her port and re-access it with an MRI-safe power-injection safe Huber needle set. Google “Bard PowerLoc Safety Infusion Set” to see one. I looked into it more and found that there are a few reasons that you need an MRI-safe needle…because standard Huber needles are some type of metal for the actual needle part and could cause bodily injury in the magnetic field. It seems that it can cause MRI interference skewing the data. You know Jaquie would have overexplained the fact that they had to use a sooper speshul port needle because she jumps at telling us about all the speshul things. And you KNOW her disdain for peripheral IVs so we would have surely heard had they decided to do that for the contrast. She is such a little bitch about MRIs - remember back to her fake meningitis bit where they had to stop it halfway through because the noise was too much and she was in too much severe pain to continue. She likely knew if she finished the MRI they’d figure out how full of shit she actually is. So in true Jaquie style she made them stop the MRI because she just couldn’t go on… much like family dinner… she just couldn’t finish and had to leave, making her cousin drive the ambulance back home for her.

Also at family dinner, there were just so many plates for her to “nibble” off of. Yes, Jaq… I definitely ordered my food so you could get your grubby little MRSA hands all over it. F to the no. And is she seriously wearing noise cancelling headgear around her family?
.
In other news, Bionic Barbie’s stunt double Spoonielife_Demanda, is admitted waiting for that “speshully made just for me TPN” but is so upset because the private room bed that her doctor “set aside just for her” wasn’t open yet. Poor doll, probably had to wait like the rest of the fucking world to get an admit room. Oh and guess what, guys… the Walmart children’s leggings were too big for her. Children’s leggings are one of the requirements for the Munchie Bunch membership. It’s right up there with the golden retriever trick dog requirement.

This style of sick person fake sleeping photo is so stupid… “Here mom, take a picture of me all emo with my eyes closed like I’m asleep looking pathetic so I can make it all dramalike in black and white.” Then she posts it with 37 hashtags so she can get all of the asspats. But she’s so sick, guys.

No. 456827

>>456505
This is so profoundly sad. Honestly, the more I hear about Janiece's life prior to Youtube the more I feel for her but I can never bring myself to like her because sadly it seems like it's all just made her an awful person. I wonder if she ever got therapy to deal with all this shit? Probably not since her mom thinks praying will cure everything.

No. 456829

>>456825
Jaquie definitely has tricks to keep her bullshit from being found out. And Amanda’s a whiny munchie cunt who thinks she’s better (sicker) than everyone else, tho I doubt she’s sick at all.

No. 456833

>>456484
She already mentioned receiving saline bags that looked different to the ones she normally gets. People in the comments said that was because of the shortage as the bags had to be imported or something.

But given she got an extra saline order on IVIG week, I think we can assume, like with everything, the saline shortage is something that happens to other people, not miss moneybags.

No. 456838

File: 1514615257715.jpeg (1.82 MB, 1242x2128, 54586CDA-89F9-45A7-8A49-39D2F9…)

This is Amada’s description on her “kid leggings are too big for me” Instagram video. She even copies Jaquie in her posting style, hashtags, etc. I still can’t believe that she bought the identical adjustable bed Jaquie did the day after Jaquie posted about hers. Also, she tags the hospital and burns them… What an asshole.

This whole “Spoonie Community” full of Jaquie lovers is so fucked up. It’s just a competition between bratty girls to out-sick each other. It’s insane how entitled they are - from Jaquie’s “just get another doctor” and tantrum until some poor unsuspecting doctor says what you want to hear… to Janeice’s “you’ll see me YESTERDAY because godammit I’m in pains with my issues and need more testings now!” IBS isn’t good enough… to Amanda’s downward spiral from healthy Disney employee and world traveler to malingering bitch that no doctors want to touch. All of this Jaquie idolization is gross and Jaq is probably eating it up… especially considering she can’t eat real food.

Just a side thought… Babe sure hasn’t been around much lately. He’s either begging for OT to avoid his crazy wife or maybe it’s to foot the bill for the shiny new TV and all of Jaq’s shiny new pink zebra print plate mail. We also haven’t heard anything about her butt boil in days. It’s a Christmas miracle, y’all. She’s all better and not toting her wheelchair cushion around to all of the places that make her bum hurt.

No. 456848

>>456827

I was just watching her “chronic illness video” and apparently her REM dream re-enactments are violent. She re-enacts her most violent nightmares and apparently she tried to kill their little white dog. The dog can’t sleep on their bed anymore and they also have to sleep with pillows between her and Paul because she’s tried to hurt him. That has to be some serious trauma from her past coming up in her dreams. She talks about it around the 35 minute mark in this video. The whole video is so cringey that unless you enjoy torture… skip ahead.

No. 456873

>>456825

A little blogging, power leveling or whatever it is, but I work at a hospital and one of my job responsibilities is bed management. I assign literally every patient admitted what bed they're going to. Doctors can promise patients they're saving them rooms however much they want. For a few very time specific clinical trials we actually save rooms, otherwise it's the patients that are there at the time that get priority over anyone we're thinking might maybe show up from home later.

No. 456874

I don't know what compelled me to watch this video, since I don't even have a dog, but look at how full of energy and and to speak understandably Janiece is when she's not actively pretending to be sick

No. 456952

>>455662
Also EDS would not cause foot drop. Unless you have a neurological condition or something like cerebral palsy, it's usually caused by muscle loss.
She could do PT but no no, let's get braces

No. 456955

>>456952
If she has foot drop, she has it very mild, almost as if she doesn't have it at all… Shock horror.

No. 456973

>>456825

Now that both Aubrey and Amanda are on TPN, how long will it take for Jaquie to have another emergency with her tube?

Also: WHY does Amanda get TPN? With Aubrey I can sort of understand it: she needs surgery and she has cancer, so doctors will probably be a bit more accomodating even if the cause for her not tolerating her feeds isn't clear. But Amanda? I don't follow her, but what does she claim exactly? She writes nausea and vomiting, but unless that's related to her feeds, TPN isn't going to help with that. J-feeds solve the nutrition problem with GP, but not necessarily the nausea. She'll need anti emetics for that, or if it's very severe a farrell bag to drain her stomach.

No. 456980

>>456973
I looked Amanda up. It seems her nausea and vomiting got worse after her tube change. She says somewhere that she is running her feeds, but at a lower rate. Also she is angry one time for the ER not checking the placement of the tube because she "believes" the tube has migrated back into her stomach. Ehm.. if you have GP and you are running feeds into your stomach instead of your intestines, you KNOW it. You don't just suspect it, but you will know it for sure.

No. 456982

File: 1514630240491.jpg (157.31 KB, 646x1164, Us9aBex.jpg)

>>456980
The post where she discusses this.

No. 456987

>>456980
A week ago, she was in ER and she said she believed her feeding tube had traveled back into her stomach. Five days later, she is back with a "possibly kinked" feeding tube. And now she starting TPN?? I don't get it. She never posted about it actually being in her stomach or kinked. With how she whines about not being taken seriously, I'm pretty sure she would post about it if it turned out she was right, so I guess we can assume nothing is actually wrong with her tube. So also apparently can tolerate her feeds, but at a slower rate. She also eats at least some food orally. Also, the problems with her tube are quite recent, they started after the tube change two weeks ago.

So.. why again does she need TPN?

(Just thought that maybe I should have posted this in the general spoonie thread, but as I already posted something about her I will post this one as well as it's kind of a follow up. After this I'll stop talking about her.)

No. 457004

>>456987
I have some general nutrition knowledge, and I know if she's on feeds, they are nutritionally complete so the only way she'd have those lows is if she stopped running her feeds and quite literally starved herself for a very long time. The low protein level is a very major pointer that she is starving herself because protein deficiencies are unheard of, especially if you're on supplemental feeds which are nutritionally complete. It's all very suspicious. TPN seems to be the biggest munchie trophy of all, and everything points towards an eating disorder in this girl as well, especially the bragging about children's tights not fitting. Children's clothing comes in all sizes. An average sized adult would quite easily fit into large kids clothing. It's nothing special. These cows are so intolerable.

No. 457062

>>456825
>>457004
Has anyone else looked at her Instagram far into the past? I think it definitely points to ED. She used to be quite.. I’ll say plump. And might I add also no indications of any illness, living a completely normal life and then it’s like bam she starts in on the copying Jaquie show. After that she starts losing weight at a rapid rate. I’ll try to find photos.

No. 457067

File: 1514644048082.jpeg (450.81 KB, 1242x1237, 2140E858-3326-4DA3-B96A-3B1169…)


No. 457068

File: 1514644060909.jpeg (792.6 KB, 1242x1446, 181041E0-E673-4C07-8CA3-79BF61…)


No. 457096

>>456505
While I am no Janiece "nurses are rubbish, I am the sickest person that ever lived" fan, this is truly horrible. Her trauma should not be dismissed.

No. 457112

File: 1514647609075.jpeg (563.38 KB, 1232x2015, 01517371-AD53-4DC3-BC99-D7A098…)

>>457062

Anon! I almost posted the same exact suspicions. I spent some time on her IG and went back pretty far… one day it’s BAM I have a service dog named Sadie (which she admits to it being her best friend and she doesn’t care if that’s lame) who is a trick dog just like the rest of the Florida chapter of the Munchie Club.

Seriously though… it’s so apparent that she’s got a severe ED. The way she looks in the mirror in her most recent IG video, the food pics, thigh gap obsession, etc. And now that I think about it she talked about needing some extensive dental work… maybe because she’s puking the enamel right off of them? This is one of her plumper pics… and now she’s “starving to death” guys!!!!

These doctors jump to scary final measures WAY TOO FAST. It’s actually frightening that there are so many who just bow down to these munchie snatchcrackers.

No. 457115

Can we designate the next thread "Suspicious Spoonies Of Sunny Florida With Golden Retrievers"?

No. 457120

>>456689

Not even after "getting a diagnosis", after reading about an illness someone has helpfully suggested to her in comments! She'd never even heard of POTS before someone mentioned it on Instagram.

No. 457123

>>456824

kek "I saw you roll your eyes once or twice"

More shitty behaviour she'll probably explain away with "muh autisms".

No. 457159

In today’s episode of As the Custom Lightweight Wheelchair Wheels Turn, Jaq sits in a dark corner creepily filming her family as they are all social and interacting. She chose to sit in the walker or the Barbie Car (can’t tell which) and mope. The family starts to play dominoes which is much too difficult for Little Miss Autism. Then she makes her family turn the music off because she can’t hack it with talking AND music.

Just another boring POS vlog brought to you by the overflowing phat loot from the gullible AF patrons. Like why did she even bother? Ugh.

