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Jaquie Blake Beckwith, AKA chronically_jaquie, is one of the general Munchausen's/OTT thread (>>>/snow/387658) Munchie Queens.
Google Doc spreadsheet https://docs.google.com/spreadsheet/d/1NSkEmPhXjkaO2q0MjJ3NUAPwwZv7tGff2VCJrOUp598/edit#gid=0
- She has a Patreon for people to pay her to be "sick".
- She appears to have a few genuine illnesses, but overall contradicts herself 99% of the time.
- She has a button tube but shoves crap food into her pie hole most of the day. Claims she cannot tolerate her formula, and has to get a special type, but can eat fried crap.
- She has a service dog (Harlow) who does tasks that she is quite capable of doing (like grabbing a blanket across the room).
- Her service dog does not get worked the way a service dog should.
- She will not respond to messages online (except on her Patreon) because of "safety issues" (though we're pretty sure it's because she wants money to talk to her).
- She will not allow people to send her mail because she is too sick.
- Refers to herself as a "genetic anomaly".
- Claims to have EDS, POTS, narcolepsy, cataplexy, autism, unspecified immune problems, a mutated mitochondria, and too many other things. Surprisingly, Factitious Disorder is not on her list.
- She appears to be copying Mary Frey.
She enjoys deleting comments that call her out, and has an excuse or explanation for everything, something that is found psychologically in pathological liars.
Everyone is tired of her, even her family, and some people in the Munchie thread, so here's a place to talk about her to your heart's content.
Previous thread >>>/snow/462010
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Something about Jaquies diagnosis
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I just checked a few of the videos which you say do not have CC, and they do have CC.
Or are you differentiating between auto-generated CC and creator-supplied CC?
I am the transcript anon from >>461974
I'm not opposed to that option but I see some safeguards for us:
1) she won't remove and reupload ALL of her vlogs, so the evidence will still be there
2) if she tries to just delete info in the google doc, there's an option to revert it to it's previous form (essentially there's a giant undo button built into google docs)
But if you still think it's necessary, you should set it up!
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In her opinion the geneticist didn't examine her thoroughly enough. See part 1 and part 2 reply.
Personally I'd trust a geneticist over a PT but it seems like she was diagnosed with hypermobility syndrome not eds from reading that.
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This made me laugh….
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Jaquie's stalker had a heart attack!
The student has become the master.
"Reassuring Post-Hospital Follow Up & My Port Deaccessed! (5/22/17)" at 11:55
Jaq's on the bathroom floor after having vomited. I took note because the toilet was impeccably clean, not a spot of vomit anywhere. Now, I guess if I were about to be filmed post-vomit, I would wipe up because viewers don't want to see that. But idk, it's really fucking clean.
In her post previous to this one, she complains she has a headache, double vision, and nausea so bad she cannot stand up and when she finally does stand out, her legs are so weak that they buckle underneath her.
But she has the mental clarity to write the long ass instagram post to describe it all?
9 times out of 10, if you claim chest pain and SOB in the hospital, you have to be worked up for a potential heart attack. So no, the nurses/doctors probably didn't think she was having a HA (most likely anxiety), but they have to follow policy and rule it out bc of her symptoms which I bet is what they actually told her.
Spoonies hear what spoonies want to hear.
sage for medfagging
she writes in a comment of her heart attack post that no one can explain to her why she can't feel her legs or if she ever will again.
so one day she's got a terrible reaction to an LP with headache and nausea so bad she collapses, the next day she has a heart attack, and later that day she's literally paralyzed? she is escalating so quickly that she will have to die and be reborn soon to keep up this momentum.
Die and be reborn to keep up with this momentum
Top kek anon
Spoonie Messiah, kek.
I'm loving to see how quickly Jaq is devolving too. Suddenly she's falling all the time, etc.
There's no way she's going to handle her surgery well, she's a total baby when it comes to pain.
Cool. Does someone make regular backups? To be sure someone can't erase it all by mistake? Or one of her loyal supporters doesn't change all the fields to say "you're all suckers", or something like that?
I like that we're working together on this. I will definitely be contributing.
Just saw >>462260
before posting my reply. So yeah, I think regular backups are a good idea.
Don't know if it was in that particular vid, but that reminds me: one time when she was just out of hospital, she could suddenly eat much more, because she was on steroids and that stimulated her apetite. When she was off them, she couldn't eat anymore, which lead to her getting her feeding tube.
Need I say it? Probably not, but just in case there's Jaquie fans lurking here: steroids don't help with GP. She just gave us proof that she CAN eat much more. Not having an apetite is no excuse for needing a tube. Tons of people don't have an apetite and just eat regardless. Not having an apetite has NO influence on what or how much you can eat. It just means that maybe you'll enjoy it a little less. If people really forget to eat because of a low apetite, they set an alarm to remind them.
Her "I'm on steroids so I can eat more" basically translates as "The steroid-munchies make it almost impossible for me to restrict, so I'll just give in for the duration".
Amen, anon! I was trying to figure out how to word just exactly what you said. She’s proven time and again she can eat more than just “nibbles” as she calls her plate scavenging.
And the need to ALWAYS point out that a) she’s not eating because she “can’t” b) she’ll just nibble c) “I’m just having water d) she’s just having chocolate milk! We. Don’t. Care. But the constant need to point it out just screams eating disorder.
She always claims she has no psychological problems…when in fact that is all she has.
This. She reported symptoms consistent with MI so they did a cardiac workup, as is protocol. She did not have an MI, or she'd have monitor/tele leads and be in CCU or ICU. /medfag
At this point, I wonder if she is even still admitted? Close-up pillow mugshot style pics are easy to fake at home. She is in normal clothes too. #ICallBullshit
Didn't they start her on TPN? Home TPN is even rarer, I don't think they'd let her go home with it unless it was very clear it is going to be a long-term thing. Plus, she'd probably make a vlog "how I do my TPN at home" or something if they did. Unless of course they stopped her TPN and she 'forgot' to mention it. But somehow I think she'd be all over that, as well. "They are letting me go home to starve to death" - something like that.
I dunno. Most of these cows are real munchies as opposed to MBI cases. Though I'm sure there's some overlap, as well.
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Copy cat cow supposedly had anaphylaxis from a banana.
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I have so many questions. If they were thinking she was having heart problems, and anaphylaxis she would be in a gown, they would want east access.
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And copy cat cow wants you to visit her in the hospital and send gifts. WHO wants a stranger to visit in them in the hospital especially a patient who is supposedly several immunocompromisrd and suffering random anaphylaxis?
I mean, some of her pics are obviously legit, but I suspect some could be bullshit. Isn't she the cow that bought a hospital-like adjustable bed just like Jaquie's? I suppose time will tell but she definitely raises red flags. I don't think she is legit.>>462652
Bullshit. No residual erythema or O2 or tele leads, she is in the same clothes as the last "heart attack" ~dramu~ post and nothing else is in the shot. I assure you if she had a peripheral line or leads or a cannula or any other evidence of treatment, she'd make sure that shit was in the pic. Not making sense. If either crisis unfolded you can bet your ass she would have had to get out of that tight top and jacket.
Interesting point! We
She does NOOOOO PAAAAIIINN before and after
stating that turning her neck makes her head hurt. She's a liar and not a very good one.
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Sick face y'all. Two days after her ketamine injections she claims severe neck pain. But it's helping for sure! ….
We got a recap of her surgery details that she just had to go to the surgeon again to confirm. Don’t think there was anything new there, but now the hospital has to authorize her brand of tube and the sales rep she had on one vlog is trying to get it approved.
Then the heater in her apartment is broken, Judd’s escaping to Orlando for the weekend, her mom somehow spilled coffee on their ceiling (?) but wasn’t present when the story was told, she can’t open her new box of Kate Farms because the cold makes her hands not work, and she got pillows in the mail for her patreon funded bedroom makeover.
I'm not sure what the admins would think of it, but IMHO they could, in this specific case. Depsite the non-interference rule: she is basically asking for it: she is telling people in what hospital she is and asking for strangers to contact and even visit her. Who even wants that?
I hope I'm not overstepping my bounds; I'm just saying what I think of it in this specific situation.
I know it's been said before (multiple times, even) but really, that J-tube surgery is going to wreck her. As another anon said, her previous tube surgery isn't even surgery really, and mostly done out-patient. I know my hospital does that, anyway. But her upcoming surgery is an open Roux-en-Y jejunostomy, which really can't be compared to the tube placement she already had. I know she always says she is used to pain and can deal with it pretty well, but we all know this isn't true. I really wonder how she'll do. I think it is telling that she is expecting not to be able to vlog and already preparing vlogs (like the gross cake-in-face thing she showed us) while until now, she has ALWAYS been able to vlog every day even if she was in hospital (exluding that overly dramatic time when she was wasting away because a malfunctioning feeding tube means she suddenly can't eat anymore). Even when she was having "relentless, severe anaphylaxis" (her words, not mine) and when she supposedly had meningitis, and all the other times when she was the sickest of them all.
In today's vlog we learned that her 'pain management doctor' is a rheumatologist. Is that semi-common in the US? Where I live, a pain specialist is always an anesthesiologist. I find it very odd that a rheumatologist would do ketamine infusions. I noticed in the last ketamine vlog that she talked about both "the anesthesiologist and the pain management doctor" so I already noticed that apparently her pain doc isn't an anesthesiologist. She has a LOT of doctors who apparently have no problem at all to practice outside of their specialty. It explains a few things of course (like how she has a pain doc who doesn't know fuck about how to use ketamine for chronic pain), but it's still very odd.
BTW, has anyone read the comments on her "NO PAINN" vlog recently? It's full of people saying how they think she is very funny and how even when she is loopy she is still 'so genuine and positive' and 'always thinking of others'… It's nauseating. There's also a lot of comments on the fact that she has yelled "NO PAIN" every.single.time when she has had ketamine. Instead of seeing it for what it is, several people have commented on how cute that is and how glad it makes them that she's getting some relief.. I really cannot understand how they can't see that she is acting. I just watched the 'loopy' part of her first ketamine video, and although that was OTT as well, it was WAY less then the most recent version. That should tell them enough in and of itself. Normally, you'd expect people to react less when they are a bit used to the drug. Not Jaquie though. She saw people thought she was funny, so she amped it up like ten times. Her mother MUST have seen that, right? I know I am rambling, but I cannot, for the life of me, understand why people don't see it. She is clearly acting, and she's not even good at it! My head is spinning.
Lupusfag here, a rheumatologist is NOT a pain management doctor. Jaquie doesn't have any autoimmune conditions, so how she even got in to see a rheumy is beyond me. I will say though, there are a lot of shady rheumatologists out there. Arthritis and AI diseases can be debilitating, and there is a whole world of munchidom in the AI world full of people with "sero-negative" (no positive indicators in bloodwork) Lupus, RA, MS, etc. Some rheumatology offices double as or are attached to pain management centers and will offer infusions, narcotics, steroid injections, etc. in-house. I think most people with a legitimate serious AI disease do their research and stay away from a doctor who is going to pump them full of narcotics instead of prescribing immunosuppressants, but for a munchie like Jaquie she's found the perfect niche.
NO, NO AND NO. Go to http://www.lolcow.com/rules
Absolutely no contacting cows IRL. We are not some pearl-clutching savior squad doing good in the world. Enjoy the show or GTFO with this shit. It's against Lolcow rules. Read them and obey them ffs.
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Everything I was finding for ketamine treatment in Tampa is for depression, except for one guy that's in Clearwater that's double certified in anesthesiology and pain management. 1/2
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IF she was even suspected of having a heart attack the FIRST thing the doctor would order is a troponin test. If you have suffered a heart attack, even the most minor of one, it would show troponin in your blood. She stated they did an EKG but that won't always show what has already happened. Stupid fucking cow should learn her shit before she tries to munchie her way into something.
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I don't know but none of it goes together and it all looks like shit. She really has zero decorating ability and horrid taste.
Her skinwalker's new bedding looks better.https://www.instagram.com/p/BbYD29iFWnw/?taken-by=spoonielife_amanda
And someone confused her with Jaquie in the comments.
[my tablet is having issues screencaping]
Can someone explain her frustration to me and why her mom needs to come help with the boxes? I truly don't understand. Is she really not allowed to one of Judd's army/police/regular/pocket knives? Medical scissors? Regular ol' scissors? X-Acto crafting knife?
She managed to get the pillow box open but not the other boxes? If I were her mother, I might refuse because I have a job and Jaquie has a third degree black belt, which means at one time, she could think on her feet (e.g., problem solve).
Pillow boxes=fun, something she wants
Formula box=calories, doesn’t want it, another excuse to “show” that she has joint problems and needs to be taken care of.
It’s not an issue of ability, it’s motivation.
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It looks like despite fleecing her fans for cash supposedly for CC on the vlogs, she's also asking them to do it for her for free!
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I clicked through to the "creator studio" and it showed me this. Her poor deluded fans have done it for her, for free.
Hypermobileguy claims FND for his hysteric paralysis.
But also claims he's been told he might not walk again, which no one would ever say to a FND patient kek
Hey Lupusfag. Here in Europe, at least, EDS falls under Rheumatology. We don't have geneticists as much, unless undergoing actual genetic testing.
Saged for OT/medfag
I don't have a "normal active life", but I have an appropriately adapted one. Plenty going on, and not just my health to mull over.
Jacquie needs some fucking hobbies. What happened to that brief return to photography?
Formula boxes are usually glued together. I'm pretty sure I spotted hers to be, too. So it's not a matter of cutting through the tape that holds the box together, you'll need quite some strength to rip it open. I couldn't them open by myself, either. To be perfectly honest, what I
found strange about this part of the vlog is the fact that she apparently can
open them herself normally.
Someone correct me if I'm wrong. But the impression I got was that she's blaming pain (EDS) fatigue and numbness/tingling. Depending on what's at the top of her list that day. Oh and POTs of course.
Also a thought on her sudden foot drop issues. Falling etc. If someone genuinely had foot drop and was clumsy as a result, wouldn't they automatically take more care? Not just go barreling around as usual and constantly fall as a result? You wouldn't just get up out of the car without being careful, holding onto something, being aware of where you put your feet etc. When you have a disability which hinders your movement it doesn't take long for your mind to adjust and take care accordingly. Barring the occasional fuck up. It seems like she's falling because her feet can't keep up with her. If it were all true, and she wasn't faking, she's a fucking idiot. She doesn't need AFOs or a wheelchair, she needs schooling on how to live as a bipedal human being.
True. Her MO is to constantly rewrite her own history. For example, she was complaining of 'blood pressure issues'/low BP/dizziness' for YEARS. Then someone mentioned POTS and her doctors were planning to test her for it. Suddenly, she started complaining about tachycardia as well. Then she first got her diagnosis of orthostatic intolerance, which I assume they gave her because her symptoms did NOT fit the criteria for POTS. Meaning: she did not have (enough of a) raise in her HR. Yet now, she is acting as if she always had HR issues and that is her main symptom.
It went the same with her EDS diagnosis. She used to complain of leg pain and there was a rare mention of hip pain before she got that diagnosis. Then she went to her headache doc and he told her she was hypermobile and therefore, she had EDS. Then all of a sudden, her leg pain changed to hip pain and she started to describe her hip pain as "a feeling of not fitting right/being out of place". Later, she added "a clicking sensation". Something she never mentioned before. She even said to someone in the comments that she didn't think she ever had a subluxation. But after a few months, she suddenly started to talk about hip subluxations. The strange thing about that was that she never told us how she managed to sublux her hip and she also never vlogged it just after it happened. Instead, she mentioned it a while after it supposedly happened: "last week my hip subluxed, and now it is more painful.." Yet in the week leading up to that comment, she did not mention anything about it. Only once have I heard her say that she had a subluxation "today", but even then she didn't say how it happened, if it went back by itself or if she had to put it back herself and how, etc.