No. 457161

>>457159
Kek, I think that needs to be the next thread title…
"As the Custom Lightweight Wheelchair Wheels Turn"

No. 457166

Is it just me or is it weird how often these Gastroparesis munchies claim to vomit? Generally speaking, most GP patients work hard to eat it just enough that they DON’T vomit cause it’s rough on the body and a serious setback. And yet Jaquie and following always seem to be claiming this “violent vomitting” episodes as if it’s a fact of GP life, but it’s really not. Also even with severe GP, if you have a tube to drain, that really shouldn’t be a problem for you and any vomitting is likely either induced or related to your own self deciding to eat steak and potatoes on a half functioning stomach.

It’s just that in my experience most people with legit GP almost never vomit. It’s tough in the body and also not a common problem seeing as GP is a slow stomach food is more likely to sit there for days making you feel sick than come up all the time. How the fuck is a paralyzed stomach going to puke so much, eh???

No. 457168

>>457166

To be fair, I have heard that some people with severe GP do vomit/bring up acid despite being on 24-7 draining. Not that I think J has anything other than mild GP

No. 457169

>>457166
Way way back before the GP, Jaq says she was diagnosed with the super rare Cyclic Vomiting Syndrome. Which honestly makes more sense for her symptoms than GP.

Once she got the GP idea though, she sorta dropped the CVS.

No. 457179

>>457166
Well, like the other anon said, it is possible to vomit with GP even if you're not eating. However, I DO think it is odd that every person with GP we see on social media seems to vomit a LOT. Not everyone with GP vomits. It's just a fact of life that some people vomit more easily than others. Some people vomit if they are nervous and are hardly even nauseous when they do, and others can feel nauseous and never vomit but feel so awful they wish they could vomit and let it all out. It's the same with GP: some patients vomit on almost a daily basis, some only rarely, and some never do despite feeling very sick.

I think the reason why Instagram makes it seem like vomiting always happens in GP is the fact that so many people use it to cover up their eating disorder. They may have GP induced by their ED, or they don't have it or have a stomach that's only barely slower than average (like Jaquie) and they all blame their GP for their frequent vomiting, dental problems, and of course the fact that they can only eat what suits them.

No. 457197

Did anyone laugh really hard during her recent hair routine video where she explains for 10 minutes a hair routine that is exhausting even to listen to???? That’s more than I do for my hair that by the way looks much more alive than hers just saying lol. I also couldn’t contain laughter when she said “I can only blow dry for 30 seconds at a time due to my sensory processing disorder”. I just pictured her drying piece, turning it off, and then doing it for 30 more seconds. I mean cmon how fucking dramatic can one be?

No. 457198

I used to hate watch Jaquie daily but it’s become too tedious, even if I have it in the background while doing something else. She’s def become more boring.

No. 457200

>>457197

I wonder if she wears her noise canceling headgear when she blow dries. Also, she’s the only person I’ve ever seen pack both a hairdryer and flat iron… to the fucking hospital.

No. 457218

>>457197
Ugh I have multiple relatives with Asperger's. Some are fine with blow drying (my younger brother has long hair which he blow dries but has long as he dislikes getting it cut). The ones that aren't ok with blow drying let their hair air dry! That is in the UK, even in winter. None of them (even the ones with obsessive routines) blow dry for 30 seconds on and off with THAT MUCH HAIR!
They also have a whole range of options for coping with hair salons including not going, going to one which isn't English (they understand enough to know how to cut the hair but there will be no small talk), having someone come to the house that knows they will get a lecture on medieval reenactment etc. etc.
I know all people with autism are different but Jackie is just ridiculous. Also her ability to be consistently organised (manage her social media) even in the face of unpredictable routines/ symptoms just doesn't fit with autism, whatever the IQ or speech ability.

No. 457229

>>457159
I can’t believe she asked them to turn the music off at a festive, happy family gathering. No one is allowed to have fun because her ASD? That’s just too OTT. I have aspergers and I wouldn’t even think of doing that. It’s my job to develop skills to handle these situations. Why should everyone else have to cater to me? That’s just not how real life works.

No. 457285

>>457229
That was actually one thing I did not have a problem with. My brother has ASD, and is extremely sensitive to sounds. We all know that we can't just have music in the background if he is around. Then again, he wouldn't be present if there were so many people around, because that in and of itself is too much noise and too much stimuli for him.

If it would have been - I don't know, a college party or something, it would have been awful to expect hem to cater to her in that context. But with her own family, I personally think it's not that big of a deal to ask them to turn the music either down or completely off. But that may be because I'm so used to it, I don't know. Maybe other people DO perceive things like that as a dickish thing to ask.

No. 457323

>>456973
Also a need to mention that there is no soy, none in TPN. Also, it is no longer specifically made for each patient unless they have a clinical requirement. They are standard issue bags with extra additives. For which 98% of hospitals order them at the same time, not from emergency rooms (in the U.S. anyway)….

No. 457324

>>457179
Plus, these munchies all have GJ tubes, the whole point of which is to feed through the j port but vent air or drain off acid and bile to prevent vomiting, which is effective for most people with severe GP. If your GP is managed well, you tend to not vomit that often. Most of these munchies definitely claim GP to cover eating disorders, my personal cow has been in treatment for an ed but continues to claim GP to the point of being on TPN (their story doesn’t add up at all). Jaquie, Amanda, Chloe, Aubrey, and Paige all fit in that category, and I know there’s at least a few more that I can’t think of at the moment. Eating disorders are super common, and don’t get the attention physical illnesses do, so they claim sooper serious GP to get their asspats, special toobz and TPN now, and an excuse to fuck with their eating, weight, and behaviors without having to take any accountability. Anyone with true GP and no eating disorders isn’t going around bragging how much weight they lost and how they can fit in kids clothes, nor are they getting constant “kinks” and tube blockages, or running their tubes at unrealistic rates, or refusing to even try to use their tube appropriately and begging for TPN instead. The whole point of having a feeding tube for GP is to be able to live a somewhat normal life, which these cows are not remotely doing or caring about at all.

No. 457326

>>457323
Interesting, since all our munchies claim to get their “specific to me” TPN made up. I hope they all enjoy their line infections and liver damage.

No. 457338

>>457326

I mean, it's specific to them in the sense that they add the ordered amount to the base formula of each electrolyte. Like base formula plus 20 mEq potassium chloride. Not that special. It's like the selection of meds I take are specific to me because of the combo I take being prescribed for me.

There's a major amino acid shortage going on right now, too, effecting tpn production. Shame to have people that don't need it using up precious resources.

No. 457378

File: 1514667135249.png (4.59 MB, 2048x1536, IMG_0012.PNG)

So, I found a internist in Boca Ranton that offers saline therapy for POTS.

Search for Santa Maria Medicine

No. 457395

File: 1514668324127.png (508.1 KB, 1242x2208, D47F3442-0AE9-4AE4-B106-9A51C6…)

>>457378
Kek. And look at his specialties.

No. 457403

File: 1514668802323.png (1.27 MB, 1334x750, IMG_5542.PNG)

>>457378
Great find, anon!

At the end of today's vlog Judd was completely over it. Jaquie is talking about dominos but Judd cuts her off and rolls his eyes. He spaces out when she starts talking about her pain level and her sad, sad day of sleeping in bed instead of spending time with her family. He is completely done with her and her bullshit

No. 457415

File: 1514670272938.jpg (144.92 KB, 1336x682, doctor shopping.jpg)

Just going to leave this little tidbit here…

No. 457416

>>457378
dysautonomia, gastroparesis and MCAS are all linked so that makes sense. But I wouldn't trust a non cardiologist or neurologist for POTS as much as I wouldn't trust a non GI doc for gastroparesis.

No. 457420

Yeah, I googled the phrase "POTS doctor primary care in FL" for shits and giggles, and there it was…

Whenever a doc self advertise a very narrow range of specialized care/diagnoses, my spidery senses go off.

I see some super subspecialists and none of them advertise with a personal website that seem so eager.

Sage for blogging

No. 457424

>>457415
Do we actually know this is J's doc? (Chances are, of course.) I can't remember if she actually mentions where he practices. Just that he is - I think - two hours drive away? Would that check out, from where she lives?

>>457420
I agree it's strange. Maybe not the disorders he specializes per se, but definitely the tone of that website is off.

No. 457428

>>457420
The wonders of privatised medicine!

No. 457435

>>457424
She never mentions where geographically, so we'll never know. But her POTs doc seems to be further than others?

No. 457444

>>457424

Boca Raton and Tampa are about 3 hrs or so apart. Assuming someone driving an average of 60mph.

No. 457458

File: 1514674260447.png (684.67 KB, 1242x2208, 2B604394-5870-44CD-B235-8B4808…)

That office is a concierge office. You pay an annual fee to be a patient there to get things like no waiting, longer appointments, and 24/7 access to his cell phone.

No. 457459

>>457395
It sounds suspiciously like “we take random things that probably aren’t symptoms of anything and tie them together to give you a group of uncommon illnesses that now we can overtreat and get a shit ton of money from you and your insurance”. And yes, those things are all connected in the eds-pots-mcas triad, but are treated by different branches of medicine. No one else treats them all, even within the same office. Eds differs, but pots should definitely be a neurologist or cardiologist, GP should be a gi, and mcas should be an allergist. This place just sounds like a scam to me.

No. 457462

>>457458
Extra suspicious. Also annoying, because it highlights just how much easier medical is in the us if you’re rich.

No. 457501

>>457459
A GP is more than capable of treating pots long term in my opinion. I think specialists should just be there to rule out more serious things, then hand patients back to their gp to be looked after, especially something as benign as pots. For mcas and gastroparesis, I can see more reasoning behind needing a long term specialist, though.

>>457458
I wouldn't trust this place- it feels cult-like in a very weird way.

No. 457513

I'm getting so tired of Jaquie and the other GP munchies. Especially when they claim about the constant vomiting. All of them seem to say they vomit constantly and violently.

I have bad GP and I don't vomit that much in comparison. Most of the other non munchies who have GP that I speak to are like me - they have food basically rot away for days, leading to the lovely sulphur burps/breath. And vomiting that if it still refuses to budge. << that is the "classic gp" sickness that I've heard from other non munchies/non fakers.

Thought I'd share that with you as someone who has GP. That their supposed constant and severe vomiting is likely either not happening or it is but is because they're making themselves vomit.

Do these idiots not know that they're potentially shortening their lifespan going on TPN?

And don't get me started on Jaquie and her last two vlogs. She is so bloody selfish.

And it's bs she is running her feeds at a supposed day rate goal. I can hear her pump in clips, and for her to run her feed at a higher rate where she doesn't need night feeds, you'd hear her pump more than just once in a 30 sec or 1 minute clip. Hope that makes sense?(blogging)

No. 457560

>>457501
A GP can treat POTS for the most part. It's fairly obvious for diagnosis if you do a poor mans ttt and there's the 30+bpm increase. Since most POTS paitents are young girls, it makes sense that they would be getting a dx from a gp or pediatrician. If a GP starts suggesting more then salt and water, maybe florinef they could do, then there's a concern. No GP should be treating someone with such severe POTS that they need daily saline and a port.

No. 457566

>>457560
this comment makes no sense. The specialist prescribes the meds, then sends back a letter to the gp and discharges the patient. The gp then takes care of the patient. It's got nothing to do with how "severe" the pots is. In Jaquie's case, she has a port even though she was told she doesn't have pots by Mayo of all places. There are a lot of people out there with ports for their "super severe pots" when it's completely unnecessary. In the real world, a specialist will check the patient for anything more serious, write up a treatment plan and send them back to their gp.

No. 457571

>>457566
I'm saying that most POTS can be treated with water, salt, maybe some blood pressure meds or beta blockers (GP can prescribe these). For the most part a specialist isn't always needed because most cases aren't so bad. If you're fainting every time you stand, hitting 200bpm, etc you should be seeing neuro, cardio or electrophysiology instead of a GP. Does that make sense?

No. 457594

>>457571
Yes that makes sense, but what I'm trying to say is even when you see a specialist, they usually just write up a plan and your GP tends to follow through with it. Some cardiologists keep their pots patients long term- but most just send them back to their GPs and be done with them.

No. 457596

>>457594
Meh, in my experience a specialist wants you to keep coming back. Then they get the money. And unless your doctors are all in the same network, they usually don't communicate.

No. 457597

>>457596

Same for me - all my specialists will still see me. My PCP is sometimes updated but most often not.

sage for samefagging(blogging)

No. 457611

>>457571
Vanderbilt is one of the top clinics in the country for POTS and they only require, "as needed" visits or once a year. They diagnose and write up a treatment plan that is then forwarded to your PCP. The PCP then writes the prescription. Their goal is to educate the PCP on managing the condition.

No. 457621

>>457611 That's how it works here in Australia too. I've known people to have regular visits with a specialist for pots but they pay a lot for it, and most specialists don't want to waste their time on pots patients/ don't care.

No. 457697

>>457566
Exactly. Jaquie doesn’t even have pots, and even if she did, it’s not a huge deal. Yet all these cows act like pots is instantly disabling or fatal. Absolutely ridiculous. Really they’re all just out of shape and dehydrated, their issues could be fixed by drinking some water, getting some exercise, and getting their heads out of their asses.

No. 457922

>>457611
Agree, I'm in the UK and have EDS and fainting with very mild uro and gastro issues. I was diagnosed 2.5 years ago and even within our slow NHS (but free and amazing!) I expect to be 100% under the care of my GP (PCP) by February except 2 yearly heart scans.
I've been to London for autonomic testing and get the results in January but essentially I faint, it isn't life threatening and it isn't treatable medically - but through small lifestyle changes.
My mum has Spinabifida and she doesn't constantly see specialists, she has a few yearly check-ups in different specialties. On the most part she just sees her local GP and local physio.

saged for obvious blogging

It isn't normal to constantly be seeing specialists! It is normal in acute illness or just post diagnosis when they run through a lot of checks but not multiple times a month throughout the year!

No. 457945

Today, poor sad JanJan gets showered in P.O. Box gifts from delusional followers. It cheers her up so much that her sick face/monotone voice just goes away! Just like that when she opens the mail. All gone! She smiles, laughs, doesn’t look like death! Who are these people who think Paul and Janiece deserve shit? It baffles me. They are absolutely wretched and an embarrassment to humans. We learn that they have to cancel Janiece’s Birthday (1/8) Celebration Vacay because she’s sooooooo sooper sick with all of her medical problems and issues. All in all it was boring as usual. Oh, a follower also sends Harlow a dog bed for JanJan’s guest room. Jaq asked Jan to put it on the registry and add a note that it’s for Harlow (she knows she’ll get it that way!) and a very speedy bed shows up. Memory foam, y’all!

No. 457946

>>457922
Seriously yes. I know there are different "levels" of POTS but the only person I (generally) see is my GP.

As for work, I can only work part-time my my colleagues know that "my heart at times can be dodgy" so we all work around it….

No. 457988

I find it odd that as Jaquie complains near constantly about the noise her family makes that's she one of the loudest because she's constantly talking over people.

No. 457990

Jaq's cousins are smart and it seems likely they know that she's full of shit. If I were them, I'd tell my parents about it. Then their parents would be in a position, I guess, to decide if it was a good idea to talk to Jaq's mom about it. I'm guessing that won't happen but wouldn't that be fascinating.

No. 458152

Her posts from only a year ago at this time are so different. She was flying with Harlow and relatively active. Seriously wonder if her mom thinks she’s full of it

No. 458173

>>457462
It’s no different than someone in England going to a private doctor. This isn’t the kind of doctor that accepts insurance. Most specialists in the US that don’t accept insurance tend to be treating sketchy-ish things with liberal prescribing habits, that aren’t covered by insurance. (Diet doctors, Lyme literate doctors, some pain management, etc)

No. 458201

>>458191
I don't know how I found these threads (this one and the Jaquie-Janice show). I have learned a lot of you are dealing with chronic illness and pain and all the things.

But holy hell, y'all make me laugh so hard.

Just wanted to say THANK YOU! And happy new year, y'all.

Sage

No. 458206

>>458173

I was going to say exactly this. This isn't a US specific issue. In any of the countries with a socialized healthcare system you can pay money and have more options for treatment. But more options doesn't mean better. The government or any big payer (ie, insurance companies) make sure providers stick to evidence based guidelines. When you go to whoever you want and doctor shop is when you get into people who will tell you what you want in favor of the almighty dollar, science and evidence be damned.

I do think concierge doctors bill insurance on top of the annual fee, but I'm not sure.

No. 458212

>>458206
>>458173
That would explain why Jaquie seems to need to update him about every little thing.

No. 458367

File: 1514776287677.jpg (407.38 KB, 1080x1673, Screenshot_20180101-030947_01.…)

How lovely and hygienic, pushing a zofran while sat on the loo.

No. 458467

>>458367

Happy New year! Happy birthday dad! Here's a pic of me doing drugs on the toilet!

No. 458589

>>458467
And it’s all about her. New Years and her dads birthday are an afterthought. I wonder if she ever thinks about anyone else, or if it’s only because other people and their events give her just another opportunity to talk about herself. I would say that that’s a lonely and isolating life, but she seems to not give a shit.

No. 458633

>>457922
>>457946
>>446896
blogging/ medfagging posts like these will now be met with a ban

No. 458640

I know it's a holiday and all, but I can't believe yesterday's video never got posted.

So she's very texture sensitive- but she can handle pie on her face and then not showering afterward? For GP awareness? Because we don't get enough of that hearing her drone on about it nonstop. But we don't get to see that today. We need to wait til the day she has her surgery. Because she'll be too incapacitated to post a video that day. This whole video is obnoxious.

No. 458643

>>458640

Literally looks like she just got jizzed on. Interesting thumbnail choice,

No. 458654

>>458640
Expect it’s not GP awareness, it’s Jaquie a awareness. Can you even raise awareness for a disease you’ve been told you don’t have but claim anyway?

No. 458771

>>457324
Who is your personal cow, just out of interest?

No. 458779

>>458771
I want to know too!

No. 458976

Patreon figures drop at the beginning of the month, and Jaquie is at 190 (down from 202, which was down from a high of 218, that I remember in Sept./Oct.).

Janiece's is at 15 (down from 18 during Dec.)

No. 458978

>>458640
Sorry but it literally looks like she got bukkaked the fuck up. She should not of put that as the cover photo. Completely gross.

No. 458979

>>458976
Sorta makes sense considering the time of the year. Lots of people overspend at Christmas and then try to figure out what to cut back to recover. It will be interesting to check it again in about a month.

No. 458992

>>458367
I can't wait for her line infection. Maybe then she'll realize needle going straight to your heart isn't a good way to get attention. I seriously hope they pull her port and don't approve a replacement

No. 459009

>>458640
I often wonder what's in this relationship for Judd but I guess that thumbnail solves that question.

No. 459011

>>459009
Top kek anon.

No. 459018

I hate how she recaps what she just did even though we were there for the first round. Today they go to a state park and one of the first things she says as she's rolling away is / look at all the things I'm allergic to! Then they get back in the car and she tells us she said it. We heard you. Not less than two minutes ago. I realize that way more time passes in real life between scenes but how does she not remove those duplications during the editing process? Her repetition is SO annoying.

No. 459022

Can we please talk about the fact that her cousins made a bet over how long she would last during their get-together? Doesn't that kind of tell us they think at the very least she's a drama queen?

No. 459024

They are talking about the year and Judd says it's been really hard. Then around 9:45 Jaquie says we try to take everything in stride especially together and we are doing better. Is she alluding to them having couple problems or am I taking it wrong?

No. 459034

>>459022
It also seems like they know she is manipulating and bullshitting to some degree. I can't imagine taking bets on a truly sick person and I doubt her cousins would either. I think there is a lot to read into that.

No. 459062

>>459024

I thought the same thing re: their relationship the way she said it.

Ok so today’s adventure really was irritating. After passing herds of Jaq’s fellow species or as she calls them, “Moos” … we get to follow her as she tells us she’s allergic to everything and then as anon stated, she says it again. Agreed. Irritating. Her “Harlow loves working!” talks are always so stupid - she doesn’t know for sure. Harlow is a dog, she loves being a dog. I hope she bites her someday.

Why does she have to keep her gloves on in the car and show us repeatedly? Also, is there a chance that allergens from their adventure stick on her gloves and even Harlow? I’d think so and I’d take them off ASAP and at least wipe them off.

Also… the recap just included drugs - Benadryl, ketamine, IVIG - and stuff about her gastroparesis… oh, and Star Wars toys.
Prediction. 2018 will be no different.

No. 459063

The new intro is interesting. The old one had her outside and standing up and looking a little more ready to face the world saying she's going on an adventure. The new one has her in her wheelchair and a hospital bed. She's definitely trying to project a different image.