With her current bracing evaluation, she implies that she has subluxations of other joints, too. Yet she never said so. She said that wheeling her chair without power assist made her shoulders 'feel as if they were going to sublux', but she never had an actual shoulder sublux. (Nor - I am convinced - a hip sublux, but that's another matter.)
She said one time on her Instagram that she didn't know if Harlow could alert to her syncope, because she didn't have any syncope episodes since she got Harlow (she had her for almost a year by then, I think) unless it was brought on by heat, and heat can usually be avoided. She also said that she used to 'almost faint' if she vacuumed, and even once fainted for real. Yet when they got the roomba, that story suddenly changed to "I always
faint if I vacuum."
When she had her port surgery, they would use twilight sedation but that didn't work. She was wide awake during the surgery, but they used lidocaine so she wasn't in pain. There're more examples like this. Then she learned that local anesthesia doesn't always work well for EDS patients, and suddenly she doesn't react to lido at all.
When she was trying to get IV therapy she was warned that it would shot her veins, but she told her commenters not to worry because her veins were excellent. After only two home infusions she and her doctor decided to go for a port before
her veins would be damaged. But if she needs a peripheral IV these days, she says it is SO difficult to get a vein and told a nurse how special it was that she got the IV in one go.
She even rewrites her treatment history. She tells people that she tried infusions for months before they decided on a port. Yet if you go back to her Instagram, they decided only after ONE full two liter infusion (and three infusions in total) to 'move forward' with a port. She also tells us that she has done "so much PT" for her joints, but we all know this simply isn't true.
And now of course, her most recent rewrite. She learns about AFO's, has a 'partial foot drop' (which can be muscle weakness as well as nerve damage, and can even be flat out faked) and she suddenly can't pick her feet up. So she starts falling randomly because she needs these AFO's so badly. I think it is very telling that Judd told her to just pick her feet up and that he talked over her "Let's get some great Italian" when she started to complain about that. I think he either saw she faked/exagerrated it, or he just thought she was being a drama queen.
But yeah, she ALWAYS does that. Rewrite her own history of symptoms and treatments. Just like she was "so dangerously malnourished" before her feeding tube surgery, yet if you look at her vlogs of that date, there's nothing to be seen of that and I think she even eats chicken the day after her surgery - something like that. She is so inconsistent that it is really odd that her family hasn't caught on by now. But maybe they have, who knows. They probably wouldn't know what to do about it, or they are in too deep by now (especially Judd).
I find it very funny that of all the things to criticize about that, you choose to criticize her technique
But you are right in how obvious she is. And that anyone who wants
to see it, could see it. Maybe not if you've only watched a few of her videos, but those who have been following her for months or even years, are just willing themselves into believing her.
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New pic from skin walker munchie. She has been wearing the same shirt for the past three days. That's just gross.
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She's also "an absolute wreck" but like all good munchies has the strength to post on IG
Well, she did say it was kind of traumatic. Which is understandable, especially as the doctor told her it wouldn't be painful. He never should have said that and I don't understand how that could've happened. Apparently, he does them all the time and according to Jaquie he seemed kind of suprised that she was overwelmed by the pain.
So if she had known about that, she NEVER would've been OK with having it done without sedation.
As to the joint injections and feeding tube change: it does seem that those things come at least partly down to the doctor's preference. I know some procedures that can easily be done without sedation are done so often with it (like gastro- and colonoscopy) that the doctor kind of assumes their patient would want sedation. And of course her pain management plan is basically insurance fraud where the only reason they do joint injections is so they can get the insurance company to cover her ketamine.
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A perfect example of letting her raw fed dog way to close to her accessed port for someone with a compromised immune system.
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What is she going to start claiming now?
I agree that this type of box can be hard to open (also no illnesses) but you can still cut them open if you do it right. She doesn't give us a great shot of it by the edges have perforations where you can slice through to get a side open. You can also shove a butter knife into that peel flap and wedge it open instead of peeling it open.
I just think this is like when she couldn't figure out how to wash her hair. She prefers to be helpless so somebody can help her - either somebody figuring out you can wash hair in a sink. She could have thought of that like any normal person or gone to a cheap hair salon and bought a $10 wash.
Janiece said yesterday that her GYNO wanted to see her about her hospitalization. I'm not expert but that sounded weird to me. It honestly sounded more like she just had a yearly appointment scheduled and she wanted to relate it to her hospitalization.
I have NEVER heard of the supposed fact that EDSers metabolize narcotics and other drugs differently. Other then anecdotal self-report and of course, the rather well-documented problem with local anesthesia (that some testing seems to comfirm, but most are inconsistent). Of course it's possible for someone with EDS to be a rapid or even ultra-rapid metabolizer, but that's not related to EDS in any way. I even did a PubMed search and came up with nothing.
At this point, she is just making shit up because unlike what she wants her fans to believe, she cannot deal with pain well and is afraid of it.
And again she rewrites her history by saying that the lido didn't work when she had her bone marrow biopsy because of her EDS.. no b%tch, that is just a very painful procedure for EVERYONE. Lidocaine only goes so far. She can't have forgotten about the fact that the local worked just FINE for her during her port surgery, because she even mentioned being awake for it.
Also, she said she became 'aware' during her wisdom tooth surgery? She was sedated
for that? COME ON(!)
Yeah, THAT is the area lidocaine works on. After that, it's just very painful. So she basically told us that lido works fine for her? Not that we didn't already know that.. She thinks she is so special that she was in so much pain with it, and also with her butt boil. Guess what, Jaquie? Inflamed tissue is almost impossible to numb. That hurts for everybody
and your fake EDS has nothing to do with it.
what's with posing like this? 3 of her last 4 pictures are just like this. we know you're awake because you're taking a selfie. are we supposed to think she's so exhausted she can't open her eyes (yet she is writing these long ass captions)?
it is really sad, though, that she seems to have pretty much no friends or family. Jaq does these things for attention from Judd and her family (and social media, too). Amanda does them just for social media. there's no one in real life by her side. what extreme measures to go to. I can't imagine the debt she's racking up and how horrendous it'll be to deal with on her own when she's done with this game.
who is taking these pictures? Some of them don't look like selfies.
She does have family but they live in another state: http://columbustelegram.com/news/local/winig-handles-health-issues-with-help-from-her-four-legged/article_111a1ddb-1be2-5005-932f-f4a9a5e9a3b0.html
they probably stopped dropping everything to visit her after her because she has medical crises so often.
although it sounds like her dad lives a few hours away and visits once in a while?
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Another shot of the heat intolerant cow wearing a winter hat and sweater coat indoors. (And looking to the side so likely lying..)
To be fair it has been legitimately cold in Tampa (we’ve actually run the heater this year, it was getting into the 50’s indoors without it), and she says the heater is broken.
Though the hat is a bit much.
She won't take narcotics because they will slow her digestion, but what she WILL do is use all 3 abnormal holes in her body (port, gtube and new jtube to "administer' Toradol and other meds. Maybe her doc can prescribe her a rectal suppository med too. >>463652
The hat–she & BFF Janiece now both have those ridiculous hats and think they are really stylin'. Jaq had better be nervous about having another hole drilled in her body, now that she is a MRSA carrier–yet another hole to get infected. However it all plays out, it will be another Unique Jaquie Shit Show!
Person with diagnosed foot drop from a stroke (one foot, bot both), one is forced to automatically take more care, in addition, I wear a brace, but not every day. Only when I know I am going to be working for extended periods of time on my feet (>16 hours) because it can get worse with fatigue. But the realistic view is, sometimes you trip, laugh it off and get a move on to what you're doing. Also, as everyone has mentioned, PT, OT and continuous exercise to improve/maintain and not just rely on the brace.
Sage for blogging and a bit of medfag.
Also what happened to her butt boil and her toe?
And sure as shit I called it… she hadnt been saying anything about her tube problems lately and bam now she’s having “problems” again. And surely she is excited about that because maybe they’ll move her surgery up! I wonder if her GI and surgeon know that she’s a MRSA cesspool and that they’re about to cut open some risky shit. Nah, adjustable Jaquie probably failed to mention that little tidbit.
So she was able to get a bone marrow biopsy without sedation but has to have sedation for a simple joint injection and feeding tube change? Something doesn't add up because bone marrow biopsies are incredibly painful, even with lidocaine the pressure change inside the bone is horrendous. Not to mention the power drill in your pelvis is noisy and feels weird, how does that correlate to her SPD? People get bone marrow biopsies all the time with no sedation but I'm just really surprised that queen Jaq was able to skip it. Any thoughts?
I agree, in addition to the fact that while there IS published information on EDS and rapid drug metabolism, it seems to be very drug specific. Anyone (medfags) care to weigh in on this?
The doctor told her the bone marrow biopsy was no big deal and wouldn't hurt. She said it was a really bad experience. This may be part of why she's so insistent on having sedation for EVERYTHING.
Although it does add to what other people have been saying - she has no clue what pain is. She thought she could handle stuff but then discovered she couldn't, so now she wants all the chemical helpers all the time.
They’ll probably try to start slow and bring it up to what they think is her normal rate, but if she whines enough about it being painful they’ll keep it low and she can “increase it at home” once they discharge her. I’ve seen a few other munchies pull this in recent hospitalizations.
Of course, knowing Jaquie, she won’t be able to tolerate any feeds at all to start because I’m convinced in the long run she’s angling for tpn.
She'll probably ask her doctors for two days of TPN then. Whine about how bad she felt when her tube wasn't working and that she can't heal from her surgery without nutrition. As she already has a central line and she seeks out the biggest suckers as her doctors, they might even comply.
I do think she is genuinely nervous and worried about this surgery, though. I think she realizes that this is a bigger surgery then she's dealt with until now, and that she is going to be in real pain. That's why she is so worried that they won't give her enough narcotics. There is NO reason why narcotics would work different for her and as she doesn't normally take them, she won't even have a tolerance to them. But she is afraid of the pain. I think she is being honest when she says that her experience with that bone marrow biopsy has something to do with it, but I also think that's not the whole story. She probably knows that her presentation to the world as someone who is always in severe pain but deals with is o so well is fabricated, and she doesn't know how to deal with actual pain.
I agree. The fact that she had it before, even it was just one night, will help her as well. A doctor will be more inclined to give a patient a certain drug or treatment if they had it before. If another doctor deemed it necessary before, they feel like that doctor is already agreeing with them and it almost feels like a team decision.
This is also why I think at least a little bit of arrogance isn't a bad thing for a doctor. In some situations, you NEED them to be able to think: "screw that other doc you had, I
make the decisions about your care now."
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I look at Janiece’s vlog today and low and behold this is the first comment. And check out her goddamn response. It’s like the wheels in her head are already turning to do what Jaquie does and tell her doctor what she thinks is best for herself and “advocate” for herself. If she seriously gets a feeding tube I will be sick. I can’t say for sure whether or not Jaquie actually tried a real diet in the past because that was prior to vlogging.. however we’ve seen proof time after time that Janiece refuses to follow a diet! She blatantly doesn’t give a fuck and one anon on here even found out she’s lactose and gluten intolerant. There’s no way someone like this should be given a tube. She needs a strict diet regimend.
If you watch the video, you find out Janiece has been summoned to her GYN's office because the GYN looked at the scans and believes she has endometriosis and nothing at all wrong with her GI track.
The GYN wants her to see a surgeon who will do an exploratory laparoscopic surgery to diagnose the endometriosis.
Paul says if the surgeon finds it, he will remove it and all will be well, but that's not how endo works.
However, endo would explain her symptoms. The endometrial tissue grows outside (rather than inside) and can cause lesions and scar tissue to form. attach to other organs, and so on, so it could be pressing against or attached to her colon. Surgery can remove all or part of it, but I believe it often grows back, and, of course, surgery often causes scar tissue to form, which can make the problem/pain worse.
Symptoms include abdominal pain, diarrhea and/or constipation, low back pain, chronic fatigue, and lots of issues during menstruation. It's managed with meds and surgery, when necessary. Endo usually stops after menopause.
They are going to pursue the smart pill and the GYN surgical consult. I don't know any woman who has endo AND a feeding tube.
Wow. So she felt she didn't really belong in the hard-core of the spoonie community and she upped her game? I that what's happening here? And does she actually think a doctor would give her a tube for either IBS or Endo? COME. ON. (Although, with so many people with YouTube channels getting tubes lately for practically nothing, she might even find one who is willing to go along with it. All she has to do is ask her bestie for the contact information of her GI Quack.)
>>one anon on here even found out she’s lactose and gluten intolerant.
She doesn't. Just because she followed a fad diet for a few weeks doesn't make her gluten and dairy intolerant. She just followed the diet for a while to see if it would influence her symptoms. She told us it didn't. She is basically too lazy and/or lacks creativity to bring some variance to her diet. She is eating only turkey sandwiches because apparently, she can't think of anything else. I would grow tired of that, too. The very fact that she gained weight in the hospital tells us she can eat fine if someone put it in front of her and tells her to eat it. She needs to grow up. If she REALLY has so much pain and discomfort when she eats, she should get herself some ensure and for a while.
This is bad. The fact that she even gets this question and the way she aswers it, tells us that the idea that a feeding tube is the easy way out is already pervasive in the spoonie community. Have trouble eating? Get yourself a cute button and some tubie pads to go along with it. It makes it look so easy and so normal. No need to see a dietician and try to change your diet, no need to do the hard trial-and-error work almost everyone with ANY degree of GI problems has to deal with to find out what you system can deal with. No need to try meds or have a temperal nasal tube in order to gain weight BEFORE doing that hard work, just have a hole punched in your belly and go with that. Imagine dealing with GI problems and actually doing that work, and then see THIS. On a bad day, it might cause someone to give up and just pursue a permanent feeding tube instead.
Exactly. Eat what you want, don't eat what you don't want, and adjust the feed rate enough to not get fat.
She also said in her latest vlog that she is weighing herself every day. Obsessed much? Any dietician will tell you to NOT do that, because it'll show every normal fluctuation and make you obsessed even if you're not yet. They always tell you to weigh yourself once a week, if you can always at the same time of the day.
I've got another theory though. She just told us she was put on prednisone whilst in the hospital. (US docs are really crazy overprescribers, aren't they? She was on abx, too. O, and both can cause really bad stomach problems.) She is tapering off right now. I think it is possible that she knew that weight gain is one of the most common side effects, and that she is trying to avoid that. In which case it could
be that her motivation for this is not primary to gain attention, but ot to get fat. If that is the case, it would change the diagnosis from factitious disorder to a possible eating disorder. We'll see how long she keeps this up. I wonder if she will be able to restrain herself for much longer, though. She used to be always
eating something in the older vlogs.
Good point on the foot drop and her driving. That is exactly
the type of movement you make with your feet when you are driving.
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She went to the gyno because they found an ovarian cyst on an ultrasound during her hospital stay. >>464275
Yeah, very odd that the gyno told her that she would be fine. Endo can definitely cause infertility.
I'm not sure how a possible endometriosis fits her symptoms though. She never mentioned even normal period pain. If she tells us about her diarrhea and shitting herself, wouldn't she also tell us about stuff like that?
>>'Fragile Janiece' is rightly nervous about meeting a new surgeon who may doubt her other medical drama.
That part was kind of funny. "You know with a chronic illness, you are nervous meetng a new doctor. Will they take you seriousy, will they take your other conditions seriously?" (I'm paraphrasing.)
As someone with a chronic illness, I NEVER wonder about that. Because why the F wouldn't they take me seriously? That's right, if you are a munchie and they are on to you, then
they might not take you seriously. That's NOT a chronic illness problem Janiece, that's a YOU problem.