No. 459370

>>459063
Being a spoonie warrior that bravely goes on adventures doesn’t get the asspats (and cash) that being a sick little spoonie princess does. Also, she’s fucking lazy.

No. 459551

>>459063

As if she couldn't make the fact that she copies Mary Frey any more obvious, the new intro song is one that The Frey Life used in the past for their intro! I know they all get their music from the same free music library, but there were hundreds of other songs she could have chosen.

No. 459568

>>459034
My point exactly. I don't know if they know she is a munchie; it's really hard to let your mind 'go there', especially if you're close to someone. Plus, they probably either don't have time to watch her videos (as much) or they just don't want to. BUT I do think that this tells us something. I think they either think she's a drama queen who is using her illness or they know - maybe even on a subconscious level - she is manipulating them or not being completely honest. Like you say: it would be really inappropriate to make bets like that over a truly sick person. I can't imagine someone taking bets on how long their sick granny would last during a family outing, for example.

It reminds me of a real-life munchie I used to know. When we had a gathering it would depend on certain other people being there if she would limp very badly, not even be able to go to the bathroom without using her wheelchair etc., or if she would be able to walk without a problem and only need her wheelchair outside. We used to makes jokes about it when we were driving to the place where we were meeting, like: "o, and X is there today also, so that means she can walk." We were always right. It also seemed that the more people there were, the more disabled she became. And when she thought no one could see her, she would suddenly lose her limp. A miracle!

No. 459630

>>455220
Oh man, there's so much fraud in the DME (durable medical equipment) field in the USA. There was a DME company that got nailed for ordering pumps to make a certain part of the male anatomy bigger and making it look as though it was something else. They defrauded Medicaid of millions of dollars. They're in jail now.

Our medical industry is so screwed up. It makes me so angry that there is so much fraud, and people like Jaq are a part of it because willing providers will give her whatever she wants as long as they can bill someone for it and make some money.

No. 459638

Janieces opinion is that her diarrhea will come back once the meds she was given in the hospital 'wear off'. Apparently, she was given abx and doesn't have diarrhea anymore. I just wonder why they would someone who already has diarrhea abx if the stool samples continue to come back negative?

She also says that the nurses told her that with diarrhea like that, she should have come in MUCH sooner. After three days. So if it does come back, she is already planning on going back to the hospital in three days "or maybe earlier". Unless you're dehydrated, there is no need to be in hospital for diarrhea. And you don't get dehydrated unless you are pretty much glued to the toilet and/or are also vomiting quite a lot.

She was losing weight before she went to the hospital but it went up when she was there (what, in three or four days??) but now she is losing weight again. What about the general advice to not weigh yourself more than once a week? Plus, with all the talk about how she loved the hospital food, how well the nurses took care of her, how they encouraged her to eat and that she thinks Paul can't cook I think it is clear that her inability to eat has more to do with a lack of creativity and general laziness rather than an actual physical problem.

I am willing to believe she has stomach pains, but especially with her diarrhea gone, there is really no reason why she would be losing weight. If she can eat in the hospital, she can eat at home. If she really has issues with her weight, let her make some smoothies. If she's really desperate, she can buy herself some ensure and vlog about which taste she likes and which she doesn't. Not that she needs to be on those as she clearly can eat, but it just goes to show that if she wants to be lazy and can't think of what to eat, that STILL isn't a reason to lose weight over.

I find it odd that she never explained if her diarrhea was paradoxical or not. She even talks about having both diarrhea and constipation once - unless it IS paradoxical, that just doesn't happen.

But I think I've exceeded the amount of times one should write 'diarrhea' in one post, so I'd better shut up now.

No. 459662

>>459638
Sorry for being a lazy fuck but I can't bear to watch any of Janiece's videos. Did she say anything about the physical therapy that was supposed to help clear up her constipation? Or has she rejected that all together in favor of hospitalization?

Top kek at her praising the nursing staff tho - when she was in hospital she had nothing but complaints about the nurses.

No. 459670

>>459662
I don't blame you, I have a really hard time watching then, too.

And no, she didn't say anything about her PT since getting the test results. Just about more tests, like the pill cam and something I already forgot. I really don't get it.

No. 459680

>>459670
I actually went back for all of you who can't watch her to look up which other test she mentioned (and I expect one day someone will return the favor, lol - as I said: I often cannot watch her as well). A marker test. She also said that her GI has her "on his top list". Yeah. That's not really how it works, hun. But keep thinking you are his most special patient, if that makes you happy..

No. 459745

Janeice has become more munchie. She claims to be malnourished and that she needs to gain weight. I mean, she’s not fat but she doesn’t look underweight to me.

The whole 3 days thing is fucking insane. In the UK, you’d be laughed out of the room.

No. 459796

File: 1514922328526.png (1.77 MB, 1334x750, IMG_5381.PNG)

So she drives today for the first time in months and supposedly it's so super painful but instead of resting in the Walmart parking lot while she waits for her groceries she holds the camera out to vlog

No. 459818

In today's vlog, at around 3:30, Jaq says, "sometimes people ask me, 'what did you do today?'"

WHO. who asks you that? you have no friends other than Janeice and we know she watches the vlog so she knows for herself you did nothing.

No. 459823

Now that Jaq gets the groceries herself, she can secretly buy all sorts of shit she "can't eat" then eat it/ hide it before Judd comes home and he never has to know that she can actually eat just fine.

No. 459870

(Talking about her and Judd) "And of course every year we just focus on living our best possible life, whether that means pursuing new treatments, figuring out current treatments, doing something we love, like ME going back to school and cherishing time with loved ones" So even though she says "we" and "our" she really means me, me, me. Which either continues to support our overall theory that she is completely self absorbed or she has suddenly started referring to herself in the plural.

No. 459871

>>459823
It's verrrry likely. And how was she able to suddenly carry all that stuff in? Half the time she claims that her legs give out walking to the car and now she can drive and make multiple trips into the apartment to carry groceries. Okay… sure.

No. 459872

>>459871

I thought that was really suspicious, too! I was expecting her to complain about carrying groceries in or have a clip like, "Oh silly me! I totally forgot that after you get groceries you have to carry them in. I can't, or I will die, so they'll just have to wait in the car until Judd comes home."

No. 459875

>>459024

I can't imagine Jaq making any compromises, so I'm not sure how they'd handle marital issues. Maybe she does make compromises because the small semblance of sense she has left tells her if she doesn't, Judd will just leave her. And if Judd leaves her, she'll HAVE to start doing more for herself, shattering her munchie-charade.

No. 459895

>>459872

Well, silly! Remember if she “rests” she can magically do things. Like remember the time she rested and could clean her whole house (even with perfume in the bathroom). She seems to think that if she says that she rests that we buy that it makes her able to do hard stuff like carry groceries. She’s so full of shit no wonder she has brown eyes.

Her self absorbed speeches are just so hokey. “We are going to live our best lives” is something like almost all popular vloggers have said and is so cliche… and like anon said, she really means HER. She is always me, me, me. Like I’m sure Daniel came to pick her up in his car or his family’s car and would rather drive that but no, she makes him drive the ambulance so Harlow has her seat and she has her walker and wheelchair toys.

I bet Judd is dreading her surgery. She is going to be insufferable. That surgery is going to kick her ass. Also she hasn’t mentioned anything about kinks or feeding tube pain/issues since she got her way and got a surgery date. Funny how that is.

No. 459902

>>459895
Nice observation about no pain and no kinks. You know she will mention both in tomorrow's vlog.

No. 459909

>>459872
>>459823
After she gets home, she says she finally got the vlog up which took awhile because she had to drive all the way home and then she had to TAKE A REST and then get all the groceries in.

So, yes, the magic of rest.

And no worries, she's resting/taking a nap after her 11 hours of sleep and earlier rest so she can go to the beach house.

And then at bedtime, she explains she couldn't shower because her legs hurt so much. But, no worries…she's getting her Ketamine infusion tomorrow.

No. 459925

>>459909
And which joint are they injecting this time? She probably didn't mention that because she really doesn't care, as long as she gets her Ketamine fix.

No. 459936

>>459925
It also doesn’t matter because she doesn’t have joint problems. Let’s not forget, she’s been specifically told she DOESN’T have EDS.

No. 459937

>>459902
And she’ll probably magically have another “kink” to get her precious surgery moved up and into an “emergency surgery”.

No. 459974

You all will be so proud of our little cow for making it in JunkinVideo's top 100 videos of 2017 for Harlow's ranch retrieval. At 2:40 mark. Over 500,000 views.

No. 460020

>>459925

Pretty sure it’s the other hip. Because she at one point she said she hurt her good hip limping to compensate the bad hip. Or some BS reason like that.

No. 460043

>>460020
I thought she was angling for knees with the X-rays and all. Though, maybe the doc can’t justify the ketamine for knees. Seems like it would be much harder to explain why you can’t have a patient conscious for a knee injection.

No. 460450

>>460043
While we're on the topic, ketamine every four weeks is ludicrous. I don't know what dose she gets compared to what's normal protocol for ketamine in pain management (normally it's a subanesthetic dose that is infused in either a few hours or a few days) but honestly, if she ends up having side effects like memory loss and poor concentration I wouldn't be suprised at all.

It might be interesting to note that studies show that the long-term effect of ketamine (pain control after the infusion) is strongly correlated with the duration of the infusion. E.g. when the infusion was running over 100 hours, the effects in CRPS patients remained for about three months. If however the infusion only took 30 minutes, the after-effects were only present for 45 minutes. The effects of anesthetic doses for long-term pain relief have not been studied as far as I know, but it goes to show how absurd her protocol is and how unlikely her response to it is. Not only has ketamine not shown to have effect on the kinds of pain she is claiming, but studies also show that infusions that take as short as she gets them, have hardly any lasting effects.

There is a particularly nasty urological side effect in recreational users that leads to thickening of the bladder wall and even caused some users to have their bladder removed. It can also lead to kidney failure. This side effect has never been reported in clinical use, but the long-term effects haven't been studied well at all. Especially with that frequency I'd say some caution is adviced. But Jaquie keeps promoting ketamine as a very safe drug with no side effects. I wouldn't be so sure of that if I were in her position.

No. 460529

Why the hell did Harlow need to go with her to Walmart?! I think she just likes toting a dog around.

No. 460536

>>460529
What if she got too excited and H wasn't there to alert to her high HR? Then she couldn't vlog about if if she did.

No. 460581

Anyone notice her recent Instagram posts don't include hashtag abuse? I wonder why that is. Normally I'd say she finally realised how attention whory it looks, but it's not like she changed her style overall.

No. 460588

>>460529

It gives her a reason to sit on the floor (we know she loves the floor!) do those deep pressure therapeez from Harlow. Her Walmart montages are ridiculous - the early days where she and Judd would stage the scene and walk by the camera together were particularly dumb… now we just have Barbie Car clips of course.

No. 460620

File: 1514996766293.jpeg (238.42 KB, 1219x941, A12E424D-1F1F-4544-B176-7000E0…)

Looking for that sweet sweet click bait it seems.

No. 460623

so I feel like today's installment of post-ketamine, "NO PAIN," confirms that it's totally a show.

No. 460626

>>460623

oh my GOD today's ketamine episode was so obnoxious, she is a terrible actress.

No. 460636

What has Jaq tried in the past for her "joint pain", "muscular pain", or "headaches and migraines". I definitely don't remember her trying any regular migraine treatments, like daily preventatives.

No. 460638

Anyone notice how she says the same things after ketamine like about her legs running away and no pain? And she was trying not to smirk whilst hollering her fake coming down from it all.

Anyone else catch the trying to not smirk?

Someone already commented about her saying the same things…

No. 460642

>>460636

Well, we know she hasn’t tried narcotics because she preaches about how she doesn’t take them because of the side effects and how it’s not good for her gastropresis…

But, she’s a-ok with HORSE anesthetic coursing through her veins.

>>460638

I thought I caught the smirk. Now I know I wasn’t seeing things.

Yes, Jaq is a master actor and manipulates all who fall for her BS. The repeat phrases during the reactions say it all. She really has no problem making a complete fool out of herself for the sake of “the people.”

No. 460662

>>460623
100%. She has said the OTT "no pain!" three times now in EXACTLY the same intonation. She also was talking WAAAYY to much for someone just coming out of anesthesia. If you can talk that much, you are awake. Plus the smirk, the coming back to subjects she should've forgotten about if she really was 'out of it' (like the cow thing - she probably though beforehand what 'funny' things she would say this time), the fact that she could enunciate perfectly and the way she was talking about her mother like she didn't know it was her she was talking to.. yeah. I am convinced 100% that it's all an act. She looks SO stupid doing that and she thinks she is very funny. I actually had to pause the video half way the 'ketamine reaction' because it got unbearable to watch.

I cannot understand how the staff can't be onto her by now. It is all SO fake. And she is spreading misinformation yet again about how ketamine works. Urghhh.

Anyone notice how she didn't even SAY which joint was injected this time? I'm sure she doesn't care a rats ass about that. All she cares about is getting her precious ketamine. Her doctor is basically defrauding the insurance company by doing injections she doesn't need so they can get the ketamine covered. She actually admitted to this in a previous vlog. Not only that, but it's also very unethical from a medical point of view: what if she ends up having some sort of infection in one of the unnecessarily injected joints? I know getting involved with cows is agains the rules, but this is one of the cases where I wish we could. The proof is in the vlogs. (And no, I won't do it. But I really wish I could.)

Her followers as so gullible. I really don't understand how they think this is funny and how they can't see it's all put on. Are we going the have this exact same thing every four weeks now?

O, another thing: she said "I saw the anesthesiologist, saw the pain management doctor.." Her 'pain management doctor' ISN'T an anesthiologist? Then WTF is he?? She seems to have found yet another doctor who will gladly treat outside his area of expertise. No wonder he doesn't seem to know fuck about how ketamine works.

No. 460668

>>460662

the talking about her mom thing seemed like another red-flag. so she's talking about her mom as if her mom's not there… but in past episodes, she hasn't talked about her mom. I don't know how to explain what I'm saying, but she was obviously talking more about her mom because her mom was there, but at the same time she was pretending she didn't know her mom was there… if in past episodes, she'd also talked about her mom, then it wouldn't be unreasonable, but she talked way more about her mom this time so we know she knew her mom was there… but she was pretending she didn't.

that was unclear, but I'm trying to say the way she talked about her mom also made it look more like a show than a reality.

No. 460671

This is probably BEC but it's fucking weird that she carts that stuffed animal to every procedure like she's a 5 year old. Grow up Jaquie!
https://www.instagram.com/p/Bdfuud9DICr/?hl=en&taken-by=chronically_jaquie

No. 460672

>>460668
No, it's not unclear. You are absolutely right.

Imagine being in the bed next to her. I've had times where I was literally trembling with pure rage and frustratrion when I was next to someone in hospital whos visitors were a little too loud for me because I was just too sick to be able to deal with it. But that was nothing compared to this. I think I'd be literally pulling my own hair out and/or scratching my skin open out of frustration if I were next to someone as loud while I was recovering after surgery. I know that doesn't sound very nice or even reasonable, but being sick and/or just out of surgery can really lower the bounderies of what you are able to cope with.
I am really feeling sorry for the patients around her. And imagine the nurses: they would come running if they heard someone scream like that, only to find someone vlogging their so called 'funny' anesthesia reaction.

I really angry right now.

No. 460689

>>460662
Let's be real, she's never going to get an infection in one of her unnecessarily injected joints just like she never gets an infection from her toobz swinging around in raw chicken when she preps Harlow's meals. Despite what she likes to tell us, Jaq seems to have a pretty robust immune system.

No. 460698

>>460620
That cover photo looks like a fucking meme. Like it looks like a JOKE. I can’t even take it seriously one bit. Also where’s my cow???? The cow laying right there in the bed…

No. 460705

I recently had surgery and the nurses kept me dosed up with I want to say lorazepam to help cut down on the possible side effects ketamine could cause.

That being said, why didn't someone push a benzo to shut her the hell up?!

No. 460723

File: 1515005250784.jpg (17.19 KB, 801x125, 1.jpg)

This is the stuff that make me sad, because it's clear that this person is being duped and can't even figure out how to stop the donation. Betcha Jaq doesn't tell her how to stop the donation. Ugh.

No. 460812

How on earth do the people around her not understand how much of her reaction is fake? The fact that she has said 'No pain!' multiple times in exactly the same tone of voice should be triggering some sort of doubt. Are the people around her just pretending at this point or are they actually stupid enough to believe this shit?

No. 460828

>>460812
1. I tried to watch. Could not get very far.

2. Did you see right before she goes back for the procedure that (a) she said that the therapeutic dose of ketamine is higher than it needs to be for anesthesia, so it hits her harder and then she grins evilly/happily and (b) someone told her she needed to lower her voice. Her mom, perhaps?

3. Do you think she goes on like that throughout her procedure? Or do they intubate her?

4. My work today has involved writing numbered/lettered outlines and I can't seem to stop…. ;)

No. 460845

>>460812
Her mother even said at one point "you said that last time, too" (something like that). For a minute there I thought she saw what we see.. but probably not.

Maybe there's some doubt in her mind, though. I feel if anyone could tell in this kind of situations, it'd be the mother. Little children often act as if they are asleep when they're not, act as if they can't hear something, stuff like that. Mothers usually learn to see through their childs bullshit pretty well.

No. 460848

>>460845
I think her family sees through at least some of her bullshit, but they’re in too far to stop. They’ve enabled her manipulation and lies for so long that they probably don’t know how to stop.

No. 460857

At around 6:27 in today's ketamine video she shakes her head back and forth and then in a weird third person comment she says don't move your heads it hurts. But like minute before that she screamed NO PAIIINNN. What the fuck ever Jaquie. Lying cow.

No. 460867

>>460857
Glad someone else caught that too. In addition to the fact that she gets sedated for injections, but states she received not one, but two doses of versed prior to having to go into the "operating room". There shouldn't be any reason to receive "pre-op" meds, let alone that much, and clearly, someone is quite used to it to be able to hold a camera and speak relatively coherently into it (albeit it, pretending to to be "loopy"). I think this is where I would correctly use medfag or sage for something but still getting used to this wonderful site for these internet munchies.

No. 460872

File: 1515018549065.png (28.47 KB, 310x137, Screen Shot 2018-01-03 at 6.27…)

practicalities? what practicalities?
so dangerous those IG messages… amirite?

No. 460873

>>460867
They use benzo's in addition to ketamine to prevent most of the unpleasant side effects like hallucinations, dissociation, tachycardia and panic. So that's not odd. Though there is no reason for her to be sedated at all, IF they use ketamine it would be weirder is they would NOT combine it with some kind of benzo.

And I thought the sudden pain after her stupid "NO PAIN!" reaction odd, too. But then I thought it is possible that she was painfree while lying still but had pain while moving her head. I don't think that's the reason though; she is just being a drama queen who clearly likes the ketamine and how she can fool people into thinking she isn't in control when she comes out of it.

No. 460911

Question for a medfag.

Jaquie has said that her upcoming feeding tube surgery will be her first time getting general anesthesia.

However, if she's claiming that her ketamine dose is higher than anesthetic levels, wouldn't she need to be intubated, thus making it general anesthesia basically?

No. 460917

I just can’t with her. Getting sedation for a procedure no one else gets it for.
Let’s talk about the stuffed animal she brings with her. Anyone else find that weird?

Her nebulizer. I thought masks were only for children. I have never seen an adult use one until I found munchies. Too weak to hold it?

No. 460941

>>460911
What about her last tube surgery? Wasn’t that the first time she got general anesthesia? (Her claim). I still can’t believe she munched her way into two tubes.

No. 460955

>>460917
My cat has one. It has a fish on it. He does not have thumbs to hold it.

No. 460958

>>460917

I have asthma and even as an adult my doctor says a mask is better

No. 460961

What's with the hairnet? Why do you need a hairnet to get a shot? You're not having surgery. Your head is no where near the knee and the most that's needed to keep clean is the provider wearing sterile gloves and a chlorhexidine swab. The hairnet is OTT, but if you're going to have it, at least have your hair in it!

And no, the ketamine is probably considered conscious sedation, and the last feeding tube was probably done under MAC. It makes sense that the new j tube will be her first time having general.

No. 460963

Okay so J's fake ketamine loopiness.. something she said I know I've heard before.

'Can I come into the out now' - that's a line from the film (kids) called Home.

She definitely staged her loopiness.

No. 460972

>>460723

Aw man that really is sad :( did anyone reply?

No. 460986

>>460961
They probably did the procedure in a sterile room even though it wasn’t a true operation. You have to wear the hair net to keep the room sterile from what I understand. I don’t think that’s OTT, just normal procedure.

No. 460992

>>460961
It’s like all her tube changes, fully gowned, hair covered, etc. A tube change doesn’t require sedation or even changing out of street clothes. But it’s jaquie. Everything has to be OTT.

No. 461048

>>460958
Interesting. I did not know that. Several of my family members use a nebulizer regularly this time of year but no adults have a mask. Thanks for the knowledge.