Jaquie has mentioned the same fear several times. No kidding. If I were lying about my health, I'm sure I'd be terrified meeting a new doctor, too.
Hmmm.. I wonder why she said in another vid then that she tried various diets - incuding GF - and it didnlt work.
But to be honest, 'diagnosed with' is quite a loose term with these lot. It's very possible that she was 'diagnosed' by some woo practitioner. If she actually had celiac, we would hear about it.
I am curious to see this video, though. I've also been looking for the video where she said she tried diets but they didn't work, but as most of her vlogs don't have meaningful titles, that is not an easy thing to do.
How did they go from an ovarian cyst to endometriosis? That's a huge jump. Agreed about the pain, you would think she would tell us if she was in the kind of pain that endometriosis causes.
That gyno sounds like a quack. Endometriosis is pretty much a sure shot at infertility, the only way I've heard of conceiving is having surgery and being on fertility meds and even then you've only got a shot for a few months.
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Yes. They don't resolve with the menstrual cycle like other types of cysts.
I had endo and had two separate surgeries to remove them. The pain was severe and debilitating.
She tried to bend her 'feeding tube pain' into 'slow healing from my EDS, though. That was a nice try. Too bad for her poor healing doesn't manifest itself as just pain. Plus you don't heal up fine and develop issues later. Guess she doesn't know that. And why should she? She never had an actual
EDS complication, so she doesn't know how it works.
Ok so I found an interesting video from 9 months ago on Jaquies channel a few things i spotted-
she keeps her infusion bags in the fridge with the normal food at Janice's house, but keeps a pack of turkey right on top of the bags.
uses her teeth to take the cap off the end of her infusion bag giving set, that is far from sterile,
she says 'she (janice) doesn't have gastroparesis but she doesn't eat much. so we know for sure the low appetite and all that is not a new thing.
I am not sure how to link I have only posted a few times but it is the vlog dated 3/30/17
She's not smart enough. Mind you, Paul seems to have upped the ante on the "advocacy" so maybe they could do it together.
I'm just waiting for Janiece to get a new toy or a diagnosis and Jaq to suddenly acquire it too.
First, infusion bags do not have to be refrigerated unless there’s something in them, so she could easily store them somewhere more sanitary, but chooses not to.
Second, neither girl has a “low appetite”. Look at their sizes. Neither one skimps on meals (before I get the anti-fat shaming police on me, they’re not fat, they’re on the upper end of healthy, not all that slim, like you would expect from people who have to push themselves to eat).
She refrigerates the oral formula she got from KF when her feeding tube was kinked. It's not her regular formula that's refrigerated. I don't think she drinks the oral KF, so it will look like her fridge is always stocked.
I want to say (and I may be mis-remembering this) but her saline comes in a refrigerated carton and so she keeps it cold and then lets it come up to room temp on the day she infuses?
You forgot the complete lack of any standard mrsa protocols that probably led to Judd getting that infection on his arm.
I do not understand how she hasn’t gotten a line infection or real problems from her tube, when her utter lack of sanitization skills (let alone sterile protocol) would make most 100% healthy and unnecessary hole free people sick.
Aw shit I forgot all that. >>464814
She actually seems to have an incredible immune system. She’s one of the very few people that I know of that have had a line for that long and haven’t had an infection. Even with a normal immune system they’re fairly common, even more so with a perpetually accessed line.
stuff like this gets us "off message" (so to speak). we don't see her wash her hands, but we only see 10 minutes of her day. why would she film herself washing her hands? the fact that we don't see it doesn't mean it doesn't happen.
it doesn't mean she does, of course, but we also shouldn't take it as any sort of evidence that she doesn't.
if we start saying, "and she doesn't even wash her hands," it makes our stance look like extremists and her loyal followers are less likely to view things critically, as those on this board do.
just my opinion. I frequently see things here that are similar to this– "well, we don't see her do x y z, so she doesn't do them and that's another point for her lunacy!" I just think we should be careful with that.
100% this. This is exactly what my thought was. It makes so much sense. It makes way more sense that these two Muches are seeing the same providers than that there would actually be multiple sets of providers that would encourage this kind of treatment for imaginary illness.
No one who is actually immunocompromised would unnecessarily chance going in a hospital during peak flu season the week they're supposed to have surgery. No one with 2 IQ points to rub together would have elective surgery during peak flu season, either, though.
Well.. if we are going to go there, there are
weird fetishes out there… but I agree it's likely non-existent. Between her 19,000 ailments, real and imagined and the fact that he always seems disgusted by her I just don't see it happening.
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Figured I would make sure to get this comment captured before it was deleted
That's because Amanda actually lost a LOT of weight. She may have done that to herself, either because of an ED or because of FII, but if you lose that much, you are be definition malnourished. That'll fuck with your whole system including hair and skin.
Jaquie, on the other hand, lost five or six pounds and was suddenly 'severely malnourished.
Jaq likes to say things like she's "putting her faith in god" and stuff but she doesn't otherwise seem very religious, so I'm not sure. I do doubt they have sex now, though, because taking a car ride hurts Jaq's neck and tires her out so imagine her complaints after a good bang.
I think Judd will leave her before this year is over. He seems 100% over it and soon he'll want to start/ get the opportunity to start day shifts and he then he really won't be able to take it. I found it odd he went to see his mom this weekend. They had seen her recently so I wonder if he went because he knew Jaq couldn't go and he wanted a break.
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And then after saying she won't bitch bc ermagherd it could affect her care she posts this
No, the nurses are ignoring you because they have people who are actually sick to take care of, and who aren’t massive cunts. Maybe it’s because you’ve been malingering in the hospital for a long time and no valid reason, and you expect to be waited on hand and foot, and you’re a gigantic drama queen about everything. (All the procedures she’s had are way, way less of a big deal than she made them out to be. Screaming so much during a tube change they have to stop? That’s what toddlers do. A GJ tube goes through your stomach already, it’s the feeding through it in your stomach that causes problems, not just it being in her stomach.)
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Sorry forgot the image
Probably both kek..>>465387
No new threads for individual munchies, remember? We lost the autumn one (then she just disappeared)
Actually, treatment of FII often involves giving the patient a face saving out. Some doctors will do a more 'hard' confrontation and tell the patient they know they're lying, but this is quite risky as most patients will simply leave and find another doctor. So often clinicians will try to find a way to give the patient an out. Like telling them that treatment X "may" cure there symptoms even if that's unlikely and letting the patient know at the same time that they won't be given any other treatment and that they know some things don't add up. Or telling the patient they have a somatoform disorder instead of facitious disorder so they'll at least allow psychiatric treatment.
Although I am afraid that Jaquie is in too deep by now. Her whole identity is that she is chronically ill, and everything she does is related to that. She basically made being ill her job by making a vlog about it.
I truly wonder where it will all end. Maybe she will phase out gradually? If she would start to vlog less because for example she wants to focus on her education, she could
eventually lose at least a part of her ill persona. But as long as she keeps vlogging, I don't really see a way out for her.
She is too adamant about her symptoms not being psychological in any way and her having no mental health problems whatsoever, so she can't use that out (where she would get psych treatment and discover that she was misdiagnosed and her tachycardia was caused by anxiety and/or an eating disorder, and she would make recovery videos en vlog about the difference between FII and somatoform disorder (in which case she would totally
have the latter, y'all
)), and the stigma about mental health problems. She has kind of closed that door for herself. And because she has SO MANY health issues, she also can't claim that she has found some miracle cure. Of course she can say that IVIG made her immune system stronger and it controls her anaphylaxis. She could even say it helped her POTS, but she can't make people believe it cured her EDS, CVS, GP, MALS, migraines, Mito, MCAS, small fibre neuropathy, autism, narcolepsy, epilepsy and whatever I'm forgetting there.
So she'll probably actually
disable herself by sitting in that wheelchair all day and not doing PT, gain a true disability because some sort of iatrogenic damage, OR she will go on forever like she is now.
It's sad, really.>>465350
Question: what surgery is she talking about?
That's the thing with these chronic illness vloggers. Mary has a truly chronic and progressive illness that gives her an honest path to follow with her vlogs. Even if Jaquie stayed the course at this point and didn't add any disease progression, her viewers should get bored. It truly is her whole life. If she went back to school and took up photography again she could maybe redeem it into a general daily vlog- less illness focused.
Even her doctors are in too deep at this point. They can't suddenly change course when they've been the ones prescribing all these OTT treatments and procedures all along.
I wonder if she's in too far with her relationships now, too. If everything sort of magically resolved, her mother would probably turn a blind eye and accept it all. But won't Judd be like, "Well that's fucking crazy." Is he just supposed to accept she's suddenly well? When they're 50, do they look back on this time like, "Remember when you were seriously ill in a wheel chair for 2 years and then you were suddenly better?"
I think if she magically gets better, Judd is like, "Great, you've essentially confirmed your craziness AND I don't look like a bad guy for leaving now that you're well, so bye."
She's on a slippery slope and she knows it. Judd isn't stupid and it's obvious he's over her bullshit. She made a comment a few vlogs ago how things are getting better for them so they must be having issues less than a year into their marriage. The last 20 seconds of yesterday's vlog were super awkward. If she miraculously recovers I think he'll leave her and if she continues down this path I think he'll leave her. A person can only take so much before they don't really give a shit what other people think about them anymore. And I would be willing to bet that his family sees through a lot
of her fuckery.
That's why she bought the black-out curtains for the hospital bedroom. Her Patreon money paid for the adjustable bed (now soaked with her 'nutrition' that leaked overnight) so she can just take her naps in that muck.
The pain couldn't wait until morning when she could call Dr.Quack? Instead of paying an ER co-pay?
She's able to kneel on the floor to vlog and to kiss Harlow (where else does she get affection?) because joint pain from her EDS wasn't in today's script. Her theme song should be the kiddie song "Head, Shoulders, Knees and Toes"—complaints are somewhere different every day!
instead of calling all the attention to you, just drop the information. no one fucking cares who you are, ya know, being on an anonymous board and all.
learn to not powerlevel
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Just noticed how much looking up and looking to the side she did while describing the ER visit and possible causes. Isn't that usually one of her tells for lying?
One of the funniest parts is the look on Harlow’s face when adjustable Jacquie is describing how she got covered in formula!
Even the dog knows it’s all BS!
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She looks to the side today almost the entire time she was reminding us of her feeding tube/stomach pain.
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Skinwalker’s out of the hospital, and already throwing a bitch fit. If a hospital refuses to put in a new GJ tube, maybe they know you don’t need it? Hospitals stock GJs, not jaquie’s speschul button, but they do have them. If they think your stomach is fine, it probably is. But miss munchie won’t accept that, so back to the doctor shopping to get the tube she absolutely must have!
I felt the same suspicions about this rando ER trip. Like I’m thinking they are sick of her BS at her favorite ER “where they know her well” as she always states… and she got called out. Remember last ER trip where she got the “di-laa-da dilaudid” she explained that trip in depth on how they fixed her right up. Not so much of a mention this time as to what went down. She may be flagged as a drug seeker now with all of these trips (likely more often than she tells us, too).
Medfags out there… what’s the true medical benefit of a button over a longer tube? Is it really just cosmetic/low profile reasons? I know several adults with toobz who have never had buttons.
Skinwalker Amanda… 2 hours from her home hospital is home now I see from anons posting. She thought she’s get better care outside of “Florida Hospital” so she travelled… now that doesn’t look suspicious at all. I find it funny that yesterday she was dying, guys…. and today she’s home and her closed eyes sick face is magically gone. So much for that heart attack! I wonder if she bailed AMA because they wouldn’t give her anything for that sooper horrendous pain.
Yeah, just relax. It's not like she is immunocompromized, or has a central line hanging out of her shirt or something like that.
>>Medfags out there… what’s the true medical benefit of a button over a longer tube? Is it really just cosmetic/low profile reasons?
I'm not a medfag, but a button can
be more practical. If someone is doing only night feeds for example, they can unhook the line during the day so they don't have tubing hanging out to fixate to the skin or anything. That's useful if you don't have 24/7 feeds, or if you do certain sports. Also, I could see that a button might cause less friction and thus decrease the risk of granulation tissue and other (skin and/or stoma) irritation. I am not sure if there's research supporting this, but I could see how it might.>>467050
Wait, so she was on TPN and now they sent her home with a G tube instead of a GJ? I don't follow her; can someone fill us in/post pics on how that happened? You'd think if they were worried she was starving they wouldn't let her go home with a working tube? She's not on home TPN now, or is she? I'm really confused now.
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Ok so I think this is what happened. She went in for a tube change to get a button but then she claims it was a malfunctioning button. It sounds like people at Florida Hospital (the one she keeps shit talking and tagging on IG) was on to her and didn’t take her serious in the ER when she went in several times after this bad button. So she decided to go somewhere where they don’t know her, two hours from home and her home hospital. She played her sob story and they started “speshully made for me” TPN to which she then “reacted” to. They ran a bunch of tests and nothing was wrong… sounds like they did a lumbar puncture that left her with a spinal headache that they wouldn’t give her drugs for and other “awful” things…. It’s unclear if they discharged her or if she left AMA.
It’s like, honey… this is a pattern if no hospitals will help you. She’s probably just a raging snatch to anyone that tries to help and then turns psycho when they call her on her BS or don’t serve her fast enough.
Photo is from her “dangler” to button change.
The hospital she was in, was that the same one as Jaquie goes to? 'Cause it would make sense if she thought that they would basically give her anything she asked for if she went there.
I still don't get why they gave her TPN first and then sent her home with a G-tube. If you're worried about a patients nutritional status, you don't sent them home with a G-tube if they have GP. And if you're not
worried about that, you don't start them on TPN. So.. what happened? Did they decide nothing was wrong after they did some tests? Did they get her records and saw she was suffering from a severe case and chronic case of doctor shopperitis? It doesn't make much sense to me.
As I understand it, she started having problems with her tube feeds when they changed her tube out to a button. She thought it had coiled up in her stomach, which it hadn't, but now suddenly it had(?) and they removed it. She must have been in quite a bad shape for them to start her on TPN. As she tolerated J-feeds fine when she had the other tube, I'd say chances are pretty darn good that if someone is wrong with the tube (and as she tells it, there WAS) she would be fine if they simply gave her a new one. It would make a LOT more sense to first change out the tube instead of starting TPN right away. Yet they didn't. They started her on TPN, then stopped it, and gave her a tube that is useless for any patient with severe GP. That doesn't seem to make any sense.
Unless they really
didn't have any type of GJ/trans-J tube (which seems quite unlikely) it seems like they thought she didn't need the tube and they only gave her the G-tube to keep the stoma open because they weren't her regular GI doc and they didn't want want to reverse a treatment another doctor started (they just chose not to continue that treatment).
That's basically the ONLY reason I can think of why they would do that. But if that was the case, wouldn't Amanda be all over them? With her history of tagging hospitals and talking shit about them online, you'd expect her to write some post about how hospital X sent her home to die of starvation and they "don't believe in GP" or something like that.
Someone else have a better theory?
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Since when does Janice need an inhaler? Also, why can't she just lean her lazy ass over and get it?
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Also today, Jaq eats a very GP friendly fried honey chicken dish from PF Chang’s… and fried rice… oh and she ate an entire bowl of egg drop soup. Pre-Surgery Date Night, y’all! And as always she says something along the lines of how Judd will eat most of hers… right, Jaquie. Right.
Doesn this look perfect for someone with sooper severe gastroparesis who is going in for surgery to add another hole and hose into her MRSA-riddled abdomen?
Eat up, Jaq… your little surgery is going to kick your sissylala little ass. Oh, but never fear they’ll administer your coveted cat valium, dilaudid will be pushed by the vials (maybe even a PCA since you manage to manipulate docs to give you whatever you want) and IV Benadryl on tap. Oh, and your favorite hospital breakfast bacon, potatoes and pancakes - it’s so tasty, y’all.
Who’s ready for the shit show that will be Adjustable Jaquie Does J-Tube?
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And, here’s her empty soup bowl and Judd shooting her in the face with a straw wrapper. They’re both children. Judd is fucked come Monday - work and Jaq being holed up in the hospital? Enjoy that one, bud.
Eventually she’s going to fuck up her body beyond a recoverable point, and I’m sure then she’ll realize what she’s done. And it’ll be too late, and she’ll get old and alone, because who wants to follow a middle age drug-addicted munchie who acts like a child, and if there’s no fame and money coming in, why would Judd stay around? And family isn’t forever if it’s just your parents. Karma’s a bitch, sometimes it just takes a long time to catch up. She’d be lucky to be caught and given psychological treatment at this point, because she’s on a long downward spiral, unless she gets a line infection and dies sooner rather than later, which is definitely a real possibility (honestly I don’t know how it hasn’t happened already). She may be living the munchie high life now, but it can’t last forever.
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Yeah or a pain pump for her sooper severe chronic pain. She’d probably talk them into being on a ketamine pump so she could live with NOOOOOOOOOOOOPAAAIINNNNNN forever and ever.
This is going to be one fun “adventure” for the munchie Queen come Monday. I’ve been watching some OG Jaq and she really is such a different person. She can’t handle even the slightest discomfort. She’s cocky now, acts like being internet famous is like being Hollywood famous…
Judd, too. Y’all come approach us when you see us in public (unless we are handling a medical emergency)…
Dafuq are they smoking? I really look forward to the day her fans realize they’ve been had and that Jaq is just cruising around on her Barbie Car throne of lies full of gadgets that they paid for.
She sounds creepily manic when she reads the fortune and then squeals with glee that her decision is to get surgery.
>>468181>>She sounds creepily manic when she reads the fortune and then squeals with glee that her decision is to get surgery.
Manic is a good word for it. I hadn't thought of that yet, for some reason. But when she talks about anything medical, the way she talks, her gesturing, her laughing etc… all
I just caught up on three or four Jaquie videos. Her "feeding tube pain" that has been present for a long time but somehow prompted an ER visit this week, sounds very much like the kind of pain many people with EDS would have every day. The way she describes it and the fact that it got worse with her "violent vomiting spell" sounds to me like normal rib pain in EDS. If your joints are quite loose, your ribs tend to shift around a bit as well. So if you cough, sneeze, startle, vomit, move wrong or even breathe out with too much force (like you might do when singing), you can very easily hurt your ribs. Once this happens often enough, the pain becomes chronic.
Jaquie was supposedly so worried because "it was connected to my breathing"; yeah well, that's what happens in rib pain, Jaquie. Your ribs move if you breathe, so if you have a slipping rib and/or irritation of the rib cartilage, the pain changes with your breath. It sucks and sometimes it really
sucks, but hearing her talk about it convinces me even more that she is NOT someone who deals with severe chronic pain on a daily basis. I can't think of ANYONE who actually has
daily severe pain who would talk about it like that. I was watching at her and could REALLY not understand what I was seeing because the way she talked about it just doesn't fit in any way with what she presents herself as.
Who knows, maybe it's not even irritated cartilage but just the intercostal muscles she is feeling. Those can hurt quite bad too, but imho not nearly as much as a true slipping or dislocating rib with inflamed cartilage does.
She insists that she doesn’t have any mental health issues (and sometimes the way she says it is really off-putting like she’s better than those with mental health issues). I don’t buy it. I doubt she’s being truthful about her mental health or lack thereof. Like really, really doubt it. It’s another thing she tends to over-explain which is one of the tells that she’s full of epic shit and dumbfuckery.
Here’s another one of the videos that really screams “manic” to me as well. Then there was the one pretty recent where she screams embarrassingly that she now does Disney with smart drive, custom (always dropping that c-word on us!) wheelchair and a SERVICE DOG! and then she arm flails and drives the Barbie Car off into the sunset whilst Judd is behind her recording and probably wishing he had a paper bag or a ski mask on his head. Maybe he could use a few of her vog masks to hide his identity.
Judd’s got to be mental at this point… six years with Jaquie would drive even those with the strongest mental fortitude insane.
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Right? Anon you made me think of something else… her so-called cataplexy. She goes OTT manic quite often, but we never see it culminate to a cataplexy “attack” or whatever TF it’s called. Ever. Another piece of shit lie.
Here are a few photos from that “episode” of Jaq’s Shit Show that really do tell a story of a pathetic munchie who is in desperate need of a medicalporn intervention. All of these useless “goodies” she buys off Etsy with the sweet phat Patreon loots… she looks like she’s about to piss herself she’s so giddy to get her hands on this stuff… the first 10 seconds of that video are just so awful and show us that Jaq’s life IS Munchie Barbie and she is in so deep, there’s no turning back without the shit hitting the fan.
For those of you who can't watch Janiece: (I only manage sometimes, but I bit the bullet today)
-Janiece had her SmartPill today
-She was "very excited" about it
-Pill was hard to swallow, mainly because Paul and Janiece kept laughing while she tried it (WHY?? I've never seen someone act that silly during a medical test)
-Also went to her primary today and commented like three times how "intrigued" her primary was going to be when she showed up wearing her SmartPill belt and stuff and speculated about how she would react
-Primary visit was because of a cough
-She went because she was sick with something she couldn't remember but was "bronchitis or something" this time last year, and according to Jaquie that means that she always gets sick this time of the year
-She got a steroid injection and an inhaler and was told to talk to her pulmonologist (again with the overprescribing US doctors!)
-Had to say how the primary mentioned she had lost weight about three times
-The PCP supposedly told her they should study her because she was 'weird' because she was very sick while her whole family is very healthy
-She mentioned how her brother was bragging about being so healthy his doc even waved the co-pay (??) and Janiece humble-bragged about being so rare and how doctors always tell her she is 'very sick'
-She returned to her GI's office in the afternoon to bring back the belt and transmitter (or whatever is in it) and is waiting for the PillCam to pass in the next few days
(BTW, are you supposed to just flush those? That doesn't seem very eco-friendly.)
All in all, a very uninteresting vlog of someone who thinks she is very interesting. It also reminded me of the title of one of her previous vlogs, which is "If the PillCam doesn't go as planned, we have a plan B" (regarding the endometriosis her GYN thought of) and how this means that she is hoping the PillCam will show something. I'm not sure what she is hoping for, but it's clear that the intention is to find something.
Now I do understand how if you've suffered with certain symptoms for a very long time it can be a relief to find the cause, but she is entirely focused on 'getting diagnosed'. Just like for other munchies, the diagnosis is more important to her than getting better. In previous vlogs she has talked about how "once I am diagnosed it will become easier" and it seems like she won't stop until someone finds something. She doesn't seem to realize that for about 20% of patients with chronic pain, doctors will NOT be able to find a cause. I don't think she will be able to handle not having a clear diagosis for her symptoms, and of course Jaquie will be 'helping' her to find the right doctors (read: those without a spine and/or no ethics) who will give their patients about anything as long as they are getting paid.
In the meantime.. Jaquie's surgery is today, right? Do we think there will be an ultra-short vlog showing her new tube and Jaquie screaming for more narcotics, or will there be no vlog at all today?
Yeah, I don't get it either. First it was constipation, then it was diarrhea which she says can't possibly be because she had her galbladder removed and hasn't changed her diet. Then she was put on a bland diet and it worked extremely well, but she only did that one day because.. I don't know why. Then she suddenly couldn't eat and instead of going back to the bland diet she went to the hospital where she suddenly could eat anything they gave her. She even said in I think yesterdays vlog that the hospital food was not only really good, but she did not have ANY abdominal pain with the food they gave her in the hospital. Yet when she came home, she suddenly couldn't eat again and was very nauseaus. Then her diarrhea came back, and now her constipation is back. But she has more pressing issues, y'all.
We kind of should go back and see what exactly changed and when, but I really
don't want to look at her vlogs yet again. So.. if anyone else is up to it: I'm sure we will all be very grateful. It should be somewhere between her anal manometry and her hospitalization.
O wait, maybe the turning point for Janiece was when she found those ghost pills in her stool? She had a vlog titled "are my GI issues getting worse?" where she decided that because she had some pill shells in her poo (which is, for the record, completely normal for most extended-release pills) she couldn't digest them or something. She called her GI's office and it looked very much like her emergency a few days later was because she was pissed that her GI did not drop everything he was doing and sent for her by ambulance so he could solve all of her problems at once.
If that was
the turning point, then no, nothing has changed. She just interpreted a normal thing as her being very sick and then manufactured an emergency. It's like she does anything to prevent actually getting better. If I had her problem I would be in PT yesterday, even
if I had other issues as well. I'd be happy to be able to actually do something myself to help. And even if it turned out that it didn't solve everything, I would at least eliminate one factor that could contribute to me being sick.
But of course as usual, Janiece is doing the opposite of someone who actually wants to get better. It's the same with her diet: she keeps bitching at people for suggesting she should try a low-fat diet because of her gallbladder. If I were in that position, I'd be sure to at least TRY it, even if my doctor had told my I didn't have to be on a diet. I would want to try and see if I was one of those people who's GI-system doesn't work the same after a gallbladder removal. But no matter how many people will tell her - from experience, even! - that some
people just can't deal with dietary fats as well as they did, she will keep telling them that it's not true and that she doesn't need to be on a diet. Now maybe
she doesn't, but as long as she doesn't give it a decent try (and that is NOT just one day - I'm looking at you, Janiece) she just CAN'T KNOW that.
People with real eds are used to pain, and they also don’t run to the ER any time something hurts, because they know the ER can’t do much unless it’s truly an emergency. Really, aside from a full dislocation that you can’t fix or breathing or cardiac problems, there’s actually very few reasons for someone with EDS to go to the ER; most things need to be done or at least ordered by their specialists, or just dealt with at home. Pain, joints slipping, headaches, nausea, dizziness, etc is just part of the deal, not an emergency. Besides, anyone with chronic illness of any kind who’s not an attention whore or a total idiot is desperately trying to avoid ERs and hospitals because of how bad the flu is right now. No one but munchie attention whores risk getting sick for very minor pain.
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looks like her sooper speshul mrsa is all cleared up and fine… can't have two emergencies at once, better focus on that new toob.
Didn't she also have bare feet when she tried on the non-custom AFOs in her first appointment a week or 2 back? How long ago was her supposed MRSA?
For all her chronic illnesses she claims to have and how they supposedly affect every part of her life and she feels so weak and in pain all the time, she sure accomplishes a lot in a day. Ever since she got her driving privileges back bitch drives somewhere every day, on top of her breathing treatments, tube and port shit, cleaning, "exercising", blow drying her hair (but only the front, in 30 second increments because my SPD y'all!), feeding Harlow, on and on and on. I get tired just watching her do all these things. I feel bad for her younger, impressionable viewers who may actually be ill, comparing what they get done in a day to J. It's sad they don't realize she's completely full of shit.
(sage for rage/bitching)
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she looks like a fucking muppet
I don't think she does have IV toradol for home use. She frequently does benadryl & zofran through her port and she has talked about getting IV toradol in the ER.
Does anyone have screenshots of her talking about self-administering IV toradol? I may have missed it.
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just saw her bare foot on the floor at her dad's house in this vlog at the 8:53ish mark.
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SWF is my favorite. this is incredible.
I'm the anon that just posted about the friend turning into a munchie. I agree it's terrible to start seeing munchies everywhere because they are quite rare. But this is not the case here. My friend has begun taking pics and videos of his medical equipment and soooper sick self to plaster all over social media, is doctor shopping, whining about how his symptoms are the worst ever but not wanting to do any testing, lifestyle changes, or even follow his doctor's orders for treatment. Instead he asks random people on the internet how they got diagnosed, what their symptoms were, what treatments they get, etc. He started a medical fundraiser. He claims one symptom one day then the next day forgets about it in favor of something else. I know him well and have the same disease he does and in the last year he has gone bat shit crazy with his health issues and it is consuming him…..just like all the munchies we talk about on these boards. I guarantee if he keeps this up, within the next year we will be discussing him here.
Sage for blogging, sorry, but it's fascinating to watch the step-by-step morphing of a normal-but-sick person into a mooing cow
In the latest vlog, she goes to the DMV, goes to the doctor, calls insurance, does all her medical care, does homework for college, edits a vlog, AND has Judd take her out for dinner. She even mentions she was sick in the morning. I honestly don't know how she fits so many hours in a day.
I think that would be a stressful day for even a healthy person. That's a lot of shit to do in a day – and a lot of annoying and hard shit to do in a day. I think it's odd (and telling) that Judd's answer to her sour mood was to take her to a crepes place.
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(And changing a gj is relatively the same, except the j tube has to be put into the small intestine, [which is why it has to be done in a hospital with live X-ray], where there are no pain receptors kek. No sedation or asspats necessary.)
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Yeah. It’s definitely not something recommended for long term use in EDS.
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Janiece has definitely lost weight. It very well could be that she's just not eating because "she's so sooper sick and can't eat" when really she's not eating to appear sick, but she does look thinner.
Okay, so she pretty much never feeds Harlow lamb. It's almost always beef, chicken and organ meats. Yet instead of choosing beef (yellow bag) or poultry (blue bag) she chooses lamb (pink bag). Because ya'll everything must
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Every video on her channel has, in the "like what you see" section, a link to her feed bag backpack and a coupon code. So she doesn't know how sponsorships work but she somehow magically has a coupon code and direct link to the company's website on her daily vlogs in which this product is prominently featured. Sure Jaquie
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She's so not sponsored ya'll. She has no idea what that is. eye roll
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Again with the hair in the raw meat
She got called out in the comments before about having sponsored videos and that coupon code. She said something like the company just "gave" her that code because they're just so awesome, and that Kate Farms gave her AND her friend free samples because they're a great company. She made sure to say none of her videos are ever sponsored but if they were she would definitely disclose it because the law y'all.
But now suddenly she doesn't know how any of that works.
I've been doing a lot of thinking and digging around re: J's anaphylaxis and angiodema attacks she alleges.
Now, plz don't ban me as I promise this is relevant. When J claimed anaphylaxis (rashes, throat spasming, and swelling), it got me thinking. Your throat doesn't spasm with anaphylaxis or angiodema. I've asked numerous doctors who I see regularly who bring up my history with anaphylaxis when I see them. So throat spasms? The spasms are BS or it's something else, but not anaphylaxis from angiodema or your 'typical' allergic reaction.
Another thing that stuck out as a red flag was her swelling which we've never seen. My swelling definitely doesn't go away with epi, or other rescue meds (and
Chlorphenamine or Diphenhydramine NEVER abort attacks when they start to get to swelling of my lips, tongue or throat). My swelling is visible normally til the next day. Because this is my personal experience, I reached out to others I know who have anaphylaxis from allergy or angiodema and they've all said their swelling is same. It hangs around for hours and hours, sometimes a whole 24hrs or more.
During my last op, an anesthetist went through my allergy list and asked me to list my reactions. I didn't mention rashes, so he asked me if I got them. When I asked him are rashes always a precursor to anaphylaxis he said no. That actually a rash is very mild, does not require rescue meds unless things such as swelling (majority of people say it typically feels like burning or tingling) in the lips, tongue and throat.
I know I mentioned my personal experience, but I reached out to others for their input on this. It seems like J is most likely fibbing otherwise we'd have seen swelling after the attack has passed from active swelling.