No. 461053

>>460620
Well that was just an unwatchable train wreck. Hopefully this performance will clue more people on.

No. 461054

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No. 461076


No. 461077

File: 1515030756334.jpeg (897.96 KB, 1242x2208, 01BF97A5-6D91-40C1-9BC1-FF36E9…)

So that’s her plan. Stage a lot of “loopiness” to make a compilation. She’s so transparent I don’t see how so many thousands of people are completely blind to it. Bizarre.

No. 461097

So I was watching old videos again and fell upon this gem. Interesting points: They go to Sam’s club and Jaq is in like this manic state when she goes around trying all of the samples with her mask on and off to stuff her piehole. No cares about allergens and her tummy clearly didn’t hurt… but the thing I found most interesting was that Jaq states that Janiece is gluten and dairy intolerant and that her tummy was hurting because she ate food that was likely to be contaminated with gluten. Soooo Panera bread and soup (that Paul has brought her so many times) is gluten and dairy free? Huh. Also, I wonder if her newest GI knows of this intolerance. To me it looks like she is now poisoning herself to get sick… for those sweet hospital stays with that sweet hospital food, guys. She’s definitely going to be malnourished very soon since she is losing so much weight. Maybe her and Jaq will have matching toobz soon.

Another thing… the next day she goes to see that horrible (according to Jaq) immunologist that told her to take her port out and nothing was wrong with her… well, an anon asked earlier if Jaq had tried other methods of pain management. We know the answer is no, but in that video she says how she was given a Lyrica script but didn’t plan on taking it because she could have a reaction and it’s a depression med and she doesn’t want it to affect her moods. She probably just didn’t want to gain weight (which is like Lyrica’s number one side effect).

No. 461102

>>461097
Lyrica isn’t a depression med, but yeah it can make some people gain weight. That’s a super common ed thing, refusing meds that possibly cause weight gain. If she was really in pain, she’d try it.

No. 461111

File: 1515032723599.png (84.95 KB, 640x1136, 99FD5C06-73D0-46D9-8140-D7194C…)

>>461102
Lyrica isn’t an antidepressant or mood medication at all, but does also treat seizures, so it’d be good for her if she actually had the conditions she claims. Lyrica and gabapentin are two of the top meds for eds, as a lot of the pain in from micro muscle contractions as the body tries to hold joints together. Also, lots of people with eds and pots have small fiber neuropathy, and those two meds are the only treatment for it. If someone is truly in as much pain as she claims she is, they will try just about anything.

No. 461113

>>461077
Can any med fags weigh in on if her loopiness is warranted? Like can ketamine actually make you THAT loopy or is it actually plausible she’s faking it. I’m combing through comments as we speak and lots of people are saying stuff like “Haha wow! Ketamine makes me loopy usually but you seem exceptionally loopy!” So it made me think. Obviously I don’t trust this bitch. I’m just wondering what are the actual side effects immediately after ketamine. This video loopiness is also SO much longer than the others.

No. 461127

>>461113
I don’t know about that, but ketamine is used as a psychiatric drug in some cases. So she won’t take a drug that could possibly affect her mood (lyrica, even though it’s not used for that at all, because it doesn’t affect mood), but will willing take one that could definitely affect her mood but that probably gives her a high. Cool munchie logic there.

No. 461149

I know the point of the Versed is not to just "calm her" its what they mix with drugs like Ketamine and Fentanyl to make you blackout. It's NOT general anesthesia like she seems to claim. It's just sedation. I believe she is very drugged but likes the attention of yelling and being weird.

No. 461168

>>460972

yes. Not Jaquie though.

No. 461244

>>461113
She's definitely faking it.

At 6:03, after the "silly" noise and grimace she makes, you can see her almost bursting with laughter along with her mom, which she quickly covers up with another "baah" and manages to return to her serious expression. She's such a bad actor.

No. 461249

>>461244

I thought the exact same thing about that moment. I felt like she for sure was about to lose it but somehow saved face (although obviously not that well because we caught it). It can be really hard to keep a straight face, so I'll give credit that she does a pretty good job of it throughout her routine, but her routine sucks so bad that it's still a pretty shitty show.

No. 461251

>>461113
Anesthesiafag here. Her behavior and portrayal of events is highly questionable. No one is allowed to visit you in PACU until you are awake and stable. Of course, some residual sleepiness and loopiness are normal post-sedation, but I have never seen anyone act so OTT at that stage of recovery. Additionally, PACU staff are really strict about cams in recovery because it's a major HIPAA issue; being a place where people are at their most vulnerable. Jaquie's antics appear to be totally exaggerated fucktardery. She's hamming it up and loving every minute of it.

No. 461263

>>460992

I think a G-J tube is change endoscopically, though, which would be normal for sedation

No. 461284

>>461263
Nope it’s done in IR (at least in my area). You literally can be in and out in less than ten minutes. It’s live X-ray, so the doctor pulls out the old one and uses the X-ray to put in the new one. Totally painless, and you can leave your clothes on, as long as they can get to the site. They just clean around it and cover up around the area, which takes the longest. The actual tube switch takes maybe two three minutes. Then you’re free to go. It feels a little weird, but there’s no pain at all.

No. 461287

>>461263
Only the original placement is done through endoscopy, and they put you all the way out (general anesthesia). But once the stoma is healed, the switch is easy. It’s not considered surgical after that.

No. 461302

>>461097

Same video, she's sitting on the PUBLIC BATHROOM FLOOR with Harlow. Not sure how immunocompromised Jaq managed to survive that one.

No. 461310

>>461097

Yep, the next day she goes to the immunologist and says she's scared to go because she knows Benadryl is a "nontraditional treatment" and that he might tell her it's "wildly inappropriate". So she's aware, then.

No. 461314

>>461310

He asked her to send over a copy of her medical records but she refuses, saying she doesn't trust him so she doesn't want him handling any of her records. Sounds like someone's real scared that the big, mean doctor is onto her.

She does admit he had one good idea: to admit her to the NIH. My understanding is that the NIH only admits people who they are specifically interested in studying, so I'm genuinely curious if the doctor said that to her sarcastically but because she's so autistic, she interpreted it as genuine.

No. 461320

>>461097
Is she dumb as a rock? She mentions begin really frustrated she can't wash her hair and then they "figure out" that they can do it over the sink. I can't think of anybody who hasn't washed their hair in a sink in a pinch and I cannot imagine it took them that long to figure that situation out. Sounds like she just wanted somebody to baby her.

No. 461322

>>461310

What do you guys make of this appointment? The way Jaq tells it, this doctor was actually rude. Two things stand out: 1) The doctor kept saying he had to go see other patients and 2) The doctor wouldn't record that she has anaphylaxis because he had never seen it.

Point 1 is just unusual for a doctor, unless Jaq was trying to take up way more of her time than she was supposed to.

Point 2, I'm not as sure of, but seems weird because Jaq says she had paperwork from hospital admissions past. Maybe she was supposed to fax that info ahead of time and didn't so the doctor was frustrated? Maybe something in her paperwork indicated it wasn't truly anaphylaxis?

Other things she reports (like the doctor telling her to get rid of the port) makes total sense. But I wonder if maybe the guy really was rude? If so, I can understand why Jaq would dismiss what he said to her– if a doctor was rude to me, I'd dismiss everything from the appointment, I'm not going to take info from a doctor who seems annoyed by me. It seems like maybe Jaq needs to hear all this from a nicer doctor… although she's so far down the munchie hole now, it might not matter.

No. 461324

>>461322

He told her not to go to the ER for anaphylaxis which is also super bizarre. Seems like maybe he didn't believe she had ever had anaphylaxis, but that's still really risky medical advice because what if she does have it in the future and follows your advice? Opening yourself up to major malpractice.

Idk. All in all, just a confusing situation with that appointment.

No. 461325

>>461322

Maybe he hears her describe her anaphylaxis as something she can easily abort at home with "IV Benadryl" and realizes it's not really anaphylaxis. Like, "Oh you can treat it at home? Do that then, dummy."

Are these "anaphylactic episodes" maybe panic attacks?

No. 461331

>>461324
No doctor in their right mind would tell someone not to go to the ER if they were in true anaphylaxis. I bet he knows she was never in anaphylaxis. Maybe they want to study her munchausens kek, because she’s sure no medical mystery.

No. 461337

>>461322
I think he just saw through her bullshit and was very direct and honest with her. She’s used to always getting her way with doctors, so having one not go along with her was probably rude, in her mind. I wouldn’t be surprised if he was sarcastic and she was just to dumb to pick it up, or just wasn’t listening well enough. Or heard it and chose to interpret it her own way.

No. 461339

>>461337

Idk though, "direct and honest" doesn't explain why he told her not to go to the ER for anaphylaxis. Even if he doesn't believe she has it, those words should never come out of a doctor's mouth, that's way too risky for him to say. I mean, I do think he was direct and honest but he might've also actually been a jerk which makes it hard to receive the direct and honest advice.

No. 461341

>>461339

why are we taking Jaquie's claims about her evil doctor at face value?

No. 461344

>>461341
Right. Go we know, she described the symptoms of her “anaphylaxis”, and he told her not to go to the ER for that, because it’s not anaphylaxis, but without saying exactly “don’t go to the er for anaphylaxis”.

No. 461346

>>461339
Maybe he was a jerk. Some doctors are. But at this point, if being a jerk prevents jaquie from getting even more totally unnecessary medical treatment, it’s not that bad. He probably saw right through her lies, and was annoyed that she was wasting his time, which is probably very tightly scheduled as he is apparently a top specialist.

No. 461348

>>461341

I don't think we should take it at face value, but in general there seems to be shreds of truth in what she claims. She doesn't have GP, but she does have slow gastric emptying. She doesn't have MCAS but she does have allergies.

I don't know if she's smart enough to come up with random lies on the spot. I agree with >>461344 , there may have been some misinterpretation in there, but just straight up lies? I don't think she's smart enough. Plus, Julien was there so would she just straight up lie about what happened in front of him if he was there the whole time? Maybe she really would, but it seems more likely that what she said was somewhere around the truth.

No. 461355

>>461251
Agreed and medfag here too.
Administered this med many times over the tears both with and without versed and other combos (pre and post surgical), and have never observed an OTT "reaction" such as this. Also most people appear afraid, have hallucinations and once stopped, it will wear off quickly. As someone else mentioned here previously, The IVP med she receives should wear off with little lasting effecting in a short time frame.

There are ketamine infusion protocols for pain, but that's definitely not it.