I will probably get banned despite info offered for reference along with info gathered from others..But I wanted to put that out there for your consideration.
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Toradol, contraindicated for, among other things, people with angioedema and asthma. Can also cause MAJOR and sudden heart and stomach problems. Call me crazy but if I was Jaq and truly had all these various health conditions, I'd rather take my chances with narcotics slowing down motility than risk the bodywide complications of something like toradol.
When? Did I miss something as she still claims MCAS?
Sorry for my essay but her whole anaphylaxis and angiodema bs has bothered me for a while so I decided to reach out to many others to confirm what I already knew.. She's a liar.
What's sad about this entire issue with Jaquie is that she really had the potential to do something really good with her education and life. Instead she's purposely wasting it playing poor sick girl.
She's a totally different person to her first videos. And I don't mean in confidence being on camera. But her entire personality.
Oh yes, I remember now.
Tbh, so many people seem to be following her footsteps. Every EDS insta I see has MCAS and GP. More recently immunodeficiency, too.
There's even one girl claiming mcas who just had a port put in (same manic cheese smiley and excited look for her port). All I see is some redness where tape was pulled off. My eyes couldn't roll any further into back of my head.
Anyway back to J - I hope this all catches up to her. She makes the real sick people look like they're bonkers.
I believe she may have had true anaphylaxis once because didn't it happen in the hospital? I guess we only have her word for it but since Jaquie seems to exaggerate rather than out and out lie, I think she had a reaction even if it wasn't super life threatening.
Since then though I think she just has severe anxiety about having another attack and a lot of the things she thinks are symptoms of anaphylaxis (feeling a tightness in her chest) are just her working herself up to a panic attack whenever she gets a rash.
A lot of her symptoms for everything can be explained by anxiety but Jaquie doesn't have mental health issues, y'all, so she'll never accept that or look into it or get it treated.
Only when she got Red Man Syndrome (just like Mary Frey!) from antibiotics.
Her "rashes" are just redness from her scratching at herself.
While real, it looked to me she added a red overlay on her legitimate Redman reaction to make it seem worse.
Agree, it looked genuine, and a nurse was there at the time, you can't fake redmans.
When you have a Redman Reaction, you have a Redman reactionif she was being monitored there is no way she could fake that reaction.
That being said, ceasing Vanc because of one Redman reaction, unlikely, the common practice is to continue (at least initially) at a lower rate.
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Yeah I think she had some degree of Redman's, a super common reaction, then doctored it up. No nurse is going to tell someone "Calm down you're fine," because that's a sure path to being there all afternoon. I could practically see the nurse rolling her eyes in that video too.
In this screenshot she looks much redder than she did a few seconds prior in the video. This is of course what she used for the video thumbnail.
If there is a mild reaction to a medication that you NEED and that reaction can be treated/ made less unpleasant they do that and you just continue with the treatment.
Sometimes the only treatment IS one you react to, if that reaction isn't going to be worse than what they are treating you for then they just make it less unpleasant (anti histamines, slower rate etc) and carry on.
I think it's pretty safe to say that Jaquie doesn't care about the environment. I assume you are talking about today's video which I have not seen yet, but even then: she feeds her dog raw meat (that could potentially feed a LOT of people, btw), she eats meat every
single day, goes everywhere by car and she creates a LOT of medical waste that she does not need. If you are trying to reduce your footprint and you happen to be feeding tube dependent or need other medical stuff (that usually leads to a lot of waste) that sucks, but you can't help it. Jaquie however, does not need a lot of the stuff she uses. And she uses those desinfectant wipes a lot (and she probably thinks they actually clean and desinfect even if you don't clean the area with water and detergent first?). So I'm not suprised she uses paper towels instead of normal cleaning rags either.
May be a bit petty indeed, but you're not the only one. She is - unfortunately - seen as a role model by many young women. Think of what she could do if she actually used that for good, like setting an example through things like eating less
meat, producing less
waste and well, being mindful on a lot of other stuff as well, obviously.
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She's definitely reading here. Today she put on screen in text that she'd washed her hands.
Then with cleaning proceeded to wear gloves and then a mask (I mentioned a while back about not wearing a mask when dusting or doing Harlows nails when she says she's allergic to dust…)
Also, look at her toilet seat. She didn't clean it. Barf.
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And heres the big lead up to her completely unnecessary surgery. You really have to be fucked in the head to put yourself through not one but two unnecessary surgeries. She’s probably got a huge shit eating grin underneath that mask, since she’s now talked her way into nearly everything she wants. I’m sure in a few weeks or months she’ll suddenly require TPN, though, since she’s never satisfied with her level of munchieness.
kek, bang on!
She wanted redman syndrome because Mary Frey had it.
If she'd have needed to take the vancomycin, she'd have kept on taking it and putting up with the side effects. But no, let's make the "immunodeficient" body immune to the effects of antibiotics instead! idiot.
She’s so ridiculous. Why on earth can’t she drink? She’s not saying why, just that she can’t.
What is it with Florida? Do they have something that makes you super munchie? There’s J, J and Amanda plus another one on the munchie thread.
She could hold the record for quickest decent into full munchiedom. If she'll actually manage to munchie herself into a toob and a port, I don't think I could ever trust a doctor again. I know it's the patients that are lying and it's difficult enough for their doctors, but REALLY? Janiece's munchie-ing is SO friggin' obvious, if they can't see through THAT, then frankly they don't deserve to call themselves doctors.
wonder how it'll all play out though. If her results from the smart pill are normal, will her doctor FINALLY tell her she has IBS, needs to do her pelvic floor physio and tell her to find an IBS-friendly diet, stick to it
and leave him be? Or will he order even more tests, book her for exploratory surgery and put in a tube? That would be really, totally, batshit crazy. It truly would be.
>>470853>>Somehow she manages to piss me off more than Jaq.
I know! I am the same, and I cannot quite put my finger on it.. why
does she annoy me so much? Jaquie is WAY more manipulative then Janiece is. But Janiece is SO obvious in her munchieness. Jaquie maybe
believes to a certain extent (like 20%, lol) of her own lies. Janiece.. I'm not even sure. Sometimes I think she knows what she is doing, and sometimes I think she is 100% convinced that she is the sickest of the sick.
She is just erm.. not very smart, maybe that's it? She is showcasing her dumbness all over the internet. Drawing wild conclusions while everyone
who is watching her and has half a mind knows she is BS. Plus the way she bitches about nurses and doctors.. I'm not sure. Really, I don't know what it is. She just grates me, somehow.
She says the channel name is because she gives viewers - the raw truth.
Not making that shit up….
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Jaquie inadvertently gave out some info on her feed rate. She says she's packing for a 5 day hospital stay and she has 15 containers of formula laid out. So that's 3 per day, at 500 calories and 325ml per container.
Well her doctor did tell her to get most from food and then only top up with feed if she didn't manage her oral intake?
But yeh, basically she is almost entirely tube dependent despite her doctor telling her she can have the majority of her inake orally.
This. She's got to keep up her act carefully when in the hospital surrounded by medical personnel. She can't go there for them to put in a second tube while she keeps stuffing her face with her standard creamy cheesy chicken.
It's just her hospital stay feeding rate, not her usual feeding rate.
Her MOM is staying with her in the hospital the first night? What is she, eight years old?
And the "there will be times in the hospital where I will be alone". Erm.. yeah, that's basically what a hospital stay IS? Very long days because you are alone all day? I have visitors when I'm in hospital. Usually even every day (no matter how much I tell my family they don't need to make the drive every single day - but they're sweet). But visitation hours aside, hospital stays are pretty lonely. She has been in hospital many times, how can she talk about it as if she is a toddler who has no idea?
And the bed scene (with her stuff laid out on the bed) was just odd. Why would she need to show us how many socks she is taking and what kind of completely unnecessary hair and skin products she takes? Again: like a toddler going on a holiday with the 'look grandma/grandpa, I packed my bag!'. Also like a toddler, she is 'looking forward' to wearing her new PJ's when she is in the hospital. Er.. OK?
Also something we learned in todays vlog is that Jaquie can cook three meals at the time without having to rest in between. I don't know, but most chronically ill people I know have difficulty even cooking one meal a day every day. Most either cook in larger batches (three or four portions of the same food when they live alone, and freeze them separately) or have a few very easy go-to meals and/or use ready meals. I don't think a single one of them manages to actually cook every day with cutting veggies etc. Yet Jaquie can. She can also clean the whole house, drop to the floor, reach high and low, and apparently shave every couple of days. Again something most chronically ill or disabled people don't do if they don't really have to (like during the winter. She apparently is planning on washing her hair and shaving her legs while she in the hospital.
The day a hospital patient can wash their hair and/or shave their legs, they should have been discharged yesterday.
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A public post on her Patreon. She made it, y'all! That pic looks like hospital porn.
Cry me a fucking river Jaquie.
She's so spoilt.
Jesus that picture is embarrassing. Judd, take my picture! No wait, lemme pull my gown up and arrange it to look accidentally askew and showing my surgical site like maybe
I'm not a disgusting medporn cow. Okay, ready! Cheeeeeeeeeeese
"I’m sure the hospital staff is going to stay away from her as much as they’re ethically allowed to."
Oh yeah. They'll keep the dila..dila..dilad-whatever it's called, and the ateee, ata, Ativan coming to keep her ass knocked out and off the call light
I believe someone on here dug up some info that suggested
(this was not something J said) that she goes to a concierge doctor who is her GP/POTS doc? For a concierge doc, you pay a monthly fee and can call all the time, sometimes text, etc., anytime you want. Most people do not have these types of doctors.
I always though Jaq's weirdness with her dad is that he's going deaf and Jaq being Jaq puts zero effort into figuring out how to communicate with him - making sure she has his attention before she speaks, speaking clearly and not too fast, repeating things if needed… she just mumbles something fast and throws up her hands "I don't think he even heard that" in a 'oh well' kind of way.
In a way I feel for you because it's hard when your parents age and things aren't the way they have always been between you but it's Jaquie, she's too chronically selfish to think of anyone but herself.
I agree her dad's stroke could have sent her into munchie overtime, though. Nothing like someone else getting attention to make her throw a tantrum.
Yeah, that was interesting. I think she said something like that two times in the vlog, and the way she said it had me wonder if she meant that she usually knows what's going to happen when she is in hospital, like she controls it. Which might even be the truth, at least to some extent. I mean, her annoyingly OTT reactions post-ketamine are obviously acted (and very badly
) so while she is trying to convince her viewers that she isn't in control at all, in reality she IS. And I'm sure there have been other hospital admissions where she was the one in control of what was going to happen. But after an actual surgery, you are not in full control until you regain some of your strength. She must hate that thought SO much.
Sometimes I wish she really WAS as loopy after ketamine as she wants her viewers to believe. Maybe she would slip and say something that gives her away. Although she would edit it out for sure, the nurses and her mum/Judd might hear it.
>>471622>>She packs for the hospital like people pack for vacation.
And is as excited about it, too. I agree it had a really weird vibe.
>>(most people would do that surgery outpatient)
That definitely is true for PEG or PEG-J/GJ placement, but is that also common for a surgical jejunostomy? It's mostly done during other abdominal surgery of course (though in those cases they wouldn't do a Roux en Y, but rather a needle catheter jejunostomy, which is a more simple procedure but mostly useful for a short-term need for J-feeds). So it's difficult to find more info. But her doctor does an open procedure, so I doubt that the norm would be out-patient. Maybe
if it was done laparoscopically, but to be honest even then I would expect them to keep the patient for the first night at least.
Does someone know for sure how long patients usually are in hospital after this particular procedure, an open Roux en Y feeding jejunostomy?
Chronically Selfish is a good title for the next thread maybe…
Considering how much every has to adapt to HER issues, you'd think she'd be mindful of others'. And don't give me that "autism" shit
Thanks for the warning. Could you maybe give us an overview, so we don't have
to go deaf watching it? We'd be in your debt for at least a day or so..
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lol little miss always gets her way may actually be suffering for the first time
Or she is setting things up to add another abbrevation to her list of diagnoses and get the most out of her admission.
I mean, why wouldn't she be able to pee? She had general anesthetic, not an epidural (and it would be pretty wild if they gave her one just for post-op pain management for a surgery like this). She never mentioned problems like this before, either. Now of course EDS can
cause the bladder to stretch too far and lose it's fuction or cause problems through prolapses of pelvic organs, but let's not forget that she doesn't have EDS.
I'm not paying just for more milk, but I'm sure she will tell all about it when she gets around to posting her vlogs. Welll just have to be patient.
Maybe, but the way she gets embarrased talking about certain stuff makes me think she's a bit prudish. So I don't think she would willingly get herself into elaborate urological testing and self-catheterisation. I think she is just using it for attention now. She can't have a surgery and not have anything go wrong, of course.
I could be wrong, of course. But catheters aren't as glamorous as feeding tubes apparently are, for some reason I still don't understand. And I'm also not sure if you can fake urodynamic testing.
Though if she needs a catheter even if it's just for one day or if they had to catheterize her once when she was just out of surgery, she will make a big deal out of it, of course. Telling us all about how horrible it was. Of course, thousands of adults and kids catheterize themselves six times a day and are totally fine, but if Jaq would need it she'd probably be traumatized for life.
A while ago we've tried to predict the new trend in the general munchies thread. Some correctly thought it would be TPN. Would we be able to predict Jaquies next diagnosis, or her next toy? Wisdom of the crowd and all?
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On her video today… eye roll. Allergic reactions and catheterized.
Kek it wasn’t her family, friends, doctors, or God that got her there, it was only her determination, her determination to be sick when she’s not, her determination to whine and push her way into medical treatment she for sure doesn’t need, her determination to find the specific doctors that are stupid enough to think she’s actually got illnesses she very obviously doesn’t have, her determination to manipulate as many people as possible, her determination to be the world’s biggest, brattiest, most entitled cunt of a munchie.
Returning function of the bladder+bowels is one of the things they monitor after general anaesthesia. Loss of or diminished bladder function is a common side effect. Even with outpatient surgery, they tell you to monitor it and if you can't/don't need to go to the bathroom within a certain time, you have to come back for an eval.
Trust Jaq to milk that for all it's worth, though.
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Jaq with her sooooper speshul autism face Judd with his 'kill me now' face…
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Jaquie's stalker is winning the who is bravely suffering the most? game!
(but she's not feeling so bad that she can't take a selfie with her eyes closed to show how sick she is)
And that right there should tell us all how cunning and savvy she is! And how much is scripted or outright faked. Editing can do SO much it's crazy. So can distractions. All the props and symptoms and flares, they're all used the same way a magician uses distraction.
She's also either got such bad OCD her she needs a psychiatrist stat, or she doesn't want anyone else to be in control of her "care" while in hospital because she's afraid they'll catch on to her. And maybe I'm just a slob but in her cleaning hack video comments she said she cleans the kitchen and bathroom twice a week. That screams OCD to me. I don't know any healthy
people who clean their kitchen and bathroom twice a week and definitely no chronically ill people that do. WTF does she have to bitch and complain about if she has the energy to do that? Focus it somewhere productive that doesn't involve an income/job based on you remaining sick.
Geez, maybe she should offer cleaning services to other Florida Munchies?!
Or given how much she has been going on about God and prayers recently given she can cook 3 dinners with little effort and LOVES COOKING Y'ALL maybe she should make some meals for local people who need them?! Or you know..just contribute to society in SOME way!?
I keep wondering how long she can keep all of this up without being blacklisted across health care facilities. Some health care professionals must have twigged that there is a factitious/malingering component to her presentation, but then what? How do you challenge someone that has descended so far down the munchie hole?