No. 461369

Would this board be interested in a day-by-day update of developments in her vlogs? Ex.

4.11.17– Saw PCP to ask for her to facilitate IVIG/ follow up on hospital admission, drove self to appointment but talks about driving restrictions (20 min radius, not at night), driving exhausts her and hurts her neck and hips due to EDS, weight had dropped "about 8-10 lbs", hr at 130 "pots upset from angiodema", appointment "went well", new asthma treatment that's stronger, PCP agreed to talk to geneticist to facilitate inpatient IVIG, PCP prescribed low-dose valium for bone marrow biopsy next day, she's not getting sedated, just lidocaine to numb the area

…. etc. this might've been a bad example because she gave lots of "info" in this vlog.

maybe we need a google spreadsheet so everyone can contribute whenever they look back at old vlogs.

No. 461377

I can't believe there was talk of starting her on Xolair. It's not approved for anaphylaxis (in fact, it can cause it) or MCAS. With her anaphylaxis to everything I would think there would be no way someone would give that to her.

I don't think she ever did try it, though. Sadly, given how expensive and uncommon it is, that's almost more surprising.

No. 461388

>>461377
It’s used for mcas but only for skin symptoms that don’t clear up with other treatments. And it’s only given in a doctor’s office, because of the anaphylaxis risk. However, I don’t think she has mcas.

No. 461389

>>461369

Her slow gastric emptying isn’t bad enough to even be very mild GP that could be managed with diet, yet she’s got a GJ tube and has her special two-tube surgery scheduled. Clearly facts are just a mild suggestion for her.

No. 461393

>>461389
She’s on enough medication to slow anyone’s gi tract. Throw in her obvious eating disorder and her slowed gastric emptying is expected. She doctor-shopped her way into her tubes, in the normal world she never would have gotten even the first one.

No. 461398

>>461377
I don’t think she’s even had real anaphylaxis. This whole time she’s never been given an epipen, which is standard for anaphylaxis. After your first anaphylaxis episode, they literally write you a prescription for them before you leave the ER.

No. 461402

On 4/14/17, Jaq is told all of her muscle pain is due to EDS and she just needs to do PT ("Which I've tried before but I just need to stick with it").

No. 461405

>>461402

also on this day, Jaq immediately understands a pun (how do two snails fight? they slug it out).

No. 461407

>>461398

she mentions having and using epipens on 2/21/17

No. 461408

>>461377

vlog on 3/14 is titled "first xolair shot"

No. 461409

>>460917

she starts using that med on 4/13 and in her first treatment, she doesn't have a mask.

No. 461441

>>461408
Silly me. Of course she would get it. So now I wonder why she didn't stick with it.

No. 461442

File: 1515052703100.png (2.83 MB, 1242x2208, 336382F5-A3DB-4C07-9A15-B4372A…)


No. 461451

>>461442
The Munchie Army rushes in. Even coming out of full anesthesia,you’re able to control basic things like how loud you’re talking, and you’re able to follow simple directions, like to quiet down. Also, the other anon earlier said that she was already out of the recovery area, so she was awake and alert enough to be released. Really she’s just a self-centered bitch who doesn’t care about anyone else.

No. 461470

sick face appears to start on 5/1 and takes about two weeks to take over large portions of the vlog

No. 461478

5/10, Jaq says sitting on the floor exacerbates her EDS pain

No. 461489

>>461478
I appreciate what you're trying to do. Have you looked at the work I linked a few days ago in >>456143? I literally went through first Harlow's account (as she started that earlier than her own) and then both of them in chronological order up to a certain point. I documented how she got her IV saline infusions and did some research in which diagnoses she got when, when she started which hashtag, etc.

It looks like you're focussing more on her vlogs, but just in case you could also use the information I looked up; maybe you can use it somehow. I don't know.

>>461442
I'm glad people finally start to comment on the effect of this on the other patients. I wrote something yesterday here about how awful it must be to be next to her if you're recovering. There's more comments like that on this video. Maybe she already took them down; I don't know. I saw them not long after she posted the vlog. Of course she had her reply already thought out: "it is an out-patient center so there are no major surgeries, most of the other patients are also in for pain management so they would have had ketamine also, plus they seperate out the loud and the quiet people." (Something like that.) Yeah.. first of all: all the other people in there are SICK and in PAIN or they wouldn't be there. No matter what procedure they went in for. I do not belief for one moment that 'most' of the other patients also had ketamine, and even if that were true: hallucinations, dissociation and PANIC are among the most common side effects for ketamine. Imagine being scared out of your mind, seeing things and having someone yell like that next to you. Also, many drugs used in anesthesia (including opiates) causes an increased sensitivity to sounds in some patients. You'd think someone with "ES PEE DEE" would have some compassion with people who are having difficulty processing (loud) sounds and knows how crazy-making these sounds can be. But no, not Jaquie, or course.
And they seperate the 'loud' people out? First, I don't think so. Second: HOW can people not see how odd it is that she can predict her reaction to this drug so well? And now apparently the nurses also can predict she will be very loud? That's not how it normally works. And as another anon said; if you come out of anesthesia you can follow basic instructions. In fact they tend to test this first. If you can't follow instructions, the anesthesia hasn't worn off enough and you need more monitoring. They wouldn't let her mother in and they wouldn't give her her camera back if she wasn't awake enough to follow simple instructions.

No. 461491

5/18 is a vlog about solving "starvation".

back tracking from there:

5/10– she can eat pretty well– she makes a sandwich. then because she is in a narcolepsy attack, she accidentally puts the sandwich ingredients in the microwave instead of the fridge. they happen upon the mayo, cheese, and ham hours later and put them back in the fridge. these items probably should've been tossed. also, makes pork chops for judd.

5/11– Jaq talks about how she feels bad to be a chronic illness advocate but doesn't have closed captioning, so she's going to look into that. Also has a peanut butter sandwich, cucumber, juice, cheetos, a ham and cheese sandwich (made with items left in microwave yesterday), chicken, corn, fries, and ice cream.

5/12– goes to a barbecue restaurant and appears to eat almost an entire sandwich and side of fries, then runs outside to puke in the bushes

5/13– an ensure, a slice of turkey, a little each of potato broccoli and mac and cheese, then a second ensure

5/14– one french fry, ensure

5/15– launches patreon page, part of an ensure

5/16– "the scary reality of my gastroparesis", she is scared about how bad her gp is, says she's not able to consume enough water to maintain her health, part of an ensure for the food vlogged that day, says she'll get a feeding tube if she has to

5/17– has a GI appointment, they tell her to go to the ER, her blood sugar is 59 (she says it's "bottomed out"), they decide to admit her and….

5/18– they're "solving her starvation"

No. 461492

>>461097
I don't think Janiece is really gluten intolerant. She said somewhere that she tried some diets for a while (not sure for which symptoms though) and it didn't work. People often attribute certain symptoms to 'contamination' if they try a diet, even if later it turns out the diet didn't do anything for them.

I don't know why she thought the couldn't tolerate gluten, but I know she doesn't have celiac disease and she isn't gluten free anymore.

No. 461495

>>461127
I'd forgotten about the Lyrica thing! I agree it is VERY odd that she wouldn't take Lyrica because she didn't want it to affect her mood (which it doesn't) and that she is cool with ketamine which IS known to be a good option for refractory depression. Although it doesn't work for depression the way she uses it - just like it doesn't work for chronic pain that way.

But yeah, it's very odd. As far as I know, the only pain med she uses now and then is toradol. IV, of course. I REALLY don't understand all those IV meds. If we assume - just for the sake of argument - that her anafylaxis was real and the benadryl was helping, then I could understand the IV benadryl as it is a time sensitive situation. But Zofran? Toradol? It's crazy.

No. 461527

>>461495
The strangest thing about all her meds is that there are certain meds given to people with eds/pots/gp/mcas, there’s some variation of course, but most people are on some combo of meds from that group. Yet jaquie isn’t on any of them (except the zofran and Benadryl, but not the normal pill forms). People who have those illnesses typically aren’t on torodol, and she’s the only person I’ve ever heard of doing torodol joint injections and ketamine.

No. 461603

>>461369
I'm interested in something like this, but specifically, I'm interested in the link between raw food prep and vomiting….raw food in a cooler with her medical stuff and vomiting…We've seen it twice now, and I want to know if it's a pattern.

No. 461612

It's gotta be connected!!

No. 461618

>>461077
For someone who complains to be so autistic they don't understand jokes, she has an outstanding handle on what it takes to run a successful social media account.

Once again I'm annoyed that she has skills she could use for good - she could volunteer to run the social media accounts for a local dog rescue and would probably get them some good attention, because she's good at figuring out what will go viral. But instead she chooses to waste what talents she has being a self-serving drain on society.

No. 461632

>>461442
Wow, such bullshit. If that were true, the recovery area would be full of patients yelling at the top of their lungs. But, no…

No. 461741

No way is this munchie going to be able to get through her next precious surgery. I mean she was inpatient for almost week if memory serves right and was is “soooo much pain” for her GJ placement. It’s not a comfortable procedure I will say that, but it most certainly can be done and is mostly done as out patient apart from some pediatric cases. Plus is she were imminocompromised as she claims, inpatient is the LAST place you want to be.

Sorry to med fag, but panhypogammaglobulinemia is not a diagnosis, it’s a label to indicate which cells are effected she has yet to mention a diagnosis or anything about PI’s (primary immunodeficiency). Panhypogammaglobulinemia is rare and only affects few PI’s usually CVID unless you have SCID “bubble boy” syndrome. Hospitals are filled with germs any immunologist of a PI patient would strongly advise staying away from hospitals at all cost and try to work with physicians to get things done as out patients (if possible) or put in reverse isolation rooms which she’s never been in, only private rooms.

No. 461743

>>461741
I agree she won’t be able to handle the j tube surgery. She claims to have a high pain tolerance but she comes off as a cry baby to me. Like the other annon brought up, she’s not on Lyrica of Gabapentin which is big for pain especially nerve pain control which she claims is sooooper severe. She’s so full of shit no wonder her eyes are brown.

No. 461751

>>460972
Yes, fortunately someone did.

No. 461762

https://docs.google.com/spreadsheets/d/1NSkEmPhXjkaO2q0MjJ3NUAPwwZv7tGff2VCJrOUp598/edit#gid=0

Anybody interested in working on something like this? Also, any input on the best way to arrange it? There should be space to include the information the other user collected from her social media.

No. 461774

Today, Jaquie is thanking the heavens for her ketamine injections that allowed her to get out of bed on such a cold day because usually cold leaves her bed bound.