I just read a fascinating write-up (http://www.sciencedirect.com/science/article/pii/000579169090010I
"A treatment program for paraplegia/munchausen syndrome") of two patients who presented as paraplegics, but were determined to have Munchausen syndrome. The treatment plan seems to focus on validating the patient's symptoms while giving them a face-saving out:
"In both patients, whether the condition was labelled hysterical conversion, Munchausen Syndrome or malingering (conversion disorder, chronic factitious disorder with physical symptoms or malingering - DSM III) certain features are most important to successful treatment.
(1) Take the patient’s symptoms seriously - never mention the words hysteria or malingering.
(2) Give a logical-scientific explanation about the nature of the symptoms.
(3) Give the patient hope and build a golden bridge to health, enabling recovery without loss of face.
(4) Reassure the patient in such a way that there is no loss of face.
(5) Provide treatment that is somewhat aversive, demonstrating on the first session that the magic works.
(6) Close the door behind the patient, i.e. permit no escape or relapse until full recovery is achieved. Pursue treatment on a daily basis.
(7) Videotape for demonstration and a permanent record, feedback and rehabilitation."
I hope for everyone's sake a doctor emerges that is able to offer treatment along those lines.
No, Judd and Paul were long-time friends, but J&J only met through them.
I for one think anon's theory is correct. It makes perfect sense, and its the only thing that manages to explain how those two friends ended up with those two munchies. We were all wondering and speculating what was behind that, but until now had no satisfactory answer.>>472963
I don't think you should have saged even, that is very relevant and useful new info!
Sorry to samefag, but this being a contract maarriage also explains Jaq and Judd' s passive aggressiveness towards each other.
I'm pretty convinced anon hit the nail on the head.
My speculation — The timing to her naturalization from when they got their marriage license doesn’t work out so she could a spousal citizenship.
She had probably, months before applied before her current card expired, since to renew you pay a fee that’s equal to about half of the fee for applying for citizenship.
I don't think they have a contract marriage (although I'm sure those exist) but I do think Judd and Paul have pretty traditional expectations of marriage: wife stays home, cooks, cleans; husband provides. They both also seem to have a knight in shining armor complex where they want to be seen as the hero and rescuer of their poor frail princesses. tldr; I think both Judd and Paul are into the whole thing - the fantasy of it anyway, even if in practice it is less sexy and more doing all the chores while their wives watch Disney movies in bed.
Was/is Paul even in the military? I thought he was part of his family's private investigator business?
Military won’t take people with Chrons’s and Paul has it.
Judd and Jaquie have known each other for like six years… so are you guys trying to say she was contracted to Judd at this 15? Really think about that for a minute. It’s nuts…
>>473440>> she definitely seems to have severe OCPD.
I don't see it. She is a control freak, but OCPD? Granted; she could be perfectionistic without it showing much. I don't see how she has very high standards for herself or her work, but many perfectionists have an all-or-nothing attitude so she could have given up on certain things and use her illness as an escape. Perfectionism correlates very highly with factitious disorder. But the other symptoms? Hoarding (according to Judd she throws away everything) overconscientious and inflexible in matters of ethic and morality (nope), not being able to spend money, only being focused on work and productivity to the point of not having any leisure time? Really, I don't see it.
I've said this before, but I think she DOES fit the criteria for schizoid personality disorder. Also something that can very easily be misdiagnosed as autism. And of course some narcissistic tendencies, but that's something almost all munchies (at least the ones who are online attention whores as well) have in common, as well as some histrionic traits.
People frequently conflate OCD and OCPD.
OCD is driven by intrusive thoughts, paranoia and delusions and is very distressing to the sufferer. The children's skipping rhyme "Step on a crack, break your mother's back" is a simplified example.
OCPD is a personality disorder which is usually egosyntonic but can be disruptive of detrimental if it leads to hoarding, an inability to finish tasks and projects, or if cleaning interferes with daily activities.
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OCPD can manifest as minimalism, too. OCPD-driven hoarding can include collecting all of the things in a narrow field of interest and/or inability to dispose of things that may be useful in the future, but always in a very organised manner.
Adhering to rules and ethics can manifest as adhering to one's own rules, not necessarily society's rules. And rules can refer to self-defined rules of behavior such as eating (see, orthorexia and other patterns of disordered eating).
Being hyper-focused on work can manifest in spending inordinate amounts of time and energy on hobbies or preoccupations such as being a munchie.
Again, OCPD is egosyntonic. People with OCPD consider their traits to be positive and to make them better than other people.
>>473715>>can talk calmly to the camera for a few minutes>>is on a pain pump
Maybe it's me, but I don't understand that.
I know abdominal surgery can really wreck you, but she is calm and is talking to the camera. She was even before she got the pump. She keeps saying she needs more narcotics because her EDS causes her to metabolise it faster, which is BULLSHIT. Local anesthesia can
work to a lesser degree in EDS (though we know Jaquie was fne wih it before she was tokd she could have EDS) but narcotics do NOT work differently in EDS. She keeps repeating it and repeating it, and now even Judd said it. I don't know where she heard or read that, but it seems like she thinks it will become true if she keeps repeating it.
I’ve suspected it from the beginning that she’s an addict. I also think Janiece to a certain extent as well. Early JanJan was very slurred and then there was the time she ran out of muscle relaxers and was bedbound three days later (uh-huh) when she was dying in bed.
So I think (maybe a medfag can verify) that they can tell how often she is pushing her D on Demand button (buh-un?) even if it’s too soon. So, say she gets dose XYZ mg per push but it locks her out for like six minutes per dose. That doesn’t mean she won’t stop trying to push it and a lot can be told if someone is just mashing the drug button every 37 seconds. Maybe someone that knows PCAs can answer.
Basically, yes, you can tell how many times they've pushed the button in both a lockout period and in general. This can be a sign that their pain is not under control, and pain services can increase the dose or start an underlying infusion. I think a better indicator is WHEN they push it. For example, of she's locking herself out while she's awake, but then sleeps through the night with zero pushes? That's a bit more of an indicator that her pain isn't bad enough to wake her from a sleep, so there could possibly be a different reason for her pushing her PCA so often during the day.
sage for medfagging
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I'll just leave this fuckery here.,
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Even other EDSers are like dafuq?!
Hard to tell the timing in the vlog but seems like they removed her Foley catheter too fast, esp. considering her supposed severe EDS. If she's a fall risk, why not leave the catheter in for at longer so hospital doesn't have the risknofer mobilizing for a pee?
Also, she didn't discuss but if she was given reglan for nausea, it can cause urinary retention.
Listen to how Jaq's mother talks about her though… being so courageous and strong and how proud she is of her. I wouldn't be surprised if this enabling and treating her as the golden child has caused her to have narcissistic personality disorder.
See scenario 3:https://www.psychologytoday.com/blog/understanding-narcissism/201705/how-do-children-become-narcissists
Toddler Jaq is in pain from her Jtube surgery, but has her mommy, her dog collar, her filthy stuffed bunny, her heating pad and her new blankey to comfort her. Oh yeah, and a Dilaudid pain pump and intermittent Ativan injections to keep her on a steady opiod/benzo high. Apparently her complex anatomy was magically amenable to a 2nd tube but the general anesthesia failed to give her the opportunity for another post-Ketamine staged performance in Recovery. But even moaning in bed, she has her camera at her side to capture the drama—never too sick to film! Amazing that insurance pays for an extended stay that at most is an overnight short stay hospitalization for others. When she comes out of the haze, she can once again get back to her cyberchondria research for JT complications.
Meanwhile, an hour and a half northeast, Janiece forgot that she was so desperately ill with her forced cough,constipation problems and inability to even make it down a flight of steps at home and was able to walk–not ride in her wheelchair–thru the airport to pick up her mommy. Then she was grinning like the Cheshire cat in anticipation of the gifts she expected from her Italy trip and excited to have her mommy reprimand her for losing weight. It's amazing how much energy she has, and how illness takes a break, when she is distracted.
The J & J-attention–seeking-shit-show drama comtinues…
Her post-anesthesia vids are so painfully fake and cringey, I get so triggered
lol. I haven't even cringed that hard at bad acting in Acting 101 classes. Anyone who believes that shit is beyond dumb.
She is watching the edited version of the ketamine video. the exact version that went in the vlog. Which means she wasn't watching it for the first time here (because she's the one who edited it), yet she clearly said "y'all wanted me to film my initial reactions to these videos, I don't really remember anything, my loved ones take the videos, and it's always such a blast to see how silly I am when I wake up. So that's what we're gonna do."
Then she proceeds to watch all this edited footage and pretend she's watching it for then first time. Cracking up constantly, fake laughing, saying "I'm just so full of love!" At the moments where drugged-jaq is saying "we just gotta loooove each other, LOOOOOVE each other". She doesn't seem very apologetic for all the yelling. In fact she thinks it's hilarious. She thinks she's
hilarious. She even started off the video by saying "this is gonna be a funny video". She laughs nearly the whole time, gets super into it, but apparently no cataplexy to see here. She also fakes confused at her random comments, like about the cows. She's all "what???? Hahah" she sucks at acting.
She looses it at the "no pain" shouting. She thinks it's the funniest shit.
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She's lying about something, even if she did film it on the day.
In the original vlog, she goes home from the infusion and says she has slept all afternoon. Its dark by the time she is able to be awake. Because the higher dose of K left her much sleepier than usual, according to her.
Yet in the reaction vid, it's day time. She is in the same clothes she was in when she came home from the hospital, with the blue blanket that Harlow brought her in the original vlog. So it must have been filmed after she ordered her slave dog to bring the blanket. Even though She said she was going to sleep then (according to the original vlog), because she was SO tired.
But there's still the issue of her reacting to a perfectly edited portion of the vlog. It's exactly the same. There is just no fucking way that her mom filmed it like that. There's no pausing between funny bits, no holding the camera while nothing is happening etc. There'd be a lot of nonsense between all the highlights and I'm guessing her mom just kept filming (not starting/stopping/cutting every few seconds). She'd just be filming the whole thing as not to miss anything. She's not an idiot, she's not the most tech savvy but there's still no way she'd be able to pick the camera back up and catch jaquie right as she says all her lines.
Jaquie likes to edit. She's pretty good at it. She'd definitely want to edit that footage for the vlog for maximum hilarity. Her mom would've filmed the whole thing, Jaquie would have edited it and then filmed her reaction video afterwards, all before it got dark and all while she said she was asleep.
I always wonder how she stays on top of hate replies/comments. There’s got to be a lot of them… and she has to sleep some time. Something about that whole situation has never really added up for me. I’d love to leave some good hate for the snatch but it seems like a waste of energy because she’ll just delete it.
I also saw one time that Chronically Amy posted a video (that must be deleted now) where she was pouting because she was getting a ton of hate. And she was like “Jaquie never gets hate” to which I replied something like “you’re kidding yourself if you think she doesn’t get hate, she deletes it.” And then she deleted my comment. Weird. But that one is another shit show of Jaquie copycat dumbfuckery.
General consensus is that Mary is obviously actually sick, but fairly ana-chan and doesn't take great care of herself (because being ill gets the views).
Now please don't start with the aggressive white knighting. She only gets brought up here a lot as Jaquie seems to be copying her so much.
She’s claiming to have some sort of PTSD after her “traumatic” bone marrow biopsy so she likes to get her TWO doses of versed before going into the OR because it’s soooo skurry. She says all of the instruments and the people in masks speaking “medical jargon she doesn’t understand” make her nervous or some shit like that. I can’t remember which video she explains it in, but I’ll try to find it.
You bring up a great point though, anon. Just more proof she’s full of epic shit.
I meant in terms of the romanticization of it, like how TB was romanticized in the Victorian era. Now TB isn't because only icky homeless poor people have it and that's like so gross. So these munchie girls who want to be frail little angels want CF.>>475076
Well, less pants shitting than Crohn's/IBD, lol.
CF, gastroparesis, immunodeficiency, cancer
anything "thin" or "dangerous" really.
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She should be home by now but of course in true cow fashion she’s milking them for all of the things… for example the dilaudid PCA that is still on and in the photo. And asspats from Aubrey of course. And if you like to look at her crusty stomach she posted two tube photos.
And the dog that literally serves zero purpose in her admission. OTT FTW. Gets ya more attention and asspats I suppose.
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Look who’s coming to wait on her biffles this weekend… must mean Jaq’s getting out soon. Or maybe JanJan is staying overnight in the hospital with her since Mommy and Babe have real jobs and stuff. Jaq cant handle any bit of discomfort… women get babies cut out of them every day and go home in a day able to fully tend to their kid(s) and Jaq needs Janiece to nurse her back to health. Oh it’s probably because of her EDS that she doesn’t have.
Right? The butt boil and MRSA toe sure faded into the distance fast and j-tube was the illness du jour.
Ok so now that tube surgery is done… what are we guessing her next move is? Tube that still kinks demands TPN? I still don’t understand why, that if her Kate Farms is so gloriously nutritious, she still gets banana bags. That’s like way overdoing it as far as the vitamins go. Maybe she’s got slow motility because of all the extra iron in her unnecessary tube feeds and banana bags.
"that fucking Anne de Bourgh, lying there on the chaise longue all beautiful and listless…. I bet she only does it for the attention and portraits people paint of her"
sage for lit geeking
Thanks for the summary.
She's certainly full of something. I'm not sure if it's love, though.
She's also got some impressive splenomegaly, which makes eating hard.
Further, all that coughing burns a lot of calories.
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Quick question… how in the fuckety fuck does Jaqs skinwalker possibly have the same “kinking” “tube migrating” issue that she has? It’s just NOT possible! Those tubes are anti kink, for both of them to have it would be soo rare. I’m just shocked that she’s going to such lengths to copy her, to literally get inside her skin.
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Also sorry this was supposed to be attached but this was the photo skinwalker posted along with this paragraph.
She is seriously creepy and full of shit. She has an eating disorder which she his masking under that turrrible gastropuuuresis. She literally has every single thing 99% identical to Jaquie. I was going to do a little research and timeline one day back to see how they chronologically compare chronically. But decided not to for whatever reason. This new kink issue and “tube pain” as “they” call it has piqued my interest again. Amanda is a crazy bitch and she probably treats her nurses and care providers about like Paul and Janiece do. It is all just to eerily similar. Amanda started a vlog but realized it was going to be hard to get a following because I think she only has like 20 subs. She comes off on her videos as a complete snobby bitch. There is a major “holier than thou” attitude.
Also, why are all of these spoonies so far up Kate Farms’ ass? That’s weird as well. Very OTT when they talk about the sooper nutrishun and how it saves their lives.
I agree. I started watching her the same time I started watching Jaquie and even if she is milking the vlogger thing, she’s at least a kinder individual than Jaq & crew. I believe that she and Peter appreciate the medical providers and nurses, even having fun and pranking them. I’ve been wondering myself how long Mary actually has and what will happen when she does pass away. They’ve built quite the following and I don’t see Peter vlogging without her. I actually see him kind of lost. His life is her and in a more loving and kind way than Jaquie & Judd.
I was thinking more about Amanda and I have a feeling she’s going to angle for some good ol’ IVIG, have a shit ton of reactions and need 29 pre-meds. And the IVIG will magically make her able to tolerate TPN.
The whole “tolerating feeds” issue with these cows is really becoming ridiculous and fad-like. You’re not a cool kid if you aren’t on Kate Farms. You have a hole in your stomach with a tube jabbed through you… it’s not meant to be comfortable and you are going to have nausea and stomach aches because it’s not something your body naturally comes with.
Which reminds me… straight j-tubes come with a few warnings. The obvious - a more painful and difficult recovery. But one that Jaq “failed” to mention (on purpose) is the increase of daily diarrhea - for the amount of time you have the tube and then sometimes after it’s removed. A friend has a little girl (6 years old) and that was her GI’s main concern - diarrhea to the point that the tube could do more harm than good in terms of staying hydrated and keeping her electrolytes balanced. I bet Jaq’s going to regret this decision in the long run if she’s one of the lucky ones that gets the shits for life. Actually, no - it will just make her more special - and will cause her POTS to flare and she’ll be “forced” (as she cackles with glee) on to continuous fluids or even worse… TPN! I can see it all playing out now… more vlogs that start with “Admitted to the hospital to start <insert invasive procedure here>” and more coddling from her mommy and Babe and more manipulating doctors. How does this all end for her? My head hurts thinking of how she’s going to get her way out of this since she’s pretty much in for the long haul. And sadly, she’s taking her family and all of the people who believed her mockery of chronic illness down with her.
It sucks for a lot of people in a lot of ways. I’ve seen comments like, “Who cares, she’s just hurting herself.” And that’s so far from the truth. She’s hurting her family, obviously, but moreso are the young impressionable girls that have made her their idol. They’ll either be crushed or be stuck trying to make excuses for why the person they spent hours on end watching and supporting is a lying sack of shit.
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I've found Jaquie's next step, via an unrelated GoFundMe (belonging to an actual sick person).
>>474677>>[Janiece] was grinning like the Cheshire cat in anticipation of […] and excited to have her mommy reprimand her for losing weight.
What IS this kind of behavior anyway? I haven't seen this particular video, but I believe you immediately because that's what she does ALL the effing time. It's beyond weird to look at. All this "the nurses yelled at me for not eating enough", "my PCP will not be happy and tell me I should've come in earlier", "he is gonna be mad at me for doing too much", etc., etc.
It's some kind of weird mix of projection and trying to validate themselves through others. It's very creepy to watch. Especially when Janiece does it, because she is so gleeful about it.
I don't think I've ever heard a genuinely ill person say something like that. Unless what they did was really
not very smart and this 'reprimande' they are expecting is genuine and not some kind of twisted version of "they are all so super worried about me". E.g. when your 80-year old neighbour nearly fell when trying to change a lightbulb and they say 'if my son hears of it, he'll probably say "what were you doing on that ladder anyway, you silly old woman', and he would be right." But never like our cows use this way of giving themselves asspats by proxy of their husband/parent/nurse or whatever. It's SO weird and creepy to hear them say stuff like that.
I'm also beginning to think that Janiece not only uses her weight loss to get attention, but that there could be some kind of eating disordered thoughts going on. I'm not sure, but I think she likes losing weight and not just because it gets her more attention. She certainly is obsessed with it, because she mentioned in one of her vlogs she weighs herself every day. It could have something to do with the fact that she is in a community that has a lot of somewhat skinny young girls in it, of course. Janiece wasn't exactly fat, but she was kind of at the upper end of a healthy weight (ish? I'm bad at weight guessing) and she has a round face that makes her look like she's heavier than she actually is. Maybe that, combined with being in a community where feeding tubes and GI problems with weight loss seem to be the latest trend, has somehow set her off.
OK, I watched Janieces vlog, in spite of myself.
Two vlogs ago, she was lying in bed pretty much all day, and because she was 'doing something' (which she and Paul called "problem nr. 1") and she was standing ("problem nr. 2") her HR spiked to 155 and she had to lie down and elevate her legs. She even whined about this being a problem because when she raised her legs it made her tummy hurt more. Two days later, she is walking
through the airport to pick up her mom, and at the end of the day she just complains about being tired.
IF in the upcoming vlogs she will be back to her healthy self, that could be somewhat
believable. (Actually not, but let's just give her that one today.) She is planning to visit Jaquie, so she MUST be feeling better. If I was in bed all day and couldn't even make my own meals and had trouble keeping even hydrated, I would definitely NOT be visiting a sick friend. No matter how close you are, if you really are bedbound there's just no way you can do it. But unless she is getting tired of it herself, chances are that as soon as she is back home and bored again, she will be back to harassing her GI and PCP.
OR she will get some crisis while she is visiting Jaquie in hospital, and she will have to get admitted or at least go to the ER for fluids or something. That's also a possibility.
And can we talk about how SPOILED she is behaving? She is obsessed with her mother bringing presents for her, and apparently she even told her mom that she couldn't come home without presents. Because apparently, you cannot travel abroad without bringing shit home, and because she had missed Janieces birthday she had to bring double (something like that?) She is a CHILD. Almost every
adult I know would say even on a birthday "you don't have to bring a present, you being there is enough". I would feel really bad if a family member would travel abroad and feel obliged to bring me a present. Yet Janiece tells her mom that she cannot come home without one. She is talking about this pretty much the whole vlog, and also saying "I'm allowed to be spoiled" about 6 or 7 times. That is just NOT Normal behavior. She seems to have forgotten that she cannot even drink water, because she showed us all the goodies and candy her mother brought without even mentioning being sorry that she couldn't eat it.
I'd guess this is some sort of attention seeking behavior. She has the best mentor, after all. Anything to make things seem sooper serious. I keep asking myself WITAF is even wrong with JanJan. She went from just having narcolepsy and her ear issues to magically having POTS one day. They never even mention her getting tested for it. Jaquie probably "diagnosed" her kek. Unless I missed where she saw a doctor and got the diagnosis? And I totally agree - it is SO weird and creepy to hear them talk like that.
Janiece likely has an ED just like Jaq. Her strange obsession with her weight (she claims to be a size zero at one point) and her appearance being "on fleek" (hearing that phrase out of her mouth makes me stabby) is very important to her. She's likely angling for a toob or two, since one isn't good enough for her BFF.>>475324
Yes! Why in the AF, if you're as sick as she claims to be, would you go hours in the car to see (wait on) your friend? That's just lining up an ER visit at a hospital that doesn't know you, getting all of the drugs… making nurses hate their jobs in a whole new city!
It is SO hard to watch Janiece. It's like she is pretending to be dumb. Mispronouncing words, saying hipster shit, saying things like "we are demanding more testings!" Is she really that stupid?
Just watched a Jaq video from around Christmas last year and she talks about "coming out" about her Autism and how Judd was so proud of her one day when they went to breakfast… she said something along the lines of, "Judd was so proud of me. He said I could have thrown a fit and refused to stay, but I powered through breakfast and it made him proud." More child-like behavior, just screaming mental illness… but nope, guys. She doesn't have any mental illnesses. Come on? The words "I could have thrown a fit." came out of the mouth of a then 20 year old… but it's okay, y'all, it's because of her Autism. kek
They're all children when you think about it. Judd with his Star Wars toys, Janiece with her pouty temper tantrums, Jaquie with… well, we don't even need to go there kek… I think Paul is the most normal of them all. I bet he hates life married to Janiece. All Jaq and Janiece all the time. God forbid anyone else have the camera/attention. The Autistic breakfast video is attached… there's more than that to make you want to throw up a little in this video. She's even using Harlow for counterbalance… but justifies it so she doesn't get blasted for doing it early… by saying her vet approved it.
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This is just disgusting. Early access to what I'm guessing is some OTT pre-surgery video? This seriously rings true to the description of this thread - people pay her to be sick and for early access to her dumbfuckery. And not even her $2 Patrons get access! $5 and up only.
I also noticed on a different Patreon that there is an option for the creators to show how much their Patreon rakes in per month. Jaq, of course, has this amount hidden. She sure has figured this business out pretty fast. Gone from a "vee-logger" one year ago to a YouTube and Patreon baller.
"I could barely handle a noisy restaurant!" …cut to fucking Downtown Disney. This bitch triggers
my sperg rage so hard lol.
Also I love how Judd is saying he's bored after being out with Jaq for 20 minutes. You can really feel how much he hates his life.
When I watched that video, the video that was recommended to me right after was this one about an allergy test. I don't think I had seen that one before. It's funny because she talks about how glad she is that they numbed the area with EMLA cream first, and that she also uses EMLA with her port needle changes. She even says somewhere "EMLA to the rescue!"
So, so be clear: this is before someone told her that local anesthetics don't always work that well in patients with EDS.
The thing is: this is not the only video where she mentions locals working great for her. The most poignant example is with her port placement when whatever benzo's they gave her didn't work and she was wide awake during the surgery. "But they numbed it, so there was no pain". This is ALL out there for anyone to find and watch. I don't get how people who have been following her for a while don't notice this. Recently, she tried to tell us that locals don't work for her at all
(which is unlikely even in true EDS) and now with her tube surgery she even says that stuff like narcotics don't work for her so she needs a lot more of it. Judd said this in her surgery video too, so he probably believes her. HOW is it that he doesn't remember that locals worked FINE for her just a year ago? How are her fans ignoring this and are all going "poor Jaquie" when it comes to her post-surgery pain management? I don't get it. I really don't. At this point, if people are believing her and have been actively following her for a while, they just don't WANT
to see it, imho.
I'm watching that vlog right now. The Patreon promo is so we can get "huge notice" (whatever that is??) of "huge events like this one". How does her going to see a friend qualify as a 'huge event'? Such a 'huge event' that people would be willing to pay to know about it in advance?
I also get a feeling she doesn't know what the word shenanigans
means. I mean.. I'm not a native speaker, but I found it odd that she uses it in a context of her and Jaquie hanging out like in "our shenanigans". Still, that one I could understand a bit as it can be meant in a playful way. But now she is talking about her packing her stuff and calling that the "shenanigans of the day"? That doesn't make much sense to me. Or is it just me?
Also, if it is true that Jaquie guilted her into coming over while Janiece told her she didn't know if she could do it because of her health, she is just being a bad friend. Not that it is suprising, but still. Janiece even says that Jaquie called it "their tradition" to come over "whenever one of us has a big surgery". Uggggh. That's SO weird and unhealthy. First of all: the only surgery that either of them has ever had that could
qualify as 'big' is Jaquies current feeding tube placement. But even that I would personally hesitate to call 'big'. It's not an all too minor surgery, but also not a very major one. I don't think she had to spend the first night in the ICU for example, which is common after major surgery. Second: ANY 'tradition' surrounding surgery
FFS is just crazy. There's just no other words for it. Although: unhealthy, nuts, bonkers and bananas come to mind, as well.
know that, you
know that, and most other farmers would know that as well. The majority of the people claiming POTS online though, don't seem to have gotten that message. Because they freak out whenever their HR is over 120 or 130. Sometimes even when it is above 90. I mean, it's a tad high for a resting HR, but for some people it is normal. Especially if you're out of shape, which if we're being honest seems to be a better explanation for most of the shit we see from cows claiming POTS than, you know.. POTS.
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Can't hold that smile back when mentioning that she still has her pain pump.
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Wellll.. hospital blues I personally find kind of normal. Being up almost all night, all th noises, being in pain, different people next to your bed, being alone most of the time.. I'm in my thirties, but when I'm in a hospital, in a lot of pain, not knowing what the next day will be like and when you'll be able to go home, I sometimes cry with little provocation. Especially at night when you're feeling lonely. I think many people would be emotional in her situation: in pain, feeling out of control, and frustrated. Also, apparently her doc didn't tell her that urinary retention is common after GA and with the pain meds but is blaming her other conditions. I imagine it would be frustrating not being able to pee and after a few days feeling like you're not getting better but going backwards with an indwelling catheter.
So I don't judge her for having a breakdown. I just judge her for exaggerating it, for being a bad actress and for having her husband film it. And for editing it, for putting it in her vlog and for uploading it. Also for chosing it as her thumbnail and for editing an even more dramatic text in it and for drawing even more attention to it by doing so. That's all, really.
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She and Janiece suffer from selective memory of illness quite often. This pic though kek she’s transformed into crybaby chronic illness Medusa.
I feel like Jaq went into this feeling like it would be a walk in the park since she grilled her surgeon with over 30 questions and 2 visits. Somehow she convinced herself that it wouldn’t be this painful and/or the pain is worth A) the few days she’ll be hooked up to her Lah-Lah pump. I bet it was mentioned to her at one of her pre-op appointments that if her pain is to severe that they would switch to a PCA. She is really good at lining all of this up to look unplanned but she’s a ruthless lying addict jonesing for her next fix. B) a new piece of medical porn C) the chance at being the illest. You get the point.
A brief rundown of observations in this video:
- Random: she mentions “her personal doctor that knows her well is on her case” almost like she’s referring to one of those overpriced concierge doctors. I’ve learned that when she explains her doctors reasonings for things that seem OTT, she always puts in the “doctor xyz knows me well and I trust his decision as a compassionate doctor to cut my perfectly good leg off.” As if she’s trying to convince herself to believe her lies. It’s like her over-explaining every other unnecessary treatment or medication prescribed that are not needed and sometimes unethical.
- Starts out with Jaq explaining how they were able to “abort another severe allergic reaction” with her magical IV Unicorn Blood AKA Benadryl. So now she’s getting (that we know of): IV Dilaudid via pump giving her that much needed “control” she mentions often, IV Ativan for those pesky “spasms” that are causing much pain, IV Benadryl to abort those turrible allergic reactions. I wonder why she stopped calling them angioedema attacks? How does one distinguish a mast cell reaction from an angioedema attack? Oh, and IV Toradol and IV Pepcid because Jaq states, as she films the nurse pushing it, that IV is the only version of the med that helps her heartburn. She loves watching the nurses push meds and it’s almost ritualistic. She gets a rush from it.
She made sure to validate to us that her use of the dilaudid pump is needed when she mentions that a nurse came in and said she looked bad and told Jaq to push that button, girl! Of course, our little opiate tolerant friend obliged. Then we get the obligatory breathing treatment puffing followed by her whining about the surgeon wanting to start her tube feeds that night (Tuesday).
Harlow comes and “lifts Jaq’s spirits” as per usual when her pet comes for a visit. Then it’s right back to Jaq not being able to go peepee on the potty like all of the other munchies can after their completely unnecessary surgeries. Judd gives an awkward room tour where Jaq repeatedly states that she hasn’t even seen the bathroom because I’m not sure if y’all know, but she can’t pee!
She does her little speech about how the only reason she is able to function and talk is “because I have MY dilaudid pain pump.” Jaq gets straight cathed a handful of times and it causes her to boohoo when Judd seems tired of it and just tells her to go to sleep. She pouts about how her pump beeping is ruining her day and making her cry.
She continues to whine about pain and how bad it is. Nothing is helping the spasms. Not even IV benzos. Seriously though, she’s got to have a crazy tolerance because any normal person would be dead asleep drooling and soiling their bed in their sleep. Oh, forgive me… it’s her EDS that just makes her immune to the sedating and pain killing powers of narcotics. If she metabolizes meds so fast, wouldn’t you think by now that between her BS speech about how EDS makes her metabolize meds like a fucking hummingbird and building a tolerance - how is her IV Benadryl still 100% effective (almost always now no epi is needed) at “aborting” her mast cell/angioedema shitstorms?
She states at one point when she was really emo that she was upset because she didn’t have any control. Huh? You’ve gotten everything you’ve angled for and then some.
Then she has more spasms and another reaction so more benzos and Benadryl. Again, how is she not in a medically induced coma at this point?! She finally gets a Foley and then tells Judd that it’s making her uncomfortable. And as always, Judd gives a lame husband response about “how she just needs to think of the catheter as another ‘tool’ for Jaq to get better. Blahbittyblah.”
At some point Jaq has Babe set up her speshul pump from home and has him set the rate to that of an infant as she proudly counts the number of things coming out of her body: cath, port, g-tube, j-tube and I missed if she also had a peripheral IV. Then we get the whole “thanks so much for being here, babe.” At some point he puts her “fun socks” on to her crypt keeper feet because she can’t. And to finish it off, Harlow comes and Jaq forgets to pretend she’s in pain and does her whole “Harlow makes me so happy” dealio… we really know she’s happy due to other reasons. But she needs it, y’all.