This is the same Jaquie who told us repeatedly that she loves the cold weather they've been having because she can go out during the day without worrying about her heat intolerance. The same Jaquie who has been nothing but gleeful about the cold weather Florida has been having lately… until her doctor told her she should be in pain more because she told him cold was a trigger. Now she's suddenly in so much pain from the cold that her precious ketamine isn't giving her as much relief as usual.

How can she spew this bs with a straight face?

No. 461800

>>461741
Even the private rooms has been a new development at her new hospital. Her admits last year were semi private rooms. And again, no sepsis.

No. 461801

>>461774
How would we get to see all her winter outfits if she were bed bound?

No. 461851

>>461774

I don’t recall her ever being bedbound. Hospital stays not included obviously. Like I can’t recall a single day where she hasn’t been able to get out of bed for any reason get it pain, her sooper srs pots etc

No. 461854

>>461774
What I find fascinating about this is Judd's reaction to how much food she ate. He seems surprised that she actually only ate a couple of bites of her food! (Because she probably usually eats a lot more despite what she tells the camera). Then he went on to say she ate some of his and a bunch of bread, lol.

No. 461898

>>461854
Yeah, I caught that too. He is so OVER it.

Jaquie "falls out" of the car and makes him film her complaining about it : "yeah, because you don't pick your feet up!"

Jaquie humble-brags about only being able to eat two bites : Judd - "…and several bites of mine. And the bread…"

Jaquie says Judd or her Mom will eat the leftovers - Judd : "well SOMEONE will eat the leftovers and their name is either Jaquie or Harlow…".

No. 461919

>>461369
Honestly, while it's a lot of work, I think it's a good idea. It will show all the contradictions, too, like when she said she took Ativan and pronounced it perfectly and then months later pretended she had no idea what Ativan was and how to pronounce it.

No. 461927

>>461762
Neat idea. I think it could include even more info for each vlog. It is a lot of work, but if you're going through her vlogs one by one it will be more efficient to include as much as possible. I mean: going through them again to look for certain things not included in the firts overview will be even more work.

We could even do transscripts of her vlogs, so it is searchable. If for example you remember something she said, you could search for that quote and see when and in what context it was said. I know that'll be even more work, but maybe there is an easy way to convert the subtitles of vlogs which are closed captioned? If there's enough people to work on it, it would be doable.

No. 461934

>>461369
YES! Good idea!
>>461927
I believe there is a way to download the CC file…not sure how to do it though.

No. 461935

This anon will be contributing!

No. 461936

>>461898
Plus the way he talked over her when she wanted to complain about the 'falling'. He just shut her up.

BTW, how will AFO's help with getting out of the car? I use a KAFO sometimes, and find it WAY harder to lift my legs over a car doorframe when I wear it.

No. 461943

The AFO will probably cause her to strain her knees/hip getting in and out of the car.

Sorta like walking up/down stairs/bus steps with ski boots…

No. 461950

>>461927

How would we organize transcripts? Doesn't seem like an excel sheet is best for that.

No. 461958

>>461950
Links with in the excel sheet to transcript word doc organized by month? or maybe by week?

No. 461972

This will also help with tracking Janiece inconsistencies - like her super painful and bad gluten intolerance from Feb. 2017 that has magically gone away. Poof! Just like her munchie mentor, Janiece is on her way to be just like Jaq. I sense a feeding tube soon - maybe an NJ or maybe she’ll see Jaq’s negligent toob doctor and sucker him too.

No. 461974

>>461927

I am the transcript anon from the Raven Sparks thread.

Following is my procedure which I currently perform on a tablet:

1 Download the srt file.
http://www.downsub.com

2 Rename the file extension from srt to txt.

3 Strip the html.
http://www.zubrag.com/tools/html-tags-stripper.php

4 Strip the srt time codes.
http://www.gopetsamerica.com/webmaster/srt-to-text-online-converter.aspx

5 Copy and paste the result into a text editor.

6 Watch the video and edit the text for punctuation and verbiage. If the srt file was generated from the automatic captions, the resulting text will lack punctuation and may have incorrect words depending on the speaker's diction and enunciation.

No. 461989

I was able to find the titles in a downloadable format for the last 60 days or so of her vids, so I added those. I also inserted a column to point out contradictory statements. Lastly, I added the filtering capability. If anything needs to be done formatting wise, let the board know, as I work with Excel on a daily basis and am pretty familiar with it.

No. 462000

>>461958
perfect solution. the word docs can be stored in google docs as well.

No. 462002

can we make sure the google doc is put in the description of the next thread (which needs to be made soon)

No. 462005

>>462002
Super good point. I was going to create the next thread but this google doc is out of my league so will another anon please step up?

No. 462010

She is falling way more now that the AFO tech told her that supposedly her feet don't do what they are supposed to do without braces. Whatever Jaquie.

No. 462014

>>462005


just add the link to all the other info that's been at the top of each thread

No. 462025

>>461310

I'd send this "rude" doctors flowers if I could! Him telling her to pull the port just made my day. I honestly think Jaq exaggerated some things because she simply did not get her way. Perhaps the referring hospital has caught wind and knew sending her to this person would cause her to hit a wall. I truly believe the more new doctors Jaq sees, the more trouble and push-back she will find. The doctors who already feed her munchie appetite are already in over their head, so why back out now? But as for the new doctors, they're able to see how much she has conned the others and want no part of it.

Does anyone know which doctor is the one writing her prescription for her sweet IV benedryl? If it has to be by an allergist, perhaps that's why she flipped the fuck out.

No. 462033

New thread >>>/snow/462029

No. 462413

4:46 on latest video then suddenly 4:50 remembers she is meant to be sick.

No. 462637

>>460638
For sure, she was trying not to smirk. 6:05 ish. Also, all her "we gotta love each other!" "my mom is amazing!" "tell Judd I love him!" stunts seem so stilted. And so does the NOOOO PAAAAAIIIIN!!! crap.

No. 465632

>>462637
Okay I just have to point this out with sooper extra Jaquie.

I was watching her ketamine vlogs and her crazy reactions and my eyes rolled so far back into my head. Ive gotten many ketamine infusions and with some of her behaviours I understand as I’ve done similar things…but she is flat out OTT. You can get ketamine and still be a civilized human, not yelling and talking shit about cows.

Then I realized that she’s not on a ketamine infusion…J gets ketamine to get “sedated” for her joint injections she’s not on a continuous infusion to my observation. Her behaviours could be partially excused with infusions, but not at all with a simple push for anesthetic.

It’s funny to me how she is SO loopy in the hospital, but there’s not a single trace of her being even remotely loopy in the car and at home. Again - I’ve had many ketamine infusions and that fogginess/loopiness does stay with you. Just like people after their wisdom teeth removal.

She’s just being extra as she always is. There’s no reason for her to be acting like a child over a simple ketamine injection.

No. 479848

I'm seriously dizzy from a pain med for my hip pain so I forgot what I really wanted to say in my previous super long comments ??


The IMPORTANT PART

Girls (and boys) with severe eating disorders gets tube feed and now drum roll please, some even make themselves so sick so they get the feeding tube because then they don't need to eat and they maintain a very low weight by just getting enough nutrition to stay at their low weight and not die from malnourishment.
I never got a feeding tube even though I was close to death because no way in hell did I want that, I had to suck it up and force myself to eat again. I got out of my eating disorders by my own thank god, but her behaviour reminds me of some girls I met at a eating disorders clinic.(USER HAS BEEN PUT OUT TO PASTURE)

No. 479854

First I wanna say what makes me most sad about jaquie is that she makes people think other people with chronic illness or invisible illness is faking it

She is clearly making herself sick and that's coming from someone that's battled illness my entire life and also had anorexia for many years so I can spot self destruction and self harm behaviour even over just videos.

I actually reached to jaquie to share my tips as I was born with IGA immunodefiancy and I was also born with dislocated hips so I have to be in a brace for my entire first year of my life and then 6 more month during the nights. My mother said I was pretty much running and walking instantly after that.

I also suffer from stomach problems from a young age and I now have severe stomach problems from my years of eating disorders. On top of this i have endometrios, hernia in asphogus, and Im also injured permanentat for life due to nerve pain and loss of function.


I'm not in a wheelchair even though my hips hurts when I walk for longer times or even when I'm just at home.

IM NOT tube feed even though I've had anorexia for years and years and fucked up stomach.

I don't have a port And even though I wear face masks sometimes it's freaking awful and I couldn't never wear it in the heat.
It's very limiting and I'm really depressed and miss my old life. I don't even tell my all friends how bad my health is because I don't want them to look at me like some sick person to feel sorry for.

I want them to see me as before I got injured..

I pretend I'm okay but I'm not.
So to see jaquie enjoying it in this videos and not even making an effort to cure herself makes me so upset. The things she eats I could NEVR EAT.

I would throw up too if I had fried food and meat, and pasta with cheese. I can't fat foods but I know what to eat and what not to eat.

In the beginning I liked her because she was spreading awareness but she has taking it to far.


I think she got an eating disorder and self harm behaviour. Nobody seems to focus on a plan to actually make her healthy, eat a special soft and stomach friendly food diet, alternative medicine and treatments etc, Cbd oils etc. I never see her take any vitamins or health supplements and she shows all her life…
Eating lots of medicine makes you even more sick trust me I know, I avoid medicines like the plague.

Immunodefiancy is very deliberating and very isolating, however handling raw meet is HUGE NONO for someone with it. I've became a vegetarian/vegan both because I love animals be also because it's so much bacteria in it so it's dangerous for us to handle.
But jaquie is shopping up RAW chicken without no problem?!?!

Her husband judd use to look happy now he only looks sad. Jaquie needs help from a shrink and a medical team that don't just so surgery after surgery on her, I do believe she has a few conditions but she is making them seem way worse.

I couldn't hold my arm up as long as she does either specially not when I'm feeling really bad ??(medfagging)

No. 479860

>>479848
>>479854

Too bad you didn't read the rules nor lurk more before wasting your precious spoonie time writing such a long blogpost. Enjoy the pasture!

No. 490764

>>479860
Asking because I'm sort of new. Does the "being put to pasture" mean that they're permanently banned?

No. 510783

It's worth noting that you definitely don't faint with hr of 130, I have a friend with pots whose SD alerts at 120. Her hr rises very quickly, so if she blacked out at 130 she would be on the out floor when she realized her dog alerted. My hr has gone up to 152 (recorded) from going up stairs and I only got dizzy, but of course I only have a few conditions so it's different for me.(USER HAS BEEN PUT OUT TO PASTURE)



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