I thought at one point we saw a peek at real, vulnerable Jaq but quickly realized it’s all for the camera as she films herself having a meltdown/pouty tantrum.
It’s amazing how she’s able to record footage and edit with this terrible pain. Oh, wait her lala pump makes her super spoonie.
Pretty sure she meant in one go. She mentioned before that they cathed her and 600 cc came out and she thought that was really
much. Well, it IS too much in a sense that you should be able to feel that and you should be able to go, but it's not that
much. With acute retention, a bladder can hold 1000-1500 cc easily. Sometimes when people come in with it, the bladder has stretched so much that it holds over 2000 cc's. Obviously that's way too much and it would'be been better if that patient would have came in sooner and ideally the bladder shouldn't hold more than about 700 /800 cc in a normal situation. I know that for EDS it's not uncommon for patients without
retention to hold up to 1000 cc without real discomfort. It seems strange to me that Jaquie and her doc consider POTS/dysautonomia as a cause for her bladder issue, and not EDS. Even worse is them not mentioning that the meds could contribute to it.
The same goes for her spasms: zofran can cause dyskinesia. Though I am not sure what she means exactly when she describes her spasms, it could easily be a side effect of one of the many meds she takes.
And to your question whether she thinks your kidneys don't filter fluids when they are taken IV: I really
couldn't tell. She once said about her home infusions that she did NOT pee more during her 'infusion days' because, and I quote: "I guess my body needs
So.. there's that.
Ketamine - can give you a high
Dilaudid - can give you a high
IV Benadryl - gives you a high
IV Zofran - no high, but blocks the uptake of serotonin, similar to an antidepressant
IV Pepcid - pretty much the only med she’s taking that can’t act give you at least a buzz. However, it’s the exact same as the oral tablet (which can be crushed and put through a feeding tube, although most people with GP are on much stronger antacid meds than that)
IV Ativan - totally can get you high, lots of people end up in rehab for benzo addiction, and they’re just taking the pills
I’d say her main issue is pretty clear.
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Never fear, Janiece is here to make our favorite patient laugh which of course makes her have more pain… but all in the name of finding joy and moving forward for this cow… and milking it all for the $$$.
Janice has to learn the tools of the trade somewhere. Also, everyone try lifting up your arm like that right now. It totally moves your abdomen around, which you would think would kill if you’d had surgery that was painful enough to require a dilaudid pain pump. >>475694
It is definitely bizarre. She needs that pain pump but hasn’t skipped a day of recording, editing. and uploading her vlog, plus answering followers’ questions? That sounds exhausting for even a healthy person.
Very good point!
Also, I hope everyone noticed that because she uploaded two vlogs today. It means that she has basically not missed a full day of vlogging/editing from her surgery. So all that shit talk about how she "will be in in too much pain to upload" is BULL FUCKING SHIT. The only reason she didn't upload the day after is probably from being over drugged and not from pain of the surgery at all. Also what else is she going to do considering she thinks she is bedridden and can not even walk to the bathroom.
Shhh… next up is a good ol’ fashioned pulmonary embolism scare now that she’s proclaimed to the world: She peed, y’all. Need a new problem so she gets to keep the pump.
“I am so extremely nauseous.”
“I have not eaten anything since surgery.”
“O, wait. There was that ice cream I shoved down my fully functional pie hole… for the emotional reward, y’all.” Always justifying why she eats shit with some ridiculous lengthy story about why and how many “nibbles” she took.
How in the AF is she STILL hooked up to that pump? We’re going to have some fun vlogs next week when she gets sent home without her precious pain pump… and starts getting withdrawal symptoms. Even a week on Dilaudid is hard to come off of. I bet she’s going to get withdrawal symptoms and then emergently run (roll?) to the ER thinking it is her POTS that’s causing the sweats, tachycardia, chills, etc. Nope, just good ol’ detoxing.
The AMT focus is so strange like she’s getting some kind of reimbursement or something. It’s just weird how she uses certain words when describing the hardware.
Her teeth were horrendous from all the vomiting but like magic are great now that she can vent with her cute lil’ buh-on. Yep, keep telling yourself that.
The most recent upload just screams how they are just turning in to bigger attention whores. Judd is getting worse as he gets pulled more and more down this highway to his own personal hell.
Oh, to be her nurse. She must be such a peach.
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Ok I have not posted a picture here before ,so i may get this wrong . I got a few of the notice board but obviouly to zoom in or magnify ot blurrs it. This is the best I got.
"Pain less than 4"
"Use button on pain pump for pain ____."
"Zofran ____ after"
"Benadryl _____ after"
Can't read the last line.
Also, addicts take benadryl and benzos to potentiate a high. I'm sure she's aware they make the dilly stronger, lol.>>475748
Yes! The longer she stays on the pump the worse it'll be…unless they send her home with something strong enough, which I'm sure she'll angle for.
Yeah it’s that weird manic state she gets into when getting her medical porn needs satisfied. She does that a lot early on in her vlogging - she truly ran out of breath when she was describing how much she enjoyed accessing her port for the first time. It was seriously strange.
I just wonder how this is okay that she’s filming all of this, likely without permission. It seems unlikely that a hospital would be okay with patients still at the facility posting videos (often of staff) that could potentially show them making a mistake or something. It seems like a huge legal no no.
Also, what truly sick and recovering person that is actually sick and recovering would even have vlogging on their radar… let alone daily vlogs, and like today, more than one. It is just astounding that she still has people giving her asspats and prayers crawling farther and farther up her ass… oh and money.
Anyone know what that live feed was?
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You do realize Judd gave her ice cream for breakfast because she was sad and ice cream makes toddler Jaq happy… she admitted that the ice cream was the only thing she’s eaten since surgery.
Now, I’m no pro, but when gastric bypass patients get a Roux-en Y, they are on a strict liquid (clear usually) diet starting on day 1 and given tiny cups of liquid to drink every few minutes to promote regenerating digestion and healing their newly reconstructed guts. Somehow that advancement seems more sensible than fucking ice cream. Pretty sure her surgeon wasn’t like: kek surgery done! Here eat this ice cream.
How does anyone with common sense (Judd?) think that ice cream after major abdominal surgery is okay? They really are dumb.
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I’m just gonna leave this here. But seriously I wish Jaquie would address this whole “muhhh EDS means I need all the painkillers” bullshit, cause my understand is that most (LEGIT) EDSers either can’t tolerate narcos well or respond the same as anybody else.
I mean she hasn’t said it again since the first vlog so maybe she just got tired of being called out and now she’ll stop spreading dangerous misinformation? Unlikely, but that would be ideal.
I knew of someone with terminal cancer, in home hospice, with fentanyl PCA that family was allowed to push for the person. Still on 10 min intervals. Dying - so it really didn’t matter if she got ‘too much’. But still PCA still locked out if pushed more than every 10 min. 7 min does seem very odd…
I had every 20 min after a huge spinal fusion surgery. Didn’t really feel the need for Diloooudid.
Sage for blogging.
She casually mentions it a couple times, mainly when she was in pre-op telling us how she told the doctors of her special immunity to sedation, intolerance to Fentanyl (gotta angle for her Cat Valium fix), and her need for two doses of Versed before she even goes into the big skurry room with skurry people saying skurry things.
It’s okay though, she’s not mentioning it because Judd has taken over letting us know how fast she metabolizes everything. So much hurt. All of the narcs and benzos and Benadryl.
Plus add in the fact she just had Ketamine to go under and then whatever general anesthesia meds used during the surgery. She should be dead to the world not wimping and whining for more dilaudid. O, maybe… her amazing teemz didn’t reach her magical “therapeutic dose” for no paaaaaaaaaiiiiiiiiiinnnnn! kek
She can't be locked out every 10 minutes though if she is supposedly on an every 7 minute timer.
I'm genuinely curious (nursefag here) as to what her dosage of Dilly is. Can anyone zoom in on the pump numbers?
Exactly. That’s why nurses swab patient’s mouth with water to keep mouth moist, in part to ease transition when extubating if a pt. is left incubated after surgery/trauma/whatever.
Also, if she truly had trouble speaking due to post-intubation abrasion, she wouldn't be able to vlog at all, IMO.
For all we know - with the short timing of her procedure, she could have gotten a lyrangeal mask, which is easier on trachea/epiglottis than an endotracheal tube.
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Normally I can't stomach the comment section to wade through the asspats and find the needle in a haystack but these gems were all towards the top of her bone marrow biopsy vlog. Maybe this comment is where she got her idea about EDS and pain meds?! Also double kek at the comment at the bottom
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Oops forgot the picture
Actual EDS/GP fag here. Most people I know with these conditions actively avoid narcotics at all costs. Also, I don’t know what she’s talking about with this ‘EDS makes me immune to the effects of narcotics’ BS. My experience has been the exact opposite. Tiny doses knock me out for the day and completely shut down my digestive system. The digestive consequences are excruciatingly painful, usually worse than the pain of whatever I was taking the meds for to begin with. Same with zofran. I don’t understand how she can even take it. On top of that, if she really has MCAS, how is she being allowed that many pain meds? How is she even tolerating them? They are known triggers
for MCAS patients. What a lying twat.
She’s never described it like that - almost dystonia-like from her newest symptom description. She has mentioned “undiagnosed muscle pain since infancy” before though. And at one point she saw a new neurologist or rheumie to “look into those symptoms from childhood” in her adventures in collecting diagnoses. But who knows what happened there… she likely went to the appointment, was called on her BS and moved on to the next sucker.
She also has started using the phrase “personal physicians” in this recent week. She talks about driving over and hour and a half from home to “get quality care” AKA go wherever she can snow her “team” into handing her the D on a silver platter. That term “personal physician” really sounds like maybe it’s Daddy’s private doctor or maybe his money buying the “quality care” concierge care she seeks. So basically Babe and Mommy have to drive an hour and a half each way to tote her happy pet dog back and forth… and Mommy is also going to work during the day and Judd’s off doing cop stuff. Running ragged for their selfish ass brat. But she’s so courageous and brave according to Mommy.
Because she is an addict kek
I don't get how someone is prescribing all of this though. Surely SOMEONE must look at her med chart and just go WTF?
I fucking hate to ape on "Team Jquie", but she has has abs=do surgery, and open abdo surgery, well it God damn hurts. I am giving her a few (2 more days)and then I will call bulls**t.
Even though I called bulls**t a long time ago!
Was it open or laproscopic? Roux en y is most commonly laproscopic.
She is sitting upright etc. in order to be in the positions she is in in photos I honestly am not willing to give her that much slack. The first 24 hours after any surgery, including laproscopic are pretty painful/ horrible due to the GA etc but beyond that, with how much she is managing and how much medication she is getting she is just bullshitting.
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O wow, I'm pleasantly suprised at the quality of my screen. I thought about making a screenshot when she first posted it, but decided not to because it was so clearly visible that I assumed everyone would be able to read.
"use button on pain pump for pain relief"
"Zofran available after"
"Benadryl available after"
"Start tube feeds"
And what's not in the picture but someone already had: "pain less than 4" and "use bathroom" as goals for the day. Also who her nurses were on that day, kek.
It was an open surgery. I don't know why though. Apparently because the surgeon said it was better?
So yeah, open abdominal surgery is just very painful. BUT she is able to talk to the camera and to edit vlogs. I am sorry, but if you're really in so much pain, you just are not able to do that. Even a normal conversation with your loved ones is very hard to do if you would be in the amount of pain she is claiming to be. I think that's more the issue than the fact that abdominal surgery is - by it's nature - pretty rough on the body.
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Good catch, anon! Isn't it amazing what you can find out while watching these vlogs? I wonder if the vloggers are aware of this. We could read the names and beeper numbers of her nurses FFS.
Anyhow, I went ahead and entered that number in http://clincalc.com/opioids/
to calculate the equianalgesic dose to morphine. Attached are the results for IV/IM morphine first and then for oral morphine. That's the maximum dose she can get an hour. So if you calculate it to 24 hours (as you would to with oral meds) she could get the equivalent of 840 mg oral morphine per 24 hours. That's a LOT. Like, a LOT a LOT. Of course, patients on a PCA pump usually don't max themselves out and most studies show that patients actually require less
pain meds when they can control their own pump. Of course, those studies aren't done with addicts nor with munchies..
Also: note that I did NOT correct for cross-tolerance.
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Kek. I wanted to double check my own work and entered her 24-hour maximum dose (1.75 times 24 = 42) in the calculator. This is what I got.
It does seem like a lot of Dilaudid, but when we give patients it where I work we usually push 1mL at a time (for legit, severe pain). Granted this lasts 3-6 hours, but it kind of puts into perspective how much our sweet snowflake is milking this. 0.7 might have made her feel great at first but patients do develop a tolerance, and if they aren’t upping her dosage than it’s quite obvious they want her off of it. There’s no way they’ll send her home on IV dilaudid.
Oh, and as you all know opioids cause some immense constipation. Maybe her spasms are related to the fact she’s full of more shit than usual.
In all honesty, I have no idea what a normal post-op dose for a surgery like this would be. I also do not know how this specific surgery compares to other abdominal surgeries like a gallbladder surgery (which is quite minor) or a more major surgery where they would say remove a bladder and create an ostomy or another kind of surgery that's a bit more extensive. If anyone has experience as a nurse, doctor or even a loved one or patient with this specific surgery
and knows what the protocol would be like, I'd really want to hear from them.
Having said that.. I find it telling that they only gave her the pump after she was out of surgery for a while. When you have an operation that is known to be very painful, they will set it up in advance. They would either set you up with a locoregional pain block for the first 48 or 72 hours, or they will speak to you about a PCA pump before
the surgery and the patient would be set up with one right out of the OR. The fact that she only got her PCA after she was out of recovery for at least a few hours would - in most hospitals, that is - mean that it is not normal protocol for this surgery to set up a patient with either an epidural for post-op pain relief or a PCA system.
I am really
curious if Jaquie told her doctors also that she metabolizes opiates "suuuper quick" due to her EDS, and how they responded to that. Either
1. they are as stupid as they seem and they just believe her (which doesn't seem likely though, especially as it's the anesthesist that decides on post-operative pain management and they should know
this shit) OR
2. They told her that she is misinformed about that, which also seems unlikely because she STILL repeated that lie when she was out of surgery OR
3. They know it isn't true but just let her ramble and thought "we'll just see". Which also doesn't seem very likely to me.
But knowing Jaquie, I DO think that she told her doctors this, because she was clearly terrified of being in much pain before her surgery. And she probably still is: she doesn't seem to be able to handle much pain, because she is sitting up and basically doing her job (video editing) which should
tell you that she is very OK, yet she STILL whines about how much pain she is in. I wouldn't be so harsh on her if she didn't clearly show us how completely fine she is because it's surgery and it plain HURTS, but if you're able to sit up and edit TWO vlogs on a day, you don't need to be on a pain pump and you don't need your mommy to sleep in your hospital room either.
I knew it would have to be less than .5mg. There is just no way they would even allow 7min for a higher does than .5mg.
Sage me hardcore for blogging, but after my lung transplant I was in a ton of pain (they crack your sternum and lift up your ribs if you didn't know) and my PCA was increased from 2mg every 30min to 5mg every 15min (not .2 or .5 but the whole 5mg). So if you look at the difference in dosage to a seriously in pain patient vs a not in pain person than you'll see they gave her the precious pain pump she wanted but they gave her a teeny tiny dose so that she'd stop calling the nurse call button. What I learned about being on the PCA is that yeah you cant click the button every 15min but you have to remember to. So unless you have a timer that alarms every 15min you forget how much time has passed and only end up getting like 2 doses an hour. Ever since that experience I don't prefer pain pumps. I actually like the every 2 hours the nurse administers becau